" and by insult, I don't mean you're ugly"..... lol! Thank you for adding humor when talking about such serious topics. I appreciate all the time you put into making these videos.
This was explained so well. I'm 23 and I've been experiencing numbness in my legs and arms, extreme loss of balance, and greying in my left eye over the last week. I didn't think it was a big deal but a random urgent care doctor I visited gave me the suggestion that is was something to look into. My doctor has ordered an MRI for tomorrow and I've been very upset but now that I understand "progression", I feel a lot better. Even if I receive bad news, it's not a death sentence. Thank you so much.
O its definitely a death sentence ms killed my mom at 55 im 36 and now have ms it's going to kill me really slow once i cant walk im gonna put my gun to my head and say good bye i wish you luck
Sometimes a death sentence is better i meAn were sentence to death as soon as wer born but death doesn’t exist death is actually waking up to real life. This life is nothing but a dream
I was diagnosed almost 2 years ago. I have experienced many different responses from providers from compassion to be treated like a drug seeker when I moved out of state for 6 months. I eventually had to come back to Florida to treat MS because I was being treated as if I was faking symptoms 😢. I have learned more about this disease from you than any provider. I know they care I think it’s about the time they are aloud to spend with us as patients. Until watching these videos I was terrified of using DMTs because no one explained to me how they work. Thank you for sharing and I will be going to my neurologist with all I have learned to help me better treat myself with their help and consideration ❤❤❤
Im so sorry to hear this. The medical gaslighting is terrible. I have PTSD and when I started having debilitating fatigue and pain I was treated poorly and medically gaslighted. I wouldnt go to the doc for years until I got optic neuritis/MS. But during that period of not seeking medical treatment I armed myself with knowledge not only about my systems but the widespread narcissism epidemic that has infiltrated our medical systems.
The pool model is incredibly clear to help me understand MS. Your videos have helped me so much. I was diagnosed over four years ago, I have a Dr that I really liked but watching your videos and NMS Society videos I think she has left me in the dark about my disorder. I believe I just finished a relapse and I think I have been having a lot of them. She described them as something major such as loss of movement in a limb or loss of vision. I have run through so many emotions since watching videos the last three days. I just can't say enough how thankful I am that you are here for us.
Sonya, I'm so glad that these videos have helped you, that really is my goal - to reach as many folks impacted by MS as possible. TY for watching and for being so supportive! #WeHaveMS
Thank you, this video was really helpful! I have been diagnosed for 17 years and feel like I'm a ticking time bomb to develop progressive MS. That fear may never go away, but it helps to hear that it is much more complex and not as black and white as I thought.
Dr. B, I love your videos! I have an amazing, smart, caring, knowledgeable MS specialist, and your talks confirm the things we talk about in our visits. This video especially, since at my appt two weeks ago asked; "Am I SPMS now?" and she told me basically what you discuss here. She doesn't find it helpful to label her patients. Thank you for sharing your wealth of knowledge with us!
I am starting my new career in assisting individuals with Multiple Sclerosis and your videos are educating me more on the auto immune disease. Thank you
It's been 20 years since my first MS attack, but I still learned so much from this! It especially helped me understand why I've been affected so much more profoundly by my attack 7 months ago than by my attacks years earlier.
Thank you Dr Boster. Now I understand when I get twitches in my feet and legs it’s old nerve damage and my pool has leaked a bit :) Thank you for this brilliant explanation. It’s comforting thinking about these annoying twitches as old damage and not new symptoms. Thank you for making everything so clear. I’m also very happy to report I’ve gone a whole month without an MS hug and I’ve felt a lot better generally. The changes I’ve made are the exercises each morning and drinking a lot more water. Thank you for taking the time to make these videos, I appreciate it so much.
Ann, Thank you for watching this one and as always thank you fo sharing your comment. I'm glad this model helps provide a better conceptual understanding! yay!
thanks for talking in depth about these things. my past Neuro basically refused to talk to me about what my MS meant even after I pleaded pleaded for help. keep up the great work!
I have just been diagnosed and am grateful beyond words for Dr Boster’s videos - they are marvellous- so clear and informative. Thank you for your generosity and care in making these videos - they are a life line.
Thank you so much for being such a great doctor, educator, and human being. Thank you for having such compassion for PwMS. I believe that you have made a positive impact on many 😊. Well done, Dr. B!
I've been diagnosed with MS for 10 years and never fully understood how this works. There is still a lot I don't understand so that's why I've subscribed to learn more. Thank you for your helpful information! 🙂
I wish I would have seen this 3 years ago when it came out. I am an RN with MS for over 25 years. This is the first time that I understood why my MS health is declining in the absence of relapses. I occasionally have relapses of optic neuritis but I don’t suffer permanent eyesight damage. However the damage does show up on ophthalmologic testing. I no longer take DMT meds, but after seeing this video I think I should be on DMTs. I have significant brain loss but keep my brain active so others might not see my cognitive dysfunction - I am aware of it but it’s difficult for others to appreciate.
This was so helpful and explains so much in my own life. I've had new symptoms appear over the past 2 years such as extreme fatigue and horrible foot cramps yet I have not had a relapse in over 3 years. I didn't understand how it could be my MS but your video makes sense sadly.
Thank you I hadn’t heard the pool analogy before. I have had MS for 30 years, and I am experiencing much lower functional reserve. My routine is physical exercise (yoga, cardio and weight lifting) as well as neuroaccupunture, and physical therapy for gait . I eat a healthy diet, don’t smoke and have an occasional beer. I cannot imagine the space I would be working with if I hadn’t followed this regime for as long as I have…my MS is stabile so I am watching for breakthroughs with myelin repair. Hoping for another tool in my toolbox…😊
I found this explanation helpful. Now that I'm now using a 2nd tier or drugs, I discovered that an anti-inflammatory diet allowed me to fight off cold/flu much more easily! Oh, that and echinacea tea 2x day in the winter.
