You have Endo if...
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- Опубліковано 24 сер 2024
- March is Endometriosis Awareness Month, so I can’t let it pass without giving you practical knowledge about when to tell if your painful period cramps are “normal” or a sign of something more.
Women can experience severe period pains with or without endometriosis, so it can be really hard to know when you should take action! However, there are some key differences between period pains and endometriosis pain that I share with you in my latest video:
- The key signs of "standard" period pain
- Behavioral signs of endometriosis
- Common endometriosis symptoms
- When you should consult your doctor
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** The information in this video is not intended nor implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, graphics, images, and information, contained in this video is for general information purposes only and does not replace a consultation with your own doctor/health professional **
I cry every month because I get so sick, I’m in so much pain, but everyone treats me like I’m dramatic or lazy. I hate being at work when the pain hits because I can’t explain or do anything, I can hardly stand, no one had sympathy and I don’t want a hysterectomy
Thanks for sharing. For your severe symptoms surgery is indicated. but bear in mind only about 1-2 our of 100 surgeons have a high level of expertise in surgical resection. Presacral Neurectomy is another surgical alternative for patient who desires to avoid hysterectomy. Follow the link for a provider near you.
www.endo-resolved.com/endometriosis_specialist.html
So sorry that you are experiencing that. It sounds like you have endometriosis, you'll want to talk to your gynecologist about it. I also know how you feel, I go through the same thing and have been diagnosed with the condition
Jennifafaa: Thanks for sharing your story. endometriosis can be very disruptive to work and home life. There are options to improve the pain that don't involve hysterectomy. Watch Eleani's story here: ua-cam.com/video/uEWEdq2EvUo/v-deo.html
Sorry to hear of your struggles, especially with others not understanding and being there for you. ❤ Hope things are going better with you now.
it must be suck...
I saw my fifteen year old daughter drifting in ad out of consciousness , laid on the bathroom floor, having diarrhoea and vomiting and screaming in pain. I knew it was endometriosis because it took me straight back to my own teenage life. It is a horrid , horrid disease.
This was me growing up. Only getting help now after having more normal periods for 5 years after having my son. Never really realised what I experienced was out of the ordinary before. The stark contrast of 5 “normal” years and then now when I’m back to being in bed for days, throwing up and very nearly fainting walking my son home from school finally made me decide I need help.
Courgette: Thanks for sharing your story. We did a recent video on 'passing out from period pain'
ua-cam.com/video/exIhoDSqNU4/v-deo.html
It sucks we don't fully understand this enough to cure or prevent it
My mum called me lazy, gave me paracetamols which I threw up as soon as I took 'em. She didn't care, told me she'll only giving me 30 minutes to lay down and then I should get up and help her with housework! I was 19 and thankfully a few days later I moved abroad (that was about 12 years ago). I have never been home on my period since!!! I'd rather get shot than have to tell my mum that I have cramps and need to lay down for a day!
Btw, my mum was a nurse and my dad a pharmacist.
@Rose please get a second opinion. male doctors especially tend to be dismissive
I have extremely painful period , I can't function without painkillers and even when I take painkiller I am still feeling alot of pain,it just makes the pain more manageable.
Tamesha: There is a new medication called Orilissa that may be helpful.
here is a video with natural remedies:
ua-cam.com/video/9qmIw8oVChY/v-deo.html
Me too 😭I'm on my period right now and I'm littreally crying
sameeee my legs get practically paralyzed too i literally can't move them sometimes
@@macymariee right! My legs hurt so bad in addition to the constant running to the bathroom throwing up and everything!!
This is me too, unfortunately
I had period pain so bad that when I became pregnant and went into labor, I delayed going to the hospital until I was in “transitional labor because labor pain was not “that bad”. My daughter was born 45 minutes after arriving at L and D. I was so glad to finally go through menopause and not have that beast every month
The intensity of your period pain was so significant that the pain of childbirth seemed comparatively more manageable. Your decision to delay going to the hospital until transitional labor reflects the resilience and strength you displayed during that time. The relief you express about going through menopause and no longer experiencing that level of pain every month is completely understandable.
I had same same reaction. My pain got less after I gave birth. SOURSOP LEAVES TEA AND CASTOR OIL RUB ON THE ABDOMEN AREA GETS RID OF THE MONTHLY MENSTRUAL TIME.
