- 47
- 921 498
A Life Story Foundation
United States
Приєднався 20 гру 2013
Follow Kevin and Shaina Swan as they refuse to let ALS slow them down! A true power couple that creates content on everything from traveling with disabilities to how to prepare healthy blended tube feeds.
Medical Cannabis Products
Medical cannabis products have come a long way! The benefits of medical cannabis have just started to get the research and development that they deserve.
Kevin uses a different assortment of medical marijuana products. Thanks to everyone at MUV, we have plenty of delivery methods to choose from depending on the issue. Whether it is arches or anxiety, there's a medical cannabis product for you.
The are MUV dispensaries throughout the state of Florida. www.muvfl.com/
Shaina Swan has been a huge advocate for medical cannabis education and awareness. You can always reach out to through www.maryjagency.com/
Stay in touch!
Website - www.alifestoryfoundation.org/
Facebook - KevinSwanNLS/
Instagram - a_life_story_foundation
Camera Gear - Affiliate links
Camera - amzn.to/2PzNrM2
Microphone - amzn.to/3kusAYU
Lights - amzn.to/31z9UhT
Batteries - amzn.to/3a7w7HO
Kevin uses a different assortment of medical marijuana products. Thanks to everyone at MUV, we have plenty of delivery methods to choose from depending on the issue. Whether it is arches or anxiety, there's a medical cannabis product for you.
The are MUV dispensaries throughout the state of Florida. www.muvfl.com/
Shaina Swan has been a huge advocate for medical cannabis education and awareness. You can always reach out to through www.maryjagency.com/
Stay in touch!
Website - www.alifestoryfoundation.org/
Facebook - KevinSwanNLS/
Instagram - a_life_story_foundation
Camera Gear - Affiliate links
Camera - amzn.to/2PzNrM2
Microphone - amzn.to/3kusAYU
Lights - amzn.to/31z9UhT
Batteries - amzn.to/3a7w7HO
Переглядів: 11 460
Відео
How to Use Cough Assist
Переглядів 35 тис.3 роки тому
How to use cough assist machine is super simple. The VOCSN device from Ventec Is a complete game changer! As you'll see in the video, it is not only easy to use, if repcombined three different machines into one ! Cough assist and suction are extremely important for ALS patients. The diaphragm is too weak to cough up any blockages. The throat muscles are too weak to be able to swallow, which is ...
New Technology - Driving Wheelchair With Your Eyes!
Переглядів 6 тис.4 роки тому
New Technology - Driving Wheelchair With Your Eyes! This is a sneak peek at the latest eye tracker technology. We will be doing a full video that explains the Independence Drive in great detail. This amazing advance is the product of a collaborative effort between Jay Smith, Team Gleason, and Microsoft. It's very new to the market. Stay in touch! Website - www.alifestoryfoundation.org/ Facebook...
How to Manage Your Daily Medications
Переглядів 2,9 тис.4 роки тому
How to Manage Your Daily Medications can be overwhelming.That is why we thought it was important to show how we manage Kevin's meds! It is very important to stay organized with a large pill box. We always recommend that you keep an up-to-date list of meditations on your phone. This will prove to be a wise decision if there is ever an emergency.
The Next Reality TV Host | TBT
Переглядів 2,2 тис.4 роки тому
The Next Reality TV Host - Kevin was always very comfortable in front of the camera. After working in advertising in NYC for a few years, Kevin decided to pursue his dream. The idea of working in TV as a host was extremely exciting! A few years later, Kevin was diagnosed with ALS. His ability to communicate and use video as a way to create stories has been a mission of A Life Story Foundation. ...
How to Change the Mic-Key Button
Переглядів 17 тис.4 роки тому
How to Change the Mic-Key Button - This is much easier than it sounds! The Mic-Key button is a low profile g tube that is great for active patients. The first time it popped out we were scared and raced to the ER! Now we always have a backup and change it our self. The stomach and the feeding tube area are not a sterile environment. It's important to wash your hands, but you don't need to act l...
Wheelchair Accessible Van Review
Переглядів 17 тис.4 роки тому
Wheelchair Accessible Van Review - We recommend the BraunAbilty Chrysler Pacifica for the best wheelchair accessible van on the market. The Pacifica has been a great solution for not just everyday travel, but for road trips too! This is our second van in the last five years and we have not had any problems with the ramp or the rest of the vehicle. Big thanks to our friends at SignZoo for the am...
Tracheotomy Basics | Ventilator Emergency Supplies
Переглядів 1,5 тис.4 роки тому
Tracheotomy Basics | Ventilator Emergency Supplies - This video shows you the basic supplies that you should always have with the trached person. Tracheotomy or Tracheostomy care can be extremely intimidating and scary. But we want to help ease those fears. The most important thing to remember is to always be prepared. The ventilator is extremely reliable but all the the tubes and moving plasti...