I was diagnosed with MS 18 years ago in May. I have almost lost the vision in my right eye and a few other things too, I am 55 years old now and everything u said makes so much sense. I am now on ocrevus and seeing improvements in abilities I lost years ago. Thank u for this video and I will be watching as many as I can find.
You really are a legend and a guiding light Dr Boster. I was in for my monthy Tysabri infusion this morning but I also had to have a stress test and CT Calcium check, just a routine procedure to make sure the heart is ticking. However, during the stress test, I had to stop as my right leg became weak. For the past few weeks, even when walking daily, the thigh area of my right leg gets numb and weak. I have an MRI next month, so hopefully that might help figuring things out. But thank you again for everything you are doing here. You are giving so many people Hope.
WOW! Thank you for those really kind words Darragh. I'm truly filled with joy reading your post. It feels great to be able to help folks in this way. Please let me know how your MRI goes!
Well I certainly didn't expect to feel compelled to post a second comment to one of your vids so quickly following my first, but wanted to inform you of something. I have seen references and descriptions of the leaking swimming pool on a couple of other sites, but definitely found your explanation to be the most comprehensive and accessible. Consequently I have told a friend about this video. She works as an occupational therapist here in the UK and some of her patients have MS. I have suggested she let people know that they can access your excellent advice and info via YT. It genuinely makes a world of difference to have an expert clinician, such as yourself, taking the time and trouble to provide this input to the wider MS community! Personally I find that your vids compliment and enhance what I gain from the UK Bart's Blog. In the nigh on three years since I was diagnosed I've been on a huge learning curve and you've contributed to that in a meaningful way. Thanks very much indeed! Fiona.
I just found this video...answers a question I posted on another video...My symptoms are worsening over time, though I've not had a conspicuous flare up since 2016 and under MRI, I did not show any active lesions...this does a great job explaining how disability can progress while flare ups stay quiet...and what you can do to minimize the disease damage.
Thank you for that very easy to understand explanation. My friend has MS and it has helped me understand better what she is dealing with. Sometimes I equate it with my Fibromyalgia and Arthritis but even though they have overlapping symptoms, they are different and people don't always understand the unique perspective of each condition.
Thank you so much for your video series. This one answered questions I didn't even know I had yet. My 24 y/o son was diagnosed last month, and is struggling with acceptance. I realize it will take time, and am not pushing him, but I.m trying to learn what I can to better support him when he is ready. He has type 1 diabetes, (diagnosed at 2), Tourettes, OCD, chronic depression and anxiety, and is in recovery for drug and alcohol abuse. He also has some executive processing challenges, so he's had a rough journey. I will share this with him when he is open to more information - even if it is 10 years from now!
I fell in love with the "leaking pool" model once I saw it for the first time back then, thanks and respect to Mr.Krieger. Finally one model which covers all the MS-options and pathways, as well as the treatment. When I talk to a new "MS-buddy", I always bring up this model - even though a rather simplified version of it: the one and only way to slow down growth of the stalagmites are DMTs, while taking care of the water level is completely under the responsibility of the patient. This nicely explains those stories of people who claim to have conquered MS without any meds. Btw, I also mention to them that while too many lecturers love to say "within 10 years there will surely be a cure for MS", the first time I heard this same sentence was 15 years ago. There should be a ban on such statement, as it logically leads too many patients to avoid the potentially dangerous DMTs and just wait for this promised miracle. While the presenters say this to provide hope, it has catastrophic consequences.
I hope you don’t mind, I shared this video on MyMSTeam. This message board of fellow MS Warriors, has helped me through a lot of my MS issues, as have your great videos!! Thank You again! Keep On Keepin’ On!!!
thank you so much, ive been diagnosed with RRMS since April and Ive been watching your videos. I love your videos. bring light to many questions i have running through my mind. I was told i should stay away from DMT but I started Ocrevus and my life has changed. I hope I made a good choice. Keep up the hard work and great videos!
Another awesome video and I now understand progression much more than before. I have saved it as i know I'll need to watch again! Thank you again for your valuable time...it means so much! ❤ I really need to stop excuses and start exercising to slow down that decreasing water level 😉
Dr. Boster, This was one of your BEST Videos!!! You explained everything in an Excellent way and I understand So Much more now!!! Thank You very much for your continued work and I hope to meet you some day to Thank You in person! Keep On Keepin’ On!!!
Thank you Dr. Booster. Very interesting and never heard of the pool concept. Makes it much easier to understand. I admit I fear the shrinkage of my brain as I age with this disease.
You have been a great resource for us. Thank you so much for the videos. I love the group lectures as well. Been following your channel for the past year. Its helps to have answers and advice. Wish it wasnt an issue to travel. I would have applied for a spot months ago.
Howdy Dr Boster Thank you for your excellent response. I was diagnosed 2013...my mobility slowly declined over 20 years to this point and receiving diagnosis brought a positive peace to me, if anything; this after so long of unexplained weird walking! A video would be awesome, thank you, if you decide to do this. Thanks again for helping myself and many others
I'm super glad to hear that Kathy! I've been thinking about this video content for a long time trying to sort out how best to convey this info. Thank you for the feedback!! 💛
Hey Dr B! I love the “Leaky Pool” explanation and use this often to explain why it’s so important to take a DMT! I also believe that we can refill our pool by Retraining with guidance from a Physical Therapist or someone who knows how and I also believe we can Retrain our Cognitive Function in the same way as we learned as a child. I think every Positive choice we make helps fill the pool. I know mine still has a leak, but by making healthy choices and being committed to getting better, I think the hose is filling my pool faster than my leak is leaking!! 😆😁🤣❤️❤️ Thanks so much!!
