I have Alpha Gal Syndrome from a Lonestar Tick!!
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- Опубліковано 7 вер 2024
- PSA… About Ticks! I have Alpha Gal Syndrome from a Lonestar Tick. They say it’s a red meat allergy that can cause anaphylaxis. Unfortunately it is so much more. Since this video I have also had to cut dairy products & all products with mammal ingredients. It’s been a pretty scary journey to getting diagnosed with Alpha Gal to figuring out how to live with it. Please be diligent & constantly check yourself for ticks when in the woods. Protect yourself the best you can. Also a great website for more information is alphagalinformation.org
Thank you for watching & stay safe❤️
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Laura & Jason
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If you haven't already look up.SAAT acupuncture, I had alpha gal and ended up in the ER from a reaction to mammal meat. Then I did the acupuncture treatment and I can eat whatever I want now.
I have researched it a lot but nobody anywhere near me does it. I had thought of traveling to do it but then read horror stories of some people getting worse? But the amount of people it helped outweighs that. I am willing to try it even if it just lessens my symptoms- that would be great!! I am so happy to hear it worked for you❤️ That is truly so great to hear!! Can I ask who you went to? That is also a rabbit hole I went down…. If I am going to travel I want to go to someone good. Thank you!
I’m glad at least you’re diagnosed, I can’t imagine never knowing. I’m glad your husband is supportive
@JLGWoodscapes did you try it
Thank you for posting this about lone star tick bites. Recently, my brother discovered what was causing him to get almost deathly sick from red meat. He's had the alpha-gal syndrome for 25-30 years and didn't know what was causing the problem. He's a farmer/rancher in Montana and has only eaten chicken or fish for all those years.
You are welcome!! I truly believe spreading awareness is key. The first time I had heard of it was on Facebook- I was so sick & getting all kinds of tests done. When I would mention it’s maybe that- none of my drs had ever heard of it. I kept getting brushed off.
That is crazy he had it so long & no idea the cause. But glad he related it to red meat. Hope he is doing ok now❤️ It’s a complicated thing at times.
I’m sorry to hear this. Tick bite related diseases seem to be the worst and usually doctors don’t like to admit to it. They often times will say” it’s in your head”. I’ve been hit with Lyme disease twice last year and it is a constant battle with the doctors to get any treatment. We will keep you in our prayers
YES! I struggled with a few specialists to get an answer. I actually had to demand the test…. I even brought the test code with me. I was told no way you will be positive but if you are sensitive to meat just don’t eat it 🤯 It was a very humbling phone call when he called to say I was positive. Really the only thing I had going for the diagnosis was the rash. The rest of my symptoms were brushed off.
Sorry you had to deal with Lyme. Not fun I have heard. Stay well friend.
I got AGS about 2.5 years ago and just about everything you described I had. I was so sensitive to AG that gel caps and even a drop of butter... 7 - 8 hours later and BOOM !!!
Butter? I’m just recently diagnosed and trying to do my research
I also have alpha gal. I had all of your same symptoms. My doctor told me no red meats or any product that comes from a mammal.(Including all dairy). Doing with out the dairy has been the hardest change. But every time i have it, all the aches and pains come back terribly. Thanks for your video.
So sorry you are also struggling with this. I have completely cut out dairy & am with you. It was so hard & I miss cheese so much. I still frequently grieve food… never would’ve thought I would cry over a hotdog😢😂 I can look back now & laugh but it’s been hard. Best of wishes to you & your health. Thank you for watching❤️
Hello! Here in Virginia, recently diagnosed with Alphagal. Oh my gosh, does it suck!! Used to basically LIVE off of cheese…had to make many changes and be very cautious. People are always saying “it could go away in time”…yeah, but, when do you wanna try again and get sick sick sick? 😔 Right there with ya, good luck to you!!
