Tourette's is Exhausting
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- Опубліковано 31 сер 2016
- Hey everyone! Sorry I've been gone for longer than was planned, but hopefully this video is a good explanation why. Remember to like, comment and subscribe and check out more of my videos if you want to learn more about Tourette's.
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What is Tourette's Syndrome?- www.tourette.org/about-touret...
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My email- snappleandcats@hotmail.com
this may sound odd but why is she so calming she just relaxes me so much
she's beautiful
Alex Camarena ikr
I admire you very much. Such a strong and confident girl!
You're so cool about it all, which translates it into a transparent message to people who might not understand the condition very well. So thank you, you're a true inspiration.
You are soo strong, One day there will better remedies for rapid synapse impulses in the human body. Stay strong I pray for you and all those that are hurting. :)
You are honestly are a legend. Even though you have tourettes, you are spreading awareness and going to college to try and make something of yourself and that's pretty inspiring. Keep being awesome and god bless :)
Thank you :)
You're awesome. Thank you for sharing your story and educating us all in the process. This is a very selfless thing that you're doing and you have my deepest respect. Peace to you.
I have tourette syndrome and it's absolutely exhausting and small things are extra tiring
I really admire you for bringing this forward because most people expect someone with tourettes Syndrome is all about swearing and all that
thank you so much for the consistent captioning! it doesnt go unnoticed. (:
Some of the random tics you have are awesomely timed, off topic but seriously comical... thanks for the video's... and the support there in....
Just discovered your channel. Your videos are very well spoken and you have great, calm and informational composure. I subscribed, looking forward to more videos!
Yes! This is so true!!! My tics aren't severe but my eye tics are constant sometimes and it gets really sore and tiring! I'm glad you made this video to show this side of Tourettes!!
Thank you so much! :)
Wow, you have advanced in the amount and severity of the motor tics. I recently watched your "Swearing Tourettes' video where you explained or de-bunked the myths, I can definitely see the worsening of that aspect. God bless and try to get some more rest.
Thank you for sharing your stories!!! I really admire your character!
if you decide to do another Q&A, I think it'd be interesting if you could tell us how tourettes affects everyday activities such as cooking, showering, working, working out, transportation (car? bicycle?).
i admire that you stay so positive
You are a very special young lady. And I don't mean that as a disability,I mean you explained things on one of your videos that other people with. Tourettes that never named the different types of the syndrome, you are super young lady, keep doing videos, I don't have Tourette but I'm learning a lot about it, and it do not find the torture and pain you go though funny at all. Lots of love to you young lady xxx
I've just watched a video of an Irish guy with tourettes and yours popped up, may I say that you are an inspirational young woman and I have nothing but respect for you putting yourself on here under the public eye which can at times be very cruel. I hope the stress off college eases and makes things calmer for you and I wish you the best of luck in the future.
Thank you very much :)
Andy McIntyre Lewis qball? He's fucking funny
your videos are very educative for everybody. the sacrifices you make are not in vain.
*love the hair! ;]
Thank you! I love my hair too hehe.
durox educational*
Such a positive person, thanks for talking about Tourettes
It's my pleasure to, thank you!
Hi, I just came across your videos. I just wanted to say thank you for being open about your challenges to make people more aware. You have a sweet smile, and I appreciate your outlook. What's your major in college? Jane
Such a beautiful and inspiring young lady how does Tourette's affect your sleep to me it seems impossible keep up the good work I am positive your video is helping a lot of people out there
I would love to hear you sing sometime! Are there any songs or types of music you especially like to sing? I'm glad I discovered your videos today, I'm looking forward to more! Good luck with your classes!
One day there will definitely be a video of me singing. I don't know when it will be, but just be patient while I figure out what exactly I want to do and how and it'll be up here :)
I've just watched your video on coprolalia and its unfortunate that your motor-tics have gotten worse. But one thing I did notice in this vid is your gasping tic seems to be a lot less, or it could be because this is a much shorter vid. But I imagine the tic which causes you to gasp would make you so much more tired due to it effecting oxygen levels.
