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Stela Sulzdorf
United Kingdom
Приєднався 25 лип 2021
Hi, I'm Stela!
I make lighthearted videos all about my life with chronic illness and disability. I raise awareness on Ehlers-Danlos Syndrome, Lupus and Lyme Disease. I also talk about the co-morbidities that go along with them, such as: PoTS, Mast Cell Activation Syndrome, Fibromyalgia, ME/CFS, Peripheral Neuropathy and more...
Welcome to my channel!
xxx
I make lighthearted videos all about my life with chronic illness and disability. I raise awareness on Ehlers-Danlos Syndrome, Lupus and Lyme Disease. I also talk about the co-morbidities that go along with them, such as: PoTS, Mast Cell Activation Syndrome, Fibromyalgia, ME/CFS, Peripheral Neuropathy and more...
Welcome to my channel!
xxx
What is Lyme Disease? // Symptoms, Diagnosis, Treatment & More!
Talking all things Lyme and my personal experiences with the disease!
Thanks for watching xx
My Instagram: @stelasulzdorf
stelasulzdorf?
Get to know me: My EDS Story
ua-cam.com/video/ZmPcUToo0XU/v-deo.html
#LymeDisease
#Lyme
#ChronicIllness
#LivingWithLyme
#ChronicLyme
#PostTreatmentLyme
#Arthritis
#LymeWarrior
#Borrelia
#BorreliaBurgdorferi
#Lymie
#LymeCoinfections
#LymeWarrior
#LymeAwareness
#Ticks
#Babesia
#Ehrlichiosis
#MedicalPTSD
#Parasites
#Encephalitis
#LymeCarditis
#HeartBlock
#ReactiveArthritis
#ADHDLife
#EDSLife
#EDS
#DisabledLife
#Dyspraxia
#LackofSpacialAwareness
#TemperatureRegulation
#Allergies
#MCAS
#MastCellActivationSyndrome
#Seizures
#AutoimmuneEpilepsy
#Epilepsy
#OCD
#MyMobilityAids
#Flareup
#Gerd
#EDS
#EhlersDanlosSyndrome
#EhlersDanlosSyndromes
#LifeUpdate
#HealthAndWellness
#HeartBlock
#Sickness
#Vomiting
#BabeWithAMobilityAid
#EhlersDanlosSyndrome
#EhlersDanlos
#HypermobileEDS
#MobilityAids
#HypermobileEhlersDanlosSyndrome
#ChronicIllness
#invisibleillness
#lupus
#AutoimmuneDisease
#disability
#dysautonomia
#LymeWarrior
#LupusWarrior
#Arthritis
#HyperMobility
#GoingOutWithDisability
#GoingOutWithChronicillness
#DisabilityVlog
#ChronicIllnessVlog
#SpendTheDayWithMe
#Epilepsy
#Seizures
#Fits
#AutoimmuneEpilepsy
#PoTS
#DisabledUA-camr
#PoTSSyndrome
#MECFS
#ME
#BeightonCriteria
#BeightonScore
#MedicalHistory
#GeneticTesting
#EDSdiagnosis
#FlareupDay
#Physio
#DisabilityVlog
#GoingOutWithChronicIllness
#GoingOutWithDisability
Thanks for watching xx
My Instagram: @stelasulzdorf
stelasulzdorf?
