I had chronic fatigue/ME for approximately 10 years. I recovered. Gentle exercise didn't work for me, diet, vitamin and mineral supplements worked for me. I have now been well and healthy again for past 20 plus years.
@@alperenylmaz1344 Intitally, my routine was rest when I felt I needed to lie down, get up when I felt better. Doing only as much as I felt capable off doing without pushing my body. I used to think of my energy as a bag of money or energy. Spending some but aways trying to keep some spare in the bag or I'd be bedridden for days, weeks or months again. Diet was fresh home cooked from scratch. I ate 3 meals per day, regular sensible hours of sleep, to regulate circadian rhythm. Initially I cut out wheat, milk and all sugars. I ate butcher fresh meats, chicken, beef, pork, lamb, venison, pheasant, fish. Potatoes, whole grain rice. Vegetables, lots fresh home cooked vegetables try to eat many different types of vegetables, especially greens. Fruit, I was Initially not eating much but after few months ate more. I ate only live yoghurt. I followed a rigorous vitamin and mineral supplement programme developed through a nutritional therapist. I felt no difference for 9 months, but by one year things started to gather momentum, year on year I improved, with less relapses until at about 3 -4 years I could lead a near normal life again. Since then I have kept in mind how I feel and adjust my diet , Vitamin, mineral supplement programme accordingly. After several years I went to college to study nutritional therapy to understand the reason and science of how made myself better and regain my health again. 40+ years on I'm still going well. Thank you.
ME/CFS has been in my life since I fell on my head ten years ago. This has been the most inspiring and hopeful interview for me. Thank you all so much!
Dr. Been, I want to thank you for having Raelan on your channel. I have to admit that after watching this interview my knee-jerk reaction was to feel a little threatened by the thought of retraining my brain and getting better. But I did a deep dive into Raelan's channel and I see clearly now what she's talking about and I see the merit in it. I knew you wouldn't have her on your channel unless her message was something worth hearing--and it really is. I'm a big fan of hers now, I feel a ton of gratitude to her for all she does for the ME/CFS community and to you for introducing her to us. Thank you. 🌷🌼🌷
What a great chat! It is so nice that a prominent doctor truly listens to patients and is eager to learn from them. I wish all doctors were like Dr. Been! Raelan has done so much for the ME/CFS and Long Covid community and is helping thousands of people recover through all the wisdom and stories she shares.
I found Raelan’s channel last year after struggling for one year with side effects from pfizer vax, never had covid. I watched her videos and thought - hmmm…. This sounds like what I have and I started implementing some of the things I learned from various folks she had interviewed. In July of last year my Pulmonologist - fatigue and shortness of breath have been my worst adverse effects- looked at me and said ‘you have ME/CFS’. I burst into tears because finally a Doctor saw me, heard me! I knew that I had been on the right path on my own. He sent me to pulmonary rehab where I started on the treadmill at 0.8mph… so sad, but I went three times a week and when I finished 3 months later I could walk at 2.0! I still needed naps several times a day but I was moving! I have since improved even more bit by bit - I now walk at 2.7mph, only need naps a couple times a week and am actually looking to go back to work as a Nurse. I used to work in Urgent Care but that is too fast paced for my body right now so I’m looking for something in a slower clinic setting. I could not have gotten here without Raelan and her interviews! I take something from everyone and try to implement it into my healing and learn from it. Thank you Dr Been for this interview and for continuing to talk about the vaccine injured. We are not as rare as everyone thinks!
Have had diagnosis since 1988. When outbreaks appeared at Incline Village. Still have. Have degrees in Health Ed. And facilitated support group at local hospital for cfs and fibromyalgia for 23 Years. I also have a study published in Journal of Musculoskeletal Pain on the subject. Was way before internet was so generous with information on the subjects of fibro and cfs. Thru my 30 years I always said if medical community would have taken us seriously back when I was more active trying to find us help we would be so much further ahead to help the long covid sufferers. It is my hope the torch is carried forward to help find a cause and cure for this horrible illness that is a thief of life for so many. Thanks Dr Been for doing these talks.
20 Years of CFS for me. I am getting worse every year and am now homebound. I can't get much needed medical care because of what it does to my body to physically go to and go through an appointment... it just too much for me. I end up sick in bed for 2 to 3 days after an appointment. No help in my community at all. I live isolated..
Here's what cured me after 12 years of CFS after glandular fever and Covid blew my socks off. It wasn't this discussion above but being treated via long covid clinic privately: strict low Histamine diet and antihistamines plus weight train in tiny bits. Absolutely zero cardio. Histamine and estrogen are directly linked so this is 80% women. Histamine at high levels is poison and causes all the inflammation. Hope this helps. I recovered quite quickly after this and became cross with the medical professionals tbh because the cure was quite simple. High histamine causes release of adrenaline to mop it up. Doesn't work. Makes you feel awful and wakes you up at night plus causes adrenal fatigue. Reduce histamine and take antihistamines. Xx
This is so dangerous to tell people that there is nothing physically wrong and they just have to rewire their brain. There are so many people debilitated from chronic bacterial and fungal infections and viral reactivations that eventually go into fullblown autoimmune disease.
Most chronic illnesses benefit from support to the autonomic nervous system. No one is suggesting there is nothing physically wrong. Enough ANS dysregulation can significantly affect immune and endocrine function for starters.
I have been an advisor to people with ME for 35 years and liaise closely with two leading consultants with a combined 60 years experience of supporting ME patients. I am shocked to hear this interview on this well-respected site. People die as a result of this advice.
This is ringing some bells for me, or connecting some dots, I'm not really sure how to say it. About 12 years ago, my life was extremely stressful, and had been for about 5 years. Then I came off anti-depressants too fast., and was hit with withdrawal, or what is called discontinuation syndrome. Then a relationship broke down, then I was facing homelessness, then I found somewhere to live, but I was faced with renovating a whole house by myself, all this while raising a teenage daughter by myself. I tended to be a perfectionist, and was very hard on myself, and came from a background of childhood trauma. Eventually my body and nervous system crashed. I became bed bound and hyper-sensitive to everything. I couldn't sleep, I couldn't handle light, sound, movement, smells and basically lived in a darkened bedroom. I forced myself to go out once a week and buy some groceries, but then it would take me a week to recover from the stress of that. At one point I thought I was dead. Then I thought I was dying, then when I realized I wasn't, I wanted to. My hair fell out, I was losing too much weight. I couldn't shower for weeks because I was in a constant state of panic and terror. My recovery was very slow, and I'm not fully recovered, but much better than I was. I came to the conclusion that I had been left with a CFS type illness, because all the symptoms fit. Progress was so slow, if I had got out of bed, brushed my teeth and brought in the mail, that was a good day. The key points to my recovery were acceptance. I learned to accept myself totally, and how little I was able to do from one day to the next. I learned how to truly take care of myself and my needs, something I had never learned as a child. I learned how to handle my emotions and not try to escape from them. It was an inner journey of self discovery, as much as a physical journey of recovery. Key turning points for me were changing my diet from a restrictive, ethical, almost punitive vegan/vegetarian ethic. To feeding my brain and body with healthy animal foods, without guilt. Another turning point was getting a puppy. I'm not sure why this helped, exactly. I had wanted a pet for a long time, but was too sick to take care of anything, I was struggling to take care of myself. But I had recovered enough that I thought I could manage it. The physical contact with another warm, safe mammal helped my nervous system I think. I was able to take my dog for regular short walks, and was inspired to do it. Walking alone had been anxiety provoking, but with a dog, I felt safer. I slowly created a beautiful garden out of what started as a disgusting junk yard, with nothing but waist high weeds and trash everywhere. Everything was painfully slow, but I learned to live in the moment and discover the enjoyment and joy of what is here right now, no matter how small or insignificant. I'm still vulnerable to stress, and can't do as much as I used to be able to do, but I'm in my 60's now. The idea of re-wiring your brain rings true to me, that's what it feels like has been going on. I feel like a different person from the inside out. I would say that I've been healing my life, not just healing from a chronic illness. When medical doctors can not help us, we have to turn to our own souls and listen to what it is saying.
For myself, diagnosed with CIRS, which has the same basic symptom list as CFS, there was no health improvement possible till I escaped mold. Did brain retraining for a year, steadily getting worse until I finally got a mold illness (CIRS) diagnosis and got away from the environment that was keeping me sick. Mold illness is a seriously under-researched sickness.
The traditional German way of morning routine May help: open the windows in the morning and evening to get out damgo. Sometimes the mould sits in the aircondition . Using EM microorganisms as cleaner or spray works against mold also selfmade Jadam microorganisms.
@@CandiedcloudsThe best way to test for mold toxicity is to look for mycotoxins in the urine. Vibrant Wellness, Great Plains Laboratory, and RealTime Laboratories all provide urine lab tests to screen for the presence of mold toxins within the body
Thank you, this is a very interesting angle and i believe a lot could still be researched on this topic! Yes, rising damp and mould can be terrible to sensitive people and many may not know of it.
