Everything you described I've been experiencing for the past couple of years and have been getting worse. I had vertigo since 2016 and on medication. My numbness, tingling, fatigue and balancing issue is out of control. I've been on FMLA since Oct 2022. I had a seizure last Oct and nobody knows what's going on. One doctor suggested a neurologist to check for MS and he said he doesn't believe it's that. It's Oct 2023 and the doctors are saying seizure disorder and syncope. I'm only in my 40's and want my life back to normal and go back to work.
Been thru all of that in my 30s w no help. I think ME is the parent condition for myself and it triggers no epileptic seizures due to hypoperfusion and other changes. And yes it triggers MS too-per Ron Davis about half of us. Do you get PEM-blowback after doing stuff lol/anything esp physical ?-too?
I’ve been dealing with all those issues for over 10 years. Was told it was fibromyalgia. Past couple of months have been so bad I can hardly move, tripping on my own feet, so dizzy I feel drunk but I don’t drink. The doctor said do yoga and meditation! I’m like I already do that! I need help! Still suffering and getting worse. I believe I will just die and no one will care. One of my main symptoms when it started was strange feeling going up/down my spinal cord, along with my skin feeling like it was burning but it really wasn’t. No doctor will listen to me and now they think I’m just depressed. Yes when you are not listened/heard for over 10 years and won’t help you and you feel like a prisoner in your own body it’s depressing.
I don't know about others. But when I was first diagnosed with MS (being a 15 year old), my first reaction was "Whoaa, I have been into an interesting disease. Let's discover more about it.". Now I am 18 and still studying about various diseases
To anyone who finds my comment that is suffering from multiple sclerosis: try the Mediterranean diet, try Herb's like turmeric, ginger and Asian ginseng and speak to a chiropractor, Blessed Be.
To whoever is going through this, I pray God heals you! I lost my dad 10 years ago, after his long battle with MS. such a discusting disease. Stole his independence, his confidence, his life. My dad... my childhood bevause I became his caregiver at age 7. He couldn't even Feed himself within 2 years of being diagnosed. Went from a cane, to a walker to a wheelchair WITHIN A YEARS TIME. Godbless yall..and goodluck.
Same here but I also get terrible headaches, can’t focus my eyes and have an inflamed optic nerve behind both eyes. It’s been 3 weeks since I spent a few days back and forth the hospital for tests and I’ve still not heard anything back from them. Drained. 😢
Exactly the same stmptoms iv explained to 3 different doctors and theyre just loke ehh ur dehydrated go home and drink water, im like theres something more serious going on here i know my body and somethings up
Thank you for this video because I have every single symptom. I didn’t know that. Can anyone tell me what to do? I guess I will have to make a Doctors appointment.
I have EDS, Chiari, Intracranial hypertension, and I KNOW I have undiagnosed MS. The doctors don’t want to do a work up because I’m already “complicated”.😢
A virus especially a new virus to the body can indeed trigger MS. But MS must already have been there then. Maybe in a mild form. They call that benigne. It isnoften overlooked by docters if you have a mild form. Any virus, also flu, can make it more active. It is what happened to me after Delta virus (corona) in October 2021. If you want to know it, ask for a neurologist and have a MRI scan.
If you’re having the first symptoms of MS you’re likely not treated with disease modifying therapies (DMT’s). Immune systems of people not treated with DMT’s are not weak, they are overactive.
