I've learned more about what is going on with me from you than I have from pharma-sponsored info on the Internet, or anywhere else and I am more than grateful Dr. Boster. I appreciate it so much!
More than awesome brother, a real lifesaver as my compounded symptoms that created the road block interfering my brilliance, and getting it to my mouth. This video, inparticular, has allowed me to explain better to others, why I am the way that I am, though invisible to them. Turns off I have been walking this MonSter off until a major attack, took everything away just like that. Severely, agressive at onset, or when it finally made it so I no longer could, and within a month Dx after a fall at work led to 100% paralyzation of my left. I've said enough, but you sir have not. :)
Same here. I was a brain trauma severe hemiparesis patient. I have gotten a lot better thankfully, but never could fully understand a level this deep of what’s going on - these symptoms are almost identical to mine
I have found that CBD oil has gotten rid of my spasticity! This is really the biggest significant difference that I can feel with using CBD oil. I am no longer having to take Baclofen.
Erin Bounds I started to use cbd oil. It’s been great to use for stress, anxiety & sleep. & enpstore.com/product/everyday-mushroom-radical-reishi it’s been working wonders for me:)
How dare anyone that gave the thumbs down for this video. When Dr Boster is taking his free time from his family to offer help and explanations of spasticity. How Rude Of you 5 individuals
I’m waiting on an MRI of my brain but I’m having spasticity in my lower back - like constant Charlie horses/cramps & spasms - and I’m now walking with a cane and looking at buying a walker. Bending over is painful as well, sometimes just breathing ‘wrong’ causes my lower back to begin a Charlie horse. It is severely painful and I was on Diclofenac but now am on Gabapentin and I requested Bacoflen from my dr and he agreed but when I picked up my prescription it wasn’t Bacoflen but instead it was Cyclobenzaprine…none of these seem to be helping much. What can I do?!
@@AaronBosterMD I wanted to say I found some otc from CVS and it is CVS brand that says leg cramps on bottle, I have found it helps me with my leg cramps as well as I have prescribed methocarbimal 500mg BID as needed for muscle spasms and I have had to use more lately with the cold but just wanted to share with you and it does help. I also wanted to say that I was diagnosed in December and I was a Truck Driver but can't drive any longer but before becoming a Truck Driver I was a Medical Assistant before so I asked my Doctor about maybe if he thought I might could do this again but he was saying it may be good for me right now but if I end up getting Tremors later I might couldn't do some tasks so I am going to be talking to Work Rehabilitation Monday in hopes they can find something I can do, may God continue to richly Bless your work and family 🙏❤️
I am wondering if the constant stiffness of my feet is spasticity. A year ago or so i could feel muscles relax, while others tightened when i walked. Now they all feel tight most of the time.
I learned to place a couple of drops of trace mineral drops that I get at sprouts. When I don’t drink my water with it I get cramps in my legs. It’s a miracle. My acupuncture therapy told me about this and it works wonders:)
Thank you so much Aaron! One day I will travel to America just to meet you. Im really grateful that you care & that you assist MS sufferer's like myself.. Many blessings to you!
Thank you for making these videos, my body from the waist to my knees is so spastic it makes everything hard to do and has made bending down and all sexual functions impossible. I’m currently on baclofen 20mg x3 daily but it doesn’t help, any ideas?
I've noticed cramps any where from head to toes one cramps causes another even in my tongue. Picking up things with handles electric shocks, arm where meets back goes numb in a strip. Muscle flutters up to apple size. Hot water feels like fire to me wife says its not hot. And more like a squiggly spot in eye like the opposite of light flashed black in color not white like lights do, and tail bone vibrates or flutter. What ya think I'm getting tested as soon as can so many similar things.
I find that gabapentin has helped me with what I call restless feelings in my back and legs. My MS doctor prescribed baclofen but with the gabapentin relief comes alot faster
I was diagnosed 6 years ago and I'm am just now experiencing spasticity for the fist time in my calves, they are so stiff and hurt so bad, it makes walking very difficult.. Thank you for this video ❤
Dr. Boster. Can Spasticity create a quick, almost jerky sensation that thrusts the stomach forward, relaxing back into a natural position after a little bit of time. It is not a constant movement and seems to have no real pattern. Thank-you.