Thank you Dr Boster again !! for sharing both recent videos on MS . Everything in this video is expressed in a way we can learn in bits and pieces. We appreciate the time you invest in educating us about Multiple Sclerosis! #thisisMS #MSeducation
Thank you for explaining and taking your time to make this video I came across it in a Facebook group and found it very informative it make sense to of why one neurologist said I had 23 lesions and my new neurologist says I only have 11 the other ones are too small to count so he doesn't count them I'm thinking those are the underneath ones. My vision kept getting worse and worse after being diagnosed and around four years after being diagnosed they finally found out at 1 point I must of had optic neuritis no wonder why I couldn't see at times. Ty! For giving me a better understanding better than going to my neurologist
You give a lot of useful information, I for one would appreciate if you slowed down a little on how fast you talk. I know you are trying to get as much info out there as possible, but it would help my ms brain if You slowed down just a bit😃 Thank you for doing these educational videos!
Howdy C Leese! TY for watching and TY for the very helpful constructive feedback. It's a problem I've had my whole life, I'm a fast talker (all the time, not just on UA-cam). I'll try my best. In addition, I have a question. If you turn on CC and read along while I talk, is that helpful? Just curious as I've always hoped CC would help more people to be able to "follow along" with the educational content.
I’ll try that, but the fast talking adds to my anxiety, lol Makes me anxious and I don’t want to pay attention. I know that’s my problem, but I do enjoy your informational videos and want to keep watching them. Just asking perhaps you could slow down, just a bit. Thanks for the reply!
Love the video Doc! I think it would be beneficial to see a video on "Diet and the Effect on MS." I know we have discussed it in clinic, but i see so many in the forums questioning (swank vs. Wahls vs. Keto vs. Vegan)
Dear Dr. Boster, thank you ao much for this very easy understanding video! The "leaking pool mode"l willl be also known in Germany!! I am going to translate this to my mother and husband so they can get a better understanding of what's going on in my brain and spinal cord and why some things show up and some don't! You are such an inspiration! Thanks for taking your time to make these great videos! Please don't stop! Lots of greetings from Germany! sincerely Britta
That is really awesome Britta, I'm excited at the notion that you'll translate this into German! cool! The model is officially called "The topographical Model of Multiple Sclerosis" by Dr. Krieger, but I often times refer to it as "the leaking pool model" as I think it helps folks understand ;)
Dear Dr. Boster, I am sure, I am going to find the right words to translate this genious model into German! The leaking pool is easier to understand I guess. My husband doesn't understand English and I want to tell him about this model for better undersatnding of MS and my Mom, who is very much interested in learning more about the disease I have to live with wants to get an easy understandable language will love this too. Is there an email address I can send the translation to, if you are interested in? Just tell me and when it's finished it will come to you. Maybe you have German patients too???? sincerely Britta
Awesome Idea, I love it! To ensure I don't misrepresent the work, the topographical model (i.e. the leaking pool model of MS) was created by my friend Dr. Steven Kreiger, just so I'm clear I didn't make it. Do you tweet Britta? @OhioHealthMS and I can give you a good email via private DM?
Dr Bostsr I would like nothing more than to exercise again. Used to run for miles and miles so easily and very much into yoga, even up to 3 years ago and since then I have tried both periodically and failed miserably. My legs weigh a ton, have a stoop and I’m able to walk one hour with my stick with wide gait, before completely stopping. Yoga classes are out as my balance is not there and I’m uncoordinated, it’s embarrassing falling over and not knowing left from right, but I do a simple alternative for 5 mins a day and at night. But hey, I used to run, I scream at myself!!! Come back fitness I miss you. 😥 Maybe it’s time for medication, which I’m terrified of starting. 😬 Thank you for explaining progression of MS so well, I’m confused by all these labels floating around. You made it so much easier to understand. Thank you for ALL your videos I really like your direct and honest approach. 🙏🏻🤩❤️
Diagnosed 37 years ago- just told I’m progressing - guess I’m not 25 yo anymore…time to fill up the pool with more water😂 Great video- this info will keep me going for the next 37 years
I absolutely love this explanation. My girlfriend has SPMS and I’m not sure as to what she has tried as far as disease modifying therapy but she’s only 37 and disabled as in cannot walk. She hasn’t been able to walk for the past 5 years. I’m sure you get a ton of these messages but I care about her more than anything and if you could give me any advice or ideas it would mean the world to me. Thanks
Thank you for watching and thank you for the comment. I don't have enough information and can't really give a proper comment without taking your gf history, examining her and reviewing her films. I hope, however, you find good solid MS education on my channel!
I am sorry I forgot to add how much I truly love your videos. I also wanted to ask where in Ohio are you located? I grew up in Dayton. Thanks truly for your great work. Awesome
Howdy Vicki! I'm in Columbus, Ohio and work at OhioHealth. My interdisciplinary MS center is located at Riverside Methodist Hospital. Dayton is just next door to Columbus! Where to you live now, may I ask?
