Symptoms and Diagnosis of Lupus
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- Опубліковано 12 вер 2024
- May is Lupus Awareness. Join me in the fight against Lupus and learn what Lupus is and how it affects people's lives.
Please send me photos of you and/or your babies wearing purple or butterflies for Lupus Awareness Month to: info@krystleslittlemonkeys.com
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To learn more about Lupus check out my Lupus playlist at: • Lupus Awareness Month
I didn’t know that about the symbol!
Sorry you’re dealing with all this.
Living with autoimmune is very difficult.
It took 3 years of my life away, struggling daily to just make it through the day.
Big hugs.
I’m totally cured from lupus disease 🦠, I was recommended to Dr.Auchi on UA-cam channel who use his natural herbal remedies to cure my lupus disease 🦠 permanent without side effects, l’m forever grateful sir.✅✅🙏🙏
Thank you! I pray speedy healing for you and other Lupies
Thank u so much!! This was super helpful because I'm going through every single thing u spoke about and this is all new to me so I'm freaking out and trying to figure out how to live with all of this!! My feet r killing me they r so super swollen!!! Praying for easier days ahead!! Thanks again and take care!!
Krystle thank you very much for sharing your very personal journey through Lupus. My younger sister has lupus a very severe case. I know now because of you being brave enough to detail your symptoms that my unexplained body swelling, head to toe rash, difficulty breathing after a simple surgery, (stress on the body) and so many more symptoms; that I too have Lupus. Getting a doctor to listen is quite another story. I wish I could send you a private message.
The fluorescent lighting use to make me so sick.
I couldn’t even go grocery shopping when I was my sickest.
You made my day! I have Lupus for only the skin?? And Ehler-Danlos Syndrome. And I found, listening you, that there are some symptoms are similars. But losing my hairs like leaves in fall season now I know why!! Thanks. To decrease my pains, the best in winter is the Florida hot humidity and temperature. If it can help you ... Contine to smile, it’s good for you and for people you look at you! God bless you! Kisses
Thanks for the video - I'm having similar symptoms - and so far i'm going crazy matching my syptoms to conditions i discover online - seems like autoimmune -- photophobia and PAIN PAIN MY KNEES + swelling .. basically all over // are on fire throbbing - also fatigue , and this is terribly depressing for me + migraines /among other symptoms >>// Hope to see a doc soon , -- anyway nice to hear other people are feeling like me
Thanks for sharing your story! Right here with you, glad we have this platform to spread awareness!
You are amazing Krystal & such a inspiration,Lupus is a scary disease & i related everything u say and i love the part about slowing down & living each day a day at the time and finding the love & happiness in that..it forces u in so many ways to do just that..God bless u sweetie! xo
+Greens & Things Thank you so much for the support it means a lot.
Sounds like a terrible decease! I am sorry you have to live with this... Thumbs up for people like you. 👍🏼💪🏼
+Elza P Thank you
Everything you describe is what Im dealing with right now. I also get this painful raky feeling on top of my head. Ive begged my Doctor to find me a definitive answer. I feel they think Im crazy sometimes. They know nothing about Cadasil either. I had 2 tests done for notch 3. Both were negative for cadasil. But my two nuerologists stand by the cadasil diagnosis. I do not. I am a pre-diabetic too. Found out last year. I get these little red rashes all over my arms and legs. I feel ulcers in my nose and mouth too. My Doctor has me referred to a Rhuemotologist. I hurt all over. I had a stroke in 2017. Ive been back and forth. I seriously cannot take much more of hearing its Cadasil. I feel everything you are experiencing to. Thanks for sharing😃
I have insomnia very badly too. I sleep 3 hours and then awake all night long. I hope I find out soon. I cant take much more.
