This just had me in tears my ex girlfriend left due our situation started to affect her health, her MS, so she left, killed us both. She had a long and terrible relapse over the break up. I'll never forget the date she was diagnosed and she was so scared of me leaving, March 22nd 2013. After we broke up she went downhill pretty fast. We tried friends and every time I saw her she looked worse. On and off contact with up and down moods it could only go one way and it ended is punishing nasty arguments. Last time we spoke last November it was verbally violent. Now we no longer speak. Not a sufferer but really understand what ms can do and have experienced it first hand. Your a beautiful brave lady and I can't give you enough props for having the courage to put these videos out. Your amazing xx
Your an inspiration. Thank you for posting these videos. It's brilliant to hear your story and they help other people understand some of the wider emotional, as well as physical issues involved with getting an MS diagnosis even in the primary stages. I hope your doing well and that your symptoms arern't troubling you too much.
My dear, your honesty and compassion is sublime.. Not many people state or convey their woes as you have done in this video... Keep on keeping on... I'm going to check out your other videos on MS... You may be a passive person.. Kind, logical, considerate- passion... Not many people can do what you are doing in these moments... I am thankful there are people like you in this world... Even at times when all is SH*T and feeling like SHI*T.... When a person shares their journeys, their woes... The link within your energy of this whole situation is remarkable and a comfort... Blessings to you...
i was in an inpatient psych back in 2010 and met a fellow young russian dude...lil younger than me he was about 23. told me alot about his experience with it......got a good impression. you're a warrior...stay strong. hopefully you'll manage to live comfortably.
Hi Carolyn, Thank you so much for sharing this - I was diagnosed with MS in 2006 and think it's so important to share our experiences. In fact, I'm working on a new online community for patients with MS and am looking for people who would be willing to tell their stories on the site when it is launched - please contact me through UA-cam if you're interested! Thank you so much and best of luck on your journey - I hope to hear from you! Kate
my thoughts are with you...chronic illness sucks, believe me I know as I suffer persistent pain...chronic pain too is just awful..robs us of quality of life..you are a battler and brave in the fight..we will get through this
This story is exactly similar to mine. My boyfriend of 2 years couldn't handle it anymore and left me and we worked together. I also was let down by management and had to have a leave and wanted my apology. Eventually they found every reason to fire me outside my medical coverage. You made me cry! I'm seeing a neurologist for the first time in a few weeks. Xoxoxo
Hi my name is joel. I also was diagnosed in 2010. And also went through a break up also that year. Depression and stress made it even worse cause i really didn't understand what was going on with me. But i thank god that im still alive & yes it gets hard for me cause i can't do the things that i used to. I have RRMS. It gets tough at times but i don't let it get the best of me. We have to fight this disease in a positive way. And pray that 1 day they'll be a cure.
I was just diagnosed January 23rd this year broke up with my exs cause he only want sex and I am Christian and is against sex before marriage never was really into it
Caz I have watched a number of your videos! YOU ARE GREAT. What a really positive attitude you have. I have MS too and had to try and get my head sorted when I was in my early 30's. I have done number of things - got married.... now going through a divorce! etc, etc, etc... You look fantastic! as a guy, I would say you will definately have guys quing up to want to now you, let alone go out with you!!! Neil - (think about LDN for MS)
i know how much you feel from beginning to end... never thought anyone else did/does. anxiety definitely doesnt make it easier. its very emotional and stressful
@TeamCGS2005 - Thanks for watching, I admire your attitude very much, it's people like you who help people like me feel supported in a genuine capacity. The ackowledgement, awareness and understanding from people unaffected by the illness is very important for us...
Stay strong. And consciously try to relax as much as possible. You seem tense. Have you noticed that certain situations make you more tense than others? Have you considered that you can react to those situations in a relaxed manner? Even if you don't think it will cure your MS you'll at least be much more comfortable and have more energy. All the best.
