I’m a Grandmother raising an Autistic child for 10 years now. We have been trying so hard to navigate this winding road of therapies & techniques only to find ourselves frustrated with the run around by insurance companies and the “your doing it wrong” to the point of hopelessness. I’ve learned more on UA-cam than anywhere we’ve gone to for help and understanding. All we’ve ever wanted was help for our Grandson so that he has a chance at life. I’m so thankful that you and so many others share what you know and how we can help our children! Blessings ~
I wish you had been my mother. I’m 26 and just finding out that my entire life has been one sensory overload after another. My parents never helped. In fact, they just assumed I hate to be touched. So I wasn’t even touched like a normal kid. I’m so glad parents like you exist
Oh no! I am so sorry! But thank you! It is very frustrating to be parent not knowing what to do and not understanding what your child is going through. I still struggle with my kids. I do hope you find comfort, it must of been really hard growing up not understanding what was going on. 😢
@@LivingWithEve I am 35 and am in tears reading this comment. I have several letter diagnoses, I say CDO(in alphabetical order like it's supposed to be), depression, GAD, PTSD, LMNOP ( LOL) and I be learned about deep pressure stimulation two days ago while watching a video about shibari. When I was little under 5 years old, I liked to be rolled up in a sleeping bag and I would beg my dad or uncle or cousin or whoever was around to put me in there. I also would take this piece of sesame street pillowcase that became my lovie and wrap up my arm or leg like I was in a cast. I'm at peace finally understanding another little piece of the puzzle that is my brain. Thank you ❣️
Omg this information is gold!!! My son is 3 years old and Deaf, he loves to chew wipes, eat lotion and soap and i didn’t understand why, but this makes so much sense now. He can’t stay still has so much energy and always wants to touch everything, now that am aware of this i can work with him and understand him better. Too bad others don’t understand it 😢
You’re so good at explaining everything. I really appreciate what you said about not focusing on labels and focus on what’s best for your kids. I can see you doing TED Talks. Wonderful and informative video.
@@LivingWithEve It's definitely a compliment! 💖. A good thing. The way that you explained it just reminded me of a TED talk. The "Not focusing on labels" hooked me. Encorparates why homeschooling is better for our kids as every child is different. I've seen a couple TED talks about homeschooling. You could totally do a talk!
I was so concerned that telling my child that she has SPD and autism would "label" her I didn't even want to tell her. It turned out to be a good idea to tell her and like she said not focus on it. Because she asked later on if something was wrong with her. I just said you remember you have SPD and told her that God just made her brain different he didn't make it wrong.
I just found out yesterday my kiddo has spd. She's 7. I've always just thought she was naughty, and it was my bad parenting. I thought I was too soft and too many choices. I'm now changing my parenting. And focusing on her. I'm going though videos ATM for advice. I do not want her to feel 💩 about who she is. I want her to be the best she can be and most important HAPPY. Great video, and great start off. Thank you.
Praise God! That’s awesome. See try his is why I think getting a diagnose is helpful. It helps us understand our children more so that we can better serve them as parents. Thank you for your encouragement! And be encouraged… you are doing great!
Thank you for this My 3 year old just got diagnosed with SPD, and it's been a lot to take in as a mom. We have always known something was "off" but now that there is a label it makes it more real. Now I'm just trying to figure out what I can do to make life easier for her. We start OT tomorrow, so hopefully I'll learn along with her.
I was born with SPD with hyper sensitivity, and you jotted all the stuff down that I can think of. I had an occupational therapist who taught me 2 lessons, and after a couple months of excercises I was brushing my teeth correctly and I could hold cold drinks, and none of the stuff really bothered me.
I'm a dad of two boys I also do the same techniques I just watched your video and it's so interesting how you don't know until you actually look it up on the internet I do play with them to get them tired both of them are the best bed buddies three and five and three
Good to listen such explanation about Sensory processing disorder. I appreciate your strength of motherhood and opening up in public forum that give confidence for parents having such special kids.
I recently have connected the dots and I may have hypersensitivity. It was a heavy weight off my chest to realize I wasn’t crazy and instead just dealing with hypersensitivity meltdowns on a regular basis. Since having a name for it I’ve been doing research on how to deal with it better but everything I can find is for parents of young children. Regardless, having a name for my issues is really helpful because it makes me feel qualified.
My therapist recently brought up sensory processing disorder and right as you were explaining hypersensitivity is when i had to pause the video because the wall behind you was so distracting. All the different sizes and colors. So when i unpaused a lot of things my therapist was talking about started to make sense. Really learned a lot from this video, thank you.
Thank you yet again. Many people do not understand that sometimes it does not good to get a diagnosis and sometimes it does. I love your suggestions and will totally use them.
Wow, You did a great job with this video. You really got to the points in a logical order, without rambling. You were informative, personal, and challenging. Great job.
I'm learning more about SPD watching youtube! My ella is the nonstop baby. Shes in OT and I will definitely be asking her more about how I can help ella at home.
I get it! The one thing I like about “labeling” (actually the only, because I hate labeling), is that is gives people who are guiding the child an understanding of what is going on and tips on how to manage it. It also gives parents piece of mind knowing their is someone to help.
This was so great wish I could give it more than 1 thumbs up . I loved when you said you went “rouge” and became a home school /stay at home mom. I can do relate . I did the same ! I’m am new in this journey of sensory disorder , we are in the early stages of getting evaluations for out 4 year old . This was so helpful and refreshing to know I’m not the only one . God bless you and your family .
@@thiscorner102 Going through the therapy was tough but well worth it. She is a senior in high school getting ready to graduate. She made straight A's all through school. She still has some rough times when things overwhelm her but with age, her ability to deal with it keeps improving.
This is a very informative video on SPD you explain it well from a parents viewpoint.. from daisy mum xx Exactly I work with ALN children and most are not diagnosed but my job is to ensure they are getting the most out of our education care centre we can give them to develop to their fullest potential xx as I expect my son’s teachers to support him as best they can for him to achieve things xx
We love our OT, it really had made a difference and especially for me and the mom. Thank you for sharing, prayers that it goes well. Feel free to let me know how it goes.
