Thank you for the video! In Germany, there is currently an ongoing study which should answer all those open questions hopefully called: IA-PACS-CFS: a double-blinded, randomized, sham-controlled, exploratory trial of immunoadsorption in patients with chronic fatigue syndrome (CFS) including patients with post-acute COVID-19 CFS (PACS-CFS)
I had MECFS - never diagnosed by a physician, but was looking up chronic fatigue ( which I had ) and came upon all the symptoms of MECFS. Going by most people’s stories, I felt going to a Dr. was pointless. I was under care for other issues and mentioned it a few times, but my symptoms were dismissed. I was bedridden for at least 2 to 3 years. My husband was my caregiver. He was the one who saw me going downhill slowly from an athlete ( swimmer ) to unable to move at all. No pain, just needed to lay flat all the time. And then one day, I felt different. Could not put my finger on it, but I felt like something had changed. And I did improve. I actually completely recovered - still working on getting back to pre illness fitness level. But I am back swimming, walking - really incredible! My opinion - the Covid Vaccine. I had all of them - the only change in my life. Did it disrupt something in my body? No idea, but I am convinced the Covid vaccine did something. I think it was after the third vaccine that my MECFS just ended.
The assumption, or insinuation, with their study, and your summary (perhaps), is that ME/CFS and Long Covid are distinct afflictions. I have not been under the impression yet that that has been clearly established. Have I missed news on this front, or is it still a question? I was a January '20 covid sufferer (presumably) and so would seem to qualify a Long Covid patient. But I have been thinking of Long Covid as just another version of, or instigator of, ME/CFS, that being the umbrella term. Can you clarify? And THANK YOU so much for continuing to inform us!
I have had CFS since 2017. In 2021, I got the Moderna shot and ended up with Myalgic Encephalomyolitis. In the last three years, i have had two different Rheumatologists diagnosed me with Sjogrens Disease. I really don't have dry eyes according to my eye doctor, nor do I have dry mouth . My skin is rather dry, but i call that " winter time!!' In the last few weeks, I have wondered the same thing: Could the bad blood with low ATP in it be treated some how to switch my blood, or clean my blood from the bad ATP. i realize it's a strange question, but it never hurts to ask. More specifically, how to take the Sjogrens markers in my blood and somehow change them....... Just thinking out loud....🤔🤔. Thank you, Dr. Younger for all the research and work that you do helping us out!! God bless you and your family this joyous time of year: Christmas 🎄🎁🎉🌠. Miss Monique 🙂🙏🌷💗
The fatigue that you've had since 2017 could have been due to a number of things.... But by adding the Mo der na shot then this would have increased the stress on your Immune System causing numerous reactions:-(
Thank you, as always, for all the ways you help pwME (& pwLC) understand the unfolding research. I developed ME (& dysautonomia, OH, MCAS, etc) following an adverse reaction to my second booster in May 2022. I've had 2 half-day full remission events after *very* large blood draws for tests, & one significant improvement. My baseline actually improved after one of the large blood draws/remission events. I assume this must be related? Similar mechanisms?
I have had at least 6 10 pass ozone treatments. This is different from what you are talking about. I don't think it helped my ME/CFS syndrome, but it did clear up my toe fungus.
I wonder if Spike Protein-S can be filtered out now that the generation of it is programmed into cell DNA . Of course the US administration doesn't wish to be held accountable.
Have you read the Immunoadsorption study by a different german group? They also had 20 patients and they looked at the autoantibodies. It looks like my original comment got removed because of the link, so the study is titled Efficacy of repeated immunoadsorption in patients with post-COVID myalgic encephalomyelitis/chronic fatigue syndrome and elevated β2-adrenergic receptor autoantibodies: a prospective cohort study By Stein et al
Thanks, I will check it out that paper. I'm not sure about the deleted comment. I have light comment blocking on to keep out extreme inflammatory language, but I didn't think it blocked because of links. - Jarred Younger
@@youngerlab I'm pretty sure UA-cam began auto-blocking any and all links in comments that link outside of UA-cam a few years ago. It's not something channel owners can set, I think it was to squelch all the bots posting links to spam sites.
Let’s be aware plenty of people in the ME/CFS and Long Covid forums online have had mixed results with this treatment. Many had no improvement, some had improvements, and a small number felt worse. My advice would be to have a search for those groups join them and see what they are saying
I would like to see a study using apheresis filtering alpha 1 adrenergic receptor autoantibodies. Testing for this is not available in the US - not surprising to me, but I think my daughters and I have symptoms related to antagonists to these receptors. Many people with ME have severe eye muscle pain and visual accommodation problems. This symptom alone caused me to have to drop out of grad school 30 years ago. These receptors are highly concentrated in the eye - related to focus. Dr Blair Grubb did a small study on POTS patients - and found 89% of those studied had these autoantibodies. He tested for these at CellTrend in Germany.
