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Carolynn Ponzoha
Приєднався 4 лют 2023
🧠Advocate and Artist🎨
Spreading education and awareness about psychosis.
I’m Carolynn, and I am a person living with schizoaffective disorder, as well as CPTSD, borderline personality disorder, narcolepsy, and Ehlers Danlos syndrome. I am also a recovering addict and my clean date is 10/5/2019 which is a large contributor to why I am psychosis free today.
Psychosis is a life altering event, and after several episodes my life has changed many, many times. I have gone through an unnecessary amount of suffering - suffering that could have been prevented if I’d had more education about psychosis and wasn’t alone in my struggles. I don’t want anyone to have to go through the amount of pain I went through, so I try to bring awareness to this often stigmatized illness so that people can prevent the worst, or at the very least feel comforted that they’re not alone.
Spreading education and awareness about psychosis.
I’m Carolynn, and I am a person living with schizoaffective disorder, as well as CPTSD, borderline personality disorder, narcolepsy, and Ehlers Danlos syndrome. I am also a recovering addict and my clean date is 10/5/2019 which is a large contributor to why I am psychosis free today.
Psychosis is a life altering event, and after several episodes my life has changed many, many times. I have gone through an unnecessary amount of suffering - suffering that could have been prevented if I’d had more education about psychosis and wasn’t alone in my struggles. I don’t want anyone to have to go through the amount of pain I went through, so I try to bring awareness to this often stigmatized illness so that people can prevent the worst, or at the very least feel comforted that they’re not alone.
My Body Did WHAT?! || Medication Side Effects
Side effects seem to be a necessary evil of taking psych meds - at least, I've never taken anything without having them. Though I've found the right cocktail of medication today that causes minimal side effects, I wasn't always this lucky. Over the past 15 years or so, I have taken many medications that took me for a crazy ride of side effects - some embarrassing, some scary, and some downright strange. Here's all about those side effects.
••••••••••
00:00 - Intro
01:18 - Disclaimer/Trigger Warning
02:25 - My History on Meds
04:03 - Why I Don't Disclose My Meds
05:58 - Tardive Dyskinesia
08:16 - Nighttime Behaviors
09:52 - Weight Gain
12:17 - Lactation
14:54 - Severe Rash
16:55 - Medical Trauma
19:18 - Finding a Good Prescriber
20:55 - Something to Consider
22:15 - Conclusion
••••••••••
🎙️ “Lost Patients” NPR Podcast 🎙️
open.spotify.com/show/1avleoc5U4DA7U37GFPzIH?si=WIZ8-FO_Qjyu5pYbNfOzBg
❤️ MERCH ❤️
www.CarolynnPonzoha.redbubble.com
🧡 TIKTOK 🧡
www.TikTok.com/@psychotic.in.seattle
💛 INSTAGRAM 💛
psychotic.in.seattle
💚 FACEBOOK 💚
profile.php?id=100093566641554&mibextid=kFxxJD
💙 BUSINESS EMAIL 💙
Psychotic.in.Seattle@gmail.com
••••••••••
••••••••••
00:00 - Intro
01:18 - Disclaimer/Trigger Warning
02:25 - My History on Meds
04:03 - Why I Don't Disclose My Meds
05:58 - Tardive Dyskinesia
08:16 - Nighttime Behaviors
09:52 - Weight Gain
12:17 - Lactation
14:54 - Severe Rash
16:55 - Medical Trauma
19:18 - Finding a Good Prescriber
20:55 - Something to Consider
22:15 - Conclusion
••••••••••
🎙️ “Lost Patients” NPR Podcast 🎙️
open.spotify.com/show/1avleoc5U4DA7U37GFPzIH?si=WIZ8-FO_Qjyu5pYbNfOzBg
❤️ MERCH ❤️
www.CarolynnPonzoha.redbubble.com
🧡 TIKTOK 🧡
www.TikTok.com/@psychotic.in.seattle
💛 INSTAGRAM 💛
psychotic.in.seattle
💚 FACEBOOK 💚
profile.php?id=100093566641554&mibextid=kFxxJD
💙 BUSINESS EMAIL 💙
Psychotic.in.Seattle@gmail.com
••••••••••
Переглядів: 377
Відео
Cobenfy: The NEW Wonder Drug?
