Відео

🫶🙏 Thank you so much for sharing your continued journey. I was diagnosed 2 years ago and its been so debilitating and frightening. Only recently have I decided to also share with others, to try help and provide some guidance on whats worked for me and support others 💖 #strongertogther

I appreciate your video. I have been diagnosed FMD. It started after a terrible virus in my vestibular nerve that caused the worse case of vertigo I could image. Which caused me to loose consciousness and I fell backwards. When I gained consciousness my cell phone was next to my head. I knew I was loosing consciousness again and called 911. I was in hospital for 8 days and rehab for 2-1/2 weeks cuz my eyes weren’t working together and I forgot how to walk. I could feel tremors in my head but no one could see them until I was in rehab. I took looked like I had Parkinsons. So much more crazy and total life change. It has only been a year. I was blessed with a in home care PT who helped me get my eyes to work together again. Rehab started the process. I remember being in PT parallel bars and learning heal to toe movement. I thought it was brilliant. It somehow wiped my brain and I forgot so much. Anyways that is coming back and I’m walking with a cane and can read again. I found a place in LA that is amazing. It is called Re+Active. They offer so much online. Exercises, yoga, education, etc about FND and all the different aspects of it. I believe God is our healer and even if my nervous system had a perfect storm and the previous pathway has been fried. He is the Way Maker and He is making new pathways. He also has given me tools to help my parasympathetic nervous system be more active to calm my nervous system down. God created us so amazingly it sort of blows my mind haha. I have to laugh at myself when my body does silly things. Like you talked about. Which helps me. At first I couldn’t laugh at anything. I cried thinking how could I glorify God in the mess I’m in. But God is using it thru me just like He is using you. I’m not tech savvy and I accidentally came across your video. But I know it wasn’t an accident. My name is Ginny and I am blessed by your video. May you be blessed greatly. April 19, 10:00 am PST 25:43

How are you feeling today?😊 Nutrition really help me😊

My symptoms are mainly triggered by my neck, which I injured in 2006. Shocks and a wave moving up my spine and o er my head as well as various other episodes of of fumm body writhing, teeth chomping and chattering uncontrollably, exploding head syndrome, amongst any others. I Also injured my neck with simple movement and was left for 2 weeks unable to.lift my chin from my chest. Looking back to childhood and adolescence I can now see that the crazy experiences as a child were also my undiagnosed fnd symptoms. Glad I stumbled on this video, thanks for sharing. ❤

I doing this naturopathic approach... I am doing these Suja Tumeric and Probotic shots.. 4 days my pain has decreased and stopped doing this restless leg syndrome.

Have you looked info Ehlers Danlos Syndrome?

I have FMD, and I have attacks almost every day. I am extremely tired. I have dissociation, which means that I have often disconnected with everything below head. I can't drive. How I can go beck to work? Please help me.

Thankyou very helpful video. I was diagnosed with fnd this year in august. He said my case is on the server side and i will never recover

Hello my friend. I also have FND. As such I can really relate to the good days and the bad days. Thank you for being so strong and putting out this video during a really tough time. Xx

I also have been diagnosed with FND a week ago. Have been having tremors off and on for about 7-8 months. The tremors seem to appear when I got sick and was didn’t know why. Within two months I found out I had a rare liver disease was having liver failure. I am on life saving medication keeping my immune system from attacking my liver. It’s strange how my Tremors came at the same time. Thanks for sharing your story. You are very brave and inspiring. Greatly appreciate all your information. This all has been confusing. Prayers and Best wishes for you!

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You are a brave brave woman, keep being true to who you want to be! ❤

Thank you ❤

Good to see you back 😊. Recovery is never a straight line. My own revealation has been to listen to my body. When I get pain, pause what I'm doing. It's frustrating. I have to work with my limitations. Keep fighting 💪.

Thanks for your video 👍 FND’er here; ran/run the full gamut of symptoms you covered - wild ride to say the least. I find I need to be very purposeful and planned out, totally contrary to how I lived life before, lol. Thanks for posting 🙏

I just want to say you have opened my eyes so much. I was diagnosed in 2019 with FND after 2 years of stroke like symptoms and misdiagnosed with MS and Parkinson’s amongst other things. I have a lot of other health issues along with the fnd and just turned 30 it’s been a very difficult battle and seeing that there is hope and that people with our condition can over come and do what they want despite the normal inspires me to keep reaching for my own goals

Missed you

Yay!!! Your back x missed you x Sorry life has been so hard, but your seeing the positive in this :) I found having therapy, taking, tapping and releasing past trauma stopped my FND seizures, now working on releasing pain, spasms, Tourette’s, chronic fatigue blah blah blah lol xxxxxxxxxx

Don’t know that I’ve had any growth. Graduating was a huge accomplishment with all of the health issues that I’ve been through. Realizing family issues (drama) is overwhelming and toxic and I just need to concentrate on myself and my family. So, now I’m switching up my spring break plans to see my parents in Minnesota. I thought about maybe Kansas City and staying at a haunted lake house or go to a nice warm beach somewhere. Told my husband that I just want to go somewhere where I’m at peace and can relax.

Tell me about any revelations or growth you all have been having these days. 👀👀👀

Can you elaborate more on your sensory symptoms?

It sounds like MS. Like Lhermites sign with the neck.