How can I get my providers to consider Aphoresis? I have tried IVIG - it was not as good as I had hoped but it did lead to autonomic symptom improvements before insurance denied it again.....I had been on it for years....I have autoantibodies re FGFR3 for SFN (autoimmune-mediated SFN), and separately a CFS/ME dx, and separately a Long Covid w/Microclots, and separately MCAS....multiple providers refuse Aphoresis over years stating it is far too dangerous. I don't view it to be as such even compared to many of the other pharmaceuticals I am on....where can I find a solid good argument to get help to try this please? Also - I have an ADRA2A receptor mutation (whole genome sequencing) - what are the tests for functionality of beta 1 and beta 2 rc? Thanks, as always, for your work - and wanting to notate again here - I am completely interested in participating as a subject in your research. I believe my case represents a compelling research set of conditions also involving genetics. I also have Medicare now and that may be helpful in some way. And dually eligible for Medicaid.
Years ago I was anxiously awaiting a ME/CFS person having all their blood replaced with healthy donor blood because if its really "in the blood" it seems such a simple hypothesis to test. Was this ever tried in the end?
I have long coivd and I live in Chehalis Washington is there some place close by me to get this done ! I had coivd from 2019 to 2021 I ended up in ICU my doctor would give me infusion and it help unfortunately he retired iam always in pain it hard to work out I was so healthy until I got coivd
It makes me so upset that healthy people got sick after covid. They say pineapples, natto, onion deactivate and discharge spike protein of covid. Hope you try n see. Decide to get well! 👍
The possibility that there is an autoimmune component in at least some cases of ME/CFS is interesting. The lack of definitive answers is always frustrating though. I know it's difficult to research because of the many subtypes. I have ME/CFS + many other health problems, most of which are a mystery but many seem to be neurological. I keep getting puzzling EBV panel results as well. Even my doctors who have a relatively good understanding of CFS are confused. Based on a lot of my symptoms and test results, it would make sense if I had an autoimmune disease. I keep thinking Sjögren's syndrome would explain so much. My ANA has always been negative though and even the Sjögren's antibody tests were negative.
There are many different apheresis protocols. One of them is purported to remove viral spike proteins. This could be helpful because the spike proteins can drastically outlast the presence of the actual viri. So, it is possible some apheresis protocols could fix the problem, but I have not reviewed the data supporting this spike protein removal protocol. - Jarred Younger
@@youngerlabout of interest there are a number of ME/CFS and LC sufferers who are getting some significant improvements in their symptoms by using a nicotine patch protocol. I’m part of a Facebook support group for this and I’ve seen some drastic improvements reported.
Attaches to ace 2 receptor and replicates. Cytokine storm, controls bp, cholestrol etc. Metformin,berberine, telmisartan etc been researched to unbind spike. How bout sr9009
Consider my 9 word summary......... Electron replete, healthy cells are irreducible. Disease is oxidation. Anti-inflammatory/anti-oxidant/ electron donor are synonyms. Being on fire hurts, disease hurts. They find inflammation in most all diseases, pain is one of its symptoms. My latest question is do they find anything else that causes pain in disease other than inflamed tissues. When I studied chemistry there was reduction and oxidation and very little else.
@@angelbryan98 Those specific ones I'm unsure of, but yes some antibodies actually work for us, used as a tool so. i.e like keys for switches to turn on and off functions or gates etc, this happens especially with antibodies that target receptors. In a diseased person the levels can be too high and can overwhelm the receptors. They do seem to get out of hand in some cases. Like the last thing we need is an antibody attacking the receptors of the adrenergic or the muscarinic systems as they are so fundamental to being a functioning animal or person. I can see why dysautonomia and POTS like diseases would start under those conditions. Then there's other more commonly known about antibodies that are formed to look for foreign antigens on viruses. Some of our own proteins may have a very similar shape on them to the foreign body (You may already known them as an epitope or antigen), so the immune system often under stress starts attacking both the viral proteins and our own proteins. a form of Friendly Fire known as 'molecular mimicry' or "co-reactivity'. which is actually common during an infection in everyone. but afterwards it normally turns off. But in some unlucky people they have these antibodies that carry on attacking non stop the similar protein antigen. Which of course is classic autoimmunity. Maybe someone else knows more about how to stop it
Would an aab underpinning lend itself to, at times, extreme fluctuation of symptoms or would you expect to feel more consistently ill? It boggles my mind how some days I feel nearly symptom free and other days I can hardly leave bed. It doesn't appear to be tied to exertion either. I am curious about how aabs are manufactured...is it cyclical, wax/wan cycles?
