This is such an important video. As a psychiatrist I can appreciate how mental health services can make things worse; we work within a very rigid, standardised model where everyone with psychosis (or indeed any mental health problem) is treated in the same way. It's not adequate and it certainly isn't right. I see so much hopelessness amongst mental health professionals about their patients lives and it is so refreshing to see this other perspective. Definitely a video I am going to share with my colleagues and my patients. Thank you so much for sharing your experiences - we definitely need more of them. I feel that mental health clinicians have taken over the conversation about mental illness for too long.
@@lovelyswimmer1 Totally agree. The town I live in has very little in the way of stuff that helps people with metal disorders and there is a lot of stigma. Though I am very lucky to have come across a place where I was able to get a really good therapist who has helped me so much. Not to mention a good family friend was able to get a job there as a therapist and he has been able to help so many people.
Josie -- the rock drummer Jim Gordon was a nice guy. He's committed now. Played for decades on almost every major hit record, for many famous recording artists who said he was fun to be with. But he has schizophrenia & he murdered his own mother -- suddenly. Just be careful. That's all. Be careful. You can avoid the stigma, but always be aware. For your benefit -- and for his. Boyfriend today may not be the same person tomorrow. This is what many people under-estimate. I'm sure Jim's mother loved her boy and was proud of his musical success -- so what happened?
The first lady with red hair, I absolutely loved how frank and honest she was about her symptoms and how she cut to try and get the demons out, because when I got to that level, it was so hard to be honest because people get frightened when you really tell them what's going on in your head if you even can tell them. Amazing video, thankyou
@@asedafghan1 are you Christian? Have you prayed for deliverance? I'd recommend laying hold of some holy water, praying, reading the Bible out loud, etc.
When Debra started crying driving past the hospital it broke my heart... she must have so much PTSD from the way she was treated and being committed so long, and seeing others like her suffer... mental health treatment has really come so far in the past few decades, but we must never forget how awful it was not too long ago
While growing up in the 70’s I had a friend in the State Mental hospital and thought that this was the most horrible place ever…here recently I’ve been teaching University courses in a U. S. State prison. It was full of Mental patients… and it was 10x worse than the State Hospitals of my youth. We really need to change how we address this disaster!
Dude, this is certainly true for some schizophrenics. I have been diagnosed with it and i for some reason have always had hope. I for the most part had a hope even when i felt i had none. I do take my meds everyday. On time. My new psychiatrist doesnt understand how well i am now cause she doesnt even try to get to know me. I unteach myself the lies or false thoughts in my head and that has helped me so much to get better. Very good video! #thereIsHope
The roller-skating scene with Elyn Saks was really beautiful, and the "I'm a lifer" part was really touching. It's so inspiring seeing such strong, and successful people share their stories.
Very empowering reminder to those of us who suffer from schizophrenia, like myself, that some people do recover and lead relatively normal and fulfilling lives. The other day I read the statistic that 25% of those diagnosed improve with time and 25% actually recover. I hold on to hope that I'm amongst this 50%. A possible oversight of the video is that it somewhat misrepresents schizophrenics, portraying these three very high functioning individuals. Schizophrenia is considered one of the top 10 most disabling diseases by the WHO. It greatly reduces normal functioning capabilities in many sufferers. It might have been helpful to interview a few people who were struggling with things like living independently, having friends, having organized thought, holding a job. All of the aforementioned are not the norm for the average schizophrenic. This video does replace a lot of bad stereotypes with some positive examples of success. That shouldn't be diminished. This was such a valuable video to watch because it brings hope, but hope can be balanced by sobering realism too and not lose its value. Thank you for reading/listening. 💙
Just your willingness to improve your mental state by yourself surely puts you into that 50%. If you think you can you have a good chance. If you think you can't you're definitely right.
Thank you for YOUR balanced input! I wonder, though, if some of the disabling, lowering of functioning, inability to hold a job, etc that too often comes along with schizophrenia is _because of_ treatments and psych wards that treat patients like some of these people were treated. Perhaps being strapped down to a bed 20h/day, having your brain zapped with electricity as punishment, and even just being viewed as a “problem child” or “crazy person” by the staff, and so on does immense damage and actually becomes a self fulfilling prophecy of “you’re weak; you’re incapable; no, let me open your juice box for you, you can’t do that.” Disclaimer: of COURSE there are many many good psychs and psych wards, but I’m just wondering if care workers treating a patient like they have no agency in fact rips their agency from them. Basing this in part on the numbers I’ve seen that suggest that, before the invention of antipsychotics and other modern treatments, schizophrenics were no more likely to commit su!cide than the gen pop.
My twin sister was diagnosed with paranoid schotzophrenia at 18. She was just starting out at journalism and had to stop her studies. She was hospitalised and put on heavy medication and has been pretty much a robot since then. She's been in and out of hospital over the years.. She chose to do nothing with her life. She still Ives with my mum and is quite happy being a "house maid" where she's in control of all the cooking and cleaning at mums house. She is happy with her life. More happy than I've ever been with mine. She's been stable and well for a while now. But she lost her ersonality pretty much when she became really ill. I pretty much lost a sister and best freind when she got sick.
It's disheartening how close to a healthy, young adulthood people with schizophrenia can come. The onset of this disease frequently occurs at such a weird time, but it is good to hear stories about survivors who have not let it become completely debilitating. I bet your sister is a pretty damn good house maid!
Kitty Bonbon The heavy medication cut off the feelings, i have been on neuroleptoca medication, and it made me to a zombie. But the feelings/the personality came back when i stop.
It is saddening that you think that way, if you gave her a chance you will see something valuable in her that you could be open to and open up to. I understand I might not know your situation 100% though if it's anything like mine ie my friends from my previous college don't talk to me or try to talk to me. I've changed but I am not someone who doesn't feel bond or don't feelings. I have a decent amount of friends I can call everyday and they DONT complain about my lack of personality. This illness(and every other illness) needs emotional support. Sorry if I'm judging hard, I'm just trying to be efficient with my time.
Big Kahona so sorry to hear about the loss of your sister due to mental illness. Your sister is now your Angel and I am sure you loved her very much. Stay strong and again, so sorry about your loss.
So sorry. Seriously. I have D.I.D. 50 yrs now. Finally at peace but cannot work full time. Have no spouse- never married. Just me. Income? It's 1 thing or another. Soory for your family's suffering. Peace.
MY MENTAL ILLNESS LIFE: Its a shame how the black community doesn't understand the severity of mental illness,my dad expects me not to tell my job interviewer that i suffer from a mental illness,i guess on the bright side i been doing good for months almost a year on my medication but im scared to go out in the real world & work and having the possibility of having a break down than ending up getting fired for omitting my mental illness,although i do think my senses are heightened like i pay attention more like whats going on around me....im finna turn 18 i just hope my life just turns out good,you know have a wife, maby a kid or two,buy groceries that type of stuff ect.... God bless everyone in the name of Jesus
twan's world I wouldn’t tell my interviewer about my mental health issues from the jump .. that’s a conversation I would have once I was working there with the appropriate person
Same goes for the Hispanic community they just think your filled with bad spirit or you do drugs . They just tell you too pray. I have Schitzo-affective disorder so i understand how it is. I take medicine it helps alot. I recommend going to a Dr. and getting the help your self like i did. Your family will undertand once they see how diff you are on meds. I used to hear voices,i used to be suicidal but not anymore . I wish ya'll luck .
Beautiful, inspiring story. Thank you to these incredible people for sharing their stories. Mental illness has such a terrible stigma in the USA. It's wonderful to have a face put to the disease that will hopefully help people see that this disease does not prevent people from leading successful and productive lives.
Thank you for a very inspiring story. I so much agree with the fact that those who hold on to hope and believe they would get well, are those who get well. I could never except that I would't recover from schizophrenia and kept on saying that I would get well and will become a registreret nurse. This, I was told, was a delusion. I was doing my training when I got ill. I was told numerous times, not to hope and give up my dream and accept a life where I was constantly depressed and apathetic. Today I'm on no medication and have no symptoms and, of course, going back to nursing school and get my bachelor.
I was diagnosed at 14. I find it best to keep to yourself ! I told a very close friend and have never seen him again, he told his wife to stay away then man is crazy
I have schizophrenia. They have me on paliperidone. The medication is hell. I’m being forced to take it. The medication is ruining my life and it’s scary because it feels like my life’s on the line. Some of the side effects are chronic aches and pains, chronic fatigue, horrible mental feelings. Struggling with all self cares can’t shower, can’t do the washing, can’t change my clothes, can’t brush my teeth. I’ve developed chronic problems. I’m trying to get help from the system but they won’t help. I’m fully disabled and need to be in hospital. I’ve been dumped back in the community to get on with it but the medications crippled me. The system is still cruel if you’re unlucky like me and the medication affects you this way. Please if anyone reads this please help.
had lots of psychiatric help. best I've had was right here. thanks for putting a light on the path to recovery. as always working hard at it. sincerely.