Caroline, these videos represent some of the earliest blog type videos on UA-cam, but we haven’t heard from you in years, no uploads or comments. We all hope that you’re managing well
Hi Caroline, my name is David. I am from Mexico (56), my wife Terry (50) developed MS one year after we got married in 1981. She was diagnosed MS in 1993. In May 2003, we found a natural product called Alfa PXP from a Company named ENZACTA. 10 weeks after she started taking the Alfa PXP (almost 9 years ago) June 2003, all her syntoms double vision, chronic fatigue, numbness - have not come back. Alfa PXP will be available very soon in Australia and New Zealand. I can send you testimonials.
Omg! I also have Anxiety disorder! And the worst part is, it's always triggers when i think and start to worry that "I might" have MS. I get really scared and i would start an axniety attack. My aunt has MS and she's deaf, it's terriable. I am not going to say i'm sorry you have it, because from you're looks and the way you speak, you're so strong, and i can't describe to you, that even if you have anxiety disorder, you will not let this illness let you down. You are fighing 2 disorder!! God bls
Really sad to hear what you went through and wish you all the best. I don't suffer from MS and I don't know anyone who does, but I don't believe people should only start having an interest in a disease or topic until they themselves are affected by it in some form or other. This is very often the case however. All the best.
Sorry to hear about your struggles. It sounds like scary stuff. I have one question. In about 2008 I had an episode with pain (Not MS) that left me cripple for a couple of years. I am now in a position of giving talks to certain groups to educate them on how to manage pain because of what I learned from my own experience. It sounds like people with MS mostly have a loss of functioning in their body parts. Do you experience any physical pain that's associated with your MS?
Hi buppian1, Im so glad you could relate...I have had three relapses since Decmber 2010 (diagnosed feb 8, 2011) and each time it affected both my speech and thinking, this was extremely frustrating, but it does get better, it just takes weeks... Emotionaly Im not doing so well tonight, very up and down, and tonite Im very down. Feel like Ive lost my lust for life. I know it will become easier so we have to give ourselves a break and let ourselves grieve, as we have only just been diagnosed.
This is the second time I have seen this clip. This time I read the comments too. There are so manny good people in the world and you are so brave shering your story. I was diagnosed in January 2010 and my symptoms where just like yours. Also, I can speak to you about this, but I can not speak about MS to my friends. I am a teacher/musician and MS has been hard on my right arm, leg and my balance, so things have been though. To you go out a lot? I don't. Do you worke out? Tips on diet?
@jackiehurst - Yep, stress was definitely my trigger but unfortunately it's only one piece of the puzzle. They are still trying to work out a definitive answer to what causes MS, at the moment they say there are a range of genetic combos (57 or someting!) which can make one vulnerable to geting MS, so its this pre existing vulnerablility, coupled with an evironemntal trigger (such as stress, vaccines, pollution etc) that will actually trigger the onset of the disease...Thanks for watching...
Wow, my first real eye opener to MS symptom pre-diagnosis was exactly as you describe in the video. Pinkie and ring finger on hand going numb. I was too first told it might be carpal tunnel, and had an ergo done at work on my desk (snicker). A Dr. confirmed, not CT, wrong area of hand/fingers. Little did they know then how big of a problem it actually was a precursor to! My symptoms piled up after that until I was given IV SoluMedrol in the hospital (at my worst) and formally diagnosed.
If only I'd been sent to a neurologist for my carpel tunnel, then I'd have been diagnosed 5 years earlier. There needs to be so much more awareness of these symptoms and signs which I basically ignored or had fobbed off for almost 20 years.