Was a professional coder. Experienced fatigue after "Burnout". I wasn't capable of coding, what I used to love once. Couldn't work on my FLOSS passion projects anymore. Immediate retreated from my profession, 2 month of not even trying to code. Then one month ramping up slowly and carefully, not pushing too hard. Well, I retreated because I felt and understood that it was an neurological issue. I shut everything down and strictly kept away from PC (environment for codig) because I understood that my neuronal networks need to re-calibrate and they can't do it the way they got crushed. Having an idea of how neuronal networks work, in my case from IT perspective, is key for getting over such a thing quickly. You need to understand the damage done and the path to undo it. As a medical layman I would say, the problem is mostly that the continuous imbalance of neurotransmitter is causing networks mainly active when this imbalance happens to try to compensate by desensitization. Well, networks usually do pass-through unless they get triggered by an increase of hormons like dopamine and input which kinda say "you are meant". If a networks neurons do not activate properly anymore without a high dose, you basically get incapable of doing stuff without heat. What again causes the brain to try to correct that what again pushes these hormons making things worse. At some point certain neurotransmitter are depleted and then you simply can't no matter how hard you try. Seeing the fact, that also physiological functions are managed by neuronal networks... having them shut means to try something impossible when you try. You see your body could, but you just can't. Here it really is necessary to understand that its not about the body even when symptoms indicate that. You can feel exhaustion, you can be short of breath, you might have suffer from unspecific inflammatory reactions. But thats just the brain trying to fix a problem it causes itself. When I figured things out(how to change, reprioritize, etc) I, got a psychologist for talk therapy and help with a necessary shift. Now about 4 months later I'm capable of pushing my FLOSS projects more than ever. Aside of having a much wider perspective what helped me to set a new path and tackle challenges where previously, even after trying for months, I had no idea how to take them properly. Well, due to Long COVID and Post Vax. I personally suspect a similar mechanism but the imbalance being caused by ATT imbalance combined with, it's most destructive consequence, a drastically increased oxidative stress as consequence of ATT-2 excess and ATT-1-7 shortage. For non medics, read what ACE2, ATT-2 and ATT-1-7 are doing... I wonder why so less people see the big problems coming from that direction.
35 years ago I got sick 2 months after delivering my first child by c-section. The year before I got pregnant I was sick and diagnosed with Giardia. I was sick for many months with CFS, going from doctor to doctor all telling me it was all in my head. I was so fortunate to find a doctor that was able to hear all my symptoms and diagnose me with CFS. He treated me with injections of Kutapressin for a year. I learned how to also take better care of my body through diet and exercise. Dr. Thomas Steinbach in Houston Tx was a God send. I will always be forever grateful for his expertise, his compassion and for helping me heal. Back then, there was a breakout of what they were calling the “Yuppie Flu”….so sad that people are still suffering from this.
You suffered similar illness through the same era as I did. It used to annoy me so much when someone named it'yuppy flu' I was no yuppy, but I was ill. Glad you are much better.
🤯😱WTbleep 😆Thank you for this!!! My Husband noticed Pregnancy did me better & attributed it to hormone shift ...I was of the mind the Lovenox had something to do with it! It's a Porcine derived product for Clotting typically Thank you again for your testimony as it's the lead I might need to get out of this abyss of Hell 💞💖
Someone I know struggled with CFS for 7 years, went to many doctors, including the Mayo Clinic, and received no help. Eventually my friend learned, on a web forum, that tanning helps. She tried that, and got a big improvement after only 3 sessions. Years later she took vitamin B1 for an unrelated symptom, and it boosted her muscle strength just hour after taking it . She thought she could be suffering from undiagnised beri- beri.
I wonder if tanning beds help our bodies to manufacture vitamin D the same way the sun does. If so, Dr Been and other doctors have done entire videos on the positive effects of Vitamin D on the immune system, protecting the body from COVID and other illnesses, and recovering from those illnesses and from the adverse effects of the vaxx. Vitamin D has also been known for its benefits in treating depression for quite some time.
Amazing interview, I’ve been following Raelan & Dr Been so glad to see an acknowledgment for her work in the medical community. Raelan’s channel has helped me immensely with my long covid recovery. 🙏🙌
Been sick since 1987 with ME/CFS to varying degrees at both ends of the spectrum. I did GET graded exercise therapy, and CBT in the uk. I got rapidly worse, dr told me to stop the graded exercise, and I lost my career now as a result I got worse. Graded exercise has been withdrawn in the uk, thankfully. The psyche drs hijacked ME/CFS here, and many of us got more ill. My recovery in the middle years was spontaneous, no dr and no lifestyle changes, it just happened. Personally I’d say approach exercise with caution. Pacing is only swapping one task for another, it’s not a cure. Does Raelan have any medical training? Many of us ME/CFS patients fought for years to try to prove we were physically ill. This talk almost says it’s ‘all in the mind’ again, changing mindset is a cure, so wrong for many of us. I recovered to about 95% without any intervention, then got ill again some years later. Everyone’s CFS journey is very different. Only thing I agree with in this talk, is lots of us were very active beforehand. Her advice is like a step back to the 1990s, disappointing to be honest. Journaling and meditation are not cures, and not always helpful. Urine tests in the uk are showing a chemical in people with ME/ CFS post exercise, that isn’t present in people who are healthy, clearly not a psychological illness at all. This lady is just making money from her personal recovery. But she’s not a dr. I find this worrying advice to be honest.
Without disrespect to Raelan (and I don't think she's just trying to get money and it also doesn't bother me that she's not a doctor since most doctors know diddly squat about ME/CFS and I've gotten more help from non-doctors than doctors, by far) I do agree with most of what you're saying. There is no doubt a trauma element to CFS, but CFS is not a psychological disorder. I've wrestled with it since 1989 or 1990, when I was only 23 years old. I was bedridden with it, although I had been extremely healthy and very athletic when it hit me. I was for sure a Type A person, but this was not a psychological disorder or matter of attitude or stress or past trauma that took my health away for the last 3 decades. Self care is mandatory, but not the cure to this multi-system disorder. Tests showed I had nearly no progesterone, my thyroid was messed up, hormones were out of balance, adrenals were exhausted, i.e. HPA axis messed up. What helped me after 4 years of being bedridden or housebound were the natural, holistic practitioners who helped rebuild and rebalance all my body systems from the cellular level on up. I had conventional Drs tell me to go get therapy because they didn't have any idea how to Heal a human body. It takes work on all the body systems to heal from CFS, and then you must continue to take care of diet, gut health, stay ahead of toxins, and live a healthy life for the rest of your life because you can relapse at times.
I agree have tried all in 30 years everything she says. I have done my own research did a study I published and did a support group for 440 people, none of us got over this some got better but not cured. These got well talks I hear all the time and wonder if they really have all that all of us have. It can be deceiving. Since there is no provable thing that says we have this so how do we know we all have the same thing. I also have a degree in psychology. Anyhow good luck to everyone.
I have had MECFS since March 28, 2017 when I got a tetanus shot that I didn't want. The next year my doctor misdiagnosed me with Hep B and then I had 2/3 vaccines for that which worsened my health tremendously. In 2021 on May 14, I got the second Moderna vaccine. It was that vaccine that gave me Myalgic Encephalomyolitis -- brain inflammation. I was bed bound the rest of that year. I did buy two books: The Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalomyolitis by Dr Sarah Myhill. The second book is by Dr. Jacob Teitelbaum called "From Fatigued to Fantastic ." Using both of these books in combination helped me to get about 70 to 80 percent improved. Raelan did do an interview with Dr. Myhill which was excellent!!! No, Raelan is not a doctor, but she is a good social worker and researcher. She has the heart to help others, and we all need someone to give up hope and encouragement. With MECFS, every case is different mainly because of the way the person contracted MECFS. To sum everything up: the Autonomic Nervous System gets deregulated...whacked up...if you don't mind. The goal is the get the ANS into a calm mode of "rest and relax.". Personally, I'm not very good at exercising like Raelan, but I have improved by changing what I eat and have lost about 65 pounds. Also, what helps me is the read Scriptures from the Bible on how God does heal us. Psalm 103:1-5 with verse 3 as the key verse says: "God heals all your diseases." Each journey out of MECFS is different but all have the same type of pattern. What Raelan is so good at is giving use Hope using all the variety of interviews of people who have recovered. God loves us, we need to relax and love ourselves enough to take care of the one body and the one life He has given to us. My Christian faith has helped me tremendously. Thank you for a great interview Doctor. May God Bless you and your medical practice. Miss Monique 🙂🙏💗
Wow your comment touched me ❤ I too was knocked down by my vaccinations. I’m glad your doing better and I admire your faith. I hope to get better like you in the future! You gave me hope, thank you❤
@@Candiedclouds Dear Clara, thank you for your encouragement. You will get better.... keep your eye on Jesus Who is the Author and Perfecter of your faith!! Get the books and follow the instruction from Dr. Myhill and Dr. Teitelbaum. Like Raelan always reminds to have Hope. The Apostle Paul reminds us: "Now may the God of Hope fill you with all joy in believing, so that you will abound in hope by the power of the Holy Spirit." (Romans 15:13NASB). Miss Monique 🙂🙏💗
Did you take the natural thyroid by Dr Sarah myhill I had CFS before tetanus but 6 months or under I started fybromyalgia but CFS and fybromyalgia are part of one another what symptoms did the tetanus do
If I remember correctly, within a few weeks or so, I had a hard time walking distances and kept getting tired and tireder😞🤢. I think I even started getting Orthostatic Intolerance......all this was in 2017 to 2018. In 2018, I was misdiagnosed with Hep B and the symptoms got even worse. I also gained a lot of weight. I will need to reread Dr. Myhill's book again and try to find what she says about the thyroid treatment. Thanks for interacting with me. I don't know if I helped with anything, it's become all a big cloud of brain fog and hard memories. May God bless you in your journey with MECFS and Fibromyalgia. Miss Monique 🙂🌷🙏💗
Holy Smokes!! This is exactly what I have been doing. I have always been a very competitive athlete. Then in 2019 got breast cancer…. Had to stop most of my exercise. One year later had to have my hip replaced. While recovering from the hip surgery got Covid. Nothing has been normal since then. But I have been trying to get back to my exercise routine. Each time I get started my symptoms return with a vengeance. I am either “on” or “off”. I have never been good at stepping up into things. This has been a very interesting talk. Thank you!