It is possible to live a life without limitations even with a severe medical conditions. We must fight stigma and must NEVER, NEVER determine who should other people be and what should they do with their lives!
My biological mum has schizophrenia and she seemed so innocent and childlike and the way some of her family treated her was shocking and appalling it made me really sad. The lady that spoke first said they are too sensitive for this world is very beautiful. I think the treatment and attitude for mental illness is still frightening for the patient.
"The only person who can heal me is me"- so true. I had help with medications and some of my psychotherapy helped me but I had to find my place in this world by staying positive, taking risks, to accept myself and find my own ways to cope.
Watching this amazing video made me sob for a number of reasons... mostly because I see and feel my/our own personal life through these stories. Debra - you touch me especially and give me so much hope - your story is confirmation of what we believe is possible... of the incredible human potential. Thank you! You are amazing!!
This story was so hard to watch, however this episode did a wonderful job at showing truly what people who suffer from mental disorders deal with. I sincerely beleive People who suffer from mental illness have such a struggle because it's not a physical deformity or something others can see on the outside that's "wrong" so I think a lot of people go undiagnosed due to shame or misdiagnosis. I can not even imagine what these folks have to deal with and I hope that there will be more awareness and help for people in the future. All of the stories here on this channel are Truly inspirational!
When Debra explains that she waited 18 years thinking that mental health professionals could fix her, I couldn't agree more. I am 30 years old and since 17- I have sought doctor after doctor for help, without truly realizing to the fullest extent (like I do now) that the healing was within me.
Such a compelling piece in so many ways...When Debra was being driven passed the institution she lived at for so long, & I saw the sign, "ASYLUM," I cried...I'm actually humbled by the journeys of these three courageous individuals...How important their work is Worldwide...
Just seeing your 3 year old comment. I hope you’re doing well. I know it can be a dark journey, and one that may never end, but there are ways to deal with it and have a mostly normal life.
You’ve got a whole life to live, don’t miss the ending. My grandpa had it and died happier and more successful than most. Gut health helped him recover. Recovery is possible.
Awesome documentary, very well made. Thank you for posting.'about People who are too sensitive for this world". My brother was one of those people too sensitive, he passed away misunderstood, but he was able to use his creativity and left an impressive artistic legacy.
WOW!!!! Never would I have expected to have seen something so incredibly eye opening on this subject!!! I LOVE that she has not only achieved a lovely life outside of the hell hole she was forced to be at for 18 years,, but she has now gone on to help others understand that they don't need to live under the dire diagnosis of "life sentence" in being "mentally ill" with a named diagnosis that is SO misunderstood. It has literally blown my mind to watch this and it gives me so much hope to learn how there are also others that have healed and moved forward with their lives to a good way of living!! They ARE right....many others DO struggle with extremely strong emotions and might also be influenced to believe that they also are "crazy"!!! Well done!! I am SO VERY HAPPY for you all and all those who will benefit from your hard work!!! Thank you for sharing!!!!
My grandma has schizophrenia she had treatment a few years ago and it seems as if it's gone now because of the medication, however, now being off the medication she has been slipping in and out it, I find her laughing and chanting randomly sometimes. I do feel sorry for my grandma because she has been through a lot, she came from a place of war and death. I actually think that's what triggered her schizophrenia.
Thanks for sharing Ena, we are sorry to hear of your Grandma's story. Hope you are both well. Thanks again for watching, we hope you enjoyed the episode!
My mom suffers from schizophrenia since she was in her 20´s and now she is 58 years old And she is not doing okay at all I am so proud of the red hair lady she just warmed my heart If only mom was as brave as her but she is following her fate 💔💔
Our fate is most of the time in our control. I'd sugggest CBT and / or mindfulness meditation therapy. Also, a healthy lifestyle helps lower stress. Volunteering in her community too (makes life more meaningful & provides opportunities to socialize).
Debra’s work and experience really effected me, bless her and everyone who has fought mental illness itself and fights for others!!! Bless all of theses wonderful people. Just imagining the fight to just survive and energy to make a life for themselves. Telling their stories really gives hope and comfort for so many people. I have a son who has schizophrenia and these types of stories and people actually give me hope! Thank you to EVERYONE who has helped the community with mental health issues
When she started to ball her eyes out...took me back to ptsd episodes of being forced to try and figure out math in school. Hours of not getting it and people still made me sit there. ADHD kept me from learning math
I just got better from Schizophrenia. She said she owed those patients so much, and they contributed so much to her wellness. I felt the same. I tried many ways. I read and recited classics. Hope patients can be healed. 🌟
When I was in college, I started to think that I had schizophrenia because I kept thinking there were cameras in my room. It turned out, this was pretty much true, but people kept telling me it wasn't. I'd go back and forth between believing them and believing myself, ended up leaving college because I was so confused, and picked up a diagnosis of Disorganized Schizophrenia in the process. I am not playing the victim. I truly believe people; and when they say I am demented while understanding that I am being watched, I believe them. ^^The above experience isn't quite the same as mine--this woman seems to truly be dealing with schizophrenia--and she is amazing for doing so many things with her life despite this illness.
Attitude Oh no, I didn't think I was directing that at anyone in particular. Sorry, it wasn't really a response to the information in the video so much. I just wanted to share an experience, like you said. :) The people in this video seem to have incredible insight into what it means to have schizophrenia; including all the PROS and cons. Plus, the guy skating around in rollerblades while he is in a suit and tie, with unkempt hair, was pretty awesome. I appreciate the video! Thank you!
I've had many failings in my life. Right now I just want to start on a better path and I have this opportunity. I hope you do too, and I hope that you have somebody there to help you pave the road.
Great item and hearing others sharing hopeful experiences just made my day. I have battled the “illness” and all the stigma that follows since I was eleven years old with little room for hope and healing.This gave me a different perspective. THANK YOU SO MUCH 💕
This is very inspiring! I have had schizophrenia all my life (diagnosed at 18 ((relative to the fact that’s when testosterone peaks))). I’ve always loved learning I scored ridiculously brilliant on the knowledge scale of the IQ test. I want to go to college, I think I just might. But I’m now 27 and there are bratty kids there who might make fun... If you know the story of Elyn saks and her potential. It is ridiculous she is still alive. If you’re interested in schizophrenics experiences I must say. Our experiences are similar if not entirely ambiguous. Research Rachel star... not the porn star... type schizophren story after..
Shepherds Outcry I have ADD and Aspergers but wasn’t diagnosed til I was almost done w/ high school. I know it’s not the same as schizophrenia at all, but I went back to school as an adult, and although I got really frustrated sometimes, esp that I had been allowed to quietly zone out and miss most of the k-12 instruction I should have received for free (I hadn’t even known how to do long division). BUT, it’s so worth it, bc a lot of subjects will stretch your ability to think, and to problem-solve, in ways you can’t even anticipate! There are also lots of pretty cool services, like a quiet testing room, and even the ability to wear noise canceling headphones for exams, by providing documentation of your diagnosis, to the differently abled student services department at your school. The kids in your classes are going to be focused on their own experiences. I used to have silent tears running down my face, during every math class, but I worked my way up from the most remedial possible level of math, all the way up through calculus. Now, granted, I spoke w/ my profs during their office hours, so they knew where I was coming from (so useful! Then, you have allies who can offer better support), but nobody ever hassled me, or was mean to me, despite the fact that I was very obviously struggling (I sat in the front row, and kept my hair down, hoping it covered the sides of my face, but I’m pretty sure it was still pretty obvious). You can totally do this; just take it at your own pace, and know that it may not be easy, but it will open so many doors for you, both in terms of your self-image and self esteem, as well as opportunity in the larger world! I hope that’s useful perspective :)
Thank you all. This is very uplifting and definitely worth sharing with people who are struggling, their families, as well as staff working in the mental health sector.
The sensation of over whelming, sadness, grief and the journey to the past can cause a profound reaction. I am still working with people who have to deal with their past while commendation the present. My patients thank me for my ear and consulting.
Schizophrenia has so much stigma, even in the healthcare world, which really affects the quality of care people receive. One of my best friends developed schizophrenia, and although it’s a tough disorder, it is treatable and manageable! Half the battle is finding a team of doctors and therapists who believe in you. I agree to the one guy who said the biggest part of treatment is hope because I’d totally agree. ❤️❤️ I hope this is the next disorder that undergoes a revolution of how we treat and manage symptoms.