wow I certainly can relate to the teamleader situation and no support from management *hugs* my first sign was my hand and i noticed my handwriting went from very neat to messy and in my work we are doing lots of paper work / writing and the shaking ...and the letters not there when i was sure i had spelt it right and like you i am a very good at spelling *hugs too you*
Yes, worsham3740 - we are stronger than most...Im coming to the conclusion that this is one of the unique characteristics that bonds us all together. We each have our own story of heartache, bravery and hope. I dont want to think I have changed much as a person, but in reality, how could I not have? Maybe in time Ill realise I have changed for the better... Thank you for your words ;)
Hi, my name is Lydia I have ms too, we found out on March 2013, I couldn't walk and barely moved my arms, now I just got my yellow belt in karate, I got my life back after weeks of depression, thanks to 2 things: I became a raw vegan( mostly organic) and sport. My 2 beautiful boys are my only source of energy, love and sport! I don't take any medicine!!! so far it works with me,ORGANIC RAW VEGAN+ DAILY EXERCISE hope you will try it and it will work for you too! God bless you
Ahhhhhhh, I believe I have MS too. I'm living with my grandmother and she doesn't really listen. The thing that makes it worse is she is a retired nurse thats recently been getting into mind over matter beliefs. For me I noticed that recently it got cold and i seemed to become intellectual again and fixed loads of school work, then 2 days later it got hot and i got bad brain fog and obsessive thoughts and fatigue. For me I wont be able to type right when im in these things. also get tingles
@chucky362 Yes, Im Aussie - I know quite a few people who had a bad year, Ive said this every year for a long time, but 2010/2011 has really by far been the worst...Im hopefully on the way up now - and this terrible year is almost over - Ill drink to that!
I'm so sorry. I'm going through a diagnosis right now. I just had a brain MRI I should find out the results soon. It's very scary, I've been watching videos seeing if there was anyone I related too. I have the same thing happening to hands, I was tested for carpel tunnel the test came back negative.
Hiya Wackpdot1, I will have a look at that site - I have not seen this one yet, there is clearly a number of good sites that dont come up in a basic MS google search. I appreciate your advice :) Hope youre doing well.
see your MS id still in starting stages do look out for homeopathic practitioners it really works my mom is also suffering from MS from last 18 years and last 7 years have been very great she had improved a lot because of homeopathic drugs and not to mention the bad effects that my mom suffered due to steroids tht she had each night.! Wishing you a healthy life ahead.
@hunter7754 - Thanks for watching - I had my first syptoms in June of 2010 and experienced my first serious relapse in December of 2010 - this led to my diagnosis in February of 2011 - cant believe how quickly the time goes, feels like yesterday...then i look in the mirror and see how much I've aged over this last 18 months :/
That is so bad to hear about all the things I felt too... We had bad luck in having this dicease, we have not even a chance to cure cus they sell medication for a high price, if a cure is discovered then it won't bring profit to big companies. hugs from Brazil and I hope you are fine by now.
@antiquesman2606 - Hi there, I know there are some fantastic MS pages on f/b, but at this point I havent joined them, sounds funny, but for privacy reasons - Oddly I feel comfortable sharing my deepest thoughts w/ the youtube world, but when it comes to my everyday world, for now I have decided that I want people to continue to know me as the person I was for the first 33 years of my life, before MS came along... maybe in time when I'm settled in life with my own family Ill feel differently...
Hi there wow now thanks to your videos I'm understanding so Much more your inspirational I'm not yet diagnosed but my symptoms are similar, two MRIs have multiple lesions on my brain and cervical I have chronic fatigue and really bad balance I feel I can't sit on a chair without the feeling of I'm going to fall off I have numbness in my arms and a creapy crawly feeling in my scalp and legs its really hard to figure this all out oh well I'm off to the neurologist again next week Cheers
2010 was the bad news for me to trust me I understand my job found out i had MS and they told me they didnt need me any more after 15 years,what can i do
Hi There,Benn Watching you clips. I am in the process of trying to get into a neurologist in Melbourne. Three Week ago I developed a Tremor in My Right Hand. The next day I go the onset on Pins and Needle and my Fingers, hand, Feet, and toes. I also get burning feet and leg if I walk to much and once. Ever day I seem to get more and more symtopms ans some days are worse than other. Today my legs started sharling and also started stammering.