Get to know me: My EDS Story
ua-cam.com/video/ZmPcUToo0XU/v-deo.html
#LymeDisease
#Lyme
#ChronicIllness
#LivingWithLyme
#ChronicLyme
#PostTreatmentLyme
#Arthritis
#LymeWarrior
#Borrelia
#BorreliaBurgdorferi
#Lymie
#LymeCoinfections
#LymeWarrior
#LymeAwareness
#Ticks
#Babesia
#Ehrlichiosis
#MedicalPTSD
#Parasites
#Encephalitis
#LymeCarditis
#HeartBlock
#ReactiveArthritis
#ADHDLife
#EDSLife
#EDS
#DisabledLife
#Dyspraxia
#LackofSpacialAwareness
#TemperatureRegulation
#Allergies
#MCAS
#MastCellActivationSyndrome
#Seizures
#AutoimmuneEpilepsy
#Epilepsy
#OCD
#MyMobilityAids
#Flareup
#Gerd
#EDS
#EhlersDanlosSyndrome
#EhlersDanlosSyndromes
#LifeUpdate
#HealthAndWellness
#HeartBlock
#Sickness
#Vomiting
#BabeWithAMobilityAid
#EhlersDanlosSyndrome
#EhlersDanlos
#HypermobileEDS
#MobilityAids
#HypermobileEhlersDanlosSyndrome
#ChronicIllness
#invisibleillness
#lupus
#AutoimmuneDisease
#disability
#dysautonomia
#LymeWarrior
#LupusWarrior
#Arthritis
#HyperMobility
#GoingOutWithDisability
#GoingOutWithChronicillness
#DisabilityVlog
#ChronicIllnessVlog
#SpendTheDayWithMe
#Epilepsy
#Seizures
#Fits
#AutoimmuneEpilepsy
#PoTS
#DisabledUA-camr
#PoTSSyndrome
#MECFS
#ME
#BeightonCriteria
#BeightonScore
#MedicalHistory
#GeneticTesting
#EDSdiagnosis
#FlareupDay
#Physio
#DisabilityVlog
#GoingOutWithChronicIllness
#GoingOutWithDisability
Переглядів: 2 124
Відео
Interviewing my Brother on Living with Autism & ADHD
Переглядів 1,2 тис.Рік тому
Life on the Spectrum with Kiril! Thanks for watching xx My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html #Autism #ADHD #Neurodivergent #LifeOnTheSpectrum #SpecialIntrests #DiscussingAutism #TalkingADHD #Hyperactivity #Neurodiversity #SEN #SpecialEducationalNeeds #Autistic #Neurodiverse #Dyslexia #Dyslexic #AutismDiagn...
Summertime Vlog | Going Out With Chronic Illness
Переглядів 1,2 тис.Рік тому
Just a random one - thanks for watching! Xxx My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html #EDSLife #EDS #DisabledLife #Dyspraxia #LackofSpacialAwareness #TemperatureRegulation #Allergies #MCAS #MastCellActivationSyndrome #Autism #OCD #ADHD #Neurodivergent #MyMobilityAids #Flareup #Gerd #EDS #EhlersDanlosSyndrome #...
Mind Blowing Facts About EDS! 🤯 (That You Probably Didn’t Know)
Переглядів 11 тис.Рік тому
Mind blowing facts no one tells you about EDS and you just have to find out along the way 🙃 Thanks for watching! Xxx My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html #EDSLife #EDS #DisabledLife #Dyspraxia #LackofSpacialAwareness #TemperatureRegulation #Allergies #MCAS #MastCellActivationSyndrome #Autism #OCD #ADHD #Ne...
My Dream High-Tech Powerchair! // Whill C2 Electric Wheelchair Review
Переглядів 19 тис.Рік тому
Full review of my new Whill C2 Powerchair! Thanks for watching! Xx TGA Mobility Website: www.tgamobility.co.uk/?gclid=Cj0KCQjwmZejBhC_ARIsAGhCqncapJqBHpPjuSPInVpF5UmYuvKBKXbe_huhV76XnKKb2pXHqpuhob0aAk8TEALw_wcB Whill C2 Powerchair: www.tgamobility.co.uk/product/whill-c2/ My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.htm...
Pilates Rehabilitation for Ehlers-Danlos Syndrome
Переглядів 978Рік тому
Come with me to my physio appointment! My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html #EhlersDanlosSyndrome #PilatesForEDS #EhlersDanlosAwarenessMonth #EDSAwarenessMonth #PhysioForEDS #EhlersDanlos #Physio #ReformerPilates #Pilates #rehabilitation #HospitalAppointment #Reformer #Lupus #Lyme #HeartPalpitations #Dysau...
Karen Millen Try on Haul 👗
Переглядів 1,6 тис.2 роки тому
Karen Millen Try On Haul Thanks for watching! Xxx My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html ❤️ All the dresses from the video in order of appearance: Placed Floral Guipure Lace Pleat Midi www.karenmillen.com/placed-floral-guipure-lace-pleat-midi/BKK00475-133-20.html?gbraid=0AAAAACo7BY_shCPezhJmGPfVioTMglAnq&gbr...
Flareup Chit-Chat
Переглядів 8102 роки тому
Flareup Day Chit-Chat I’m having a flare-up after a long day out yesterday and I just felt like chatting to you. Xx My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html #Flareup #Gerd #EDS #EhlersDanlosSyndrome #EhlersDanlosSyndromes #LifeUpdate #EDSLife #HealthAndWellness #HeartBlock #Sickness #Vomiting #BabeWithAMobilit...
My Crystal Collection
Переглядів 56 тис.2 роки тому
Finally sharing my personal crystal collection! ✨Here are my 10 favourite crystal shops: - The Hallowed Crystal thehallowedcrystal?hl=en - Crystallis crystallisuk?hl=en - Crystalline Cities crystalline_citieschannel/ - Crystal Auras crystalauras?hl=en - Carpè Crystals carpecrystals?hl=en - Chronic Crystals ...
