A Vibrant Life - One Couple's Journey With ALS

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  • Опубліковано 7 вер 2024
  • Jon Ferraiolo has seen a linear decline in his motor neuron functioning since he was diagnosed with ALS (also known as Lou Gehrig's disease) in 2014, but the Palo Alto resident and his wife, Karen Kang, have decided to transcend the disease as best they can. Video by Veronica Weber, Weekly staff photographer/videographer.

КОМЕНТАРІ • 106

  • @carolbraswell4488
    @carolbraswell4488 5 років тому +25

    I love this man! His wife and his girl's are so blessed to have him and him have you all!!

  • @maryzambrana7141
    @maryzambrana7141 2 роки тому +7

    Yes, the people are wonderful with one another, but I couldn't help loving the way that their dog was right by their sides and on their laps throughout the video. Such love all around. 🥰🐾

  • @carolanglin1083
    @carolanglin1083 6 років тому +30

    Thank you Karen and Jon for sharing your journey with ALS. It is with tears in my eyes and tremendous joy in my heart that I just finished watching your story. What a beautiful family - I am honored to know you.

  • @applejellypucci
    @applejellypucci 5 років тому +21

    Jon seems amazing with an equally amazing wife.

  • @allaboutroofing2
    @allaboutroofing2 3 роки тому +9

    I love his sense of humor, courage and his smile. 🙂

  • @stephaniemccord6100
    @stephaniemccord6100 4 роки тому +8

    What a wonderful man. So glad he has a family that loves him so much.

  • @madeleine7411
    @madeleine7411 3 роки тому +6

    John...you are gaining a lot of admirers! You are happy in your marriage and family and that is so so obvious. I wish you the very best, and Karen will make sure you are given the very best. Karen made a very good choice when she married you. You and Karen have something quite special.

  • @missdoglover1644
    @missdoglover1644 4 роки тому +5

    Such an amazing family. It’s an awful disease but it’s so lovely to see how strong and in love they are. I was diagnosed with Multiple Sclerosis in 2012, at the time I grieved for the loss of my good health, I worried constantly about the future. My MS nurse really taught me about living for the day with the words “all any of us have is today, tomorrow is not promised “.

  • @austenwoolf981
    @austenwoolf981 6 років тому +15

    An inspiring story whether you know this couple or not. I know them and love them, and am more moved than I can say. I hope I can face the difficulties sure to come as I get older even half as well as Karen and Jon are facing theirs.

  • @christyboatwright3942
    @christyboatwright3942 5 років тому +7

    What a wonderful family. His smile is awsome. My 23yr old daughter was recently diagnosed with ALS. It's a hard thing for her to except well for anyone. May God bless.

    • @gianluigiprovora
      @gianluigiprovora 4 роки тому +2

      23 years old?
      Very young for this disease.

    • @barraqaalim7459
      @barraqaalim7459 4 роки тому +1

      sincerely my dad was diagnosed with ALS early this year march to be precisely, and was so confused because I love my dad and wouldn't want to lose him so soon so I decided to look possible solution to ride of this ALS despite knowing it has no cure advised by the medical doctor. Everyday my dad's health depreciate keep losing weight and strength a friend advised me to try DR OKOLO ALS herbal formula that she use to cure her dad's heart disease and I was reluctant about it until after a second thought I decided to give a try because no harm in trying immediately I contacted him he assure me my dad will be cured within few weeks of medication and he sent me the medicine and I applied it on my dad as advised by DR OKOLO within 6weeks of using the herbal formula my dad was cured and my dad is free from ALS I went to the hospital that said there is no cure to ALS and informed them about my dad's healing and they were surprised you can contact DR OKOLO via email drokolosolutioncenter@gmail.com via WhatsApp+23407031895935 he also cured diseases like
      HIV/AIDS
      HERPES
      CANCER
      DIABETES
      etc......

    • @macclift9956
      @macclift9956 2 роки тому +2

      The cause/cure needs to be found. What do all people who have this condition have in common! All information should be pooled, surely! There are a number of possibilities: 1. iron overload - supplements can cause problems in people who don't do well on extra iron; cod liver oil can raise ferritin levels (iron storage) dangerously high which can lead to infections (I have article/comment that describes a first-hand experience with CLO culminating in infections and hospitalization). All supplements especially oils and fat-soluble vitamins should be used sparingly and with caution (watch out for side effects).
      2. So many people with this condition were super fit at some point; does overheating the brain through chronic exercise perhaps cause damage to a certain part of the brain?
      3. As mentioned in point 2, do certain drugs, antibiotics and any unknown factor (energy drinks perhaps) overheat the body/brain causing damage in susceptible (for whatever reason) people.
      There has to be an answer lurking somewhere!