@lebanese996 - It's a vicious cycle isnt it? Worrying more when we know we shouldnt be, very difficult... thanks so much for your words of strength and encouragement, there are times when I dont feel very strong at all and its these times when I can think back to the supportive words of wisdom my viewers have given me.
Hi. I have had some weird symptoms for a few years now and it started with a tingling in my nose. That was some years ago since that started and since then I have had many symptoms that sent my to a neurologist. he examined me and found that I had no reflexes in my feet. so I had an MRI witch was back in 2007 and it was clear. I am now 41 years old and I am having new symptoms like loss of balance,numbness, and panic attacks. every morning I wake up my fingers are numb. I have had blood tests,heart monitor blood pressure monitors and all was ok. my new symptoms are scary and I find it hard to walk down the street trying to keep my balance without looking like ive had a few drinks. my doctor tells me im ok but I know something is wrong. can you give me some advice please because I am at my wits end? Thank you.
Regarding your numb fingers, you should look into whether you might have carpal tunnel syndrome. I used to have it as I do a lot of power lifting/weightlifting which can stress the wrists, and there are various ways to get it sorted.
I was diagnosed in 2009 and have pain and nerve issues on a daily basis. I take many different medications to handle all of my symptoms. I am currently taking a new research medication called Aubagio. I understand what you are going through on an everyday basis.
Europe is very much divided with regards to stem cell research. The UK here is one of those that advocates it in fact. I find it quite odd (please don't be offended by this though) that the U.S has such concerns about stem cell research but then is very much behind genetically modified crops (which I might add the UK in general is very much against). I read in my local news about a drug co developed here in the UK called Gilenya (sp?) as well and thought of you MSBunnyCuddles.
I know nothing though something did catch my attention just now...someone mentioned in another video...they were diagnosed with ms...only to find out 3 yrs later...it was lyme disease. They went antibiotics and viola...they're fine now. The point is...be thorough...and if dble check with a qualified educated dr. in Lyme...not just reg doc. Peace & Good Luck. :)
This is David again. My wife had MS for 21 years when she started to take the Alfa PXP in My of 2003. And changed my wife's life and my life for the better for the last (almost) 9 years. If you would like information about the Alfa PXP send me an email to daseka@gmail.com I would gladly send you testimonials and info. Also, very soon, this natural product "Alfa PXP" (made out of rice) will be available in Australia and New Zealand. Take Good Care & God Bless.
You should join "paitentslikeme" great site for MS and great support, ive had MS for 5 years with only 1 major relapse which I have recovered from about 80%, I give credit to the site and members for information need to help me.
This just had me in tears my ex girlfriend left due our situation started to affect her health, her MS, so she left, killed us both. She had a long and terrible relapse over the break up. I'll never forget the date she was diagnosed and she was so scared of me leaving, March 22nd 2013. After we broke up she went downhill pretty fast. We tried friends and every time I saw her she looked worse. On and off contact with up and down moods it could only go one way and it ended is punishing nasty arguments. Last time we spoke last November it was verbally violent. Now we no longer speak. Not a sufferer but really understand what ms can do and have experienced it first hand. Your a beautiful brave lady and I can't give you enough props for having the courage to put these videos out. Your amazing xx
You pack so much into your "My MS Story" here, and I especially appreciate how you include all the emotional aspects of your story.
Your an inspiration. Thank you for posting these videos. It's brilliant to hear your story and they help other people understand some of the wider emotional, as well as physical issues involved with getting an MS diagnosis even in the primary stages. I hope your doing well and that your symptoms arern't troubling you too much.
My dear, your honesty and compassion is sublime.. Not many people state or convey their woes as you have done in this video...
Keep on keeping on... I'm going to check out your other videos on MS... You may be a passive person.. Kind, logical, considerate- passion... Not many people can do what you are doing in these moments...