Same here labor wasn’t as bad as endometriosis pain
I thought I was imagining my labor being smooth. My monthly pains were debilitating. Labor felt like a breeze in comparison. Post partum, I realized that the monthly cramps are indeed way worse.
Thata same reason I delivered on the couch with fire department and wasn't crying they thought I wasn't about to deliver because I was just breathing. Seem same as periods to me
i complained about severe cramping since my first period at 13 years old. i was told for years that i was just 'sensitive'. i was treated several times for anemia. i had to call in sick every month for my period because i couldnt walk due to cramping. i would pass out while standing. when i was 20, i passed out while driving, and ran my car off the road. my doctor put me on depo injections to stop my period. i was on it for 8 years. i stopped due to concerns over its use. my period returned with a vengence. again, doctors told me i had a 'unique sensitivity' and refused surgery because i was not capable of deciding i didnt want children. finally at 32 years old, i found a wonderful doctor who fought insurance and blessed me with a hysterectomy. after, she told me i had SEVEN endometrial lesions on both my uterus and ovaries, and she was apalled at my previous medical treatment. ladies, keep fighting when you know something is wrong. we are not sensitive, over reacting, or whining. we are diseased and deserve proper care. 💞💞💞💞
Ugh! I'm 52 and finally going threw menopause. This ruled my life for decades. I started periods at 9. Call outs, being literally trapped somewhere because I have my period and can't move. The pain was off the charts. Migraines were nothing to me. Every time I went to the emergency room I was treated like a street drug addict. I hate doctors because of it. Seriously the last person I want to talk to about my body is a doctor or nurse. So, be good to these ladies!!!!! They don't deserve the shade!!!!
BTW menopause has been going well for me. I am not having bad symptoms. Occasional hot flashes, some nausea, a little tired some days. I have only had 2 periods this year.
The pain I experience is out of this world. I literally felt like I was giving birth every month. My ovaries felt like it has its own heart beat. I'm walking around bent over like I had a tummytuck. I ended up in the emergency room just to receive a $700 bill. It's definitely insane.
Omg I am going through the same, I feel as if my C-section scar is being ripped open or if I'm in labor
Yeah, I've passed out before. I would get cramps so hard my legs would get cold and fall asleep from constricted blood flow. Dizziness so bad I couldn't even stand. My joints would balloon from inflammation. Headaches, extreme dry eye, explosive acne, powerful, powerful nausea, and a general feeling of having a flu on top of it.
Once I got into my 20, it lasted longer and longer every week. Until I was just bleeding for one week but having the other symptoms every. Single. Day. For 11 months.
I was honestly just going to go wherever I needed to get a hysterectomy (birth control isn't an option for me for health reasons).
But, my mom found this cheap supplement called Chaste Berry, or more commonly Vitex Berry. Taking 500 MG every morning (i still take it years later) made it all stop. I still get mild acne and two to three days of cramping...but life honestly wasn't worth living before. No side effects either. I swear by it for me personally, and think it's 100% worth the shot
Same here. My mom would tell me I would turn deathly pale/white. I would have to be in bed for at least two days. Missed lots of school and work. Awful awful awful pain. I think it’s worse than childbirth…..I’ve never had a child, but I dare say I could handle childbirth easily. I can’t tell you how many times I wished I was having a baby because at least there would be some reward at the end.
I had same same reaction. My pain got less after I gave birth. SOURSOP LEAVES TEA AND CASTOR OIL RUB ON THE ABDOMEN AREA GETS RID OF THE MONTHLY MENSTRUAL TIME.
I rarely get periods 1-2x a yr heavly and painful when i get have to use tampons pads and adult diapers at the same time
I dont have Endo. Some months are better or worse than others. Some months i HAVE to call out from work bc i cant even walk to the bathroom. The pain always goes all the way down my legs to my feet & causes dizziness horrible nausea & a fever. Any girl going through this month to month youre not alone at all. so many fo us silently suffering
I’ve had horrible period pain since I was about 12. I black out I’m vomiting because the pain is so bad. Finally went to a doctor who told me if I lost weight everything would clear up. Would not listen to me or try to find more of a solution. Come to find out I have pcos and endo. Just turned 20 and got my diagnosis. Why won’t anyone listen to us..? I wasn’t even that overweight, I had a thyroid disorder and couldn’t lose weight. Anyway, I want a hysterectomy but I live in Missouri so that’s not gonna happen 🙄🙄. So annoyed by the medical system.