Well for me I was eventually diagnosed back in 2001, through private toxicology tests that demonstrated that I was infact suffering from Benzene along with V.O.Cs exposure & not somatisation, which is what the main stream Drs were informing that it was
I replied, but with a link, so it got removed. Try Mint Medical Center in Oakland, CA, or Maxwell clinic in Brentwood, TN. But anywhere in the US will be very expensive. You might consider Holistic Bio Spa in Puerto Vallarta, Mexico at half the cost. Make a vacation out of it. There are great doctors and researchers around the world. We (USA) don't have a monopoly on that. Just sayin'.
Is there ever a possibility that something that was removed was actually keeping a different molecule from being able to spread faster ? Could it trigger something to accidentally regrow or spread back faster. Then with less resistance could it overload our system?
Whats about patients with MCAS? There maybe its dangerous to centrifuge the blood because mast cells can degranulate and make the situation more worse after blood is back to the body? 🙏 Why cannot it be used in severe patients like whitney and i‘m including me…
Thanks - I wasn't aware of any microfilaria being detected with regularity in North America (though the testing isn't regularly done, of course). - Jarred Younger
@ I'm pretty sure I found that info on the CDC website when I was researching microfilaria species. I was using their database of microscopic pictures for people to use to help identify parasites. If not there it would have been some website that identified tropical zoonotic diseases internationally. I was looking up what parasites could be found and where.
Will come back after treatment. Pretty sure its lyme and doing these treatments would have to be nonstop and wont change anything. Need real things to detox bacteria out of body not expensive treatments
Lyme can trigger dysautonomia and ME/CFS and still persist even when the infection is fully cleared. That's why ME/CFS is considered a post-viral disorder in many patients. Be wary of where you get lab testing for Lyme. False positives are notorious in non-CDC approved labs, even in highly developed countries like Germany and Australia. A highly specialised doctor to analyse and determine the results is critical. There are many, many people falsely diagnosed with chronic Lyme due to low quality labs and unqualified doctors.
@@Tinyteacher1111 it's very risky and complicated. the pain of the procedure itself is less invasive than having to completely obliterate your immune system and start over.
Thank you for posting. While this stuff is way beyond, me it looks like promising results. Will check back for any update on statistics of self-reporting results. Question: For things like inflammation or auto immunity disease, and really many other pathologies, while maybe not always an enduring or even verifiable solution, due to it being based simply on molecule size, as you mention, do you think apheresis could be used as an effective diagnostic tool, i.e. to confirm/exclude diagnostic hypothesis by looking at either self-reported changes post-apheresis procedure, actual measurements of changes in the blood chemistry or elsewhere, or some other change in quantifiable, measurable data of body composition or function, at some point in time after the filtering? Thanks again.
@@guidodenbroeder935what are your sources? What causes ME? Should one take antivirals even though they have no herpes symptoms? For some people with different herpes and ME symptoms, antivirals seem to work
There is an abundance of other evidence for this treatment, just no RCTs. Mostly because funding hasn’t been forthcoming until very recently, and it is an extremely expensive trial to run. It’s been used as standard treatment for immune-mediated ME/CFS and FM in Germany and Switzerland for decades because so there’s a lot of evidence that’s been generated from clinical practice.
There is currently a double-blinded randomized study in Germany by the charité (the most renowned clinic here), results are expected in Q1/2025 if I remember correctly.
I think plasmapheresis usually involves albumin replacement? Spike protein binds to albumin, impairing its normal function. Albumin does more than just regulate oncotic pressure.
@@youngerlab I think there's now also the possibility of recombinant albumin - which might be 'cleaner'. Another interesting thing I stumbled across is that viscose dialysis tubing can release sulfane sulfur [Toohey & Cooper (2014) Thiosulfoxide (Sulfane) Sulfur: New Chemistry and New Regulatory Roles in Biology].
What the heck?! As someone who has had ME/CFS for 27 years, I am glad someone is providing us with information and possible treatments! At least it's something!! I fins it inappropriate that you would give a negative comment so a scientist who is trying to help us.
I find it inappropriate that you can’t just skip this video if it doesn’t feel right for you and let others decide for themselves. Aphaeresis has been used in other infections like Babesia and worked.
@@oliviajenkinson7281scientists should not recommend treatments. That is for your personal doctor to say, not a scientist on yt. Yes, I’m very severely ill in case you need to know.
@@Luigisalibiscientists should not recommend treatments. That is for your personal doctor to say, not a scientist on yt. Yes, I’m very severely ill in case you need to know.