I am thankful there are people like you in this world... Even at times when all is SH*T and feeling like SHI*T.... When a person shares their journeys, their woes... The link within your energy of this whole situation is remarkable and a comfort...
Blessings to you...
i was in an inpatient psych back in 2010 and met a fellow young russian dude...lil younger than me he was about 23. told me alot about his experience with it......got a good impression. you're a warrior...stay strong. hopefully you'll manage to live comfortably.
This helps a lot, just found out I have ms and waiting to see a neurologist now. It's quite scary wondering what the next few months will bring
Hi Carolyn,
Thank you so much for sharing this - I was diagnosed with MS in 2006 and think it's so important to share our experiences.
In fact, I'm working on a new online community for patients with MS and am looking for people who would be willing to tell their stories on the site when it is launched - please contact me through UA-cam if you're interested!
Thank you so much and best of luck on your journey - I hope to hear from you!
Kate
I was diagnosed Jan 2010. Working hard to reverse this thing. I wish you all the best
my thoughts are with you...chronic illness sucks, believe me I know as I suffer persistent pain...chronic pain too is just awful..robs us of quality of life..you are a battler and brave in the fight..we will get through this
My father has also this desease. I do my best to help him !
Please help people with MS ! ! ! They need the support !
This story is exactly similar to mine. My boyfriend of 2 years couldn't handle it anymore and left me and we worked together. I also was let down by management and had to have a leave and wanted my apology. Eventually they found every reason to fire me outside my medical coverage. You made me cry! I'm seeing a neurologist for the first time in a few weeks. Xoxoxo
Hi my name is joel. I also was diagnosed in 2010. And also went through a break up also that year. Depression and stress made it even worse cause i really didn't understand what was going on with me. But i thank god that im still alive & yes it gets hard for me cause i can't do the things that i used to. I have RRMS. It gets tough at times but i don't let it get the best of me. We have to fight this disease in a positive way. And pray that 1 day they'll be a cure.
your so brave your story really touched me.i pray to that there will be a cure.x
I was just diagnosed January 23rd this year broke up with my exs cause he only want sex and I am Christian and is against sex before marriage never was really into it
Caz
I have watched a number of your videos! YOU ARE GREAT. What a really positive attitude you have. I have MS too and had to try and get my head sorted when I was in my early 30's. I have done number of things - got married.... now going through a divorce! etc, etc, etc... You look fantastic! as a guy, I would say you will definately have guys quing up to want to now you, let alone go out with you!!! Neil - (think about LDN for MS)
i know how much you feel from beginning to end... never thought anyone else did/does. anxiety definitely doesnt make it easier. its very emotional and stressful
@TeamCGS2005 - Thanks for watching, I admire your attitude very much, it's people like you who help people like me feel supported in a genuine capacity. The ackowledgement, awareness and understanding from people unaffected by the illness is very important for us...
Wow, you are a really brave person.Hats off to you. Bless.
Stay strong. And consciously try to relax as much as possible. You seem tense. Have you noticed that certain situations make you more tense than others? Have you considered that you can react to those situations in a relaxed manner? Even if you don't think it will cure your MS you'll at least be much more comfortable and have more energy. All the best.
Caroline, these videos represent some of the earliest blog type videos on UA-cam, but we haven’t heard from you in years, no uploads or comments. We all hope that you’re managing well
Hi Caroline, my name is David. I am from Mexico (56), my wife Terry (50) developed MS one year after we got married in 1981. She was diagnosed MS in 1993. In May 2003, we found a natural product called Alfa PXP from a Company named ENZACTA. 10 weeks after she started taking the Alfa PXP (almost 9 years ago) June 2003, all her syntoms double vision, chronic fatigue, numbness - have not come back. Alfa PXP will be available very soon in Australia and New Zealand. I can send you testimonials.