Relatable. I've been very active my entire life, and then the pandemic hit and I got sick, and was put on anti-anxiety meds, trying to find which one worked, and I stopped taking them a year ago, so I quit after 2 years of taking them - but I think its ruined my life since then. Im trying to get the energy and inertia back for exercise, but I suffer from a sleep disorder. And now hormonally my hair is falling out, I'm breaking out in rashes, and I've got chronic pain. I'm only 30!! It's driving me crazy. I feel like I'm gaslighting myself saying it's all in my head but I just can't put my finger on what's going on.
Hi Im on this journey with al of you. I saw you comment and felt you needed encouragement. Forgive me if Im wrong. 🙏 Focus on movement that feels good but do start very very short time and remember that the most important indicator of how you are progressing, is how you recover! If you dont quickly recover, it was too much. Cut back and try again. You might have to start with ankle rolls. Pull your feet up and down like a gas pedal to pump your lymphatics! When you regularly recover, THEN increase a bit and continue like Raelan said; in intervals based on how you recover. Good luck. 🫶💐
Omg! I found Raelan about a month ago and I’m feeling wayyyy much better. LC 2 yrs.. I bagged the supplements after 2 yrs.. time. Time helped AND now Raelan
@@RaelanAgle omg you DO rock. I’ve been w Dr Been since covid start and then FLCCC. ANYWAY… you came up in my feed as if a divine intervention.. w Lyme since 2000 and 2 yrs of every pill on Every list.. u had a guy say the panic if u ran out of like NAC.. or fear eating a high inflammatory tomato. I was F this. I’m like wanting that beer still in my fridge from my age 59 turning 6 0 party I never had cause my hubby got covid .. neg test. Neg test a week later he was so so sick of course I started feeling sinus pain etc. anyway I lost smell. Taste for 3 months. Head neck pain. Trigeminal neuralgia and so sick I was bedridden a year. And my covid w delta never even a cough.. but AFTER the fact I got super sick.. crazy stuff. Being in so much fear for so long I heard your stories and it truly resonated!! I’m forever grateful I clicked on your pretty face in the feed! I hadn’t slept in 2 yrs no kidding. Out like a baby last few weeks!! All night. No medical UA-cam at night or hardly ever anymore. I’m still not 100%. But in shock w none of these supplements and feeling actually better! I simply couldn’t afford them all anymore tbh. Love u Rae 👊🏻💜
Exactly. GET has been withdrawn in the uk for ME/CFS as some people were becoming much more ill. This is one of the most worrying talks I’ve heard in a very long time. I’ve had ME/ CFS since 1987, at both ends of the scale. I lost my career due to doing graded exercise. This lady has put ME/ CFS back to where we were in the 1990s. People here have died form severe ME/ CFS, their mindset was fine, their physical health wasn’t. Very worrying talk this I think.
She did not recommend GET. She said what she did. Gentle movement for one minute was her method. Until she could do more. At her own pace. There are stages where movement isn't possible. There are in many people improvements that will benefit further when oncorporating gentle movement. You have to guide your own recovery according to where you are.
I have cfs a good bit of advise I got was do 50% of what you think you can do. So say to yourself can I do double what I’m doing? If not you’re doing too much. The trick is to add in activity (mental or physical) very slowly, it’s almost like you have to do exposure therapy and tell yourself when you get symptoms that it’s just the autonomic nervous system, you are safe. It’s very hard for us type A personality’s to not too too much when we feel better, but I think that’s the key to recovery. That and not adding in too much too quickly. CFS Health on UA-cam and FB have a great program and lots of free content on recovering
Retraining how you respond to signals and have command of responses from the mind’s perception. Learning what body feedback can point someone in the right direction. Soooooo good that she found movement as the mobilization of the innate wisdom and internal medicine inside. Thank you for speaking to this, and mentioning this. I’ve been speaking to my clients for 20years this pointed direction toward the ability for everyone to access their health.❤️🙏❤️
The renowned Charité Hospital in Berlin keeps asking the German government for funds to do more research on treating Me/CFS, so it's a complicated topic that seems not that easy to solve.
Raelan recommended to “pause and take a breath” to recognize when you are becoming stressed. Breathwork is one of the gentlest methods that can be used to reduce Anxiety while avoiding a relapse. It can also be combined with a Meditation practice. I recommend searching for the “Physiological Sigh” and employing it whenever you feel anxious and stressed. Andrew Huberman has several brief videos on this technique. Your search will also uncover other useful Breathwork techniques.
Dr Been, she said retrain the neurons, not mind set (not to say mind set is not important). This is also consistent with CRPS/RSD. Neurological pain loop-- not psychological-- rather ŋeurological
Without having watched the video, the things that I believe helped me the most during my year-long recovery from Covid were Ivermectin, NAC, C, Zinc, Magnesium, D3, MK7, Probiotics, fermented food (homemade) and NICOTINIC ACID.
Ms. Raelan Agle says, how it is.. Will power, not always thinking in same way, but trying to change, as more+more exercises n more work, nutritional diet, changing mood..
They will not cure severe m.e. Alexander was young and didn't have it long. It has a strong genetic component. Often overlapping with ehlers danlos syndrome I'm not saying people can't recover but most people I know have tried and tried all sorts of lifestyle interventions for DECADES. So I welcome the fact that she can help people , but also accept that it won't work for everyone. Multiple sclerosis can also be reversed in sone people by lifestyle. Many cannot,probably most. To deny that reality in m.e. is criminal to me. So I welcome the positivity, but there must be no shame and a recognition that her ideas won't work for many many CFS patients
Brilliant presentation. I worked as a psychologist and clinical systems data analyst (sort of) for 40 some years in Oregon and Minnesota. I met with a number of individuals suffering with CFS and yet little research had been done on it back then. It is frustrating to me that so little research has been done on symptomology that affect both mental health and physical health. Unfortunately, most clinical research has been done via ‘reductionistic’ approaches, focused on specific conditions, instead of multi health systems, and relationships between Mh and physical heath issues. We need more multi variable research studies in order to understand the interface of mind and body so that ore successful treatments might evolve. Thanks!
I had an over growth of yeast I slept till 12 noon and was still tired. I went on the life force diet followed it 3 months strictly and it healed me I am an RN it changed my life. I now understand how important nutrition is and I trust alternative medicine and will ALWAYS TRYI IT FIRST prayers to all who are suffering. ❤ I wanted to add when I recovered I felt 17 again it truly was amazing. It felt like a miracle I will never forget being so tired and sick. I would wash the dishes then sit on the couch and cry because I was so tired. There is hope I promise. My symptoms were bloating I am not overweight but my abdomen was taught and always distended after eating. That’s completely gone. 10 years later still gone. I eat healthy My advice to you never consume aspartame and read the book sweet POSION and if you think it’s an overgrowth of yeast try the life force diet.
Raelan, have you been in contact with Diana (Physics Girl), a popular UA-camr with a large following? She is dealing with MECFS pretty severely and I'm curious if you could help her.
I don't know if I have long covid or me cfs or chronic fatigue. Sometimes my legs would get so weak they would tend to give way. Liposomal glutathione helped a lot so I guess it's something to with mitochondrial dysfunction.
Try a good B-complex with extra thiamine (B1). You’ll also want to get enough magnesium to help the B1 work, and you might need to increase potassium. Research orthomolecular medicine. Research thiamine deficiency. It’s very critical and easily depleted.
Yes, the mitochondria are deeply involved. And no amount of healthy attitude, as helpful as that is, will heal mitochondria. It takes a lot of work to heal from ME/CFS.
@@dangerzone007 Have you looked into supplementing with glycine powder or glycine rich foods? That's what I'm doing now, having recently learned this may be a better approach than supplementing with glutathione since glutathione, even liposomal, is so poorly metabolized unless it's coming from your food. (However, if it's helping you, then that's great. You still might like to learn about glycine, though, in addition, if you haven't tried that yet.) Dr. Ken Berry and many others have some excellent videos on glycine and its benefits to the muscles and soft tissues. Regarding physical exercise, anything more than a gentle walk knocks me on my behind for days and does far more harm than good. Even exercise bands can deplete my energy and cause major fatigue. I focus on mitochondria, dense nutrients, and being outside in the fresh air, sunning and grounding/earthing. I'd like to do water therapy, self-guided because I can't commit to a program or therapist, now that the weather is getting warm. I know that horrible feeling of muscles that just give out. I remind myself to treat my body like a newborn baby and give it everything it needs: kindness, patience, protection, nutrition, sleep, and help it grow stronger on its own time.
The whole key is how you respond to the symptoms. You need to not be afraid of the symptoms when you get them, even flare them up little by little while showing your body that you’re okay, staying positive, not being afraid.
Have enough exercises and healthy food party homegrown.But the fatigue needed Rhizol Zeta one bottle to leave me. Taking Ashwaganda Triphala Tumeric and a few others worked for gut and nervous system. Infar red light in winter. Intermediate fasting and keto is another part on the puzzle. Feeling younger and not so worn out. Berberis, nettles, Jiao gu lan and other plant tees also dandelions and milk thistles in food will help maintain myself . Some plants I did for a week Then the body didn't like them anymore. They are repeated a few weeks later. See also Dr Yoshi videos.