@Linnette-xb2bc and how many personal doctors do you know who are offering treatments for ME/CFS ?! At least someone is trying to find answers for us. You don't have to listen to anyone you don't want to but the information Jarrod is offering could be extremely valuable for someone to take to their doctor to discuss. The treatment he is discussing in this video would not be possible to obtain without a consultation with a doctor first and then be conducted in a safe clinical setting. You can't just go do it in your own backyard. Jarrod is just providing us with information to take to our doctor.
My daughter takes bromelain for her allergies, but I'm concerned it might not be such a good idea after watching an interview by Michael Lustgarten of Geert Schmid-Schöenbein on 'aging by auto-digestion'. Basically, as we age more and more of our own digestive enzymes wind up circulating in the blood and that's ... not good since there are proteins you don't want broken down. There was a small human study showing bromelain is orally bioavailable.
I do have some concerns that we should tell people to take breaks with enzymes like nattokinase, serrapeptase or lumbrokinase. It is quite conceivable that the enzymes could break down our body's proteins that we don't want to break down. I was told to take breaks to protect blood vessels. I took 7-10 day-long breaks. But somebody real smart that I see in a few quality FB groups said she has concerns about the integrity of the gut. I decided to cut way back on the *frequency of my periods spent on the proteolytic enzyme and I reduced that down to only taking it for a couple of days (for the length of time I spend taking my serrapeptase). Mileage may vary; and maybe I am not in as bad of shape as someone else, so I make different decisions. Initially after CoViD round *one* I didn't hold back so much on dosing serrapeptase and who knows, that may have been a good thing. I did recover from Round One of Long CoVid. (Taking MANY nutritional supplements, also). CoVid Round Two, which was then followed by a bad case of RSV, did not resolve like Round One. (I was already an MCAS and ME patient for years.)
ME is not an autoimmune disease. The 'autoantibodies' are needed because there is a pathogen which causes inflammation; after the acute phase it is in the tissue. Taking them out would be very risky. Fortunately 'ME/CFS' is not ME but without further examination it is unknown what sort of disease the person does have.
@@jakob7612 You get tested for ME, for instance SPECT or PET will show if you have it or not. A disease 'ME/CFS' on the other hand doesn't really exist, so there is no test for it. It's a fashion diagnosis for unexplained fatigue and malaise.
Thank you for the video! In Germany, there is currently an ongoing study which should answer all those open questions hopefully called: IA-PACS-CFS: a double-blinded, randomized, sham-controlled, exploratory trial of immunoadsorption in patients with chronic fatigue syndrome (CFS) including patients with post-acute COVID-19 CFS (PACS-CFS)
CFS, however, is not ME, nor is it covid.
@@guidodenbroeder935 They are all very similiar
It is very interesting. Is this the same study that Jarred is referring to ? Also how could one get the information from it please, thank you.
@@guidodenbroeder935 I think that they are all similiar
I had MECFS - never diagnosed by a physician, but was looking up chronic fatigue ( which I had ) and came upon all the symptoms of MECFS.
Going by most people’s stories, I felt going to a Dr. was pointless. I was under care for other issues and mentioned it a few times, but my symptoms were dismissed.
I was bedridden for at least 2 to 3 years. My husband was my caregiver.
He was the one who saw me going downhill slowly from an athlete ( swimmer ) to unable to move at all. No pain, just needed to lay flat all the time.
And then one day, I felt different. Could not put my finger on it, but I felt like something had changed.
And I did improve.
I actually completely recovered - still working on getting back to pre illness fitness level.
But I am back swimming, walking - really incredible!
My opinion - the Covid Vaccine. I had all of them - the only change in my life.
Did it disrupt something in my body? No idea, but I am convinced the Covid vaccine did something.
I think it was after the third vaccine that my MECFS just ended.
Thankyou for your continued support for us. Enjoy your Christmas time off. 🎉
I just finished 5 plasmapheresis treatments for chronic fatigue possibly due to antibodies and unfortunately had no changes.
The assumption, or insinuation, with their study, and your summary (perhaps), is that ME/CFS and Long Covid are distinct afflictions. I have not been under the impression yet that that has been clearly established. Have I missed news on this front, or is it still a question? I was a January '20 covid sufferer (presumably) and so would seem to qualify a Long Covid patient. But I have been thinking of Long Covid as just another version of, or instigator of, ME/CFS, that being the umbrella term. Can you clarify? And THANK YOU so much for continuing to inform us!
I have had CFS since 2017. In 2021, I got the Moderna shot and ended up with Myalgic Encephalomyolitis. In the last three years, i have had two different Rheumatologists diagnosed me with Sjogrens Disease. I really don't have dry eyes according to my eye doctor, nor do I have dry mouth . My skin is rather dry, but i call that " winter time!!'
