Storytime | Paralysed at 33 | My Transverse Myelitis story
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- Опубліковано 22 січ 2023
- Telling my story of how I was suddenly paralysed in July 2017 with a neurological condition called Transverse Myelitis. Give this a like if you enjoyed it or found it helpful and subscribe for more videos every week :)
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Thankyou for sharing this. My son came down with transverse myelitis on the 29th Dec 2022 and is currently is Stoke manderville spinal unit hospital. He still has complete paralysis it’s been 8 weeks. Prey he makes as good as recovery as you someday, he is just 12 and it came on suddenly from nowhere.
Praying for a good recovery for him, it must be so hard at his age. Sending positivity your way ✨
how is your son? ❤
How's he doing now?
He is still full time wheel chair user. Unfortunately he probably will fall into the category of not walking again. Very sad
I am paralyzed too ❤ for the past 12-years nice to meet you I live in Toronto xo
I have been following you for years. I remember when this happened to you and at the time you did try to explain it as much as you could. Years later and it seems like you have found the words to express your journey clearly. I hope your healing progresses 💖💐🌺🌼🌸🌻
Thanks for sharing Victoria, I was diagnosed with MS 11 years ago and it’s very inspiring hearing other people’s stories with a neurological condition. Love watching your videos especially on a bad day to cheer me up x
I had a spinal tap when I was a teenager and now at 53 with years of illnesses, injuries and aging I still feel like it was the worst test imaginable. So glad you’ve recovered as much as you have.
Thank you 😊 It was honestly traumatising. I had so many different tests and scans but that was just the most awful by far. Sorry you’ve also been through it.
Thanks for your story. I had Transverse Myelitis in 2010 when I was 51. I was watching your video and I was getting a bit mad because you were in Hospital for 5 days or so and you hadn't mentioned Steroids. I knew from my case that they gave me Steroids the moment I got to Prince of Wales Hospital in Sydney. This helped take me from paralyzed below the waist to walking in 5 days. Although the first Hospital did waist 2 days before they diagnosed it for me. Even sent me home the first night. Than had to bring me back in an Ambulance the next night when I lost the use of my legs. Glad you recovered and can walk. Recovery for this varies from person to person. We are both lucky that we can walk again.
Thank you for being real! This is the kind of thing people need these days now more than ever but is becoming increasingly more rare to find. This was brave of you and although I don’t struggle with this particular situation, you’ve been an inspiration to me! I’m sure so many others will be helped as well! ❤
Thank you so much 😊
Thank you, Im currently at hospital now, still right armed paralysed but I did Plasmapheresis and due to so it again this monday. Nice to see your video
Transverse myelitis is horrible , so pleased to hear how well you have done. I was struck with it in 2010 and all these years later still suffering the consequences. I can walk very short distances, the walking through treacle bit is so real, I always say it’s like i’m wading through mud! even though I had great determination my bladder has not recovered very well, but we cope with what we are left with. So pleased you have come through and not suffering too much now x
I could honestly listen to you talk all day your very good at explaining and telling a story, I heard you mention this before in vlogs but didn't know exactly what happened it's so interesting but so so scary at the same time. Thank you for sharing, your very brave. Xx
Thank you Sophie 😊
YOU'RE AN ABSOLUTELY AMAZING LADY XX
Thank you for sharing your story with us!
Thank you for being so real and honest 💓
My prayers are with you. While you should never close the door on progress in medicine you are doing the right thing in working with what you have. Exercise can do a lot of things and is so underrated. It is good that you're staying active and on top of the blogs. My mother had Parkinson's and did little to make the best of a bad situation. She would have been more motile if she exercised and did more; whether she would have lived longer is unknown. I'm glad you're doing so much better. The best of luck to you!
Thank you so much for sharing your story
Thanks for sharing your journey through this. Your determination to push yourself to recover as much as you have is amazing. Watching your Disney vlogs and all the walking that you do is inspirational.
What an amazing video Victoria xxx so heartbreaking that you had to go through such a horrendous time but uplifting to see how you have overcome so many challenges. Very inspirational 💕
You are so brave & open, thank you so much for sharing x
Thank you for sharing your story and being so open. You are an inspiration, and in my opinion, extremely brave.
Thank you so much for sharing your journey! Best of luck moving forward with it. 💗💗
Thank you for sharing. So glad you can enjoy your live again!🥰
Oh Victoria, Bless you're heart. I hope you stay stable forever and continue to do everything you enjoy.
Thank you for sharing! I so enjoy all of your blogs! You’re a beautiful person!
I can remember you putting an update out in YT when this happened and having no idea what the condition was as I had never heard of it, listening to this was Incredibly interesting and informative. Im so pleased you've made such a great recovery from the initial paralysis you had. Absolute determination at its finest! X
Thank you for your vulnerability, Victoria! I stumbled upon your Disney vlogs a year or so ago and have stuck with you. I’ve ventured over to your personal page just to keep tabs on what you’re doing 🤣 I was stunned to hear about your diagnosis in the Q&A and love hearing your story and recovery and becoming VICTORIOUS! Wow. Praying for you and look forward to continuing to watch your channel(s). Really enjoy your content!
