Thank you for your information. I have had ambliopia from birth and now optic atrophy from multiple sclerosis from years of optic neuritis. This is finally the first time i have been able to receive help!
I was diagnosed with optic atrophy & the only thing I can offer to this video is that the vision is not cloudy (unless accompanied by cataracts) but blurred. Light has a huge impact on how/what I can see & contact lenses have given me clarity, although obviously they do not improve vision. I can not read the top letter on the chart but it is not due to clouding, its due to focus.
@@jaidebeck Yes my vision fluctuates. So many things have an impact on it. If I walk into a dimly list restaurant for example, I am unable to see much at all. I've had thus diagnosis since the age of 4 & every day is different.
@@sarahs4806 my kid (16 years old) got diagnosed with this and has a opa1 gene mutation recently, his vision now is 20/40. how fast does this progress? how bad will it get? the doctor recomended he studied and got a job that didnt rely on vision as much, and that he probarbly wouldnt be able to read at all in aproxemately 10 years time, whats your first hand experience with this?
@@asle1111 At 16 I was able to read a study & read regular sized print. I am now 47 & over the years have noticed things becoming harder to see. I can't see regular print any more & reading street signs is difficult unless the background colour is right for me & they are close. I don't drive BUT what I can say is, everyone who has OA is different & there is nothing you can't do (except drive) that you can't adapt or find a way around. There is a tonne of software to help with altering websites to suit your needs. My sight is stable & has been for about 4 years now. I can see light perception out of my right eye & my left is blurred but this is helped by a -16 contact lens prescription. The main thing that really impacts day to day is weather conditions. Your 16 year old may not lose their vision but I think that whatever job they want to do they should go for. Employers have plenty of resources at their disposal to help adapt a work environment to accommodate. There is no reason your child shouldn't follow their ambitions. Some aspects of scientific medicine, driving jobs etc would not be possible but other than that I'd encourage your child to do whatever they wanted 🙂 Good luck!!
@@sarahs4806 thanks for the fast response, we will have a meeting with him and his teacher tomorrow to try to help him and figure out the steps forward about studies and work in the future, the goal is finding something he will be looking forward to work with , and at the same time something that wont get dangerous or to difficult over the years as the sight gets worse
I was 13 when i got diagonossed with hearing loss. It took 7 year of different hospitals to understand whats going on with me and in between i also diagnosed with LHON Doctor said there is something wrong in my mitochodria which caused my vision and hearing loss. I am glad nothing is way too worse but definitely it affected me emotionaly. I dont have friends I feel really lonly and separated from the world.
This was so cool to see the differences in what you may see based on the eye chart. I am legally blind in the left eye at 20/200 with primary optic nerve atrophy. My right eye is now blind due to ROP and chronic narrow angle glaucoma. It was really cool and informative for me to see what 20/400-20/800 looks like. My sister-in-law is 20/700 without corrective lenses.
@@anantjoshi-f2p hi there. You can schedule an online consultation at www.visionforlifeworks.com. The great thing is if you aren’t in the same place as your parent you are still able to join in on the meting provided he too can get on on his own.
I was diagnosed with Kjers Optic neuropathy when I was 6/7 years old. And it's not "cloudy" vision like other glaucoma related diseases. But extremely blurry. I also get many colors mixed up, like shades of blues, organes and pinks. I am now 31 and my eyesight has only worsen slightly... I really wish there were some special glasses I could wear to at least help a little bit. I've never let my vision effect my mental health until recently. I went from a big city with excellent public transportation to a small town where they don't even have a bus system. Being a single mom it's difficult to get around. And coughing up $30 for a taxi everytime I need a ride somewhere, gets pretty expensive ...
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY Please allow two business days for us to respond to accommodate all time zones. Thanks!
Hi, I know your pain and frustration. Mine was cut off by an aneurysm clip. Now totaly blind in one eye. It's been 8 months. Right eye is affeted. Hoping you reply
I’m in the same boat. 35 years old with severely blurred vision. Glasses don’t help much. Can’t drive. It’s horrible.But the truly terrifying thing I’m facing right now is the possibility that my 10 year old daughter might have the same condition.