The AI of smartphones is scary. I have been wary of baclofen (and meds in general) for the duration of my MS journey....but my new doctor prescribed a low dose at bedtime and....wow. Didn't realize the extent to which spasticity was wrecking my sleep! And like clockwork i open UA-cam and there you are (from 4 years ago),with what I tell friends (and fellow MS patients, old and new) is the "friendly, knowledgeable, funny and patient accessible.... Boster Booster.' Thanks for taking some of the scary edge off having MS with these videos!
Thank you for watching and thank for the kind words Franciir. Yes bladder botox can help with urinary urgency, frequency and incontinence. Here's a video I recorded of my good friend Dr. Shah, expert MS Urologist: ua-cam.com/video/eDCOQoeNJoo/v-deo.html The quality of the videography leaves a lot to be desired, I'm sorry about that.
I have not yet be diagnosed with MS but I think I have all the symptoms. Cramps is one I am dealing with along with spasms. I’m going to try the stretches. Thanks
Baclofen and Gabapentin just made my fatigue and depression worse, two symptoms I'm already dealing so I threw them out. My neurologist thinks I'm uncooperative. This April 2023 will be the 1 year anniversary since starting the Rituximab infusion therapy. My B cells have been destroyed and my MRI shows no new disease progression but my legs still feel almost completely dead? Exercise makes my symptoms worse so stretching is all I can do. Got any suggestions? Thanks
My spasticity usually effects my upper thighs, I think primarily the rectus femoris, often both sides. Would a Botox injection make a difference? I’ve never tried medication for my spasticity- I try to manage with stretching and cbd oil.
My legs dont feel like a normal cramp. They feel like a snake has wrapped around my legs, and it is so very painful. Each night this happens, and now i dont want to lie down.
Thank you for this Chanel, it's informative 😊 i got the diagnosis in 2015 , and startes desease modifying dryge right away ( plegridy for 4 weeks, was alergic, so i switched to tecfidera, but had a schub) within 8 weeks i was on Tysabri, i had my dose #37 yesterday. I also use baclofen for musclepain, but last month i had botox om the leg, wich was amazing, i actually had 2 days straight with no pain at all , wich was amazing to feel . I had to quit my job ås an kindergarden teacher( becsuse of noice sensitivity), but im back in school, studying for an master in speesch teraphy, wich i think helps my cognitive function stay in shape. I also have a dog i have to walk with, wich is great to stay in motion. I also swim å lot with my kids, wich is a great way for MS pasients to stay in shape i think. 😉😊 I am from Norway, and i am super lucky to live here with our heslthcare system i think. I got diagnosed and started om medicine in 6 weeks!
TY so so much for sharing your story here Lena! I appreciate you're perspective on things and I'm glad you found the right DMT for you! Obviously you're a might #MSWarrior!
This is an AWESOME Instructional Video by Dr Boster and this is Very Common and Painful with ALS Patients and the one way to ease it as well is the Baclofen Pump Implant in some cases by the MS Clinic at Riverside Methodist Hospital in Columbus, Ohio.. Ask Your Doctor about this option
I tried (because it works for me, Liquid turmeric drops for inflammation) your words/advice next time? And glucosamine & msm for any Spasticity. (not sure if I notice a change, been on it 1 week) I respect your words of wisdom ♥
Hi Aaron I was diagnosed with MS about a year and a half ago.i have a stiffness in my upper right leg which I can only describe as spactic ... it’s rigid. During the night I get spasms in both legs especially if I had eventful day. Also during the night I feel mild electric type sensations going down my leg ... my Neurologist says it’s due to arthritis and not MS. What do you think this is
Have a scan looking for S.I. joint issue, usually treatable with an x-ray guided injection. Also, talk to ur doc about magnesium. If he/she feels u r low or need a boost, taking a single pill each night as a supplement (over the counter vitamin) could b the difference between charley horse cramps & restful sleep. Best of luck!
Have you ever heard of patients referring to their body not returning to rest or relax? So you are sitting in a chair your arm is on the armrest, you reach for something but you have to specifically put the arm back on the armrest when done. And of course that could be with any part of your body.
i was diagnosed last July with NMO neuro militis optica. i went thru ib snd oral steroids fpr mpnths. After an ear infection last year i started getting neuropathy in my entire upper body. I was. told it was a flare up and would go away once infection was gone. Instead it gradually worsened. I now have severe neuropathy in blyh hands and arms .I also started getting spasms from my neckk down sometimes for no apparant eeason. Dr started me pn carbenzaprine 100 mg then up to 300 mg.. no effect so changed to dilantin again no relief. In the beginning after steroids They did 5 plasma infusions. still no effect. i had been hit in tge head with a storm door 5 days later my right eye went dark no vision at all. i now do rtuxadab infusions every 5-6minths. i've listened to several of your pod casts. i experience everything you talked about. as if about a month ago i have started getting the crsmps in my legs and feet. i also have been diagnosed with neurotic bladder. UGH!