I love Debra and just hear truth from her. You have to be active in your own recovery. And you have to have some kind of hope... which most doctors never provide.
i am so proud of people like you. you faced the illness head on.,and beat it. i too have schizophrenia and can relate with you. the struggle is mind boggling. the pain and loneliness is real.
Yeah I always like watching these kind of videos and scrolling through the comments because it reminds me that I am not alone. Even though I am the only one I know that experiences these kind of things.
hi Attitude, thank you very much for uploading such a wonderful content! im from indonesia and enjoyed your channel, this is best channel and so inspirational stories all over it. and the most important thing is this give me insightful mind which is i know what this is be like and hearing their stories, well-educated content too ! i will be telling everybody about this wonderful channel :) keep it up!
Hi Bella! Thanks so much for your lovely comment - and great to hear we have fans in Indonesia! We hope you subscribe to our channel and stay tuned as we have many more great films lined up for this year! 😀
I've been a Psychiatric nurse for over 30 years. I've always provided the people in my care the utmost respect every human deserves. I believe we've come a long way but need to opens others minds regarding mental illness.
Thank you for doing what you do. I know you've never cared for/treated me, but I appreciate you so much for treating people like me with respect and empathy. It makes SUCH A HUGE POSITIVE DIFFERENCE to be treated like a *person* when you're deep in the illness and in such a vulnerable state. The world needs more people like you. ♥️
When I was a child, mother taught me that people who heard voices were scary and would never be able to regain their sanity. She made it seem like they chose to be deviant, making me despise them. She even said that people who had outer monologues were crazy and needed to be avoided. Reports such as these made me view schizophrenics as actual people. It pains me to see how much a lot of them have been mistreated.
When the first woman starting crying when she at the psychiatric hospital and hearing a hundred voices, I actually started crying with her. It just reminded myself of my own schizophrenia.
My son has been diagnosed with schizoaffective. It's been very challenging to say the least, but we have faith there is a light at the end of the tunnel 😔 Thank You for sharing your story
Debra Lampshire must be proud to be in the company of Elyn Saks and Paris Williams all of them are inspirational people. 🇳🇿 I wish I had come across this video 7 years ago.
I am thankful for your insightful, inspirational video. I also want to tell you that I am relieved and happy to hear the message here regarding understanding of mindfulness as applicable to anyone, especially anyone who needs to learn their mind's behaviors and being able to learn to slow their thought processes. I have much schizophrenia in my family and therefore, have been able to see up close the issues people with this illness have with cyclical thoughts that they need to learn to slow and sit between. Much peace is gained through that practice, so that is wonderful to bring up during this discussion. I love the whole approach to viewing schizophrenia as just another life process that many people have to go through for whatever "reasons", and the focus on the POSITIVE aspects of each person and their life, so tyvm. Great work. :)
Paris Williams is relatable to me. I often avoided personal issues with myself by doing active tasks or creative tasks like drawing. It helps me to cope with my personal dramas. It is totally running away from the problems. Though sitting down and facing them is hard but it works so much better when you really want to feel better again.
I started having hallucinations when I was 5 also- the good ones were the fluorescent bubbles that whispered quietly and didn't scare me. The ones that frightened me so were the snakes and my mother's arm cut off with a snake wrapped around it. That was the beginning or 60 years of struggling with severe paranoid thoughts and somatic as well as some grandiose delusions. Finally I am on the right track and am on medications that help me to have a life- I have published 6 books of poetry illustrated with my artwork and am working on my 7th. II have stayed out of the hospital for 10 years now. I was extremely anxious as a child and an adolescent. I still talk to people in my head but that comforts me. Schizophrenia doesn't have to be a 100% nightmare. I live independently, enjoy writing poetry and ding different kinds of artwork and jewelry making. My parents were obsessed with the stigma of schizophrenia. They died when I was 36= now I am 65 years old and am really quite stable. I am not symptom free but now I have awareness and good coping skills I even have a couple of good friends now and also enjoy being alone. I can honestly say I am happy for the most part, I take my medication and have a life. I have been in treatment since I was 14 years old and am wiling to keep fighting.
Thank you for hearing your story,it sounds amazing and like you have really had access to a creativity that many people do not.I really hope more people get to hear stories like your and the ones in this documentary,I think things like schizoprehnia and other so called mental disorders get very misunderstood and therefore mistreated as well.I'm glad you are able to live a productive happy life.I wish more people had the opportunity to recover and make meaningful lives and not have to fight against a mental health system which often further traumatises them.Maybe you could do podcasts or share your experiences with more people ? and share your insights.I'd be interested in seeing your poetry and art,I think more people need to hear stories like yours
@@airasarsoza9342 Thank you for your empathy. A lot of people just do not understand how it feels. But no need to be sorry because I have been blessed in many ways and no matter how much I have suffered there are always going to be people who have suffered much more than I have. I have a nice home, an extended family who loves and support me a few close friends and the gift of creating art and writing poetry. My ability to be creative is such a wonderful gift that nobody can ever take away from me. Believe me, it has been the saving grace- now going on 14 years that I have stayed out of the hospital. I am grateful for the amount of stability in my life now. Thanks so much for caring and I wish you the very best!
I want people to know that being people are helped with hospitals. There are very few institutions that are long term - and many people profit from short term hospitalization.
Sorry to hear. :( I still think with some of my voices, but I don't hear them. I started out young, like this woman. My earliest memory was the roof, but I also tried to jump out of a car. I climbed on the roof and voices told me I wouldn't die if I jumped. My grandpa saved me.. I saw things when I was younger as well.
I haven't heard voices for years. I have other issues, like with cues (reacting to stimuli) and cognitive problems. I'm thankful I don't hear voices anymore. I'm on prolixin and latuda.
That's good that you don't hear any voices anymore. What are these cues? I don't really know what that is. Do you have a lot of side effects from the medication?
My sister has it. She's 16 years older than me. Our family life was hell with her. Mum & Dad tried many times to get her medical help. She would physically abuse them at the doctors & at home. Me included. I was 12 the 1st time. She is now 70,our parents are dead. I blame her. I have no time for her. She always refused medication saying there is nothing wrong with her & still does so to this day. No friends & no family want anything to do with her.
28:07 Hi. Thanks so much for sharing this video. I have schizophrenia and used to work as a doctor. I am working towards going back. I needed this encouragement today after hearing how hard it can be due to stigma. Thanks so much for making this video!
Wow, I didn't think you could come back from Schizophrenia. What amazing People; it is heartbreaking to see how badly people with mental health problems are treated. I watched a fascinating Stanford lecture by Professor Robert Sapolsky on Schizophrenia; apparently it most commonly emerges in young adults as a result of trauma or a stressor that triggers a Schizophrenic episode.
I am an avid #MentalHealthAwareness advocate and performer, and I love this so much. I travel the country trying to bring that awareness on stages, in classrooms, hospitals, and on my UA-cam channel, so I get excited when I see other advocates. 💙❤
My dad was schizophrenic, it happened when we were children, they put him thorizene, it was awful medicine. That happened in 1960, the mental hospital was awful. Shock treatments helped for awhile. He passed in 1995. So sad for dad and our family.
Elyn's husband is refreshingly intricate and noticeably careful with his word choices and the way he talked about his wife and her health. He seems caring.
I lost a very very dear friend, during her brave, unbelievably fierce battle w/ paranoid schizophrenia. Literally the only thing I could do for her, was to offer her tea, and the company of myself and my then-toddler-age kiddo, without judgement. I tried to listen, exactly the way you’d want someone to listen if you’re describing a terrifying, larger-than-life nightmare you’ve experienced. She would watch my face for the slightest clue that I was judging her, when she’d describe aspects of her day to day experience. I made sure she knew I was a safe person to talk with. Later, I spent a lot of time blaming myself for not having done more to help her, but all of our mutual friends who tried to help more assertively, she cut off ties with. A little less than a week before she died, she asked me for a recommendation for a good therapist and psychiatrist, and I was able to provide both recommendations. I found out later, she had called for appointments with both. She and I had had last spoken on a Monday; had made plans to meet up on a Wednesday; I didn’t think anything of it when she didn’t show, bc mental health struggles aren’t usually predictable, and then I got the call, that Friday, that she’d died (by suicide). She was so brilliant, creative, compassionate, and determined, and she fought it out, for so much longer than I think most people could have done, given her particular intensity of hallucinations, before she died. Here’s my question. Is there actually anything I could have done differently, which could have helped better? If I am fortunate enough to ever have the chance to offer support to anyone dealing with similar struggles in the future, is there anything which anyone who directly experiences/has experienced schizophrenia can suggest, in terms of actionable specific ways we can help? Thank you in advance.
Hi Charmaine - thanks for reaching out and glad you liked the episode. Not sure if we can help but if you send us an email at info@attitudelive.com we will see if we can connect you.