I wish to make a point here. The emphasis on so called “Type A” personalities gives an impression that we humans with ME/CFS and all these other similar dis-eases are solely responsible for “doing it to ourselves”. I doubt your guest is intentionally saying that only driven, perfectionistic kinds of people end up in this situation with this illness. Many women and men, start out with trauma. Many are traumatised when their partners or husbands turn out to be abusive human beings who re traumatise them. Many have children and experience being abandoned by the father of their children. As an example, on one small estate of 10 homes 50% of those house women, who bought and moved into these homes having either lost their first home due to their husband partner abandoning them, or they took their children to safety because the husband father was abusing them in front of their children, creating a very unsafe environment for the children of those families. In every case, the fathers refused to financially support their children no matter what legal agreement they signed. And so, the mothers became the sole providers for those children putting those middle class women under enormous stress to feed, clothe, educate, those, 8 children, all told. Once the children were educated with professions and created families of their own, the mothers began to break under the immense burden, developing ME, Fibromyalgia, MS, and on and on and if they had not been hard working, responsible parents their children could have ended up in serious difficulty. So, women, Adult Human Females, tend to be the ones left to rear and educate the children, care for and often nurse, elderly infirm parents, out of necessity at the same time. And that requires a level of ability and responsibility that they have no choice about. You can look at them and propose that they are “ Type A” people, but they themselves, when asked will say” But what choice did I have?” And society has not been very kind to abandoned Women and their children and blame them for their husbands bad behaviour. Many different kinds of people get ill through this kind of life story, many women but also men. There is not one profile. And all of them can recover. But if you are alone and unsupported in your struggles, it’s a problem because getting help is as many describe, nearly impossible because the world is moving so fast, even their family members can spare very little time for them. And those rearing children, have to struggle on and try to heal themselves in the middle of a working life and children to care for. No wonder so many are collapsing. These illness’s are horrendous. And early trauma and later abuse and unfair burdens are fertile ground for triggering such illnesses. So, I agree that starting minute exercises daily, outdoors, preferably, especially walking, builds back strength, very gradually. But that in combination with a number of other things can be very helpful for some. For the rest, it’s rest and more; LDN, Lumbrokinase, , NMN, Nac, zinc.vitamin C, Vitamin D3, L-Argentine, Niacin, better nourishment, can play a role. Generally speaking “ western medicine “ has been very slow with diagnosis and even slower with treatment. TSR (Trauma Stress Relief) therapy with Acupuncture is particularly good at dialling down the nervous system and providing chronic pain relief. Yes, there are many single people, traumatised, ill, living in this state and this lady has worked through and out of her dis-ease. But I find in her story, although it is a good one for her and I am very glad for her, that she, in her recover is also setting a lifestyle standard of really high volume exercise and work ethic that also looks like a unreachable goal for many. I also worry that her rate of activity and indeed as she would describe, perfectionism and drive(though I definitely agree drive is essential to recovery though it can seem to vanish in these illnesses and take take many forms and directions in a slow recovery with which I think she agrees) may land her back in the same place she escaped from. I would not wish to set her standard of work and activity as the, standard to be followed if one were to consider oneself as “recovered”. It seems quite unreachably high for most. Though we might all like to believe we can recover fully and frequently the collapse comes after enormous stress on mind and body, one has to be a gatekeeper, ongoing for one’s individual health. Having the wisdom to learn how one got to that place; having an attitude of mind and body together as one treatable whole; understanding the traumatic experiences that hurt us both in families of origin and as adults; learning to say “NO”, is as important to staying well as any physical or other activity one might embark on or any lifestyle changes in eating or supplementation. But for many, the attitude of society and the law and policies of governments need to change the environment also so that people are not left out, left isolated and left behind. This is the story of how one admirable woman survived a traumatic childhood. Found her own way through a repetition of her mothers illness in herself but overcame it through determination and I imagine desperation at times but sheer grit and a drive for life and we can learn a huge amount from the steps she took and the innovations she created in her life and I recognise many of them. And clearly she got to know herself very well in order to achieve this. But isn’t that a huge part of this recovery process? I think that that is the magnificent achievement of this woman; know thyself. That’s a lesson to learn and emulate. Well done.
The bottom feeding fish analogy matches with what they did to baby elephants - a rope was tied to one leg. The baby couldn't break it after so many tries. It mentally gives up. So a thin small rope can hold back a full grown large strong elephant even though an easy tug would break it.
My other thing as you guys are winding this discussion up: how do you prepare and not set self up for disappointment in terms of wanting to be what you were before - ???? 💞💙🙏🏻🙏🏻🙏🏻👊
I wish you had mentioned that toxins and poisons can cause these symptoms. A full toxicological work up should be done before people resort to thinking it's all in their head. This kind of messaging can be very dangerous. Especially for vax injured or those with genuine physiological reasons. Biological detox is vastly different to psychological stress for treatment.
But I have to ask question this though, how about people who have unresolved viral over load or micro blood clots? The exersise part seems to be effective for people who are 100% healthy but need that gradual push. Ie i have cfs with crimson throat 5 weeks of covid. From studies it shows immune system activation (ie the virus is still there fighting) , I also get swelling in my head, extreme tinnitus and get around 10ins of sleep a night. Gradual exersise wouldn't fix this... what do we do ? I was a radiographer before all this and now I just go for walks every day ... Its a long story but I beelive i had cfs for a while (the crimson throat was a with me for a while) then was prescribed anti depressants which made things worse , but I couldn't get off it. Once I did 16 years later I think the cfs and withdrawal hit me hard. At 10 months off I had bad brainfog and then caught covid on my birthday... which started all this. Although I researched alot and am a health professional, im pretty lost as to what to do to heal.
It is definitely past stress! I believe. But why bother with interviews like this? When you offer no real Help! Because you want money from people, that's why. Most people can't afford.. This is not your first interview like this. I am not type A. And I have been sick for 20 years. The number 1 thing you need to tell people is what to eat! I am extremely sick. This did not help me.
It's easy to blame patients who don't 'retrain their brains' successfully by telling them they are not calming themselves down enough. There is a certain amount of nervous system issue involved but it is not the entire story. You can't repair stuffed mitochondria with 'calm the heck down' thinking. creating a calm mental state which lower stress hormones aids in recovery of course, but 1/2 my family has CFS to varying degrees and we ALL descend from the same mitochondrial(mtdna) lineage so in our family it is obviously a genetic proneness to developing it, mostly post viral but also combined with under extreme prolonged emotional/mental stress. Modern society is at everyone from the news, expectations, social media etc, there's little mental escape from excess exposure to people and all their 'stuff'. So, for anyone who is boot camping themselves with excessive brain retraining expectations.... go easy on yourself.... I believe the change in diet and cleaned up living does more and get off the internet and away from the news etc
Treat the dysatonomia identified with NASA 10 minute Lean Test. Boost electrolytes (salt and potassium) supplements. An abdominal compression purchase is often very effective for reducing symptoms! I am both a N.P. and a long time sufferer.
@@adele865 true until we have a undisputed cause for this no one can claim a cure. It's all speculation. Each must research and try what works best for themselves until we find exactually what has caused this to happen to us without dispute.
Ramadan fasting for 29 days. One meal a day. Water before the sunrise. Smaller than regular plate of food at sunset. I think I lost about 10 lbs or more. Weight loss accelerated near the end. In the last few days alone I shed 5 lbs. Ramadan is over, nervous that I will gain weight again if I did not stick to this discipline.
Thanks again. So glad I'm still in the control group. I never got Covid19, any variant. I've been supplementing with the usual flccc-endorsed supplements and I have been taking 30mg I_v-e-r_m_e-c_t_i-n every 2 weeks since January 2021.
I had chronic fatigue/ME for approximately 10 years. I recovered. Gentle exercise didn't work for me, diet, vitamin and mineral supplements worked for me. I have now been well and healthy again for past 20 plus years.
Can you share your routine and most works?
@@alperenylmaz1344 Intitally, my routine was rest when I felt I needed to lie down, get up when I felt better. Doing only as much as I felt capable off doing without pushing my body. I used to think of my energy as a bag of money or energy. Spending some but aways trying to keep some spare in the bag or I'd be bedridden for days, weeks or months again.
Diet was fresh home cooked from scratch. I ate 3 meals per day, regular sensible hours of sleep, to regulate circadian rhythm. Initially I cut out wheat, milk and all sugars. I ate butcher fresh meats, chicken, beef, pork, lamb, venison, pheasant, fish. Potatoes, whole grain rice. Vegetables, lots fresh home cooked vegetables try to eat many different types of vegetables, especially greens. Fruit, I was Initially not eating much but after few months ate more. I ate only live yoghurt. I followed a rigorous vitamin and mineral supplement programme developed through a nutritional therapist. I felt no difference for 9 months, but by one year things started to gather momentum, year on year I improved, with less relapses until at about 3 -4 years I could lead a near normal life again. Since then I have kept in mind how I feel and adjust my diet , Vitamin, mineral supplement programme accordingly. After several years I went to college to study nutritional therapy to understand the reason and science of how made myself better and regain my health again. 40+ years on I'm still going well. Thank you.
ME/CFS has been in my life since I fell on my head ten years ago. This has been the most inspiring and hopeful interview for me. Thank you all so much!
Dr. Been, I want to thank you for having Raelan on your channel. I have to admit that after watching this interview my knee-jerk reaction was to feel a little threatened by the thought of retraining my brain and getting better. But I did a deep dive into Raelan's channel and I see clearly now what she's talking about and I see the merit in it. I knew you wouldn't have her on your channel unless her message was something worth hearing--and it really is. I'm a big fan of hers now, I feel a ton of gratitude to her for all she does for the ME/CFS community and to you for introducing her to us. Thank you. 🌷🌼🌷
What a great chat! It is so nice that a prominent doctor truly listens to patients and is eager to learn from them. I wish all doctors were like Dr. Been! Raelan has done so much for the ME/CFS and Long Covid community and is helping thousands of people recover through all the wisdom and stories she shares.
