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sleep apnea? hypomania from bipolar?

but what about someone who otherwise fits the criteria, does not have breaks in between episodes? 16 year old vomiting his entire life, diagnosed with migraines and anxiety disorder as a child, then suffered mulitple sports concussions, now has PCS, vomiting never subsided his whole life but worse now after TBI. never a week free until he took propranolol at age 14. That was the only relief and the dr did not him on it long term . Currently, we have been vomiting mulitple times daily for 4 months with hsopitalization. hydroxazine not working, ssri not working, antinasuea not working, antacid not working. need answers.

I was diagnosed with bloodwork and a small bowel biopsy back in the late 1980s. That gastroenterologist saved my life! I was losing weight and had severe malnutrition. I was hospitalized for 3 weeks because of it. I'm 4'10" tall and my shoes come from the kids' department. My mother died from type 1 diabetes 3 years before my diagnosis. My son has dermatitis herpetiformis, so he's gluten free as well. He and I have the same celiac genetics. Im guessing my mom did too. Her doctor thought she had illiitis but never tested her for anything. She had uncontrollable blood glucose readings and died just 12 years into her type 1 diagnosis. She was 4'11". My adult son is barely 5'3". His dad is 5'8". There are far more symptoms of celiac disease than you presented. Yes, my son and I do get elevated liver enzymes along with it. We also have lots of diarrhea and stomach cramping. I have pretty severe pain in the middle upper quadrant of my abdomen. When diagnosed, I was completely unable to eat because of the pain. I had been without food for about 6 weeks when I got hospitalized and diagnosed. I was majorly sick!

Gluten molecules are too large to be absorbed through the skin

Thank you for the podcast. I was just diagnosed, Monday, after having both an endoscopy and colonoscopy. I have not had symptoms that I have noticed, but have had black stools for several months. I read the reports from the doctor, which indicate only that I have eoe. My stomach was fine, and there were no polyps in my colon. Thoughts?

Ive had these kind of symptoms the last 3 months, im 55 , its making me so miserable. My anxiety has gone through the roof thinking its cancer but everything seems to be pointing to FD. My tummy isn't in pain its just permanently got a bloaty acidy ache its right high in the middle of my abdomen between my lower ribs , it gets worse after meals although my appetite is still good and I can eat all my meals. I am burping and farting loads after food and drink ... like loads , I get bouts of loose stools but I go regular every day in the morning (no blood) . Interestingly I have had bloods done recently and they came back fine although my Thyroid levels were very high (a high reading is 10 mine was 16) this points to me having an underactive thyroid (Hypothyroidism) which apparently can cause Functional Dyspepsia. My doctor is calling me this week about my blood test results , I just hope she can help me find out for sure if this is FD and hopefully deal with is , god forbid its anything sinister as my stress is off the scale atm.

Excellent !

Options????? Who is given an option? Not at the office I go to! Also, glad she is not my doctor with her "just get over it " comment! Some of us have fears and embarrassment to deal with that go beyond the normal apprehensions......

OMG, I’ve been living with this for over 10 years now and I had no idea it had a name. Her description of the symptoms of someone trying to eat out with friends and the anxiety felt over when and what will set you off choking again is spot on. And the adjustments you have to make to try and not choke again are crazy. I’ve been that person in the restroom who had to make myself vomit so I could breath properly again. Several times the event ends with me in tears.

I had both of those tests. They did not find anything. My food gets stuck & then I pass out. Please help

Anyone here also get a dry/fuzzy tongue right after consuming a sugary drink? Almost sure it's Gut Dysbiosis /Sibo related

Where can see?

PLeaseeeee keep talking about this and doing this! I am a 24yr and I’ve had issues my whole life but then in 2024 i had a really terrible flare up that put me in the ER and the hospital. I was tested and am still being tested for a million things with 0 answers or medication. hearing her story is incredible and it brought me to tears because its a very hard situation. im not able to live my life fully because i have friends going out and doing things and even if I want to go, i dont because i dont feel well. sometimes i end up being alone for weeks because i dont feel well enough to go out and live alone. its been really really hard and im still in search for answers and solutions to my terrible pains

This video popped in my feed. Thank you!! My 14 year old daughter has been suffering from a closed throat feeling for the past few years and our doctor had no idea why. My daughter has been so frustrated as she explains it is like something is stuck in her throat and nobody can explain the reasons behind it or what it might be. Just shrugged their shoulders and sent us on our way. She also has asthma and skin issues (eczema). We tried a food elimination diet and it didn’t seem to help much but we will definitely bring this up at our next GP visit which is next week. And will request a GI and/or allergist consult though in Canada we may be waiting a few years…

The ER wait for a complaint of chest pain is short. When I had chest pain, they put me ahead of several people who were visibly sicker and one of whom seemed to be teetering on the edge of consciousness.