Donna, Sounds like you have been fighting a tough battle. I'm glad to hear you're on Rituximab and using IVMP and plasma exchange is the right move to address NMO attacks. I wonder if you'd benefit from an intrathecal baclofen (ITB) test dose to help better address your spasticity?
I have a few questions if you could possibly take the time to answer them. I have been having symptoms for about 2 years now and and have had two MRI's, the first one came back with nothing and the second one I have not been back to the doctor yet. 1. One of the symptoms I had was my in my left leg only, from the knee down, it just seized up going completely numb unless I moved it with my hand or something and it was painful. It went away after a few minutes but was very scary. does that sound like what Spasticty is, because I cant find a clear definition. I could move my hips and everything else but from from the knee down was just completely zero feeling besides the nerves inside when it was moved that caused excruciating pain. I was also having tingling in my feet and toes for a few days before and after, but all of the tingling there has gone away but sorta just moved to other spots in my body. The same thing happened but for only about 20 seconds in my right foot, about two days later if I remember correctly, but it was ONLY in the right foot not messing with the calf that time. 2. Can MS be missed on a MRI? and are you supposed to use dye to show up the scars or are they visible without them? 3. What could mimic MS? ALL of my symptoms basically come back as MS symptoms so much so that the NP who talked with me on my first visit to the Neurologist said my symptoms sound like MS but they would have to look.
Howdy Tom! Welcome to my channel! Please take a look through the playlists and you'll find vids on most of the topics above. I'd encourage you to check out "start here" and "MRI" playlists specifically! #WeHaveMS
If you truly mean homeopathic, than you are taking a placebo. I highly doubt the "active ingredient" in the product is magnesium as that would actually make sense. Homeopathy "works" via what they call like cures like, meaning if product x causes cramps or weakness, than a extremely diluted form will remedy it. Can't sleep at nite? How bout some extremely diluted coffee to catch some z's. Got a rash? Poison ivy will take care of that!... Now when I say dilute I mean extremely dilute! Homeopathy uses dilutions that are so extreme there isint a trace of whatever ingredient they put in it, for extra strength formulas then the dilution is even more... Does that not sound silly to you? If that isint a placebo medication I don't know what is.
Howdy Justin. Thanks for your comment! I 100% agree with you that if you dilute below avogadro's number, there's nothing there but water. I do feel that Mg supplementation can help with certain cramps.
@@AaronBosterMD yes, I absolutely agree, I didn't mean to imply mg wasn't useful for regulating muscle contractions. Thanks for the informative videos btw.
A dear friend said his regulsr use of his inexpensive, 2nd hand exercise bike got him thru the cramping "cycle". It wasn't needed as much after a years use. Said it was life changing & glad he stuck w/it.❤
Great video and rarely talked about but highly relevant Would you recommend Ampyra to supplement Ocrevus or would this be too much? I want to do what I can to improve my walking :)
@@AaronBosterMD . Yes I agree. I haven't seen my PCP Dr in like 5 yrs and he is sending me to a neurologist, so I'm happy about that . I'm sure he wouldn't send me if he didn't think it was something that needs to be taken care of. So now I just have to wait for my insurance to approve it.. I'm getting worse everyday ..
Yes I deal with that all the time I'm up now because I can't sleep I'm hurting so bad can't sleep the MS won't let me it's 4:50am here in oklma plus drs don't want to listen to me either in the past the drs taken mri of my spine and brain I bet they seen something there but not said anything to me saying its normal it can't I hurt really really really really bad I shouldn't hurt that bad it's not normal thanks for your videos I've learned more from u then other drs
Can Cymbalta help if you’re having spasticity? My primary care Dr feels I may be having spasticity in my neck from MS. I can not turn my head either left or right more than about 40% left side and 50% to the right. This has been going on for roughly 7 mo. I am faithfully doing stretching of neck throughout the day, in every direction plus my shoulders, back, legs, hips etc. I know I have arthritis in my neck but this is so strange that I just feel it is just arthritis. The more I listen to you the more I’m inclined to believe it is MS related. That’s the back story so can Cymbalta help?