In the last few weeks, I have wondered the same thing:
Could the bad blood with low ATP in it be treated some how to switch my blood, or clean my blood from the bad ATP.
i realize it's a strange question, but it never hurts to ask.
More specifically, how to take the Sjogrens markers in my blood and somehow change them.......
Just thinking out loud....🤔🤔.
Thank you, Dr. Younger for all the research and work that you do helping us out!!
God bless you and your family this joyous time of year: Christmas 🎄🎁🎉🌠.
Miss Monique 🙂🙏🌷💗
ME is caused by enteroviruses.
The fatigue that you've had since 2017 could have been due to a number of things.... But by adding the Mo der na shot then this would have increased the stress on your Immune System causing numerous reactions:-(
Was it soon after you noticed? Like days or a week or 2?
Thanks Jarred.
Thank you, as always, for all the ways you help pwME (& pwLC) understand the unfolding research. I developed ME (& dysautonomia, OH, MCAS, etc) following an adverse reaction to my second booster in May 2022. I've had 2 half-day full remission events after *very* large blood draws for tests, & one significant improvement. My baseline actually improved after one of the large blood draws/remission events. I assume this must be related? Similar mechanisms?
A booster doesn't cause ME. Enteroviruses do.
The experimental so-called medical procedure which keeps on giving:-(
I have had at least 6 10 pass ozone treatments. This is different from what you are talking about. I don't think it helped my ME/CFS syndrome, but it did clear up my toe fungus.
At least you got something out of it then. Your comment did get a chortle out of me.
I think its like ozone eboo
Thank you Dr. Younger
I already tried 5 sessions of plasmapheresis and it did nothing.
I wonder if Spike Protein-S can be filtered out now that the generation of it
is programmed into cell DNA . Of course the US administration doesn't wish to be held accountable.
What kind of plasmapheresis have you done?
Have you read the Immunoadsorption study by a different german group? They also had 20 patients and they looked at the autoantibodies. It looks like my original comment got removed because of the link, so the study is titled
Efficacy of repeated immunoadsorption in patients with post-COVID myalgic encephalomyelitis/chronic fatigue syndrome and elevated β2-adrenergic receptor autoantibodies: a prospective cohort study
By Stein et al
Thanks, I will check it out that paper. I'm not sure about the deleted comment. I have light comment blocking on to keep out extreme inflammatory language, but I didn't think it blocked because of links. - Jarred Younger
@@youngerlab I'm pretty sure UA-cam began auto-blocking any and all links in comments that link outside of UA-cam a few years ago. It's not something channel owners can set, I think it was to squelch all the bots posting links to spam sites.
The best time of the week!
I would love you to try this on Whitney Dafoe. A go fund me would work.
I will mention it and see if they have tried it. - Jarred Younger
Why?
Let’s be aware plenty of people in the ME/CFS and Long Covid forums online have had mixed results with this treatment. Many had no improvement, some had improvements, and a small number felt worse.
My advice would be to have a search for those groups join them and see what they are saying
It’s not a homogenous population…the study specifically looked for patients with indicators of autoimmune sub-type
@@rachellemurray2696 Yes but most people cant access those tests, hence they have to look at commonalities instead and a bit of luck
Thank you for your work. Long COVID has crippled me and I need any help I can get.
Excellent discussion thank you!
The Red Book on top of your cabinet. Nice.
I would like to see a study using apheresis filtering alpha 1 adrenergic receptor autoantibodies. Testing for this is not available in the US - not surprising to me, but I think my daughters and I have symptoms related to antagonists to these receptors. Many people with ME have severe eye muscle pain and visual accommodation problems. This symptom alone caused me to have to drop out of grad school 30 years ago. These receptors are highly concentrated in the eye - related to focus. Dr Blair Grubb did a small study on POTS patients - and found 89% of those studied had these autoantibodies. He tested for these at CellTrend in Germany.
any information on filtering out igG4?
After the mRNA Covid vaccine many people are suffering similar symptoms to Long Covid.
The eye muscle pain is due to a pre-existing focal difference between the two eyes.
You could email Cell Trend in Germany and find out if they have a US distributor, they respond really quickly x
Will hbot work for long c or cfs?
Yes HBOT along with other protocols will help, but it won't be a quick fix
How can I get my providers to consider Aphoresis? I have tried IVIG - it was not as good as I had hoped but it did lead to autonomic symptom improvements before insurance denied it again.....I had been on it for years....I have autoantibodies re FGFR3 for SFN (autoimmune-mediated SFN), and separately a CFS/ME dx, and separately a Long Covid w/Microclots, and separately MCAS....multiple providers refuse Aphoresis over years stating it is far too dangerous. I don't view it to be as such even compared to many of the other pharmaceuticals I am on....where can I find a solid good argument to get help to try this please? Also - I have an ADRA2A receptor mutation (whole genome sequencing) - what are the tests for functionality of beta 1 and beta 2 rc? Thanks, as always, for your work - and wanting to notate again here - I am completely interested in participating as a subject in your research. I believe my case represents a compelling research set of conditions also involving genetics. I also have Medicare now and that may be helpful in some way. And dually eligible for Medicaid.