I’ve been diagnosed with FMS since 2006… I’ve been going to a rheumatologist for the past 7 years who has never treated me for fibromyalgia… he always just focused on my knees.. ok the past couple of years my symptoms are hair loss over my entire body, chronic mouth ulcers, the butterfly rash, pain in my joints, fatigue, ankles and feet swelling, chronic headaches, chest pain, unexplained rashes, brain fog, IBS with chronic constipation , and a 3 positive speckled ANA over the course of the 7 years I’ve been going to the rheumatologist… he told me I do not have enough markers for lupus? Also had the nerve to say “ I know you want me to diagnose you with an autoimmune disorder” I told him I DO NOT want him to tell me I have an autoimmune condition I want answers for what’s going on in my body! I feel like my whole body is just falling apart and my Dr and my rheumatologist are not listening to me… they treat me like I’m some hypochondriac but I wish they would spend a week in my body then they would be singing a different tune
I would get a new rheumatologist
Cannot begin to tell u how helpful this video has been. New subbie here for the reborns until i came across this video. I've had very similar symptoms for months now. Love your baby vids and thank you for sharing this! xoxo from Pennsylvania
+Julie Julie glad it helped and hope you get some answers. Just remember that these symptoms can also happen in other illnesses. Lupus can mimic many other diseases. So that is why it is often hard to diagnose and can take a long time. Make sure you have a good rheumatologist who will look into everything.
You are a strong lady! Bless you! We are so happy in the reborn Community on U Tube that we have you, you are our angel! Thank you
+Reborn Loverz aww thanks :)
Wow, I also take immune suppressing meds, I'm always afraid of catching something that will floor me, your some strong woman living with lupus
+Mary o connell Thank you.
You should try using Nioxin shampoo and conditioner. I was losing hair like you and the Nioxin helped it grow back. You have to buy it at a salon or a place like Ulta.
Not sure it’s in Canada but I’ll have to check.
I’m totally cured from lupus disease 🦠, I was recommended to Dr.Auchi on UA-cam channel who use his natural herbal remedies to cure my lupus disease 🦠 permanent without side effects, l’m forever grateful sir.✅✅🙏🙏
I have so many of these symptoms. I tested negative for lupus but I see a reumatologist next week.
All the best. It doesn’t always show in bloodwork. Also many auto immune diseases share the same symptoms so it could be so many things which is why it can be hard to be diagnosed
@@LifewithKrystle yes that's why my primary physician referred me to a specialist. But I do have hypothyroidism and chronic anemia from sickle cell so I'm always tired. I will be subscribing to your channel just in case I do have Lupus.
Hows it going?
I’m totally cured from lupus disease 🦠, I was recommended to Dr.Auchi on UA-cam channel who use his natural herbal remedies to cure my lupus disease 🦠 permanent without side effects, l’m forever grateful sir.✅✅🙏🙏
Praying for you always.
I have a lot of symptoms u mentioned
I have lupus and most of the symptoms bless you for the video❤️
Your video is very informational and helpful. Thanks. Hugs from another lupus patient.
I’m totally cured from lupus disease 🦠, I was recommended to Dr.Auchi on UA-cam channel who use his natural herbal remedies to cure my lupus disease 🦠 permanent without side effects, l’m forever grateful sir.✅✅🙏🙏
This was really interesting. There's a lot of things, it's like a shopping list full of stuff you don't want xx
+MadHatterDJ that is exactly it
Good Morning Krystal...wishing you all sweet things today♡
Huge embrace from Spain Krystle !!!
I will keep you in my prayers.💜💜💜💜
I have Graves' disease and likely SLE. Also palpitations and tachycardia. There's definitely a link there. Loved these videos thanks so much for doing them.
Wait awhile after u shower to comb your hair, follicles are loose with wet hair, try combing before u shower, also try Biotin
Yeah I already do all that
Hello Krystle, I been watching your videos on your health issues. I have fibro, chronic fatigue which is very bad but still could be worst . Plus I have a few more health issues going on, that will not allow me to work. My flares are now on going not much of a break of what I call good days. I haven't been able to sleep in bed for over 4 years now, my hips can't have much pressure on them.(I sleep in a recliner) I have been very active all my life working in a factory handling over 50 to a 100 pounds everyday, but now I can't hardly walk to the bathroom on bad days. Thank you for talking about your illness.