I have recently found ur videos & so thankful to u for sharing ur advice & knowledge. I've was diagnosed w MS nearly 30 yrs ago while still in High School. Years of RRMS have certainly taken a toll. However, this past Oct (nearly a yr ago) I had a major exacerbation, I'm NOT feeling relief, I felt that at that time it was as if I'd been in a major "car crash" & the damage was done... This MS flare was so severe & I've been in agony since. Spasticity is extreme, I've spent months in PT w/ no relief, complete foot drop, taking baclofen for yrs, I'm at my wits end 😩 During flare, I went thru IV Solumedrol for a wk w oral prednisone to step down, been on Tecfidera. I'm so spastic, no sleep, so scared... No relief, worst yr of my life & feel like nobody understands 😔 I don't know what else to do, Thoughts...PS I've literally done yr suggestions, am I now in SPMS? secondary progressive?
This guy is a genius he is right on every subject that relates to spasticity, I just got one question I have a Botox appointment with the doctor soon they suggested that are needed because I have more muscles in one part of my leg and it's stopping my legs from bending because they're firing at the same time so they said that in order to get better you will have to weekend one muscle so the other muscle can fire also, I really need a opinion if this sounds correct
Back then a few months ago I went to see a physical therapy place and the guy was actually very unprofessional...all get made me do is walk back and forth on a place where there's holders for me to grab that's all...left me a very sour taste in my mouth to go again to that place couple months ago I saw that that place is actually gone and no longer in business
Thank you so much for this information. Although I’ve discussed all of this information with my Neurologist, I’ve saved this video to refer back to and to show family members when they ask about my stiff uncooperative legs and hands.
Spasticity is horrendous. And because I'm newly diagnosed when I'm trying to get help I'm being told well they don't know my case... I have baclofen for my normal spasms... My gp managed to get me some diazepam temporarily. They affect my right side of my face, tongue. Throat and neck... As well as the rest of the right side of my body. It often looks like I'm having a seizure and it's exhausting... Definitely waiting on physio needing to help. I'm just slightly lost on everything because this scares everyone around me whilst also scaring me when it chokes me and I can't breathe through the spasms. Thank you for your videos. Honestly
I've learned more about what is going on with me from you than I have from pharma-sponsored info on the Internet, or anywhere else and I am more than grateful Dr. Boster.
I appreciate it so much!
I'm delighted that you find my videos helpful- that's awesome!
More than awesome brother, a real lifesaver as my compounded symptoms that created the road block interfering my brilliance, and getting it to my mouth. This video, inparticular, has allowed me to explain better to others, why I am the way that I am, though invisible to them. Turns off I have been walking this MonSter off until a major attack, took everything away just like that. Severely, agressive at onset, or when it finally made it so I no longer could, and within a month Dx after a fall at work led to 100% paralyzation of my left. I've said enough, but you sir have not. :)
Same here. I was a brain trauma severe hemiparesis patient. I have gotten a lot better thankfully, but never could fully understand a level this deep of what’s going on - these symptoms are almost identical to mine
Is uncontrollable shaking of my hand normal in MS. Not all the time, but often enough it's hindering my eating, writing, etc.
I guess I'm quite off topic but do anyone know of a good website to watch newly released movies online?
I have found that CBD oil has gotten rid of my spasticity! This is really the biggest significant difference that I can feel with using CBD oil. I am no longer having to take Baclofen.
Erin Bounds I started to use cbd oil. It’s been great to use for stress, anxiety & sleep. & enpstore.com/product/everyday-mushroom-radical-reishi it’s been working wonders for me:)
How dare anyone that gave the thumbs down for this video. When Dr Boster is taking his free time from his family to offer help and explanations of spasticity. How Rude Of you 5 individuals
+Van Horne 👊💥
I’m waiting on an MRI of my brain but I’m having spasticity in my lower back - like constant Charlie horses/cramps & spasms - and I’m now walking with a cane and looking at buying a walker. Bending over is painful as well, sometimes just breathing ‘wrong’ causes my lower back to begin a Charlie horse. It is severely painful and I was on Diclofenac but now am on Gabapentin and I requested Bacoflen from my dr and he agreed but when I picked up my prescription it wasn’t Bacoflen but instead it was Cyclobenzaprine…none of these seem to be helping much. What can I do?!