My ex took acid everyday for more than a month and got admitted to the hospital where they told her she has schizophrenia. Now she is still in the hospital but I hope something like this becomes part of her story 💜
The idea of restraint makes me feel panicky. I’m not sure you could do something worse to someone already feeling highly anxious and suffering paranoia and delusions.
Watched this because my childhoood best friend who I went to highschool with and lived on the same block with , who was seemingly a normal person with no mental problems and was like that for many years until one day when he was in his early 20s he just changed almost over night he didn't know who he was and who we were and he was hallucinating and could not even live without a supervisor , I was so hurt and confused about it , I always thought you had to have something like a head injury or be born with this to have that happen , they said his was a genetic cause source and he inherited it from someone in his family that had it , but it was so bizarre that it just suddenly set on , I cry thinking about him all the time , he is like a brother to me and now he doesn't even know who I am or even really know or connect with anything in reality from his perspective , it's really hit him hard , I would still try to see him and try so hard to just talk like we normally would if he didn't have it, I would try to tell him about all our old times and good memories just hoping maybe one day something might spark something in his mind even if was only for a second and he forgot again, I just hoped maybe there was something still in him somewhere , just mixed up in all that distortion and cluttered maze of brain signals firing and other stuff jumbled up in him that was going on.. unfortunately not long after his condition set on he had to be homed into a facility with 24 hour caretakers and it's almost 10 hours away from me and I don't have anyway to go even visit him , I still hurt for my friend and it's really tore me up over the years now since it's happened , i used to say it felt like losing a loved one from them passing but now I actually feel it's somehow even worse than that because it's like I can't shake the feeling of hoping one day it may just run its course , and he will just wake up and be back to the way he was which I'm not trying to say isn't possible because miracles and cures do and have happened to all kinds of people with all kinds of conditions even this as many cases have shown , I guess that's why i have such a hard time with it even more so now even after having been going on for over a decade later , I just hold on to the idea and pray and I pray for his family members who feel just like I do , it's been a very painful experience in my life , I've lost people too , even parents and close friends , but it's something I've had a lot more tole on me to cope with, it's like I never really feel like I can maybe grow to grieve and accept it and understand its the way it is now and accept that I can't do anything about it and have to try and let it be as it is and go on so I can live with some feeling , of closure maybe? Or maybe that's not the word or what could really even be closure in this case , I just hope he is at least, if nothing else , found some sense of his self and who he always was , where ever his soul is not just his physical self that contained it ,Matt was too big of a soul and energy to be stuck to just some brain signals moving around , he was a Free spirit and loving heart that was kind to everybody and everyone who knew him , knew that he was too , I like to think he just took spiritual journey apart from this material realm and just left his body on standby , while he travels in a peaceful getaway , I love ya man , I don't know why I felt I have to speak about it personally on here but I was drawn here from thinking of you because I'm trying to understand , I'm searching for whatever I'm supposed to get from this happening and I feel like it helps me altleast keep on keeping on I know that's what you'd want me to do , I know it'd hurt you just as much of you thought I was so down over what happened to you and sad and not trying to atleast be strong , you always were the big guy , I was the little short nerdy kid you always pushed me to get out of my sheltered reclusive ways and I'm so thankful for that , I'm glad you helped me tough it out and quit being a wuss haha I feel like that has got me through alot in my life even now , you taught me alot and I hope you know how much I looked up to you and the better person you helped me see that I was , I hope anyone going through this or knows someone that is will find some thing similar in the maze of it all, I might not understand why it has to be like this or why it had to happen to you but I can have a sense knowing no matter what Its the bond we have and the memories we share that keep me hanging in there and helping me get through it , this whole world Is kinda like what ever schizophrenia is , it's all just a scrambled up mess and I'm lost in it all too sometimes , at least I had a hiking buddy on the way , maybe we'll all meet up again by a bonfire out there in great beyond just like old times and we can catch up on it all , without the noise and craziness from the world going on around us Till then i guess ill be missing ya man kevo
So true, stay on your medication. I respond well to mine and it keep me in my home and in my life. Without it, abilify, 15mg, I would be on the street and in jail. I am trying to become a Peer Support Specialist so what I have been through others won't have too and people can relate to myself and I to others.
I didn't get in on my peer to peer support classes on this round but I will keep trying. It's a bit of a disappointment but it gives me more time to volenteer which is what I need to get in in the next round. Thanks for your support.
This is such an important video. As a psychiatrist I can appreciate how mental health services can make things worse; we work within a very rigid, standardised model where everyone with psychosis (or indeed any mental health problem) is treated in the same way. It's not adequate and it certainly isn't right. I see so much hopelessness amongst mental health professionals about their patients lives and it is so refreshing to see this other perspective. Definitely a video I am going to share with my colleagues and my patients. Thank you so much for sharing your experiences - we definitely need more of them. I feel that mental health clinicians have taken over the conversation about mental illness for too long.
Thanks for giving me some more hope
yes i agree. this has been going on far too long. mental hospitals need to treat patients in a more humanistic way.
🧤
"To sensitive for this world."
Yes, we are. I believe that is the reason many of us are labeled "mentally ill".
Why should that be the reason of the labelling?
The Australian lady is an incredible soul. Most of us would crumble in her shoes. Such a powerful will.
Debra is actually from New Zealand - she's pretty amazing!
I wish there were opportunities like this in the U.S. The U.S. just loves to commit people with its pills and hospitals.
@@lovelyswimmer1 Totally agree. The town I live in has very little in the way of stuff that helps people with metal disorders and there is a lot of stigma. Though I am very lucky to have come across a place where I was able to get a really good therapist who has helped me so much. Not to mention a good family friend was able to get a job there as a therapist and he has been able to help so many people.
@@AttitudeLive Fsh and chps
@@AttitudeLive can you tell me,did she try to control herself without medication?
My boyfriend has schizophrenia and he is the most loving and kind man I've ever met 💗 please everyone avoid the stigmas. They aren't true.
Josie -- the rock drummer Jim Gordon was a nice guy. He's committed now. Played for decades on almost every major hit record, for many famous recording artists who said he was fun to be with. But he has schizophrenia & he murdered his own mother -- suddenly. Just be careful. That's all. Be careful. You can avoid the stigma, but always be aware. For your benefit -- and for his. Boyfriend today may not be the same person tomorrow. This is what many people under-estimate. I'm sure Jim's mother loved her boy and was proud of his musical success -- so what happened?
Your hot. If ypur ever single. Message me
roger robinson
Jesus Christ can help you. He has helped me and my family
roger robinson I’m sorry bro.... I’m sorry
thats beautiful
The first lady with red hair, I absolutely loved how frank and honest she was about her symptoms and how she cut to try and get the demons out, because when I got to that level, it was so hard to be honest because people get frightened when you really tell them what's going on in your head if you even can tell them. Amazing video, thankyou
Hi Amber, thanks for your message. Certainly a confronting topic for the talent involved in this documentary, we are glad you enjoyed it!
Amber Rose O'Sullivan her accent oh god I love it.
How can I get rid off deman I have 5 off them?
@@asedafghan1 are you Christian? Have you prayed for deliverance? I'd recommend laying hold of some holy water, praying, reading the Bible out loud, etc.
❤
When Debra started crying driving past the hospital it broke my heart... she must have so much PTSD from the way she was treated and being committed so long, and seeing others like her suffer... mental health treatment has really come so far in the past few decades, but we must never forget how awful it was not too long ago
That woman has %100 pure empathy. Beautiful soul
I completely agree with you other Hilary. She’s an amazing woman.
@@HilaryIsOkayssss can you tell me....please that woman didn't tell about her medication?Is she taking the medication or not?
While growing up in the 70’s I had a friend in the State Mental hospital and thought that this was the most horrible place ever…here recently I’ve been teaching University courses in a U. S. State prison. It was full of Mental patients… and it was 10x worse than the State Hospitals of my youth. We really need to change how we address this disaster!
as a psychology student hearing from academics and people who are working professionally fills me with so much hope and all I can say is thank you
Glad you enjoyed this video! Thanks for watching adagio nine!
Dude, this is certainly true for some schizophrenics. I have been diagnosed with it and i for some reason have always had hope. I for the most part had a hope even when i felt i had none. I do take my meds everyday. On time. My new psychiatrist doesnt understand how well i am now cause she doesnt even try to get to know me. I unteach myself the lies or false thoughts in my head and that has helped me so much to get better. Very good video! #thereIsHope
I love the smell of grass. It is a resource.
bRe bEfreE with all my heart I wish the best for you. I hope you continue feeling good for many, many years. Hang in there. You are a truly hero.
sending you love
@@befreextcify can you tell in easy words,how are you managing your symptoms?Are you still taking medication?How do you cope with your sczophernia?