Both of you helped me so much! Thanks for all that you do. I'm still sick though, cfs is a neverending nightmare for me
I found Raelan’s channel last year after struggling for one year with side effects from pfizer vax, never had covid. I watched her videos and thought - hmmm…. This sounds like what I have and I started implementing some of the things I learned from various folks she had interviewed. In July of last year my Pulmonologist - fatigue and shortness of breath have been my worst adverse effects- looked at me and said ‘you have ME/CFS’. I burst into tears because finally a Doctor saw me, heard me! I knew that I had been on the right path on my own. He sent me to pulmonary rehab where I started on the treadmill at 0.8mph… so sad, but I went three times a week and when I finished 3 months later I could walk at 2.0! I still needed naps several times a day but I was moving! I have since improved even more bit by bit - I now walk at 2.7mph, only need naps a couple times a week and am actually looking to go back to work as a Nurse. I used to work in Urgent Care but that is too fast paced for my body right now so I’m looking for something in a slower clinic setting. I could not have gotten here without Raelan and her interviews! I take something from everyone and try to implement it into my healing and learn from it. Thank you Dr Been for this interview and for continuing to talk about the vaccine injured. We are not as rare as everyone thinks!
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Ask for a D Dimer test.
@@bumblebee8653 Thanks, d dimer has always been ok.
Have had diagnosis since 1988. When outbreaks appeared at Incline Village. Still have. Have degrees in Health Ed. And facilitated support group at local hospital for cfs and fibromyalgia for 23 Years. I also have a study published in Journal of Musculoskeletal Pain on the subject. Was way before internet was so generous with information on the subjects of fibro and cfs. Thru my 30 years I always said if medical community would have taken us seriously back when I was more active trying to find us help we would be so much further ahead to help the long covid sufferers. It is my hope the torch is carried forward to help find a cause and cure for this horrible illness that is a thief of life for so many. Thanks Dr Been for doing these talks.
20 Years of CFS for me. I am getting worse every year and am now homebound. I can't get much needed medical care because of what it does to my body to physically go to and go through an appointment... it just too much for me. I end up sick in bed for 2 to 3 days after an appointment. No help in my community at all. I live isolated..
That sounds impossibly hard and unfair. Sending massive hugs to you, i hope you find your puzzle pieces soon ❤
I am same so totally understand your situation. Sending gentle hugs from Australia 🫂
Detox from mold. Cfs is a biotoxin illness… 1/4 ppl have gene on 6th chromosome which doesn’t detox from mold.
Here's what cured me after 12 years of CFS after glandular fever and Covid blew my socks off. It wasn't this discussion above but being treated via long covid clinic privately: strict low Histamine diet and antihistamines plus weight train in tiny bits. Absolutely zero cardio. Histamine and estrogen are directly linked so this is 80% women. Histamine at high levels is poison and causes all the inflammation.
Hope this helps. I recovered quite quickly after this and became cross with the medical professionals tbh because the cure was quite simple. High histamine causes release of adrenaline to mop it up. Doesn't work. Makes you feel awful and wakes you up at night plus causes adrenal fatigue. Reduce histamine and take antihistamines. Xx
Please get tested for Epstein-Barr virus. It can be the cause for many CFS symptoms and there are ways to get the virus load down like ozone.
You have pushed the barriers of medicine a bit further with these insights. Thank you Dr Beanz and Raelan for your amazing work
This is so dangerous to tell people that there is nothing physically wrong and they just have to rewire their brain. There are so many people debilitated from chronic bacterial and fungal infections and viral reactivations that eventually go into fullblown autoimmune disease.
Most chronic illnesses benefit from support to the autonomic nervous system. No one is suggesting there is nothing physically wrong. Enough ANS dysregulation can significantly affect immune and endocrine function for starters.
It’s both
I have been an advisor to people with ME for 35 years and liaise closely with two leading consultants with a combined 60 years experience of supporting ME patients. I am shocked to hear this interview on this well-respected site. People die as a result of this advice.
Glad to have happened along this conversation. Thank you for the encouragement to go slow slow slow and steady. The PEM is so real 💞💙🙏🏻🙏🏻🙏🏻👊
This is ringing some bells for me, or connecting some dots, I'm not really sure how to say it. About 12 years ago, my life was extremely stressful, and had been for about 5 years. Then I came off anti-depressants too fast., and was hit with withdrawal, or what is called discontinuation syndrome. Then a relationship broke down, then I was facing homelessness, then I found somewhere to live, but I was faced with renovating a whole house by myself, all this while raising a teenage daughter by myself. I tended to be a perfectionist, and was very hard on myself, and came from a background of childhood trauma. Eventually my body and nervous system crashed. I became bed bound and hyper-sensitive to everything. I couldn't sleep, I couldn't handle light, sound, movement, smells and basically lived in a darkened bedroom. I forced myself to go out once a week and buy some groceries, but then it would take me a week to recover from the stress of that. At one point I thought I was dead. Then I thought I was dying, then when I realized I wasn't, I wanted to. My hair fell out, I was losing too much weight. I couldn't shower for weeks because I was in a constant state of panic and terror.
My recovery was very slow, and I'm not fully recovered, but much better than I was. I came to the conclusion that I had been left with a CFS type illness, because all the symptoms fit. Progress was so slow, if I had got out of bed, brushed my teeth and brought in the mail, that was a good day.
The key points to my recovery were acceptance. I learned to accept myself totally, and how little I was able to do from one day to the next. I learned how to truly take care of myself and my needs, something I had never learned as a child. I learned how to handle my emotions and not try to escape from them.
It was an inner journey of self discovery, as much as a physical journey of recovery. Key turning points for me were changing my diet from a restrictive, ethical, almost punitive vegan/vegetarian ethic. To feeding my brain and body with healthy animal foods, without guilt. Another turning point was getting a puppy. I'm not sure why this helped, exactly. I had wanted a pet for a long time, but was too sick to take care of anything, I was struggling to take care of myself. But I had recovered enough that I thought I could manage it. The physical contact with another warm, safe mammal helped my nervous system I think. I was able to take my dog for regular short walks, and was inspired to do it. Walking alone had been anxiety provoking, but with a dog, I felt safer.
I slowly created a beautiful garden out of what started as a disgusting junk yard, with nothing but waist high weeds and trash everywhere.
Everything was painfully slow, but I learned to live in the moment and discover the enjoyment and joy of what is here right now, no matter how small or insignificant. I'm still vulnerable to stress, and can't do as much as I used to be able to do, but I'm in my 60's now. The idea of re-wiring your brain rings true to me, that's what it feels like has been going on. I feel like a different person from the inside out.
I would say that I've been healing my life, not just healing from a chronic illness.
When medical doctors can not help us, we have to turn to our own souls and listen to what it is saying.
For myself, diagnosed with CIRS, which has the same basic symptom list as CFS, there was no health improvement possible till I escaped mold. Did brain retraining for a year, steadily getting worse until I finally got a mold illness (CIRS) diagnosis and got away from the environment that was keeping me sick. Mold illness is a seriously under-researched sickness.
The traditional German way of morning routine May help: open the windows in the morning and evening to get out damgo. Sometimes the mould sits in the aircondition . Using EM microorganisms as cleaner or spray works against mold also selfmade Jadam microorganisms.
How’s u test itself for mold?
@@CandiedcloudsThe best way to test for mold toxicity is to look for mycotoxins in the urine. Vibrant Wellness, Great Plains Laboratory, and RealTime Laboratories all provide urine lab tests to screen for the presence of mold toxins within the body
Thank you, this is a very interesting angle and i believe a lot could still be researched on this topic! Yes, rising damp and mould can be terrible to sensitive people and many may not know of it.
Was a professional coder. Experienced fatigue after "Burnout". I wasn't capable of coding, what I used to love once. Couldn't work on my FLOSS passion projects anymore. Immediate retreated from my profession, 2 month of not even trying to code. Then one month ramping up slowly and carefully, not pushing too hard.
Well, I retreated because I felt and understood that it was an neurological issue. I shut everything down and strictly kept away from PC (environment for codig) because I understood that my neuronal networks need to re-calibrate and they can't do it the way they got crushed.
Having an idea of how neuronal networks work, in my case from IT perspective, is key for getting over such a thing quickly. You need to understand the damage done and the path to undo it. As a medical layman I would say, the problem is mostly that the continuous imbalance of neurotransmitter is causing networks mainly active when this imbalance happens to try to compensate by desensitization.
Well, networks usually do pass-through unless they get triggered by an increase of hormons like dopamine and input which kinda say "you are meant". If a networks neurons do not activate properly anymore without a high dose, you basically get incapable of doing stuff without heat. What again causes the brain to try to correct that what again pushes these hormons making things worse. At some point certain neurotransmitter are depleted and then you simply can't no matter how hard you try. Seeing the fact, that also physiological functions are managed by neuronal networks... having them shut means to try something impossible when you try. You see your body could, but you just can't. Here it really is necessary to understand that its not about the body even when symptoms indicate that. You can feel exhaustion, you can be short of breath, you might have suffer from unspecific inflammatory reactions. But thats just the brain trying to fix a problem it causes itself.
When I figured things out(how to change, reprioritize, etc) I, got a psychologist for talk therapy and help with a necessary shift.
Now about 4 months later I'm capable of pushing my FLOSS projects more than ever. Aside of having a much wider perspective what helped me to set a new path and tackle challenges where previously, even after trying for months, I had no idea how to take them properly.
Well, due to Long COVID and Post Vax. I personally suspect a similar mechanism but the imbalance being caused by ATT imbalance combined with, it's most destructive consequence, a drastically increased oxidative stress as consequence of ATT-2 excess and ATT-1-7 shortage. For non medics, read what ACE2, ATT-2 and ATT-1-7 are doing... I wonder why so less people see the big problems coming from that direction.