I also have optic nerve atrophy in my right eye. It is totally blind and I can only see shadows. The vision is black and white and I can't recognize numbers, letters. Only shadows. Even you put flashlights in front of my eye, it won't be distracted even a bit.
I've had Optic Nerve Atrophy since I was a toddler. (Fun fact, no one had any clue I had it until my 4-K teacher told my parents I wasn't copying sentences off the board and I was making up my own.) It's hereditary in my case: me, my mom, grandfather, and great grandfather. The 20/400-20/800 filter is definitely not 20/400. That's what my vision has been for as long as I can remember and I can see a lot more than that though things are just blurry blobs unless it's really close. However, we did figure out glasses improve my vision to 20/100 or 20/150 when I was in high school. The 20/100 filter seems pretty accurate.
I have this, I can only see out of 1 spot in each eye. Thank you bacterial meningitis. The 5 strokes didn't help either. So hard to find anything when you cant see anything but what you focus on
We help people all over the world! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
@@mrskgalon hi there, we can only improve not cure OP. But the great news is that Improvements of anywhere from 2-5 lines in acuity is common among our patients.
@@mrskgalon to your question about location, we are in Illinois but work with people from all over the world. The best thing to do in your case is to schedule a consultation on our website at www.visionforlifeworks.com to speak with Dr Steinhauer about your case. You likely can also share information about whichever kid you wish to discuss also to get her opinion on what she thinks we can do to help. Thanks for being here and Looking forward to seeing you on the schedule!
Hi I was told in late February that my optic nerves have due to too many optic neuritis attacks I have spent the past three months watching my side absolutely crumble to the point of visual snow has happened my central vision is going fast and sub peripheral in my right eye no doctor will help me where I am as I personally don't think they have dealt with this I am definitely going blind really fast? I am so terrified
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
For twenty years my daughter eye doctor never offer any suggestion or help. Even if I asks if their anything that be done they shut you down quickly. They just want you to come back every year for a checkup and wave goodbye until the next year. It's all about the money. My daughter loss her vision over night when she was 12 because she needed a shunt she never been happen since then.
The only thing I haven't tried is syntonics, which seems to be gaining positive outcomes in recent research. Years and countless sessions of VT didn't really move the needle. I do wonder how light therapy impacts atrophy. At the end of the day nothing can repair a damaged optic nerve, but maybe you can be trained to better use what do you have? Or maybe exotropic peripheral vision is the best adaptation in my case?
I am from india and i am suffering from this. I can things up close but according to the distance the image gets blurry. My mother had this same condition so it is genetic. We have been visiting many hospitals since i was small but they say that no treatment is there. This really effects me a lot on my daily basis especially school. So please can you tell me what kind of treatment or things you provide to improve vision. This would be really helpful if you can explain.
I was involved in an accident that caused traumatic optic nerve atrophy. It resulted in permanent blindness in my peripheral, low vision in both eyes. In my right eye I experience a flashing light that is there 24/7 even when I close my eyes to go to sleep, it’s debilitating. The flashing got worse over the past year, I went to the specialist, and they told me the cells are misfiring for whatever reason and there’s nothing they can do about the flashing. Is this common? Are there no treatments?
One thing I have to say is, most people in the general public don't have a clue what Optic Atrophy is. I have it in both eyes. And, yes eye Doctors would know. Because, I was curious, and asked mine. How many people he sees with it. It's common to them But, when I tell someone I have Optic Atrophy the majority of people never heard of it.
Yes, Thank you. And, for getting the word out there. Because, it is a shame we are in the 21st century. And, people are ignorant to knowing about things like this. There are people who are understanding. But, others who are judgmental sad to say.