Omg! I also have Anxiety disorder! And the worst part is, it's always triggers when i think and start to worry that "I might" have MS. I get really scared and i would start an axniety attack. My aunt has MS and she's deaf, it's terriable. I am not going to say i'm sorry you have it, because from you're looks and the way you speak, you're so strong, and i can't describe to you, that even if you have anxiety disorder, you will not let this illness let you down. You are fighing 2 disorder!! God bls
Really sad to hear what you went through and wish you all the best. I don't suffer from MS and I don't know anyone who does, but I don't believe people should only start having an interest in a disease or topic until they themselves are affected by it in some form or other. This is very often the case however. All the best.
Sorry to hear about your struggles. It sounds like scary stuff. I have one question. In about 2008 I had an episode with pain (Not MS) that left me cripple for a couple of years. I am now in a position of giving talks to certain groups to educate them on how to manage pain because of what I learned from my own experience. It sounds like people with MS mostly have a loss of functioning in their body parts. Do you experience any physical pain that's associated with your MS?
Hi buppian1,
Im so glad you could relate...I have had three relapses since Decmber 2010 (diagnosed feb 8, 2011) and each time it affected both my speech and thinking, this was extremely frustrating, but it does get better, it just takes weeks...
Emotionaly Im not doing so well tonight, very up and down, and tonite Im very down. Feel like Ive lost my lust for life. I know it will become easier so we have to give ourselves a break and let ourselves grieve, as we have only just been diagnosed.
This is the second time I have seen this clip. This time I read the comments too. There are so manny good people in the world and you are so brave shering your story. I was diagnosed in January 2010 and my symptoms where just like yours. Also, I can speak to you about this, but I can not speak about MS to my friends. I am a teacher/musician and MS has been hard on my right arm, leg and my balance, so things have been though. To you go out a lot? I don't. Do you worke out? Tips on diet?
@jackiehurst - Yep, stress was definitely my trigger but unfortunately it's only one piece of the puzzle. They are still trying to work out a definitive answer to what causes MS, at the moment they say there are a range of genetic combos (57 or someting!) which can make one vulnerable to geting MS, so its this pre existing vulnerablility, coupled with an evironemntal trigger (such as stress, vaccines, pollution etc) that will actually trigger the onset of the disease...Thanks for watching...
Wow, my first real eye opener to MS symptom pre-diagnosis was exactly as you describe in the video. Pinkie and ring finger on hand going numb. I was too first told it might be carpal tunnel, and had an ergo done at work on my desk (snicker). A Dr. confirmed, not CT, wrong area of hand/fingers. Little did they know then how big of a problem it actually was a precursor to! My symptoms piled up after that until I was given IV SoluMedrol in the hospital (at my worst) and formally diagnosed.
If only I'd been sent to a neurologist for my carpel tunnel, then I'd have been diagnosed 5 years earlier. There needs to be so much more awareness of these symptoms and signs which I basically ignored or had fobbed off for almost 20 years.
@Freerider517 - Thankyou for your support!
wow I certainly can relate to the teamleader situation and no support from management *hugs*
my first sign was my hand and i noticed my handwriting went from very neat to messy and in my work we are doing lots of paper work / writing and the shaking ...and the letters not there when i was sure i had spelt it right and like you i am a very good at spelling *hugs too you*
Yes, worsham3740 - we are stronger than most...Im coming to the conclusion that this is one of the unique characteristics that bonds us all together. We each have our own story of heartache, bravery and hope. I dont want to think I have changed much as a person, but in reality, how could I not have? Maybe in time Ill realise I have changed for the better...
