FAMOUS AUTHOR GOING BLIND / TWO YEAR UPDATE / MY BLINDNESS & EYE DISEASE
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- Опубліковано 28 чер 2024
- Wherein our hero Durfee updates the viewers and fans on his degenerative eye disease. #Blindness #Reading #BookTube
original "I'm Going Blind Video" • I'M GOING BLIND! The T...
explaining my eye disease video • MY BLINDNESS / AN UPDATE
Hearing that you are in the ICU right now and on a ventilator - I hope you can make a full recovery and be able to read comments again to know we all appreciate your passion so much and what you have brought to book tube. Your wealth of knowledge and experience reading is my go to for an opinion on a book I’m thinking of picking up. Praying all is well Brian.
Adding links to your videos??!! You sure you’re okay?!! Haha! So happy you posted an update and hope things continue to stay positive for you.
I sufffer from Retinitis pigmentosa, and was forced to leavemy career in finance at 58. Now at 60, I use a 47 inche TV for my monitor, and I can no lonber read without major magnification. I have to read audio books. I can see well enought to talk safely outside on sidewalks and can cross the street safely.
My left eye is 20/400, my right is 20/140 and those are corrected. My visual field is under 10 degrees. I can still cook and clean and take care of myself with some help from my wife. I can understand what you are going through because I've been dealing with similar problems for decades, and they are an will keep getting worse.
What I can say is that if it has to happen, I'd rather go through this now in 2024 than even 20 years ago. There's so much to be thankful for and so much to look forward to. So don't dispare. Even as my sight demishes, I still think the best is yet to come.
Thanks so much for your insight. I will probably be trying bigger monitors and such soon
My mom also has RP. She was diagnosed when I was 15. I’m now 40, and she’s got basically a pin point of sight left in the left eye. Things have gotten SO much better in the last 10 years. She’s extremely independent, and still is in better shape than both my and my dad. 😂 She can do loads I can’t, because of my MS. I tell people the only thing she doesn’t do is drive. They still travel, and she still cooks and does things with friends and goes to the movies and listens to audiobooks and just a full life in general. Positivity is her middle name, and I’ve learned so much about how to enjoy life and laugh at things that happen with my MS. She’s the strongest person I know. All the best to both of you! ❤️
I loved the Forgetting Moon and I'm halfway through Blackest Heart (written by Brian Lee Durfee and published by Simon and Schuster Saga Press), and I am so glad you can still write because I don't want Lonesome Crown to be the end when I finish that! After 3 good ass books I know you have a frickin BANGER left in you man, I'm waiting for it
Thanks for the update, and I’m so glad you’re able to continue with your passions of reading and writing-stay strong brothah!
I sympathize with you man. I got Chron’s Disease almost 30 years ago and never realized there was a very small percentage that it can spread to your eyes. LUCKY ME…My eyes started going south about 10 years ago and I’m legally blind now. (glaucoma on top of that) My right eye is pretty much shot. Left is hanging in there. My problem is light. All day I’m in sunglasses. Can’t read books because the page whiteness cooks my eyes. Thank God for Audio Books! I listen to 5-6 a month these days. Lots of stuff you have recommended btw. Hang in there brother. I’m just happy to be here!
Thanks for the update Brian! Thinking of you and wishing you well.
So glad that you're still able to continue reading and find it soothing! My mother has to get frequent eye injections and I just can't imagine - they'd have to strap me down too!
For your computer, use the high contrast mode for everything. Get rid of that white background. Darke background with white text will help a lot with that eye strain. try it adn see if it helps.
I have seen the other videos regarding your eyes, and they're heartbreaking. Like many others, I am excited that you are still writing and very much look forward to the next adventure you take us on. Cheers, and well wishes from Vancouver, BC.
Glad too see you recovered from the ICU 💪
There are plenty of computer programs that can type what you talk, then he could write more without having to look at the screen as much. Can look at the screen to fix any errors from the speech to text software.
Thanks for updating us. Glad to hear that reading is a kind of a therapy for your eyes!
Hang in there Brian. This may sound strange but in the last 3 years a became a fragrance collector. I buy mostly vintage. I even wear them to bed while reading or doing audiobooks..it's so calming. Some day get your nose on some great fragrances when you want beautiful art. Sorry if that sounds odd but I fell in love with fragrance. I hope it gets better for you. I love your books.
Wish you the best, love your content swan song was such a amazing book thank you for recommending it on channel
Sorry man,your channel is a complete joy and I look forward to your reviews and past reviews. Your enthusiasm for books is great and makes me want to read even more. When I'm out looking for book and if something sounds interesting I usually find you reviewed it and its enough for me. God bless!
Thank you for the update. Very glad to hear that you can still read and write. Love your books and wish you the best! 🍻
I usually am a lurker on your videos but want to say that I appreciate that you share this information. I am also going blind due to a degenerative retinal disease, retinitis pigmentosa. I think a lot of people take good vision for granted and it's important to know this can happen to anyone and that those of us who are losing our vision are not alone. It's great that reading is actually soothing to your eyes. I had to give up printed books a while ago, but have found I get more reading done now in audio than I was able to with actual books. I also feel like there has to be some type of assistive devices out there that would help you to be able to continue with your artwork. I know there are blind artists, but not sure what they use if anything.
I've been wondering so thanks for sharing an update. Stay strong.
You called to mind the Emily Dickinson poem, “I measure every Grief I meet” because of the consonances despite differences that I can relate to in your telling your story. I still remember that previous video and wondered how you’ve been doing. Glad reading is working for you. 👍
Hey Brian. Thanks for the update. Best wishes for you and your sight. Looking forward to a lot more of your great writing in the years ahead.