@@AaronBosterMD I live in Cocoa, Fl. The space coast. I lived in Columbus as a very young child but I do know how close it is. Thanks for respinding and please forgive me for misspelling your name. BTW my youngest son is named Arron (not a typo long story). I still have lots of family in the Dayton area but I have been gone since 1984. I don't miss the cold. Have a very happy holidays. Hopefully if I get a chance to get to Ohio again I csn check your place out. Do you have do tours or lectures anywhere. Would love to see you in person. Thanks, Vicki
Great explaining DR, i haven't recovered properly for all of my relapses so far lost half my sight in my right eye and have a left arm that's dropped and hard to use. Though it's good to know what progression actually means :)
@@AaronBosterMD As do i, it's good have people empowering and education impact. All that have MS have a lot to learn, as do i and it's good to better understand, whats happening :)
This is a very good and useful to know video! Thank you so much! I'm an "entrepreneur" and was formerly doing my repeated all nighters, same like from my undergraduate days. I'm 33 now with MS :( My parents were right :(
Thanks for creating all these helpful videos! I’ve been looking for a video about aggressive MS but I haven’t found one yet. Can you explain what you would consider aggressive MS and the best way to treat it? I was diagnosed in 2014 after having foot drop for 6 months. I haven’t been able to walk since mid 2017. I’ve taken Copaxone, Gilenya and finally Lemtrada in 2017 and 2018. Most of the info on MS is related to Relapsing MS and a little bit on slow, steady progressing MS but nothing on aggressive MS. Thank you.
Great explanation thank you... you haven’t talked lately about upcoming new drugs/therapy or whats on horizon. Can you make new video and update us on new stuff... thank you
Great great video here yeah while some of my symptoms are secondary Ms some other symptoms still remain under primary Ms cause sometimes I'm able to do things here and there even my wife is often like "how you did that ? " Because my limitations got very very severe thru time so at this point I'm pretty much used to the fact my mobility is always gonna be involved either a wheelchair or a walker....couple days ago I got a new medicine from my doctor "neurontin" take 1 pill before going to bed but til now I haven't seen any change at all, my lower spine still hurts like crazy each step
Thanks Dr for explaining Progression I remember no attacks from '08 onwards and asked my Dr "So, is it in SPMS stage?" was told not to bother about 'labels' & I did not know why Dr said "Stop Copaxone, will change your DMT" Thinking about it, I had no attacks, but my symptoms very slowly worsened - like every day Thanks for this explanation
Very helpful Dr. Boster. The pool model was especially interesting. Thank you for taking the time to make this video.
Your welcome cementra! Thank you for watching and thank you for the kind feedback! Glad it was helpful!!
That was the BEST explanation I have heard on progression. Thank you.
Thank you Jane! ❤❤
" and by insult, I don't mean you're ugly"..... lol! Thank you for adding humor when talking about such serious topics. I appreciate all the time you put into making these videos.
hahaa! glad you liked it Maggie! Thank you for watching and thank you for your support on my channel!! It keeps me motivated to make more content!
If every MS patient understood this explanation, no one would refuse MS medication, or DMT.
100% AGREE with you.
Said yes right away, saw this video after diagnosis during attack while on steroids. So when we talked about medicin I said yes to most effective
This was explained so well. I'm 23 and I've been experiencing numbness in my legs and arms, extreme loss of balance, and greying in my left eye over the last week. I didn't think it was a big deal but a random urgent care doctor I visited gave me the suggestion that is was something to look into. My doctor has ordered an MRI for tomorrow and I've been very upset but now that I understand "progression", I feel a lot better. Even if I receive bad news, it's not a death sentence. Thank you so much.
Howdy Kit/ten! I'm super happy that this vid helped you. #MSWarrior!
O its definitely a death sentence ms killed my mom at 55 im 36 and now have ms it's going to kill me really slow once i cant walk im gonna put my gun to my head and say good bye i wish you luck
Sometimes a death sentence is better i meAn were sentence to death as soon as wer born but death doesn’t exist death is actually waking up to real life. This life is nothing but a dream
I was diagnosed almost 2 years ago. I have experienced many different responses from providers from compassion to be treated like a drug seeker when I moved out of state for 6 months. I eventually had to come back to Florida to treat MS because I was being treated as if I was faking symptoms 😢. I have learned more about this disease from you than any provider. I know they care I think it’s about the time they are aloud to spend with us as patients. Until watching these videos I was terrified of using DMTs because no one explained to me how they work. Thank you for sharing and I will be going to my neurologist with all I have learned to help me better treat myself with their help and consideration ❤❤❤
Im so sorry to hear this. The medical gaslighting is terrible. I have PTSD and when I started having debilitating fatigue and pain I was treated poorly and medically gaslighted. I wouldnt go to the doc for years until I got optic neuritis/MS. But during that period of not seeking medical treatment I armed myself with knowledge not only about my systems but the widespread narcissism epidemic that has infiltrated our medical systems.
The pool model is incredibly clear to help me understand MS.
Your videos have helped me so much. I was diagnosed over four years ago, I have a Dr that I really liked but watching your videos and NMS Society videos I think she has left me in the dark about my disorder. I believe I just finished a relapse and I think I have been having a lot of them. She described them as something major such as loss of movement in a limb or loss of vision. I have run through so many emotions since watching videos the last three days. I just can't say enough how thankful I am that you are here for us.
Sonya, I'm so glad that these videos have helped you, that really is my goal - to reach as many folks impacted by MS as possible. TY for watching and for being so supportive! #WeHaveMS
Thank you, this video was really helpful! I have been diagnosed for 17 years and feel like I'm a ticking time bomb to develop progressive MS. That fear may never go away, but it helps to hear that it is much more complex and not as black and white as I thought.