It is so frustrating! I believe I had this for over 10 years before I got diagnosed... I have listened to others who went through similar. I would itch and just feel so ill like I could die. I would wake up at night feeling like my throat was closing and be gasping for air, heart racing, high blood preasure etc. No rash but I would be itchy all over. I am absolutely thankful for the diagnosis, I feel like most MDs are very ignorant of this and so many people are suffering. I have been absorbing all the info I can and one of the main docs who studies this said that there are many people diagnosed that were never bitten by a tick, so that needs to be known. It is also in other countries where there is no lone star tick, so there are other vectors of the disease.remember that foods and beverages like orange juice are often fortified with vit D which is rarely vegan. Baking soda can be an isdue for some and white sugar is a no go, as it is processed through bone char. Get organic not white sugar if you must. So much is cross contaminated in factories also, so you have to look at everything closely. I went to a functional medicine MD to get my testing, when I told my family Dr the results asked if I needed an epi pen she said no, I'd be fine.I am changing my dr now.
Thank you for this. Newly diagnosed and it’s difficult to explain to others. Sharing this.
Absolutely! I should really do an update & let people know it does get easier & more routine. There is life with AGS. Stay strong & positive- it is a journey❤️
@@JLGWoodscapes Thank you
I have this as well and had to change plant based soaps as well. But sometimes I feel like I’m dying but it passes sometimes. Thank you for sharing your experience. I don’t feel alone
You're lucky your throat never closed up.Mine did three times before I figured out what was going on.
Wow its tough. So sorry for you. Cattle farmer and hunter here. Guess you know why im watching
Same exact symptoms here. Central OK and searching for a doctor to help guide me through this.
This is insane, same problem here...the thing is that I don't understand, I grew up with animals with ticks, running into nature, being bitten by anything alive and never developed any allergy...then I move to Canada and I get this thing...sometimes I wonder if since gov are trying so hard to stop us from eating meat, they have actually created this thing in labs...I honestly don't know cuz it doesn't make any sense to me...
Thank you! You are a good person, to take the time to inform anyone who will listen, as to the dangers of this tick born disease. I have recently turned to a meat based diet for my health and heard of this. So am very scared of it. In the UA-cam research I have done, I have seen that it will lesson, or go away completely in 8 months to 5 years. 5 years sounds awful, but "go away" sounds good.
Again, thank you for helping your fellow man..... you know what I mean... I hope. Thank you.
Hello- Thank you so much for your very kind comment❤️ Awareness is definitely key with Alpha Gal. So many medical professionals have never even heard of it. I pray so hard it goes away…. It has been a rough experience. I was tested again recently & my numbers actually went up. The numbers don’t really mean anything though… positive is positive. Plus I wasn’t surprised as I still have reactions. Fewer & further between with proper diet but I still mess up. I appreciate you watching & listening❤️
I'm recently diagnosed. Thanks for this video. AGS has been so isolating.
Very sorry you are part of this terrible club… It is very isolating at first. I promise it does get easier with time & as you figure out what works for you. There is life with AGS. Stay strong & I am sending well wishes your way ❤️
@@JLGWoodscapes Thank you! It's been an entire lifestyle change that even my family has had to adapt to. It's nice to have support.
I’m so sorry to hear this. Thank you for sharing. Ticks have been on the increase in the northern states. It’s difficult to make such a huge life change but it’s most certainly worth it. You have married a kind man. I enjoy your videos very much. God bless you all
Hi- I am so fortunate to have a strong support system. Jason for the most part has switched to my diet. I felt it important to share because prior to being diagnosed I had never heard of such thing. I really hope this video helps someone.