18 years with MS and never knew my leg cramping had to do with MS, Thanks for these informative videos, I have learned a lot.
Glad to help
@@AaronBosterMD I wanted to say I found some otc from CVS and it is CVS brand that says leg cramps on bottle, I have found it helps me with my leg cramps as well as I have prescribed methocarbimal 500mg BID as needed for muscle spasms and I have had to use more lately with the cold but just wanted to share with you and it does help. I also wanted to say that I was diagnosed in December and I was a Truck Driver but can't drive any longer but before becoming a Truck Driver I was a Medical Assistant before so I asked my Doctor about maybe if he thought I might could do this again but he was saying it may be good for me right now but if I end up getting Tremors later I might couldn't do some tasks so I am going to be talking to Work Rehabilitation Monday in hopes they can find something I can do, may God continue to richly Bless your work and family 🙏❤️
I am wondering if the constant stiffness of my feet is spasticity. A year ago or so i could feel muscles relax, while others tightened when i walked. Now they all feel tight most of the time.
I learned to place a couple of drops of trace mineral drops that I get at sprouts. When I don’t drink my water with it I get cramps in my legs. It’s a miracle. My acupuncture therapy told me about this and it works wonders:)
Is spasticity constant? My cramps come and go, so it makes me wonder if it's something different
You are one amazing Dr!
You inform me with so much info, better than my neurologist.
Thank you
Thank you for watching Belinda! I hope the info you learn here can help inform your upcoming conversations with your Neurologist!
Thank you so much Aaron!
One day I will travel to America just to meet you.
Im really grateful that you care & that you assist MS sufferer's like myself..
Many blessings to you!
We'd love to show you the MS Center! #WeHaveMS
Dr Boster. You continually help me feel safe and more knowledgeable. Thank you.
Could you do a video regarding all the different things that can happen to your hands with MS?
That's a great idea! Thank you for the suggestion!
Yes! I can’t bend my left fingers my left wrist stays swollen
Thank you for making these videos, my body from the waist to my knees is so spastic it makes everything hard to do and has made bending down and all sexual functions impossible. I’m currently on baclofen 20mg x3 daily but it doesn’t help, any ideas?
I've noticed cramps any where from head to toes one cramps causes another even in my tongue. Picking up things with handles electric shocks, arm where meets back goes numb in a strip. Muscle flutters up to apple size. Hot water feels like fire to me wife says its not hot. And more like a squiggly spot in eye like the opposite of light flashed black in color not white like lights do, and tail bone vibrates or flutter. What ya think I'm getting tested as soon as can so many similar things.
The tendons and ligament in my legs feel like piano wire that I can't loosen with finger massage.
I find that gabapentin has helped me with what I call restless feelings in my back and legs. My MS doctor prescribed baclofen but with the gabapentin relief comes alot faster
I was diagnosed 6 years ago and I'm am just now experiencing spasticity for the fist time in my calves, they are so stiff and hurt so bad, it makes walking very difficult.. Thank you for this video ❤
Dr. Boster. Can Spasticity create a quick, almost jerky sensation that thrusts the stomach forward, relaxing back into a natural position after a little bit of time. It is not a constant movement and seems to have no real pattern. Thank-you.
yes
The AI of smartphones is scary. I have been wary of baclofen (and meds in general) for the duration of my MS journey....but my new doctor prescribed a low dose at bedtime and....wow. Didn't realize the extent to which spasticity was wrecking my sleep! And like clockwork i open UA-cam and there you are (from 4 years ago),with what I tell friends (and fellow MS patients, old and new) is the "friendly, knowledgeable, funny and patient accessible.... Boster Booster.' Thanks for taking some of the scary edge off having MS with these videos!
As always you've explained it so well! Thank you so much! What about Botox for the bladder? Does it help frequentt urination?
Thank you for watching and thank for the kind words Franciir. Yes bladder botox can help with urinary urgency, frequency and incontinence. Here's a video I recorded of my good friend Dr. Shah, expert MS Urologist: ua-cam.com/video/eDCOQoeNJoo/v-deo.html The quality of the videography leaves a lot to be desired, I'm sorry about that.
I have not yet be diagnosed with MS but I think I have all the symptoms. Cramps is one I am dealing with along with spasms. I’m going to try the stretches. Thanks
Hope that stretching is helping!
All your videos are full of wonderful information! Thank you so much
THANK YOU, DR.BOSTER, BEST VIDEO EXPLANATION OF SPASTICITY ON UA-cam!