@@befreextcify how are you without meds?
The roller-skating scene with Elyn Saks was really beautiful, and the "I'm a lifer" part was really touching. It's so inspiring seeing such strong, and successful people share their stories.
Thanks for watching Sara - happy to hear you were inspired by our documentary! 😊
I want to be able to roller skate at her age.
@wert nert Beta
@@AttitudeLive can anybody tell which things work without side effects and what about CBD OIL?
Very empowering reminder to those of us who suffer from schizophrenia, like myself, that some people do recover and lead relatively normal and fulfilling lives. The other day I read the statistic that 25% of those diagnosed improve with time and 25% actually recover. I hold on to hope that I'm amongst this 50%.
A possible oversight of the video is that it somewhat misrepresents schizophrenics, portraying these three very high functioning individuals. Schizophrenia is considered one of the top 10 most disabling diseases by the WHO. It greatly reduces normal functioning capabilities in many sufferers. It might have been helpful to interview a few people who were struggling with things like living independently, having friends, having organized thought, holding a job. All of the aforementioned are not the norm for the average schizophrenic.
This video does replace a lot of bad stereotypes with some positive examples of success. That shouldn't be diminished. This was such a valuable video to watch because it brings hope, but hope can be balanced by sobering realism too and not lose its value.
Thank you for reading/listening. 💙
Just your willingness to improve your mental state by yourself surely puts you into that 50%.
If you think you can you have a good chance. If you think you can't you're definitely right.
Thank you for YOUR balanced input!
I wonder, though, if some of the disabling, lowering of functioning, inability to hold a job, etc that too often comes along with schizophrenia is _because of_ treatments and psych wards that treat patients like some of these people were treated. Perhaps being strapped down to a bed 20h/day, having your brain zapped with electricity as punishment, and even just being viewed as a “problem child” or “crazy person” by the staff, and so on does immense damage and actually becomes a self fulfilling prophecy of “you’re weak; you’re incapable; no, let me open your juice box for you, you can’t do that.”
Disclaimer: of COURSE there are many many good psychs and psych wards, but I’m just wondering if care workers treating a patient like they have no agency in fact rips their agency from them. Basing this in part on the numbers I’ve seen that suggest that, before the invention of antipsychotics and other modern treatments, schizophrenics were no more likely to commit su!cide than the gen pop.
My twin sister was diagnosed with paranoid schotzophrenia at 18. She was just starting out at journalism and had to stop her studies. She was hospitalised and put on heavy medication and has been pretty much a robot since then. She's been in and out of hospital over the years.. She chose to do nothing with her life. She still Ives with my mum and is quite happy being a "house maid" where she's in control of all the cooking and cleaning at mums house. She is happy with her life. More happy than I've ever been with mine. She's been stable and well for a while now. But she lost her ersonality pretty much when she became really ill. I pretty much lost a sister and best freind when she got sick.
Thank you for sharing Kitty, hope you enjoyed this episode!
It's disheartening how close to a healthy, young adulthood people with schizophrenia can come. The onset of this disease frequently occurs at such a weird time, but it is good to hear stories about survivors who have not let it become completely debilitating. I bet your sister is a pretty damn good house maid!
Kitty Bonbon The heavy medication cut off the feelings, i have been on neuroleptoca medication, and it made me to a zombie. But the feelings/the personality came back when i stop.
It is saddening that you think that way, if you gave her a chance you will see something valuable in her that you could be open to and open up to. I understand I might not know your situation 100% though if it's anything like mine ie my friends from my previous college don't talk to me or try to talk to me. I've changed but I am not someone who doesn't feel bond or don't feelings. I have a decent amount of friends I can call everyday and they DONT complain about my lack of personality. This illness(and every other illness) needs emotional support. Sorry if I'm judging hard, I'm just trying to be efficient with my time.
My sister took her own life 7-1-16..
she had this illness for 36 years. Was born with it.
Sad times
Sorry to hear that Big Kahona, we wish you the best and thanks for watching!
Big Kahona so sorry to hear about the loss of your sister due to mental illness. Your sister is now your Angel and I am sure you loved her very much. Stay strong and again, so sorry about your loss.
R.I.P💜,I don t have Schizofrenia but a near GOOD male friend of mine with BEATYFUL soul.❤
So sorry. Seriously. I have D.I.D. 50 yrs now. Finally at peace but cannot work full time. Have no spouse- never married. Just me. Income? It's 1 thing or another.
Soory for your family's suffering. Peace.
So sorry for your loss. :(
MY MENTAL ILLNESS LIFE: Its a shame how the black community doesn't understand the severity of mental illness,my dad expects me not to tell my job interviewer that i suffer from a mental illness,i guess on the bright side i been doing good for months almost a year on my medication but im scared to go out in the real world & work and having the possibility of having a break down than ending up getting fired for omitting my mental illness,although i do think my senses are heightened like i pay attention more like whats going on around me....im finna turn 18 i just hope my life just turns out good,you know have a wife, maby a kid or two,buy groceries that type of stuff ect.... God bless everyone in the name of Jesus
twan's world i know, i have no more to understand me
twan's world I wouldn’t tell my interviewer about my mental health issues from the jump .. that’s a conversation I would have once I was working there with the appropriate person
twan's world The Black community has plenty of schizophrenics. They think that the people have demons.
Same goes for the Hispanic community they just think your filled with bad spirit or you do drugs . They just tell you too pray. I have Schitzo-affective disorder so i understand how it is. I take medicine it helps alot. I recommend going to a Dr. and getting the help your self like i did. Your family will undertand once they see how diff you are on meds. I used to hear voices,i used to be suicidal but not anymore . I wish ya'll luck .
Im in the same boat
Beautiful, inspiring story. Thank you to these incredible people for sharing their stories. Mental illness has such a terrible stigma in the USA. It's wonderful to have a face put to the disease that will hopefully help people see that this disease does not prevent people from leading successful and productive lives.
Thanks for the kind words Devon, glad you found Debra so inspiring! thanks for watching!
Devon Ziegler Americans r fucking pos
Thank you for a very inspiring story. I so much agree with the fact that those who hold on to hope and believe they would get well, are those who get well. I could never except that I would't recover from schizophrenia and kept on saying that I would get well and will become a registreret nurse. This, I was told, was a delusion. I was doing my training when I got ill. I was told numerous times, not to hope and give up my dream and accept a life where I was constantly depressed and apathetic. Today I'm on no medication and have no symptoms and, of course, going back to nursing school and get my bachelor.
That is awesome to hear that you were able to get through it!
And good luck on getting your bachelor!😀
Great news Monica, how are you currently doing. My son was diagnosed with schizophrenia and is doing well (most days) without medication.
Good luck!
We are basically savages when it comes to treating mental health.
The blind leading the less-blind.
Mental illness has a real stigma here in the US. I think we can learn a lot from their stories
Totally agree Rachel! Thanks for watching!
Rachel Talley The stigma comes from ignorance and closed minds.
I was diagnosed at 14. I find it best to keep to yourself ! I told a very close friend and have never seen him again, he told his wife to stay away then man is crazy
I have schizophrenia. They have me on paliperidone. The medication is hell. I’m being forced to take it. The medication is ruining my life and it’s scary because it feels like my life’s on the line. Some of the side effects are chronic aches and pains, chronic fatigue, horrible mental feelings. Struggling with all self cares can’t shower, can’t do the washing, can’t change my clothes, can’t brush my teeth. I’ve developed chronic problems. I’m trying to get help from the system but they won’t help. I’m fully disabled and need to be in hospital. I’ve been dumped back in the community to get on with it but the medications crippled me. The system is still cruel if you’re unlucky like me and the medication affects you this way. Please if anyone reads this please help.
Please give me your email id. I may be able to help
had lots of psychiatric help.
best I've had was right here.
thanks for putting a light on the path to recovery.
as always working hard at it.
sincerely.
It is possible to live a life without limitations even with a severe medical conditions. We must fight stigma and must NEVER, NEVER determine who should other people be and what should they do with their lives!
Thanks for watching Maja, hope you enjoyed!
My biological mum has schizophrenia and she seemed so innocent and childlike and the way some of her family treated her was shocking and appalling it made me really sad. The lady that spoke first said they are too sensitive for this world is very beautiful. I think the treatment and attitude for mental illness is still frightening for the patient.
Wow, “Asylum Paintball”... That strikes me as so incredibly insensitive.
This makes me feel so happy!! Confirmation I'm not alone and that it can be overcome with determination and faith in God!
U are not alone
"The only person who can heal me is me"- so true. I had help with medications and some of my psychotherapy helped me but I had to find my place in this world by staying positive, taking risks, to accept myself and find my own ways to cope.