Переглядів 782День тому
You may have heard of a new antipsychotic medication to recently come out called Cobenfy. It is the first new antipsychotic of its kind. What does this mean for patients who hope to take it? Well, it hopefully means there will be improvement in areas that were trickier to treat before, but since it's so new we can't know for sure. Here is our speculation about this new drug. •••••••••• 🎙️ “Lost...
Finding Hope After Psychosis
Переглядів 69214 днів тому
It's hard to have a positive outlook on life after psychosis, let alone hope for the future. I know this was the case for me, and it took a lot of hard work to get past it. Somewhere along the way hope came back into my life, and I'll tell you how I was able to get that back. Here are additional resources mentioned in the video: Fountain House www.fountainhouse.org/ Recovery Cafe recoverycafene...
Medication, Addiction, & Psychosis || Substance Induced Psychosis
Переглядів 43321 день тому
Substances are one of many causes of psychosis and can either be the result of recreational drug use or prescribed medication. Whether the psychosis is brief or long lasting depends on the duration of use, although in some cases the psychosis may not even start until the use ends. Let's talk a bit about what substances can cause it, how it plays out, and how addiction can further complicate thi...
Getting Past Embarrassment from Psychosis
Переглядів 8032 місяці тому
Getting Past Embarrassment from Psychosis
All in the Family: My Mom's Mental Health Journey
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All in the Family: My Mom's Mental Health Journey
Reacting to Schizophrenia Memes (Part 2)
Переглядів 1934 місяці тому
Reacting to Schizophrenia Memes (Part 2)
What Psychosis Taught Me About Reality
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What Psychosis Taught Me About Reality
The Truth About Violence and Psychosis
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The Truth About Violence and Psychosis
The Difference Support from Loved Ones Can Make
Переглядів 3706 місяців тому
The Difference Support from Loved Ones Can Make
The Cognitive Decline from Psychosis
Переглядів 1,2 тис.6 місяців тому
The Cognitive Decline from Psychosis
In hospital time is distorted too cause of being in the same environment all the time.
Yeah that’s so true!! It just goes on & on & on.
hi Carolynn! this is Levi. i like this video style for your content- i’m really worried how long form content will hold up on everyone’s platforms but i think you’ve got it! you speak eloquently enough to captivate people for more than one minute which is a skill i hope i can also master. thanks for sharing your knowledge!!
@@ihatedtheending oh my gosh, hi Levi!! It’s so great to hear from you! Thanks, I appreciate it & I think you’re super captivating yourself!! I’ll go subscribe ASAP.
It sucks when your paranoid and you create false memories of persecution.
Im also scitzoaffective bipolar type. Intially diagnosed bipolar. Clozapine saved my sanity got me out of psychosis
@@Readmybumpersticker I’m so glad to hear it helped! Same here, I got diagnosed bipolar before SZA.
The doctor told me to watch out for lactation. So glad it never happened. As a pre op trans guy at the time it sounded horrible. So sorry no-one warned you. It is weird.
@@Readmybumpersticker yeah, SUPER weird. And dang I can’t imagine how much that would suck for you. 😓 Thank god it didn’t happen. I’d hate for it to affect your surgery.
Hope you’re doing well ❤️
@@ShadyPlatinum777 thanks, I’m doing much better.
You make the most relevant and informative videos on psychosis. I so so appreciate what you do. Thank you for the content and education!
@@Michael-hy7du aw thanks! I try my best. 😊
hey Carolyn! it's good to see you. I'm glad you are doing well. i was pretty sick but was able to decide on my own to take the medication despite side effects. i just felt so bad and had a lot of symptoms. now I'm better and take very little. i don't often hear people in na meetings talk about moving on from meetings but it does happen, they do move onto other things. one of my first pdocs got me to go to na. and i literally went to thousands meetings but today i just bare knuckle it when the urge arises...
@@WWS322 yeah, there’s definitely life outside of na. I’ve seen a lot of people go on from na & be successful & stay clean. I’m glad you’re one of them!
And I got that with seroquel too- my friend once said on seroquel you would eat a bag of dried lentils!
@@gerberdaisies oh man I believe it!!
Such a freaking catch 22 with antipsychotics- “here, this will help you but it’ll be impossible to stay on it”…
@@gerberdaisies for real!!!
I had similiar experiences as you.i now see a psychiatrist who.is not interested.i have to pay privately thinking of changing.this video os invaluable
Cool shirt
@@popegizmo2288 thanks!
She's cute
Badass Pinkerton shirt
@@popegizmo2288 yeah Pinkerton is my favorite Weezer album!
@Psychotic.in.Seattle Mine too! By far, actually!