Too hot to my comment I have multiple sclerosis and have had optic neuritis attacks which has led to the optic atrophy. I am only 30 years old with two small children and to have my vision like this is terrifying. I cannot read all type right now I have to use the speak of a microphone to type out for me. My vision is difficult to explain I see everything in a certain way and colours but it is blurry or really clearly especially if outside and light affects me horribly whether it's indoors or outdoors I am mostly in glasses sunglasses that. I can just make out the top letter e on an eye chart. I don't see faces clearly for example unless I go right nose-to-nose
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
So I did the questionnaire and as I thought I am in the danger zone. I was told it ended with basically having to. I cannot do the consultation does my trying to get help stop here?? 😭😭😭😭😭😭😭
I have had opa1 my whole life, current vision is 20/400. when I was a child i was 20/200. I have 5 children and recently had genetic test done on all of them, to discover 3 have the gene.
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
20/200 is the top letter on the original chart. I have 20/100 atm, but i don't know what's causing my vision loss. Two drs were talking and i heard optic atrophy mentioned. :/ Grrr. :(
We cannot comment on someone's medical condition without knowing more about their specific situation. Please email us at info@visionforlifeworks.com as well as take our Quality of Life Questionnaire on our homepage and one of our therapists will be in touch. www.visionforlifeworks.com
my mother had experienced like that, only blurred in left eye. for almost a month no.sight at all,then after few,months she see, only 10percent light but images is,same of what you discuss, until now no.improvement on left eye, we refer on.neuro optha but unfortunately we are financially constraint, how can you help us pkease
If you are interested, we help people all over the world and all ages!! We would love to learn more about her. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Yes! We customize our vision therapy programs to each individual. We need to learn more about you specifically. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
I have optic atrophy in both eyes and my left eye is 20/800 and finger counting at 5 inches away from my face. It isnt totally blurred out like what you represented. It is more like the colors are all smeared and I'm not able to process what I'm seeing. My right eye is 20/400-20/600. Again same phenomena just a little better acuity. However I also have alternating strabismus, exotropia, and astigmatism. So my brain doesnt recognize I have two eyes so it utilizes one at a time dependent on what I'm looking at. If I'm looking up close my left eye goes into focus and kicks the right eye out. If I look at something far away the opposite happens. I have no peripheral vision, depth perception, or 3D vision. I'm trying to get in touch with DHS in IL to hopefully get services back and I want to start learning braille as print is becoming too difficult.
We would love to help you, but we need to learn more about your condition specifically. If you are interested in our help - please reach out! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
My sis. had born with optic atrophy in the right eye, it is totally blind, with only one eye she can see. Another problem that the right eye is smaller than the left. Is there is any possible treatment for her?
We would love to help her, but we need to learn more about her specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and help her fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, she can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
I'm from North East India, my sister has optic nerve atrophy... initial she had severe headache and severe vomiting and loss her vision it's been a year now she Still have mild headache and boby pain.... How can you help us
We would love to help her, but we need to learn more about her specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
We assess the patient and develop a two step program involving photo-syotonic light therapy and vision therapy. We would love to help him, but we need to learn more about him specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Good day I am from South Africa I have just a week ago been told of my optic atrophy in both my eyes I was told at the local hospital that my I file is being closed as they can't do anything more. I have spent the past week researching like crazy and listening to every single UA-cam video that I can on optic atrophy and what exactly is going on and what treatments there actually are. I came across your wonderful video today. In your video you have said a person from India can contact you therefore I am contacting you to find out how you can help a person like me on all the way in South Africa as that's scared and really needs help and it seems it is difficult to find that here there seems to be not much understanding on this. Please do get in touch with me on how your company based in the United states to can help me. Thank you so much
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Good day I'm having a problem with the questionnaire my mum is reading the questions to me I can't answer a lot as I can't read or anything like that anyway because of the optic atrophy
I have a territory children removed after removal my optic nerves are damaged or atrophied is there any help or hope for me my vision is double and also dim
We need to learn more about you specifically. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
No it isn’t. We have helped thousands of people over 2 decades+ and this channel is full of videos going back well over a decade. If you have a case you wish to discuss please feel free to schedule an online consultation and let’s discuss what options there are for your specific condition. You can do so by visiting us at www.visionforlifeworks.com
Hello Doctor. Thanks a lot for the explanation. I did a diagnosis past week, and it revealed that I had adie pupil (Symptoms are: pupil dilates all time, contract little when exposed to light, along with blurry vision for near or small things). I did another blood test, I find out that I am infected with taxoplasmosis and immuned from cytomegalov and herpes v. The thing is, after looking after what cytomegalovirus can affect, I find a common issue which is optic atrophy and chriorentinitis. I actually feel the first symptoms of blurry you showed. And is it in this case adie pupil as my doctor said, or is it an other disease caused by either taxoplasmosis or cytomegalov. And after all is it going to be treated. I am from Algeria btw. Thank you so much
Per Dr. Julie: The blurriness could be coming from multiple things you mentioned. Make sure to visit an eye doctor and have them monitor you regularly.