Dr. B, I love your videos! I have an amazing, smart, caring, knowledgeable MS specialist, and your talks confirm the things we talk about in our visits. This video especially, since at my appt two weeks ago asked; "Am I SPMS now?" and she told me basically what you discuss here. She doesn't find it helpful to label her patients. Thank you for sharing your wealth of knowledge with us!
I am starting my new career in assisting individuals with Multiple Sclerosis and your videos are educating me more on the auto immune disease. Thank you
awesome new career! Bless you!
It's been 20 years since my first MS attack, but I still learned so much from this! It especially helped me understand why I've been affected so much more profoundly by my attack 7 months ago than by my attacks years earlier.
Thank you Dr Boster. Now I understand when I get twitches in my feet and legs it’s old nerve damage and my pool has leaked a bit :) Thank you for this brilliant explanation. It’s comforting thinking about these annoying twitches as old damage and not new symptoms. Thank you for making everything so clear. I’m also very happy to report I’ve gone a whole month without an MS hug and I’ve felt a lot better generally. The changes I’ve made are the exercises each morning and drinking a lot more water. Thank you for taking the time to make these videos, I appreciate it so much.
Ann, Thank you for watching this one and as always thank you fo sharing your comment. I'm glad this model helps provide a better conceptual understanding! yay!
thanks for talking in depth about these things.
my past Neuro basically refused to talk to me about what my MS meant even after I pleaded pleaded for help.
keep up the great work!
You're very welcome Petey! #WeHaveMS
I have just been diagnosed and am grateful beyond words for Dr Boster’s videos - they are marvellous- so clear and informative. Thank you for your generosity and care in making these videos - they are a life line.
Thank you so much for being such a great doctor, educator, and human being. Thank you for having such compassion for PwMS. I believe that you have made a positive impact on many 😊. Well done, Dr. B!
Awe! Thank you so much popcorn! This was one I've been chewing on for several months now. I'm super glad you liked!
I've been diagnosed with MS for 10 years and never fully understood how this works. There is still a lot I don't understand so that's why I've subscribed to learn more. Thank you for your helpful information! 🙂
I wish I would have seen this 3 years ago when it came out. I am an RN with MS for over 25 years. This is the first time that I understood why my MS health is declining in the absence of relapses. I occasionally have relapses of optic neuritis but I don’t suffer permanent eyesight damage. However the damage does show up on ophthalmologic testing.
I no longer take DMT meds, but after seeing this video I think I should be on DMTs. I have significant brain loss but keep my brain active so others might not see my cognitive dysfunction - I am aware of it but it’s difficult for others to appreciate.
I was diagnosed yesterday. Your videos really help make what's happening understandable. Thank you
This was so helpful and explains so much in my own life. I've had new symptoms appear over the past 2 years such as extreme fatigue and horrible foot cramps yet I have not had a relapse in over 3 years. I didn't understand how it could be my MS but your video makes sense sadly.
Thank you I hadn’t heard the pool analogy before. I have had MS for 30 years, and I am experiencing much lower functional reserve. My routine is physical exercise (yoga, cardio and weight lifting) as well as neuroaccupunture, and physical therapy for gait . I eat a healthy diet, don’t smoke and have an occasional beer. I cannot imagine the space I would be working with if I hadn’t followed this regime for as long as I have…my MS is stabile so I am watching for breakthroughs with myelin repair. Hoping for another tool in my toolbox…😊
I found this explanation helpful. Now that I'm now using a 2nd tier or drugs, I discovered that an anti-inflammatory diet allowed me to fight off cold/flu much more easily! Oh, that and echinacea tea 2x day in the winter.
I was diagnosed with MS 18 years ago in May. I have almost lost the vision in my right eye and a few other things too, I am 55 years old now and everything u said makes so much sense. I am now on ocrevus and seeing improvements in abilities I lost years ago. Thank u for this video and I will be watching as many as I can find.
Dr. Boster, I am so thankful I found your videos! I have learned more from you and your videos than I have my own neurologist in almost 3 years.
#WeHaveMS
You really are a legend and a guiding light Dr Boster. I was in for my monthy Tysabri infusion this morning but I also had to have a stress test and CT Calcium check, just a routine procedure to make sure the heart is ticking. However, during the stress test, I had to stop as my right leg became weak. For the past few weeks, even when walking daily, the thigh area of my right leg gets numb and weak. I have an MRI next month, so hopefully that might help figuring things out. But thank you again for everything you are doing here. You are giving so many people Hope.
WOW! Thank you for those really kind words Darragh. I'm truly filled with joy reading your post. It feels great to be able to help folks in this way. Please let me know how your MRI goes!
Well I certainly didn't expect to feel compelled to post a second comment to one of your vids so quickly following my first, but wanted to inform you of something.
I have seen references and descriptions of the leaking swimming pool on a couple of other sites, but definitely found your explanation to be the most comprehensive and accessible. Consequently I have told a friend about this video. She works as an occupational therapist here in the UK and some of her patients have MS. I have suggested she let people know that they can access your excellent advice and info via YT.
It genuinely makes a world of difference to have an expert clinician, such as yourself, taking the time and trouble to provide this input to the wider MS community! Personally I find that your vids compliment and enhance what I gain from the UK Bart's Blog. In the nigh on three years since I was diagnosed I've been on a huge learning curve and you've contributed to that in a meaningful way. Thanks very much indeed! Fiona.
Thank you so much Fiona! That makes me feel really great knowing that! #WeHaveMS
I just found this video...answers a question I posted on another video...My symptoms are worsening over time, though I've not had a conspicuous flare up since 2016 and under MRI, I did not show any active lesions...this does a great job explaining how disability can progress while flare ups stay quiet...and what you can do to minimize the disease damage.