I also noticed this vid is from 2016 and being that its 2018 now I hoep you've managed to do much better. Take care and all the best to you.
fair play, takes some guts to post a video like this, you have all my respect :)
Thank you. In all honesty, this is just the kind of stuff I do every day when I'm out and about. Except instead of explaining Tourette's to a person, I'm now explaining it to the internet. :) That way it can reach more people faster.
This just basically sums up me as well. I'm sad cos it's gotten worse to the point people think I'm faking.
People thinking you're faking is the worst. Hang in there.
Have you tried medical marijuana? The way it affects the body, im assuming it might help you relax.
Tourettes has a similar Chemistry to Schizophrenia and i can confirm its just as bad a trip as when someone with schizophrenia smokes.... eg Closing all curtains, turning all lights off, no Music.... when i smoke i feel cold, and like theres a "gloomness" that like a chill... not a fun way to take the edge off..
Marijuana though does have good qualities if used in large quantities your brain cells start to die
not saying your wrong but weed made my tourettes worse but it could just be me
crap>@@giraffel3859
@@SiliconBong 🤷♀️
Hope you feel better
I like watch your video, you are so strong person, happy to meet you here in youtube.
does tourette’s affect your sleep at all? btw i love you & have been watching your videos nonstop recently
im curious have you ever had a long term relationships your condition must make it hard but even your tics seem to be getting worse I feel so proud to see your still smiling
Thank you! The answer to this will be in my next Q&A
You know you bringing up tourettes being a workout I thought the same too. When my tics were really bad I was skinny and stayed skinny but then I started meds and gained weight and then my tics stopped and idk where I'm going with this but my tics got bad again and now I'm losing weight? lol idek
"Tourette's Weight Loss Program" lol. That would be an interesting product. I imagine the slogan would be "Work out. Because you literally have no choice anymore".
I’ve thrown my back out when I’m ticking❤
my bro has tics and it is scary watching what he has to go through because he swears a lot and it is scary to watch him go through this pain
yayzies 111 I hope he is doing well with everything. Tourette's doesn't have to ruin someone's life with the right attitude and support and accommodations. I'm glad you care for him.
Your so prettyyy😍💕
So brave lot of love
You say you are in college: 1) what do you study and do you study something of interest or do you have an occupation in mind (and is Tourette's a determining factor in what your future occupation will be), 2) Does Tourette's affect you doing your homework and if so how?
Thank you for your questions! I will answer them in a Q&A soon :)
She's beautiful 😍
you mentioned in another video that playing the piano helped. do you plan to upload any videos ov you playing the piano any time soon?
I'm not sure at this point. Probably, but I'm just getting back into it after not playing for years, so idk when that'll be if it happens. I'd love to do something like that though.
Have you ever tryed the tongue blade device to control tics??
How have your tics been this semester? I hope your motor ones haven't been too bad.
You are very beautiful. I hope you get it cured soon.
You are cute and your voice is cute too, tourette can't do nothing about it :) always hang in there!!
you're very cute. And super beautiful. keep being you hun.
Very pretty woman. So beautiful!!!!?!
When you sing you seem fine. How does that work?
Maybe they should call it glitch or lag syndrome , I have a minor case, people still look at me funny, I feel you, there are different people with different cases of problems, just wish everyone would stop judging
i wonder how much has this to do with artificial microwaves, antennes and all the crap that is projected in the ether right now . (there is a huge difference between living energy, for example of the sun, and the crap that is produced artificially... reductionist science that we sadly still have, does not make a difference between alive and dead/artificial (and listen who really wants to!) i am sensitive to electro , wifi and so on, and it got worse when the technology "advanced" now with the 4G ( i wish "advancement"/development had something to do with health, "organicness" and ethics...) also depends on where i am , if the place is too much irradiated/exposed to radiation. Sometimes i get this eye muscle vibration, other times is swearing like a tic. I found your videos and i have been wondering if this is not triggered by ether contamination like when people are sensitive to it ...? what about where you sleep as one spends a lot of hours in bed, and this kind of radiation go through walls, of course. It can be meassured, and one can protect a space, there is more and more information about this, although there is still a lot of prejudice around this, and is almost tabu to talk about.
