Відео

I did this earlier this morning after talking about my symptoms with my parents (I have a history of hypochondria, so I was unsure if I was imagining things or not) and my heart rate went from around 86 and peaked at 144, and stayed like that for about 5 minutes or so lol. My blood pressure also dropped about 20/10 mmHg (not sure the exact numbers, since this was early this morning). I've always had blood pooling in my hands and for years I get dizzy/black out a bit when I stand, and I thought that was totally normal until I started looking into it. It's definitely been getting worse though, and I often have to catch myself on something when I stand too fast or else I'll fall over because of how heavy and weak my body gets. I definitely need to call my GP, since it's starting to effect my daily life

This blew my mind 🤯🤯🤯 I have never seen a collection like this one…EVERY crystal would have spoken to me, had i seen it somewhere. This is the most beautiful collection I have ever seen 🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰

Just feel like im already half dead. Can't believe how shitty my life is in such a short time. If it wasn't for my little dog and close family I'd just go to bed and drink myself into oblivion. The saddest thing? There are treatments that can help but not on the NHS and they cost thousands. Poor and sick is a death sentence in the UK.

I have been going through chronic chest pain with no answers even after numerous tests and the whole it’s all in your head thing gets so old and painful to hear. Your video gave me hope so thankyou ❤

Thank you for sharing! Great video! I had no idea my clumsiness is an EDS thing! Then again I shouldn't be surprised because anything weird about me seems to be an EDS thing. I was tested tested for vision problems all the time as a kid.because I was always bumping into things (and still do). The vision tests always came back normal and I was told that I'm just not paying attention and not watching where I'm going but I would always say no, I absolutely saw the corner of the table I just walked into it anyway. 😂

Duhh what I have is a snowflake obsidian? 🤔 made into a pendant LOL

How much???

I’m worried no one’s said anything but it seems you’re holding the stick in the wrong hand for the walking stick 🩷 it’s supposed to support the opposite side of your body, so holding it in your left hand for your right side, I’m sure someone’s told you or maybe this is just how it works for you the best but just in case

At least you have a family and the ability to go to a hospital. Many people can't afford a doctor's visit. I always feel alone. This video did help.

I’m sure your crystals gets dust on them. What do you use to dust them off??

Love your Beautiful Eyes

Omg 😮 your crystals are amazing, I’ve never seen a collection like yours. I have a lot of crystals been collecting over twenty years. My collection is small compared to yours and thank you for the little information notes. I’m definitely a new subscriber I also collect oracle and tarot cards 🔮 My newest crystal is a beautiful carved tiffany stone butterfly she’s beautiful 🦋 Also my first quartz with tourmaline dragon skull it told me its name was Scar, when I first held it 🐲

It’s like red light therapy ?

Since when u had pots

resting : 68-72 standing: 105-120 isn't it a normal heart increase?

Wow you look so fabulous 😍 this has given me so much more confidence to use a walking stick after avoiding for so long ✨

Thank you so much aIm on this journey a little different but just told its eds.dismissedas anxiety allergies to foods depression hypochondriac,degenerative bone disease ,its a shame women dont get treated as human beings .Keep going girl you got it!keep fighting!

Wwwooooowww he needs to be fired.

I LOVE your crystal collection!!!

I live in NH and we have slot of florite, mostly green not so much purple

I see so many high histamine foods. Interesting that you can tolerate all of that.

Dear Stela! Ohhh.... you uploaded this video 2 years ago. How are you in the meantime? I was so sorry to see you like this. Life must be very hard. I have had some breathing issues these last years, and then I had 2 pulmonary embolisms (no cause found) Since then shortness of breath increased so much! This week I went to ER because it was so bad. They saw, that I was very short of breath. (Category 4 on NYHA Scale) Usually I have a heart rate of 80-85 bpm while resting in horizontal position. As soon as I get up, the heartrate within a minute or two raises up to over 120bpm or more, depending on just standing or doing sth like take a shower, walk, use a hairdryer etc. I am not feeling dizzy exactly, but absolutely short of breath and exhausted. When I try to stand and i.e. dry my hair, I need to make breakes every 30 sec or minute, sit down, because I feel like fainting. All the many doctors and hospitals I went to in the last years, say everything is fine with my heart, and lungs. They say I am over-dramatic and simulating. Because I am not able to walk or stand long, I was not able to do sports and gained 30kg weight within the last 3.5 years. Doctors keep telling me, I am obese and that is the cause. I should do sports and diet. But I cant do sports. 25 seconds (no exaggeration) on a Crosstrainer and my heart rate is at 160 bpm, and I feel like fainting, extremely exhausted. No headache though, no dizziness. But I have often have brain fog and blurred vision (not constantly, so it is not an eye problem) Doctors never mentioned POTS to me, I just just found your video. May I ask, how can you live with this condition? I am so desperate and exhausted. I went to soo many doctors and they diagnosed me with anxiety and depression, and being hypochondriac, because all physical examinations of heart, pulmonary system, blood tests, all is well. I am always cold, I even need a heating blanket in summer. I wonder if it might be POTS. And I wonder, how do you manage it? I wish you all the best, dear Stela. 🍀🦋 Best wishes and greetings from Germany 🇩🇪🤗

thank you <3

I was recently diagnosed with stage 2 lipedema, which makes so much sense now, especially considering it's linked to connective tissue disorders. This condition leads to abnormal fat accumulation in painful nodules, and it's been a real challenge alongside my EDS. The one thing that has consistently brought relief for both my EDS and lipedema symptoms is swimming. I can't help but wonder if there's an evolutionary advantage to this syndrome-maybe we're more adapted to life in water than on land! I wish someone would study that possibility 😭.