TY for watching and TY for sharing here Bob!
Thank you for that very easy to understand explanation. My friend has MS and it has helped me understand better what she is dealing with. Sometimes I equate it with my Fibromyalgia and Arthritis but even though they have overlapping symptoms, they are different and people don't always understand the unique perspective of each condition.
Thank you so much for your video series. This one answered questions I didn't even know I had yet. My 24 y/o son was diagnosed last month, and is struggling with acceptance. I realize it will take time, and am not pushing him, but I.m trying to learn what I can to better support him when he is ready. He has type 1 diabetes, (diagnosed at 2), Tourettes, OCD, chronic depression and anxiety, and is in recovery for drug and alcohol abuse. He also has some executive processing challenges, so he's had a rough journey. I will share this with him when he is open to more information - even if it is 10 years from now!
A great vidwo on this channel for this is grieving our losses and celebrating our sucesses. Its amazing
I fell in love with the "leaking pool" model once I saw it for the first time back then, thanks and respect to Mr.Krieger. Finally one model which covers all the MS-options and pathways, as well as the treatment. When I talk to a new "MS-buddy", I always bring up this model - even though a rather simplified version of it: the one and only way to slow down growth of the stalagmites are DMTs, while taking care of the water level is completely under the responsibility of the patient. This nicely explains those stories of people who claim to have conquered MS without any meds.
Btw, I also mention to them that while too many lecturers love to say "within 10 years there will surely be a cure for MS", the first time I heard this same sentence was 15 years ago. There should be a ban on such statement, as it logically leads too many patients to avoid the potentially dangerous DMTs and just wait for this promised miracle. While the presenters say this to provide hope, it has catastrophic consequences.
Howdy Martin! I'm glad you also find the leaking pool model of MS by Dr. Krieger to be helpful. I love it!
Thank you for your very educational videos. I have been struggling with MS for 10 years now and your videos and info are fantastic!
WOW!!!!Thank you for helping me understand MS more!!!!💯
I hope you don’t mind, I shared this video on MyMSTeam. This message board of fellow MS Warriors, has helped me through a lot of my MS issues, as have your great videos!! Thank You again!
Keep On Keepin’ On!!!
Go ahead!
Thank yu Dr Boster. I have Primary Progressive MS. Your explanation has shed new light on understanding my MS
Glad it was helpful!
thank you so much, ive been diagnosed with RRMS since April and Ive been watching your videos. I love your videos. bring light to many questions i have running through my mind. I was told i should stay away from DMT but I started Ocrevus and my life has changed. I hope I made a good choice. Keep up the hard work and great videos!
Another awesome video and I now understand progression much more than before. I have saved it as i know I'll need to watch again! Thank you again for your valuable time...it means so much! ❤ I really need to stop excuses and start exercising to slow down that decreasing water level 😉
Clare, you can do it!!
I think i have to start from the beginning of your videos...this is just as interesting or more interesting than the ghost 👻videos here on you tube
Here's a play list entitled "Start Here": ua-cam.com/video/TSr03KmGDIM/v-deo.html
Over 7 years in. This is super helpful in understanding progression Dr. B!
Excellent explanation of MS progression! My son is on Rd2 Day 3 of Lemtrada. I am going to share your video with him. Many thanks!
Dr. Boster, This was one of your BEST Videos!!! You explained everything in an Excellent way and I understand So Much more now!!! Thank You very much for your continued work and I hope to meet you some day to Thank You in person! Keep On Keepin’ On!!!
Glad it was helpful!
I like this video. And the quality is better than usual too.
Howdy Hupfer! Thank you very much! On both accounts!
I learn so much from your awesome videos. Thanks so much, Dr. Boster!
Thankyou so much for this very informative presentation- it has given me hope that I can do something to help a little in coping and managing.
My half-sister, and her adult son, both have it. This was very helpful to my understanding of where she's at right now. Thank you.
You're welcome
This video was fantastic! Thank you so much.. it was well done and soo informative🙏🏻 Thank you so much for caring enough to make it 💗
Glad it was helpful!
Thank you Dr. Booster. Very interesting and never heard of the pool concept. Makes it much easier to understand. I admit I fear the shrinkage of my brain as I age with this disease.
Sounds like you're doing lots (you're 4 for 4!) to combat this Patricia! Keep fighting #MSWarrior #WeHaveMS
You have been a great resource for us. Thank you so much for the videos. I love the group lectures as well. Been following your channel for the past year. Its helps to have answers and advice. Wish it wasnt an issue to travel. I would have applied for a spot months ago.
Howdy Kelly Bo Belly! You are more than welcome and I'm delighted you find the vids helpful!
Howdy Dr Boster
Thank you for your excellent response. I was diagnosed 2013...my mobility slowly declined over 20 years to this point and receiving diagnosis brought a positive peace to me, if anything; this after so long of unexplained weird walking! A video would be awesome, thank you, if you decide to do this. Thanks again for helping myself and many others
I really appreciate the suggestion and I'll add this to my list of topics, thank you Mr Knowles!
All your videos are so informative and upbeat. This is my favorite. I learned so much!
I'm super glad to hear that Kathy! I've been thinking about this video content for a long time trying to sort out how best to convey this info. Thank you for the feedback!! 💛
Wow, this video was so helpful! Thank you so much
Thank you for your time and the explanation, your explanation was very good to know!
right on Rajiv!