I was never sick as a kid, I have to take meds to weaken my immune system because it is overactive and makes my MS move faster when not on suppressants
I have to get this off of my chest: I have most of the symptoms and I've been tested for everything under the sun but all they really found is Kimmerle's anomaly, and I can't get an MRI until half a year from now because I have braces on and it would cost a great deal of money, taking them off and then putting them on again. My doctor tells me there is a good chance it could be MS, but you can only tell with an MRI. This is terrifying. Most of the people in my life I've only mentioned this in passing to and I try not to talk about it at all because it helps to not think about it and people just get upset and I end up being the one who has to comfort them over the prospect when I'm the one getting panic attacks in the middle of a shower when I get dizzy or in bed at night where I can't tell if my face is numb or not. This sucks wholeheartedly. At this point, I just want to know
It took several months of symptoms, and trial and error testing before my PCP felt a referral to the Neurologist would be a good idea. The neurologist shrugged off most of my symptoms until I mentioned the electrical zing I sometimes got down my spine when I moved my head. He said that was called Lhermitte's Sign and decided an MRI was warranted because that was a classic, fairly unique symptom of MS . They found lesions and tentively diagnosed me with MS. I agreed to a lumbar puncture and they found oligoclonal bands which cemented the diagnosis.
Everything you described I've been experiencing for the past couple of years and have been getting worse. I had vertigo since 2016 and on medication. My numbness, tingling, fatigue and balancing issue is out of control. I've been on FMLA since Oct 2022. I had a seizure last Oct and nobody knows what's going on. One doctor suggested a neurologist to check for MS and he said he doesn't believe it's that. It's Oct 2023 and the doctors are saying seizure disorder and syncope. I'm only in my 40's and want my life back to normal and go back to work.
Been thru all of that in my 30s w no help. I think ME is the parent condition for myself and it triggers no epileptic seizures due to hypoperfusion and other changes. And yes it triggers MS too-per Ron Davis about half of us.
Do you get PEM-blowback after doing stuff lol/anything esp physical ?-too?
I’ve been dealing with all those issues for over 10 years. Was told it was fibromyalgia. Past couple of months have been so bad I can hardly move, tripping on my own feet, so dizzy I feel drunk but I don’t drink. The doctor said do yoga and meditation! I’m like I already do that! I need help! Still suffering and getting worse. I believe I will just die and no one will care. One of my main symptoms when it started was strange feeling going up/down my spinal cord, along with my skin feeling like it was burning but it really wasn’t. No doctor will listen to me and now they think I’m just depressed. Yes when you are not listened/heard for over 10 years and won’t help you and you feel like a prisoner in your own body it’s depressing.
Could be Postural tachycardia syndrome
Sometimes called "PoTS"
the dog + facial expressions made me laugh out loud lol
I don't know about others.
But when I was first diagnosed with MS (being a 15 year old), my first reaction was "Whoaa, I have been into an interesting disease. Let's discover more about it.". Now I am 18 and still studying about various diseases
How are you now
@@asitpurohit_108 Excited and happy as always🎉🎉
Still studying and trying to relate tech with healthcare
Hey bro fellow Indian here ..what is cost 9f your treatment annually and how do you cover it ..??@@DhruvDawar
To anyone who finds my comment that is suffering from multiple sclerosis: try the Mediterranean diet, try Herb's like turmeric, ginger and Asian ginseng and speak to a chiropractor, Blessed Be.
I feel like u just described my life. I have no diagnosis accept adhd & vitiligo...well & my thyroid...but I am all of the above
It's a relief when someone else just 'gets it', isn't it? It sounds like you've been through a lot.
I love the dog in your background….it’s distracting me 😂😂😂
To whoever is going through this, I pray God heals you!
I lost my dad 10 years ago, after his long battle with MS. such a discusting disease. Stole his independence, his confidence, his life. My dad... my childhood bevause I became his caregiver at age 7. He couldn't even Feed himself within 2 years of being diagnosed. Went from a cane, to a walker to a wheelchair WITHIN A YEARS TIME.
Godbless yall..and goodluck.
Same here but I also get terrible headaches, can’t focus my eyes and have an inflamed optic nerve behind both eyes. It’s been 3 weeks since I spent a few days back and forth the hospital for tests and I’ve still not heard anything back from them. Drained. 😢
If you have symptoms and you don’t have MS, don’t try to get that diagnosis. Seriously, count yourself lucky and move on.