I send a big hug to you , keep your spirit high! Thank you for coming forward!!
You're angelical. Still I have one question, what does "figi" means for you? Do you remember the first time you heared that word?
Mayco Dominguez I don't know when I first heard it and it doesn't mean much to me. I barely know anything about Fiji.
I love you so much I just enjoy watching you plus your so beautiful
She's pretty
why figi? is it possible to change ticks through habit? like say if you kept saying fuck, but on your own when you didnt have a tick you kept saying fudge, could you slowly change it to that?
Thank you! I will definitely get to this in my next Q&A
Every case is different. Some people can benefit from CBIT, but not everyone does. I was once in a sauna, cussing up a storm, with a guy who claimed to be a nurse. He immediately began suggesting that I change my words with more socially acceptable words (yes, he was incredibly arrogant), and I had to keep telling him it doesn't work like that for me. He might have been a nurse, but he had no clue about Tourette Syndrome.
I have had that suggested to me as well. If it worked that way, there would be a number of things I wouldn't be doing, not just swearing. To me, that's like saying, you should walk on crutches instead of using a wheelchair because it'll make me feel better. I hope that makes sense.
Is it hard for you to fall asleep?
You should travel to Fiji
I pray the find cure for the disorder
how did you come up with Figi? Do you say cup?
The "cup" sound your hearing is more a random noise than anything and I didn't really come up with Fiji as a tic. You can't really choose your tics. Nobody knows for sure why certain things become tics, but like Jess Thom might say, anything I've ever known or experienced has the potential to become a tic.
Thanks for answering! I'm a ER phd from Brazil and I'm researching more about this condition. Best luck to you! keep up head high
Tourette's is the worst.... I can never breathe, my insides are itchy, people make fun of me, I get tired, aand many more, very hard ._.
What's your fav Snapple drink ? Mine is peach I am obsessed with Snapple and my cat
Sarah Therrien Ironically, I haven't had a Snapple in years lol, so I actually really don't know. It's kind of disappointing because I do remember enjoying a few flavors of Snapple as a kid. I just can't remember what they were. I'm actually really sorry I don't have an answer to this question aaahh
Snapple and Cats! That's fine I'm just happy you found the time to respond! Thank you anyways I appreciate it :-)
Sarah Therrien Of course I responded :p. Just wish I had a better answer.
I could not imagine having your illness. I know if I complain about my life God will take my health away. I wish you the best!
do people with tourette syndrome normally say random words while having tics? how is it possible?
I mean I've heard from alot of UA-cam videos that they normally say f*** off
Thank you for this question. I'll be sure to answer it in an upcoming q&a :)
I have TS too. today I couldn't stop saying "fuck me in the ass" "pussy" and hitting my head and I was so embarrassed my teacher took me out of the class until my tics went away haha.
you're so dank babe I hope your teacher didn't force you to leave. If they did, that's illegal because no one can kick you out of class due to a disability.
she told me if I could please say it in my head I told her that it doesn't work that way. haha she told me to go to the nurse. I can understand why she did that hah
you're so dank babe She took away valuable learning time from you because of a disability. That's kind of serious and definitely illegal. Her ignorance doesn't excuse her from that. I can't tell you what to do, but I would report it to the principal. That's really not ok.
does Tourette's effect your sleep?
Online Entity YES. Everyone is different.
Have your tics ever gone as violent (verbally) like in some of the male tourette sufferers?
