Adventures with EDS : EDS UK & HMSA Conference 2017 || Top 5 things I learned ||

Adventures with EDS shows my experiences with Ehlers Danlos Syndrome , Postural Orthostatic Tachycardia Syndrome ( POTS ) and Chronic Migraine. Each day I face chronic pain, fatigue and many other symptoms but I still manage to have adventures despite my disability.
In this episode of Adventures with EDS I travel from Norwich to Ely, Ely to Coventry and Coventry to Warwick on my way to the Ehlers Danlos Syndrome UK (EDS UK) & Hypermobility Syndromes Associations ( HMSA) 's first joint wellbeing and management conference otherwise known as #LiveWellBendy17 .
I met loads of great people and heard lots of professionals talk all about EDS and its various effects and comorbities including POTS & MCAS. In this video I show vlog as much as I can once at the conference and then take you through the top 5 things that I learned over the weekend from the various speakers. I also show you my purchases which will aid me in my daily life as well as my understanding of EDS.
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You can also find me on other social media:
Blog: ChronicallyJenni.wordpress.com
Facebook: ChronicallyJenni
Instagram: @ChronicallyJenni
Twitter: @JenniPettican
Email: [e-mail]
Check out the charities here so you can donate to future research which is so desperately needed:
Hypermobility.org
ehlers-danlos.org
Music Credit: Maxixe performed by Edson Lopes creativecommons.org/licenses/...
Don Perez Freire performed by Edson Lopes creativecommons.org/licenses/...

[@Karmonulot]

Thanks for sharing this!

[@mariamamondrea9193]

Wonderful advice! Thank you so much for sharing it! Great vídeo!

[@ChronicallyJenni]

Thank you Maria glad you found it helpful x

[@MOJORAPSCALLION]

How and where did you get the EDS book you have just unwrapped from the box please? Thank you 💚🦓

[@ChronicallyJenni]

Hey Joanne I got it at the conference but you can get it at www.redcliffhousepublications.co.uk/product-page/understanding-hypermobile-ehlers-danlos-syndrome-hypermobility-spectrum-disord