Thank You my son's a constant mover and he bites on everything he gets overwhelmed and gets angry he's 2 years old. We are just starting to understand SPD he just seen his doctor today. He's a Kawasaki disease survivor so I'm trying my best to be everything he needs me to be he's going to start occupational therapy in the next couple weeks. Thank you for your video
This was a great vlog! The bouncy ball and the vibrating pillow are fantastic ideas! My boys dont have SPD, but they are little wrigglers..... they struggle to sit for too long, cant get through dinner without standing! 🤣 most of their dinner gets eaten standing up.....🙈
I absolutely love your channel. Thank you for sharing your knowledge. I was a Special educator or approximately 15years. Schoolsare now looking at SensoryProgressing disorder as an umbrella of HDHD and HDD for Other Health Impairment which gives students specific goals for their IEPs
My daughter is 2 in august and was recently diagnosed with SPD; proprioceptive and vestibular. We are hoping as we start OT we find what works for her and that will also then help with her speech , she doesn’t talk much. I loved all your tips. Very excited to put them to use !
Omg I just love you so much right now. You have NO IDEA HOW YOUR VIDEO HELPED ME. A little bit about my situation : I am a full time nanny who’s been working with kids for over 5 years now. Been in and out daycare and preschool centers but now working with this wonderful family who have 2 awesome kids. M is 3 and J is 15months. I’m having a challenging moment with J. Mom and I think both kids might have some sensory issue and I’m trying to find some answers online. I’m struggling a lot. I went home crying a lot of times but never gave up on helping them. J loves to play, he is a cuddle bug but omg, he won’t sit still, and CRIES and yells over little things such as changing diaper, transitioning from one activity to another. It’s been hard for me and I def don’t want to quit, I want to help them. Your video was amazing to me. It opened my eyes, I love the idea of the vibrating pillow and HE LOVES WHEN I RUB HIS HEAD. Such great tips. Can’t wait to watch the other videos. Please please if you have any idea how I can approach mom and tell things without giving the idea that I’m assuming anything or giving any diagnose on his kid I will appreciate very very much. Thank you and I hope to hear from you soon.
Oh my stars, thank you!!❤️ It’s so hard to talk to Mom about concerns you have but it’s so important. Maybe show her somehow that you are coming alongside her in helping her son? That might make it easier for you. Or maybe start with questions like “Does he get upset for you when you change his diaper.” To really engage a conversation. I really think most kiddos have sensory issues. I have sensory issues! And they change through their age too. It’s such a complex topic. I just purchased a book called “Sensational Kids” and I’m plowing thorough it. I’m planning on going through some tips on this soon. Right now I have been focusing on ADHD, but a lot of ADHD, well most, have sensory issues. So do kids on the autism spectrum and Downs. I’ll probably switch over to these topics sooner now. My channel has been a mix match of a lot of things but recently (this year) I have really been focusing in on the parenting of special needs since I’m in the middle of it and those seem to be my most popular videos. (I have a few already made that are off topic but after that I’m going to really focus on those videos). One thing Naomi’s therapist had me do was rub her feet whenever I had free time. This is when she was a baby since feet sensitivity is very common. I would do it with a wash cloth or textured ball. Same with head rubbing. Doing it as a very soft gentle movement. Too hard does nothing for them. Anything to desensitize. We also let her play with a toothbrush before she brushes her teeth to desensitize so that time will go smoother. Occupational Therapy has been amazing for my kids because they have a gift of knowing what your kids need and give you a ton of tools to over come them. Insurance paid for ours. Maybe Mom can look into it? Let me know if there is anything else. Keep in touch!
this was very helpful my daughter is like your son plus she has a speech delay so sometimes it's exhausting to always be in her face or actively teaching her I'm going to see if I can do these things to help her focus independently thank you
I have sensory processing disorder as well. My parents have to prep me before we leave for home from certain places. It probably stems from being premature.
Wow, this explains so much about my son! He is also the BEST cuddler 🥰 Thank you!!! I am going to research more about this now. We have been struggling with his first year of homeschool bc it’s like he can’t focus or process the information sometimes for “sit down” work, even though he has shown he is capable at other times. Will you pray for me to be more patient with him and to find solutions to help him learn without him fighting/crying? Also, thanks for the recent videos on the Holy Days. I enjoyed learning more as I try to figure out how to make new traditions for our family to celebrate God His way!
My daughter has always had problems with loud noises and other things that you mentioned that I never knew to look for, she’s almost three and we’ve been dealing with her problems but it’s starting to get in the way of every day life. I finally decided this is enough and I talked to her dr and we are going to see an OT.
Thanks for sharing this! I have a brother with disabilities and there are so many more options, aids and programs available that were not available when he was little.
My son had sensory issues when he was younger. Yes i said "had". We did tons & tons of thearpy with him & we got lucky. You are right we could not get an IEP for sensory but we were able to get one for speech. He still has sensory hickups now & than. But with my son he wasn't diagnosed with anything. So sometimes a child doesnt have to have a illness for sensory issues. My son was sensory with feet.. Which delayed he's walking and when he finally started his feet went out OR tip toes.. Loud noise.. And textures with food. Thank you for sharing. More people should defintely be made aware. ❤ ❤ ❤
I'm new in this journey and want to say thank you for your informative video. I didn't know about vibrating pillows, I think that might help my child!!! There is a lot for me to learn and I'm here because I badly want to help my child and in order to do that I need to understand him first. Thank you xx
I have sensory processing disorder my parents never really worked with me with it and I mostly grew out of it other than social cues and remembering things but when I was little I couldn’t feel the cold or my fingers
Hi, found you from the lunch collab. I am a mom of 2 (aspergers/hEDS/SPD/VPD and Autism/SPD/APD/VPD/possible hEDS). One is a sensory seeker and the other is mainly an avoider with some need needed sensory input. We have lots of soft blankets, a trampoline indoors, huge Costco bear, play tent, kinetic sand, squish hand toys, scooters, water table, rocking chair, lots of pillows, yoga mats and dvds, pool, sensory lights, music, piano, and used to have a ball pit. Oh and 2 therapy shih tzus 😊 We did floor time therapy that was very sensory based. Also private ot and pt. Our biggest struggle is all the on-line time. It has been causing seizures. So our kids IEP teams have come up with some ways to help with accommodations and I bought blue light blocking glasses for both.
