Kenneth's Experience Living with Ascites
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- Опубліковано 5 жов 2024
- American Liver Foundation patient advocate Kenneth shares his story about living with ascites. More information about Ascites can be found online at the American Liver Foundation website at liverfoundatio....
For more information about the American Liver Foundation, visit liverfoundatio....
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Thank you.
I dealt with ascites for over 3 years! Towards the end I was getting drained 10 liters every week. I received a heart and liver transplant and I no longer suffer from this horrible disease! I am forever grateful to the donor and their family to give me a second chance to live! I want to let others know there is hope! I pray everyone going through this that they may be cured! Much love to all!
I have non alcoholic cirrhosis and some fluid in my stomach called trace Ascites. I have 2000 Chevy Van I want to sell and try to raise money when my liver gets bad enough. Pretty sure I will not get 300,000.00 but at least it will be start. I was thinking if Barret Jackson would sponsor my Van for nonalcoholic Cirrhosis. Maybe they could sponsor me x amount of dollars to drive my Van to their location. I can prove I have nonalcoholic cirrhosis by showing my disease on my Hospital App.
I went to the ER for fluid buildup, my hemoglobin was at a 7, waited 10 hours for the ER Dr. To look at me like a loser and call my general practitioner Dr. (Who sent me to the ER for the low blood count) incompetent and since I had been diagnosed with with cirrhosis 8 months earlier, that everything was " normal" for me. He wouldn't even call my G.I. Dr. Three weeks later, my belly button is protruding, my stomach is engorged, I can't stand longer than ten minutes without hurting my swollen legs, I'm exhausted, hurt everywhere, trouble breathing, and sleeping. I have never been told what stage I'm in. I go Tuesday to my G.I. and I will demand answers. I've dealt with liver problems since I was 16, I'm 37 now. I want real answers. I'm sorry you are going through this too and for anyone else going through it
My son suffers from this and gets treated like a lowlife,,they always tell him his blood work is fine,,then send him home,,I don’t understand the medical profession,,,
🙏🙏
So sorry for your pain and suffering. I have 1st stage compensated cirrhosis of the liver. Non alcohol. I'm 64. ❤
Have they checked for autoimmune diseases or genetic factors like hemochromatosis or alpha-1-antitrypsin deficiency?
I'm so sorry that you were treated that way. I pray 🙏❤️ that they can get you back on track and feeling better.
Thank you for sharing your experience. Scary is the right description! Liver patient, end-stage uncompensated BUT STILL here. Take care, please keep sharing ✌🏽🦋
I'm scared. It's try he Dr getting scared now. I'm not refused the procedure is related to cancer. I see the ultrasound, the skin, the fat the tissue line the black
I have 42 years sobriety. We saved my liver once. It was going hard...cramps and I was 19 and just gotten into AA the er Dr told me to keep sober and. Hang on for dear life. I did a lot of damage as did a bad pediatrician and my liver couldn't take it no more I am not smoker for about 7 to 8 month now. I regret going back to smoke for 20 years. My Dr argument that smoking 🚬 doesn't cause other Cancer and my throat sore. Now. Because my kids insist I take seizure meds on days of surgery. I had to stop for few months and couldn't eat solid food and lost ability to take Care of myself/. I use baby ear syringe to suck mucus out of the back of my throat post nasal drip that had. Cause my vomiting and vomiting went out of control.landing me 2 week on hospital. All because study was done on nicotine.
Return cancer to bone, 2 tiny tumors in the liver, and lymph nodes with chemo this and chemo that and a Dr say it is breast cancer but breast cut off 2011.and breast gone by knife
@@pearllee601 hope you’re well
I hope Kenneth is doing good.
I just found this video of yours and I am very sad that someone else is also experiencing such scary thing just like me. I had been dealing with massive ascites for about 3 years now ,tried paracentesis twice and hopefully by GOD's grace will be having my 3rd session this May after my 2nd session about a year and a half ago. I am still scared about how my diagnosis will be if ever I will be hospitalized this time but I'm ready. I hope all of us who is suffering from this condition may have wisdom ,strength ,hopes and faith that one day we will be better and we can go back to our normal life again. GODBLESS US ALL ❤
Stew for one hour on med heat, Thai Red, Scotch bonnet and jalapeno peppers. Eat in large doses with assorted raw fruits and vegetables 4 times a day. Two weeks later the ascites was gone from me and has not returned.