35 years ago I got sick 2 months after delivering my first child by c-section. The year before I got pregnant I was sick and diagnosed with Giardia. I was sick for many months with CFS, going from doctor to doctor all telling me it was all in my head. I was so fortunate to find a doctor that was able to hear all my symptoms and diagnose me with CFS. He treated me with injections of Kutapressin for a year. I learned how to also take better care of my body through diet and exercise. Dr. Thomas Steinbach in Houston Tx was a God send. I will always be forever grateful for his expertise, his compassion and for helping me heal. Back then, there was a breakout of what they were calling the “Yuppie Flu”….so sad that people are still suffering from this.
You suffered similar illness through the same era as I did. It used to annoy me so much when someone named it'yuppy flu' I was no yuppy, but I was ill. Glad you are much better.
🤯😱WTbleep 😆Thank you for this!!! My Husband noticed Pregnancy did me better & attributed it to hormone shift ...I was of the mind the Lovenox had something to do with it! It's a Porcine derived product for Clotting typically
Thank you again for your testimony as it's the lead I might need to get out of this abyss of Hell 💞💖
The impact of stress on the body is bigger than I realised.
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Thank you so much. That was beautiful to listen to!
Someone I know struggled with CFS for 7 years, went to many doctors, including the Mayo Clinic, and received no help. Eventually my friend learned, on a web forum, that tanning helps. She tried that, and got a big improvement after only 3 sessions. Years later she took vitamin B1 for an unrelated symptom, and it boosted her muscle strength just hour after taking it . She thought she could be suffering from undiagnised beri- beri.
I've heard this also. Just 5 minutes a few times per week in a tanning bed.
I wonder if tanning beds help our bodies to manufacture vitamin D the same way the sun does. If so, Dr Been and other doctors have done entire videos on the positive effects of Vitamin D on the immune system, protecting the body from COVID and other illnesses, and recovering from those illnesses and from the adverse effects of the vaxx. Vitamin D has also been known for its benefits in treating depression for quite some time.
I follow you both!!
Amazing people right here!!!
Amazing interview, I’ve been following Raelan & Dr Been so glad to see an acknowledgment for her work in the medical community. Raelan’s channel has helped me immensely with my long covid recovery. 🙏🙌
Very happy to see Raelan Agle here as a guest and from the comments, looks like people have appreciated her too!
Loved this interview, thank you for having Raelan on the show. Her minute by minute exercise routine is inspiring... I'm going to try that out!
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Hi!
Been sick since 1987 with ME/CFS to varying degrees at both ends of the spectrum. I did GET graded exercise therapy, and CBT in the uk. I got rapidly worse, dr told me to stop the graded exercise, and I lost my career now as a result I got worse. Graded exercise has been withdrawn in the uk, thankfully. The psyche drs hijacked ME/CFS here, and many of us got more ill. My recovery in the middle years was spontaneous, no dr and no lifestyle changes, it just happened. Personally I’d say approach exercise with caution. Pacing is only swapping one task for another, it’s not a cure. Does Raelan have any medical training? Many of us ME/CFS patients fought for years to try to prove we were physically ill. This talk almost says it’s ‘all in the mind’ again, changing mindset is a cure, so wrong for many of us. I recovered to about 95% without any intervention, then got ill again some years later. Everyone’s CFS journey is very different. Only thing I agree with in this talk, is lots of us were very active beforehand. Her advice is like a step back to the 1990s, disappointing to be honest. Journaling and meditation are not cures, and not always helpful. Urine tests in the uk are showing a chemical in people with ME/ CFS post exercise, that isn’t present in people who are healthy, clearly not a psychological illness at all. This lady is just making money from her personal recovery. But she’s not a dr. I find this worrying advice to be honest.
I agree with you.
Without disrespect to Raelan (and I don't think she's just trying to get money and it also doesn't bother me that she's not a doctor since most doctors know diddly squat about ME/CFS and I've gotten more help from non-doctors than doctors, by far) I do agree with most of what you're saying. There is no doubt a trauma element to CFS, but CFS is not a psychological disorder. I've wrestled with it since 1989 or 1990, when I was only 23 years old. I was bedridden with it, although I had been extremely healthy and very athletic when it hit me. I was for sure a Type A person, but this was not a psychological disorder or matter of attitude or stress or past trauma that took my health away for the last 3 decades. Self care is mandatory, but not the cure to this multi-system disorder. Tests showed I had nearly no progesterone, my thyroid was messed up, hormones were out of balance, adrenals were exhausted, i.e. HPA axis messed up. What helped me after 4 years of being bedridden or housebound were the natural, holistic practitioners who helped rebuild and rebalance all my body systems from the cellular level on up. I had conventional Drs tell me to go get therapy because they didn't have any idea how to Heal a human body. It takes work on all the body systems to heal from CFS, and then you must continue to take care of diet, gut health, stay ahead of toxins, and live a healthy life for the rest of your life because you can relapse at times.
@@strawberrygirl8572 I agree
I agree have tried all in 30 years everything she says. I have done my own research did a study I published and did a support group for 440 people, none of us got over this some got better but not cured. These got well talks I hear all the time and wonder if they really have all that all of us have. It can be deceiving. Since there is no provable thing that says we have this so how do we know we all have the same thing. I also have a degree in psychology. Anyhow good luck to everyone.
Exactly. Sorry, but this lady is a fraud
I have had MECFS since March 28, 2017 when I got a tetanus shot that I didn't want. The next year my doctor misdiagnosed me with Hep B and then I had 2/3 vaccines for that which worsened my health tremendously. In 2021 on May 14, I got the second Moderna vaccine. It was that vaccine that gave me Myalgic Encephalomyolitis -- brain inflammation. I was bed bound the rest of that year.
I did buy two books: The Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalomyolitis by Dr Sarah Myhill. The second book is by Dr. Jacob Teitelbaum called "From Fatigued to Fantastic ."
Using both of these books in combination helped me to get about 70 to 80 percent improved.
Raelan did do an interview with Dr. Myhill which was excellent!!! No, Raelan is not a doctor, but she is a good social worker and researcher. She has the heart to help others, and we all need someone to give up hope and encouragement.
With MECFS, every case is different mainly because of the way the person contracted MECFS.
To sum everything up: the Autonomic Nervous System gets deregulated...whacked up...if you don't mind. The goal is the get the ANS into a calm mode of "rest and relax.".
Personally, I'm not very good at exercising like Raelan, but I have improved by changing what I eat and have lost about 65 pounds. Also, what helps me is the read Scriptures from the Bible on how God does heal us. Psalm 103:1-5 with verse 3 as the key verse says: "God heals all your diseases."
Each journey out of MECFS is different but all have the same type of pattern. What Raelan is so good at is giving use Hope using all the variety of interviews of people who have recovered.
God loves us, we need to relax and love ourselves enough to take care of the one body and the one life He has given to us. My Christian faith has helped me tremendously.
Thank you for a great interview Doctor. May God Bless you and your medical practice.
Miss Monique 🙂🙏💗
Wow your comment touched me ❤ I too was knocked down by my vaccinations. I’m glad your doing better and I admire your faith. I hope to get better like you in the future! You gave me hope, thank you❤
@@Candiedclouds Dear Clara, thank you for your encouragement. You will get better.... keep your eye on Jesus Who is the Author and Perfecter of your faith!! Get the books and follow the instruction from Dr. Myhill and Dr. Teitelbaum. Like Raelan always reminds to have Hope.
The Apostle Paul reminds us: "Now may the God of Hope fill you with all joy in believing, so that you will abound in hope by the power of the Holy Spirit." (Romans 15:13NASB).
Miss Monique 🙂🙏💗
Did you take the natural thyroid by Dr Sarah myhill I had CFS before tetanus but 6 months or under I started fybromyalgia but CFS and fybromyalgia are part of one another what symptoms did the tetanus do
If I remember correctly, within a few weeks or so, I had a hard time walking distances and kept getting tired and tireder😞🤢.
I think I even started getting Orthostatic Intolerance......all this was in 2017 to 2018. In 2018, I was misdiagnosed with Hep B and the symptoms got even worse. I also gained a lot of weight.
I will need to reread Dr. Myhill's book again and try to find what she says about the thyroid treatment.
Thanks for interacting with me. I don't know if I helped with anything, it's become all a big cloud of brain fog and hard memories.
May God bless you in your journey with MECFS and Fibromyalgia.
Miss Monique 🙂🌷🙏💗
Thank you Dr for honoring this day while we lobby for funding. ❤
Holy Smokes!! This is exactly what I have been doing. I have always been a very competitive athlete. Then in 2019 got breast cancer…. Had to stop most of my exercise. One year later had to have my hip replaced. While recovering from the hip surgery got Covid. Nothing has been normal since then. But I have been trying to get back to my exercise routine. Each time I get started my symptoms return with a vengeance. I am either “on” or “off”. I have never been good at stepping up into things. This has been a very interesting talk. Thank you!
Relatable. I've been very active my entire life, and then the pandemic hit and I got sick, and was put on anti-anxiety meds, trying to find which one worked, and I stopped taking them a year ago, so I quit after 2 years of taking them - but I think its ruined my life since then. Im trying to get the energy and inertia back for exercise, but I suffer from a sleep disorder. And now hormonally my hair is falling out, I'm breaking out in rashes, and I've got chronic pain. I'm only 30!! It's driving me crazy. I feel like I'm gaslighting myself saying it's all in my head but I just can't put my finger on what's going on.
Same as myself decades are you hypermobile
@@MomofukudoodoowinduADHD sleep disorders come together
Too much prescribed exercise definately made my symptoms worse. Going very slowly now. Fingers crossed 🤞.
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Hi Im on this journey with al of you. I saw you comment and felt you needed encouragement. Forgive me if Im wrong. 🙏
Focus on movement that feels good but do start very very short time and remember that the most important indicator of how you are progressing, is how you recover!
If you dont quickly recover, it was too much. Cut back and try again. You might have to start with ankle rolls. Pull your feet up and down like a gas pedal to pump your lymphatics!