Hi LorieAnn, Sounds like your busy too. I had a friend whose son had seizures to when he went online, especial video games. I have never heard of the glasses. Sound interesting. She does have him in a school for special needs, and they don’t have him use any electronics. We live in a very strange culture where it’s a necessity for some many things but can be so damaging in other areas. Keep me posted on their progress ❤️
Leilani, this was such a helpful video. My son suffered with hypo for a long time until he received OT and speech therapy. He has come such a long way but still deals with it in certain areas.. From about 4 until now he's kind of in between hypo and hyper. I have my moments when I get frustrated and don't know what to do especially since we don't live in an area with many outlets especially since the pandemic started. I feel like he's regressed a little with his sensory because of the pandemic. Appreciate this video so much right now though you filmed it 2 years ago lol.
Thank you so much! I hope it was helpful. If you have any questions - just let me know. I’m planning on linking up some videos that go into more depth with this topic.
very informative, you explained it very well. I love the thing you said about not focusing on labels and focus on what’s best for your kids, please keep sharing! big thumbs up! 🍁🍂🎃🥰😍💖❤😘
I had a little boy in my children's church class that was totally fine if I was rubbing his head. I sat him beside me during the lesson, I stayed by him at the table, etc. If I needed to stop rubbing his head, a few minutes later, he would be in some random place in the room turning a flip or climbing on something. Back then, we had never heard of these processing issues that are seemingly ubiquitous today.
My son has hyposensitivity. Especially with feeding. He can't tell when he has had enough. He also always walking around the house. He also has a relationship with the remote control. He won't put it down and he goes to bed with it in his pocket.
I petitioned for a 504 for my 7 year old daughter because she was diagnosed with spd. Currently, she's being evaluated for an IEP. She needs that extra help.
SPD is not enough for an IEP unless there’s more (ADHD along with SPD). However- 504’s are used when there’s mainly SPD and there just needs to be accommodations put into place.
This was amazing, Leilani. Thank you for explaining this. My oldest is very hyposensitive. He is always moving; he’s 5. He’s very sensory-seeking. Constantly touching someone. I tried gymnastics but he wasn’t into it. I found that I have to let him move to do school work. He needs to bounce, roll, move to concentrate. I’m stealing the head rub!!!!!
Living With Eve I was thinking about trying a bounce ball as a seat and a monkey balance board. He is most happy when I give him solo bedtime snuggles and we chat. He rubs my face and arm and I run his back if he wants. He seems most content then and talks me up.
My son is the best cuddler as well. He has to rub my skin. Mostly my belly when he’s relaxing or tired. My arms he likes to rub up and down and my face. He has to be touching me all the time. Loves to snuggle.
You share your video content so well! Its very concise, informative and relatable! My son is highly active and loves to wrestle and run, run, run . Sometimes its non stop lol
Thanks! I am working on linking some videos to this one, this has been one of our most popular and I want to provide more feedback on this subject. Right now I’m reading up on some books and talking with my daughter’s therapist. So thank you for more confirmation, and thanks for watching!
Great to have you on board. Thanks! I hope you enjoy our videos. Right now I’m uploading every 5 days, but hopefully I will be doing two days a week soon.
I have the same opinion as you do, I really don't understand people who would love to get their child labeled. Seek help without the label... Look what you can do yourself.
We thought my son may be hyposensitive. But now I think he’s just a chronic toe walker because of a muscle issue. In my state, my sister is an OT for the school district and spd doesn’t automatically qualify you for an IEP but if spd dramatically affects academics they could get one. But you could also get a document from the pediatrician to receive tools (like the bouncy chair, vibrating seat, etc.) during school.
Yes. I think it will eventually get to the point where IEPs are issued. However I know that SPD is connected to other Conditions that IEPs cover. Like ADHD, Autism, ect... I was a toe walker, still am. My Mom justified it by putting me in ballet, which I excelled at. It never corrected the problem though. There are only a few positions I can’t be in without lifting my heals and it really no big deal. However, I still get made fun of... a lot.
i was diagnosed with SPD when I was younger and I try to control myself when I have meltdown loud sounds really bothering me and my activity program doesn't understand why I have a meltdown
Hi.. thank you for the video. Good to see the difference you listed but I think my child has both the symptoms from hyper and hypo is that really possible?
thank you for sharing this information. may i ask what type of insurance you have for Naomi? i have a 3 year old with ds and need to find therapist outside of the school but they are pricy. thank you in advance
This was a very informative video. I'm just learning about sensory because my son who is almost 2, has the same sensory things as your son. We recently started Therapy for it as well. Also are on a waiting list for speech. The only thing he actually says is momma and he makes noises. He isn't able to communicate what so ever tho. We believe he has ASD. And are waiting for that in a month or two. He is my 3rd child, first son. Before we knew about any of this we planned to have another child so he would have a sibling closer in age, (b.c both his sisters are 5yrs & 7yrs older than him) so I just had my 4th child (&last😊) baby boy last month. But I'm so concerned and overwhelmed b.c I want to make sure I'm doing everything I need/should be doing for him. And also wondering if my baby boy will have any of the same things as my other boy. Sorry I know it's alot. Felt good to tell someone honestly.
@@ebtisamlutfi2955 wow I forgot I wrote this. 😊 yes, he is on the spectrum and we believe our youngest is too. I'm almost positive. They are amazing little boys, regardless. My oldest boy whom is a little over 3 now, has taught me so much about this life and that love needs no words💛 it's hard but I'd like to thank God for choosing me and my husband to be their parents!! We just got blessed with 2 beautifully wonderful little boys, who see the world a little differently than we all do🙏🏼🥰
My son is exactly as you described your son as a toddler (mine are 20 months). He is speech delayed along with his sister (she is catching up be he only has a few words he says very sparsley, looooots of babbling trying to talk) and are in speech therapy (started a month ago). The therapist told me this past week Eren may have Spd but she wants to give it a few more sessions to weed out the novelty of newness since hes lived in lockdown for a year. We may get referred to an OT for an eval. Which I am more than happy to do and get him whatever he needs. Question: was your son speech delayed at all? Anyone else in the comments have this experience? He understands what we say, we just have to get his attention first. Note: ADHD (could be spd due to the newness of the diagnosis) runs on my husbands side heavily. I think its really easy as a ftp to jump to autism but no doctor so far things this is the case and he just needs constant stimulation. Because he makes good eye contact and is very social especially with his twin sister.