Meet my New Kitten! 😻
Переглядів 5082 роки тому
Say Hello to Koko! 😻 We couldn’t be happier to have a new family member. She’s the sweetest soul and I’m so happy to introduce her to you. Thanks for watching! Xxx My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html #TherapyPet #NewKitten #LifeUpdate #TherapyCat #MeetMyKitten #CatOwner #KittenOwner #MaineCoon #RussianBlu...
K-Laser Therapy and How It’s Helped my hEDS!
Переглядів 9182 роки тому
I’ve been doing K-Laser Therapy for the last few months and it’s been incredibly helpful towards the management of my EDS & chronic pain. In this video, I’m talking about what K-Laser is, sharing the process and discussing how it’s helped me. Thanks for watching! Xx My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html #KL...
Random Adventures with EDS | Outdoor Art and Squirrels 🐿
Переглядів 3892 роки тому
This might be my most random video, but I felt very inspired to film anyways. I hope you enjoy my outdoor adventures. X My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html #GoingOutWithADisability #EDSAdventures #CoolCrutches #FunkyCrutches #FunPrintCrutches #ErgonomicCrutches #ErgonomicMobilityAids #FashionMobilityAids ...
Fashionable Crutches ‘Cool Crutches’ Review // Testing Beautiful Crutches 🩼
Переглядів 16 тис.2 роки тому
Mobility aids are mine and many people’s freedom. I use them everyday, so why not have some fashionable ones! In this video, I’m putting fashion crutches, ‘Cool Crutches’ to the test. My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html #CoolCrutches #FashionableCrutches #CoolCrutchesReview #FunkyCrutches #FunPrintCrutche...
Getting my First Tattoo // Carpé Crystals Part 2
Переглядів 1,1 тис.2 роки тому
I can’t believe I actually did it!! Anyone who knows me, knows how afraid I am of needles. So this was definitely a source of empowerment for me. If you missed it, check out part 1 below 👇🏼 Come to the Crystal Shop with me// Carpé Crystals Part 1: ua-cam.com/video/KvjYvIaggQM/v-deo.html My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcU...
Come to the Crystal Shop With Me // Carpé Crystals Part 1
Переглядів 8 тис.2 роки тому
One of my favourite passions is collecting and working with crystal energies. So, come along to Carpé Crystal’s new shop with me and learn more about these beauties! My Instagram: @stelasulzdorf stelasulzdorf? Get to know me: My EDS Story ua-cam.com/video/ZmPcUToo0XU/v-deo.html #GoingOutWithADisability #CrystalShop #CrystalProperties #CrystalShopping #CrystalCollector #CarpeCrysta...
Finding the Best Knee Braces Once and For All! // Battle of the Knee Supports
Переглядів 4,5 тис.2 роки тому
Finding the Best Knee Braces Once and For All! // Battle of the Knee Supports
How Flexible Am I and is it Due to EDS?
Переглядів 1,7 тис.2 роки тому
How Flexible Am I and is it Due to EDS?
I’m back! What I’ve Been up to All This Time
Переглядів 5132 роки тому
I’m back! What I’ve Been up to All This Time
HUGE Alo Yoga Try on Haul - Spring 2022!
Переглядів 3,2 тис.2 роки тому
HUGE Alo Yoga Try on Haul - Spring 2022!
Refurbishing Furniture + Chit Chat About Lyme, EDS, Lupus, Encephalitis, New Beginnings & More…
Переглядів 5622 роки тому
Refurbishing Furniture Chit Chat About Lyme, EDS, Lupus, Encephalitis, New Beginnings & More…
Behind the Scenes of my Alo Yoga I Embody Campaign
Переглядів 1,5 тис.2 роки тому
Behind the Scenes of my Alo Yoga I Embody Campaign
How to Know When You’re Having a Flare-Up?
Переглядів 11 тис.2 роки тому
How to Know When You’re Having a Flare-Up?
Bedroom Makeover with Chronic Illness | Part 2!
Переглядів 6152 роки тому
Bedroom Makeover with Chronic Illness | Part 2!
Renovating my Bedroom with Chronic Illness | Part 1!
Переглядів 1,7 тис.2 роки тому
Renovating my Bedroom with Chronic Illness | Part 1!