Thank you for sharing this. Your outlook is amazing and you should be very proud ❤
Thanks for sharing your story was so emotional it even made me cry a bit
Your such a strong and inspiring person xx
Thanks for sharing. You are a very strong woman. Prayers. 🙏🏼
I have followed your Disney vlogs for a long time and fascinating listening to your illness. The beginning of your story sounds exactly the same as my mum’s story only hers turned out to be a spinal stroke and she never walked again. Very great of you to speak about this as so little is known about it x
Thank you for being you! You don't know many of us. But, your vlogs are extremely special!
Thank you for Sharing Victoria ❤
Wow that sounds so scary . So glad your ok now x
Excellent video Victoria. This will help so many people. I am so glad that you are ok now.
Thank you for sharing your story. I work as a health care assistant in my local rehabilitation hospital, having to help others to walk again after any injury or illness. So i can understand how hard it must have been, but so glad you were detirmind to fight through it all. Thank you for all your vlogs x
Very good description, Victoria, thank you!
Victoria you have been through so much and you are so strong. God bless you. Always watch your videos. I wish you continued progress and good health
Thank you for sharing, I expect this will help a lot of people in the future ❤️
Good on you Victoria. You are an amazing inspirational person and I am sure your story will resonate with many of your viewers (including me) even if our experiences and challenges are different. Thank you. ❤
Remember when this first happened 😢 glad you’re well on the road to recovery x
Glad you recovered I havening so much more respect for you.
You have always been an inspiration to me with your can-do attitude I would have never guessed what you had been through. I am so pleased that you have found your new normal and that you have such a positive attitude about it. I have chronic asthma, so have had to take steroids pretty regularly. I understand what they do to your body and mind thank you for sharing your journey.
Thank you for sharing Victoria, it means a lot to many people, hopefully you will get better everyday. God bless you.
Thank you for sharing. Everything you say resonates with me after having a seizure last summer. I also work in healthcare and seeing things from the other side is so different and difficult. I'm now going through treatment getting used to a new normal too.
I just saw this. I remembered when this happened and I hoped it would turn out ok. I was worried when I saw you walking so soon. I'm glad you've you explained your journey.
Thank you for all the information, I wish you all the love in the world
Thanks for sharing, I admire your determination. Take care of yourself :)
A very brave and useful vlog, I am glad that you have come out the other side. I am sure this will help others too I can certainly relate to your experience. Keep the vlogs coming 😊
Thank you for sharing, I can relate my story with yours in many ways. It’s been 10 months since I got ill with TM and slowly recovering. I still have my mid section band as you described it.
hello victoria i must say you are beautiful. im so sorry you are going through this love and hugs x
You’re so strong. Thank you for your story. I’m so glad that people out there are more forthcoming with their illnesses because it seems that sometimes people that have illnesses it may not be seen on the outside. I look forward to more of your recovery and journey with this and I wish you all the health and happiness and wellness for your future.❤
Thank you so much Rebecca 😊
Thank you for your honesty and for sharing Victoria ❤
Thank you for watching Becca 😊
Wow thank you for sharing this very personal experience - take care ❤️🩹💞
You are so brave Victoria. Thanks for sharing ❤
Thank you 😊
You are amazing so glad you are better now ❤️
Thank you 😊
Thank you so much for sharing! You are a great role model 💪 I'm so happy you are much better now!
Thank you so much 😊
Thank you for sharing your story, and being so absolutely candid about your health. You will help and inspire more people with your honesty and bravery of this video, then you will ever know. Your story absolutely shows that none of us ever know what someone has or is going through, so we all should just lead with kindness. Thank you again for this very candid video. Sending you love and gratitude from Canada! ❤
Thank you so much Michelle 😊
Thank you for sharing your story 🥰 You are without doubt my favourite Disney Vlogger and I’m so pleased you’ve managed to carry on doing what you love and what we love to watch xx
Thank you so much Judith 😊
Thank you so much for sharing your story Victoria. What a scary experience for you to endure! I have a spinal injury - fell down some concrete steps and broke my back rushing to a work meeting - so although it is not TM, I still found it really helpful to learn how you have navigated your new normal. What an inspiration you are! x
Oh my gosh, that must have been so scary for you! I hope you’re doing well now 😊
That was such a powerful vlog. Had me in tears. So much respect for you for coming through all that x
Thank you 😊
i think your very brave and inspiring for sharing your story my favorite actress has had transverse myelitis shes a wheelchair user she was parlayed at the age of 7 her name is Kitty Castledine. your amazing and very inspiring 😄
Aww Victoria , this video really touched me , you have done so well and shown amazing courage . Loved listening to your story and am sure it will help others .x
Thank you Kathleen 😊
Thank you for your courage in talking about this. Hearing your story sounds so much like my story only I have spinal cord damage from a car accident. I remember following you back when this happened and cheering you on from the states.