Thank you so much for watching & the kind words❤️
Hello there. I have had alpha gal now for over 10 years. I now have a mast cell disorder on top of it after my second bite. I stopped eating all mammal when I found out and continued to eat dairy although I do still get a rash here and there from dairy. After the second bite I started getting major stomach pain from all fruit, seafood and eggs! It was crazy! I was so scared and sadly doctors just kept saying it couldn’t be from alpha gal since it’s just mammal meat but that’s when mast cell activation disorder kicked in. If I have any juice I feel drunk and start itching bad. I used to be fine living without red meat but now that I can’t have any fruits eggs and seafood I’m a mess! Also I was on Allegra for years until the second bite and it stopped working or I started to react to that. I also deal with itchy nose, runny nose, major brain fog like I feel like I have dementia at times. For the last year I have had major heartburn as well and I now take Zyrtec. I usually live off of chicken, potatoes, oatmilk, coffee, oatmeal at times, lots of bread,bagels. And since I have a binge eating disorder as well I sometimes say “screw it and eat dairy and pay the price” but I take daily Zyrtec and if I don’t take it then I can’t even eat wheat or oatmeal without itchy my nose, runny nose and coughing like crazy. I’m a complete mess and where I live now no doctors care to help. Anyways I wish you all the best ❤
Hello- I am so sorry you are dealing with this too. It’s a struggle for sure. I also cannot do dairy now. It makes my bones hurt…. If that makes sense? It’s hard to explain some of the reactions. I am in a similar boat with finding a Dr that understands or wants to take this seriously. I am currently taking Allegra everyday for the runny, itchy nose part. Although it doesn’t seem to really help.
I know the feeling of just being a mess….. I am a mess too. Thank you so much for reaching out & I wish you well!! One day at a time friend❤️
Bingeing on a known allergen will cause mast cell activation. This isn’t a game! This disease is so new they are just beginning to discover all the unknown side impacts it may be having on sufferers health. Recently I heard a doctor say it might be a good idea to screen alpha gal patients for advanced heart disease due to the underlying inflammation in our bodies. I have alpha gal. I was diagnosed in January. Had it for years just didn’t know what was wrong with me. After Covid it got way worse. I can’t have juice because some are clarified using mammal products. They don’t have to list it so after several reactions I just avoid all juices and jellies. Regular sugar is a culprit as well I buy bone char free for use at home. Who knew sugar is refined using columns of mammal
bone char? Carrageenan is added to lunch meat turkey and chicken many times. Heavy cream and evaporated milk always have carrageenan added to it in the USA. I don’t do dairy or cheeses anymore cause I know the risk of mast cell activation. I’ve discovered through all my diet elimination in the beginning that my severe joint pain wasn’t only alpha gal but gluten sensitivity as well. Supplements need to be watched cause gelatin capsules cause issues as they are mammal derived. Iron is hard to get from chicken so find an iron supplement that is not animal derived. Hair loss can be caused by lack of iron. A good vitamin b complex is helpful too. I have a family who I can’t deprive of all their favorite foods just cause I’m allergic. Thankfully I can be around while it is cooking most of the time ( some become sensitive to that as well) I have good days and bad days. Sometimes I feel sorry for myself. I still have a good life and I’m going to do all I can to live as healthy as is possible for me and for my family.
Also watch your soaps and shampoos I break out if I use anything but pure Castille soap made from oils. Goat soap or conventional soaps use cow products in them. I break out under my rings every time I forget and use them without throughly drying under my rings. I pack my soap in a travel bottle with me. Problem solved.
Love to you both ❤
accupuncture is promising for some people
I have this. It is much more than meat. It is mammalian products as well. Vitamins, shampoos, soaps, etc.
I knew gel caps are made from porcine or bovine, but never thought of shampoos, etc. How do know what you can use?
And some toilet paper. Charmin can have it angel soft I guess doesn't 🤷♀️
Either get Alpha Gal or cancer from tick repellent. Awesome 👍
Thanks for sharing! You are not alone!
Thank you❤️ It’s rough but awareness is key. People need to know it is a thing.
1) also make sure if you’re allergic to gelatin. It is in foods like many gummy candies, standard marshmallow, jell-o & some sauces for example. Shows up in non food products like the capsules of some medications (both Rx & OTC), chewing gums & lipsticks. like Fish gelatin would be safe tho
2.) so sorry about your trouble at restaurants! Vegetarian/Vegan restaurants are definitely a safe bet if there’s any near you! You don’t need to be a vegetarian for the food and atmosphere ❤ to appeal to you. Staff should be pretty well informed here about what contains carrageenan _(btw did a MD say this wasn’t a separate allergy or condition from your Alpha gal? it sounds kinda weird for red meat to be cross reactive with it)_ since people who have a vegan/vegetarian/pescetarian diet tend to be more familiar in my experience. Plenty of the nice regulars I’ve met at the vegetarian restaurant I like to go to eat meat regularly they just come because they love the food. After that I think seafood restaurants _(with no red meat on the menu)_ & Indian restaurants would also be the least likely to contaminate their food with red meat byproducts. Still explain your situation of course to be safe. Sorry for being so wordy- just trying to brainstorm for you since it sounds miserable to never ever get to enjoy a meal at a restaurant
Thanks for the information and I’m sorry you’ve suffered so much with this. I just got bit by a lone star and am worried what might happen.
