Hello Meghana, Greatly appreciated all the effort to explaining us the mystery of Bell's palsy. I am really grateful we have you on UA-cam to understand on wider range. Thank you again
I got two of the synkineisis, the second and fourth you mentioned. I never heard about the different stages of face palsy til I self started my research here on youtube. I didn't have Bell's palsy but I had a surgery where they removed a tumor in my brain. After the surgery I got so swollen that the facial nerve got damaged. That resulted in paralysis on the right side of my face. Doctors just told me that my face might come back in a year, and if it doesn't, I will never recovery completely. I started seeing facial movements come back on the right side of my face in 1 or 2 months. I didn't do any exercises (I was never suggested or introduced). I thought my face will just come back automatically without doing anything. Was the doctors doing wrong by not introducing me to face physiotherapy? After a year I had movements in my face but not all over my face. My lip was still hanging, and I couldn't raise my eye brows. My smile was there, and I could blink even if it was weak. I can also do certain other things with my face. I can't blow though and close my lips completely. After 3 years I was finally introduced to physiotherapy. it was actually an eye doctor that helped me to get in contact with professionals. Should I have been introduced in the early stages when I saw my movements came back? Basically, I felt no hope because I supposed that my face never is damaged forever and that there's no chance of improving the movements anyway. Now I have synkineisis because so many years gave passed. I researched more on youtube and I found out that I actually do have most of the movements in my face that I need, it's just that they are connected with other movements. This means, I could have restored my face if I had excercised in the early stages of recovery? I just wonder why nobody told me from the start. My face was so dear to me. All I did was suppose that my face will come back automatically and that if movements are connected to other movements there's nothing to do. It's like, why do people need to research for themselves. We should be given more help and information at the hospitals, by doctors, because they should suppose that we patients want to have all the help we need and not sit around and wait til everything solves itself. I should have put in effort from the start if I knew that I can change my face for the better. Or did doctors know that my facial nerve will never be fixed? Well, I will try do what I can from now on anyways. Thanks for those videos! They give me hope :)
Absolutely. I too am suffering and the doctors I have seen have offered very little besides observation. It's a joke that isn't funny when you are the one with the condition. They are very adept and knowledgeable when it comes to billing and recommending the treatments (surgery) that are most profitable for them. Capitalism at it's finest.
@@Tony-dk1bp that is so sad :( I think most doctors wants to help but someone that is higher controsl everything and then it becomes all about money. Not even nurses are well enough educated. People need to educate them selves these days, and it's wise to seek own knowledge :)
Me too. I had facial paralysis due to head trauma. They told me nothing would help. Movement in my face may or may not come back over time. They were no help. I did acupuncture and it was an overnight difference. But it caused synkensis. I went back for it and they just said yeah that happens. Nothing we can do. As a woman who used to be a model, this was devastating. Can’t even explain the level of self consciousness I’ve developed. Especially now knowing it was preventable and not a single doctor cared.
@@rachaelgarner8523 I can relate to the self consciosness. I could barely go outdoors after my surgery because I had no movement in my right side. I never tried acupuncture but still have synkensis because I never trained my muscles once my nerve started growing out again, but I will start try doing excercises again... just have to be persistent and don't give up and keep hoping a miracle will happen.
I'm also a sufferer 🥲.Since 2011 to now..My family and I didn’t know about bells pulsy at that time I was only 15 years girl.My family and I thought that one day in the morning I will get up and see my normal face again...But that day ever never come in my life..Now I'm knowing more and more about bells pulsy and I have fully hope that I will recover soon.Becouse I'm about 95% okey now.But synkinesis happened becouse of delay.Everyone pray for me pls..I feel your pain..😭😭
Hi Meghana, Thank you for your videos, they have really helped me to get understanding and for some time I did the exercises you recommend and although I got some relief it didn't resolved the Sinkynesys I developed, the one that I have is not that bad my eye closes a bit when I eat or sometimes when I speak I just feel this movement of my eyelid closing. I would like to handle this completely but there are so many videos about it that I get a bit overwhelmed. Please let me know what are the most important to handle my problem. Thank you!
So thanks for this information, but you never said (or I didn’t hear) what KIND of professional helps with the three recovery types - Neuromuscular Reeducation, MIME Therapy, and EMG Biofeedback? Where do I go for this kind of help?
Mam I have suffering synkinesis for past 3 years my eyes getting smaller while open mouth or smiling still the same condition in my eye Please help me to know that synkinesis have any chance to growing up in future or maintain same condition?? No excercise doing for past 1 year
Thank you..I now have some hope. My sinkinesis is post bells which i got from lyme disease. One day i woke and my face changed like overnight. Id rather have droopy dace than this "popeye" look!