That is Discrimination against disability from disease and against being female. Get an agressive civil rights law frim to Sue!
endometriosis ruined my life for a solid 3+ years. Although, I’m very lucky because my OB was quick to suggest a lap, turns out I had stage 4 endo. Lap in May 2019, full hysterectomy in Dec 2020 and just recently in July of this year I went back in for emergency surgery bc the endo came back. Surgeon ended up taking out my appendix, few inches from my colon/intestine bc it was covered in endo, made it all the way to my lungs, endo is just so crazy. Even though I’ll never be able to have kiddos, I’m glad I made it to 33 pain free! Hang in there ladies, it gets better!
Sinc.88 thanks for sharing your story. It with great to hear that you are pain free and found a specialist that was able to understand your condition and give you the help that you needed
Your are so strong 💋
Hi. I’m at a point of desperation. Did you have pain after a bowel movement? This is my #1 symptom… it’s ruining my life. I have a great gastrointestinal tract in that I have frequent bowel movements at the same time everyday. But I anticipate that I will be in agony for about 4 hours after. It’s not painful during, but about 5-10min after, I am in agony. The pain is in my lower abdomen and pelvis.
@@faithhernadez8714 I'll pray you find the answer to help you!
@@miss_bhello7925 god bless :)
I was diagnosed with endometriosis at 19 after a laporoscopy. I suffered intense pain for years and only my mom believed me. My gynecologist (who was a man) was the second practitioner to see me. He listened to me and was very compassionate. The female practitioner who saw me before was horrible and didn't even know what endometriosis was.
Being treated like we're crazy is a common experience for women with this condition.
Wow, this is so much like my story so far. I have been to two women specialists and they didn't believe my pain , no testing or scanning etc..just 10 min appointment. My gp believes i most likely have endometriosis so now onto my third specialist a male and hes so far gone further, going in for investigations with camera and they are going to take samples etc under general anesthesia in two weeks. Fingers crossed i get answers.
@@Rose-mv6ys I wish you the best. I hope you get answers and relief. Keeping you in prayer.
I was diagnosed with endometriosis last year. Was glad to know what was going on with me and that I wasn't crazy when i complained about my painful cramps.
I know how you feel. What helps me often with the pain is either heat or anything with potassium
Yeah, I've passed out before. I would get cramps so hard my legs would get cold and fall asleep from constricted blood flow. Dizziness so bad I couldn't even stand. My joints would balloon from inflammation. Headaches, extreme dry eye, explosive acne, powerful, powerful nausea, and a general feeling of having a flu on top of it.
Once I got into my 20, it lasted longer and longer every week. Until I was just bleeding for one week but having the other symptoms every. Single. Day. For 11 months.
I was honestly just going to go wherever I needed to get a hysterectomy (birth control isn't an option for me for health reasons).
But, my mom found this cheap supplement called Chaste Berry, or more commonly Vitex Berry. Taking 500 MG every morning (i still take it years later) made it all stop. I still get mild acne and two to three days of cramping...but life honestly wasn't worth living before. No side effects either. I swear by it for me personally, and think it's 100% worth the shot
I remember struggling with painful periods for a year and a half. I was rushed to the hospital for extreme pain before my work shift was over. Even my pelvic exams were painful!! 😫😬I was diagnosed with a large fibroid tumor. I was taking NSAIDs to treat the pain but the pain kept coming back in between periods. I had a laparoscopy for that fibroid tumor on December 17, 2020. I found out that I had endometriosis after I had the laparoscopy. They ended up doing the biopsy for endometriosis. I had NO clue that I had this condition. Now I am pain free. Thank You Jesus!!!
I share this to let those who are having the same struggle know that you are not alone. My advice is to find the best doctor that will give you a treatment that works for you. Pray that you will find peace, comfort, and healing during those tough times. I know how it feels because I got through it and so will you.
Thanks for sharing your story
İ feel good for you
I have endometriosis, there's been multiple times I've layed on the floor curled up in pain thinking "this is it. I feel like I'm about to die."