Things Nobody can Prepare you for When you Become Chronically ill & Disabled
Переглядів 16 тис.3 роки тому
Things Nobody can Prepare you for When you Become Chronically ill & Disabled
How to Test for PoTS at Home // Poor Mans Tilt Table Test
Переглядів 22 тис.3 роки тому
How to Test for PoTS at Home // Poor Mans Tilt Table Test
Where Have I Been? Health & Life Update
Переглядів 5903 роки тому
Where Have I Been? Health & Life Update
Spend Christmas with me Part 2! | Having a Seizure, Bougie Face Mask, Lateral Flow Testing and More…
Переглядів 1,5 тис.3 роки тому
Spend Christmas with me Part 2! | Having a Seizure, Bougie Face Mask, Lateral Flow Testing and More…
Most expensive worthless collection 😂😂
Do u sell terro cards too hoʻw much for the cards can u tex me bk i need 3 deck s for begginers
This bookshelf must be very sturdy
You are amazing, and you have touched on things that I have experienced. I haven't been diagnosed yet, but my symptoms started when I was 14, and I am almost 50 now. Bless you and thank you so much❤
I remember reading a quote on Tumblr around 2013 that read "no one cares unless you're pretty or dying" and let me tell you, it was wrong, people also don't care under those conditions Being 23 and conventionally attractive is a one way tiket to never have others take your conditions seriously
The only embarrassing things about EDS are that so few doctors know about it, and it can take decades to get diagnosed correctly. In my case, I had obvious symptoms even as a toddler, yet didn't get diagnosed correctly until I was 56! And even then, it was a Physician's Assistant, not a doctor, who picked up on my very clear symptoms. I have Classic Type EDS, and Cardiovalvular EDS, one of the less than 1,000 people worldwide to be diagnosed with CvEDS. Also I have mild Asperger's and ADD.
The way I can tell you scratched your arm between clips, lol. My eds skin is the same way. People would always ask what happened to me and I’d be confused, then look and see oh I guess I did that.
Is he single? He's hella handsome
thank you. i'm just beginning my journey- i've been having joint pain and frequent dislocations over the past few years and got diagnosed with a connective tissue disorder two months ago. i understand that anger over losing your former life so so well. i'm a runner and i've been so exhausted and in pain after every workout but quitting seems to me like the worst thing ever. i know i can't do this forever. i know i'm not doing myself any favours. but i want to do this while i still can so thank you for telling me what it will be like when this part of my journey is over and the next part begins. it doesn’t seem so much like the end of the world now. ...watching this video and commenting as i prepare to go on a run. see you guys. thank you if you read this whole thing.
Right before you said "lack of spacial awareness" i said out loud...well i just hsve 0 spacial awareness. 😅 how ironic
Hi!! I love your videos so much!! I’m in a really big pickle about forearm crutches, I’m so worried about getting the wrong type. I have borderline rickets and POTs, and I have a lot of trouble holding my body up right and my hips being unable to move. I was going to purchase SmartCrutches or CoolCrutches, but I’m unsure if one will last, or the other won’t support me correctly. Anyone have thoughts? I also have a fractured wrist that causes me pain, so I’m unsure about the pressure on it…
Thank you so much.
i hate this life.I don't even know if I really have chronic pain I lost everything good .evething was going FINE i was FCKING TOP 3 STUDENT and now i am not able to hold aq pencil for 10 minutes straight .Sometimes i get better and i think"WOW,maybe it was all emotional"and then in the other day i wake up in a hell of pain
Toute ce que vois dites je ne dirais pas moi c’est « sans doute l’EMMPOSeffrt après 40ans de pratiques quotidiennes d’un yoga professionnel (j’ai 81 C’est progressif et ça a commencé en2008 Plus une maladie neurologique de Lyme avec méningite et paralysie faciale Toujours en errance médicale. Celle-ci plus la réaction des proches que vous décrivez très bien: cela m’affecte énormément Je n’ai pas encore écouté vos solutions Thank -you and thé Better for you
I got a lot of peristerite nearby, its like labradorite but the blue is way more intense.
I love cats ❤ Koko is so beautiful 😍
So often even specialists do not want to give you a label but without the label, you can not get the help you need.
FaBuLoUs collection 🤩 & sweet how U LoVe every one 💗
So is it effectively the same idea as prolotherapy but without needles? I.e. stimulate a healing crisis in the tendons?