+Tammy Wortham So sorry to hear of your troubles. I can totally understand. I often worry there will come a day I can no longer work. Praying for us and everyone with chronic illness.
Excellent video and very informative, thank you!
I really enjoyed the information. I just found you and subscribed. I'd love to share ideas and conversation. Thank you for sharing and hope to stay in touch Phyllis in Wisconsin
I'm looking for other people who have lupus and gut issues please let me know if you have any advice xx
I’m totally cured from lupus disease 🦠, I was recommended to Dr.Auchi on UA-cam channel who use his natural herbal remedies to cure my lupus disease 🦠 permanent without side effects, l’m forever grateful sir.✅✅🙏🙏
Thank you so much for this, it's really truly helpful!
I was diagnosed with Lupus at age 19 and everytime I would tell a Dr about they would test me again, and one day they say I have it in a blood test and another blood test shows I don't so I gave up worrying about now that I'm 41 I have been experiencing almost all of these symptoms again so now I have to get tested again, so why everytime I get a blood test it shows up one time and the next it don't, plus she says if the blood test does show up with Lupus she thinks it's attacking my body! I have been dealing with butterfly rash and got told it was Rosacea, plus I'm always hurting it's affecting my joints and muscles, it's hard for me to fight off an infection, plus I have a lot of blood in my urine for years, everything you are reading is what I'm going through right now!
You need a rheumatologist that knows that a blood test alone can’t diagnosed. Not every Lupus patient has a positive ANA.
7 (currently happening) out of 11 but still need to get the blood done! I’m so ready to find out after almost 10 years of suffering. :(
thank you for this video Krystal 🐤
+Pickles and Tea :)
Krystle thank you so much, this was so helpful for me! Big hugs!
My eyebrows get itchy and that wakes me up because I’m pulling the hair out . I am photosensitive with my Epilepsy.
I’m newly diagnosed. I was wondering if you exercise regularly. I feel like even though it’s healthy for you sometimes it causes a lot of pain.
Sometimes light exercise like walking helps my joints feel better and other days it makes things worse. So it is a guessing game and listening to your body and gage it day by day. And trying to find the right balance of being active and resting which is very different patient to patient.
I’m totally cured from lupus disease 🦠, I was recommended to Dr.Auchi on UA-cam channel who use his natural herbal remedies to cure my lupus disease 🦠 permanent without side effects, l’m forever grateful sir.✅✅🙏🙏
Lupus is a mean disease! Hugs Krystle!! 🎶✨❤
hi krystal! I am 15 and I am currently in childrens national medical center with pancreatitis. I got admitted a month ago and diagnosed with acute pancreatitis, but it never really went away. I now am diagnosed with chronic pancreatitis. I am currently improving and the projected discharge date is tomorrow. They did an MRCP and an ultrasound, both came back normal. They did an ANA and the medical team thinks it might be an autoimmune related pancreatitis. Some people I know seem to think it is lupus while others think it is crohns disease. I was wondering if it is possible for my pancreatitis to be lupus related, like, given my age and how sick I have been, is there any chance they may be right in thinking it is lupus? And even so I'm currently very scared to think it may be lupus. thank you!!
+Gabriel Harper I'm not a doctor so it is hard to say. But I do know lupus can attack anything in the body so it could be possible but it could be something else too. So many auto immune things share the same symptoms. Makes it hard to diagnose. Hang in there and make sure you have good doctors who are doing everything they can do get the bottom of things. Stay strong
Life with Krystle thank you.
What is the other tests besides Ana? I have crohns and believe I have had lupus for years but being in Canada my Dr has only tested for Ana and it came back negative. My symptoms are very similar to yours.