Thank you so much, I hope you’re doing well after your accident 😊
Beautiful 💞
Wow you should be so proud of yourself Victoria. Awesome recovery. I'd be scared to travel alone after but you haven't let this episode define you. 🎀🎀🎀 XXX
Thank you Donna 😊
Thank you so much for sharing your story 💖💖 you are amazing 💖💖xxxx
Thank you Joanne 🥰
@@VictoriaWitt I really mean it x I have been having back issues on and off for the last 15 years and am in some level of pain/discomfort most days but have never been through anything like you have been through 💖 I cannot imagine what it must have been like and think you are amazing 💖 thank you for everything that you do on both of your channels 💖💖 xx
So glad that you are ok today! That sounds absolutely terrifying ❤ Sometimes you have to advocate for yourself…you knew your body best!
Thank you Emily 😊
Oh Victoria 🥺 you’re such a strong and inspiring woman. I felt so emotional with you watching this. Thank you for sharing your story with us 💗
Thank you 😊
That was so emotional Victoria. I remember your vlog when you were in hospital being so positive. I really felt for you when you were explaining the really dark times you had in 2018. I'm sorry I had no idea it was affecting you so badly at that time, your videos were always so positive, but I guess you wouldn't have really felt like vloging on those really bad day's. Take care of yourself and I hope your new romance brings you joy and happiness xxx
Thank you so much Julia 😊
Very intetesting! A lot of what you say aboyt the symptoms you have now and how it makes you feel are similar to Fibromyalgia and ME that I have. I can definitely feel the walking through treacle and feeling your body is different and not yours. I can't walk far though so use a wheelchair/mobility scooter. I was on Gabapentin, terribly spaced out so glad I'm off that! This has been very interesting, thank you! Xx
Thank you for watching and I hope you’re managing well with your conditions too 😊
Hi, I was diagnosed with transverse myelitis 5 years ago. My onset was similar but much quicker than yours. I got out of my chair after watching TV late one nigh with my wife and I noticed a slight inbalance in my walking. I wasn't sure what it was and proceeded to walk about the bedrooom for about an hour getting worse and worse as time went on. I woke my wife up while I was holding onto the walls for balance and when I got to the hospital, my legs gave out. The nurces said I looked like a new born baby deer stumblinf around. The res of my story is similar to yours. I can walk with some pain and weakness. I have a spial stimulator and a pain pump with directed morphine for pain while walking and sitting (especially while sitting).. And now, more than previously, my mental state is dark. Vey dark. I'm hoping someone can write about the mental state to possibly help me....
Thanks for sharing your story, I’m sure it will help many people. I can’t imagine what a scary time it would have been, but I’m glad you’re doing okay now. With regards to the needing to find somewhere to “go” asap, have you considered the DAS pass at Disneyworld? I’m sure it would help and take away anxieties in that respect.
Wow, what a lot to have gone through! Thank you for sharing your story, I'm sure it will help anyone going through or close to someone going through something like this. You are amazing and such a great example/role model. Lots of love from Cheshire ❤️
Thank you Sian 🥰
Oh! Have you tried Lyrica? It may help.
Just saw this
Hey I’m new to your page.. I would like to know what’s the correlation to MS??
Your are amazing thank you for sharing your story. Love watching your UA-cam videos
Thank you 😊
Do you struggle with escalators? The balance thing is a real issue for me and I find I hold on and tend to have my other half stand behind me. 🙈
Hi my mum just had this 4 months ago she is on bed now can’t move or anything they gave her retuximob which made her sensations back little bit but still can not move what do we do please suggest what helped you
Steroids made a big difference I think and once I started to regain some movement I really pushed myself with physiotherapy and that made a huge difference. It’s really really hard but I pushed myself a lot. I hope she makes some recovery soon
What is the difference between transverse myelitis and MS? I think transverse myelitis happens due to an infection of some type and affects the nylon sheaths that cover the nerves in our bodies. Is that correct?
I am suffering from transverse myletis and can it happen again?
I believe it can but I’ve never had a second occurrence in 7 years. The damage from the first time was permanent for me though although I’ve learned to live with it. It does become your new normal over time although I know it feels absolutely horrendous and hopeless the first couple of years. Wishing you well
What medication did u take please
I had steroids (prednisone) Gabapentin and baclofen. I don’t take any of them anymore and had to taper down off them very slowly.
@@VictoriaWitt thanks xx
Can myelitis show up on mri I've had an mri on my head spine and its showing. Demyelinating plaque on my head I'm waiting on neuro for answers I've been waiting a year and symptoms are getting worse.
Hopefully stem cell therapy will be available in the coming years so you will recover.