He was not speech delayed, he was actually advanced in pretty much everything. But SPD shows itself differently in each child. Alot of kids with ADHD have SPD, they got hand in hand. Same with Autism. Some kids only have SPD. Good luck in your situation. Many prayers too.
@@ebtisamlutfi2955 he has about 100 words now and is becoming more social. He is also a lot calmer. He has had autism ruled out, but adhd is still on the table as he gets older. He starts preschool early start for kids with delays in the fall. He is also doing chiropractic care which has helped him be calmer and focus better. He has been more social since starting that. He has a sublaxation in his c1 vertebrae.
We are on the same boat. My son 2 years cant speak and not getting much help from speech therapy. We and most professionals cant figure out exactly whats wrong with him. He breastfeed multiple times during night since birth till date. He drives my wife nuts looking him after. She even can't go to bathroom easily cuz of his clinging behavior. He has marked separation anxiety and wants mother in front of him all the time. His tantrums are constant and over small things. But what most worries us is his inability to speak. To be honest we are totally confused as how we should approach towards managing his problems.
My 2 years son has all signs of spd. Believe me its a sigh of relief when you compare it with possibility of asd lingering on in your mind especially when you know your child does not speak at a age of 2. In my case speech therapy is not working, should we switch to another therapist as suggested by someone. Or its a part of problem which will go away hopefully with time. Kindly share your expert opinion on this. And as he breastfeed multiple times during night time how should we approach with this problem. We want him to switch to formula feed but he throws away bottle whenever we tried. My wife is diabetic and she has no energy left after attending to his constant needs. He doesn't even allow her to go to a bathroom and wants her presence all the time.
I believe my 2 yr old daughter has the hypo one, can you give me any suggestions on how to keep her from pulling the hair accessories from her head? She cant stand anything in her hair but will start putting the ends of her hair in the mouth. Thanks!!
What the OT has told us, if we want them to get use to it, be consistent and keep doing it. So if she pulls it out, put it back in. Eventually she'll get to use to it. That's the hope.
I have had what I describe to be SPD as an adult. I wanted the lights off and to shut my ears due to being overwhelmed. Thank God for chelation therapy from the Andrew Cutler protocol. I know causes and diagnosis for individuals is different but I have been blessed to find a cure. 💕
Yes, they mix and can be different for every person. For example somebody could be sensory seeking when it comes to taste but not when it comes to tags on clothing.
I'm grandmother mother to a 2 year old that had spd....how can I help him with self hitting when inpatient....turn taking...being told no to something that maybe dangerous. Any advice would be much appreciated.
Consistency. It’s never to early to start putting him in time out, redirecting (getting him involved in another activity or showing him how to act appropriately), or even just telling him no, nice hands. However, you may want to speak to your pediatrician as well. Occupational therapy has ended up being a huge blessing, especially since you have a professional working with you and him on a weekly basis.
My daughter has sensory issues I think. Like your son always moving and nose diving over the couch but also sensitivities to noise, new places routines food etc. Think ADHD plays a big part. She is medicated... shame you guys don't have Medicare. I get her medication for 5 dollars but full price is 125 pretty insane.
I really need more inquiry with this this is something new that we just found out in the last couple of days if you could respond back and let me know what to do
I’m a Grandmother raising an Autistic child for 10 years now. We have been trying so hard to navigate this winding road of therapies & techniques only to find ourselves frustrated with the run around by insurance companies and the “your doing it wrong” to the point of hopelessness. I’ve learned more on UA-cam than anywhere we’ve gone to for help and understanding. All we’ve ever wanted was help for our Grandson so that he has a chance at life. I’m so thankful that you and so many others share what you know and how we can help our children! Blessings ~
I wish you had been my mother. I’m 26 and just finding out that my entire life has been one sensory overload after another. My parents never helped. In fact, they just assumed I hate to be touched. So I wasn’t even touched like a normal kid. I’m so glad parents like you exist
Oh no! I am so sorry! But thank you!
It is very frustrating to be parent not knowing what to do and not understanding what your child is going through. I still struggle with my kids. I do hope you find comfort, it must of been really hard growing up not understanding what was going on. 😢
@@LivingWithEve I am 35 and am in tears reading this comment. I have several letter diagnoses, I say CDO(in alphabetical order like it's supposed to be), depression, GAD, PTSD, LMNOP ( LOL) and I be learned about deep pressure stimulation two days ago while watching a video about shibari. When I was little under 5 years old, I liked to be rolled up in a sleeping bag and I would beg my dad or uncle or cousin or whoever was around to put me in there. I also would take this piece of sesame street pillowcase that became my lovie and wrap up my arm or leg like I was in a cast. I'm at peace finally understanding another little piece of the puzzle that is my brain. Thank you ❣️
Same here
Omg this information is gold!!! My son is 3 years old and Deaf, he loves to chew wipes, eat lotion and soap and i didn’t understand why, but this makes so much sense now. He can’t stay still has so much energy and always wants to touch everything, now that am aware of this i can work with him and understand him better. Too bad others don’t understand it 😢
Right on! Thanks for stressing the importance of focusing on the needs of our children vs getting lost in the labels. Excellent advice.
You are so welcome!
You’re so good at explaining everything. I really appreciate what you said about not focusing on labels and focus on what’s best for your kids. I can see you doing TED Talks. Wonderful and informative video.
I have actually not seen this from TED. Interesting that you see a similarity, Don’t know if it’s good or bad? 🤔 Thank you for the compliments.
@@LivingWithEve It's definitely a compliment! 💖. A good thing. The way that you explained it just reminded me of a TED talk. The "Not focusing on labels" hooked me. Encorparates why homeschooling is better for our kids as every child is different. I've seen a couple TED talks about homeschooling. You could totally do a talk!
That make since, thanks a lot!
I was so concerned that telling my child that she has SPD and autism would "label" her I didn't even want to tell her. It turned out to be a good idea to tell her and like she said not focus on it. Because she asked later on if something was wrong with her. I just said you remember you have SPD and told her that God just made her brain different he didn't make it wrong.