I'm so sorry you are dealing with this, but thankful you where able to figure out what was going on and have Jason's support. Carrageenan messes up Bob's world also. They put that stuff in everything from dairy to meats. We eat allot of organic and they tend to put that stuff in allot of organics. Grrrr
It’s crazy some of the things they put in food. I was very unaware of most ingredients I used to eat. Now I can’t risk it. Carrageenan is one of the worst things for me.
I am over two years now with it everyday is a struggle . Good luck with yours hopefully yours dont last to long .
Hello- So sorry you are going through this too. At this point I do not see remission happening anytime soon for myself. Everyday seems to be a struggle for me too. Some better than others but it’s always something. It is very life changing. Thank you for watching❤️ Well wishes to you!!
AGS and lone star ticks are legitimately my worst fears. I cannot fathom the idea of this allergy.
I apologize if this scared you more. It truly does suck & has been very difficult to navigate. Awareness is definitely key!! A lot of people have no idea such thing even exists or could happen. Stay vigilant!! Thank you for watching❤️
I got bit 5-27-23…didn’t even know it till the next morning (tick was gone) Bite site was raised and itchy for 2 weeks- flash forward to the 4th of July, ate some ribs and a bratwurst, woke up covered in hives. Diagnosis positive 8-3-23, IT IS A GAME CHANGER.
Sean from Kentucky
Hi Sean- So sorry you ended up with it. Not really a club anyone wants to be a part of. It is truly a whole lifestyle change with no cheat days. It’s impressive to me that you know exactly when you were bit & payed attention to the bite site. Kudos on catching it so early. Not sure if you use it but the FIG app has been a lifeline for me as far as ingredients. Best of wishes to you and your health. It’s really tough at first but it does get easier❤️
@@JLGWoodscapes thank You!
I also have the dreadful Alpha-gal for about 3 years now. It is a life changer for sure. We have lots of ticks here in Oklahoma
Yes! I've only been here 2 years and I've been bitten twice. I'm eastern ok near fort smith ar. First time i got the bullseye rash and treated for it in time. 4 days ago or so it was a lone star. I'm thinking of moving!!
Hello Laura, Sorry to hear this. I'll pray for you and I hope you can continue to cope and adapt. When I lived back in WI I was always exposed to ticks. Fortunately no Lyme disease, far as I know. But many friend and relatives have gotten Lyme. There are ticks here in Alaska but not like back home.
Hi! Thank you❤️ It’s been rough but really it is a healthy diet… just sucks because there are no “cheat” days.
Darn ticks. I knew they could cause problems… but honestly this has been crazy.
Thank you for the kind words❤️
I’m recently diagnosed and haven’t had any bites, live in the city and I have no clue how I became allergic. Was diagnosed after eating lamb and had to go to ER
I’m so sorry you are going through this.! The daughter of a friend has this. She can only eat rabbit. Not sure if she is sensitive to carrageenan or not. So, I’ve known about it for a few years now. Since I’ve known this, we wash designated clothes in permethrin and have a case of deet on hand at all times. We live a city, actually, a small one and I try to keep the yard sterile but my neighbors don’t mow and we have a lot of trees.
Thank you for watching❤️ Sorry to hear about your friends daughter. It is great you take so many precautions. I truly wish I had before this. Ha now I am very vigilant.
Wow, crazy stuff. Sorry that you got this. Tick born diseases are very hard to diagnose and very difficult to manage. Take care!! Thanks for sharing this.