Hey Dr B! I love the “Leaky Pool” explanation and use this often to explain why it’s so important to take a DMT! I also believe that we can refill our pool by Retraining with guidance from a Physical Therapist or someone who knows how and I also believe we can Retrain our Cognitive Function in the same way as we learned as a child. I think every Positive choice we make helps fill the pool. I know mine still has a leak, but by making healthy choices and being committed to getting better, I think the hose is filling my pool faster than my leak is leaking!! 😆😁🤣❤️❤️
Thanks so much!!
Thank you! Your explanations are so helpful!
Thanks Dr. B! This clarification is very helpful!
Thank you Dr Boster again !! for sharing both recent videos on MS . Everything in this video is expressed in a way we can learn in bits and pieces. We appreciate the time you invest in educating us about Multiple Sclerosis! #thisisMS #MSeducation
Thank you for the kind words and I really appreciate your support!
Thank you. Your explanation was so simple and I fully understood.
Glad it helped!
Thank you for explaining and taking your time to make this video I came across it in a Facebook group and found it very informative it make sense to of why one neurologist said I had 23 lesions and my new neurologist says I only have 11 the other ones are too small to count so he doesn't count them I'm thinking those are the underneath ones. My vision kept getting worse and worse after being diagnosed and around four years after being diagnosed they finally found out at 1 point I must of had optic neuritis no wonder why I couldn't see at times. Ty! For giving me a better understanding better than going to my neurologist
Such a fantastic and clear explanation
Glad it was helpful!
Very interesting ! Thank you for this video. Made things clearer.
This was extremely helpful. Thank you!
Sir, I do understand ... I am 52 years old... bless you
right on Sarah! #WeHaveMS
Well done Dr. B !!!
Thank you for all of your dedication to MS. Your videos are very beneficial to so many people!!!
God Bless
YW hooveskickin! I appreciate you watching!
Thank you for 🎥 video very educational. Help me with my m.s
Great video!- as I have a client who suffers from MS relapse helps me to understand the symptoms and their everyday life 💫
May you have a Merry Christmas and a Quiet New Year!...... thought I better get in quick!xxx
To you and yours as well Sarah!
Thank you for the video ! Im so thankful you make these videos. You explain things so well !
Thank you so much Fred! Feedback like this keeps me motivated to keep creating new educational videos!
That pool-model makes it very clear, I always struggle to make out if I have a new episode.
You give a lot of useful information, I for one would appreciate if you slowed down a little on how fast you talk. I know you are trying to get as much info out there as possible, but it would help my ms brain if You slowed down just a bit😃 Thank you for doing these educational videos!
Howdy C Leese! TY for watching and TY for the very helpful constructive feedback. It's a problem I've had my whole life, I'm a fast talker (all the time, not just on UA-cam). I'll try my best.
In addition, I have a question. If you turn on CC and read along while I talk, is that helpful? Just curious as I've always hoped CC would help more people to be able to "follow along" with the educational content.
I’ll try that, but the fast talking adds to my anxiety, lol Makes me anxious and I don’t want to pay attention. I know that’s my problem, but I do enjoy your informational videos and want to keep watching them. Just asking perhaps you could slow down, just a bit. Thanks for the reply!
I promise I will make an effort to slow down!
Love the video Doc! I think it would be beneficial to see a video on "Diet and the Effect on MS." I know we have discussed it in clinic, but i see so many in the forums questioning (swank vs. Wahls vs. Keto vs. Vegan)
Hey Mat! I hope you're well! Have you seen one: ua-cam.com/video/3M5pSb9SRJU/v-deo.html
This is super helpful - one of your best for me. Thanks Dr B
YW babesgrumpton. This one was a tough one to make!
Thanks doc!! Your videos are the best!!!
Dear Dr. Boster, thank you ao much for this very easy understanding video! The "leaking pool mode"l willl be also known in Germany!! I am going to translate this to my mother and husband so they can get a better understanding of what's going on in my brain and spinal cord and why some things show up and some don't!
You are such an inspiration! Thanks for taking your time to make these great videos! Please don't stop!
Lots of greetings from Germany! sincerely Britta
That is really awesome Britta, I'm excited at the notion that you'll translate this into German! cool! The model is officially called "The topographical Model of Multiple Sclerosis" by Dr. Krieger, but I often times refer to it as "the leaking pool model" as I think it helps folks understand ;)
Dear Dr. Boster, I am sure, I am going to find the right words to translate this genious model into German!
The leaking pool is easier to understand I guess.
My husband doesn't understand English and I want to tell him about this model for better undersatnding of MS and my Mom, who is very much interested in learning more about the disease I have to live with wants to get an easy understandable language will love this too.
Is there an email address I can send the translation to, if you are interested in?
Just tell me and when it's finished it will come to you. Maybe you have German patients too????
sincerely Britta
Awesome Idea, I love it! To ensure I don't misrepresent the work, the topographical model (i.e. the leaking pool model of MS) was created by my friend Dr. Steven Kreiger, just so I'm clear I didn't make it.
Do you tweet Britta? @OhioHealthMS and I can give you a good email via private DM?
Thanks Doc! i knew these basic ideas before but the analogy REALLY helps me and for sure those i want to inform. oh and regards from across the ocean!
Glad it was helpful!
Excellent examples of degrees of Tolerance.
Dr Bostsr I would like nothing more than to exercise again. Used to run for miles and miles so easily and very much into yoga, even up to 3 years ago and since then I have tried both periodically and failed miserably. My legs weigh a ton, have a stoop and I’m able to walk one hour with my stick with wide gait, before completely stopping. Yoga classes are out as my balance is not there and I’m uncoordinated, it’s embarrassing falling over and not knowing left from right, but I do a simple alternative for 5 mins a day and at night. But hey, I used to run, I scream at myself!!! Come back fitness I miss you. 😥
Maybe it’s time for medication, which I’m terrified of starting. 😬
Thank you for explaining progression of MS so well, I’m confused by all these labels floating around. You made it so much easier to understand. Thank you for ALL your videos I really like your direct and honest approach. 🙏🏻🤩❤️
I'm glad these videos are helping you new jersey. Keep fighting! Some folks find wearing a life jacket in a pool a great way to approach fitness!