  • @sergio446
    @sergio446 5 років тому +8

    Did he said that its easier for him than for her??? What a man... incredible actitude... I guess that strenght comes from his wife also and for their relationship but I wish I could have that mindset....

    • @missdaydreamss
      @missdaydreamss Рік тому

      It's a man thinking like a man. What he was taught. All respect to this amazing man. But man don't realize women usually take alot of pain and hurt bc they are more use to it and taught too.

  • @sherrymcclure1049
    @sherrymcclure1049 4 роки тому +4

    What an awesome, gracious couple. And I love his sense of humor. God bless them.

  • @susancannon6240
    @susancannon6240 5 років тому +9

    Absolutely beautiful! Life is truly about living and not just existing.

  • @hellenralesai9176
    @hellenralesai9176 4 роки тому +3

    He still manages to smile even in this terrible situation.. He's soo painfully handsome. Yes we don't live to die. We live to live. That's how it's supposed to be. God bless this family tremendously

  • @purplelilac1387
    @purplelilac1387 4 роки тому +5

    Couples could live 100 years and not share the bond you have. Im so
    sorry

  • @ellexpress111
    @ellexpress111 6 років тому +6

    Beautiful inspiring couple. God bless you both and your precious family.

  • @cathymarble3283
    @cathymarble3283 2 роки тому +2

    His wife is blesses to be able to afford caregivers. My husband had Parkinson's Disease and I did it all.
    It's a long, exhausting haul.

  • @fenderstratADHD
    @fenderstratADHD 5 років тому +5

    John seems very happy. May god bless you sir

  • @naomisgram1
    @naomisgram1 3 місяці тому

    He had such a good heart, thinking of others and his family before himself ❤😢

  • @saverns
    @saverns 2 роки тому +2

    44 yrs and their love still shine. Just look at her laughter. Amazing! This is what marriage supposed to be.. Til death do them part.

    • @kandiceblu1
      @kandiceblu1 6 місяців тому

      In sickness and in health Till death do us part

  • @pattykochenower4222
    @pattykochenower4222 3 роки тому +4

    You’re such a beautiful family , blessed to have each other and I love your love story ❤️

    • @deltamahar4254
      @deltamahar4254 Рік тому

      That's my same story...my husband died in 2013

  • @edwardcheng247
    @edwardcheng247 6 років тому +6

    This is beautiful-thanks so much for sharing.

  • @zintaerdmanis7883
    @zintaerdmanis7883 5 років тому +5

    My husband lived and died with ALS. With dignity.

  • @kellyhill4613
    @kellyhill4613 3 роки тому +1

    He is blessed to have her as his wife

  • @kellyhill4613
    @kellyhill4613 3 роки тому +3

    She is such a wonderful lady

  • @denisepickering9309
    @denisepickering9309 4 роки тому +1

    You are a wonderful couple I am so moved but happy. John's smile he lights up the room. Your love for each other is just so beautiful. Your wife daughters they love and adore you. Family life still go's on and you are a big part of this John thankyou and god bless x 💖

  • @Jenz123
    @Jenz123 5 років тому +3

    God Bless you both. It’s beautiful and so uplifting to see and hear your courage and strength through your struggles. You both have touched me and given so much hope to people. God has a plan for you and your family. When the time comes to meet your Creator, your body will be perfect.

  • @janheard3826
    @janheard3826 4 роки тому +2

    They don’t look 60. The lady looks about 54. She’s a truly lovely person. He is lucky to have her.

  • @flowersflowers5070
    @flowersflowers5070 Рік тому +2

    My best friend died with ALS. I told God if I had a choice of cancer or ALS... GIVE ME CANCER PLEASE.

  • @user-id8lw9oy4x
    @user-id8lw9oy4x 28 днів тому

    Nice video. Very positive and uplifting ❤

  • @msuehale
    @msuehale Рік тому +1

    Such a very brave person.

  • @leleharrington-perkins7276
    @leleharrington-perkins7276 4 роки тому

    God bless them both. Karen looks like my mom. My mother is Korean and I am half Korean and half black. My mom had a heart transplant last January. Life is short but also precious. Enjoy each day while we have it.

  • @cherylstone1684
    @cherylstone1684 5 років тому +1

    love the strength of the family and the support!!!!

  • @your1olney995
    @your1olney995 4 роки тому +2

    This woman is amazing. They are a match made in heaven! 🙏🏻😇💞 Beautiful!

  • @justicewillprevail1106
    @justicewillprevail1106 5 років тому +3

    Wow... so inspirational.

  • @elmobolan4274
    @elmobolan4274 2 роки тому +1

    What an amazing couple!!!