After a lifetime of compiling PTSD, I started experiencing excessive eye watering. I couldn't even cook without tears dripping into the pot. My gut would tense as if I was crying. I now believe that was trapped emotions in my gut. Over the years, my GI issues have included malabsorption, sporadic weight loss, excessive gas, incontinence with diarrhea, gluten intolerance, abdominal cramps, nausea, and vomiting (although not often). I have had chronic constipation for at least 2 years now, which causes purging flareups. It hurts to poop. My entire GI tract hurts after each bowel movement. I can always hear gurgling gas from the matter moving at snail pace. Radiology images for other issues always reveal massive amounts of poop in my colon. Doctors have always prescribed Metamucil and Miralax to help me become regular. I still have watery eyes, take antihistamine, and follow a gluten-free diet. But it always leads to these painful episodes requiring time off from life and work. Eating anything encourages pooping, so I am finally afraid to eat. Like Karen, I eat because I must. I am seeing a therapist, practicing CBT, meditating, and creating my own mantras to heal this. I am hopeful about overcoming this even though doctors say it is incurable. With every painful bowel movement, I am healing and letting go. Pun intended!

After a lifetime of compiling PTSD, I started experiencing excessive eye watering. I couldn't even cook without tears dripping into the pot. My gut would tense as if I was crying. I now believe that was trapped emotions in my gut. Over the years, my GI issues have included malabsorption, sporadic weight loss, excessive gas, incontinence with diarrhea, gluten intolerance, abdominal cramps, nausea, and vomiting (although not often). I have had chronic constipation for at least 2 years now, which causes purging flareups. It hurts to poop. My entire GI tract hurts after each bowel movement. I can always hear gurgling gas from the matter moving at snail pace. Radiology images for other issues always reveal massive amounts of poop in my colon. Doctors have always prescribed Metamucil and Miralax to help me become regular. I still have watery eyes, take antihistamine, and follow a gluten-free diet. But it always leads to these painful episodes requiring time off from life and work. Eating anything encourages pooping, so I am finally afraid to eat. Like Karen, I eat because I must. I am seeing a therapist, practicing CBT, meditating, and creating my own mantras to heal this. I am hopeful about overcoming this even though doctors say it is incurable. With every painful bowel movement, I am healing and letting go. Pun intended!

Hi and thank you all for the support of this channel. Please see the updated version of EoE 101 we did in 2024. It has some important info on treatment options that were not yet available in 2022. ua-cam.com/video/UiWaGfNCLZ8/v-deo.html

Looking for episode 16 - Patient story A gastroparesis patient journey to recovery, if you could share the link I have been unable to find it. Thank you for your wonderful channel ❤

Suffering from ibs c which also caused rectal prolapse due to straining - telling from experience that eventually laxatives will also stop working. And bloating, ughhh, it is a constant partner. If you can find any authentic ayurvedic doc please then try ayurveda. If there's hope, it is only in ayurveda for ibs c. I am currently undergoing treatment and can say i feel a lot better now.

I’m hoping to get in with 1 of 3 gi motility specialists soon . So I can redo the test I had in 2017 and 2020 . I have Ehlers Danlos Syndrome and Have a 50% ineffective esophageal motility disorder as of 2017. I have bolus and pharyngeal issues too. With gastroparesis

I literally had the exact opposite happen to me, when I was between 15 and 18. I also had a chronic constipation problem. That cleared, but I was still always extremely full. I developed a hiatal hernia from all this. Then, I they started accusing me of having anorexia. (I'm a guy. I'm not trying to lose weight. I'm trying to gain weight.) Then, it happened that I didn't eat for a whole week. I went to some hospital I had never been to before. There was some guy that came in after xrays were done. He said that there wasn't an obstruction, but my stomach was full. I was given some medication. When you're that young, you don't even know something like Gastroparesis exists.

Is the following also a symptoms of EOE.. raspy voice ? Low pitch voice where it sounds like when u lose your voice ? also going up and down stairs is a struggle. Huffing and puffing out of breath ?

Thanks for sharing this a lot of us here are very grateful. Would you guys considered doing an episode with Karen’s doctor??

My stomach is a mess!!! Jackhammer esophagus, LES is stuck open and inoperable, gastroparesis, severe gerd (just had bravo done and GES). It’s very hard to eat and have lost 40 plus pounds. I vomit so much! I’m meeting with a nutritional Dr, neuro gastro Dr and dietitian in Jan at Cleveland Clinic. My hope is for the gastro poem and if food will stop backing up in stomach then maybe the jackhammer will calm down. Right now the reglan is helping but cannot take for long as I already have neuro issues (seizures). Quite a mess!!!!! Luckily I go to the Cleveland clinic in Miami (Weston)