Yes! It’s been crazy- So happy I have an answer but it has been a struggle navigating it. Thank you for watching. Awareness is key❤️
Thanks for sharing! I just pulled a lone star tick off last night. On antibiotics now but super concerned about alpha gal.
If you don’t mind sharing what’s your bloody type? Certain kinds are more susceptible and others are more resistant
A+
. Me too!
@maenad1231 which type is more resistant?
oh yea I got alpha gal diagnosis , and I WAS a very big red meat eater , Well I'm goin to learn how to be a waterfowler now , my symptoms were almost exact as the ones you are describing , I'm on mend now , I spray down liberally now before woodswork.
So sorry you have it too. The limitations on food has been hard but definitely discovering other good things. Glad you are on the mend. I still have random reactions but can usually pin point what I did wrong. It’s such a weird thing.
I also have alpha gal too. I’ve had it for several years before I found out I had AGS. My worst reaction is to macadamia nuts. It usually means a trip to the ER for me. I feel sick to my stomach and sleepy. I’m told that nothing I say makes sense. One trip to the ER I wasn’t able to remember my name but I could give them my SS# correctly. Don’t get AGS
We are so lucky here in the UK 🇬🇧, we don't have a tick problem like you do over there. We got ticks but very scarce, ive only ever seen one my whole life. So sorry this happened to you and glad you are on the mend.
That is lucky!! Honestly they never really bothered me.. just pick off & move on. I had never heard of Alpha Gal until I had it. It has been a lot of learning & mistakes but I am doing so much better now. Awareness is key. I knew there were other risks but not this one.
Come to Scotland we have ticks and alpha gal
18 years ago I was bitten in the UK. Covered in a rash for nearly 2 years. I've been bitten several times since.
I've had chronic fatigue for the last 18 years.
IgE came back positive for meats... (and half the planet).. Now I'm suspecting Alpha Gal is the reason I slept through college, uni, and work until I slept through the last 10 years.... We're not lucky in the UK were under-diagnosed and barely supported with our medical needs.
I’ve had Alph-Gal 5 years. I was just retested and I still have strong alpha-gal numbers.
Hello- So sorry you have dealt with it so long. I imagine with time it will get easier & easier to adapt to this darn thing? I was retested recently too… shocker I still have it. It’s been a struggle for me. Just when I think I am doing really good & feeling healthy… I have a reaction. Best of wishes to you & your health. Thank you for watching❤️
A you for sharing this.. Sorry your still having high numbers but it means I have time to find the test and I probably don't have to self poison to get a clear result
pretty crazy. I just read an article that said something 400,000 people now have this allergy since it first began to spread around 2017. When I first heard about it I had just gotten lyme disease which fairly trivial to get rid of. this allergy seems way more persistent and difficult to treat.
It is totally crazy! I am hoping with all the news coverage lately more can actually get a diagnosis. I believe so many have it and are struggling bad but have no idea what it is. I suffered a long time before finding out. So sorry about your Lyme disease- I know that is not easy either. Did you catch it fairly early?
Thank you so much for watching & your comment❤️
@@JLGWoodscapes I think I caught it within 2 weeks. I had a huge swollen rash on my leg that was itching like crazy with the classic spreading rash. tested positive and got 2 weeks of doxycycline which knocked it out. that was 9 years ago and although i don't have any lingering impacts from lyme, my phobia of ticks seems to get stronger by the year.
@@TheLeesto You sound very fortunate!! So glad it was short lived for you. I have heard horror stories from folks. From my understanding getting diagnosed & treated early is key.
Ha! I totally understand the phobia! They never really bothered me before this🤦🏼♀️ I truly didn’t understand the risks.
I really feel for you Laura, that was a great interesting video. Hope you don't shed any more weight lassie.. My friends daughter has pocaria she gets crazy hives and joint pains, she's waiting on results from a spider test, apparently this will show up all sorts of nasty things or not hopefully.. She's only 22. Thanks for sharing Laura it's got to be a challenge... Got to say though...... I miss Jason's hair😭😂❤️
Thank you for watching❤️ I felt it important to spread awareness. I hope it helps someone. So sorry about your friends daughter. I hope she gets answers soon. Not knowing is scary… but then sometimes the diagnosis is scary too!