Rahee Ali It's not just male (the term is coprolalia). I have Tourettes and I have the swearing symptom (I'm female). It's quite rare though.
you are so beautiful , I bet you have alot of guys friends blowing your phone up. Well hope your having a great day, god bless
'
Just wondering, How do you do that tic at 2:11? I am just wondering. Pretty weird question I know XD
It's kind of hard to explain. I sort of inhale with my throat really tight and it makes a squeak? Idk if that answers your question. I think Adam Ladell from TicTwitchTeen has a very similar tic that he describes in one of his videos.
I admire you! and you said fidget and it made me grab my spinner for your video lol!
I was wondering if you ever tried a chiropractor? To see if realignment might give some temporary relief. Also have you tried natural vitamins and herbs like omega 3,6 that help brain function?
Please let us know your ok
Poor girl. That's not fun at all.😯🙁
Do you experience tics waking you up?
Occasionally, but not often.
I feel sorry for her and i admire her for being so calm and strong like this if it was me i would kill myself everytime we find out bout a new disease what the fuck
sou bot nah, I need to make it to all the disney parks before I kill myself :p. Seriously though, there's so much life to live and meaningful things to do. It'd be a shame to miss out on it because of some tics.
i dont know what to say thats really a great answer from you im sure you gonna have a bright future with this attitude and i wish you all the best with your college,,,btw u look adorable when u tic
I'm confused what is this like what does she have
She has Tourette's Syndrome. It's defined in the Merriam-Webster dictionary as "a familial neurological disorder of variable expression that is characterized by recurrent involuntary tics involving body movements (as eye blinks or grimaces) and vocalizations (as grunts or utterance of inappropriate words), often has one or more associated conditions (as obsessive-compulsive disorder), is more common in males than females."
+Sparky328 okay thank u
hey you should try hypnosis
I'm not quite sure how I feel about hypnosis, but I'll look into it when I have the time.
I wouldn't bother. Hypnosis is not an actual thing. Manipulation of ones psyche is something one does internally, with or without hypnosis. Meditation(albeit also not an actual thing, but the mental constitution training aspect of it, is) would be a better form of discipline than hypnosis. Don't fall for the snake oil salesman of the medical forum, that is hypnosis.
That said, Marijuana will absolutely help with the stress, the tension and the muscle ache/fatigue. More over, from my understanding of the research that is out there, it will also help you reduce the frequency of tics. More over, despite it being associated with negatives, as a schedule 1 drug in the US, it's absolutely NOT as bad as taking any chemical based synthetic drug. Even at it's worst.
That said, mental constitution exercises, and even working out will have a positive effect, and is purely natural/non-chemical solution to some overtly complicating tic spurs. A friend of mine's dad, was much, much worse than you are in terms of the physical tics, and when he did things like pushups, situps, crunches, etc, he found it relaxed his mind, being focused, as well as it had a healthy effect, as he(over time) became quite fit. Nothing definitive, but as a possible solution you could perhaps try this method and report back to your audience on which activity/method you find helps best.
your still a wonderful person. keep up the good work.
your still a wonderful person. keep up the good work.
Gorgeous brave educated cutie
Figi?
That's just a random vocal tic.
Oh ok.
Are tourettes like hiccups?
Caleb Shouse sometimes, but sometimes not. Sometimes I don't know a tic is coming and have no control over it, like a hiccup, but most of the time it's like a sneeze. I can feel it coming and sometimes I can hold it back a little bit, but eventually I have to do it.
i've done two cases via skype impressive results
Do you have a facebook.. or instagram?
you are cute :))
you are cute 😍😍
You should really try CBD or Marijuana. Im telling you it could possibly help you alot because your condition seems horrible :(
You have some funny vocal tics
0:40
Nice dab.
You're going to hell. As am i xD
TwisterLord untastful and unfunny. Hope you realize you’re making a joke about a medical condition and it’s sorta sad you derive comedy from someone’s uncontrollable and never ending misery. Good to know people like you still exist to ruin all that’s good in this world
sauce was the world ever good?
Wow dude.
hahaha this dude funny :D
dab dab dab
anyone gotta instagram
yes
you should buy a microphone
strangest boring tics I've ever seen