Thank you for your words ;)
Hi, my name is Lydia I have ms too, we found out on March 2013, I couldn't walk and barely moved my arms, now I just got my yellow belt in karate, I got my life back after weeks of depression, thanks to 2 things: I became a raw vegan( mostly organic) and sport. My 2 beautiful boys are my only source of energy, love and sport! I don't take any medicine!!! so far it works with me,ORGANIC RAW VEGAN+ DAILY EXERCISE hope you will try it and it will work for you too! God bless you
Ahhhhhhh, I believe I have MS too. I'm living with my grandmother and she doesn't really listen. The thing that makes it worse is she is a retired nurse thats recently been getting into mind over matter beliefs. For me I noticed that recently it got cold and i seemed to become intellectual again and fixed loads of school work, then 2 days later it got hot and i got bad brain fog and obsessive thoughts and fatigue. For me I wont be able to type right when im in these things. also get tingles
Thumbs up my friend, keep hanging in there!~John
@chucky362 Yes, Im Aussie - I know quite a few people who had a bad year, Ive said this every year for a long time, but 2010/2011 has really by far been the worst...Im hopefully on the way up now - and this terrible year is almost over - Ill drink to that!
@wackpdot1 Thanks so much - Ill be sure to have a look...
I'm so sorry. I'm going through a diagnosis right now. I just had a brain MRI I should find out the results soon. It's very scary, I've been watching videos seeing if there was anyone I related too. I have the same thing happening to hands, I was tested for carpel tunnel the test came back negative.
Amen brother God Bless
!! Keep up the good work!!
I just wondering how are you now? 15 May 2018
Hiya Wackpdot1,
I will have a look at that site - I have not seen this one yet, there is clearly a number of good sites that dont come up in a basic MS google search.
I appreciate your advice :)
Hope youre doing well.
see your MS id still in starting stages do look out for homeopathic practitioners it really works my mom is also suffering from MS from last 18 years and last 7 years have been very great she had improved a lot because of homeopathic drugs and not to mention the bad effects that my mom suffered due to steroids tht she had each night.!
Wishing you a healthy life ahead.
@ephemerous - Thanks for watching and most of all thanks for your kind words of support :)))
@hunter7754 - Thanks for watching - I had my first syptoms in June of 2010 and experienced my first serious relapse in December of 2010 - this led to my diagnosis in February of 2011 - cant believe how quickly the time goes, feels like yesterday...then i look in the mirror and see how much I've aged over this last 18 months :/
That is so bad to hear about all the things I felt too...
We had bad luck in having this dicease, we have not even a chance to cure cus they sell medication for a high price, if a cure is discovered then it won't bring profit to big companies. hugs from Brazil and I hope you are fine by now.
do you ever feel like you're wearing gravity boots?
@antiquesman2606 - Hi there, I know there are some fantastic MS pages on f/b, but at this point I havent joined them, sounds funny, but for privacy reasons - Oddly I feel comfortable sharing my deepest thoughts w/ the youtube world, but when it comes to my everyday world, for now I have decided that I want people to continue to know me as the person I was for the first 33 years of my life, before MS came along... maybe in time when I'm settled in life with my own family Ill feel differently...
Are you still on here? Are you doing okay?
I do also have MS....Carry on and keep smiling!!!!!!!!!!!!!!;)))))
Hi there wow now thanks to your videos I'm understanding so Much more your inspirational I'm not yet diagnosed but my symptoms are similar, two MRIs have multiple lesions on my brain and cervical I have chronic fatigue and really bad balance I feel I can't sit on a chair without the feeling of I'm going to fall off I have numbness in my arms and a creapy crawly feeling in my scalp and legs its really hard to figure this all out oh well I'm off to the neurologist again next week
Cheers
I know this is late reply but how did it go?
2010 was the bad news for me to trust me I understand my job found out i had MS and they told me they didnt need me any more after 15 years,what can i do
Hi There,Benn Watching you clips. I am in the process of trying to get into a neurologist in Melbourne. Three Week ago I developed a Tremor in My Right Hand. The next day I go the onset on Pins and Needle and my Fingers, hand, Feet, and toes. I also get burning feet and leg if I walk to much and once. Ever day I seem to get more and more symtopms ans some days are worse than other. Today my legs started sharling and also started stammering.
@jackiehurst My mom also has MS. You're very right. It is caused by stress. My mom been stressing since I was born! Makes me feel scared
@lebanese996 - It's a vicious cycle isnt it? Worrying more when we know we shouldnt be, very difficult... thanks so much for your words of strength and encouragement, there are times when I dont feel very strong at all and its these times when I can think back to the supportive words of wisdom my viewers have given me.