How to Use the Mic-Key Feeding Tube
Переглядів 33 тис.4 роки тому
How to use the mic-key feeding tube It's really easy! The Mic-Key button is a low profile g tube that is great for active patients. It is almost flush with the skin. Using a feeding tube can be intimidating at first, but it is a very simple process. The proper nutrition is a key factor in the overall health of ALS patients. Kevin was down to 120 lbs before he got a feeding tube. Through the pro...
Diagnosed with ALS - Now what?
Переглядів 12 тис.4 роки тому
Diagnosed with ALS - Now what? This is the first question that families are faced with moments after receiving a terminal diagnosis. The feelings of overwhelming fear and frustration rise to the top of the list. This video was shot approximately four weeks after my diagnosis in 2012. It was really the inspiration behind the start of A Life Story Foundation. I hated the , what now, uncertainty. ...
Ferris Bueller's Day Off | ALS Edition | Parody
Переглядів 3,7 тис.4 роки тому
Ferris Bueller's Day Off | ALS Edition | Parody We were originally going to shoot, how to shower with a trach, but ran into some lighting issues. So, we decided to have some fun! We are children of the 80's and that means that we loved Ferris Bueller's Day Off! It's just as good now as it was two decades ago! This is our first parod, so be kind! Stay in touch! Website - www.alifestoryfoundation...
How to Make Healthy Smoothies for Feeding Tube
Переглядів 46 тис.4 роки тому
How to Make Healthy Smoothies for Feeding Tube - This video goes step-by-step through how to make smoothies for g tubes. Shaina touches on the importance of finding healthy alternatives to the boxed stuff. Making blended feeds at home is super easy. We are happy to help with ALS or any other ailments that require using a g tube. Blended smoothies can be a real difference-maker. All of are recip...
How to Find Humor Anywhere!
Переглядів 3,2 тис.4 роки тому
How to find humor anywhere! It's a must! They say laughter is the best medicine. Kevin and Shaina Swan share some of the funniest stories that have happened to them over the years! To follow the Swan's journey with a lot of humor, please check out www.alifestoryfoundation.org/ We love to hear stories of families that overcome daily obstacles! Please follow us on Instagram a_life_s...
This is How to Treat Yourself!
Переглядів 8614 роки тому
This is how to treat yourself! Kevin and Shaina Swan are huge fans of Parks and Recreation as are most funny, intelligent people! ;-) Shay is such a strong woman, but even she needs the, treat yourself treatment sometimes! She popped into Sarasota's hottest new salon! Assunta, Spa Salon and Sanctuary is exactly that! Shaina just snuck in right after the mirrors hit walls. Assunta has been a gre...
Leaving the House with a ALS Patient - Haircut Time!
Переглядів 4,1 тис.4 роки тому
Leaving the house with a ALS patient can be scary. But getting out and doing normal every day activities like getting a haircut are so important. Leaving the house is all about being prepared and having confidence.
How to Road Trip with a Disability - Traveling with a Wheelchair
Переглядів 6 тис.4 роки тому
How to Road Trip with a Disability - Traveling with a Wheelchair
How to Cure ALS? Keep fighting - from Pat Quinn
Переглядів 6 тис.4 роки тому
How to Cure ALS? Keep fighting - from Pat Quinn
The 2020 Giving Challenge - Our Video Won!
Переглядів 6 тис.4 роки тому
The 2020 Giving Challenge - Our Video Won!
How to Beat a Terminal Diagnosis - Living with ALS
Переглядів 29 тис.4 роки тому
How to Beat a Terminal Diagnosis - Living with ALS
ALS Disease - Make 2020 a Year to Remember
Переглядів 4,1 тис.4 роки тому
ALS Disease - Make 2020 a Year to Remember
A HELPING HAND RECIPIENT - Watch Our Interview
Переглядів 1,2 тис.4 роки тому
A HELPING HAND RECIPIENT - Watch Our Interview
$50,000 Thank You to A Life Story Foundation From ALS TDI
Переглядів 1845 років тому
$50,000 Thank You to A Life Story Foundation From ALS TDI
How to Live Your Best Life With ALS
Переглядів 36 тис.6 років тому
How to Live Your Best Life With ALS
ALS Patient Technology and the Power of Positive Thinking
Переглядів 9 тис.7 років тому
ALS Patient Technology and the Power of Positive Thinking
Living with ALS - The Symptoms and The Power of Positive Thinking
Переглядів 210 тис.7 років тому
Living with ALS - The Symptoms and The Power of Positive Thinking
Never Take A Hug For Granted: Life with ALS
Переглядів 2,1 тис.7 років тому
Never Take A Hug For Granted: Life with ALS
Yoga Day for ALS - October 15th, 2016
Переглядів 3,8 тис.7 років тому
Yoga Day for ALS - October 15th, 2016
No gloves! Best way to spread infection.
When Did Your Husband Get Li This?!!
❤❤❤❤❤❤❤
I am looking for a new power wheelchair for ALS, Kevin use this one looks nice , may I know what is the brand and model that is?