Nowhere. It's far too risky. Further, safe treatments exist for ME. CFS/ME is not ME though.
I heard they do it in Mexico
Years ago I was anxiously awaiting a ME/CFS person having all their blood replaced with healthy donor blood because if its really "in the blood" it seems such a simple hypothesis to test. Was this ever tried in the end?
I have long coivd and I live in Chehalis Washington is there some place close by me to get this done ! I had coivd from 2019 to 2021 I ended up in ICU my doctor would give me infusion and it help unfortunately he retired iam always in pain it hard to work out I was so healthy until I got coivd
It makes me so upset that healthy people got sick after covid.
They say pineapples, natto, onion deactivate and discharge spike protein of covid.
Hope you try n see.
Decide to get well! 👍
This sounds promising although it would treat symptoms but not the cause.
The possibility that there is an autoimmune component in at least some cases of ME/CFS is interesting. The lack of definitive answers is always frustrating though. I know it's difficult to research because of the many subtypes.
I have ME/CFS + many other health problems, most of which are a mystery but many seem to be neurological. I keep getting puzzling EBV panel results as well. Even my doctors who have a relatively good understanding of CFS are confused. Based on a lot of my symptoms and test results, it would make sense if I had an autoimmune disease. I keep thinking Sjögren's syndrome would explain so much. My ANA has always been negative though and even the Sjögren's antibody tests were negative.
i thought part of the problem what the protein left behind by different virus, this would not treat the cause but the symptoms ?
There are many different apheresis protocols. One of them is purported to remove viral spike proteins. This could be helpful because the spike proteins can drastically outlast the presence of the actual viri. So, it is possible some apheresis protocols could fix the problem, but I have not reviewed the data supporting this spike protein removal protocol. - Jarred Younger
@@youngerlabout of interest there are a number of ME/CFS and LC sufferers who are getting some significant improvements in their symptoms by using a nicotine patch protocol. I’m part of a Facebook support group for this and I’ve seen some drastic improvements reported.
@@Shelleysnailwhat protocol?
@@ShelleysnailI heard about this from someone. I didn’t know if it was real but I guess it is.
@@youngerlabcan natto remove the spike proteins
I know this technology is available already. I’m not sure if it’s available for this type if thing, but it may save my 38 year-old son’s life!
Is this the same thing as ozone eboo?
Attaches to ace 2 receptor and replicates. Cytokine storm, controls bp, cholestrol etc. Metformin,berberine, telmisartan etc been researched to unbind spike. How bout sr9009
Consider my 9 word summary......... Electron replete, healthy cells are irreducible. Disease is oxidation.
Anti-inflammatory/anti-oxidant/ electron donor are synonyms. Being on fire hurts, disease hurts. They find inflammation in most all diseases, pain is one of its symptoms. My latest question is do they find anything else that causes pain in disease other than inflamed tissues. When I studied chemistry there was reduction and oxidation and very little else.
Assuming your summary is correct, how do we treat it?
By electrons, do you mean electrolytes?
Could it be poor glymphatic system drainage ? (it is a puzzle)
Does every MECFS and Long COVID patient has adrenergic auto antibodies?
I don’t think so as there was a Swedish double cohort study that found only a subgroup of ME/CFS have higher levels of those specific antibodies
@brobinson8614 Higher levels? Does that mean everybody has them?
30-40% (have antibodies outside of the normal range)
@@angelbryan98 Those specific ones I'm unsure of, but yes some antibodies actually work for us, used as a tool so. i.e like keys for switches to turn on and off functions or gates etc, this happens especially with antibodies that target receptors. In a diseased person the levels can be too high and can overwhelm the receptors. They do seem to get out of hand in some cases. Like the last thing we need is an antibody attacking the receptors of the adrenergic or the muscarinic systems as they are so fundamental to being a functioning animal or person. I can see why dysautonomia and POTS like diseases would start under those conditions.
Then there's other more commonly known about antibodies that are formed to look for foreign antigens on viruses. Some of our own proteins may have a very similar shape on them to the foreign body (You may already known them as an epitope or antigen), so the immune system often under stress starts attacking both the viral proteins and our own proteins. a form of Friendly Fire known as 'molecular mimicry' or "co-reactivity'. which is actually common during an infection in everyone. but afterwards it normally turns off. But in some unlucky people they have these antibodies that carry on attacking non stop the similar protein antigen. Which of course is classic autoimmunity.
