I have close friends who have alzheimer disease. One friend had it and he passed away in 2016. His wife now has it and it's sad to see what this disease does to ppl and families.
Bless her. What a wonderful woman. I'm so sorry this is happening to her. I'm going through it with my mother who no longer knows me so I can empathise.
It truly enrages me when I think of the expenses involved with healthcare! The cost of medication, the doctor appointments, specialists, insurance ect.
You all probably dont care at all but does any of you know of a way to get back into an Instagram account?? I somehow forgot the account password. I would appreciate any assistance you can offer me!
People shouldn't ask questions that they don't remember like "what is your grandson's name?" "How many grandkids do you have?". Just walk with them at whatever place they are, don't test their memory, it doesn't accomplish anything.
The Simpson family was only trying to show people that have not experienced a loved one going through the stages of Alzheimers what it can be like. They were not intentionally embarrassing Lolo. My mother had Alzheimers and was fairly similar to Lolo and also a little different. Mom forgot me the last 4 years she lived, didn't remember her sister, and that she was married to my dad. She was happy and very healthy until she broke a bone in her arm and went into hospice.
I agree-when someone keeps questioning them, it makes them live their forgetfulness over and over with each question. Have a heart- it’s not funny. Please- don’t do that to me.
I don't really care for the way her son kind of talks down to her and keeps putting her on the spot, asking her questions that clearly are making her feel stressed and awkward.
I was an Administrator for Assisted Living and Memory Care for years. Now I’m 64 and I can remember stuff from years ago, but short term memory is really bad. The thing is, I keep telling my doctor, but he thinks nothing of it. Maybe because he’s the same age as me. To tell ya the truth, there’s times in my life I’d like if I could forget them, but honestly I’m scared to death. 😢
There is help for you in your community. Call the health department or social services to get referrals. You have time to get connected. God's speed. Call tomorrow.
@@JamesB-l5oMany diseases cause dementia though Alzheimer’s is the most common one. Memory loss that’s worse than usual is one of the symptoms of dementia.
Your mother is a fascinating person, with a lot of grace and elegance. My mother died 1983 from Alzheimers , she was quite young and I ´ve been as well. She had problems with depression for years, and she was just the oposite, nothing similar to your mother not so positive, not so full of joy and embracing the world. It might sound strange, but I think it´s a gift to your family,that she has this personality. And I think you are lucky to have this family structure. All these circumstances give you all strenghth and the power to deal with this sad situation. Wish you all the best. Sorry English is not my first language.
I wish to fack they'd STOP ASKING her "who is that" and "do you remember this" "do you remember that" i have early onset Alzheimer's & people who do that are so TRIGGERING. EFFING SAY WHO U ARE. AND QUIT W POP FREAKING QUIZZES. YA KNOW I HAVE MEMORY ISSUES
Before dad went to nursing home, I asked him how he felt. He said, "I feel fine." I said, "Boo hoo!" Morbid humor is the best! 🤣😂🤣😂 Dad is 90, I'm keeping a journal of my visits to the nursing home. Met a patient named Robert Jones, his room is a jail. The expression was priceless. After my visit with dad, I saw the lively Robert out cold in his wheelchair. These memories although hard, are precious to me.
I hate it when people put an Altzheimer-patient on the spot by asking her/him 'WHO is that'? And insisting that the patient answer knowing very well they can't recall the name.
I kind of get why they're doing it for this documentary, with that being said, this over and over and over business is exactly what you said. I don't get her son?!?! Lolo finally told him, let's not play games, something to that extent. He was irritating her!
If it were not for casseroles, I could never have had all the parts of dinner ready at dinner time. I have been confused all my life. My kids won’t be able to tell if I have Alzheimer’s. I am just kidding. I stayed with my mama through not Alzheimer’s but delirium related to her lymphoma. It’s a hard gig. I can’t say enough good things about Duvall Gardens in Austin. They were so good to her.
Hopefully they are only doing this for the video. This is not something you should do with Alzheimer’s patients - correcting them or quizzing them isn’t going to make them remember better, it will only make them upset. And even though they likely will quickly forget what happened, the emotional impact will linger.