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
We help people like you all the time! We need to learn more about your condition specifically. If you are interested in our help - please reach out! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below:
WATCH WHAT I CAN DO WITH MUYSIC AND GTA I HAVE HAD IT MY WHOLE LIFE AND THERE IS NO CURE YET BUT ELON SAID HIS NUROLINK CAN FIX IT IN BOUT 7 YEARSS AND MAKE IT BETTER
According to your video my vision in right eye is somewhat 20/200 Cause of optic neuritis not known It’s now two years but the sight is stable Had my cataract surgery of both eyes recently The eyes usually ache or I can say feel like tired eyes Especially in the morning when I wake I feel stiffness in my eyes They are at peace with sunglasses and reading glasses I don’t wear glasses otherwise as after surgery my let eye is 6/6 Will your syntonic therapy be beneficial I am from Pakistan Thanks
We unfortunately cannot predict without knowing a lot more about you. If you are interested, we help people all over the world and all ages!! We would love to learn more about you. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
We can help you with that! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com Or, you can can schedule a consultation for $149 by clicking the link below: visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Thank you for your information. I have had ambliopia from birth and now optic atrophy from multiple sclerosis from years of optic neuritis. This is finally the first time i have been able to receive help!
I was diagnosed with optic atrophy & the only thing I can offer to this video is that the vision is not cloudy (unless accompanied by cataracts) but blurred. Light has a huge impact on how/what I can see & contact lenses have given me clarity, although obviously they do not improve vision. I can not read the top letter on the chart but it is not due to clouding, its due to focus.
My vision is between 20/150 to 20/200. Might be higher at times. Does your vison fluctuate? Mine does and it is so weird.
@@jaidebeck Yes my vision fluctuates. So many things have an impact on it. If I walk into a dimly list restaurant for example, I am unable to see much at all. I've had thus diagnosis since the age of 4 & every day is different.
@@sarahs4806 my kid (16 years old) got diagnosed with this and has a opa1 gene mutation recently, his vision now is 20/40. how fast does this progress? how bad will it get? the doctor recomended he studied and got a job that didnt rely on vision as much, and that he probarbly wouldnt be able to read at all in aproxemately 10 years time, whats your first hand experience with this?
@@asle1111 At 16 I was able to read a study & read regular sized print. I am now 47 & over the years have noticed things becoming harder to see. I can't see regular print any more & reading street signs is difficult unless the background colour is right for me & they are close. I don't drive BUT what I can say is, everyone who has OA is different & there is nothing you can't do (except drive) that you can't adapt or find a way around. There is a tonne of software to help with altering websites to suit your needs. My sight is stable & has been for about 4 years now. I can see light perception out of my right eye & my left is blurred but this is helped by a -16 contact lens prescription. The main thing that really impacts day to day is weather conditions. Your 16 year old may not lose their vision but I think that whatever job they want to do they should go for. Employers have plenty of resources at their disposal to help adapt a work environment to accommodate. There is no reason your child shouldn't follow their ambitions. Some aspects of scientific medicine, driving jobs etc would not be possible but other than that I'd encourage your child to do whatever they wanted 🙂 Good luck!!
@@sarahs4806 thanks for the fast response, we will have a meeting with him and his teacher tomorrow to try to help him and figure out the steps forward about studies and work in the future, the goal is finding something he will be looking forward to work with , and at the same time something that wont get dangerous or to difficult over the years as the sight gets worse
I was 13 when i got diagonossed with hearing loss. It took 7 year of different hospitals to understand whats going on with me and in between i also diagnosed with LHON
Doctor said there is something wrong in my mitochodria which caused my vision and hearing loss.