Exactly the same stmptoms iv explained to 3 different doctors and theyre just loke ehh ur dehydrated go home and drink water, im like theres something more serious going on here i know my body and somethings up
Thank you for this video because I have every single symptom. I didn’t know that. Can anyone tell me what to do? I guess I will have to make a Doctors appointment.
I have EDS, Chiari, Intracranial hypertension, and I KNOW I have undiagnosed MS. The doctors don’t want to do a work up because I’m already “complicated”.😢
I am beginning to think I have had Ms from covid. My symptoms have improved..that was nearly 2 yeara ago come January.
What were your symptoms?
A virus especially a new virus to the body can indeed trigger MS. But MS must already have been there then. Maybe in a mild form. They call that benigne. It isnoften overlooked by docters if you have a mild form. Any virus, also flu, can make it more active.
It is what happened to me after Delta virus (corona) in October 2021.
If you want to know it, ask for a neurologist and have a MRI scan.
This is a medically documented (likely under documented) connection.
If you’re having the first symptoms of MS you’re likely not treated with disease modifying therapies (DMT’s). Immune systems of people not treated with DMT’s are not weak, they are overactive.
You don't know what you're talking about
I was never sick as a kid, I have to take meds to weaken my immune system because it is overactive and makes my MS move faster when not on suppressants
That dog is creeping me out.
lol
freshly diagnosed and have all of these symtoms and more currently....
I have to get this off of my chest: I have most of the symptoms and I've been tested for everything under the sun but all they really found is Kimmerle's anomaly, and I can't get an MRI until half a year from now because I have braces on and it would cost a great deal of money, taking them off and then putting them on again. My doctor tells me there is a good chance it could be MS, but you can only tell with an MRI. This is terrifying. Most of the people in my life I've only mentioned this in passing to and I try not to talk about it at all because it helps to not think about it and people just get upset and I end up being the one who has to comfort them over the prospect when I'm the one getting panic attacks in the middle of a shower when I get dizzy or in bed at night where I can't tell if my face is numb or not. This sucks wholeheartedly. At this point, I just want to know
You could also get a spinal tap.
Yep, I have almost all of these. I just need to get an MRI!
I've got mutiples scerios
Going threw this my self all ready feel like I carnt do it last week I was ok this week my legs stopped might aswell of been my life
I've had mutiple since twenty loss sight inboth eyessarey
I've had mutiple since twenty loss sight inboth eyessarey 😊😅😢
very first symptom of ms is clear vision loss. I hv seen no ms patient without glasses.
me, no glasses yet, diagnosed with MS almost 20 years ago but can trace symptoms to 26 years ago
Why does no one ever mention the constant brain fog, confusion and horrible memory? Is that a less common one?
I have the same and in 1 year it worsened so much I can't even walk now
Carnivore diet
Alkaline foods
Love how your expression keeps getting progressively wackier 😂
So just the same as my fibromyalgia then not nice
Yes, there is a lot of crossover in symptoms - it's a lot to deal with. I hope you have found some ways to help manage your symptoms 🤞
ms is worse
is that dark souls music
Do a parasite cleanse! 100% of patients who were autopsied had them in their spinal cord or brain.
Really??
😮Whats a parasite cleanse? Inform me please.
So what kind of parasites cleanser please?
I literally have all of those symptoms...The doctors can never find anything wrong with me. It feels hopeless.
Syndrome de Lhermitte. Sorry, I'm french speaking.
It took several months of symptoms, and trial and error testing before my PCP felt a referral to the Neurologist would be a good idea. The neurologist shrugged off most of my symptoms until I mentioned the electrical zing I sometimes got down my spine when I moved my head. He said that was called Lhermitte's Sign and decided an MRI was warranted because that was a classic, fairly unique symptom of MS . They found lesions and tentively diagnosed me with MS. I agreed to a lumbar puncture and they found oligoclonal bands which cemented the diagnosis.
I’d be more convinced with face tattoos.
Your poor worried about you lhad onof Yorkshire terries 🎉😂
Thooo... 🤮
Cringe