Відео

ho ola why r u not making new videos

I have Meniere's Disease. I have several days a month in which I am dizzy, unbalanced, and will have "attacks" that leave me having extreme instances of vertigo and nausea. I had to stop working as a bus driver because it was a disqualifier to hold a CDL. I haven't found a job yet that lets me take random, unscheduled days off. I am not disabled enough to get disability. It has put a strain on many of my relationships unfortunately as I was the bread winner in my family!

Very inspring! Your parents must be proud of you and you must be proud of them.

Proud of your mindset Ola, congrats

Congrats, you are so cute

Said by Karen troublemakers think 💬🤔 you don't look disabled person and don't call them a retareds said by a lot of BLM protesters and Mrs Armstrong black lawyer told her client to harassment others disabled took away there clients housing voucher program. They think 💬🤔 I'm a retareds person and prostitute and hooker whore when I got hurt years ago and IQ is 94% above average intelligent average smart 🤓 multiracial woman with TBI and has ADHD, Learning difficulty in a few things. If your clients civil right lawyers no disabled people caused your clients to loss the housing voucher program.

Never call a disabled person disability said by some racists ex neighbors that im a retarder person who is multiracial person. Calling me derogatory names as a sex worker, because I have PCs that a man. That is very disturbing disrespectful to lie about me. Those who lost there housing vouchers in 2008, and mrs Armstrong civil rights lawyer to tell client to discriminate against me due to there own behavior and they are all good for everyone else.

How are you? How old are you? Do you have any pain in your wrist or fingers?

Hi how are you….how old are you…

Never call disabled prositutes nor hookers whores!! A mild specific learning disorder and dyslexia and NVLD and traumatic brain injuries and ADHD written expression disorder is not retareded person black groups and pastors who part of the group members that hates all disabled people aren't mental case retareded person which means I am not a fan or anything else derogatory remarks about me and others who are capable of living on their own life and there are disabled people who are not participating or speaking 🗣️😰 HEADS KNUCKLEHEAD this year but they are not able bodies people who are capable of getting a full time jobs and careers dream about the one that can do it.

Hi, did you have knee flexion contractures too?

As a grown @ss man this brought tears to my eyes. You are awesome, very brave and i commend you. I have a condition called spondylolisthesis in my back. It's not noticeable to people that don't know. But i had a big surgery called a single fusion on my l4, and l5 vertebrae. I'm glad you made this video to explain this. My friends daughter has the same condition as you so this was very informative. ❤

I heard that before You're such an inspiration.. and they have no clue what I've gone through

great advice, thank you!

how I do "girls' stuff" with a disability (doing nails, tying hair up, shaving etc) | arthrogryposis. The video is engaging and grips the viewer from start to finish. Watched the video on May 28, 2023 very like. Thank you

Hi! Mama to an AMC baby here! Were you always able to bend your elbows like that? My daughter is 5 months and hasn’t shown any active bending in her elbows. We think she may be missing her biceps or they are very weak.

I understand because i have a disability too and it seems like everyone hates me

Hiii

Hi, firstly I congratulate to you for that you seem very strong. That's wonderful. Secondly, I have AMC disease too. Also, I have scoliosis. Yes really thats diseases get difficult to our life and we maybe lose all taste of the world. On the other hand, you dont be recluse because of this disease but someones who are same to us can want to get away from lively life. This feeling which got notice that you are different from others should be destroyed by us but thats difficult. I wish they and I could be as positive as you. Finally, I request to your a little advices. Have a nice life always lady !

I have this as well. I hate when people stare at me :/

My son was born with AMC 7 years ago and he is the biggest blessing! He really has shown us he is capable of anything he sets his mind to. He plays baseball in the community and he’s great at it. He was affected from his arms and hands and he has had surgery to help open up his hand and give him more range of motion with his fingers. I would say that he really is independent for his age, and we’ve never treated him any differently than his brother and we’re careful not to make him feel like he’s limited in the things he can do, unless he really can’t do something due to his hands. For example push ups are something he isn’t able to do and he knows that. His wrists don’t go into the position to allow that type of workout and I know he accepts that, and we’re proud of everything he has been able to do. I just wanted to say thank you for making these videos and opening up about your personal experience with AMC!

Merhaba bende bu hastalığa (16)sahibim Ellerimde, bileklerimde, iki bacağımda hastalıktan etkileniyor maalesef bisiklet süremiyecek kadar rahatsızım iki yıl önce skolyoz teşhiside koyuldu. Bir az yorgunum ve yorumlarda bir şeyleri başaran insanları görünce mutlu oldum teşekkür ederim. Hayallerimi gerçekleçtiricem.

Awh! It am excited to hear someone say this, Ty because I also have arthrogryposis :))

Cześć Ola, może dodasz polskie napisy do swoich pozostałych filmów? :) jako niesłysząca tylko czytam. Wszystko co opisujesz jest ciekawe i "oswaja" ludzi nieznających tematu artrogrypozy. Nie zawsze można zapytać wprost "o co tu chodzi", bo nie zawsze wypada lub ktoś po prostu może problem z mówieniem na ten temat. Fajnie, że doszłaś do takiej sprawności jaką masz.