I am glad nothing is way too worse but definitely it affected me emotionaly. I dont have friends I feel really lonly and separated from the world.
This was so cool to see the differences in what you may see based on the eye chart. I am legally blind in the left eye at 20/200 with primary optic nerve atrophy. My right eye is now blind due to ROP and chronic narrow angle glaucoma. It was really cool and informative for me to see what 20/400-20/800 looks like. My sister-in-law is 20/700 without corrective lenses.
Glad you found value in it! Thanks for watching and commenting!
@@visontherapy My father has optic nerve atrophy. I am from India. Is there a way to get in touch with you? Thanks in advance.
@@anantjoshi-f2p hi there. You can schedule an online consultation at www.visionforlifeworks.com. The great thing is if you aren’t in the same place as your parent you are still able to join in on the meting provided he too can get on on his own.
I was diagnosed with Kjers Optic neuropathy when I was 6/7 years old. And it's not "cloudy" vision like other glaucoma related diseases. But extremely blurry. I also get many colors mixed up, like shades of blues, organes and pinks. I am now 31 and my eyesight has only worsen slightly... I really wish there were some special glasses I could wear to at least help a little bit. I've never let my vision effect my mental health until recently. I went from a big city with excellent public transportation to a small town where they don't even have a bus system. Being a single mom it's difficult to get around. And coughing up $30 for a taxi everytime I need a ride somewhere, gets pretty expensive ...
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Please allow two business days for us to respond to accommodate all time zones. Thanks!
Hi, I know your pain and frustration. Mine was cut off by an aneurysm clip. Now totaly blind in one eye. It's been 8 months. Right eye is affeted. Hoping you reply
I feel your pain momma. I have the same problem with 20/200 vision in a small town with no public transport. I'm so sorry
Hello my kid is 4 year old his optic nerve is demage by birth he is completely blind.
I’m in the same boat. 35 years old with severely blurred vision. Glasses don’t help much. Can’t drive. It’s horrible.But the truly terrifying thing I’m facing right now is the possibility that my 10 year old daughter might have the same condition.
As someone diagnosed with optic atrophy, this isn't accurate at all in my case. Blurred vision is more apt than the cloudy vision in this video.
This is why we evaluate everyone individually. No two people are the same.
can you talk about thinning of the optic nerve?
Hi there. Your request has been passed on to Dr Steinhauer so maybe she will sometime!
I also have optic nerve atrophy in my right eye. It is totally blind and I can only see shadows. The vision is black and white and I can't recognize numbers, letters. Only shadows. Even you put flashlights in front of my eye, it won't be distracted even a bit.
We are very sorry to hear this.
I have the same. Can it be cured???
Getting back to the site description quickly everything is much dollar although I see all the colour still it's a different
I've had Optic Nerve Atrophy since I was a toddler. (Fun fact, no one had any clue I had it until my 4-K teacher told my parents I wasn't copying sentences off the board and I was making up my own.) It's hereditary in my case: me, my mom, grandfather, and great grandfather.
The 20/400-20/800 filter is definitely not 20/400. That's what my vision has been for as long as I can remember and I can see a lot more than that though things are just blurry blobs unless it's really close. However, we did figure out glasses improve my vision to 20/100 or 20/150 when I was in high school. The 20/100 filter seems pretty accurate.
I have this, I can only see out of 1 spot in each eye. Thank you bacterial meningitis. The 5 strokes didn't help either. So hard to find anything when you cant see anything but what you focus on
We help people all over the world! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
I have hereditary optic atrophy and 4 of my 5 kids have it. I’m willing to travel. Where’s office info ?
@@mrskgalon hi there, we can only improve not cure OP. But the great news is that Improvements of anywhere from 2-5 lines in acuity is common among our patients.
@@mrskgalon to your question about location, we are in Illinois but work with people from all over the world. The best thing to do in your case is to schedule a consultation on our website at www.visionforlifeworks.com to speak with Dr Steinhauer about your case. You likely can also share information about whichever kid you wish to discuss also to get her opinion on what she thinks we can do to help. Thanks for being here and Looking forward to seeing you on the schedule!
