Ask the Expert: Managing Swallowing Changes in PSP, CBD, & MSA

Swallowing dysfunction, also known as dysphagia, is a common complaint in patients with PSP, MSA and CBD at some point in their disease course. Symptoms could include trouble chewing, prolonged meal times, persistent drooling, coughing or choking when eating/drinking, and a sensation of food sticking in the throat or chest.
In this webinar, Julie Hicks will review the different signs and symptoms of dysphagia and discuss how speech-language pathologists help manage these progressive changes over time. Questions that were submitted during registration will be answered at the end of the session.
Julie Hicks is a speech-language pathologist providing outpatient neurologic rehabilitative care at the Stanford Neuroscience Health Center and CurePSP’s Center of Care. She is also a clinical lecturer for the Department of Communication Sciences and Disorders faculty at California State University, East Bay (CSUEB). Her clinical and research interests include management of communication and swallowing disorders associated with neurodegenerative conditions such as Parkinson’s disease, PSP, brain injury and stroke.
Julie completed her Bachelor’s degree in Linguistics and Psychology at UCLA and her Master’s degree in Communication Sciences and Disorders at the University of Florida. She has previously worked for the VA Palo Alto Healthcare System and Norman Fixel Institute for Neurological Diseases in Gainesville, Florida. She has presented at state, national and international conventions on rehabilitation topics for patients with movement disorders. She has enjoyed supervising clinical interns and student volunteers since 2015. Outside of work, her interests include painting, cooking, and travel.
#AskTheExpert #CurePSP #PSP #CBD #MSA #Neurodegeneration

[@FeelinCLO2]

Many thanks ...
my swallowing was a major challenge especially after the Dr. gave me back to back cipro treatments for urinary yeast and prostate infection . There's a word doing the same thing over and over wishing for a different result. that ! Which didn't work by the way . Because Cirpro I could barely let fluid trickle down my tongue . Because trying to swallow a regular little sip would clog and send a stream of fluid out my mouth like a water pistol for kids. I had t get my throat stretched every few months just for that then as I wasted i could only chew one chomp at a time to chew my food because to fatigued . took 3 swallows per piece of food and rolling the back of my hand on my throat to help push down . Bread was the hardest thing to eat !!! Black Pepper gets stuck in my throat too which isn't to fun . . I would wake from dead sleep from food coming back up my throat . I often hold my t shirt neck pulling it down because it feels like like something compressing. I know it isn't my shirt but still i do it. Sometimes fluid would just start pouring out from under my tongue like crazy too . even my nose started almost streaming out of my nose and have to go to sink . Voice can go in and out . I had to be very aware of how I ate . That or choke to death ~ came natural to me . I changed my utensils but not for this reason . Silverware cut into me and was heavy and my glass had to be light because to heavy because fatigue. Had to buy cheap big round plastic handles for comfort there . Cut a pancake with a steak knife......could not cut anything with a fork. Actually i got so weak my hand folded in half long ways when leaning on it and same with foot. Talk about wild !
Eventually I fixed it myself taking angstrom Magnesium to reverse the cipro damage and the cipro didn't stop at the throat . I couldn't use any muscle anywhere or it would become very red and swollen like wanting to explode. Especially my hips. Had to walk wide legged very short steps. The mag started working inside a week amazingly ! So eventually I was able to beat the harshest M.S.A. symptoms with MMS from Jim humble. Now I can take 6 big pills at a time again and can swallow regular when I drink again .. I'm reversing autonomic neuropathies with it now . Even with major healing I do swallow a lot of phlegm still . May want to stay away from phlegm causing foods before bed at least !Some times I have to push my throat to initiate the swallowing muscle action in bed from swallowing so much .. Sometimes I still bolt out of bed and overheat from not being able to swallow. but not very often now. I still wheeze at times and gets hard to breath doing Yardwork because being weak from homebound for a decade and the breathing thing . nice to articulate words again too ! Thanks MMS ! stared improving in a month taking it .Kind of sedentary you might say .lol . .well ' Cest La Vie . at least I'm alive and my Ataxia is much better . Before I found MMS I would eat cannabis to smooth out the tremors . It smoothed me out too . But not like mMS !!! Way smoother and it's its nice to sweat everywhere again and handle hotter temps. Because everything th Dr. gave me effects me negatively or they don't recommend treatments because already have mass symptoms . Take Hep c for instance . Regular weak antibiotics gave my eyes dystonia so I will not take any antibiotics what so ever and skip chicken . I certainly would not take vaccines or ethro to speed digestion , or any of that stuff. Levadopa , don't make me laugh ! My Dr. actually wanted me to use a unapproved drug in the state that makes women lactate for my heart burn and I would have to buy it from Canada being I live in the u.s. . That's a side effect I certainly don't need ! Also , to help swallowing at night if I'm congested at all or alot of swallowing I use Colloidal Silver I make "because expensive " and heavily squirt it up each nostrel 20-30 minutes before bed and it clears my nose and throat so I can go to sleep without constantly swallowing . Can't chance it !!!! Big Pharma's tract record with me isn't so hot ......I tell them "allergic to steroids " they give me steroids that burn my skin . I say " I'm allergic to phenol " they give me phenol that makes my left leg go numb to the knee permanant like when it's supposed to numb my neck. Facet joint shots . Nerve blocks in my wrist and knees too . None working what so ever !. It would be nice if the Drs new what they were giving patients . Man O man ...One last thing ' I want to say thank you PSP for hearing me out and not blocking me like other M.S.A. sites here on youtube when I humbly share my story !!! Hats off ! I see you are into healing to and don't let ego and arrogance get in the way .............😎

[@Mrshekarcs]

This program is fantastic.
MY question is. Many reported deaths of PSP patients are due to pneumonia. Can a pneumoccoal vaccination help these patients, or aspirational pneumonia is different and not covered by this vaccine?

[@bonniecraft8772]

My Hubby has PSP and he has no problems with swallowing at all. However his speech is very low, raspy and mumbles. Very difficult to hear and understand. Is this the norm?

[@serendipity124]

Yes. My husband has PSP also and swallowing has changed along with the saliva build up. He doesn’t complain but I am growing concerned. Appointment scheduled for swallowing. 🙏🏽

[@debracrespi2690]

My husband is on hospice. can he still get speech therapy?