These parents should be part of the Courageous Parents Network. God has blessed your two babies with wonderful parents who will make their lives happy and full no matter the lifespan. Those babies are adorable. There is time and I hope treatments and cures can be found. With two children with health problems, there is little time to post videos.
I am sending you both love. These videos are so important. Thank you so much for taking the time to film this. Our grandson was being tested for Downs. How I wish it had been Downs. The MPS 1 Hurlers diagnosis has been the hardest thing we have had to face. Thank you so much again. You are so courageous!
Praying for your family found you today and started following I don't know exactly where you live but I live in Livingston about 25 miles from cookeville bless you all
These parents should be part of the Courageous Parents Network. God has blessed your two babies with wonderful parents who will make their lives happy and full no matter the lifespan. Those babies are adorable. There is time and I hope treatments and cures can be found. With two children with health problems, there is little time to post videos.
Prayers for your precious babies and your family in Jesus name 🙏🏻🙏🏻🙏🏻
Thank you! God bless you for praying for us!
I am sending you both love. These videos are so important. Thank you so much for taking the time to film this. Our grandson was being tested for Downs. How I wish it had been Downs. The MPS 1 Hurlers diagnosis has been the hardest thing we have had to face. Thank you so much again. You are so courageous!
Who ever gave this a thumbs down has no heart.
Just found your channel and subscribed. I pray God's blessings for your family. He's always there when we need Him.
Thank you!
Praying for your family found you today and started following I don't know exactly where you live but I live in Livingston about 25 miles from cookeville bless you all
Just found your channel. Prayers for you all.
Thank you!
Hey guys. Praying for you. We are neighbors. I'm in Jamestown.
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You were wearing that same tshirt on the Today show.
Chris 2145 I love my Kennedy and Lincoln shirts!!!
To Chris 2145 I don't see your point the shirt is the message. I will pray for your understanding.
@@TheLaddFamily and qw
Love you guys
We love you too
well.. i''ll say..i have hurler syndrome to..for real.
@Eve Smith we would love to hear from you! We love Connecting with our Hurler Family! TheKennedyLaddFoundation@gmail.com
My daughter died from this 55 yea rs ago
If we had universal healthcare in this country you wouldn’t have to raise money to pay for hospital bills. Wish your little girl the very best
Seriously I wanted to know what this disease was not your life story!
You can go to KennedyLadd.org and learn all about MPS 1
THE TRAGIC LIFE OF KATHY THUREEN