Hi I was told in late February that my optic nerves have due to too many optic neuritis attacks I have spent the past three months watching my side absolutely crumble to the point of visual snow has happened my central vision is going fast and sub peripheral in my right eye no doctor will help me where I am as I personally don't think they have dealt with this I am definitely going blind really fast? I am so terrified
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
How is your eyesight going?
For twenty years my daughter eye doctor never offer any suggestion or help. Even if I asks if their anything that be done they shut you down quickly. They just want you to come back every year for a checkup and wave goodbye until the next year. It's all about the money. My daughter loss her vision over night when she was 12 because she needed a shunt she never been happen since then.
We are so sorry to hear this, Carol.
The only thing I haven't tried is syntonics, which seems to be gaining positive outcomes in recent research. Years and countless sessions of VT didn't really move the needle. I do wonder how light therapy impacts atrophy. At the end of the day nothing can repair a damaged optic nerve, but maybe you can be trained to better use what do you have? Or maybe exotropic peripheral vision is the best adaptation in my case?
Years of just using vision therapy did not give us very positive results with optic atrophy until we added syntonics.
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If you have a optic atrophy but with peripheral sight on both eyes, what is your sight and how it is possible when the optic nerve is not functioning
Hi Brigitta Atrophy doesn’t mean not working it means not working efficiently. Typically people still have sight but it’s greatly diminished with OA.
I am from india and i am suffering from this. I can things up close but according to the distance the image gets blurry. My mother had this same condition so it is genetic. We have been visiting many hospitals since i was small but they say that no treatment is there. This really effects me a lot on my daily basis especially school. So please can you tell me what kind of treatment or things you provide to improve vision. This would be really helpful if you can explain.
I was involved in an accident that caused traumatic optic nerve atrophy. It resulted in permanent blindness in my peripheral, low vision in both eyes. In my right eye I experience a flashing light that is there 24/7 even when I close my eyes to go to sleep, it’s debilitating. The flashing got worse over the past year, I went to the specialist, and they told me the cells are misfiring for whatever reason and there’s nothing they can do about the flashing. Is this common? Are there no treatments?
I'm so sorry that this happened to you. I pray that it gets better. Did they ever find any solution?
Im 2800. I had swollen. Macular high pressure in eye
I have this condition and I’ve only met one other person who had it
Well we have met many and have helped many. So you are not alone and we can help you too! 🙌🏼
One thing I have to say is, most people in the general public don't have a clue what Optic Atrophy is. I have it in both eyes. And, yes eye Doctors would know. Because, I was curious, and asked mine. How many people he sees with it. It's common to them
But, when I tell someone I have Optic Atrophy the majority of people never heard of it.
We would tend to agree with this observation.
Yes, Thank you. And, for getting the word out there. Because, it is a shame we are in the 21st century. And, people are ignorant to knowing about things like this. There are people who are understanding. But, others who are judgmental sad to say.
Will this help my optic nerve damage by giant cell atritis in my left eye. I am in south africa
Would this technique also work for glaucoma?
Hi Holly, it would not be very effective for glaucoma as the pathology is different.
Can you talk about if there are any links between ADHD and amblyopia or how ADHD may effects your vision? Thanks Dr. Julie
We have a lot of videos on that subject! Check our channel, as well as our blog: visionforlifeworks.com/blog
Too hot to my comment I have multiple sclerosis and have had optic neuritis attacks which has led to the optic atrophy. I am only 30 years old with two small children and to have my vision like this is terrifying.
I cannot read all type right now I have to use the speak of a microphone to type out for me. My vision is difficult to explain I see everything in a certain way and colours but it is blurry or really clearly especially if outside and light affects me horribly whether it's indoors or outdoors I am mostly in glasses sunglasses that. I can just make out the top letter e on an eye chart. I don't see faces clearly for example unless I go right nose-to-nose
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
@@visontherapy thank you so much for your response I will fill out the questionnaire
@@visontherapy I am so scared and need major help
So I did the questionnaire and as I thought I am in the danger zone. I was told it ended with basically having to. I cannot do the consultation does my trying to get help stop here?? 😭😭😭😭😭😭😭
No - we answer all the questionnaires in the order we receive them.