I love your positivity Brian and truly hope that you have many creative years ahead of you. Life can be so unfair. ❤
Thanks for sharing Brian, it was creeping around in the back of my mind, I am glad it's Status Quo and I hope it gets easier for you, new drugs etc are always being created. I will be selfish and say I hope we get to be part of your passion for books for ever and ever 😇😇😇
Thanks for updating us, I hope the medicines do their work and your eye condition improves! All the best!
Not many people could do needles in their eyes every 2 months. You rock! Thinking of you often and your struggles. I hope your degeneration slows. Stay strong!
One of my favorite booktubers out here. Because of you, i discovered David Gemmell, who i love. I am also an artist, and cant IMAGINE going blind. My best friend has a degenerative eye disease too. Im praying for you. Best wishes, good job on all you've done, and were with you. 💪
Just want to wish you all the beat. Stay strong!!
Thank you for the update Sir.
I am so sorry about the needle injections, they sound so painful. Hope they continue to work. My thoughts and prayers for your good health and wellbeing.
Regarding typing, I was wondering if you can do something like the outlining in a notebook and then for drafting, there are settings which can reduce the strain on your eyes. I am sure you are already doing those but it's worth spending a bit more time optimising your screen so that your eyes experience the least possible strain when you are typing.
Happy to hear your reading is going well.
I have enjoyed your series and look forward to your next publication. In the meantime, all my best wishes and see you in the book review/haul videos.
Wishing you the best!
All my best wishes to you Brian.
See you soon Brian I am always going to support you any way possible you’re a great inspiration to me. I can’t wait to try out the forgetting moon and fantasies like game of thrones or the first novel of Tad Williams im buying books so I’ll be able to understand your genius more! Take care.
Thanks for the update, happy to hear you will be able to continue read and write. I also have an eye disease and I am considered legally blind. My vision has stabilized over the last 5 or 6 years before that it kept getting worse. I mostly listen to audioboks because of it and ocassioballtly read ebooks with large font. The injection definitely sound painful.
I just finished Mobility training with the association for the blind. I highly recommend it. It messed with my pride at first but now I’m so glad I did it.
Thanks for the update!
Those needles in the eye sounds worse than death!
Hope everything will go well for you, and I wish you the best!
Thanks for the update! You mentioned that you are still writing…I was wondering if you would feel comfortable talking about if you are planning more books in the same world or something completely different?
I was wondering the same thing. If his new book is another series in the existing universe or a brand new world?
Recently suscribe, amazing channel mi friend i wish you best luke on your disace. Greatings from argentina
I'm sorry you're going through this. I'm glad that you can still enjoy reading. You have probably already looked into these, but there are some dictation software programs like Dragon that might make writing easier. I have you in my prayers.
Will be praying for you.
Love the Nikki Sixx shirt bud!
Thanks for the update. I too have had eye injections. The only sensible reaction is to swear!
sorry about the shots. As a fellow blind traveler whose vision leaves over time, I advise to keep planning ahead! especially the $. Get that retirement done.
Hi Brian
did you hire one or two people to add those links?
it took ten
Good luck for the future….
I started putting turmeric in my food a few times per week. It's supposed to help with circulation especially in tiny blood vessels and help prevent clogs. I don't know if it would be helpful for your condition. You'd have check into it. If nothing else, it will add flavor to your food.
i will look into that
Really sorry to hear Brian. Have you tried CBD oil yet to help with the inflammation.? Thanks for your videos
You might look into oxalates from plant foods like Sally Norton talks about.
Oh man, that's so sad. I hope you'll keep much of your remaining eyesight. I can't imagine a life without being able to see … Have you tried laser therapy? I read somewhere that this might be another way to treat this illness.
they did lasor work on my left eye and it only made things worse.
That's awful to hear. Hope things get better/don't get worse@B.LEE.DbrianleedurfeeREVIEWS
Oh wow … forget what I said ;-)
When you are writing do you type it all in Do you write by hand on paper or you use Dictation software I would suggest the dictation software Could possible possibly help you
Brian, don't they numb your eyes before the injections? I've lost most vision in my right eye and get them checked every 6-8 months or so. I get numbing drops but no injections. There must be something they can do to help you. Ps. I go to Kellogg clinic in Ann Arbor, Michigan. It is affiliated with the University of Michigan.
genuinly curios, will you learn brail or just rever solely to audio books? I'm not even sure the books you love even come in brail, I wonder if authors have to pay a ton or if they just go audio no matter what, all the best my fellow raiders brother
Audiobooks!!!!
This is shitty to hear on my Birthday, sorry to hear Brian, I wonder if there's a treatment using Stem Cells?
It's not great, is it? Having any kind of physical determination is a reminder of one's own mortality and always seems a bit unfair!
I hope that you manage to stay positive and hopeful, because your books and videos have brought me joy.
👍🤞
Edit: "deterioration"
🤫
Writing longhand? I know it's not comfortable, but...
An old typewriter? There are still some around. You could hire someone to write your texts into a computer. Anyway, maybe it's nonsense what I am saying. I know there are some good speech-to-text softwares out there. Best wishes for your health and well being.
This is such a nightmare for an author and avid reader. I’ve known about it for years, but it’s honestly tragic.
They need to Steve Austin your eyeballs. Colonel Steve Austin, not the wrestling dude.
Are ypu still writing Brian?
What are you working on? Or is it super top-secret
Mr.Brian Lee durfee Why? Americans are obsessed with high fantasy books. I read the Hobbit and it wasn't as good as i expected
that's a good question. I think America is such a new country we look to fantasy for a deep history???
@@B.LEE.DbrianleedurfeeREVIEWS new country
never ever heard of this weird dude
I'm so glad that you're doing good. I truly am and I really hope that it stays that way. My father has that disease so I know how awful it is. But stay positive! I will always read everything you write. 😊
Greetings from Germany.