Hi. I have had some weird symptoms for a few years now and it started with a tingling in my nose. That was some years ago since that started and since then I have had many symptoms that sent my to a neurologist. he examined me and found that I had no reflexes in my feet. so I had an MRI witch was back in 2007 and it was clear. I am now 41 years old and I am having new symptoms like loss of balance,numbness, and panic attacks. every morning I wake up my fingers are numb. I have had blood tests,heart monitor blood pressure monitors and all was ok.
my new symptoms are scary and I find it hard to walk down the street trying to keep my balance without looking like ive had a few drinks.
my doctor tells me im ok but I know something is wrong. can you give me some advice please because I am at my wits end?
Thank you.
Regarding your numb fingers, you should look into whether you might have carpal tunnel syndrome. I used to have it as I do a lot of power lifting/weightlifting which can stress the wrists, and there are various ways to get it sorted.
The "every morning I wake up with numb fingers" kind of gives it away that it's Carpal Tunnel at least. Good luck with it!
@Knighthood12345678 Thank you for watching, I hope my MS stays at its 'starting stages' for the rest of my life.... :)
@worsham3740 Im not sure how I missed this comment! Thank you so much for your encouragement - I can really relate to what your saying, thank you :)
I was diagnosed in 2009 and have pain and nerve issues on a daily basis. I take many different medications to handle all of my symptoms. I am currently taking a new research medication called Aubagio. I understand what you are going through on an everyday basis.
How old r u
@daseka Thank you!
Europe is very much divided with regards to stem cell research. The UK here is one of those that advocates it in fact. I find it quite odd (please don't be offended by this though) that the U.S has such concerns about stem cell research but then is very much behind genetically modified crops (which I might add the UK in general is very much against). I read in my local news about a drug co developed here in the UK called Gilenya (sp?) as well and thought of you MSBunnyCuddles.
@BladesOfMunch Well there you go :) as different as every case of MS is, there are occasionally some similarities!
Stay focused but more importantly stay you. It bit you on the arse now get your own back and kick it where the sun don't shine.
@amessacee - yes there are many wonderful diets with good evidence behind them, and that is just one of them, thank you.
I have ms I admire you for talking about it because lord knows its hard #iwearorange
wow! they deleted both my comments.
I love your story stay strong beautiful :) I am with you cause I have it as well which I will make a video on my story :) god bless xoxo-Raven
I know nothing though something did catch my attention just now...someone mentioned in another video...they were diagnosed with ms...only to find out 3 yrs later...it was lyme disease. They went antibiotics and viola...they're fine now. The point is...be thorough...and if dble check with a qualified educated dr. in Lyme...not just reg doc. Peace & Good Luck. :)
This is David again. My wife had MS for 21 years when she started to take the Alfa PXP in My of 2003. And changed my wife's life and my life for the better for the last (almost) 9 years. If you would like information about the Alfa PXP send me an email to daseka@gmail.com I would gladly send you testimonials and info. Also, very soon, this natural product "Alfa PXP" (made out of rice) will be available in Australia and New Zealand. Take Good Care & God Bless.
msbunnycuddles: stress is our enemy, ive had ms for 17 yrs now. Get ahold of me, so I can try help you.
Pamela
Yes I am on that very same diet. One month into it and i'm getting better. =)
i ruined my relationships because of ms..
:) Appointment tomorrow.
Nerves! (literally)
your welcome:)
Rip
an nother thing that helped my ms stop: cilantro and chlorella. google it 2.
try blackseed oil
Your a truly brave woman, let's connect on Facebook if you want :)
You should join "paitentslikeme" great site for MS and great support, ive had MS for 5 years with only 1 major relapse which I have recovered from about 80%, I give credit to the site and members for information need to help me.
r u single now?