Today I was supposed to head over to my girlfriends house and help her clean it up because she’s trying to sell it to move so there’s a showing today, and late last night I called her explaining the pain I was in and the that I fainted once, and asked her if I could sit down while helping her, she told me that I didn’t have to come over and help and that she’ll just meet me at my place after she’s done 🥹, I thought that she would be upset with that but she just said all she was worried/wondering about was how can she help me when she comes over so that I’m not in too much pain, I love her so so much and appreciate that she is ok with my chronic pain, I do still really feel the guilt though
Very very interesting and informative thank you😊❤😊❤
Hi, I did the test, after sitting for a while I stood up for 2 minutes and my pulse rate went up to 145 bpm my head felt really hot and I collapsed back into the chair. I think I might have a bit of a problem. I'd like to know what everyone else thinks. Thank you
I love your collection ❤
I am dying from cerebral-systemic lupus and in constant extreme pain. My 73 year old mom is caring for me and my partner is now the only one working to pay the bills and for my kid
I am living by myself and its really hard as i am suffering not only from MCAS also CFS ANXIETY and DEPRESSION..is anybody there who also lives ny themselves and can you gibe me sn advice? I cant also work and everything is a struggle financially ...
And how you deal with it ?
I am having a question. I am.also suffering from MCAS but also anxiety and Depressions..javing Flashbacks from my past .does anybody else do? And how
Have you seen the ice machine that are on Amazon that are used for knee replacements. They have separate pads for backs, shoulders etc. ? I freeze small water bottles instead of ice & fill with water. It has been a life saver for me.
Thank you Stela. I just found your channel and I see my own life in this video. I have felt all these things also. I thank God for my husband who has been my caregiver for over 25 years. We are truly blessed to have these amazing men. 🙏 for you.
Warning ⚠️, advice? Carnivore diet!?
I bet the reason why your partner couldn't come in with you was because the doctor didn't want there to be a witness who could advocate for you while also recording evidence of the doctor's discriminatory ways.
A bit over a year ago, I asked my doctor to refer me to get treatment for an issue, and he told me to have general mental health check-ups first. I thought that made sense because the treatment for this issue is a surgery and it's typically a good idea to go into surgery with a good mental health, but after a month of intake appointments, I learned that the only mental health clinic in my town doesn't do general mental health check-ups because they're too goal-oriented. I came back to my doctor saying that I couldn't do what he told me to do and that I didn't think it was necessary anyway, then he moved the goal post to a completely different field behind an electric fence and told me to go to therapy for my autism and ADHD. That isn't even relevant! And what is even the goal!? To cure incurable conditions!? I was going to argue, but my mom was acting like she was agreeing so I thought maybe I was the unreasonable one even though it literally made zero sense. But then later my mom said that she didn't agree with the doctor after all! Stupid people-pleasing jerk!
came for the stick, stayed for your personality and adorable luna. I am obsessed with her!
Do u have sibo or any digestive issues ?
Mine is when I’m squatting down or bending over then stand back up.
Wish you all the best ❤
Bless you! Did you complain or have a another tilt table test. It’s appalling the way you were treated. 😢 I’ve got mine in a week and very anxious 😭 xxx
We walk and turn around the same I'm over here crying... Thank you for sharing this video and showing examples! You are amazing!
I'm undiagnosed (for hEDS or any version) and believe I have it and O M G you just explained something I never knew I had a problem with. During a squat/standing up I never purposefully tighten what I believe my pelvic floor muscles and abs tight... etc... OMG... thank you for mentioning this!!! i always recognize that it feels weird and I end up tightening them and my butt after the fact (after I notice I'm weak trying to stand up) and then it helps to stand up. EVERY - TIME.
I had chronic pain for 38 years with restless leg syndrome your video ain't going to do s*** for me
I truly appreciate you helping validate my experience. 🥰
God bless you!❤
Can rotator cuff tear be a symptom of eds??
Do you get internal tremors and shaking 😢
You’re very knowledgeable about crystals which is admirable but I’m sure keeping them altogether like that messes up each of the crystals distinctive energy. I read you should keep them in 100% cotton bags or silk to stop their energies mixing otherwise you have to cleanse them to rest them back to their natural frequencies?
This is So True
Losing Friends -- telling them you can't drink alcohol anymore 🙃 and they full stop. no contact. Leave your life like you're an abuser.
Love the knowledge you share! For anyone struggling with allergies, Planet Ayurveda's Allergy Care Pack offers a natural and effective treatment.
So informative, such a wealth of knowledge in crystals and minerals. Really enjoyed your collection and listening you. I have a huge collection too, so this helped a lot!
Thank you for this video. I have Fibromyalgia and other invisible chronic illnesses, and it can be really hard to stay strong sometimes, and it can feel really lonely at time. It would be great for you to do a video about how medical gas lighting, and having people accusing you of faking your illness can lead to Imposter syndrome, and how that can negatively affect someone living with a chronic invisible illness. I struggle with this myself.