Super informative video. My story - I am a 44 year old white female in Tucson, Arizona. I have suffered with EOE for over 15 years - went through all the ER nonsense of being told it was in my head, that it was GERD, that I was eating too fast, you name it. I had 5 food impaction events leading to endoscope to remove them with 5 separate biopsies - my biopsies were always in the higher end but never "positive" until my last one which was off the charts. Until then I was in heavy doses of Prilosec for years and eating basically baby food type foods and suffering daily with chest pains and feeling like food was stuck. The anxiety is intense. Fast forward to 24 months ago I was in hospital again for food impaction and finally got the diagnosis. I had my esophagus stretched as well during this endoscopy. My GI doctor sent me to the asthma and allergy specialist who put me on Dupixent 300mg once a week injections. It was a Godsend. I was feeling so normal and so much better .... I had my life back - but then after 24 months I had a food impaction event with chicken and ended up in the ER with chest pains and a panic attack - this was 2 weeks ago and since I have been dealing with it - I have made 4 separate appointments for my PCP, GI doc, 2 allergy specialists. They can't see me for about 4 weeks so I am just eating soups and oatmeal. I have had a full food allergy panel and environmental allergy panel which indicated I am allergic to a lot of trees and grasses here. Food panel came back normal. I'm going to push for the more advanced food allergy panel after listening to this podcast and also look for a trial in town. I have also decided to do the elimination diet and have started to explore vegan options. This is a living hell and I pray for a cure but also realise I have to help myself and do my own research. I need to do the work and find out my food triggers. Not much I can do about the environmental allergies which is depressing. I'm already on a ton of RX allergy medications, sprays, inhalers, you name it. Anyone out there who is suffering and being told by doctors that it's all in your head - trust me it is NOT and you have to speak up and be your own voice and get that biopsy. Even if it comes back negative but you have all the symptoms, keep pushing.

I don't believe I heard the difference between Celiac and Gluten mentioned. When I eat any food labled gluten free, I still get Ataxia. I've fallen after leaving restauranrs many times and ended up with staples in my scalp ( 3 to the most 10 staples). This is a dangerous issue and aught to be disussed in your forum.

good

I've had EOE for about a year now and have tried PPI's along with Fluticasone Propionate for two 30-day periods. I haven't felt any relief and took my first Dupixent injection last week. Your video has given me hope that this will be a helpful treatment for me so that I can improve my quality of life. Are there any other suggestions you have for taking Dupixent, such as dietary restrictions or the period of time I should be taking it?

I'm 25 years old and got diagnosed with this about a year ago, thought it was stress and anxiety induced, but after getting an upper endoscopy done they saw the buildup of scar tissue in my esophagus as well as eosinophils present. It often interferes with my college and work life because after I eat, I'll feel food get stuck in my esophagus and have to rush off to the bathroom to vomit. It's really scary to feel food always getting lodged, but dieting and identifying trigger foods has helped me out a bit. Thanks for the video, it's validating to see that I'm not alone in dealing with this struggle.

But what does the dr do… to help it

I got diagnosed at the end of October 2024. I went on a gluten free diet. I still have the symptoms when will I start feeling like myself again?

I have been subconsciously drinking after every bite of food for an unknown amount of time.. at least 9 years, my wife noticed it when we had been dating for a while when we would go out to eat. I would actually stop eating until I was able to get another drink. Currently going to GI specialist because of big change in my ability to swallow anything, i get very tired in the throat. Waiting for appointments, my primary care suggested to slow down and small bites.. he was leaning achalasia but my son does have EOE so i am curious now...

this is interesting, my son was diagnosed very young not much older than 1.. its been a struggle, but currently in remission. I on the other hand, a several weeks ago started to notice a tired feeling in my throat as well as not being able to swallow while laying down. Went to my primary care, and i have been referred to a GI specialist.. my primary care is leaning to achalasia and not EOE, but time will tell once I get evaluated. Great Video!

Farah fawcett had the same cancer

I don't eat out, I don't trust people with my food, period!

so important to note themental stress too!

Thank you for your Podcast, and all the guest you have on. Can you find an expert(s), on after Covid affects and do a video on Covid and the effects on the digestive system, Acid Reflux and Constipation.. What studies are being done, are there any new treatments or do we, people with Long Covid, have to just keep treating the symptoms for life ? Thanks

Hi, Thank you for making videos on EoE. I am a parent of a child with EoE. One of our integrative medicine doctor recommended BPC 157 peptides as a treatment (not FDA Approved, its still under trials I believe). Has any of the experts you interviewed mentioned about this being studied on? Or any research going on? Not a lot of resources available on this when I tried to look for answers on this particular peptide. Thank you for your time! ❤

I had CVS for 17yrs and eight years before I was officially diagnosed. It just so happens that the worst of my abuse lasted 17 years as well. The episodes were debilitating from 16 to 33yrs. I had my daughter at 33 and never had an episode. I live like a sick person for five years after afterward, though always terrified that my next episode with around the corner. It never came.

THANK YOU

I don’t have a doctor

Why do doctors still prescribe Clarithromycin if it’s more than like not going to help eradicate h.pylori. I have the bacteria right now and am on Sucralfate 4x/day; Esomeprazole Mag 1x/day; Clarithromycin/Metronidazole/Amoxicillin 2x day. Is there a chance this won’t be effective? BTW…I was diagnosed with the breath test.

Thank you for this podcast. My gastrointestinal doctor believes that's what I have an d took biopsies. I pray my pathology comes back it's this and not something worse.

AWESOME. Loved this discussion - so informative and as usual food, in this case ferments and fiber, is the way to go! Thanks for this.

Thanks for a great conversation, Jackie!

Could the increase in cases be a result of COVID?

I’m having the pelvic floor constipation I need help.

Shouldn't the small intestine be almost sterile anyway? Free of bacteria that would inevitably interfere with proper food absorption?