I have had opa1 my whole life, current vision is 20/400. when I was a child i was 20/200. I have 5 children and recently had genetic test done on all of them, to discover 3 have the gene.
hi, can you pls help me? my right eye had been blurry since august 2021, if i look far, the details of a thing are not complete. is this treatable?
also, if i use my phone, my vision got blurry and blurry
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Can you talk in hindi if i consultant schedule for eye atrophy
Hi there. Thanks for your interest. English is the only language to communicate with at our clinic.
Is bilateral segmental optic atrophy curable?
We need to know more about your situation. Please email us at info@visionforlifeworks.com
20/200 is the top letter on the original chart. I have 20/100 atm, but i don't know what's causing my vision loss. Two drs were talking and i heard optic atrophy mentioned. :/ Grrr. :(
We cannot comment on someone's medical condition without knowing more about their specific situation. Please email us at info@visionforlifeworks.com as well as take our Quality of Life Questionnaire on our homepage and one of our therapists will be in touch. www.visionforlifeworks.com
@@visontherapy Oh sure, I didn't mean for you to diagnose me.
my mother had experienced like that, only blurred in left eye. for almost a month no.sight at all,then after few,months she see,
only 10percent light but images is,same of what you discuss, until now no.improvement on left eye, we refer on.neuro optha but unfortunately we are financially constraint, how can you help us pkease
If you are interested, we help people all over the world and all ages!! We would love to learn more about her. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Does this help people who are diagnosed with traumatic optic neuropathy?
Yes!
We customize our vision therapy programs to each individual. We need to learn more about you specifically. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
What take medence for optic nerve
Hi Myrna, we do not offer medication or any medical advise for this but have other approaches that will and can do more than any medication can.
I still have some side bision
I have optic atrophy in both eyes and my left eye is 20/800 and finger counting at 5 inches away from my face. It isnt totally blurred out like what you represented. It is more like the colors are all smeared and I'm not able to process what I'm seeing. My right eye is 20/400-20/600. Again same phenomena just a little better acuity. However I also have alternating strabismus, exotropia, and astigmatism. So my brain doesnt recognize I have two eyes so it utilizes one at a time dependent on what I'm looking at. If I'm looking up close my left eye goes into focus and kicks the right eye out. If I look at something far away the opposite happens.
I have no peripheral vision, depth perception, or 3D vision.
I'm trying to get in touch with DHS in IL to hopefully get services back and I want to start learning braille as print is becoming too difficult.
We would love to help you, but we need to learn more about your condition specifically. If you are interested in our help - please reach out! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
My sis. had born with optic atrophy in the right eye, it is totally blind, with only one eye she can see. Another problem that the right eye is smaller than the left. Is there is any possible treatment for her?
We would love to help her, but we need to learn more about her specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and help her fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, she can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
I'm from North East India, my sister has optic nerve atrophy... initial she had severe headache and severe vomiting and loss her vision it's been a year now she Still have mild headache and boby pain.... How can you help us
We would love to help her, but we need to learn more about her specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Hello ma'am
Please tell me about optic nerve atrophy therapy. My son has only light perception. Please please tell me something
We assess the patient and develop a two step program involving photo-syotonic light therapy and vision therapy. We would love to help him, but we need to learn more about him specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Good day I am from South Africa I have just a week ago been told of my optic atrophy in both my eyes I was told at the local hospital that my I file is being closed as they can't do anything more. I have spent the past week researching like crazy and listening to every single UA-cam video that I can on optic atrophy and what exactly is going on and what treatments there actually are. I came across your wonderful video today.
In your video you have said a person from India can contact you therefore I am contacting you to find out how you can help a person like me on all the way in South Africa as that's scared and really needs help and it seems it is difficult to find that here there seems to be not much understanding on this. Please do get in touch with me on how your company based in the United states to can help me. Thank you so much
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Good day I'm having a problem with the questionnaire my mum is reading the questions to me I can't answer a lot as I can't read or anything like that anyway because of the optic atrophy
You can also schedule an appointment by following the link above
@@visontherapy I do not have the money to make an appointment that is why I am saying it was me trying to get help stop here
I am so scared and terrified
I have a territory children removed after removal my optic nerves are damaged or atrophied is there any help or hope for me my vision is double and also dim
We need to learn more about you specifically. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Is This true or a scam?