Elyn Saks wrote her memoir The Center Cannot Hold, it's a really good book about her experience. Check it out if you haven't already.
Thanks for sharing! hope you enjoyed the episode!
dessaml18 that's.. a.. woman?
yes, she's a woman. Her voice is very deep tho
dessaml18 that’s is amazing that she made a book
Spontaneous-Vulgar-Lingual-Combinations No. definitely a trans.
Watching this amazing video made me sob for a number of reasons... mostly because I see and feel my/our own personal life through these stories. Debra - you touch me especially and give me so much hope - your story is confirmation of what we believe is possible... of the incredible human potential. Thank you! You are amazing!!
Thanks so much for your kind words Anna-Mari, hope you enjoyed this documentary!
This story was so hard to watch, however this episode did a wonderful job at showing truly what people who suffer from mental disorders deal with. I sincerely beleive People who suffer from mental illness have such a struggle because it's not a physical deformity or something others can see on the outside that's "wrong" so I think a lot of people go undiagnosed due to shame or misdiagnosis. I can not even imagine what these folks have to deal with and I hope that there will be more awareness and help for people in the future. All of the stories here on this channel are Truly inspirational!
Thanks for watching April!Hope you enjoyed our channel 😀
You hit the nail in the head. Well said.
@@AttitudeLive Is Alan saks still married with the same man?
Whenever I drive past Kingseat it gives me the chills, something just isn't right about that place. This is an amazing video, thanks for sharing.
Glad you enjoyed the episode Alex! Thanks for watching!
When Debra explains that she waited 18 years thinking that mental health professionals could fix her, I couldn't agree more. I am 30 years old and since 17- I have sought doctor after doctor for help, without truly realizing to the fullest extent (like I do now) that the healing was within me.
CBT and mindful meditation therapy help a lot too :)
Thank you for producing this! I used this exact video today to instill hope into my patients that have been deemed mentally gravely disabled.
Hi Christina! Thanks for watching 😀 We're happy to hear this video can be used as a resource for your patients!
Such a compelling piece in so many ways...When Debra was being driven passed the institution she lived at for so long, & I saw the sign, "ASYLUM," I cried...I'm actually humbled by the journeys of these three courageous individuals...How important their work is Worldwide...
Best thing for these people is a peaceful quiet loving environment.
Trying my very best to survive this myself. Sometimes it’s so deafening.
Stay strong clowers❤
Just seeing your 3 year old comment. I hope you’re doing well. I know it can be a dark journey, and one that may never end, but there are ways to deal with it and have a mostly normal life.
You’ve got a whole life to live, don’t miss the ending. My grandpa had it and died happier and more successful than most. Gut health helped him recover. Recovery is possible.
Awesome documentary, very well made. Thank you for posting.'about People who are too sensitive for this world". My brother was one of those people too sensitive, he passed away misunderstood, but he was able to use his creativity and left an impressive artistic legacy.
WOW!!!! Never would I have expected to have seen something so incredibly eye opening on this subject!!! I LOVE that she has not only achieved a lovely life outside of the hell hole she was forced to be at for 18 years,, but she has now gone on to help others understand that they don't need to live under the dire diagnosis of "life sentence" in being "mentally ill" with a named diagnosis that is SO misunderstood. It has literally blown my mind to watch this and it gives me so much hope to learn how there are also others that have healed and moved forward with their lives to a good way of living!! They ARE right....many others DO struggle with extremely strong emotions and might also be influenced to believe that they also are "crazy"!!! Well done!! I am SO VERY HAPPY for you all and all those who will benefit from your hard work!!! Thank you for sharing!!!!
Thanks for watching Chellee!Hope you enjoyed our channel!
My grandma has schizophrenia she had treatment a few years ago and it seems as if it's gone now because of the medication, however, now being off the medication she has been slipping in and out it, I find her laughing and chanting randomly sometimes.
I do feel sorry for my grandma because she has been through a lot, she came from a place of war and death. I actually think that's what triggered her schizophrenia.
Thanks for sharing Ena, we are sorry to hear of your Grandma's story. Hope you are both well. Thanks again for watching, we hope you enjoyed the episode!
I'm sorry your grandma still has an imagination so can laugh and sing to herself. Laughing and singing is horrible!
Ena how r u doing now?
I also saw autistic children get treatment and some not, sad too
Hope your Granny ok now
My mom suffers from schizophrenia since she was in her 20´s and now she is 58 years old
And she is not doing okay at all
I am so proud of the red hair lady she just warmed my heart
If only mom was as brave as her but she is following her fate
💔💔
My hugs
Our fate is most of the time in our control.
I'd sugggest CBT and / or mindfulness meditation therapy. Also, a healthy lifestyle helps lower stress. Volunteering in her community too (makes life more meaningful & provides opportunities to socialize).
It’s hard I watched my sister and brother go through it. My brother overdosed on drugs because of it
Debra’s work and experience really effected me, bless her and everyone who has fought mental illness itself and fights for others!!! Bless all of theses wonderful people. Just imagining the fight to just survive and energy to make a life for themselves. Telling their stories really gives hope and comfort for so many people. I have a son who has schizophrenia and these types of stories and people actually give me hope! Thank you to EVERYONE who has helped the community with mental health issues
What a wonderful woman Debra is. She has so much sensitivity and grace
When she started to ball her eyes out...took me back to ptsd episodes of being forced to try and figure out math in school. Hours of not getting it and people still made me sit there. ADHD kept me from learning math
I just got better from Schizophrenia. She said she owed those patients so much, and they contributed so much to her wellness. I felt the same. I tried many ways. I read and recited classics. Hope patients can be healed. 🌟
Its wonderful to hear these positive stories, and know that people with schizophrenia can have a fulfilling life, we need more of this.
When I was in college, I started to think that I had schizophrenia because I kept thinking there were cameras in my room. It turned out, this was pretty much true, but people kept telling me it wasn't. I'd go back and forth between believing them and believing myself, ended up leaving college because I was so confused, and picked up a diagnosis of Disorganized Schizophrenia in the process. I am not playing the victim. I truly believe people; and when they say I am demented while understanding that I am being watched, I believe them. ^^The above experience isn't quite the same as mine--this woman seems to truly be dealing with schizophrenia--and she is amazing for doing so many things with her life despite this illness.
Thank you for sharing Macy! Hope you found the episode useful!
Attitude Oh no, I didn't think I was directing that at anyone in particular. Sorry, it wasn't really a response to the information in the video so much. I just wanted to share an experience, like you said. :) The people in this video seem to have incredible insight into what it means to have schizophrenia; including all the PROS and cons. Plus, the guy skating around in rollerblades while he is in a suit and tie, with unkempt hair, was pretty awesome. I appreciate the video! Thank you!
I understand. Macy Zeller.
Elyn Saks is an amazing human being. Her autobiography is so inspiring. Could not put it down.
I've had many failings in my life. Right now I just want to start on a better path and I have this opportunity. I hope you do too, and I hope that you have somebody there to help you pave the road.
Thanks for the kind words Josh! we hope you enjoyed the episode!
Great item and hearing others sharing hopeful experiences just made my day. I have battled the “illness” and all the stigma that follows since I was eleven years old with little room for hope and healing.This gave me a different perspective. THANK YOU SO MUCH 💕
This is very inspiring! I have had schizophrenia all my life (diagnosed at 18 ((relative to the fact that’s when testosterone peaks))). I’ve always loved learning I scored ridiculously brilliant on the knowledge scale of the IQ test. I want to go to college, I think I just might. But I’m now 27 and there are bratty kids there who might make fun... If you know the story of Elyn saks and her potential. It is ridiculous she is still alive. If you’re interested in schizophrenics experiences I must say. Our experiences are similar if not entirely ambiguous. Research Rachel star... not the porn star... type schizophren story after..
Shepherds Outcry I have ADD and Aspergers but wasn’t diagnosed til I was almost done w/ high school. I know it’s not the same as schizophrenia at all, but I went back to school as an adult, and although I got really frustrated sometimes, esp that I had been allowed to quietly zone out and miss most of the k-12 instruction I should have received for free (I hadn’t even known how to do long division). BUT, it’s so worth it, bc a lot of subjects will stretch your ability to think, and to problem-solve, in ways you can’t even anticipate! There are also lots of pretty cool services, like a quiet testing room, and even the ability to wear noise canceling headphones for exams, by providing documentation of your diagnosis, to the differently abled student services department at your school. The kids in your classes are going to be focused on their own experiences. I used to have silent tears running down my face, during every math class, but I worked my way up from the most remedial possible level of math, all the way up through calculus. Now, granted, I spoke w/ my profs during their office hours, so they knew where I was coming from (so useful! Then, you have allies who can offer better support), but nobody ever hassled me, or was mean to me, despite the fact that I was very obviously struggling (I sat in the front row, and kept my hair down, hoping it covered the sides of my face, but I’m pretty sure it was still pretty obvious). You can totally do this; just take it at your own pace, and know that it may not be easy, but it will open so many doors for you, both in terms of your self-image and self esteem, as well as opportunity in the larger world! I hope that’s useful perspective :)
Very interesting. I am a nurse and I have always been fascinated by the psyche.