12 L but only one time that was 5 yrs ago. Stage 4 end of life they call it. I wish nothing but the best for everyone. 🙏🙏🙏
Same back to you girl keep trucking’ 🙏
Let God have authorityover your life and circumstances not men
how you doing now?
❤️🙏hi Sharon, how long did it take to be 4th stage? I have stage one compensated cirrhosis, diagnosed in June of 2023, I am 64. Mine is from fatty liver, insulin resistance, and metabolic syndrome...❤️
Stage 4 of what ? I'm confused here .how you doing now ? What steps did you take?
Many thanks for sharing this invaluable story. To those learning about ascites, bear in mind that an exudate has a protein content of over 25 g/L.
Thanks for your help understanding this disease, I hope you are blessed with good days 🙏
My husband has a disease called PSC. He has stage 4 liver cirrhosis. He had to be airlifted to Methodist hospital in Dallas. They had to do 6 bandings. Drain him and then do the TIPS procedure. It was so scary. He was in ICU for over a week. That fluid buildup is so awful.
I've been on transplant list for 2 years. I initially had 16 liters drained as well. After about 6 months of getting drained about every 3 weeks. I had the TIPS procedure and no longer have ascites.
Thanks for sharing! Do you recommend TIPs to those who get ascites?
What did you do the stop it please my sister with cancer plus ascites is dying
@@nimunguronald8286 so sorry, hope they can save her. 🙏❤️
How did you stop ascites please.
@@Rebecca-p7d how can you get cured from ascites
Bless you 🙏
God Bless you I could only imagine 🙏
I know this is an old video and chances are your aware of this, but for others reading, one of the things you can do to help with this is reduce your Salt intake, start by not adding it to foods, then perhaps give up some foods that are extremely high in Sodium Chloride/Salt, here's a list of 3 typical foods worth eating less of or giving up to ease your suffering:
You ideally don't want more than 5 grams of Salt a day.
Pizza 14" = 6 grams
Bacon x 2 Rahers = 3 grams
Soup x 1 400g Tin =2 grams (Depending on the Soup)
Read your labels it's well worth while, a lot of foods you think are good for you may well not be.
Thank you for sharing your video.my husband is going through same problem and is draining around 2 liters daily😢
For over 4 years now I have been fighting end stage liver with esophageal varices and diabetes with advanced neuropathy in the legs. I had so much pressure my nose turned bright red. 2 years and 8 months I spent in bed. Multiple drains and multiple varice procedures. Then in desperation I found and Indian (India) doctor online who prescribes organic treatments using chillies. I was instructed to stew for one hour on med heat, Thai Red, Scotch bonnet and jalapeno peppers. Eat in large doses with assorted raw fruits and vegetables 4 times a day. Two weeks later the ascites was gone. I am still in shock, my doctor was shocked. The treatment worked so well that i have not seen my liver doctor in 6 months. I do not know why or how it worked but it is still working for me to this day.
My mom I think is on the verge of developing decompensated cirrhosis. Can you share the full details of this organic treatment?
@@michaelmagill5466 It is in the comments. Stew chillies. and eat a lot of them 4 times a day. Something about the chemicals in chillies and peppers that make heat increases blood flow. Think of it like sweating. You eat hot food you sweat. The blocked blood pathways are somehow opened by these chemicals. At least that was the panel of doctors opinion. It was that simple for me. It was hard at the start because i hated spice. Now I will not eat without it lol.
oh and remember to remove the seeds. The seeds contain to much of the chemical and can cause bowel problems.
Hi.... can u please share the contact of that doctor please... I'm 24 Yr old female in stage 5 CKD which is kidney disease....I'm suffering from severe ascites for the past 2 years ... I can't handle anymore😢... please share the contact details please
Please share the indian dr. Details
Went to an Ayurvedic Dr after having this problem for nearly 3 years.Followed Ayurvedic diet protocols and slowly I was in recovery. I might use a diuretic once or twice a month just to keep the retention clear. So far progress has been good
I went to Ayurvedic too now just 20days any fell little bit better but the fluid still full
Please give your no
@@engeneeringvehicle507milk thistle & selenium
What type of insurance pays for this?
Thanks for sharing. I'm dealing with liver failure right now, but I haven't yet needed to be drained. I guess the leakage from my liver is not so bad yet that the body can't absorb it.
Sorry for your pain Glen... ❤️🙏
Thankyou for sharing this I think I have it … I look pregnant is that a sign ?
age??