Baclofen and Gabapentin just made my fatigue and depression worse, two symptoms I'm already dealing so I threw them out. My neurologist thinks I'm uncooperative. This April 2023 will be the 1 year anniversary since starting the Rituximab infusion therapy. My B cells have been destroyed and my MRI shows no new disease progression but my legs still feel almost completely dead? Exercise makes my symptoms worse so stretching is all I can do. Got any suggestions? Thanks
My spasticity usually effects my upper thighs, I think primarily the rectus femoris, often both sides. Would a Botox injection make a difference? I’ve never tried medication for my spasticity- I try to manage with stretching and cbd oil.
My legs dont feel like a normal cramp. They feel like a snake has wrapped around my legs, and it is so very painful. Each night this happens, and now i dont want to lie down.
Thank you for this Chanel, it's informative 😊 i got the diagnosis in 2015 , and startes desease modifying dryge right away ( plegridy for 4 weeks, was alergic, so i switched to tecfidera, but had a schub) within 8 weeks i was on Tysabri, i had my dose #37 yesterday.
I also use baclofen for musclepain, but last month i had botox om the leg, wich was amazing, i actually had 2 days straight with no pain at all , wich was amazing to feel .
I had to quit my job ås an kindergarden teacher( becsuse of noice sensitivity), but im back in school, studying for an master in speesch teraphy, wich i think helps my cognitive function stay in shape.
I also have a dog i have to walk with, wich is great to stay in motion. I also swim å lot with my kids, wich is a great way for MS pasients to stay in shape i think. 😉😊
I am from Norway, and i am super lucky to live here with our heslthcare system i think. I got diagnosed and started om medicine in 6 weeks!
TY so so much for sharing your story here Lena! I appreciate you're perspective on things and I'm glad you found the right DMT for you! Obviously you're a might #MSWarrior!
Very good information, I deal with spasticity on my paralyzed right side and don't know much , thanks and God bless you.
Howdy Alex! #MSWarrior
Tightening so hard around my legs each night. So very painful.
This is an AWESOME Instructional Video by Dr Boster and this is Very Common and Painful with ALS Patients and the one way to ease it as well is the Baclofen Pump Implant in some cases by the MS Clinic at Riverside Methodist Hospital in Columbus, Ohio.. Ask Your Doctor about this option
I tried (because it works for me, Liquid turmeric drops for inflammation) your words/advice next time? And glucosamine & msm for any Spasticity. (not sure if I notice a change, been on it 1 week) I respect your words of wisdom ♥
QUESTION: Does specify affect the enter this, and the bottom of feet?
Hi Aaron I was diagnosed with MS about a year and a half ago.i have a stiffness in my upper right leg which I can only describe as spactic ... it’s rigid. During the night I get spasms in both legs especially if I had eventful day. Also during the night I feel mild electric type sensations going down my leg ... my Neurologist says it’s due to arthritis and not MS. What do you think this is
hard to say without examining you myself Rodney
Have a scan looking for S.I. joint issue, usually treatable with an x-ray guided injection. Also, talk to ur doc about magnesium. If he/she feels u r low or need a boost, taking a single pill each night as a supplement (over the counter vitamin) could b the difference between charley horse cramps & restful sleep. Best of luck!
My hand loves to curl around soatulas when im stirring the pot for dinner.
Have you ever heard of patients referring to their body not returning to rest or relax? So you are sitting in a chair your arm is on the armrest, you reach for something but you have to specifically put the arm back on the armrest when done. And of course that could be with any part of your body.
thank you so much for that information!
WY Amanda. Glad you found it helpful!
why to I find I get spasticity when I have walked more and been more active then not
i was diagnosed last July with NMO
neuro militis optica. i went thru ib snd oral steroids fpr mpnths. After an ear infection last year i started getting neuropathy in my entire upper body. I was. told it was a flare up and would go away once infection was gone. Instead it gradually worsened.
I now have severe neuropathy in blyh hands and arms
.I also started getting spasms from my neckk down sometimes for no apparant eeason.
Dr started me pn carbenzaprine 100 mg then up to 300 mg.. no effect so changed to dilantin again no relief.
In the beginning after steroids They did 5 plasma infusions. still no effect.
i had been hit in tge head with a storm door 5 days later my right eye went dark no vision at all.
i now do rtuxadab infusions every 5-6minths.
i've listened to several of your pod casts. i experience everything you talked about. as if about a month ago i have started getting the crsmps in my legs and feet.
i also have been diagnosed with neurotic bladder. UGH!