Do people actually walk around with clenched muscles and straight posture but not think about it? I’m legit asking because I could never. Fellow austist here, I can relate to a ton of these things. In the process of getting diagnosed with POTS and hEDS among other likely issues. Thanks for sharing your experiences.

I thought coffee and chocolate were a big trigger fo Mcas!!!

I have multiple chronic illnesses that were diagnosed over the last few years and I totally relate to all this. I am now at the point where I need a wheelchair (this is coming from someone who used to walk up and down nine flights of stairs before). I sometimes get so discouraged with it but I am so lucky that the most important people in my life have understood and support me even through the loss of my abilities.

Love it. Thanks for sharing!

🎉❤

I agree on ur point. Me as a triple disordered (since I'm 17) learned to embrace and Ironize my chronic fuckin diseases and paint them as an opportunity to feel life more intensively:)

Checkout the interaction of your COFFEE consumption and the development of histamine.

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I am so normal and of good skin joints etc, like perfect. then I developed all around all joints pain, after loss of wisdom tooth (year later). what is it? I am not like you at all, I am small type and very stiff (so worst at yoga). Again these fingers and feet do not matter as everyone has hands, feet like yours (I checked my foot and it is same) so your feet are normal. My fingers can bend more than yours as I am small (small people's fingers are softer than tall ones), but thumb not as much as yours (because yours is long so can go more to the wrist way due to larger bone vs mine too small). I was told pain is fibromyalgia as it is not normal to have pain around all normal joints. But what if it was lupus that damaged your joints so they lost collagen and started to dislocate? What if I have this too, and later my joints will do same just because it might be lupus in fact? My joints are so good like perfection, never any problems before.

yes you are true one with heds 1 in 5000 as its not normal to dislocate anything. but people withhout that claim to have heds too (normal people), so it is confusing as soon everyone will want heds and not fibromyalgia (old fashioned). how to know who is true and who is not? as everyone claims to be heds and they tell to others you have heds if you have pain. then others think they do have too. only dislocation should be heds as marker not other small things that everyone has.

I just got approved for PIP and I’m looking at getting one of these. I have the same condition as you! This is going to change my life 🥹

I have Tourette’s Syndrome and I am looking into become and ambulatory wheelchair user due to some extremely servere tics that leaded me needing support with walking e.g. someone linking my arm to stop my tics from throwing myself on the floor.

Thank you so much for sharing all this Stela, your channel is great and I really appreciate it ❤ I think I might have EDS, thankfully I don't have pain other than back pain and achy joints sometimes, but I have really severe fatigue and weakness. It's really helpful hearing your story and the awful process of misdiagnosis. Sending much love and positivity for your health ❤

Thank you for telling how you felt before, because that is exactly how I feel when I found out that I needed to use a walker, so I didn’t want to use my so I just keep having falls, but now I got a little bit better about knowing that I got a Disability and needed to use a walker,I still getting used to having a Disability and now I am useing my walker , I’m just glad I’m the only one that has felt like that. Thank you

One of the scenarios that bug me are when people offer help but then disappear. An people who will ask me if they could help in any way, ANYTHING an I will honestly say "the only thing that would help me right now is money." But then you can see the look in their eye changes and they pull back an politely say something like. "Oh... well -hey I will pray for you." An then they avoid me like the plague. I have no problem with religion but it be a lie if I said it doesn't hurt and feel like the ultimate ultimate cop out of actually helping someone. So many inless fakers have made it so difficult an left people so untrusting (especially online) I understand why but it still stressful an soul shattering when I have to choose between power or the water bill some months. My life is is hell an has bankrupt me, my mother/family. Some of my step siblings hate me for it like I ruined their lives as well. Im at the end of my rope, I wish I would just pass allready so they can be free of me an my relentless illness.

POTS Mafia ya herd still can't stop us

very well done. for me, the hardest things are being undiagnosed, having only rare family and friend support, and not having someone here 24/7. this is a tough way to live. but you find your own ways to get through it. and you throw something at the tv every damn time you see a disabled person climbing mount everest, because, for most disabled people, getting a shower once in a while is the real mount everest.

Even though I’m seeing this almost 3 years later, the way he treated you makes me feel very angry for you. Not even mentioning that he most likely did this to other patients as well. But in my mind I’m dislocating all of my joints while beating him up. (And I’m never violent towards other people!) You have so much strength for letting yourself feel your feelings. Remember that we may not be able to control others, but we can control how we continue to keep moving forward. Keep fighting for your needs! You set an amazing example and are a great role model for those of us that truly relate on a strong level! Sending positive vibes! -Gracie

Eat hearty meals

Chronic illness doesn't have to be permanent 🙏

Thank u so much for this vd, it's really helpful in many ways especially how u talk about these difficult things in our situation with confidence makes me feel more open to search and accept more things in my life ❤ thank u

Ive been diagnosed with EDS for a while. The Endometriosis diagnosis process cost me my ex-best friend of 9 years. My Neurocardiogenic syncope came around June of this year. Im now going into my senior year having my Acid reflux return from infancy, Thyroid Issues, and all of my other issues... ontop of a mean gym teacher.... In a heat wave! 😭 (Actually, any tips to help explain why going outside into the heat and DIRECT SUN is a bad idea, and its Not the Physical Therapy workouts being akward.)