Haha! Jason’s hair😂 Coming to a video soon!! Thank you❤️
Thanks for sharing, and I’m glad you’re on the road to recovery. Welcome to the vegan gang :) would you be able to share what foods are working well for you in replacement for your typical meat diet?
Thank you. Mostly chicken on a brand new smoker…. Cross contamination has been an ongoing problem for me. Dairy-free cheese… Rice milk because since this video I learned I am allergic to dairy too. Lots of eggs & vegetables. I try hard to stick to minimal ingredient food. The Fig App has actually helped me alot!!
So sorry. I have it also, any kind of exertion and I go into anaphylaxis. My throat constricts and can't breathe. Dairy products also. Best of luck.
Sorry you have this terrible thing too. I also completely cut dairy & an allergist told me to slowly re-introduce it. He was wrong. It made me very sick. Cheese was my favorite😢 Take care & best of luck to you as well. It’s definitely a journey.
Thx for making this video 😊
You are so welcome❤️
Thanks for sharing Laura. I am currently going through a similar situation and have follow up with Dr. Next week.
Absolutely! Awareness is very important. I hope you get answers about what you are going through. Best luck & wishes❤️
Wow Laura!! Not good… will you eventually kinda grow out of it or are you Stuck the rest of your life? With you and hubby enjoying the outdoors so much: will you slow down hunting bear , deer etc? Life is too Short! You be very careful…. I nearly died in a car accident 5 years ago: can’t walk, PTSD is very bad, can’t drive.Lost my locksmith business of 40 years…. So my life is totally changed with non mending Calcaneus bone and permanent Nerve damage…. So you and Jason keep making videos I can enjoy👍 B Deacon Manitoba Canada 🇨🇦
Hi Barry! I am so sorry that happened to you- That is a story that humbled me very much. What you went through is completely life changing but you seem like a very positive attitude person❤️ Sometimes it’s very hard to understand… why me? Your story is very impactful. Please stay strong & positive.
Life is too short!!
As far as this AGS crap…. They say it can go into remission but who would want to experiment after changing your whole eating lifestyle? & it’s remission… it could come back anytime.
As far as hunting- Turkeys for sure for me!! But we will keep hunting because we have alot of family & friends that love the meat!! Just going to be alot more cautious going forward.
Take care friend❤️ Thank you!
My daughter was just dx with this!!!
my sister in law was allergic to pork for decades then one day itstopped so heres hoping theres a light at the end of the tunnel
Thanks for sharing! This will help others too! Prayers for you.🙏
I am so sorry to hear this! I lived in Minnesota for years and of course it is tick haven there. I know people that were bitten in Mn that developed Lime disease which was horrible for them! I have a cut spinal cord from a back surgery so I deal with chronic horrible pain & then I developed fibromyalgia. My daughter has carbon monoxide poisoning from a place she rented that was coming from the fireplace. She has all kinds of allergies now & Mass Cell Activation Syndrome & has hives all the time. So she is constantly learning large lists of foods & medicines etc. just like you. I would check out mass cell if I were you. She can’t have tomatoes now and the list is extensive foods,deodorants,cheese,off mosquitoe spray, makeup etc. I truly feel for you & my daughter. 🙏🏻🙏🏻🙏🏻Blessings
Thank you so much for reaching out. Battling your health is so hard. Mass cell definitely scares me. Alpha Gal is bad enough alone but many with it develop that. The things you listed off I pretty much already have to avoid. It has not been easy but I do feel so much better if I avoid things. It’s been a couple months since I have had a reaction. It has changed my life a lot but I try to stay positive. Prayers to you both❤️
@@JLGWoodscapes good for you I hope you don’t develop mass cell it is horrific! Once a week my daughter finds another food or household item that gives her hives. She lives on a daily dosage of Benadryl and Pepcid and yes she has several epi pens near by.