Hello mam, thank you very much for this video. I've belly's palsy for last seven months. It is almost 90% recovered but from last 1-2 months I'm experiencing the signs of synkinesis. Though involuntary movement is not very much. When I blink my eye I feel a slight movement in my mouth. Same happens when I raise my eyebrow. What should I do so that this synkinesis do not increase and what are exercises to decrease this problem. What should I immediately do now?
This is a neurological disorder, there is evidence it is related to a disorder in the mapping in the latent space created between the cortical columns of your motor cortex. There is no cure yet. People focus on facial synkinisis but it can happen to the whole body. The remedy is doing exercise and hoping your brain plasticity overcomes mostly of it.
Ma'm l can't get rise my eyebrows and i can't get normal lip reading when to speak and don't support my chin muscles when to eat and drink so this is which type of synkinesis and how to do prevent this problem
Hi meghana I’ve had this for 19yrs ever since I’ve had bell palsy as a kid, is it too late for me to get treatment please I need help. My confidence is diminished. Please please please please please please I need your help please
My lower eye is twitching even when I am not moving. Just discovered now. Is that synkinesis? It's involuntary. Today is my 10th morning with Bell's Palsy
Hello, your videos have been very helpful and I appreciate them. I have had bells palsy in 2014 and I am not 100% recovered. I tried cold laser therapy, acupuncture, chiropractor visits for the neck, etc. I do have synkinesis and I really just want my top lip to lift more for my smile so my teeth can show. my eyebrow doesn't raise either. I was thinking about selective neurolysis but from what I am seeing or heard that procedure is very expensive. So since I do have movement on the affected side after watching your videos I said that It might be some hope trying to retrain the muscles and movement. My question is, I was going to continue 25 treatments of acupuncture but i read the electric stimulation may do more harm to the synkinesis. Have you heard about that before. Do you think its best I just try daily facial exercises trying to reprogram the muscles ?
I have recently noticed my eye closing while eating, putting on makeup, brushing my teeth etc. and it’s been a month. I seen a neurologist who didn’t even mention synkinesis however I know I have it. What can I do to reverse this. I saw your recent video about hope for me. I know there is but would like to find a good neuromuscular retraining place near my area (Cental Florida). If anyone has any good information please share. Thank you all ahead of time.
Hello mam... I had bells palsy 6 months ago... After 3 weeks of facial palsy I started electrical stimulation, continued for 20 sessions daily.... 2 months ago I started noticing closure of eyes on yawning... Now since 15 days, noticed eye closure on smiling and chewing, and pulling of lips on tight closure of eyes... Have been suggested to start nerve stimulation... Should I continue nerve stimulation??? Plz suggest mam....
Stimulations are useless I got Bells Palsy in 2015 but resulted n synkinesis.I got many stimulations First and foremost is correct dose of medicine and trust in Almighty . I am too living with it now
Hello Meghana, Greatly appreciated all the effort to explaining us the mystery of Bell's palsy. I am really grateful we have you on UA-cam to understand on wider range. Thank you again
Super helpful. I’m going to explore ur channel fully tomorrow. I’m w long time sufferer of synkineses
I have a thing..where my left cheek feels swallon, whenever i eat, my left eye gets smaller due to my cheek being pushed up.
I got two of the synkineisis, the second and fourth you mentioned. I never heard about the different stages of face palsy til I self started my research here on youtube. I didn't have Bell's palsy but I had a surgery where they removed a tumor in my brain. After the surgery I got so swollen that the facial nerve got damaged. That resulted in paralysis on the right side of my face. Doctors just told me that my face might come back in a year, and if it doesn't, I will never recovery completely. I started seeing facial movements come back on the right side of my face in 1 or 2 months. I didn't do any exercises (I was never suggested or introduced). I thought my face will just come back automatically without doing anything.
Was the doctors doing wrong by not introducing me to face physiotherapy?
After a year I had movements in my face but not all over my face. My lip was still hanging, and I couldn't raise my eye brows. My smile was there, and I could blink even if it was weak. I can also do certain other things with my face. I can't blow though and close my lips completely.
After 3 years I was finally introduced to physiotherapy. it was actually an eye doctor that helped me to get in contact with professionals. Should I have been introduced in the early stages when I saw my movements came back? Basically, I felt no hope because I supposed that my face never is damaged forever and that there's no chance of improving the movements anyway.
