I just found you on UA-cam a couple days ago. I'm glad to see you upload a new video. Fnd is totally new to me. I was only diagnosed a week ago. Prior to that I was told it was possibly hemiplegic migraine and pnkd. Thank you so much for sharing.
hmmm. I'm fighting against being a helper. The thing I love about my former self is I'm really good at planning functions and doing thoughtful gestures for the ppl I love. Even though yes they clearly benefit from my empathy, my gestures, the functions I BENEFIT because I feel appreciated I like the fulfillment it gives me to know I've contributed. So I'm fighting the brain fog, the fatigue, the pain the tics and I'm a maid of honor this weekend. I'm a wife and a step mom and I need to be involved in their lives. And although my neuro warns me of the boom and bust I'm doing my best to rest adequately before hand and be what these ppl need me to be. Because that's who I am and I cant let FND take that.
Remember when you first got that job and were so unsure? I’m so proud of you wow nearly a year later! Even though you are facing so many challenges right now you are fighting back and seeing how far you’ve come gives me hope too :)
I'm so glad you posted an update. I have wondered how you were doing with your job. It amazes me how you can drive and especially work. It makes me feel kinda guilty that I say I can't work because of my condition because honestly it's been 11 months and I still don't have a handle on this. It's so unpredictable. I get slurred and stuttering speech, tremors, twitches, fatigue, uncoordinated movements, I especially hate the dumb feeling like I am drunk except it doesn't feel good at all, blurry vision, eyes sometimes not aligned, walk with cane and sometimes wheelchairs if I have to walk a lot, and sometimes spontaneous paralysis. I wish I had the Fight in me as you have but I don't but I hope to find it one day. Congrats on the new boyfriend.
We cannot compare!! I've been there for sure, had the years of no way can I do much of anything....I feel you. Remember, do what you can when you can. That's even taking a rest, putting on some tea, fighting with even just a positive mental attitude. You are doing great. Each day, you are getting stronger and more resilient to the fight.
Long time no see, I was just thinking about you! I’m fighting back against my diseases trying to keep my down. I get out and do everything I can. I’m fighting back that I’m out of medication options and deciding to return to past ones just to keep moving and have half a life.
I am fighting back negative thoughts About upcoming Mayo rehab. Instead of focusing on how good it will be I have to fight expectations others have on me and what is a good enough outcome. If chronicity works against you and it's been 35 years worsening balance and wheelchair for 6 how do I fight the thought that rehab might not work and focus on how it WILL help. Can't hurt but expectations from mom are insane!
everyday is struggle never know when hits its all ways there i change with weather. i accomplish small task they use to take so its up hill battle. do you get mri?
Was thinking about you today given we both share the symptoms of FND & Fibromyalgia. I finally saw a physio a few weeks ago and he did a beighton score on me and I scored a 7 out of 9 for Joint Hypermobility Syndrome so I, currently waiting to be tested for Ehlers Danlos Syndrome but because of long waits in the uk 🇬🇧 it's going to be nearly a year before I can see rheumatology Have you ever been tested for Joint Hypermobility Syndrome or Ehlers Danlos Syndrome?? You still look amazing but miss your make up tutorials too I loved them but I understand your flat out busy with work and maddie and life and health and doctors appointments and just kicking life's butt ......sending best wishes to you all from the UK
I just found you on UA-cam a couple days ago. I'm glad to see you upload a new video. Fnd is totally new to me. I was only diagnosed a week ago. Prior to that I was told it was possibly hemiplegic migraine and pnkd. Thank you so much for sharing.
hmmm. I'm fighting against being a helper. The thing I love about my former self is I'm really good at planning functions and doing thoughtful gestures for the ppl I love. Even though yes they clearly benefit from my empathy, my gestures, the functions I BENEFIT because I feel appreciated I like the fulfillment it gives me to know I've contributed. So I'm fighting the brain fog, the fatigue, the pain the tics and I'm a maid of honor this weekend. I'm a wife and a step mom and I need to be involved in their lives. And although my neuro warns me of the boom and bust I'm doing my best to rest adequately before hand and be what these ppl need me to be. Because that's who I am and I cant let FND take that.
Remember when you first got that job and were so unsure? I’m so proud of you wow nearly a year later! Even though you are facing so many challenges right now you are fighting back and seeing how far you’ve come gives me hope too :)
I'm so glad you posted an update. I have wondered how you were doing with your job. It amazes me how you can drive and especially work. It makes me feel kinda guilty that I say I can't work because of my condition because honestly it's been 11 months and I still don't have a handle on this. It's so unpredictable. I get slurred and stuttering speech, tremors, twitches, fatigue, uncoordinated movements, I especially hate the dumb feeling like I am drunk except it doesn't feel good at all, blurry vision, eyes sometimes not aligned, walk with cane and sometimes wheelchairs if I have to walk a lot, and sometimes spontaneous paralysis. I wish I had the Fight in me as you have but I don't but I hope to find it one day. Congrats on the new boyfriend.
We cannot compare!! I've been there for sure, had the years of no way can I do much of anything....I feel you. Remember, do what you can when you can. That's even taking a rest, putting on some tea, fighting with even just a positive mental attitude. You are doing great. Each day, you are getting stronger and more resilient to the fight.
Thank you for your kind words.
Larissa Anderson and thank you for your inspiring words! Looking forward to more videos 😀
Sorry for the gum smacking! 😒😒😳🤦🤦🤦
Larissa Anderson do you get TMJ bad??!
Long time no see, I was just thinking about you!
I’m fighting back against my diseases trying to keep my down. I get out and do everything I can. I’m fighting back that I’m out of medication options and deciding to return to past ones just to keep moving and have half a life.
Hiiiiiiiiii 😍🥰😍🥰🥰. So much has transpired in life. We must connect!!
I am fighting back negative thoughts About upcoming Mayo rehab. Instead of focusing on how good it will be I have to fight expectations others have on me and what is a good enough outcome. If chronicity works against you and it's been 35 years worsening balance and wheelchair for 6 how do I fight the thought that rehab might not work and focus on how it WILL help. Can't hurt but expectations from mom are insane!
everyday is struggle never know when hits its all ways there i change with weather. i accomplish small task they use to take so its up hill battle. do you get mri?
Sorry for all the questions but do you suffer badly with GERD?? X
Was thinking about you today given we both share the symptoms of FND & Fibromyalgia.
I finally saw a physio a few weeks ago and he did a beighton score on me and I scored a 7 out of 9 for Joint Hypermobility Syndrome so I, currently waiting to be tested for Ehlers Danlos Syndrome but because of long waits in the uk 🇬🇧 it's going to be nearly a year before I can see rheumatology
Have you ever been tested for Joint Hypermobility Syndrome or Ehlers Danlos Syndrome??
You still look amazing but miss your make up tutorials too I loved them but I understand your flat out busy with work and maddie and life and health and doctors appointments and just kicking life's butt ......sending best wishes to you all from the UK