😮 wow just wow hats off to that wife an angel to him! It’s rare to found a wife like her legendary👏🙏
ALS JAPAN!
My husband was diagnosed with bulbar ALS back in October of 2023. I noticed his speech back in 2020, it was slurred then. It seems this disease is progressing so fast and it's so sad to watch him go through this. He fights and fights hard and I'm fighting with him 💙😢
That was a great succinct video.
Does anyone know if Kevin is still alive, and if so, how he's doing now? I can't find ANY information on him after 2021.
Halima 24 ans MIC-KEY 14FR 2.3CM
She is awesome!!
Hope they find a cure soon ❤
We NEED a cure for this as soon as possible. We need to pour billions into further research RIGHT NOW!
She looks clean but doesn't use gloves and then touches her own mouth truly gross
I am so sorry that this young man is going through this. He is very fortunate to have his wonderful wife caring for him. 🕉
Hi my mother-in-law was diagnosed with ALS today. I’m viewing your videos and hoping I can get great insight on your channel. 😊
I have a 6 year old son that has had a mickey gtube button...I have changed it like every 3 months it's been 7 months now and I went to go change it but it's stuck! I tried pulling it out after taking the water out the Ballon and it's not coming out... What do u suggest?
I am 72 and have been diagnosed with ALS. Because I am a mallwalker, I have been able to keep my legs from getting weak. At home, as I go upstairs, I say out loud to myself "Brain, lift my legs, lift my legs". I repeat this until I am to the top of the stairs. Since I started doing this, I have not fallen down on the stairs.
Thank you so much!
How often do you feed him? What do you feed him for breakfast? Lunch and dinner??
Really it was not an easy journey for me after when i was diagnosed with ALS disease for years and nothing was able to help, until a friend of mine at the office introduced me to DR EHIMARE ON UA-cam CHANNEL who was able to eradicate and reverse my Al's disease!! Sending ❤ to everyone who are suffering from this and do well to contact DR EHIMARE ON UA-cam CHANNEL for solutions..
I'm so grateful to you Dr EHIMARE ON UA-cam CHANNEL who was able to reverse and cured my husband Al's disease with the herbs i ordered from him thank you XX Dr Ehimare ❤....
I have ALS and this is the best Medical Science can do after almost a 100 years............complete and utter failure of humanity.....my only hope is some crackpot internet video...sorry i am bitter..love to all.
How do you speak?
Oh man this must me tough
Are you crushing and mixing with liquid?
Ойй ужас,что же за жизнь😮😮😮😮😢
😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢
My guy just passed in December from this terrible disease I was his caregiver for the last two years and he became my best friend my brother 🥺
If I get that disease I'm gonna take my own life but that's just me. I'd rather end my life than to end up like that. Especially since I've been a martial artist for many years. I'd never be able to mentally adjust to not being able to move and care for myself. I'd use my remaining strength to end it before I get to the point that I can't end it.
سێ ساڵ لەمەوبەر نەماندەزانی نەخۆشی ALS جيه بەڵام ئێستا هەموو شتێکمان لەسەر زانیوە، نەخۆشییەکی مەترسیدار و کوشندە و بێ بەزەییە، خودا وان یارمەتی هەموو کەسێک بدات کە ئازیزێکی هەیە، ئەمە نەخۆشییە
Makes it really hard to complain about anything else in life
doesn't it what. . .we're cruising by comparison
There are angels among us…..blessings to this warrior & this wonderful woman ❣️
Thank you… helping my with feeding
Hey! I Please read into chlorine dioxide with ALS. ALL the best to everyone of you!
All they needed was Liquid Chlorofil. Vitamin D 60,000
My grandmother passed from this 3 years ago. Praying for a cure and God bless
My mother got diagnosed with this disease. I really don't understand how she got it April 2019 begin to complain more about not being able to walk long distance. She ignored it and didnt to go in then after her mother passed away my grandma in September of 2023 and we noticed a significant change after she fell Her speech was not good it was slurring she had troubles closing her mouth, trouble swallowing, breathing. That's what I'm not understanding because it Als is slow Progressive disease so are they trying to tell me that my mom was asking her symptoms so many years
God help all suffering from ALS and help those who take care of them.
Thats no life....
Thanks
Thank God, you have someone, who really cares for you.🙏🙏🙏🙏
All thanks to DR ALAHO OLU on UA-cam Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.😊❤🎉
All thanks to DR ALAHO OLU on UA-cam Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.😊❤🎉
All thanks to DR ALAHO OLU on UA-cam Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.❤
All thanks to DR ALAHO OLU on UA-cam Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.❤
May God continue to bless you Dr ubarlo for always listening to me and always being there for me , your medicine was top notch , thanks for taking away my ALS disease pain . I'm grateful doctor
❤❤❤
My utmost respect to the kind-hearted care takers.
Has Kevin passed away? You don’t seem to have closure with your foundation. Don’t mean to pick, I just like to keep track of those with ALS. My husband died of ALS. Blessings!