Now I have synkineisis because so many years gave passed. I researched more on youtube and I found out that I actually do have most of the movements in my face that I need, it's just that they are connected with other movements. This means, I could have restored my face if I had excercised in the early stages of recovery? I just wonder why nobody told me from the start. My face was so dear to me. All I did was suppose that my face will come back automatically and that if movements are connected to other movements there's nothing to do. It's like, why do people need to research for themselves. We should be given more help and information at the hospitals, by doctors, because they should suppose that we patients want to have all the help we need and not sit around and wait til everything solves itself. I should have put in effort from the start if I knew that I can change my face for the better. Or did doctors know that my facial nerve will never be fixed?
Well, I will try do what I can from now on anyways. Thanks for those videos! They give me hope :)
Absolutely. I too am suffering and the doctors I have seen have offered very little besides observation. It's a joke that isn't funny when you are the one with the condition. They are very adept and knowledgeable when it comes to billing and recommending the treatments (surgery) that are most profitable for them. Capitalism at it's finest.
@@Tony-dk1bp that is so sad :( I think most doctors wants to help but someone that is higher controsl everything and then it becomes all about money. Not even nurses are well enough educated. People need to educate them selves these days, and it's wise to seek own knowledge :)
Me too. I had facial paralysis due to head trauma. They told me nothing would help. Movement in my face may or may not come back over time. They were no help. I did acupuncture and it was an overnight difference. But it caused synkensis. I went back for it and they just said yeah that happens. Nothing we can do. As a woman who used to be a model, this was devastating. Can’t even explain the level of self consciousness I’ve developed. Especially now knowing it was preventable and not a single doctor cared.
@@rachaelgarner8523 I can relate to the self consciosness. I could barely go outdoors after my surgery because I had no movement in my right side.
I never tried acupuncture but still have synkensis because I never trained my muscles once my nerve started growing out again, but I will start try doing excercises again... just have to be persistent and don't give up and keep hoping a miracle will happen.
I'm also a sufferer 🥲.Since 2011 to now..My family and I didn’t know about bells pulsy at that time I was only 15 years girl.My family and I thought that one day in the morning I will get up and see my normal face again...But that day ever never come in my life..Now I'm knowing more and more about bells pulsy and I have fully hope that I will recover soon.Becouse I'm about 95% okey now.But synkinesis happened becouse of delay.Everyone pray for me pls..I feel your pain..😭😭
Thank you Meghna ji, it is very informative and helpful in understanding the synkinesis pattern.
Can u provide online checking which level of syknesis I m suffering it's been 4 years nw if possible please do let me knw
Hi Meghana, Thank you for your videos, they have really helped me to get understanding and for some time I did the exercises you recommend and although I got some relief it didn't resolved the Sinkynesys I developed, the one that I have is not that bad my eye closes a bit when I eat or sometimes when I speak I just feel this movement of my eyelid closing. I would like to handle this completely but there are so many videos about it that I get a bit overwhelmed. Please let me know what are the most important to handle my problem. Thank you!
So thanks for this information, but you never said (or I didn’t hear) what KIND of professional helps with the three recovery types - Neuromuscular Reeducation, MIME Therapy, and EMG Biofeedback? Where do I go for this kind of help?
Mam I have suffering synkinesis for past 3 years my eyes getting smaller while open mouth or smiling still the same condition in my eye
Please help me to know that synkinesis have any chance to growing up in future or maintain same condition??
No excercise doing for past 1 year
Thank you..I now have some hope.
My sinkinesis is post bells which i got from lyme disease. One day i woke and my face changed like overnight. Id rather have droopy dace than this "popeye" look!
Hello mam, thank you very much for this video. I've belly's palsy for last seven months. It is almost 90% recovered but from last 1-2 months I'm experiencing the signs of synkinesis. Though involuntary movement is not very much. When I blink my eye I feel a slight movement in my mouth. Same happens when I raise my eyebrow. What should I do so that this synkinesis do not increase and what are exercises to decrease this problem. What should I immediately do now?
Avoid extreme facial movements.
I have this same thing. Every time I blink and only when I blink my cheek/lip twitches
@@jakepaoletti8646 I have same problem, are you recovering if yes then how
Mine is doing that now what did you? And how bad is it now? Thanks
Hi, i have the same exact problem. Hou are you doing now? Did the synkinesis improve or it got worse?
Hello mam, I am suffering from synkinesis from past 11 years. Can it will be cureable? What should I do for treat it.please help me mam
Helo medam nange bel palasci agi 11 mantha agide ega yavatar exsiz mada beku heli enu simli bartailla
This is a neurological disorder, there is evidence it is related to a disorder in the mapping in the latent space created between the cortical columns of your motor cortex. There is no cure yet. People focus on facial synkinisis but it can happen to the whole body.