Awesome chat guys. Here's hoping it offers a solution for folks that haven't had luck with the current available AP's. It's hard to find the sweet spot without having to negate side effects with even more meds, so I'm curious how folks respond to it. Thanks for the upload!
Wow this was so informative. Im not sure I've ever been thru what u described but you made it really easy to understand and empathize with. Thank you for that. I broke up with my fiancé in October, he'd been struggling with psychotic and violent episodes really bad with his bipolar disorder and alcoholism. He stopped trying to get help and i realized i was never gonna help someone that didn't want help. Idk I hope he gains the awareness you have one day. I want peace for him.
@@LollyVieira465 oh gosh, I want peace for him too. That sounds so rough. I’m glad you put yourself first though & did what’s best for you. ❤️ I’m sorry you lost your relationship & I hope you’re doing ok.
@Psychotic.in.Seattle it's been hard. I miss who he was during the good times but it just wasn't worth the bad times anymore as they got worse and worse. But seeing someone on the other side of it is so beautiful. It gives me hope for him 💜💜💜
I have schizotypal personality disorder was diagnosed at 17 and i’ve been having disorganized thinking/speech, odd beliefs and reality distortions and eccentric behaviour since I was 5 years old 😭 even though people said kids can’t have these disorders so this is rlly cool now I know i’m not crazy and it was possible that my disorder developed very young
It’s pretty sad in my area. We don’t even have a support group. We have nothing. We can barely get my son medication. I am gonna have to go in there and buy an RV and travel somewhere and just find the right place to live from my son because right now I’m living in hell.
I’m recovering from psychosis and I’ve really appreciated your videos. I’m trying to sort out what happened to me and it’s been hard to see both the good sides and the bad sides of it, not just labeling it as all bad if that makes sense. I appreciate you sharing an upside. It helps me give myself permission to admit that some parts were positive, which actually makes me feel a little bit more balanced about the situation. Anyway, many thanks! What you’re doing is very helpful and appreciated!
Psychosis is nothing compared to the disabling tortuous severe side effects from the toxic antipsychotics they shove on you. Anatolia and complete body meltdown. Bedridden for years from pharma. I came out of psychosis with marijuana after three months of it. No lasting effects either from staying away from pharma and using natural meds to relax. The drugs were what destroyed me. Not the actual psychosis.
I still haven't recovered from my 1 year psycotic episode. Glad you're doing well now ❤❤❤❤ love your videos. I have Schizoaffective disorder Bipolar type too. 😊
@@mentalhealthwithalana it took me a long time to recover, too. I hope your recovery is going well & you come out of it soon. ❤️
The fact that one’s own brain can betray them in such a profound way is difficult to accept.
How does psychosis cause neurotoxicity? Is it not caused by the antipsychotics?
It's great that you are doing so well. Understand conditions where you react,tired, stressed,hungry,driving unusual situations with people you don't want in your home ect. Always take a breath and make a measured response that reflects who you are at your core, it's fine for your response to be an extended silence followed by asking them to repeat it. Sorry, I'm not getting what you mean. Try to avoid adding you are a narcissistic gaslighter,it won't help with the next part of the conversation. Confrontation is stressful and manipulative. Health care professional gaslighters get paid by the hour and pharmaceutical prescription. The tell is they will turn and face you in a way that is intended to cause a confronted response, often with a lean towards your space. Know when you are being triggered,they do it for a living.
My son tried it for 5 weeks and had to stop because it made him very nauseated. He did not want to live with that I did feel it was helping his positive symptoms so it’s unfortunate. Good luck to you.
@@kathycarter3344 aw bummer, I’m sorry to hear he had a rough time. I hope he finds something better.
@ thank you. Clozapine is helping a lot currently. It has given him insight that he hasn’t had in three years.
@ I’m so glad to hear that! That is really wonderful for him, and for you as his mother too.
Risperdone and Depakote gave me akathisia.
I have been on .antipsychotics for 26 years
Thank you for explaining how this medication might help people.
They are Making a cure for 2026 called evenamide
Hello! Can I ask you please? Do you think you could make a video on how to talk with someone in psychosis but not in an acute crisis? For example when you have an online friend and they are showing signs of psychosis and you still want to talk with each other. I have friends that are sometimes going through some episodes and I don't know how to listen to them, help them and validate their feelings and just talk as normal as possible with them but not harm them.
i take lybalvi which is zyprexa and an appetite suppressant and is outrageously expensive. if I had a child I'd have to let him decide whether or not to take antipsychotics, if he had the disorder. i chose to take them knowing the risk because it was really bad. i still take them at half the dosage though the bad feelings have dissipated at age 54. i would like to not take anything but the lack of sleep still makes me insane. i also take an anti depressant which i believe in. that's all i take and i was once on five meds at a high dose. i don't have akithisia or td.