Thanks for watching Anne, glad you enjoyed the episode!
You are amazing and make me believe in hope. You make me believe in life again. You make me believe in a normal life that I could have.
Thank you all. This is very uplifting and definitely worth sharing with people who are struggling, their families, as well as staff working in the mental health sector.
ok did she say she spent 18 years at this place!? oh wow....
Yes, a very long time! Thanks for watching!
The sensation of over whelming, sadness, grief and the journey to the past can cause a profound reaction. I am still working with people who have to deal with their past while commendation the present. My patients thank me for my ear and consulting.
Schizophrenia has so much stigma, even in the healthcare world, which really affects the quality of care people receive. One of my best friends developed schizophrenia, and although it’s a tough disorder, it is treatable and manageable! Half the battle is finding a team of doctors and therapists who believe in you. I agree to the one guy who said the biggest part of treatment is hope because I’d totally agree. ❤️❤️ I hope this is the next disorder that undergoes a revolution of how we treat and manage symptoms.
I love Debra and just hear truth from her. You have to be active in your own recovery. And you have to have some kind of hope... which most doctors never provide.
i am so proud of people like you. you faced the illness head on.,and beat it. i too have schizophrenia and can relate with you. the struggle is mind boggling. the pain and loneliness is real.
I used to listen my Dad (him and his brother's) for so many years about this illness, there's so much more to this
Thank you so much for this..Debra 💓 Elyn Saks..profoundly deep
Thanks for watching Uzez Ohms, we are glad to hear you enjoyed the episode!
Thankyou for being a voice and a messenger for this mental illness god bless you for having courage to tell your story its helping me feel not alone
Thanks again for watching Edmund, we are glad these videos have helped you
Yeah I always like watching these kind of videos and scrolling through the comments because it reminds me that I am not alone. Even though I am the only one I know that experiences these kind of things.
hi Attitude, thank you very much for uploading such a wonderful content! im from indonesia and enjoyed your channel, this is best channel and so inspirational stories all over it. and the most important thing is this give me insightful mind which is i know what this is be like and hearing their stories, well-educated content too ! i will be telling everybody about this wonderful channel :) keep it up!
Hi Bella! Thanks so much for your lovely comment - and great to hear we have fans in Indonesia! We hope you subscribe to our channel and stay tuned as we have many more great films lined up for this year! 😀
such an inspiring video. The woman who spent 18 years in a psychiatric ward inspired me the most. i nearly cried when she said 18 years.
This Shows that everything is better than medication and going through a psychotic phase is better than avoiding this.
I've been a Psychiatric nurse for over 30 years. I've always provided the people in my care the utmost respect every human deserves. I believe we've come a long way but need to opens others minds regarding mental illness.
Beth Myers exactly
Thank you for doing what you do. I know you've never cared for/treated me, but I appreciate you so much for treating people like me with respect and empathy. It makes SUCH A HUGE POSITIVE DIFFERENCE to be treated like a *person* when you're deep in the illness and in such a vulnerable state. The world needs more people like you. ♥️
When I was a child, mother taught me that people who heard voices were scary and would never be able to regain their sanity. She made it seem like they chose to be deviant, making me despise them. She even said that people who had outer monologues were crazy and needed to be avoided.
Reports such as these made me view schizophrenics as actual people. It pains me to see how much a lot of them have been mistreated.
When the first woman starting crying when she at the psychiatric hospital and hearing a hundred voices, I actually started crying with her. It just reminded myself of my own schizophrenia.
I didnt understand this part. Did she like that place?
My son has been diagnosed with schizoaffective. It's been very challenging to say the least, but we have faith there is a light at the end of the tunnel 😔 Thank You for sharing your story
Yes,don't lose hope.Everything will be alright.There is always sunshine in the morning after the long darkness of night.
So many amazing human beings here. You guys made my day.
This has really given me hope for the many people, especially young ones that have a mental illness.
Debra Lampshire must be proud to be in the company of Elyn Saks and Paris Williams all of them are inspirational people. 🇳🇿 I wish I had come across this video 7 years ago.
Such remarkable, powerful people. Thanks for sharing.
I really like that this video includes the perspective of both people who are medicated and unmedicated.
Gives me hope. Thank you.
Thanks for watching! 😊
I am thankful for your insightful, inspirational video. I also want to tell you that I am relieved and happy to hear the message here regarding understanding of mindfulness as applicable to anyone, especially anyone who needs to learn their mind's behaviors and being able to learn to slow their thought processes. I have much schizophrenia in my family and therefore, have been able to see up close the issues people with this illness have with cyclical thoughts that they need to learn to slow and sit between. Much peace is gained through that practice, so that is wonderful to bring up during this discussion. I love the whole approach to viewing schizophrenia as just another life process that many people have to go through for whatever "reasons", and the focus on the POSITIVE aspects of each person and their life, so tyvm. Great work. :)
Paris Williams is relatable to me. I often avoided personal issues with myself by doing active tasks or creative tasks like drawing. It helps me to cope with my personal dramas. It is totally running away from the problems. Though sitting down and facing them is hard but it works so much better when you really want to feel better again.
I started having hallucinations when I was 5 also- the good ones were the fluorescent bubbles that whispered quietly and didn't scare me. The ones that frightened me so were the snakes and my mother's arm cut off with a snake wrapped around it. That was the beginning or 60 years of struggling with severe paranoid thoughts and somatic as well as some grandiose delusions. Finally I am on the right track and am on medications that help me to have a life- I have published 6 books of poetry illustrated with my artwork and am working on my 7th. II have stayed out of the hospital for 10 years now. I was extremely anxious as a child and an adolescent. I still talk to people in my head but that comforts me. Schizophrenia doesn't have to be a 100% nightmare. I live independently, enjoy writing poetry and ding different kinds of artwork and jewelry making. My parents were obsessed with the stigma of schizophrenia. They died when I was 36= now I am 65 years old and am really quite stable. I am not symptom free but now I have awareness and good coping skills I even have a couple of good friends now and also enjoy being alone. I can honestly say I am happy for the most part, I take my medication and have a life. I have been in treatment since I was 14 years old and am wiling to keep fighting.
Thank you for hearing your story,it sounds amazing and like you have really had access to a creativity that many people do not.I really hope more people get to hear stories like your and the ones in this documentary,I think things like schizoprehnia and other so called mental disorders get very misunderstood and therefore mistreated as well.I'm glad you are able to live a productive happy life.I wish more people had the opportunity to recover and make meaningful lives and not have to fight against a mental health system which often further traumatises them.Maybe you could do podcasts or share your experiences with more people ? and share your insights.I'd be interested in seeing your poetry and art,I think more people need to hear stories like yours
I'm a poet as well!:) Our life will not last forever, therefore there is no need to worry. Relief can be now and in the afterlife.
Im so sorry 😢
@@airasarsoza9342 Thank you for your empathy. A lot of people just do not understand how it feels. But no need to be sorry because I have been blessed in many ways and no matter how much I have suffered there are always going to be people who have suffered much more than I have. I have a nice home, an extended family who loves and support me a few close friends and the gift of creating art and writing poetry. My ability to be creative is such a wonderful gift that nobody can ever take away from me. Believe me, it has been the saving grace- now going on 14 years that I have stayed out of the hospital. I am grateful for the amount of stability in my life now. Thanks so much for caring and I wish you the very best!
It was powerful when she was talking about the people who never got to leave the institution
What incredibly strong individuals. Well shot documentary
Thanks for watching JessyJay!Hope you enjoyed our channel!
I want people to know that being people are helped with hospitals. There are very few institutions that are long term - and many people profit from short term hospitalization.
I was diagnosed in 1977 and just beginning to be more open about it!!
simon plant 🌹
Sorry to hear. :( I still think with some of my voices, but I don't hear them. I started out young, like this woman. My earliest memory was the roof, but I also tried to jump out of a car. I climbed on the roof and voices told me I wouldn't die if I jumped. My grandpa saved me.. I saw things when I was younger as well.
Thanks for sharing Kaela, we are sorry to hear that, we hope you are doing well now! Thanks again for watching!
You don't hear any voices anymore due to the medications?