The remedy is doing exercise and hoping your brain plasticity overcomes mostly of it.
Do you know a similar palace in chennai that does what you do? My relative has this condition and is unable to travel to Bangalore.
Ma'm l can't get rise my eyebrows and i can't get normal lip reading when to speak and don't support my chin muscles when to eat and drink so this is which type of synkinesis and how to do prevent this problem
i got all 4 types of sykinesis not too severe though
Is it better now?
I have a bells palsy for 5 yrs ago and I am suffering from synkinesis now. Is there is a chance to recover? I think my synkinesis is moderate.
Same situation here
same i really need to know too
yes you all will recover from synknesis if u want to how reply me here
@@bldmn9854 how? Please I need to know
Hi meghana I’ve had this for 19yrs ever since I’ve had bell palsy as a kid, is it too late for me to get treatment please I need help. My confidence is diminished. Please please please please please please I need your help please
Past 3month of bells palsy i have a form of synkinesis.
During yawning i have blinking of eye( complete involuntary closure)
Please help.
It's my 1month of Bell's palsy and am facing the same issue....did u got any suggestion or tips how to over come with this issue...
@@mohammedazher436 How is your condition now ? Did it get better or worse?
My lower eye is twitching even when I am not moving. Just discovered now. Is that synkinesis? It's involuntary. Today is my 10th morning with Bell's Palsy
Hey, have you recovered from the problem now?
Hello, your videos have been very helpful and I appreciate them. I have had bells palsy in 2014 and I am not 100% recovered. I tried cold laser therapy, acupuncture, chiropractor visits for the neck, etc. I do have synkinesis and I really just want my top lip to lift more for my smile so my teeth can show. my eyebrow doesn't raise either. I was thinking about selective neurolysis but from what I am seeing or heard that procedure is very expensive. So since I do have movement on the affected side after watching your videos I said that It might be some hope trying to retrain the muscles and movement. My question is, I was going to continue 25 treatments of acupuncture but i read the electric stimulation may do more harm to the synkinesis. Have you heard about that before. Do you think its best I just try daily facial exercises trying to reprogram the muscles ?
Hi you are right, Ive got my synkinesis from elect.stimulation. but the thing is, we moved my eyebrow with it
@@meerimbaatyrbekova6085 how long have you had it before you was able to move your eyebrow? and
@@meerimbaatyrbekova6085 and do you still have it?
@@terrancevd how you doing bro ? Im on the same boat
Same here 😢😢. How is your synkinesis? Mine still no progress 😔
I have recently noticed my eye closing while eating, putting on makeup, brushing my teeth etc. and it’s been a month. I seen a neurologist who didn’t even mention synkinesis however I know I have it. What can I do to reverse this. I saw your recent video about hope for me. I know there is but would like to find a good neuromuscular retraining place near my area (Cental Florida). If anyone has any good information please share. Thank you all ahead of time.
Hi did you find any specialist near you , am also from some location and affected with bells palsy.
Hello mam... I had bells palsy 6 months ago... After 3 weeks of facial palsy I started electrical stimulation, continued for 20 sessions daily.... 2 months ago I started noticing closure of eyes on yawning... Now since 15 days, noticed eye closure on smiling and chewing, and pulling of lips on tight closure of eyes... Have been suggested to start nerve stimulation... Should I continue nerve stimulation??? Plz suggest mam....
How are you now?
@@pramodpradhan6854 - thank u for ur concern... Have stopped nerve stimulation, doing some exercises and just learning to live with it...
@@drlake5106 are you not recovered fully
@@pramodpradhan6854 not completely, bout 80%, but Eye becomes small on laughing, talking... Twiching of eyelid etc...
Stimulations are useless
I got Bells Palsy in 2015 but resulted n synkinesis.I got many stimulations
First and foremost is correct dose of medicine and trust in Almighty .
I am too living with it now
Mam wt abt the TEN treatment...my.doctor suggested me to do at psyotherapist
Where is your clinic located?
I'm suffering with after my BP.. plz tell me should I go to the botox
I was told that botox could make it look even worse. Exercises and stretching have helped me quite a lot.
@@tess7656 Did it get better with exercise ? Do you have synkinesis or just Bell's Palsy ?
Where is a clinic to get treatment?
Bangalore, India
Mam plz guide me
Hello madem.l suffer Bell's palsy 4 year ago.now there is synkinesis.what is your recommendation.plz madam any exercise.
Plz tell me exercise for synkinesis
msg me on insta i will tell u exercise
@@bldmn9854 but I have no insta id
@@bldmn9854 te curaste de la synkiensis?
@@diegoarista9027 plz speak english