I’m in Canada as well and my rheumatologist looks at other things. A positive anti-DNA test, or
A positive anti-Sm test, or
One or more positive tests for antiphospholipid antibodies: IgG or IgM anticardiolipin antibody, lupus anticoagulant, or false positive test for syphilis
Check out this link for more info www.everydayhealth.com/specialists/joint-health/kitridou/qa/diagnosing-lupus.aspx
@@LifewithKrystle thank you for the information. i have a dr appointment next week so i will inquire about these tests :)
You’re welcome. Wishing you all the best 😊
I’m totally cured from lupus disease 🦠, I was recommended to Dr.Auchi on UA-cam channel who use his natural herbal remedies to cure my lupus disease 🦠 permanent without side effects, l’m forever grateful sir.✅✅🙏🙏
A little peroxide is good for tongue and lip blisters
They aren’t blisters
Do you think the hair loss could be related to Hypothyroidism?
No. It’s usually linked to lupus. It’s a very common symptom of lupus. My thyroid function is well controlled with meds
I’m totally cured from lupus disease 🦠, I was recommended to Dr.Auchi on UA-cam channel who use his natural herbal remedies to cure my lupus disease 🦠 permanent without side effects, l’m forever grateful sir.✅✅🙏🙏
+Life with Krystle Man I literally cried, I have so many of these symptoms but live in such a small country community that there aren't that many specialists around. I'm 38 and have been disabled since my 20's but have gotten so much worse lately, I have to live with my parents I can't afford to live alone. And they have to help me get to my appointments but even they don't seem to wanna take this seriously, they just say it's something from another disease I have probably flaring up. I just feel like I have no support because they don't want to believe I could have lupus. And I just want to make sure either way so I can get some help before it's too late. I could relate to so many of these symptoms I'm praying my dr will help me somehow & thank u for this video it's meant a lot to me😊
+Tina Lancaster It's so hard when family doesn't give support or tries to understand. I know it took my husband quite a while to get that when I say I'm tired it doesn't mean the same kind of tired he feels at the end of a work day. He now realizes what that means and that I shouldn't overdo things. Often times he will see me start to do something like cleaning something and he will tell me to let him to do it. I still have people in his family who don't seem to understand the seriousness of my disease and how if effects me. They think I look great so I must be doing well. I remember about a year ago Margaret's parents had to cut my hours from 3 days a week to 2 days a week. We figured out that we could afford it and so I would stay with them and not look elsewhere. I figured it would be a nice change for me health wise and give me a chance to do more with my youtube channel and I do make some money from my channel so it would be just fine. When I told Aleks' step mom this her response was "Well if you found another job with more hours, then you would have more money on top of your youtube money." I feel like they think I'm just being lazy and not wanting to work but they have no clue how much of a struggle it is to work the hours I do. My thought has always been so long as we can pay all our bills my health is more important than making lots of money. Yes it has meant us not being able to buy a house, have a child, etc. But health is always first. Some people will just never get it unless it happens to them. Stay strong.
+Life with Krystle I'm really glad that with time your husband was able to understand how really tired u were, he seems like a really nice guy. And I'm glad her parents understood and was able to cut your work schedule to help u more. I'm not sure exactly what your husband's step mom thought, because the message cut off but I get the feeling she wasn't very supportive and I'm so sorry about that. The fatigue is just horrible and trying to explain that to people who've never experienced it, make u feel like you're complaining over nothing. But I have moments where simply taking a few steps feel like I just walked across the yard. I really appreciate all of your advice and kindness, & I hope u know just how much your videos are helping me through this. Thank u.
+Tina Lancaster Yeah they had to cut my hours because the financially couldn't afford the 3 days a week since her mom's hours were cut back as well. It just worked out for me. It's odd you say my last message cut off, I can read everything I wrote. :/ Where does it cut off for you?
+Life with Krystle I'm sorry I had to refresh my page, as soon as I refreshed it the rest of the message came up. My phone is so weird. It's sad his step mom sees it that way because it's certainly not like this is something u can help, and I totally agree that no matter what your health comes first. You're definitely right some people will just never get it, I'm learning that a lot myself lately. I'm glad things with your job are working out from both sides that's a big plus, and thank u, u stay strong too. I will mentally feel so much better once I know for sure what's going on, the stress is crazy.