To show- rocks or Sara spears hey my wife recently got diagnosed with stage 4 . She got her fluid drink once 2 months ago . I don’t remember how many liters , anyway how do you know when it’s time for getting the fluid drain again ? My wife abdomen is like she’s 9 months pregnant and she gets a slight pain after she eats ( not sure if just after she ate other what ) can she get the fluid drain once every two weeks or once a month ? What do you think ? My wife gives me the impression that the hosp or doctors don’t want her to get the fluid drained that often or maybe my wife just doesn’t want the procedure
I have to go twice a week. 5 liters each visit 😢. Yes it is uncomfortable . My liver is failing. I quit drinking alcohol 8 years ago. Unfortunately the damage to my liver had happened. God bless 🙏
My 32 yo brother died a week ago from cirrhosis. I still can’t believe he’s gone. I miss him dearly
sorry to hear that prayers@@elcrazy8017
Did you try any supplements like milk thistle, NAC, tudca, choline, etc?
My mother was diagnosed with lever cirrhosis on december 2023 i'm so afraid of losing her i love her more than anything in the world transplant is not possible in my country 😢
What country are you from
22 liters in one week, for me. A TIPS was done, and it stayed manageable for a year, but came back. The TIPS must be adjusted from time to time. In my present condition, somehing has gone wrong. My ascites has permeated all the skin around my abdomen and thighs. My scrotum Is the size of a cantalope. And the VA just drags their feet with everything. It's extremely uncomfortable. Painful at times.
Have you been watching the Joe Dispenza videos on UA-cam? There are people healing really far gone stage 4 cancer. You could too. There’s literally no reason why not. And look up The Power Of Your Subconscious Mind, there’s an audiobook on UA-cam. These two things together are what is at the source of my healing.
I have a Rocket Medical drain fitted that I drain off every two days around 2 litres of ascites. I have had it for 6 weeks.
@karacolclough3106 How long had you had ascites before the valve was installed? I've been drained twice in two weeks, and although I'm not as swollen, could use the procedure again.
Good luck. I've been dealing with the VA as well. They can be immensely frustrating. I have to call them regularly and follow up on all scheduling. They'll let you sit there on a stack of papers if that individual doesn't think you deserve care. It's crazy.
My dad is suffering from this he doesn't drink alcohol he also developed jaundice i hope that he will be fine soon😢😢😢😢😢
I'm right there with you
It's miserable
Do you still require paracentesis? Or have you healed enough to stop needing them?
My Malignant melanoma tumors (33) decided liver would be a good place to land. Acuities began three months after my first immunology. Go in every two weeks now (5th) soon. 10 liters first time 8 or more last few times. Thrombus in artery feeding liver is what looks like causing my problem. Some shrinkage in tumors, but clot not breaking up. Looking at alternatives now.
There's a treatment for ascites called Alfapump. Why is nobody using this?
That is my life now but mine is due to peritoneal carcinomatosis. Every three weeks I go and have 5.6 to 6.9 liters removed. I have done this 5 times so far. Two more weeks it will be time again.
35 lbs of fluid! Wow
Just want to know what did you do to get rid of this???
If you have liver problems you can do CDS 2 liter enemas. There is a vein in your colon that is connected with your liver.
Damn nine liters was my biggest and I thought I was gonna die. Got multiple hernias including umbilical which blew out one day luckily on the outside. Almost bled to death. They did the tips procedure and that greatly reduced ascites bleeding and blood pressure portal hypertension. But was the scariest thing that ever happened to me. I was awake the entire time. Talking to them as they feed catheters from groin to liver and shoulder to liver meeting in the liver to place the stint. Very alien.I new I was gonna die. Wrong!
Wow amazing recovery for you. Outstanding
Hi. I currently have cirrhosis. I've had it for a year now. I've heard about the tips surgery. And I want to get it. May I ask how you are doing after the tips.
I'm doing good I was lucky it was bleeding outside not in. I quit going to the doctor. Don't take any meds anymore. But do need to go back. I have hemochromatosis and had to have a pint removed every week for almost a year. It was a double whammy on my liver. It's mutated Gene that build up excessive iron in your joints and liver but drinking is what caused most of it. The tips saved me. Take care and good luck.
@@aaroncortney819 thanks man. I'm glad to hear you are doing ok. I was approved for TIPS last Friday. I hope it works for me as good as it has for you. I'm hopefully cuz I haven't had any hernias or bleeding. My only problem so far is the ascites. Thanks for replying. Hope you continue to feel good. Good luck.