Sorry u have to cope I deal with alot of same issues
look great to me. Hope all is well.
Thank you💕💪🏼🙌🙏🏼 Jesus loves both of you sooo much💕
Thank you ❤
Does John do advocacy work as well? He’s so well spoken and seems like a natural
@@gerberdaisies he somewhat does! He does a lot of service work in the addiction recovery community. He’s actually speaking at an event next week! I really am so proud of him and I think his growth shows in how he talks and carries himself. He’ll have 6 years sober in March.
Oh wow, big congrats to him! 🎉You guys are great together
@ thank you!
Carolynn- in no way am I making light of what you went through. I have been through psychosis too and it is utterly terrifying. That said can we just agree that the band U2 is a real problem 🤣
@@Fabulous7B hahahaha yes!! I’m so glad I’m not the only one!
psychosis is the healing from this fake reality. sorry. truth hurts.
PS you two are a beautiful couple!
Thank you!!
I’m really hopeful for this new med ❤
Me too, I think if I weren’t already stable on meds I’d totally try it out.
Oh lord, poor pet, my heart goes out to you. Extraordinary how hard it is for family to recognise what is going down. But the suffering is indescribably hard to explain. In the circumstances. I hope by now you have some understanding of what happened to you and a good advocate in your corner. You’re not alone. Ever. Thinking of you. Mind yourself. It’s a hard road. But, there have been successes with an alternative approach than the norm. On UA-cam you’ll find a young woman, who after years of medicating, received a new form of treatment, -food based would you believe- that got her off meds for what is ailing you. She has recovered and is no longer on meds. If you’re inclined to consider the most modern and astonishingly successful treatment, look her up. Metabolic treatment for bipolar disorder. Lauren Kennedy West. Check her out. If she can overcome it, so can you. Best wishes and don’t despair.
@@nonpareilstoryteller5920 oh yes, I look up to her so much!! She really inspires me. I’ve been watching her journey closely and it’s made me so happy to see her doing well - finally!
I got abused at a hospital during my first and so far only time I've experienced psychosis, and we still have little idea why my psychosis happened. To this day when i have flashbacks to sensations or just memories and i feel them viscerally like my hallucinations during my episode, i start to panick not being able to tell if its ptsd or if its psychosis again. Ive had a really difficult time finding videos and information online that helps me research what i might need for my mental health in the future and ways to understand my experience, this helps immensely, thank you for making this.
I know someone who might be going through this. Unsure how to help, but trying to learn more about it on yt. Thank you for this ❤
psychosis is a sign of which mental health illness? I
Thank you. Im struggling since my first episode where i disposed of so many valuable items almost a year ago. Ive gained weight from the medication and bad diet. I'm trying to get out of the depression and its so hard. I used to be outgoing and bubbly now im just a shell of a person 😢
I hitchiked in my pj's to the local police station when in psychosis
Anxiety has prevented me from some great possibilities. It can be completely debilitating.
It's eriee because I'm from Bartlett and same concepts here. It was as if I was always outside the social quo looking in. My best friends were the misfits, mental health was NOT a thing you showed EVER. Something was seriously wrong with you if word got out. We had our own decent into this twisted make it or break reality. There were ones who didn't make it. My friends will forever be in my memories as ghosts of Bartlett High. Clear as day I remember each of them. I'm surprised I made it out.
I found avoiding people that require medication to tolerate works better. I avoid health care professionals who bring the residue of insanity with them. If in doubt, get more sleep. There is undoubtedly a tipping point but that was usually events weeks before followed by constant digs from someone who fills you with self doubt,they need something to be wrong with someone else. Ditch them or they will do it to you again. "Next time" is one of their favourite tools.
Liberals
you are? Dude wow
try taking: Omega-3 Fatty Acids Magnesium Zinc tumeric Ginkgo Biloba Ashwagandha Rhodiola rosea and workout single everyday, and it will go away fairly quickly and you'll feel better. this is just a list of what i did, and it worked extremely well for me. from experience i recommend trying out this anti psychotic remedy, as these are all natural anti psychotics.