@@lauraquigley6403 ugh. So sorry for her. It’s hit & miss on food for me too. Something that has helped me a lot is an app called FIG. Not sure if she could benefit but worth checking out if she has not. You scan food with it at the grocery store & it tells you yes or no based on your dietary needs.
Best of wishes & prayers for relief❤️
@@JLGWoodscapes Aww ty! It is constant with her also with food. Anything can be something she becomes allergic to on any given day. You be safe and get the rest you need. 🙏🎄😊
Been dealing with it for 6 years and it's no fun and life has been rocky.
Ugh! So sorry. It’s a very hard thing to settle into. I struggle. Even on my good weeks I feel I am only working at 60% of my 100%. I refuse to give in but it’s rough. I am always hungry & can’t eat anything I actually “want” to. But it’s more than that too…. it takes an emotional toll & even when not reacting I can tell I am different now. I don’t feel healthy. Health is everything. You don’t know what you have until something like this.
Thank you for watching❤️
Keep fighting my freind.......sounds tough to say the least......Hope you Figure out a Diet that Suits your limitations AND you are Happy With. Is there any other ways to contract Alpha Gal??? other insect bites maybe? or Consuming Raw Meat? Or is it only Tick related??
Thank you- It’s been rough but gets better all the time as I narrow in on my diet. I believe the only way to get the allergy is from the Lonestar tick…
It’s been such a crazy thing to deal with!
So i am not diagnosed yet. I go to see my allergist in a few days. But i have the same symptoms as you and especially the hives and itching. Also they are very painful. Like i cant even open a coke bottle without it hurting my hands :/. I cant exercise because i blow up in hives. I have been taking Xolair for over a year and it has helped so much but recently i switched insurance and had two month of no xolair and im right back to where i left off. I just heard about alpha gal today so im doing all this research and im starting to believe this is what i have that doctors havent been able to diagnose me with since 2020! Its been a terrible 3 years to say the least. Thank you for this video and if you have a sheet with all the foods that are acceptable please let me know where i can find that sheet so i can go shopping for this new “diet”
Hello- So sorry you are going through this & pray you get answers soon. I cannot even explain how miserable I was before diagnosis & diet change. It was scary as I am sure it is for you too. Have you already started cutting things out of your diet? It’s worth doing before you get tested. Also on the website I posted in this video are the exact accurate blood tests.
As far as what I eat now it’s very simple. I really should do an update video soon. I eat a lot of eggs, vegan bread- (yes vegan bread!) most bread has mammal byproducts. Vegan “butter” spread. It’s quite a journey figuring it out. Lots of veggies & fruit. Chicken & fish. I rarely eat at a restaurant as that truly never works out well for me. I heavily rely on the “fig” app & a support group on Facebook. My best advice for starting out is go very basic. It takes a long time for all the inflammation in your body to calm down. It took over a year for me. I was so sensitive & still am. It sucks but there is life with AGS. It was very depressing at first… grieving food & crying over food…. It does get easier though I promise.
Please keep me posted how things go for you. Sending many thoughts & prayers for answers for you!!
Thank you for your kind words! I will subscribe to the fig app to try and make big changes in my life but its definitely going to be hard. Who knew a little Tick could change my life for ever( if i do get diagnosed) i will keep you updated if i come back positive. I got to see my doctor on November 8th. Stay strong on your journey !
Thank you for the information. You are thin and still beautiful !
❤️ Thank you!!
I have all the symptoms for the last 15 yrs,talk about suffering,I went through the rash stage now it is joint pain in my shoulders an my hips an fingers,it sucks
Hi Ryy - I am so sorry to hear you are dealing with it too. It definitely sucks. I seem to have good weeks & bad weeks. Just when I think I have it figured out I flare up again. Then the other crappy thing is I cannot eat anything that I actually want to eat. So sorry you are dealing with it too & so much longer than me. Ugh. Take care!!!
@@JLGWoodscapes thank you,I just have to figure what I can't eat,never thought about cross contamination,as well as a possibility citrus an like the video said about any type of mammal product
@@ryycarter1623 Do you have the FIG app?
It takes a lot of guess work out & ingredient reading. I use it for pretty much everything I eat & use it to grocery shop.
