Відео

B1 in the b1 therapy in Parkinson's has been administered via sublingual (tablets), oral or intramuscular way. The sublingual and intramuscular routes bypass the gastrointestinal tract, where absorption may be affected by many factors in persons with Parkinson's. However, all the 3 routes are reported to be effective if the right dose of b1 for each specific individual is found following the b1 protocol. Consult with your physician if you plan to start high-dose thiamine therapy.

Any suggestion to improve it is welcome!

The dose is very personalised, following the b1 protocol. You can read more about it on our website b1parkinsons.org/finding-the-right-dose and In Daphne's Bryan book on "Parkinson's and the b1 therapy". There is also a Facebook group for further support: facebook.com/groups/parkinsonsb1therapy

Non sappiamo di neurologi a Roma che abbiano esperienza con la tiamina nel Parkinson. A Genova lavora un neurologo che ha esperienza diretta con il protocollo, che attualmente lo usa e che ha svolto ricerca su di esso collaborando originariamente anche con il dott Costantini: è il Dott. Roberto Fancellu. Il Dott. Fancellu lavora all’Ospedale Policlinico San Martino IRCCS di Genova, una struttura di alto livello. E’ dirigente medico, Unità Operativa di Neurologia, che comprende anche attività ambulatoriali, incluso l’ambulatorio Parkinson dell’Ospedale. I contatti sono sul sito dell’Ospedale. Se avesse difficoltà, me lo faccia sapere. Dott Roberto Fancellu Ospedale Policlinico San Martino IRCCS Largo R. Benzi 10 Genova Centralino Ospedale: tel 010 5551 Sito dell’Ospedale: www.ospedalesanmartino.it/it/chi-siamo.html Come raggiungere l’ospedale: www.ospedalesanmartino.it/it/dove-siamo.html

We are looking for funds for the study. Meanwhile, if you wish, you may join the Facebook group on Parkinson's b1 therapy (with Daphne Bryan as the administrator) , which counts over 11,000 people and which provides support and guidance on b1 therapy to persons with Parkinson’s. facebook.com/groups/parkinsonsb1therapy

Glad to hear that you are following the b1 protocol with benefits. If you are interested in inspiring others and sharing your story with the same video format on our channel as Garth and other persons with Parkinson's have already done, you may consider joining the facebook group on Parkinson's b1 therapy at facebook.com/groups/parkinsonsb1therapy and posting your initial text of the story there. After reviewing it, we'll be sending you a set of guiding questions to make sure that the required, detailed info is included, to facilitate the process. This has been found very helpful in shaping the story. We'll be sharing with you also the list of the few steps of the process to create the video together with the timeline so that you have the big picture. Depending on your availability of time and images to create the video, it may take less than a week to finalise the video-story and post it to our channel and our website together with the other success stories at b1parkinsons.org/success-stories . We encourage people like you who have something to share, to do so. Thanks again for your positive feedback.

Thanks for your feedback

As Tony writes, we hope these stories will help inspire and give back some hope. We thank Garth for this. While hoping to share many more stories like this one on our UA-cam channel, we keep waiting for a randomized trial to be fully funded and conducted to provide the scientific evidence supporting these anecdotal reports.

Glad you enjoyed it!

Great testimony. It seems the tremors are not an issue anymore.

Yes, there is. You can download it from the Member Area of our website at b1parkinsons.org/members. You only need to register, a very simple and fast process. You'll receive a password and have access to all the technical review documents there. There is also a blog version at b1parkinsons.org/tpost/hu84xl6ek1-qampa-on-screening-persons-with-parkinso

Welcome!

So glad!

This is our blog on benfotiamine on our website on b1 (thiamine) in Parkinson's. While benfotiamine represents an attractive, potential treatment option for testing in future clinical trials in Parkinson’s disease (PD), no clinical study have been conducted yet on benfotiamine in PD. So, there is currently no evidence to recommend its use in PD.

Grazie per il feedback e il consiglio. In realtà, non è stata usata AI ma semplicemente la lettura del testo. Comunque terremo in considerazione il tuo commento in futuro. Grazie!

Thank you for your supportive feedback!

Intravenous route is not used in the B1 therapy protocol. It also carries There is also a small risk of serious adverse reaction (allergic reactions).

Still lobbying to find donors willing to support an RCT on b1 in Parkinson's. About the placebo effect, you may wish to read our website section on it at b1parkinsons.org/evidence (6th item of the 7-item list.

Unfortunately, the Covid-19 epidemic took away Dr Costantini's life. There is a Facebook group set up by Daphne Bryan's which you may find interesting in which you may find the answers to some of your questions: facebook.com/groups/parkinsonsb1therapy/

The dose is highly individual. For more information, you may wish to join the Facebook group facebook.com/groups/parkinsonsb1therapy/

No clinical trial on the use of benfotiamine in Parkinson's has been conducted to date, although it is a legitimate candidate, as ut has shown in pre-clinical studies to have antioxidant and anti-inflammatory effects and reduce microglia activation. The B1 protocol currently refers to b1 ( thiamine HCL).

Good to hear that.

how are you doing now, I see it has been 6 months, newly diagnosed here

Thank you for watching and for your feedback

Thiamine is vitamin B1. It is available as tablets for oral (and sublingual administration route) and ampules for im.. As a practitioner, you may wish to have a look also at our website b1parkinsons.org , where there is a Member Area reserved for health practitioners.

If you are interested in this type of information, you may wish to join the Facebook group at facebook.com/groups/parkinsonsb1therapy

Yes, the protocol includes magnesium and b-complex daily with b1

Magnesium carbonate is commonly used in preparations for heartburn relief and "stomach acidity". Although one drug site reports an absorption rate of 40% (which would be rather high), information on its bioavailability is not easily available as reviews of different forms of magnesium do not usually include magnesium carbonate.

YT The Art and Science of Mega Dose Thiamine. EO Nutrition. It Works.

Daphne Bryan's book on b1 therapy is like a practical guide and a good start to learn more about it.

@@B1Therapy Thanks I have purchased it and also read it. It is amazing experience to read this. Also gave 100mg thiamine injection to my father yesterday. Waiting for the results.

@@Bajrangi308 HI Ankit, My father is also suffering from PD. Please inform me also, if it works for your father. Please do not ignore it. I am waiting for your reply. Thank you..

​@@Bajrangi308 what is the result bro... One of known doctor suggested B1 injection to my father.. Can you share your experience?

There are no published studies on the use of benfotiamine in Parkinson's. A few anectodal reports have described mixed results. Benfotiamine represents an interesting form of thiamine, which has already provided encouraging results in diabetes neuropathy and mild cognitive impairment in Alzheimer's. Its mechanism of action is still not clearly understood.

The form of thiamine which has been used orally and in an open study with a relatively long follow-up on b1 in Parkinson's disease is HCL.