No it isn’t. We have helped thousands of people over 2 decades+ and this channel is full of videos going back well over a decade. If you have a case you wish to discuss please feel free to schedule an online consultation and let’s discuss what options there are for your specific condition. You can do so by visiting us at www.visionforlifeworks.com
Can stem cell therapy be useful in optic ateophy cases?
Also can esight 4 glasses help in such cases.
Thanks for your guidance Dr. Julie
We currently do not have any patients using eSight glasses
@visontherapy but can stem cell therapy be usefull?
Hello Doctor. Thanks a lot for the explanation.
I did a diagnosis past week, and it revealed that I had adie pupil (Symptoms are: pupil dilates all time, contract little when exposed to light, along with blurry vision for near or small things).
I did another blood test, I find out that I am infected with taxoplasmosis and immuned from cytomegalov and herpes v. The thing is, after looking after what cytomegalovirus can affect, I find a common issue which is optic atrophy and chriorentinitis. I actually feel the first symptoms of blurry you showed. And is it in this case adie pupil as my doctor said, or is it an other disease caused by either taxoplasmosis or cytomegalov. And after all is it going to be treated.
I am from Algeria btw. Thank you so much
Per Dr. Julie: The blurriness could be coming from multiple things you mentioned. Make sure to visit an eye doctor and have them monitor you regularly.
@@visontherapy Thank you
@@visontherapy Thank you. I went back today, he recommend to use Pilocarpin 1%, one drop a day. I hope it will solve the problem.
I have been suffering from optic attrophy since 14 years .I couldn't cure it .I am from India
We would love to help you, but we need to learn more about you specifically. We customize our vision therapy programs to each individual. We help people all over the world! Please visit our website and fill out the Functional Vision Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
Mee too I am from India suffering from it since birth
hoping someone from your office calls me back, we'd love to talk to you and setup an appointment
Did you call the office and leave a message?
@@visontherapy I sure did 🙂
Witch country,nàme please
Glen Carbon, Illinois, United States
I'm 52 years old adopted and was told This was inherited by birth. Used to think I was the only one who had it never understood how to explain it
We help people like you all the time! We need to learn more about your condition specifically. If you are interested in our help - please reach out! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
WATCH WHAT I CAN DO WITH MUYSIC AND GTA I HAVE HAD IT MY WHOLE LIFE AND THERE IS NO CURE YET BUT ELON SAID HIS NUROLINK CAN FIX IT IN BOUT 7 YEARSS AND MAKE IT BETTER
how
We are not sure what your question is....
According to your video my vision in right eye is somewhat 20/200 Cause of optic neuritis not known It’s now two years but the sight is stable Had my cataract surgery of both eyes recently The eyes usually ache or I can say feel like tired eyes Especially in the morning when I wake I feel stiffness in my eyes They are at peace with sunglasses and reading glasses I don’t wear glasses otherwise as after surgery my let eye is 6/6 Will your syntonic therapy be beneficial I am from Pakistan Thanks
We unfortunately cannot predict without knowing a lot more about you. If you are interested, we help people all over the world and all ages!! We would love to learn more about you. Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
I have optic atrophy... Thankfully I only have it in one eye. However, I see almost nothing out of that eye
We can help you with that! Please visit our website and fill out the Quality of Life Questionnaire on the home page, then one of our therapists will be in touch! www.visionforlifeworks.com
Or, you can can schedule a consultation for $149 by clicking the link below:
visiont.kartra.com/page/PxT101?fbclid=IwAR3n6NODZP5a4bYNFhi34J9bIRFT1Ir2JEt_EMeAGWYU0e_nMwB6rCJ35yY
I'd love to, but I'm several hundred miles away from you clear in West Virginia 😞😞
What causes optic atrophy?