Donna, Sounds like you have been fighting a tough battle. I'm glad to hear you're on Rituximab and using IVMP and plasma exchange is the right move to address NMO attacks. I wonder if you'd benefit from an intrathecal baclofen (ITB) test dose to help better address your spasticity?
I have a few questions if you could possibly take the time to answer them. I have been having symptoms for about 2 years now and and have had two MRI's, the first one came back with nothing and the second one I have not been back to the doctor yet.
1. One of the symptoms I had was my in my left leg only, from the knee down, it just seized up going completely numb unless I moved it with my hand or something and it was painful. It went away after a few minutes but was very scary. does that sound like what Spasticty is, because I cant find a clear definition. I could move my hips and everything else but from from the knee down was just completely zero feeling besides the nerves inside when it was moved that caused excruciating pain. I was also having tingling in my feet and toes for a few days before and after, but all of the tingling there has gone away but sorta just moved to other spots in my body. The same thing happened but for only about 20 seconds in my right foot, about two days later if I remember correctly, but it was ONLY in the right foot not messing with the calf that time.
2. Can MS be missed on a MRI? and are you supposed to use dye to show up the scars or are they visible without them?
3. What could mimic MS? ALL of my symptoms basically come back as MS symptoms so much so that the NP who talked with me on my first visit to the Neurologist said my symptoms sound like MS but they would have to look.
Howdy Tom! Welcome to my channel! Please take a look through the playlists and you'll find vids on most of the topics above. I'd encourage you to check out "start here" and "MRI" playlists specifically! #WeHaveMS
Is botox in the bladder helpful?
You are truly wonderful Dr. I’m learning so much more than from my own Neuro. Thank you so much for your efforts to bring these videos to all of us.
You are very welcome
OTC, HYLANDS LEG CRAMPS, NON DROWSY. Homeopathic, think it's magnesium based. Lo the RN in Florida
TY for the tip Lo! #WeHaveMS
If you truly mean homeopathic, than you are taking a placebo. I highly doubt the "active ingredient" in the product is magnesium as that would actually make sense. Homeopathy "works" via what they call like cures like, meaning if product x causes cramps or weakness, than a extremely diluted form will remedy it. Can't sleep at nite? How bout some extremely diluted coffee to catch some z's. Got a rash? Poison ivy will take care of that!... Now when I say dilute I mean extremely dilute! Homeopathy uses dilutions that are so extreme there isint a trace of whatever ingredient they put in it, for extra strength formulas then the dilution is even more... Does that not sound silly to you? If that isint a placebo medication I don't know what is.
Howdy Justin. Thanks for your comment! I 100% agree with you that if you dilute below avogadro's number, there's nothing there but water. I do feel that Mg supplementation can help with certain cramps.
@@AaronBosterMD yes, I absolutely agree, I didn't mean to imply mg wasn't useful for regulating muscle contractions. Thanks for the informative videos btw.
What causes sudden muscle melting
Dr Boster can you address the use of medical marijuana for spasticity in PPMS?
Please check this out: ua-cam.com/video/YhWIuDvuzRQ/v-deo.html
I love watching these videos i missed.
DoctorKen2k me too!
A dear friend said his regulsr use of his inexpensive, 2nd hand exercise bike got him thru the cramping "cycle". It wasn't needed as much after a years use. Said it was life changing & glad he stuck w/it.❤
Thanks Doc....I'm learning a lot about Ms watching your videos. I haven't learned this much in 20yrs
Great video and rarely talked about but highly relevant
Would you recommend Ampyra to supplement Ocrevus or would this be too much? I want to do what I can to improve my walking :)
I have many patients who have benefited from taking both a highly effective DMT and ampyra.
@@AaronBosterMD Many thanks, I'll request this from the Neuro
Thank you so much for your help, now I know what is going on with my arm.
YW Mireya! #WeHaveMS
I've had a baclofen pump (actually four different ones) for about 26yrs now and it's helpoed me be more active
My pain management Dr gives me Flexeril and it don't help for cramps at all... I get bad cramps to where they make me cry at times. I hate them... 😓
Howdy Cheri! I hope you'll talk to your pain doc about that. There is lots that can be done to help!