You know, you're really beautiful. I don't really pay attention to those other things, there isn't anything that we can't around. But, I just wanted to affirm to you.. you're freaking gorgeous

I've been learning about AMC through AMC Princess Ana's channel, Team AMC Ana. It's good to hear stories like yours and Ana's.

You’re not labeled as a disabled person you’re simply a person with a disability. Know that. You also have beautiful eyes!

hola Ola, really hope ur doing well my dude😄. i just wanted to say thank you. you have no idea how rare it is to come across a youtuber who not only has AMC, but can be comfortable enough to share their thoughts, experiences and struggles with the world. and i don't just mean physical struggles but mental as well. i seriously cannot emphasize how grateful i am to you for putting out content like this, nowadays there really isn't any "big" youtubers who have AMC that talk about the things you talk about. they're either 2+ year old inactive channels or they cater to a different audience. which is 110% ok they have all the right to shape their channels as they see fit, our disabilities should NOT be our defining factor cuz there is soooo much more we can offer! i have AMC too, and your vid "a letter to my younger self" hit so close to home in so many ways bro it made me very emotional. i remember at around 10 i participated in a talent show that was being hosted in my city. the day after i watched the video my mother took of me participating, and the first thought that came to mind was "why do i walk so funny". before that i was never really self aware about it, and for a time i think it protected me to not think about it. that night though was when i started to wake up to the fact that i was indeed physically different from my peers. but that's neither here nor there, thankfully nowadays i'm in a much better spot than i used to be. and it's so awesome seeing youtubers such as yourself cover things that people, especially girls with AMC, could relate to. because i know there are hundreds if not thousands of AMC'ers out there who feel so alone, isolated and misunderstood. and unfortunately there isn't a lot of content creators they can truly relate or connect to, like trust me my broskies i feel for you guys to the core. and it's people like you Ola who give us a voice when no one really cares to listen. not just that, but you also provide a relatability that is unmatched by any other content creator. there is no other person on this dumb blue rock who can relate with an AMC'er than other AMC'er, granted our situations will be radically different 80% of the time, but there are similarities sometimes (trust me there are super unfortunate people who have AMC and are completely dependent on others, it affects us differently). so on that note i'd like to thank you one last time for providing a light in a lot of people's dark tunnels. i hope in the future you'll decide to post again, not necessarily disability related cuz again we have so much to offer as human beings, but whatever you'd like! your a godsend Ola, take care my dude :)

How to handle insecurities in front of your crush?

How old are you?

How old are you?

How do they straighten the arms and legs without cast ?

you are a marvelouz person or good girl we joy see to you you be better days at to days..i wanna hear to you sing one melody "" you got a big voice madam .

Being born with ACM is really hard for me

I wish I could lift my arms

I also have a visible disability and I totally agree with you :)

Boys cannot have periods. Non binary people can only have periods if they are biological women. So what it is, is “girl stuff”.

Oh you don't look weird at all, you are lovely!

Like a year or so ago I discovered that there's an actual AMC community in social media, like the AMC Facebook group and I got so excited. I also searched all UA-cam for AMC UA-camrs and I stumbled on your channel. I've loved all your videos. They've been very helpful. It's amazing to watch videos from someone you can relate to. So thank you for making these videos. I hope you will continue making these someday. 💛 -Kärt

I open locks too with my mouth here at home. But sometimes, I put a small rag over it , to mitigate agains germs .

I have arthrogryposis too. I cant lift my arms . So looking after my hair is not easy. I have to lock it. That way, it doesn't need combing

Hi, My Arthrogryposis condition looked quite the same as you, although I am male. What do you found that help or make you feel better (Excersice, youga, etc ) ? Thanks, take care.

You're incredible. Thank you

For the sake of conversation, what is the definition a fetish? I think, in standard contexts, it’s just a sexual quirk others don’t completely understand? Maybe? But I don’t know how that effects marginalized people. Thoughts?

Thank you. I'm the same. I see you and your not alone my friend. 😊 it helps me to know I'm not alone. Thank you again.

Thank you for saying this. I was born simular. You are not alone. I'm 46 and just now learning to be me. I'm thinking about telling my story. Thank you again.

You are beautiful 😍

Siema, mam tak samo tyle że u mnie bardziej krzywy jest lewy nadgarstek a nie prawy, jak chcesz kiedyś popisać (o pierdołach, np czy mamy podobne problemy) to zapraszam na statystycznypl@gmail.com Z chęcią bym też zaciągnął języka od Ciebie co próbowałaś z tym robić i tak dalej bo mam 25 lat i sam się zastanawiam powoli co by tu wykombinować. Pozdrawiam Jacek

Hi I'm quadriplegic. Very less finger movements. A spinal injury.😁😘

I used to do my hair this way too! (was born with Rheumatoid Arthritis) in my Teens up to my early 30's, you even get the hair bump I did haha. Left arm cant reach anymore to do it though. I have a new trick since then :)