  • @juliejamal9877
    @juliejamal9877 3 роки тому

    Thank you Karen for your beautifulwords. I needed to hear that

  • @mom2huskies
    @mom2huskies 4 роки тому +2

    Such a beautiful family.

  • @davidkellar6732
    @davidkellar6732 5 років тому +5

    Good attitude

  • @ambermarchand1419
    @ambermarchand1419 5 років тому +3

    Love this!!!Inspiring

  • @joyceanthony9526
    @joyceanthony9526 4 роки тому +3

    Is this man still alive? It’s now August 2020

  • @Buffalo-n2y
    @Buffalo-n2y 4 місяці тому

    What a beautiful couple ❤love and prayers to you both ❤️ 🙏

  • @catherinerose1607
    @catherinerose1607 4 роки тому +1

    What a lovely couple.

  • @bronte6364
    @bronte6364 3 роки тому +2

    A true love story.👍💞

  • @amydavis3627
    @amydavis3627 3 роки тому

    Lost my father nov 14, 2020 after about 3 or 4 yrs, I have trouble remembering how long because there was 1 whole yr without a diagnosis, so I'm guessing between 3-4 yrs, horrible disease, he choose no life prolonging measures, besides a feeding tube, it was sad seeing him struggle to breath near the end. He went home on hospice after a week long stay in the hospital beginning on labor day.

  • @robertamooney7781
    @robertamooney7781 4 роки тому

    This is a great story, but unfortunatly not all ALS patients are as lucky. Most lose friends and family. Many have no help other than husbands, wives or their children and many are even in nursing homes due to no one at all to care for them. Most also can not get all the helpful tech, gadgets or equipment needed to deal with this horrid disease. Many end up in nursing home because they can not get help with home modifications needed to stay in their home. I love that they are sharing these stories to bring light to ALS, but how about showing the ones who lose more than their limbs!!

  • @emeraldkimble7602
    @emeraldkimble7602 2 роки тому

    Good Boyer lift demo

  • @kinggrooms7473
    @kinggrooms7473 4 роки тому

    Wow just out of nowhere that’s the worst part from 0-100 quick that sad and scary

  • @scottlee8498
    @scottlee8498 4 роки тому

    Amazing family.

  • @brianvivickers3712
    @brianvivickers3712 2 роки тому

    God Bless them 🙏🙏

  • @emilywilliams6157
    @emilywilliams6157 2 роки тому

    You're very kind doc Jude Robert. You have given me reasons to live again. Thanks for reversing my als disease with your her bs. #drjuderobert

  • @sychophantt
    @sychophantt 2 роки тому +2

    ALS is worse than death :o(

  • @jenniferjohnson9733
    @jenniferjohnson9733 4 місяці тому

    ❤❤❤

  • @ghirardellichocolate201
    @ghirardellichocolate201 3 роки тому

    Unfortunately mice carry all kinds of diseases. You know the old saying about a champaign for beauty. #Champaign#White + (Charcoal) The inability to...

  • @firebellymel5557
    @firebellymel5557 2 роки тому

    💕true love

  • @user-sj5pc3dq5f
    @user-sj5pc3dq5f 10 місяців тому

    Caleb Hoffman video santa-claus 😊😅😮

  • @ghirardellichocolate201
    @ghirardellichocolate201 4 роки тому

    Ever tried Alphabet pasta for children? It works! ABS pasta.

  • @bigboy9983
    @bigboy9983 2 роки тому +1

    No mention of any god belief. So refreshing.

  • @nancymosby7369
    @nancymosby7369 3 роки тому

    ❤️

  • @juliejamal9877
    @juliejamal9877 3 роки тому

    Are this testimonies regarding a cure by herbalist real or what?

  • @haleypennington5199
    @haleypennington5199 5 років тому

    Permobl wheelchair

  • @MsNkrao
    @MsNkrao 6 років тому +1

    I discovered root cause of ALS MND don't want money wants faith do what I said I Will guide to cure

    • @oletikesava6329
      @oletikesava6329 5 років тому

      Oletikesava05@gmail.com this is mail ID sir please provide your contact information tq sir

    • @penisternamusonge2149
      @penisternamusonge2149 4 роки тому

      @@oletikesava6329 penister namusonge@gmail.com . my sister is diagnosed having Als.now she is unable to do anything plz plz for asist with the way I can get the herbs.

    • @michaelsinnott2226
      @michaelsinnott2226 4 роки тому

      Excellent man you will be blessed.

    • @cricketindia52
      @cricketindia52 3 роки тому

      Sir plz reply
      mohd.salmanshaikh16@gmail.com
      As my father is diagnosed with mnd plz help