@@JLGWoodscapes no but I will look it up thank you
@@ryycarter1623 It truly is my lifeline. They do charge a fee but I assure you it’s worth it.
I feel last part I just got diagnosed but been suffering for years until I could get a doctor to run the test that was my hardest part I knew something was wrong I knew that my fatigue level was not just because I had covid I had the flu it was a long-lasting fatigue and I am just now starting to get over it after I got diagnosed and started changing up my lifestyle changing my I have not eaten before dear for years because it messed my stomach up so bad but I think I've had it for way longer than I can even imagine but I'm an outside person too so I am not going to change that I love the outside I love being outside yeah I need a chainmail suit so you don't get tick bites
Nah im about to stop going out side. Iv pulled like 8 of in a week. What the tick is going on out here?????
I have it same symptoms just found out
accupunture may be promising
hey shawty
Curious if you know what your AG Ige number was when you were diagnosed?
Hello I believe it was 56 which is considered low. But from my research positive is positive kind of like being pregnant…. You either are or are not.
Do you have alpha gal too?
Our daughter has AGS too! Is there any treatment?
I am so sorry. It is definitely not an easy thing to deal with & truly is an everyday struggle. As of right now there is no cure…. Just a hope for remission that doesn’t seem achievable for me currently. But then it’s just that “remission” from my understanding- which means it can come back at anytime. I know a lot of people have had success with SAAT as far as lessoning reaction systems. Some say it went into remission from it. I have researched SAAT a lot…. Nobody anywhere near me does it. I may eventually travel just to try.
Thank you for watching & well wishes to your daughter❤️
Did you take the covid shot ? Wife told today she's allergic to meat Whats making her sick ? Since her covid shot she has blood clots in her legs too dont know if thats it but ?
I did not get the covid shot. I am so sorry to hear about your wife. I hope the best for both of you & that you get answers.
You don't need meat and you will be healthier for not doing so
Way less healthy with out meat
@@cascisa22 oh sorry you haven't learned the Nutritarian way. It's not too late I'm sure. Veganism is a clean and wholesome way to be environmentally active.
Imagine having empathy for our torchered sentient animals which are being abused and killed for 10 minutes of taste pleasure when their are other delicious foods to eat instead. Wow, It's so cruel when people choose to purposely partake in these crimes of abuse. May God hurry, come, and put in their minds a good conscience, that which was the first law put to Adam and eve in the garden....to eat vegetation and not animals.
More animal life is killed plowing fields than you know
Is it permanent
I found a lone star on me the other day. It couldn’t have been on me long as I had just gotten in the woods and had been warned they were in the area, so I was checking frequently. Once I noticed the tick on my leg I simply grabbed it and threw it off of me. My question is do lonestars have to be imbedded to transmit disease? I feel like everywhere I search I get different answers.
Ugh. They are just so nasty. Sorry you had one on you. Was it just crawling or attached? From my understanding it has to attach itself to get you sick. I could be wrong . Also not everyone that has one attached gets it…. I have 3 family members that had lonestars crawling on them this spring & no problems. I think attached is where it happens…. My best advice is pay attention to your body over the next few months- Any weird symptoms don’t brush it off…. It is a pretty simple & accurate blood test to see if you have it. The symptoms are crazy. I truly did not relate all I had going on to just one stupid thing.
Best of wishes to you❤️❤️❤️
people being forced towards vegetarian lifestyle by an alpha-gal kinda makes my day
I don’t think you understand how sick I am from this…. Glad my suffering can make your day better….
are you ok when you are not eating meat?@@JLGWoodscapes
@fhhs3431 ehh that’s a loaded question. So many food products have mammal byproducts. I also have been cross contaminated a few times too. Seems the longer I go without a reaction the closer I am to one. I learn all the time what not to consume…. It’s definitely been a difficult process. I have lost a considerable amount of weight. When I do have reactions they affect all of my body & I am very sick 3-5 days.
that is even better, now the tick is forcing people to a vegan lifestyle! what a win for the planet@@JLGWoodscapes
That's a terrible thing to say