Nyvvie: Thanks for sharing your story. It is important to find a specialist with experience in surgical resection.
www.endo-resolved.com/endometriosis_specialist.html
I've grown up with endometriosis, born with it. I had left work too many times to count and even lost jobs because of my attendance. I've been to the ER many times due to my blood pressure bottoming out, I was bleeding internally and didn't know it. I told the doctors in the ER why I was there and they treated me like I was crazy. They said I was just having cramps, I was behaving like a baby and they sent me home. My co-workers even commented on my facial color when my blood pressure dropped. I'm in menopause now, but I still have troubles and big balls of scar tissue inside that just get bigger as time goes on. I have felt every tear inside from child to present time, not fun when you have no control over the tearing of your insides and doctors treating me like shit on top of it all. I guess some of the problem was that I had no medical because of expence. I have state assisted medical now, but in my state, it's like not having any at all. I could go on, but this is long enough so I will stop here. Thanks for having a space for voices. P.S. I hate to say this, but alot of VERY stiff drinks helped me kill the pain, I called this "Freddie Kruger" and my drinks were my Freddie killers. That's how I dealt with it, sometimes having a few Irish coffees before work so i could manage. Wow, that's a lot.
I'm truly sorry to hear about the immense challenges you've faced with endometriosis throughout your life. It's disheartening that your pain and health concerns were not always taken seriously by medical professionals, and the difficulties you've encountered in accessing adequate healthcare are deeply concerning. Your resilience in dealing with such a complex and painful condition is admirable.
@@DoctorRich thank you, I appreciate your reply more than anything. ❣️
@PhSyco-B-oCh look into / research NAC for endometriosis pain
I was diagnosed with extensive endometriosis at the age of 33….i am now 68. I had fibroids on my ovaries, I bled heavily during my periods, felt like I was in labor,I had contractions , delivery was huge blood clots. I had a complete hysterectomy at the age of 33. And another surgery 2 years later to clean out the scar tissues. I went on hormone therapy for years. Later in my live I weened off the hormone pills. I feel great, no major abdominal issues.
ThankU kindly for the video…! Much appreciated it.
I have 8 of the symptoms and I’ve brought this up to my doctor and nothing has happened. Thank you for the information!
Medical gaslighting is real 😭
I have endometriosis (dx via Laparoscopic surgery) and it has been hell. I've been to the ER multiple times for a ruptures appendix, but severe cramps were the cause. Bleeding so bad through a super tampon every hour and needing a maxi pad for the overflow is very typical. My periods are usually 9-14 days with a 14 "day off." The pain during my worst days is impossible to describe. It feels like someone is wringing out my organs. I wouldn't wish this on anyone.
Nicole: Thank you for sharing. endometriosis is a chronic progress life-long conditions. It often requires a combination of medical, surgical and alternative therapies to keep the symptoms manageable. However you must find an expert with experience in treating the disease.
I have experienced the exact pain you described. Numerous times. Wanted to die. My periods are still very miserable, but haven’t become severe since researching and implementing anti-inflammatory foods and supplements. I highly recommend.
I have had no diagnosis but have, for 15+ years lived with severe dysmennorhoea.
Its a bit of a lottery for me i.e. It varies from month to month but, at worst, the pain is so extreme, it triggers vasovagal syncope which causes a crash in BP, heart rate and respiration, along with full body weakness, sometimes tremor and involuntary limb spasticity.
These attacks are usually preceded by acute episodes of nausea, vomiting, diarrhoea, faintness and intense feverishness and sweating.
During the worst episode I experienced, I self-rated the pain as 10/10 and, in the wake of this, became highly anxious about recurring symptoms.
I have had a hard time persuading health professionals to listen to my accounts and take me seriously. Over the years I have presented to GPs, consultants and paramedics around a dozen times with the same symptoms (including at A&E) but have only this year, aged 37, been referred for a combined hysteroscopy and laparoscopy and dye test to pursue diagnosis.
Still, the experience I struggle most to overcome is going in desperation to a GP (who was, by chance, an OB/GYN specialist) following a humiliating 'attack' at work (I had justifiable concerns that this would negatively affect my career progression in a business with a male-dominated management team) only to be belittled and scorned.
I was frightened and in desperate need of information, support and reassurance.