@@aaroncortney819 hello bro , the thing is not very serious right if patient has a fluid buildup but no other complications
Can a person have ascites without having liver cirrhosis?
Yes-mine was caused from right sided heart failure.
We need help for my father surgery a pigtail catheter,,we almost lost money for a couple of months in hospital,,,we dont have money for the treatment even for food,,,plzzz
*Function
I only had 6L but I liked like I was pregnant. My skin on my abdomen was itchy and I had terrible back pains. I cannot imagine those who have more fluid.
Mine tooo...i average about 5liters pulled out... It's hell on your stomach.. It feels like you are pregnant and your stomach is going to rip in 2
My dad has the same problem, what do you recommend for that, any natural remedies?
The doctor's told me they didn't see any liquid in my stomach just the liver pushed my stomach forward.
What did do pls my sister is in terrible pain ASCITES
@@thatsarockhelp me my sister is dying what did you do to come out of this horrible pain of ascites
You can have a port added and drain it at home.
I had a CT of Abdomen and it should trace ascites in pelvis and I am freaking out!! All liver markers are normal. ??
what ever came from it? how are you
Me too
@@Jerry-zx7rf Doing great. Had another CT after which showed no ascites present. Go figure.
9 was the most they took outta me, but it got to the point of 2xs a wk and I was averaging 12 liters, so about 6 liters each time. I actually had to have hernia repair surgery because the fluid pushed right through my navel and it burst(I wanted it fixed anyway it looked like the head of a certain male part... use ur imagination). So they had no choice. My Dr hates loop diuretics but LASIX IS A MIRACLE DRUG let me tell ya. I have top notch care now and 9 months Para free! Prayers to everyone! Wouldn't wish it on ANYONE EVER. if u are able, fermented foods like saurkraut and fruit (melons and citrus) help naturally lower ammonia levels in the blood. Still gotta take the meds (who else hates lactulose?? Can I get an AMEN?) BUT helps to keep u healthy and to avoid encephalopathy.
I got a counter top ninja and if u blend watermelon and fresh lemon together it makes for healthy pink lemonade. No sugar or water. It comes from the melon. Also, diabetic and RA(rheumatoid arthritis) friendly also. And fiber.... ahem. Try it guys!
Albumin treatments have any body had this treatment
Had my first Albumen dose during my very first visit to the liver clinic last Thursday, plus they drained off 2 litres of fluid. The caphitor incision kept leaking for 2 days afterwords, at least another litre plus. Don't seem to gave built up m7ch more water inthe gut, but my feet are still swollen.
For my first drain, it absolutely sucked. Doctor fucked up the caphitor so the whole process was less than pleasant. Then out if nowhere, tells me 1 to 3 years to live....right to the point.
Thank God both nurses that have been doingnthis for a while we're so much sweeter, and gave me a feeling of hope instead of a death sentence.
@@GPz84 you sure you got ascites they took 2 liters of fluid out you should've just taking water pills for that. My last one took 16 liters of fluid out of me with no pain just a bee sting when the Dr shoot me up with lidocaine.
how are you doing@@GPz84
Yes. Diet and exercise are equally important
Find a church that believes in the healing power of God and let them pray for you this is a spiritual attack on your life it's not normal to live with this thing only Jesus mighty Power can heal and will heal you but you must have some faith and go.
🙏🙏
Cmon
Amen❤
🤦🏻♀️🤦🏻♀️
Lol you dumb.
Your fine ken ,your livers fine ,throw it in a pan and sauteed it with onions and mushrooms delishous brother , delish.😁👍
My Malignant melanoma tumors (33) decided liver would be a good place to land. Acuities began three months after my first immunology. Go in every two weeks now (5th) soon. 10 liters first time 8 or more last few times. Thrombus in artery feeding liver is what looks like causing my problem. Some shrinkage in tumors, but clot not breaking up. Looking at alternatives now.
My Malignant melanoma tumors (33) decided liver would be a good place to land. Acuities began three months after my first immunology. Go in every two weeks now (5th) soon. 10 liters first time 8 or more last few times. Thrombus in artery feeding liver is what looks like causing my problem. Some shrinkage in tumors, but clot not breaking up. Looking at alternatives now.
Did a ct scan find that and how are you
Do you have a portal thrombosis? If yes, with or without cirrhosis? Wishing you good luck.