Maybe someone else knows more about how to stop it
Would an aab underpinning lend itself to, at times, extreme fluctuation of symptoms or would you expect to feel more consistently ill? It boggles my mind how some days I feel nearly symptom free and other days I can hardly leave bed. It doesn't appear to be tied to exertion either. I am curious about how aabs are manufactured...is it cyclical, wax/wan cycles?
Well for me I was eventually diagnosed back in 2001, through private toxicology tests that demonstrated that I was infact suffering from Benzene along with V.O.Cs exposure & not somatisation, which is what the main stream Drs were informing that it was
Sounds like the design of this study was severely lacking. What a shame. But good to know researcers are looking into this.
Does anyone know where in the US aphersis can be done for long covid? Does anyone have any experience with this? Thank you
I replied, but with a link, so it got removed. Try Mint Medical Center in Oakland, CA, or Maxwell clinic in Brentwood, TN. But anywhere in the US will be very expensive. You might consider Holistic Bio Spa in Puerto Vallarta, Mexico at half the cost. Make a vacation out of it. There are great doctors and researchers around the world. We (USA) don't have a monopoly on that. Just sayin'.
@gregm1733 thank you very much for the information. May I ask if you have any experience with these places?
Will this work for the vaxed? SV40 is just one problem.
Is there ever a possibility that something that was removed was actually keeping a different molecule from being able to spread faster ? Could it trigger something to accidentally regrow or spread back faster. Then with less resistance could it overload our system?
Having a complete blood replacement from a healthy donor could help answer that
Whats about patients with MCAS? There maybe its dangerous to centrifuge the blood because mast cells can degranulate and make the situation more worse after blood is back to the body? 🙏
Why cannot it be used in severe patients like whitney and i‘m including me…
I think that basically Mast Cell Activation Syndrome & the long version of the virus or shot are causing a similiar effect
Microfilaria. 3 species endemic in North America, but never looked for, tested or diagnosed.
Thanks - I wasn't aware of any microfilaria being detected with regularity in North America (though the testing isn't regularly done, of course). - Jarred Younger
@ I'm pretty sure I found that info on the CDC website when I was researching microfilaria species. I was using their database of microscopic pictures for people to use to help identify parasites. If not there it would have been some website that identified tropical zoonotic diseases internationally. I was looking up what parasites could be found and where.
Will come back after treatment. Pretty sure its lyme and doing these treatments would have to be nonstop and wont change anything. Need real things to detox bacteria out of body not expensive treatments
Lyme can trigger dysautonomia and ME/CFS and still persist even when the infection is fully cleared. That's why ME/CFS is considered a post-viral disorder in many patients. Be wary of where you get lab testing for Lyme. False positives are notorious in non-CDC approved labs, even in highly developed countries like Germany and Australia. A highly specialised doctor to analyse and determine the results is critical. There are many, many people falsely diagnosed with chronic Lyme due to low quality labs and unqualified doctors.
In ICU the give me Remdesiver and Insulin
Was bone marrow transplantation ever tried as a cure for ME/CFS?
Isn’t that extremely painful?
@@Tinyteacher1111 it's very risky and complicated. the pain of the procedure itself is less invasive than having to completely obliterate your immune system and start over.
Sounds like it could be helpful, something to assist at least until the med beds are released.
Thank you for posting. While this stuff is way beyond, me it looks like promising results. Will check back for any update on statistics of self-reporting results. Question: For things like inflammation or auto immunity disease, and really many other pathologies, while maybe not always an enduring or even verifiable solution, due to it being based simply on molecule size, as you mention, do you think apheresis could be used as an effective diagnostic tool, i.e. to confirm/exclude diagnostic hypothesis by looking at either self-reported changes post-apheresis procedure, actual measurements of changes in the blood chemistry or elsewhere, or some other change in quantifiable, measurable data of body composition or function, at some point in time after the filtering? Thanks again.
I'm responding to nattokinaise enzyme.
Like you have said before, most of the EBV is located in the tissue - not in the blood. It's the reactivating EBV that is causing my M.E.
Wonder if hbot would reach the tissue?
EBV hides in B-cells and dendritic cells. ME is however not caused by EBV.
@@guidodenbroeder935what are your sources? What causes ME? Should one take antivirals even though they have no herpes symptoms?
For some people with different herpes and ME symptoms, antivirals seem to work
Forgive my skepicism but the weakness of evidence leaves much room for suspecting that this is 'snake oil'.