As a professional who worked in a high profile career with famous people and celebrities, she already had formed ways to compensate, such as ad libbing, personal charm, an outgoing personality, and glibness on the spot (thinking on her feet). Even as her memories and thinking skills increasingly began to elude her, she was and is able to use these compensation methods learned on the job to compensate for an eroding memory, and make it seem as if she's more "there" and high functioning than she really is. Compare a person lacking a higher education, the ability to travel, and a dynamic past life with plenty of new experiences (all of these tend to increase/reinforce synapse connections in the brain and enhance intelligence and thereby slow the descent into the abyss of dementia). That unfortunate person, who may have few interesting and unique experiences in their lifetime and not much knowledge of anything outside their immediate family/neighborhood, will appear to descend into dementia much more quickly.
My best friend’s mom had advanced Alzheimer’s, but the last time I’d seen her was years before when she was fine. I met her again briefly in the last year of her life when she’d been suffering for a while, but she seemed her usual charming self. Afterwards I realized we hadn’t talked about anybody we knew in common, and I think that was a coping strategy for her.
I understand where you are coming from Pam, however, this is a documentary mean't to instruct and teach. This is a national tradegy that people need to try to understand. It's an insidious disease horrific condition that not only robs a person's life and the people that love them. My spouse and I were witness to the destruction of all people in their families, as well as their friends. We all must recognize and try to educate to benefit and understand how to cope with the loss.
Him reminding her she can't remember seems to stress her out
I have close friends who have alzheimer disease. One friend had it and he passed away in 2016. His wife now has it and it's sad to see what this disease does to ppl and families.
Gotta develop patience, loving kindness. New challenges daily.
Bless her. What a wonderful woman. I'm so sorry this is happening to her. I'm going through it with my mother who no longer knows me so I can empathise.
O ok
It truly enrages me when I think of the expenses involved with healthcare! The cost of medication, the doctor appointments, specialists, insurance ect.
You all probably dont care at all but does any of you know of a way to get back into an Instagram account??
I somehow forgot the account password. I would appreciate any assistance you can offer me!
I daily seek the easy way to ‘give up the ghost’. Not want this uncertainty at 80!
patient should be greeted like “hi grandma it’s Maggie “ “it’s Ben” You tell them who you are , help them remember.
Yes yes. Learn to start the conversation in a different way. Greeting anew . Excellent tip.
Or at least give them a lead that lets them fake it, so they won’t be embarrassed.
People shouldn't ask questions that they don't remember like "what is your grandson's name?" "How many grandkids do you have?". Just walk with them at whatever place they are, don't test their memory, it doesn't accomplish anything.
It sounds terrible but I think they were doing it to show the audience what’s happening. I’m sure they wouldn’t ask her every time they’re with her. 🙂
It bothers me a lot too. Don’t ask questions to test their memory. The constant “do you remember” is so hard on them.
@@lindamitchell-fox1926
I agree. It looked like she was embarrassed or uncomfortable with him asking
The Simpson family was only trying to show people that have not experienced a loved one going through the stages of Alzheimers what it can be like. They were not intentionally embarrassing Lolo. My mother had Alzheimers and was fairly similar to Lolo and also a little different. Mom forgot me the last 4 years she lived, didn't remember her sister, and that she was married to my dad. She was happy and very healthy until she broke a bone in her arm and went into hospice.
I agree-when someone keeps questioning them, it makes them live their forgetfulness over and over with each question. Have a heart- it’s not funny. Please- don’t do that to me.
I don't really care for the way her son kind of talks down to her and keeps putting her on the spot, asking her questions that clearly are making her feel stressed and awkward.
Thought it is indeed a cardinal error to "quiz" them, it sometimes takes time and education to learn that.
@@JamesB-l5oI hope they’re only doing it for the video to illustrate things.
I was an Administrator for Assisted Living and Memory Care for years. Now I’m 64 and I can remember stuff from years ago, but short term memory is really bad. The thing is, I keep telling my doctor, but he thinks nothing of it. Maybe because he’s the same age as me. To tell ya the truth, there’s times in my life I’d like if I could forget them, but honestly I’m scared to death. 😢
There is help for you in your community. Call the health department or social services to get referrals. You have time to get connected. God's speed. Call tomorrow.
Keep in mind that there are some other potential causes of memory trouble that are not dementia.
@@JamesB-l5oMany diseases cause dementia though Alzheimer’s is the most common one. Memory loss that’s worse than usual is one of the symptoms of dementia.