I just found out yesterday my kiddo has spd. She's 7. I've always just thought she was naughty, and it was my bad parenting. I thought I was too soft and too many choices. I'm now changing my parenting. And focusing on her. I'm going though videos ATM for advice. I do not want her to feel 💩 about who she is. I want her to be the best she can be and most important HAPPY. Great video, and great start off. Thank you.
Praise God! That’s awesome. See try his is why I think getting a diagnose is helpful. It helps us understand our children more so that we can better serve them as parents. Thank you for your encouragement! And be encouraged… you are doing great!
Thank you for this
My 3 year old just got diagnosed with SPD, and it's been a lot to take in as a mom. We have always known something was "off" but now that there is a label it makes it more real. Now I'm just trying to figure out what I can do to make life easier for her. We start OT tomorrow, so hopefully I'll learn along with her.
I was born with SPD with hyper sensitivity, and you jotted all the stuff down that I can think of. I had an occupational therapist who taught me 2 lessons, and after a couple months of excercises I was brushing my teeth correctly and I could hold cold drinks, and none of the stuff really bothered me.
Dang I hope I can start soon so I might be able to do that
You taught me so much today. You're helping so many more people than you know momma. Never stop using your voice. ❤️😊
I'm a dad of two boys I also do the same techniques I just watched your video and it's so interesting how you don't know until you actually look it up on the internet I do play with them to get them tired both of them are the best bed buddies three and five and three
Good to listen such explanation about Sensory processing disorder. I appreciate your strength of motherhood and opening up in public forum that give confidence for parents having such special kids.
I recently have connected the dots and I may have hypersensitivity. It was a heavy weight off my chest to realize I wasn’t crazy and instead just dealing with hypersensitivity meltdowns on a regular basis. Since having a name for it I’ve been doing research on how to deal with it better but everything I can find is for parents of young children. Regardless, having a name for my issues is really helpful because it makes me feel qualified.
My therapist recently brought up sensory processing disorder and right as you were explaining hypersensitivity is when i had to pause the video because the wall behind you was so distracting. All the different sizes and colors. So when i unpaused a lot of things my therapist was talking about started to make sense. Really learned a lot from this video, thank you.
Thank you yet again. Many people do not understand that sometimes it does not good to get a diagnosis and sometimes it does. I love your suggestions and will totally use them.
Thank you, I am still learning with my daughter
Wow, You did a great job with this video. You really got to the points in a logical order, without rambling. You were informative, personal, and challenging. Great job.
Thank you for this! My son is seeking all the time and my daughter is sensitive. Today was really hard getting ready for school for her.
I'm definitely Hypersensitive. That explains so many things...
I'm learning more about SPD watching youtube! My ella is the nonstop baby. Shes in OT and I will definitely be asking her more about how I can help ella at home.
I get it! The one thing I like about “labeling” (actually the only, because I hate labeling), is that is gives people who are guiding the child an understanding of what is going on and tips on how to manage it. It also gives parents piece of mind knowing their is someone to help.
This was so great wish I could give it more than 1 thumbs up . I loved when you said you went “rouge” and became a home school /stay at home mom. I can do relate . I did the same ! I’m am new in this journey of sensory disorder , we are in the early stages of getting evaluations for out 4 year old . This was so helpful and refreshing to know I’m not the only one . God bless you and your family .
My youngest daughter was diagnosed with sensory integration disorder and being over focused. I had to do a lot of therapy with her.
Hi Amanda, Im about to get my son checked, did the therapy help? How is she now?
@@thiscorner102 Going through the therapy was tough but well worth it. She is a senior in high school getting ready to graduate. She made straight A's all through school. She still has some rough times when things overwhelm her but with age, her ability to deal with it keeps improving.
This is a very informative video on SPD you explain it well from a parents viewpoint.. from daisy mum xx
Exactly I work with ALN children and most are not diagnosed but my job is to ensure they are getting the most out of our education care centre we can give them to develop to their fullest potential xx as I expect my son’s teachers to support him as best they can for him to achieve things xx
Thank you for this video, I am better able to understand why my 3 year old daughter behaves the way she does. She is in OT as well
We love our OT, it really had made a difference and especially for me and the mom. Thank you for sharing, prayers that it goes well. Feel free to let me know how it goes.
Thank god I found your video,my son bless his heart is hypo
Thank You my son's a constant mover and he bites on everything he gets overwhelmed and gets angry he's 2 years old. We are just starting to understand SPD he just seen his doctor today. He's a Kawasaki disease survivor so I'm trying my best to be everything he needs me to be he's going to start occupational therapy in the next couple weeks. Thank you for your video
We love our OT. If you get a good one, it going to do wonders! Good luck! ❤️
You are so great at explaining the challenges of this disorder.
Thank you Mrs. Erica!❤️
This was a great vlog! The bouncy ball and the vibrating pillow are fantastic ideas! My boys dont have SPD, but they are little wrigglers..... they struggle to sit for too long, cant get through dinner without standing! 🤣 most of their dinner gets eaten standing up.....🙈
Yeah, boys like to move around a lot! It’s in their DNA.
I absolutely love your channel. Thank you for sharing your knowledge. I was a Special educator or approximately 15years. Schoolsare now looking at SensoryProgressing disorder as an umbrella of HDHD and HDD for Other Health Impairment which gives students specific goals for their IEPs
My daughter is 2 in august and was recently diagnosed with SPD; proprioceptive and vestibular. We are hoping as we start OT we find what works for her and that will also then help with her speech , she doesn’t talk much. I loved all your tips. Very excited to put them to use !
Thank you !
I love that you covered that we have to be advocates for our children! Great video.
Omg I just love you so much right now. You have NO IDEA HOW YOUR VIDEO HELPED ME.
A little bit about my situation : I am a full time nanny who’s been working with kids for over 5 years now. Been in and out daycare and preschool centers but now working with this wonderful family who have 2 awesome kids. M is 3 and J is 15months. I’m having a challenging moment with J. Mom and I think both kids might have some sensory issue and I’m trying to find some answers online. I’m struggling a lot. I went home crying a lot of times but never gave up on helping them. J loves to play, he is a cuddle bug but omg, he won’t sit still, and CRIES and yells over little things such as changing diaper, transitioning from one activity to another. It’s been hard for me and I def don’t want to quit, I want to help them. Your video was amazing to me. It opened my eyes, I love the idea of the vibrating pillow and HE LOVES WHEN I RUB HIS HEAD. Such great tips. Can’t wait to watch the other videos. Please please if you have any idea how I can approach mom and tell things without giving the idea that I’m assuming anything or giving any diagnose on his kid I will appreciate very very much. Thank you and I hope to hear from you soon.