There is an abundance of other evidence for this treatment, just no RCTs. Mostly because funding hasn’t been forthcoming until very recently, and it is an extremely expensive trial to run. It’s been used as standard treatment for immune-mediated ME/CFS and FM in Germany and Switzerland for decades because so there’s a lot of evidence that’s been generated from clinical practice.
There is currently a double-blinded randomized study in Germany by the charité (the most renowned clinic here), results are expected in Q1/2025 if I remember correctly.
I think plasmapheresis usually involves albumin replacement? Spike protein binds to albumin, impairing its normal function. Albumin does more than just regulate oncotic pressure.
Right, the straightforward plasma exchange protocols involve donated albumin. - Jarred Younger
@@youngerlab I think there's now also the possibility of recombinant albumin - which might be 'cleaner'. Another interesting thing I stumbled across is that viscose dialysis tubing can release sulfane sulfur [Toohey & Cooper (2014) Thiosulfoxide (Sulfane) Sulfur: New Chemistry and New Regulatory Roles in Biology].
I find it inappropriate that you recommend any treatment.
What the heck?! As someone who has had ME/CFS for 27 years, I am glad someone is providing us with information and possible treatments! At least it's something!! I fins it inappropriate that you would give a negative comment so a scientist who is trying to help us.
I find it inappropriate that you can’t just skip this video if it doesn’t feel right for you and let others decide for themselves. Aphaeresis has been used in other infections like Babesia and worked.
@@oliviajenkinson7281scientists should not recommend treatments. That is for your personal doctor to say, not a scientist on yt. Yes, I’m very severely ill in case you need to know.
@@Luigisalibiscientists should not recommend treatments. That is for your personal doctor to say, not a scientist on yt. Yes, I’m very severely ill in case you need to know.
@Linnette-xb2bc and how many personal doctors do you know who are offering treatments for ME/CFS ?! At least someone is trying to find answers for us. You don't have to listen to anyone you don't want to but the information Jarrod is offering could be extremely valuable for someone to take to their doctor to discuss. The treatment he is discussing in this video would not be possible to obtain without a consultation with a doctor first and then be conducted in a safe clinical setting. You can't just go do it in your own backyard. Jarrod is just providing us with information to take to our doctor.
Mean bone marrow
Big doses of Bromelain and Nattokinase, just break the proteins down.
My daughter takes bromelain for her allergies, but I'm concerned it might not be such a good idea after watching an interview by Michael Lustgarten of Geert Schmid-Schöenbein on 'aging by auto-digestion'. Basically, as we age more and more of our own digestive enzymes wind up circulating in the blood and that's ... not good since there are proteins you don't want broken down. There was a small human study showing bromelain is orally bioavailable.
I do have some concerns that we should tell people to take breaks with enzymes like nattokinase, serrapeptase or lumbrokinase. It is quite conceivable that the enzymes could break down our body's proteins that we don't want to break down. I was told to take breaks to protect blood vessels. I took 7-10 day-long breaks. But somebody real smart that I see in a few quality FB groups said she has concerns about the integrity of the gut. I decided to cut way back on the *frequency of my periods spent on the proteolytic enzyme and I reduced that down to only taking it for a couple of days (for the length of time I spend taking my serrapeptase). Mileage may vary; and maybe I am not in as bad of shape as someone else, so I make different decisions.
Initially after CoViD round *one* I didn't hold back so much on dosing serrapeptase and who knows, that may have been a good thing. I did recover from Round One of Long CoVid. (Taking MANY nutritional supplements, also).
CoVid Round Two, which was then followed by a bad case of RSV, did not resolve like Round One.
(I was already an MCAS and ME patient for years.)
I think that there has been research that people who are low in D3 are more likely to develope virus inflammation problems
Direct IV ozone gas. I ran on a stairmill after 2 months. ua-cam.com/video/Ev12tFdkmEY/v-deo.html
Permanent results?
ME is not an autoimmune disease. The 'autoantibodies' are needed because there is a pathogen which causes inflammation; after the acute phase it is in the tissue. Taking them out would be very risky. Fortunately 'ME/CFS' is not ME but without further examination it is unknown what sort of disease the person does have.
Microfilaria. 3 species endemic in North America, but never looked for, tested or diagnosed.
How do you differentiate between ME and ME/CFS?
@@jakob7612 You get tested for ME, for instance SPECT or PET will show if you have it or not. A disease 'ME/CFS' on the other hand doesn't really exist, so there is no test for it. It's a fashion diagnosis for unexplained fatigue and malaise.
@@guidodenbroeder935 Your theory doesn't really make sense to me.
@@jakob7612 It's not a theory.
USE HIJAMA
Guess what. No insurance is going to pay so it’s pointless. It will never be available. Keep playing with yourself.
There is a big World beyond USA.
@@nino2121 True. Wishing lately that I was out of the USA but I am stuck.