@@AaronBosterMD .. hi Aaron I have told them that the med don't help my cramps at all. They never listen. I'm so tired of all this pain
You might consider another medical opinion, just to obtain another perspective on the situation. Just a thought if you feel you're not being heard.
@@AaronBosterMD . Yes I agree. I haven't seen my PCP Dr in like 5 yrs and he is sending me to a neurologist, so I'm happy about that . I'm sure he wouldn't send me if he didn't think it was something that needs to be taken care of. So now I just have to wait for my insurance to approve it.. I'm getting worse everyday ..
Super glad your taking such an active role in your health Cheri steelersgirl!
Yes I deal with that all the time I'm up now because I can't sleep I'm hurting so bad can't sleep the MS won't let me it's 4:50am here in oklma plus drs don't want to listen to me either in the past the drs taken mri of my spine and brain I bet they seen something there but not said anything to me saying its normal it can't I hurt really really really really bad I shouldn't hurt that bad it's not normal thanks for your videos I've learned more from u then other drs
Can Cymbalta help if you’re having spasticity? My primary care Dr feels I may be having spasticity in my neck from MS. I can not turn my head either left or right more than about 40% left side and 50% to the right. This has been going on for roughly 7 mo. I am faithfully doing stretching of neck throughout the day, in every direction plus my shoulders, back, legs, hips etc. I know I have arthritis in my neck but this is so strange that I just feel it is just arthritis. The more I listen to you the more I’m inclined to believe it is MS related. That’s the back story so can Cymbalta help?
Let me ask, in a more general way. Can Cymbalta help MS pain and spasticity?
yes it can certainly help with pain. Not seen it help with spasticity but doesn't mean it can't.
cymbalta can help with neuropathic pain for sure.
Aaron Boster MD Thank you!
Cool thanks
Thank you for the information.x
YW Sarah!
I have recently found ur videos & so thankful to u for sharing ur advice & knowledge. I've was diagnosed w MS nearly 30 yrs ago while still in High School. Years of RRMS have certainly taken a toll. However, this past Oct (nearly a yr ago) I had a major exacerbation, I'm NOT feeling relief, I felt that at that time it was as if I'd been in a major "car crash" & the damage was done... This MS flare was so severe & I've been in agony since. Spasticity is extreme, I've spent months in PT w/ no relief, complete foot drop, taking baclofen for yrs, I'm at my wits end 😩 During flare, I went thru IV Solumedrol for a wk w oral prednisone to step down, been on Tecfidera. I'm so spastic, no sleep, so scared... No relief, worst yr of my life & feel like nobody understands 😔 I don't know what else to do, Thoughts...PS I've literally done yr suggestions, am I now in SPMS? secondary progressive?
This guy is a genius he is right on every subject that relates to spasticity, I just got one question I have a Botox appointment with the doctor soon they suggested that are needed because I have more muscles in one part of my leg and it's stopping my legs from bending because they're firing at the same time so they said that in order to get better you will have to weekend one muscle so the other muscle can fire also, I really need a opinion if this sounds correct
+Adewale Adetunji 👍
Back then a few months ago I went to see a physical therapy place and the guy was actually very unprofessional...all get made me do is walk back and forth on a place where there's holders for me to grab that's all...left me a very sour taste in my mouth to go again to that place couple months ago I saw that that place is actually gone and no longer in business
Let's hope you can find an awesome PT to help take you to that next level Damian 6 Robin!
Thank you so much for this information. Although I’ve discussed all of this information with my Neurologist, I’ve saved this video to refer back to and to show family members when they ask about my stiff uncooperative legs and hands.
Right on Darlene!
These videos are excellent for sharing with people who care about you but don't quite understand the ongoings of MS!
Very helpful 00
Spasticity is horrendous. And because I'm newly diagnosed when I'm trying to get help I'm being told well they don't know my case... I have baclofen for my normal spasms... My gp managed to get me some diazepam temporarily. They affect my right side of my face, tongue. Throat and neck... As well as the rest of the right side of my body. It often looks like I'm having a seizure and it's exhausting...
Definitely waiting on physio needing to help.
I'm just slightly lost on everything because this scares everyone around me whilst also scaring me when it chokes me and I can't breathe through the spasms.
Thank you for your videos. Honestly
TY Ellie! Stay Strong!!
Ellie Smithy me too
Very helpful! I have this problem..left leg is the issue
Thank you for watching and thank you for sharing Michelle. What helps your spasticity when your left leg acts up?