Your mother is a fascinating person, with a lot of grace and elegance. My mother died 1983 from Alzheimers , she was quite young and I ´ve been as well. She had problems with depression for years, and she was just the oposite, nothing similar to your mother not so positive, not so full of joy and embracing the world. It might sound strange, but I think it´s a gift to your family,that she has this personality. And I think you are lucky to have this family structure. All these circumstances give you all strenghth and the power to deal with this sad situation. Wish you all the best. Sorry English is not my first language.
I'm searching for a video about this disease that doesn't have a piano playing loudly on the background. So far no luck
Yeah they all have mournful piano music
Loves goodbye on UA-cam
I wish to fack they'd STOP ASKING her "who is that" and "do you remember this" "do you remember that" i have early onset Alzheimer's & people who do that are so TRIGGERING. EFFING SAY WHO U ARE. AND QUIT W POP FREAKING QUIZZES. YA KNOW I HAVE MEMORY ISSUES
I'm not sure where to find it, but I recall a poem that is titled "Don't Ask Me To Remember.""'
Beautiful lady!! Classy but all about family and struggling to stay as long as she e can.
The loud music sure doesn’t help. Hard to hear what’s she is saying.
Before dad went to nursing home, I asked him how he felt. He said, "I feel fine." I said, "Boo hoo!" Morbid humor is the best! 🤣😂🤣😂
Dad is 90, I'm keeping a journal of my visits to the nursing home. Met a patient named Robert Jones, his room is a jail. The expression was priceless. After my visit with dad, I saw the lively Robert out cold in his wheelchair. These memories although hard, are precious to me.
I hate it when people put an Altzheimer-patient on the spot by asking her/him 'WHO is that'? And insisting that the patient answer knowing very well they can't recall the name.
I kind of get why they're doing it for this documentary, with that being said, this over and over and over business is exactly what you said. I don't get her son?!?! Lolo finally told him, let's not play games, something to that extent. He was irritating her!
Sometimes they do know though
How I love lolo she was so smart and stylish and a go getter so sad what this insidious Disease does to the brain and the spirit
He has no companion or patience
If it were not for casseroles, I could never have had all the parts of dinner ready at dinner time. I have been confused all my life. My kids won’t be able to tell if I have Alzheimer’s.
I am just kidding. I stayed with my mama through not Alzheimer’s but delirium related to her lymphoma. It’s a hard gig. I can’t say enough good things about Duvall Gardens in Austin. They were so good to her.
Sad disease! Have lost four friends through it.
🖤🖤🖤
It seems like her son is sometimes cruel to her.
It would be nice when that stupid music in the background is not used in documentaries like this. It is annoying as hell.
God bless 🙏 all of you!!!!
The son shouldn't be argumentative, makes this much worse.
Hopefully they are only doing this for the video. This is not something you should do with Alzheimer’s patients - correcting them or quizzing them isn’t going to make them remember better, it will only make them upset. And even though they likely will quickly forget what happened, the emotional impact will linger.
Lolo is very beautiful.
I’m 51 years old with with Alzheimer’s disease
She seems so high functioning!
As a professional who worked in a high profile career with famous people and celebrities, she already had formed ways to compensate, such as ad libbing, personal charm, an outgoing personality, and glibness on the spot (thinking on her feet). Even as her memories and thinking skills increasingly began to elude her, she was and is able to use these compensation methods learned on the job to compensate for an eroding memory, and make it seem as if she's more "there" and high functioning than she really is. Compare a person lacking a higher education, the ability to travel, and a dynamic past life with plenty of new experiences (all of these tend to increase/reinforce synapse connections in the brain and enhance intelligence and thereby slow the descent into the abyss of dementia). That unfortunate person, who may have few interesting and unique experiences in their lifetime and not much knowledge of anything outside their immediate family/neighborhood, will appear to descend into dementia much more quickly.
My best friend’s mom had advanced Alzheimer’s, but the last time I’d seen her was years before when she was fine. I met her again briefly in the last year of her life when she’d been suffering for a while, but she seemed her usual charming self. Afterwards I realized we hadn’t talked about anybody we knew in common, and I think that was a coping strategy for her.
I understand where you are coming from Pam, however, this is a documentary mean't to instruct and teach. This is a national tradegy that people need to try to understand. It's an insidious disease horrific condition that not only robs a person's life and the people that love them. My spouse and I were witness to the destruction of all people in their families, as well as their friends. We all must recognize and try to educate to benefit and understand how to cope with the loss.