Very helpful, best MS channel in my opinion 👏🏻🎗 keep doing what you do
Very well explained,thank you so kindly!!
Thank you. This was a video I gave a lot of though to before recording. I'm really gad it worked for you AJ's HR! #WeHaveMS
Diagnosed 37 years ago- just told I’m progressing - guess I’m not 25 yo anymore…time to fill up the pool with more water😂 Great video- this info will keep me going for the next 37 years
Keep it up
I absolutely love this explanation. My girlfriend has SPMS and I’m not sure as to what she has tried as far as disease modifying therapy but she’s only 37 and disabled as in cannot walk. She hasn’t been able to walk for the past 5 years. I’m sure you get a ton of these messages but I care about her more than anything and if you could give me any advice or ideas it would mean the world to me. Thanks
Thank you for watching and thank you for the comment. I don't have enough information and can't really give a proper comment without taking your gf history, examining her and reviewing her films. I hope, however, you find good solid MS education on my channel!
How is she doing now?
Incredible video as always thank you very much 🙏
My pleasure!
As someone with MS..thank you!! ❤
Thank you I really needed this.
I am sorry I forgot to add how much I truly love your videos. I also wanted to ask where in Ohio are you located? I grew up in Dayton. Thanks truly for your great work. Awesome
Howdy Vicki! I'm in Columbus, Ohio and work at OhioHealth. My interdisciplinary MS center is located at Riverside Methodist Hospital. Dayton is just next door to Columbus! Where to you live now, may I ask?
@@AaronBosterMD I live in Cocoa, Fl. The space coast. I lived in Columbus as a very young child but I do know how close it is.
Thanks for respinding and please forgive me for misspelling your name. BTW my youngest son is named Arron (not a typo long story). I still have lots of family in the Dayton area but I have been gone since 1984. I don't miss the cold.
Have a very happy holidays. Hopefully if I get a chance to get to Ohio again I csn check your place out. Do you have do tours or lectures anywhere. Would love to see you in person. Thanks, Vicki
If you find yourself in central ohio we'd love to give you a tour of our center Vicki!
Great explaining DR, i haven't recovered properly for all of my relapses so far lost half my sight in my right eye and have a left arm that's dropped and hard to use. Though it's good to know what progression actually means :)
I hope to educate and empower folks impacted by MS with these videos Speaking up. I appreciate your sharing and thank you for the support!
@@AaronBosterMD As do i, it's good have people empowering and education impact. All that have MS have a lot to learn, as do i and it's good to better understand, whats happening :)
Very helpful and informative. Thank you Dr. Boster!
Glad it was helpful!
It feels like the daily level can go up and down, even as it goes down overall
This is a very good and useful to know video!
Thank you so much!
I'm an "entrepreneur" and was formerly doing my repeated all nighters, same like from my undergraduate days. I'm 33 now with MS :(
My parents were right :(
YW Rajiv!
Very helpful! Supports the 4 for 4 concept well too.
Easy to follow and super informative. Thanks. Xx
Yes very helpful dr boster👌👌
Thanks a lot
Great explanation
Glad you think so!
Thank you for your videos
Your welcome Jackie!
Thanks for making these videos. Very informative and useful. 😃
Howdy Angela! Thank you for watching. I'm glad you found it helpful!
Shrinkage up to 10 X... Learning so much !love learning ~ Thank you!
VERY SMART MAN/DOCTOR
Thanks for creating all these helpful videos! I’ve been looking for a video about aggressive MS but I haven’t found one yet. Can you explain what you would consider aggressive MS and the best way to treat it? I was diagnosed in 2014 after having foot drop for 6 months. I haven’t been able to walk since mid 2017. I’ve taken Copaxone, Gilenya and finally Lemtrada in 2017 and 2018. Most of the info on MS is related to Relapsing MS and a little bit on slow, steady progressing MS but nothing on aggressive MS. Thank you.
Thanks by the way you "explain" MS, i think it's very usuful for the pacients ans caregivers. An hello from Portugal.
Wow well done
Thank you Woody!
Great explanation thank you... you haven’t talked lately about upcoming new drugs/therapy or whats on horizon. Can you make new video and update us on new stuff... thank you
Thanks for watching Atilla. Let me think about an "update on therapies" video...good idea!
You are changing so many peoples lives -its unreal...Its awareness, strength, hope and possibilities you create...We are great full.
Thank you for such kind words Atilla! wow thank you!
Great great video here yeah while some of my symptoms are secondary Ms some other symptoms still remain under primary Ms cause sometimes I'm able to do things here and there even my wife is often like "how you did that ? " Because my limitations got very very severe thru time so at this point I'm pretty much used to the fact my mobility is always gonna be involved either a wheelchair or a walker....couple days ago I got a new medicine from my doctor "neurontin" take 1 pill before going to bed but til now I haven't seen any change at all, my lower spine still hurts like crazy each step
Thanks Dr for explaining Progression
I remember no attacks from '08 onwards and asked my Dr "So, is it in SPMS stage?" was told not to bother about 'labels' & I did not know why Dr said "Stop Copaxone, will change your DMT"
Thinking about it, I had no attacks, but my symptoms very slowly worsened - like every day
Thanks for this explanation
YW Raguraman!