Oh my stars, thank you!!❤️ It’s so hard to talk to Mom about concerns you have but it’s so important. Maybe show her somehow that you are coming alongside her in helping her son? That might make it easier for you. Or maybe start with questions like “Does he get upset for you when you change his diaper.” To really engage a conversation. I really think most kiddos have sensory issues. I have sensory issues! And they change through their age too. It’s such a complex topic. I just purchased a book called “Sensational Kids” and I’m plowing thorough it. I’m planning on going through some tips on this soon. Right now I have been focusing on ADHD, but a lot of ADHD, well most, have sensory issues. So do kids on the autism spectrum and Downs. I’ll probably switch over to these topics sooner now. My channel has been a mix match of a lot of things but recently (this year) I have really been focusing in on the parenting of special needs since I’m in the middle of it and those seem to be my most popular videos. (I have a few already made that are off topic but after that I’m going to really focus on those videos).
One thing Naomi’s therapist had me do was rub her feet whenever I had free time. This is when she was a baby since feet sensitivity is very common. I would do it with a wash cloth or textured ball. Same with head rubbing. Doing it as a very soft gentle movement. Too hard does nothing for them. Anything to desensitize. We also let her play with a toothbrush before she brushes her teeth to desensitize so that time will go smoother. Occupational Therapy has been amazing for my kids because they have a gift of knowing what your kids need and give you a ton of tools to over come them. Insurance paid for ours. Maybe Mom can look into it?
Let me know if there is anything else. Keep in touch!
Yes you can my son has an IEP based on this
Our son has a diagnosis of SPD, and was able to get an IEP for it. Not having school has been especially difficult.
I am so sorry. It is very difficult without those resources.
Leilani this was crammed with lots of good info that many parents will find helpful than you for sharing it with us.
this was very helpful my daughter is like your son plus she has a speech delay so sometimes it's exhausting to always be in her face or actively teaching her I'm going to see if I can do these things to help her focus independently thank you
Love that you give us such great information! Such a great help for parents and caregivers!💙
I have sensory processing disorder as well. My parents have to prep me before we leave for home from certain places. It probably stems from being premature.
My son will be 2 on New Year’s Eve & he has spd & I just want to say it’s harrrddddddd 😩 I’m so tired but we’re gonna get through this !
Wow, this explains so much about my son! He is also the BEST cuddler 🥰 Thank you!!! I am going to research more about this now.
We have been struggling with his first year of homeschool bc it’s like he can’t focus or process the information sometimes for “sit down” work, even though he has shown he is capable at other times. Will you pray for me to be more patient with him and to find solutions to help him learn without him fighting/crying?
Also, thanks for the recent videos on the Holy Days. I enjoyed learning more as I try to figure out how to make new traditions for our family to celebrate God His way!
My daughter has always had problems with loud noises and other things that you mentioned that I never knew to look for, she’s almost three and we’ve been dealing with her problems but it’s starting to get in the way of every day life. I finally decided this is enough and I talked to her dr and we are going to see an OT.
Our OT is a blessing. We did end up finding a really good one.
That’s awesome! I’m glad you did!
Omg no wonder I always loved getting my head rubbed and didn’t want it to ever stop 🤣
This is such an informative video ... I'm going to share it on my Parent Facebook group.
I love your video. Your explanation is very clear and helpful. Thank you
Thanks for sharing this! I have a brother with disabilities and there are so many more options, aids and programs available that were not available when he was little.
I have a diagnosis of SPD and it’s in my IEP including my anxiety disorders
My son had sensory issues when he was younger. Yes i said "had". We did tons & tons of thearpy with him & we got lucky. You are right we could not get an IEP for sensory but we were able to get one for speech. He still has sensory hickups now & than. But with my son he wasn't diagnosed with anything. So sometimes a child doesnt have to have a illness for sensory issues.
My son was sensory with feet.. Which delayed he's walking and when he finally started his feet went out OR tip toes.. Loud noise.. And textures with food.
Thank you for sharing. More people should defintely be made aware. ❤ ❤ ❤
Thank you for sharing too. ❤️With Naomi we had to really work with her feet too. Blessings 😊
I'm new in this journey and want to say thank you for your informative video. I didn't know about vibrating pillows, I think that might help my child!!! There is a lot for me to learn and I'm here because I badly want to help my child and in order to do that I need to understand him first. Thank you xx
Thanks for watching too.
2021 and still an amazing video ! Very informative! Thank you !
I have sensory processing disorder my parents never really worked with me with it and I mostly grew out of it other than social cues and remembering things but when I was little I couldn’t feel the cold or my fingers
Hi, found you from the lunch collab. I am a mom of 2 (aspergers/hEDS/SPD/VPD and Autism/SPD/APD/VPD/possible hEDS).
One is a sensory seeker and the other is mainly an avoider with some need needed sensory input.
We have lots of soft blankets, a trampoline indoors, huge Costco bear, play tent, kinetic sand, squish hand toys, scooters, water table, rocking chair, lots of pillows, yoga mats and dvds, pool, sensory lights, music, piano, and used to have a ball pit.
Oh and 2 therapy shih tzus 😊
We did floor time therapy that was very sensory based. Also private ot and pt.
Our biggest struggle is all the on-line time. It has been causing seizures. So our kids IEP teams have come up with some ways to help with accommodations and I bought blue light blocking glasses for both.
Hi LorieAnn,
Sounds like your busy too. I had a friend whose son had seizures to when he went online, especial video games. I have never heard of the glasses. Sound interesting. She does have him in a school for special needs, and they don’t have him use any electronics. We live in a very strange culture where it’s a necessity for some many things but can be so damaging in other areas. Keep me posted on their progress ❤️
Leilani, this was such a helpful video. My son suffered with hypo for a long time until he received OT and speech therapy. He has come such a long way but still deals with it in certain areas.. From about 4 until now he's kind of in between hypo and hyper. I have my moments when I get frustrated and don't know what to do especially since we don't live in an area with many outlets especially since the pandemic started. I feel like he's regressed a little with his sensory because of the pandemic. Appreciate this video so much right now though you filmed it 2 years ago lol.