When you regularly recover, THEN increase a bit and continue like Raelan said; in intervals based on how you recover. Good luck. 🫶💐
What a wonderful guest 👏
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Omg! I found Raelan about a month ago and I’m feeling wayyyy much better. LC 2 yrs.. I bagged the supplements after 2 yrs.. time. Time helped AND now Raelan
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@@RaelanAgle omg you DO rock. I’ve been w Dr Been since covid start and then FLCCC. ANYWAY… you came up in my feed as if a divine intervention.. w Lyme since 2000 and 2 yrs of every pill on Every list.. u had a guy say the panic if u ran out of like NAC.. or fear eating a high inflammatory tomato. I was F this. I’m like wanting that beer still in my fridge from my age 59 turning 6 0 party I never had cause my hubby got covid .. neg test. Neg test a week later he was so so sick of course I started feeling sinus pain etc. anyway I lost smell. Taste for 3 months. Head neck pain. Trigeminal neuralgia and so sick I was bedridden a year. And my covid w delta never even a cough.. but AFTER the fact I got super sick.. crazy stuff. Being in so much fear for so long I heard your stories and it truly resonated!! I’m forever grateful I clicked on your pretty face in the feed! I hadn’t slept in 2 yrs no kidding. Out like a baby last few weeks!! All night. No medical UA-cam at night or hardly ever anymore. I’m still not 100%. But in shock w none of these supplements and feeling actually better! I simply couldn’t afford them all anymore tbh. Love u Rae 👊🏻💜
This lady raises red flags for me. Graded exercise therapy is not good for Me/cfs, nor is "brain training."
Exactly. GET has been withdrawn in the uk for ME/CFS as some people were becoming much more ill. This is one of the most worrying talks I’ve heard in a very long time. I’ve had ME/ CFS since 1987, at both ends of the scale. I lost my career due to doing graded exercise. This lady has put ME/ CFS back to where we were in the 1990s. People here have died form severe ME/ CFS, their mindset was fine, their physical health wasn’t. Very worrying talk this I think.
She’s a fraud. Sorry to say but has to be said
GET is great, when you reach 100% 😂
She did not recommend GET. She said what she did. Gentle movement for one minute was her method. Until she could do more. At her own pace. There are stages where movement isn't possible. There are in many people improvements that will benefit further when oncorporating gentle movement. You have to guide your own recovery according to where you are.
I have cfs a good bit of advise I got was do 50% of what you think you can do. So say to yourself can I do double what I’m doing? If not you’re doing too much. The trick is to add in activity (mental or physical) very slowly, it’s almost like you have to do exposure therapy and tell yourself when you get symptoms that it’s just the autonomic nervous system, you are safe. It’s very hard for us type A personality’s to not too too much when we feel better, but I think that’s the key to recovery. That and not adding in too much too quickly. CFS Health on UA-cam and FB have a great program and lots of free content on recovering
Retraining how you respond to signals and have command of responses from the mind’s perception. Learning what body feedback can point someone in the right direction. Soooooo good that she found movement as the mobilization of the innate wisdom and internal medicine inside. Thank you for speaking to this, and mentioning this. I’ve been speaking to my clients for 20years this pointed direction toward the ability for everyone to access their health.❤️🙏❤️
I saw a CFS/ME specialist in Southern California and was diagnosed with Lyme Disease. I could not afford the treatments for CFS or Lyme.
How were you diagnosed with Lyme? What lab did they use to diagnose you?
The renowned Charité Hospital in Berlin keeps asking the German government for funds to do more research on treating Me/CFS, so it's a complicated topic that seems not that easy to solve.
Raelan recommended to “pause and take a breath” to recognize when you are becoming stressed. Breathwork is one of the gentlest methods that can be used to reduce Anxiety while avoiding a relapse. It can also be combined with a Meditation practice. I recommend searching for the “Physiological Sigh” and employing it whenever you feel anxious and stressed. Andrew Huberman has several brief videos on this technique. Your search will also uncover other useful Breathwork techniques.
A “Physiological Sigh”, I absolutely love this Andrew. Thanks for sharing!
Dr Been, she said retrain the neurons, not mind set (not to say mind set is not important). This is also consistent with CRPS/RSD. Neurological pain loop-- not psychological-- rather ŋeurological
Without having watched the video, the things that I believe helped me the most during my year-long recovery from Covid were Ivermectin, NAC, C, Zinc, Magnesium, D3, MK7, Probiotics, fermented food (homemade) and NICOTINIC ACID.
Ms. Raelan Agle says, how it is.. Will power, not always thinking in same way, but trying to change, as more+more exercises n more work, nutritional diet, changing mood..
Thank you for sharing these great videosX
Key message: lifestyle changes are underrated.
They will not cure severe m.e.
Alexander was young and didn't have it long.
It has a strong genetic component. Often overlapping with ehlers danlos syndrome
I'm not saying people can't recover but most people I know have tried and tried all sorts of lifestyle interventions for DECADES.
So I welcome the fact that she can help people , but also accept that it won't work for everyone.
Multiple sclerosis can also be reversed in sone people by lifestyle.
Many cannot,probably most.
To deny that reality in m.e. is criminal to me.
So I welcome the positivity, but there must be no shame and a recognition that her ideas won't work for many many CFS patients
Agreed!! It took me a long time to appreciate this.
100% agree!
Brilliant presentation. I worked as a psychologist and clinical systems data analyst (sort of) for 40 some years in Oregon and Minnesota. I met with a number of individuals suffering with CFS and yet little research had been done on it back then. It is frustrating to me that so little research has been done on symptomology that affect both mental health and physical health. Unfortunately, most clinical research has been done via ‘reductionistic’ approaches, focused on specific conditions, instead of multi health systems, and relationships between Mh and physical heath issues. We need more multi variable research studies in order to understand the interface of mind and body so that ore successful treatments might evolve. Thanks!
I had an over growth of yeast I slept till 12 noon and was still tired.
I went on the life force diet followed it 3 months strictly and it healed me
I am an RN it changed my life.
I now understand how important nutrition is and I trust alternative medicine and will ALWAYS TRYI IT FIRST prayers to all who are suffering. ❤
I wanted to add when I recovered I felt 17 again it truly was amazing. It felt like a miracle
I will never forget being so tired and sick.
I would wash the dishes then sit on the couch and cry because I was so tired.
There is hope I promise.
My symptoms were bloating I am not overweight but my abdomen was taught and always distended after eating. That’s completely gone.
10 years later still gone.
I eat healthy
My advice to you never consume aspartame and read the book sweet POSION and if you think it’s an overgrowth of yeast try the life force diet.
How did u know u had an overgrowth of yeast? Did u get tested?
@@Candiedcloudsblocked sinuses which I e got rid off but still got muscle pain and bloating ibs
Lynn smith I agree
Raelan, have you been in contact with Diana (Physics Girl), a popular UA-camr with a large following? She is dealing with MECFS pretty severely and I'm curious if you could help her.
I don't know if I have long covid or me cfs or chronic fatigue. Sometimes my legs would get so weak they would tend to give way. Liposomal glutathione helped a lot so I guess it's something to with mitochondrial dysfunction.
Try a good B-complex with extra thiamine (B1). You’ll also want to get enough magnesium to help the B1 work, and you might need to increase potassium. Research orthomolecular medicine. Research thiamine deficiency. It’s very critical and easily depleted.
@@traceybaldwin6509 thanks. I've done most of those things. Still to try Benfotiamine and potassium.
Yes, the mitochondria are deeply involved. And no amount of healthy attitude, as helpful as that is, will heal mitochondria. It takes a lot of work to heal from ME/CFS.
@@strawberrygirl8572 I guess it comes down to micronutrients and very graded LIIT ( low intensity interval training).
@@dangerzone007 Have you looked into supplementing with glycine powder or glycine rich foods? That's what I'm doing now, having recently learned this may be a better approach than supplementing with glutathione since glutathione, even liposomal, is so poorly metabolized unless it's coming from your food. (However, if it's helping you, then that's great. You still might like to learn about glycine, though, in addition, if you haven't tried that yet.) Dr. Ken Berry and many others have some excellent videos on glycine and its benefits to the muscles and soft tissues.
Regarding physical exercise, anything more than a gentle walk knocks me on my behind for days and does far more harm than good. Even exercise bands can deplete my energy and cause major fatigue. I focus on mitochondria, dense nutrients, and being outside in the fresh air, sunning and grounding/earthing. I'd like to do water therapy, self-guided because I can't commit to a program or therapist, now that the weather is getting warm. I know that horrible feeling of muscles that just give out. I remind myself to treat my body like a newborn baby and give it everything it needs: kindness, patience, protection, nutrition, sleep, and help it grow stronger on its own time.
The whole key is how you respond to the symptoms. You need to not be afraid of the symptoms when you get them, even flare them up little by little while showing your body that you’re okay, staying positive, not being afraid.
LOL!! OK let's just pretend we don't have CFS and it will all go away. What a joke.
Mayo in Rochester has a clinic for ME/CFS. Not LC tho. Maybe in 90 years they will
Have enough exercises and healthy food party homegrown.But the fatigue needed Rhizol Zeta one bottle to leave me. Taking Ashwaganda Triphala Tumeric and a few others worked for gut and nervous system. Infar red light in winter. Intermediate fasting and keto is another part on the puzzle. Feeling younger and not so worn out. Berberis, nettles, Jiao gu lan and other plant tees also dandelions and milk thistles in food will help maintain myself . Some plants I did for a week Then the body didn't like them anymore. They are repeated a few weeks later.
See also Dr Yoshi videos.
Can you please interview a CIRS doctor in regards to CFS. I'd love to see you draw the biological pathways of CIRS.
The symptom lists of CIRS and CFS completely overlap.