I haven't heard voices for years. I have other issues, like with cues (reacting to stimuli) and cognitive problems. I'm thankful I don't hear voices anymore. I'm on prolixin and latuda.
That's good that you don't hear any voices anymore.
What are these cues? I don't really know what that is.
Do you have a lot of side effects from the medication?
Its funny you say that because this is the same thing satan told Jesus to throw himself down off a high place
My sister has it. She's 16 years older than me. Our family life was hell with her. Mum & Dad tried many times to get her medical help. She would physically abuse them at the doctors & at home. Me included. I was 12 the 1st time. She is now 70,our parents are dead. I blame her. I have no time for her. She always refused medication saying there is nothing wrong with her & still does so to this day. No friends & no family want anything to do with her.
28:07 Hi. Thanks so much for sharing this video. I have schizophrenia and used to work as a doctor. I am working towards going back. I needed this encouragement today after hearing how hard it can be due to stigma. Thanks so much for making this video!
Wow, I didn't think you could come back from Schizophrenia.
What amazing People; it is heartbreaking to see how badly people with mental health problems are treated.
I watched a fascinating Stanford lecture by Professor Robert Sapolsky on Schizophrenia; apparently it most commonly emerges in young adults as a result of trauma or a stressor that triggers a Schizophrenic episode.
I am an avid #MentalHealthAwareness advocate and performer, and I love this so much. I travel the country trying to bring that awareness on stages, in classrooms, hospitals, and on my UA-cam channel, so I get excited when I see other advocates. 💙❤
Elyn Sack's tedtalk is really good I recommend watching it
My dad was schizophrenic, it happened when we were children, they put him thorizene, it was awful medicine. That happened in 1960, the mental hospital was awful. Shock treatments helped for awhile. He passed in 1995. So sad for dad and our family.
Thank you for sharing your stories! Very hopeful and inspirational.
Elyn's husband is refreshingly intricate and noticeably careful with his word choices and the way he talked about his wife and her health. He seems caring.
I lost a very very dear friend, during her brave, unbelievably fierce battle w/ paranoid schizophrenia. Literally the only thing I could do for her, was to offer her tea, and the company of myself and my then-toddler-age kiddo, without judgement. I tried to listen, exactly the way you’d want someone to listen if you’re describing a terrifying, larger-than-life nightmare you’ve experienced. She would watch my face for the slightest clue that I was judging her, when she’d describe aspects of her day to day experience. I made sure she knew I was a safe person to talk with. Later, I spent a lot of time blaming myself for not having done more to help her, but all of our mutual friends who tried to help more assertively, she cut off ties with.
A little less than a week before she died, she asked me for a recommendation for a good therapist and psychiatrist, and I was able to provide both recommendations. I found out later, she had called for appointments with both. She and I had had last spoken on a Monday; had made plans to meet up on a Wednesday; I didn’t think anything of it when she didn’t show, bc mental health struggles aren’t usually predictable, and then I got the call, that Friday, that she’d died (by suicide).
She was so brilliant, creative, compassionate, and determined, and she fought it out, for so much longer than I think most people could have done, given her particular intensity of hallucinations, before she died.
Here’s my question. Is there actually anything I could have done differently, which could have helped better?
If I am fortunate enough to ever have the chance to offer support to anyone dealing with similar struggles in the future, is there anything which anyone who directly experiences/has experienced schizophrenia can suggest, in terms of actionable specific ways we can help?
Thank you in advance.
Truly amazing, need help with my son he is suffering from this disorder, is it possible to contact any of you we are in New Zealand?
Hi Charmaine - thanks for reaching out and glad you liked the episode. Not sure if we can help but if you send us an email at info@attitudelive.com we will see if we can connect you.
I have found a better treatment for my daughter who is 14 years old administrating 3000 to 6000 mg of niacin flush free
Look for información about Dr. Abram Hoffer
her crying broke me
At the worst with my psychosis, I believed I was possessed. I relate to the first woman so much omfg
Me too I thought that and I was diagnosed With schizofrenia in March
My ex took acid everyday for more than a month and got admitted to the hospital where they told her she has schizophrenia. Now she is still in the hospital but I hope something like this becomes part of her story 💜
Both my brother and sister got long term schizophrenia from drugs
I have ocd
Oh my Gosh, when she was telling us her experiences while driving around that facility, almost had me in tears..
The idea of restraint makes me feel panicky. I’m not sure you could do something worse to someone already feeling highly anxious and suffering paranoia and delusions.
It is a terrible and traumatic experience.
Watched this because my childhoood best friend who I went to highschool with and lived on the same block with , who was seemingly a normal person with no mental problems and was like that for many years until one day when he was in his early 20s he just changed almost over night he didn't know who he was and who we were and he was hallucinating and could not even live without a supervisor , I was so hurt and confused about it , I always thought you had to have something like a head injury or be born with this to have that happen , they said his was a genetic cause source and he inherited it from someone in his family that had it , but it was so bizarre that it just suddenly set on , I cry thinking about him all the time , he is like a brother to me and now he doesn't even know who I am or even really know or connect with anything in reality from his perspective , it's really hit him hard , I would still try to see him and try so hard to just talk like we normally would if he didn't have it, I would try to tell him about all our old times and good memories just hoping maybe one day something might spark something in his mind even if was only for a second and he forgot again, I just hoped maybe there was something still in him somewhere , just mixed up in all that distortion and cluttered maze of brain signals firing and other stuff jumbled up in him that was going on.. unfortunately not long after his condition set on he had to be homed into a facility with 24 hour caretakers and it's almost 10 hours away from me and I don't have anyway to go even visit him , I still hurt for my friend and it's really tore me up over the years now since it's happened , i used to say it felt like losing a loved one from them passing but now I actually feel it's somehow even worse than that because it's like I can't shake the feeling of hoping one day it may just run its course , and he will just wake up and be back to the way he was which I'm not trying to say isn't possible because miracles and cures do and have happened to all kinds of people with all kinds of conditions even this as many cases have shown , I guess that's why i have such a hard time with it even more so now even after having been going on for over a decade later , I just hold on to the idea and pray and I pray for his family members who feel just like I do , it's been a very painful experience in my life , I've lost people too , even parents and close friends , but it's something I've had a lot more tole on me to cope with, it's like I never really feel like I can maybe grow to grieve and accept it and understand its the way it is now and accept that I can't do anything about it and have to try and let it be as it is and go on so I can live with some feeling , of closure maybe? Or maybe that's not the word or what could really even be closure in this case , I just hope he is at least, if nothing else , found some sense of his self and who he always was , where ever his soul is not just his physical self that contained it ,Matt was too big of a soul and energy to be stuck to just some brain signals moving around , he was a Free spirit and loving heart that was kind to everybody and everyone who knew him , knew that he was too , I like to think he just took spiritual journey apart from this material realm and just left his body on standby , while he travels in a peaceful getaway , I love ya man , I don't know why I felt I have to speak about it personally on here but I was drawn here from thinking of you because I'm trying to understand , I'm searching for whatever I'm supposed to get from this happening and I feel like it helps me altleast keep on keeping on I know that's what you'd want me to do , I know it'd hurt you just as much of you thought I was so down over what happened to you and sad and not trying to atleast be strong , you always were the big guy , I was the little short nerdy kid you always pushed me to get out of my sheltered reclusive ways and I'm so thankful for that , I'm glad you helped me tough it out and quit being a wuss haha
I feel like that has got me through alot in my life even now , you taught me alot and I hope you know how much I looked up to you and the better person you helped me see that I was , I hope anyone going through this or knows someone that is will find some thing similar in the maze of it all,
I might not understand why it has to be like this or why it had to happen to you but I can have a sense knowing no matter what Its the bond we have and the memories we share that keep me hanging in there and helping me get through it , this whole world Is kinda like what ever schizophrenia is , it's all just a scrambled up mess and I'm lost in it all too sometimes , at least I had a hiking buddy on the way , maybe we'll all meet up again by a bonfire out there in great beyond just like old times and we can catch up on it all , without the noise and craziness from the world going on around us
Till then i guess ill be missing ya man
kevo
Thank you for your honesty, I wish you the very best
You are an amazing woman. I have a mental disease too, and you has given me hope!!! Thank you very much!!!
So true, stay on your medication. I respond well to mine and it keep me in my home and in my life. Without it, abilify, 15mg, I would be on the street and in jail. I am trying to become a Peer Support Specialist so what I have been through others won't have too and people can relate to myself and I to others.
I didn't get in on my peer to peer support classes on this round but I will keep trying. It's a bit of a disappointment but it gives me more time to volenteer which is what I need to get in in the next round. Thanks for your support.
Richard Bleakney I hope you continue to do well and you meet your goal one day of being a specialist.