That's why it's still up.❤ Thanks for sharing!
As far as sensory toys, I prefer the elastic squish items.
You do so well with the explanation. It was very informative and really makes it easy to understand. Very interesting.
Thank you so much! I hope it was helpful. If you have any questions - just let me know. I’m planning on linking up some videos that go into more depth with this topic.
This was very informative. Thank you so very much for sharing. 🤗
very informative, you explained it very well. I love the thing you said about not focusing on labels and focus on what’s best for your kids, please keep sharing! big thumbs up! 🍁🍂🎃🥰😍💖❤😘
Thanks.
I had a little boy in my children's church class that was totally fine if I was rubbing his head. I sat him beside me during the lesson, I stayed by him at the table, etc. If I needed to stop rubbing his head, a few minutes later, he would be in some random place in the room turning a flip or climbing on something. Back then, we had never heard of these processing issues that are seemingly ubiquitous today.
Very true. They just give names to everything now. 😆 But I love finding techniques that can I can use to help my kids grow and become successful.
that was great with loads of great information, my oldest has spd and he loves his big bouncy ball that he can sit on
Thanks!
My son has hyposensitivity. Especially with feeding. He can't tell when he has had enough. He also always walking around the house. He also has a relationship with the remote control. He won't put it down and he goes to bed with it in his pocket.
Thank you!!!thank you
This was a great informative video! You’re amazing at explaining information! That vibrating pillow!! Genius! 😊
Thank you!
I petitioned for a 504 for my 7 year old daughter because she was diagnosed with spd. Currently, she's being evaluated for an IEP. She needs that extra help.
SPD is not enough for an IEP unless there’s more (ADHD along with SPD). However- 504’s are used when there’s mainly SPD and there just needs to be accommodations put into place.
Very informative! I didn’t know that there was the hyper and hypo parts of SPD.
I didn’t either until I started do some research on it. It just made so much sense, right!?
This was amazing, Leilani. Thank you for explaining this. My oldest is very hyposensitive. He is always moving; he’s 5. He’s very sensory-seeking. Constantly touching someone. I tried gymnastics but he wasn’t into it. I found that I have to let him move to do school work. He needs to bounce, roll, move to concentrate. I’m stealing the head rub!!!!!
Thank you. Yes, the head rub is his favorite. Feel free to let me know if you have any tricks I can steal.
Living With Eve I was thinking about trying a bounce ball as a seat and a monkey balance board. He is most happy when I give him solo bedtime snuggles and we chat. He rubs my face and arm and I run his back if he wants. He seems most content then and talks me up.
My son is the best cuddler as well. He has to rub my skin. Mostly my belly when he’s relaxing or tired. My arms he likes to rub up and down and my face. He has to be touching me all the time. Loves to snuggle.
You share your video content so well! Its very concise, informative and relatable! My son is highly active and loves to wrestle and run, run, run . Sometimes its non stop lol
I COMPLETELY understand... all of the time ❤️
Very informative! Thanks for this great info!!
I was a teacher too! We have so much in common :)
Well explained.. my son is hyposensitive he is 5 years old. Is hyposensitive related to attention deficit? My son has too much attention problem.
Thank you for such more info, i knew a few who will find this useful😉
Thank you, that is very encouraging. I hope people will find it helpful.
This is so informative!! Can't wait to watch more!! New sub!! ♥️
Thanks! I am working on linking some videos to this one, this has been one of our most popular and I want to provide more feedback on this subject. Right now I’m reading up on some books and talking with my daughter’s therapist. So thank you for more confirmation, and thanks for watching!
Hello, new subscriber here thanks to That Homeschool Life. Look forward to following your adventures.
Great to have you on board. Thanks! I hope you enjoy our videos. Right now I’m uploading every 5 days, but hopefully I will be doing two days a week soon.
Thank you for this video 🙏🏻
Oh good, did it help? Let me know if you had any questions about it.
This is some great info that you shared.
I have the same opinion as you do, I really don't understand people who would love to get their child labeled. Seek help without the label... Look what you can do yourself.
We thought my son may be hyposensitive. But now I think he’s just a chronic toe walker because of a muscle issue.
In my state, my sister is an OT for the school district and spd doesn’t automatically qualify you for an IEP but if spd dramatically affects academics they could get one. But you could also get a document from the pediatrician to receive tools (like the bouncy chair, vibrating seat, etc.) during school.
Yes. I think it will eventually get to the point where IEPs are issued. However I know that SPD is connected to other Conditions that IEPs cover. Like ADHD, Autism, ect...
I was a toe walker, still am. My Mom justified it by putting me in ballet, which I excelled at. It never corrected the problem though. There are only a few positions I can’t be in without lifting my heals and it really no big deal. However, I still get made fun of... a lot.
In our district, they do 504 plans for sensory processing disorder.
That’s awesome!
i was diagnosed with SPD when I was younger and I try to control myself when I have meltdown loud sounds really bothering me and my activity program doesn't understand why I have a meltdown
What’s the name of the vibrating pillow you have? Do you have a link?
amzn.to/3Vv1iTP
Hi.. thank you for the video. Good to see the difference you listed but I think my child has both the symptoms from hyper and hypo is that really possible?
Yes. It is very complex. My daughter has both too.
Thank you for the info
Thank you for sharing!
Amazing video!!!!
I have often been confused is it all senses or is it different for each? For example can a child likes sound but hates touches
hi I am a teen with SPD and I go to public school and SPD does have IEP in the school that I am in😊
That's Great. What state if you don't mind me asking?
thank you for sharing this information. may i ask what type of insurance you have for Naomi? i have a 3 year old with ds and need to find therapist outside of the school but they are pricy. thank you in advance
She has CMS through the state because she has cardiac concerns.
What’s the special insurance you get for Naomi here in Florida ?