@@lynnemccarty7559 well said. I personally believe CIRS is CFS. I have never seen a person that has CFS not have CIRS if they tested for it.
@@micaineseeley5339what is the test for cirs
I wish to make a point here. The emphasis on so called “Type A” personalities gives an impression that we humans with ME/CFS and all these other similar dis-eases are solely responsible for “doing it to ourselves”. I doubt your guest is intentionally saying that only driven, perfectionistic kinds of people end up in this situation with this illness. Many women and men, start out with trauma. Many are traumatised when their partners or husbands turn out to be abusive human beings who re traumatise them. Many have children and experience being abandoned by the father of their children. As an example, on one small estate of 10 homes 50% of those house women, who bought and moved into these homes having either lost their first home due to their husband partner abandoning them, or they took their children to safety because the husband father was abusing them in front of their children, creating a very unsafe environment for the children of those families. In every case, the fathers refused to financially support their children no matter what legal agreement they signed. And so, the mothers became the sole providers for those children putting those middle class women under enormous stress to feed, clothe, educate, those, 8 children, all told. Once the children were educated with professions and created families of their own, the mothers began to break under the immense burden, developing ME, Fibromyalgia, MS, and on and on and if they had not been hard working, responsible parents their children could have ended up in serious difficulty. So, women, Adult Human Females, tend to be the ones left to rear and educate the children, care for and often nurse, elderly infirm parents, out of necessity at the same time. And that requires a level of ability and responsibility that they have no choice about. You can look at them and propose that they are “ Type A” people, but they themselves, when asked will say” But what choice did I have?” And society has not been very kind to abandoned Women and their children and blame them for their husbands bad behaviour. Many different kinds of people get ill through this kind of life story, many women but also men. There is not one profile. And all of them can recover. But if you are alone and unsupported in your struggles, it’s a problem because getting help is as many describe, nearly impossible because the world is moving so fast, even their family members can spare very little time for them. And those rearing children, have to struggle on and try to heal themselves in the middle of a working life and children to care for. No wonder so many are collapsing. These illness’s are horrendous. And early trauma and later abuse and unfair burdens are fertile ground for triggering such illnesses. So, I agree that starting minute exercises daily, outdoors, preferably, especially walking, builds back strength, very gradually. But that in combination with a number of other things can be very helpful for some. For the rest, it’s rest and more; LDN, Lumbrokinase,
, NMN, Nac, zinc.vitamin C, Vitamin D3, L-Argentine, Niacin, better nourishment, can play a role. Generally speaking “ western medicine “ has been very slow with diagnosis and even slower with treatment. TSR (Trauma Stress Relief) therapy with Acupuncture is particularly good at dialling down the nervous system and providing chronic pain relief. Yes, there are many single people, traumatised, ill, living in this state and this lady has worked through and out of her dis-ease. But I find in her story, although it is a good one for her and I am very glad for her, that she, in her recover is also setting a lifestyle standard of really high volume exercise and work ethic that also looks like a unreachable goal for many. I also worry that her rate of activity and indeed as she would describe, perfectionism and drive(though I definitely agree drive is essential to recovery though it can seem to vanish in these illnesses and take take many forms and directions in a slow recovery with which I think she agrees) may land her back in the same place she escaped from. I would not wish to set her standard of work and activity as the, standard to be followed if one were to consider oneself as “recovered”. It seems quite unreachably high for most. Though we might all like to believe we can recover fully and frequently the collapse comes after enormous stress on mind and body, one has to be a gatekeeper, ongoing for one’s individual health. Having the wisdom to learn how one got to that place; having an attitude of mind and body together as one treatable whole; understanding the traumatic experiences that hurt us both in families of origin and as adults; learning to say “NO”, is as important to staying well as any physical or other activity one might embark on or any lifestyle changes in eating or supplementation. But for many, the attitude of society and the law and policies of governments need to change the environment also so that people are not left out, left isolated and left behind. This is the story of how one admirable woman survived a traumatic childhood. Found her own way through a repetition of her mothers illness in herself but overcame it through determination and I imagine desperation at times but sheer grit and a drive for life and we can learn a huge amount from the steps she took and the innovations she created in her life and I recognise many of them. And clearly she got to know herself very well in order to achieve this. But isn’t that a huge part of this recovery process? I think that that is the magnificent achievement of this woman; know thyself. That’s a lesson to learn and emulate. Well done.
I've had M.E for 20 years after having glandular fever.
The bottom feeding fish analogy matches with what they did to baby elephants - a rope was tied to one leg. The baby couldn't break it after so many tries. It mentally gives up. So a thin small rope can hold back a full grown large strong elephant even though an easy tug would break it.
My other thing as you guys are winding this discussion up: how do you prepare and not set self up for disappointment in terms of wanting to be what you were before - ???? 💞💙🙏🏻🙏🏻🙏🏻👊
I liked ur starting exercises, as I'm still in Malaysia n will return to home in Ghana....
Great discussion.
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I wish you had mentioned that toxins and poisons can cause these symptoms. A full toxicological work up should be done before people resort to thinking it's all in their head. This kind of messaging can be very dangerous. Especially for vax injured or those with genuine physiological reasons. Biological detox is vastly different to psychological stress for treatment.
It’s the same with dysautonomia and POTS.
But I have to ask question this though, how about people who have unresolved viral over load or micro blood clots? The exersise part seems to be effective for people who are 100% healthy but need that gradual push.
Ie i have cfs with crimson throat 5 weeks of covid. From studies it shows immune system activation (ie the virus is still there fighting) , I also get swelling in my head, extreme tinnitus and get around 10ins of sleep a night. Gradual exersise wouldn't fix this... what do we do ? I was a radiographer before all this and now I just go for walks every day ...
Its a long story but I beelive i had cfs for a while (the crimson throat was a with me for a while) then was prescribed anti depressants which made things worse , but I couldn't get off it. Once I did 16 years later I think the cfs and withdrawal hit me hard. At 10 months off I had bad brainfog and then caught covid on my birthday... which started all this.
Although I researched alot and am a health professional, im pretty lost as to what to do to heal.
And also I had a gut biome check and it came out with no beneficial species, so j think that can be part of my mysterious illness
Wow! A lot of people have long Covid! This is another pandemic!
She sounds like she's describing mitochondrial disease
Great..
"Pain Gon' Make You Better" -- De La Soul and Snoop Dogg
I didn't receive a notification for this :(
It is definitely past stress!
I believe.
But why bother with interviews like this? When you offer no real
Help!
Because you want money from people, that's why.
Most people can't afford.. This is not your first interview like this.
I am not type A. And I have been sick for 20 years. The number 1 thing you need to tell people is what to eat!
I am extremely sick.
This did not help me.
I thought Dr been had snagged an interview with Jennifer Moleski.
Such a big deal to connect these dots
I am so scared to relapsed to baseline .
I’m having many issues if could chat with one of you this would be very appreciated
Would this work for MS?
functional medicine doctor treats cfs succesfully
are you familiar with the work of Dr. Courtney Hunt
This is pretty shocking that they're somatising a biological illness
It's easy to blame patients who don't 'retrain their brains' successfully by telling them they are not calming themselves down enough. There is a certain amount of nervous system issue involved but it is not the entire story. You can't repair stuffed mitochondria with 'calm the heck down' thinking. creating a calm mental state which lower stress hormones aids in recovery of course, but 1/2 my family has CFS to varying degrees and we ALL descend from the same mitochondrial(mtdna) lineage so in our family it is obviously a genetic proneness to developing it, mostly post viral but also combined with under extreme prolonged emotional/mental stress. Modern society is at everyone from the news, expectations, social media etc, there's little mental escape from excess exposure to people and all their 'stuff'.
So, for anyone who is boot camping themselves with excessive brain retraining expectations.... go easy on yourself.... I believe the change in diet and cleaned up living does more and get off the internet and away from the news etc
@Poire Tartin ❤
Treat the dysatonomia identified with NASA 10 minute Lean Test. Boost electrolytes (salt and potassium) supplements. An abdominal compression purchase is often very effective for reducing symptoms! I am both a N.P. and a long time sufferer.
@@adele865 true until we have a undisputed cause for this no one can claim a cure. It's all speculation. Each must research and try what works best for themselves until we find exactually what has caused this to happen to us without dispute.
@amfurneaux I would love to hear more of your story, can you tell us a bit more?
The brain causes w real.muscle facia tension to.the.point it cracks and pops.and at time see it
A thousand thumbs down. UGH!!!
I know what CFS is, but what is ME? I must have missed it.
Myalgic Encephalomyelitis, a newer and more accurate name for chronic fatigue syndrome
@@strawberrygirl8572 so, different than Fibro Myalgia
@RickRack yes, different. But I have both and I think that's common.
It is generally used in England and Canada and other countries.
It's. Fibromyalgia just one word.
Dr Been you look slimmer. Did you shed some weight?
He fasted Ramadan
Ramadan fasting for 29 days. One meal a day. Water before the sunrise. Smaller than regular plate of food at sunset. I think I lost about 10 lbs or more. Weight loss accelerated near the end. In the last few days alone I shed 5 lbs. Ramadan is over, nervous that I will gain weight again if I did not stick to this discipline.
Don’t suggest conventional drs
cfs = vit b1 deficiency due to mold toxicity
Dr. Been please speak with Ashok Gupta about the Guptaprogram which is his treatment program for ME/CFS and long covid.
50% of american home have mold...its mold toxicity = cfs 😂😂😂...only a functional medicine doctor can heal u quick
Thanks again.
So glad I'm still in the control group. I never got Covid19, any variant. I've been supplementing with the usual flccc-endorsed supplements and I have been taking 30mg I_v-e-r_m_e-c_t_i-n every 2 weeks since January 2021.