I have 2 copies of C282Y. 36F. Living in the northwest UK & life is a struggle living with GH, the constant fatigue is unbearable, seems there's not much research & doctors often Google my illness when I try to get help. I'm starting to loose faith in ever living a somewhat normal life. I get venesection & that's pretty much it. They've said there's no available medication I can have to help. The extreme tiredness is seriously affecting my mental health although I try so hard to be positive. Please help anything , any advice would be very appreciated. Thanku
lovely accent ... easy on the ears Dr Pullon
I have 2 copies of C282Y. 36F. Living in the northwest UK & life is a struggle living with GH, the constant fatigue is unbearable, seems there's not much research & doctors often Google my illness when I try to get help. I'm starting to loose faith in ever living a somewhat normal life. I get venesection & that's pretty much it. They've said there's no available medication I can have to help. The extreme tiredness is seriously affecting my mental health although I try so hard to be positive. Please help anything , any advice would be very appreciated. Thanku
I have the same mutation as you, just got diagnosed today. Stay strong.....
Hi I just found out I have heamochromasis 2 days ago on 25/06/2021 the result came back 1103ug/l what is your recommendation for me to do ?
You say 1 in 200 are carriers. No, its 1 in 200 are Homozygous C282Y. It's 1 in 12 who are carriers. See this table checkiron.com/ci/affect-us.png