+Tina Lancaster Yes it was quite frustrating and she is the same person who also told me I should read "The Secret" because it could help with my health. *eye roll*
I haven't been diagnosed yet,I go next week. I get most of the signs! And I have an abnormal electrical impulse to the heart! & hypo thyroid, so makes me think your heart issue has to do with lupus
Prayers for you. My doctors haven’t been able to link my heart condition to Lupus
Howd it go?
I have a lot of symptoms but my ANA is negative so no answers :/
There is a list of criteria and usually if you have 4 or more even if one of them isn't a positive ANA they should be able to diagnose. Unfortunately not all rheumatologists know this. It took me from 2002 to 2010 to get diagnosed.
My rheumatologist is very big on test results. I do have an auto immune arthritis diagnosis but I think there is something else going on because of all of the organ involvement and the rashes I've developed. It took me two years to even convince him I hard arthritis :/.
Don't forget Lupus is the great imitator. My doctor took 3 years... and he finally saw through my bloodwork even though my ANA was negative.
Amanda Blogs how are you doing now? And I feel the same way. Can someone assist me?
Life with Krystle this is correct , many good rheumatologist will be aware that by the time you see them after referral, you may not be falling so the antibodies thing won’t be necessarily present , since you are not having as many symptoms.
my 10 yrs old niece have lupus....
Krystle.. sorry love. auto correct
do you have a sensitivity to gluten?
+Brianna C not that I'm aware of
Well my doctor told me about gluten being connected to auto immune flares. I don't have lupus but I have hashimotos. I was told gluten is a trigger for a lot of people to have flares. Not just with hashimotos though.
@@purple_amethyst I have Celiac and Raynauds and (probably Lupus). Gluten started it all, and the Flu while I was Pregnant exploded my autoimmune diseases. Gluten is a trigger for a lot of people especially Hashimotos and obv Celiac. My mom has Lupus SLE and Discoid Lupus and Gluten makes her super bloated and sick as well.
Also Dairy.
Kaitlyn Archuleta I get bad Raynaud on my feet mainly in the cold or with stress ,and have flare up with gluten causing hives suddenly and also burning in the tissues inside my mouth and swelling lymph nodes
I am also a lupus patient that has been battling lupus for over fifty years. I have written a book entitled: "LUPUS: The Battle Within." You can visit my website at: www.valeriehorn.com. You will definitely be inspired! Take care.
Krystle! Go to www.stopthethyroidmadness.com
It changed my life! I've suffered with hypothyroid my entire life, and after reading the info in the site, my life is changing for the better! I know your Lupus is the main issue, but knowing how to better help your thyroid will help IMMENSELY! So enjoying your videos on lupus, and lupus awareness! The world needs to know! Thank you for sharing! -Jamie
+Harris Party of Seven Thanks I'll check it out.
ever exercized?
+luckyfingers1213 First off learn to spell. Second of all, I use to be very active before I got sick. I use to dance on a daily basis. Lupus causes me to have very bad joint pains in my body. I do exercise when I can but I am often in too much to do a vigorous workout. Lastly, at the time this video was filmed I was on steroid treatment which causes weight gain and water retention. Educate yourself before making such ignorant comments.
luckyfingers1213 you seem to be in a lot of pain sugar so much that you need to put down a beautiful woman sharing her journey with a life threatening, (did I mention life threatening?,) chronic illness. Perhaps you should see a psychologist and discuss some of these painful issues? Maybe then instead of making yourself feel better by trying to be cruel you could share your journey of healing and make yourself feel better by being helpful and kind.
Well said Kim! :)
You are extremely rude. Your comment is unwarranted. This kind woman is trying to help people, and you’re putting her down
How arrogant you are, and how sure that you'll never be ill or in pain. When your turn comes to suffer, I hope no one treats you with the cruelty you have displayed to this courageous young woman, who faces daily what your couldn't imagine or bear. If your words represent who you are, and you enjoy inflicting hurt on those who suffer, then it is no surprise that you are unhappy.