U are very beautfull. Welcome to morocco n'y m'y channel tv

Watching you battle through this is inspiring . It helps me - thank you. You are so brave and selfless to share this . ❤

Translation: chronic join pain. I Hope you’ll understand my medical English I didn’t learn ever… 😂😂😂

Hi from France. I’m a 51 years lady. I’ve been suffering from FND for 16 months juste Twitter week-end after my second injection of Pfizer. I do physical Therapy and psychological therapy. I feel very tired, I don’t walk well anymore (spaticity problemes) and I suffer from « douleurs articulaires chroniques in French ». I like very much speaking English. I will give you some News of my condition. Friendly. Chris. 🌈🌈🌈🌈🌈🌈🌈

Read The Body Keeps the Score

Did you do an emg nerve conduction study test? See a movement disorder specialist? Hope you are doing well. Look forward to hearing from you.

Do you have to go to psychiatric for fnd or what specialist do you have to go for FND??

I'm always excited to find another 'faithful' FND'er 😍 I was writing a blog around faith-related things, and then got FND so have written some things about that this year too. God actually was preparing me to deal with FND before I had a clue it was coming. So much time spent meditating on how God can use suffering for so many reasons...I was literally at a bible study group just before going to A&E, and one of the last things I was saying was about just that. I was feeling so passionate about it and then bam. I've had my down days, for sure, but I genuinely believe that His preparatory work has given me a 'peace that surpasses understanding'. I know this video is old, but wanted to share anyway!

So, I'm only 5 years late to the party...But, I started to recognised prior to FND exploding on the scene that I could be talking with someone I feel very at home with and STILL my system (not me, but my system, like you said) would be responding as if stressed or anxious. Since FND it's worse/more noticeable/has a bigger impact on me. I'm noticing it can trigger episodes. But. I still socialise. Because it's those conversations that I love that apparently stimulate me so much. But I'm not going to avoid it because of that. I know I'm not in danger. And I am trying to learn how to recognise the signs that it's time to lie down/go home or do something (whatever that maybe - ideas welcome!) to regulate myself. So, I'm curious if you still experience this - and do you have any tools to help now?

I was diagnosed with fnd a few days ago, and this video is so helpful…everyone that I know doesn’t really understand how it feels since it’s hard to explain for me…but I could relate to everything you said and this made me feel better🤍

I hand been diagnosed two and a half years ago after hip surgery and I haven't been able to walk since also my arms are very week now have to live in a care facility as I need help with everyday living fortunately I don't have pain .

Hey i have FND to an du relate to u

This is so great! Thank you for making this! I'll give this a shot the next time I feel ready to put myself in a casual social situation. (My explanation would probably be like "yes, I've been dealing with this thing called functional neurological disorder. It's when uhhhh... [gets hopelessly lost in brain fog]")

Thanks for being someone of like faith with FND. I was diagnosed with conversion disorder in about 2013 because of paralysis and praise Jesus I haven’t had one those attacks in about 6 years. Now I got symptoms going on and waiting for a diagnosis. Got neck issues like you were talking about in this video.

This was absolutely FANTASTIC explanation!!! I do not have diagnosis, but I am doing research on all kind of different conditions and this was in my suggestion. This is like a recipe in explaining many other illnesses and conditions as well! Wow! You could write kind of a list like: - Naming the condition first in a way which describes what it is and then giving the official title -Then describing it with a simple longer explanation in 1-2 sentences (how it works, what it is) -compare it to other conditions which have similar symptoms -explaining how there is no currently known causes of it like other similar condition have -giving other person time to say something if they feel like expressing something at that point -tell how it effects your day to day life -returning the conversation to a point where it can continue on the subject or it can be changed to something else (depending the comfort levels of both persons) And you can tidy this up and write the list with better english (not native speaker), but that's what I did catch from your video! Awesome!!! This would be great video to see by anybody suffering more ANY rare condition! Thank you so much for sharing!

I’m so sorry for your loss! I would love to watch your videos and get an idea on how FND affects you. I’ll share mine with you and maybe we can get in contact. ua-cam.com/video/ImskFNN5jGg/v-deo.html

I have tremors, NES, gait and speech problems. Here is a current excruciatingly painful video of my most recent tremors. ua-cam.com/video/ImskFNN5jGg/v-deo.html

I’ve had people and doctors telling me I’m making up my symptoms and my illness is all in my head and I’m doing it for attention.

Did you have a problem with people telling you’re crazy and making your symptoms up?

So glad I found this video. It is just like you are taking straight to me and so much of what you say relates to me. I think this is the closest I have come to someone just like me within the FND community. Yes I get some different symptoms but honestly I get what you were going through .

Interesting I have not liked fireworks for last few yrs kinda makes me jump/get startled like response had no clue until your video that it might have to do with my FND thx for sharing your video and experiences =)

I hate how it’s now you see it now you don’t. That is one reason that I’ve actually decided to start a UA-cam channel. To show others how much I can vary from being not able to talk to seeming okay. Thank you for also being one to spread awareness! I have screaming, laughing, sound effect like noises, stutter, can’t speak sometimes. Get frozen sometimes. I do limbo oddly, lol. Anyways, I follow you. I hope all is well overall

Thank you for sharing.

God bless you sister. Just got home from the hospital and got my diagnosis. I really appreciate your video - it makes a huge difference for me. Thank you.

You explain your situation so well and inspire me to keep going .

Just got diagnosed. Thanks for your comments

Are you able to work with this condition?

Her and that sipping of the tea sets me off