CMS
This was a very informative video. I'm just learning about sensory because my son who is almost 2, has the same sensory things as your son. We recently started Therapy for it as well. Also are on a waiting list for speech. The only thing he actually says is momma and he makes noises. He isn't able to communicate what so ever tho. We believe he has ASD. And are waiting for that in a month or two. He is my 3rd child, first son. Before we knew about any of this we planned to have another child so he would have a sibling closer in age, (b.c both his sisters are 5yrs & 7yrs older than him) so I just had my 4th child (&last😊) baby boy last month. But I'm so concerned and overwhelmed b.c I want to make sure I'm doing everything I need/should be doing for him. And also wondering if my baby boy will have any of the same things as my other boy. Sorry I know it's alot. Felt good to tell someone honestly.
Thank you for sharing your honesty. I totally get this. That same thought, am i doing enough, keeps me up at night too. It's so hard.
@@LivingWithEve Thank you! It's nice knowing I'm not alone😊. Sometimes it sure does feel that way. 🙏
How is your son doing now ,I hope he doesn’t have ASD and he is improving 🙂
@@ebtisamlutfi2955 wow I forgot I wrote this. 😊 yes, he is on the spectrum and we believe our youngest is too. I'm almost positive. They are amazing little boys, regardless. My oldest boy whom is a little over 3 now, has taught me so much about this life and that love needs no words💛 it's hard but I'd like to thank God for choosing me and my husband to be their parents!! We just got blessed with 2 beautifully wonderful little boys, who see the world a little differently than we all do🙏🏼🥰
My son is exactly as you described your son as a toddler (mine are 20 months). He is speech delayed along with his sister (she is catching up be he only has a few words he says very sparsley, looooots of babbling trying to talk) and are in speech therapy (started a month ago). The therapist told me this past week Eren may have Spd but she wants to give it a few more sessions to weed out the novelty of newness since hes lived in lockdown for a year. We may get referred to an OT for an eval. Which I am more than happy to do and get him whatever he needs.
Question: was your son speech delayed at all? Anyone else in the comments have this experience? He understands what we say, we just have to get his attention first.
Note: ADHD (could be spd due to the newness of the diagnosis) runs on my husbands side heavily.
I think its really easy as a ftp to jump to autism but no doctor so far things this is the case and he just needs constant stimulation. Because he makes good eye contact and is very social especially with his twin sister.
He was not speech delayed, he was actually advanced in pretty much everything. But SPD shows itself differently in each child. Alot of kids with ADHD have SPD, they got hand in hand. Same with Autism. Some kids only have SPD.
Good luck in your situation. Many prayers too.
How is your son doing with speech
Any improvement 🙂?
@@ebtisamlutfi2955 he has about 100 words now and is becoming more social. He is also a lot calmer. He has had autism ruled out, but adhd is still on the table as he gets older. He starts preschool early start for kids with delays in the fall. He is also doing chiropractic care which has helped him be calmer and focus better. He has been more social since starting that. He has a sublaxation in his c1 vertebrae.
@@kathrynsteele8230 so happy for him
U give me hope for my son who had same situation …Best of luck 🍀
We are on the same boat. My son 2 years cant speak and not getting much help from speech therapy. We and most professionals cant figure out exactly whats wrong with him. He breastfeed multiple times during night since birth till date. He drives my wife nuts looking him after. She even can't go to bathroom easily cuz of his clinging behavior. He has marked separation anxiety and wants mother in front of him all the time. His tantrums are constant and over small things. But what most worries us is his inability to speak. To be honest we are totally confused as how we should approach towards managing his problems.
My 2 years son has all signs of spd. Believe me its a sigh of relief when you compare it with possibility of asd lingering on in your mind especially when you know your child does not speak at a age of 2. In my case speech therapy is not working, should we switch to another therapist as suggested by someone. Or its a part of problem which will go away hopefully with time. Kindly share your expert opinion on this. And as he breastfeed multiple times during night time how should we approach with this problem. We want him to switch to formula feed but he throws away bottle whenever we tried. My wife is diabetic and she has no energy left after attending to his constant needs. He doesn't even allow her to go to a bathroom and wants her presence all the time.
Thanks for sharing! I'm so sorry it's been a struggle. And it is a struggle. Prayers for you are you continue this journey. ❤
True - you cannot get a IEP for a stand alone SPD diagnosis.
I believe my 2 yr old daughter has the hypo one, can you give me any suggestions on how to keep her from pulling the hair accessories from her head? She cant stand anything in her hair but will start putting the ends of her hair in the mouth. Thanks!!
What the OT has told us, if we want them to get use to it, be consistent and keep doing it. So if she pulls it out, put it back in. Eventually she'll get to use to it. That's the hope.
I have had what I describe to be SPD as an adult. I wanted the lights off and to shut my ears due to being overwhelmed. Thank God for chelation therapy from the Andrew Cutler protocol. I know causes and diagnosis for individuals is different but I have been blessed to find a cure. 💕
Do they ever fluctuate between hyper and hypo?
Yes, they mix and can be different for every person. For example somebody could be sensory seeking when it comes to taste but not when it comes to tags on clothing.
WOW... super mom...🌹
I'm grandmother mother to a 2 year old that had spd....how can I help him with self hitting when inpatient....turn taking...being told no to something that maybe dangerous.
Any advice would be much appreciated.
Consistency. It’s never to early to start putting him in time out, redirecting (getting him involved in another activity or showing him how to act appropriately), or even just telling him no, nice hands. However, you may want to speak to your pediatrician as well. Occupational therapy has ended up being a huge blessing, especially since you have a professional working with you and him on a weekly basis.
My daughter has sensory issues I think. Like your son always moving and nose diving over the couch but also sensitivities to noise, new places routines food etc. Think ADHD plays a big part. She is medicated... shame you guys don't have Medicare. I get her medication for 5 dollars but full price is 125 pretty insane.
Sharing your content. #VeryUseful 🔥❤
Thank you 🙌
Oh help preschool is to much for my daughter at head start to much other parts shes a seeker my youngest has down syndrome I have add.
I really need more inquiry with this this is something new that we just found out in the last couple of days if you could respond back and let me know what to do
I would need specifics. I did do another video on it...ua-cam.com/video/EekjDz5d4pw/v-deo.html
That might help?
Can you be both cause I act like both and I'v been diagnosed with it
Yes! SPD is not at all black and white. It's actually all over the place, like spaghetti.