I began to explain my recent experience but was only a few seconds in when the GP impatiently demanded "why have you come to me?!" adding derisively, "have you even tried Codeine?" to which I replied that I thought it was recommended to take only when advised by a doctor. They bluntly suggested I go to the pharmacy and essentially dismissed me from their office. Perhaps it doesn't sound significant but I've never felt so diminished or disrespected before or since and, somehow, the fact that it was at the hands of a female practitioner compounded the impact.
A revolution in women's health provision is long overdue. Health inequality is ingrained, perennial and pervades in even the worlds most (ostensibly) advanced health care institutions. Medical research and medical care provision do not come close to adequately understanding and accommodating for (let alone acknowledging) the specific issues and physiologies of women and this comes at the expense of quality of life and of life itself.
Wonderfully understanding and empathetic video!!!! I’m a teen with endometriosis and have struggled to find GP’s or gynaecologists who take me seriously. Thankfully I found a great doctor and am going in for my second surgery soon
I am 34 years old and have had endometriosis since I was 15. I’ve had multiple surgeries, tried trial medication’s. The pain is unbearable, and my monthly periods are extremely heavy to where I can’t even get out of bed the first week cause I’m too weak and in too much pain. You will know the difference. I have two heating pads, one for when I go to bed and one that I keep on my couch. I get severe pain in my back and my whole pelvic area. I wish I would’ve seen this video years ago because the doctors never told me till just a year ago, and from it being so long with no treatment it’s gotten much worse over the years. I had to get second opinions, ladies the doctors do not want to tell you that you have something like this. You know your body and you know when something is wrong. Don’t listen to the first Dr. always get a second opinion because I wish I would have. I had so many doctors tell me I was too young and I ended up having it anyways. This man in this video is very wise!
Never knew endometriosis had an awareness month. Times have changed since I was diagnosed in 1976. I am now 67 yrs old . I suffered a lot and was ignored from age 12 til 1976. I was expected to stay at school or work. My heating pad was my best friend. I had horrible clots and bleeding. I was even expected to work even after my diagnosis. I was an LPN. So I had a very physical job. I never carried a child passed 7 weeks. I am a DES daughter. I had my hysterectomy in 1992 at 36yrs old. I also experienced a side effect of Motrin. My body destroyed my platelets so I ended up with thrombocytopenia. I also was mescarrying at the same time. I do cincuder my endometriosis as a blessing as when I had my hysterectomy they found a small area of cervical cancer.
After 34 years of being treated like I’m crazy and dramatic about my pain, I’m finally seeing an endo specialist next week. I have pain so severe I can’t walk, I puke, almost pass out from pain, diarrhea. I was on birth control for years. Now I’m trying to get pregnant and having difficulty. I have 2 ovarian cysts,my right Fallopian tube is blocked, and the birth control I was on caused a benign tumor on my liver that was resected once already. I’ve tried heating pads, all the normal OTC meds, even narcotics, muscle relaxers, tens units. Nothing helps. I’ve gone to the ER twice because of cramping and not being able to walk, crying in pain. I’m so grateful to finally getting answers.
Been dealing with this since I was 7 nobody said anything or even brought it up will ask my doctor not that it matters now since my appointment is to remove everything. But thank you after 23 years of excruciating pains and trips to the hospital n burns on my body from sleeping with heating pads finally a someone sees my pain n is taken care of it
Oh my. I thought this was all normal for my periods. Thank you for informing us all!
Glad it was helpful!
Using a trampoline for 10-20 min every day or at least 4x a week significantly reduced the pain I felt with cramps. So much so, that my next three periods after I started jumping were pain free.... I tested this by not jumping for a month afterwards and I had a painful, inflammatory period. Rebound exercising worked for my situation, as well as staying away from sodium products and incorporating more greens in my diet.
WOW!
My periods have always been bad since my very first. The pain is often unbearable to the point I cry, shake, throw up and so much more. I remember my mother having to come and get me from school, or keep me home when my cycle would start. Now an adult and 5 pregnancies later my period has returned to being irregular, extremely heavy, and very painful. The pain extends from my navel down to my knees and sometimes my rub. It is ridiculous.
Yeah, I've passed out before. I would get cramps so hard my legs would get cold and fall asleep from constricted blood flow. Dizziness so bad I couldn't even stand. My joints would balloon from inflammation. Headaches, extreme dry eye, explosive acne, powerful, powerful nausea, and a general feeling of having a flu on top of it.
Once I got into my 20, it lasted longer and longer every week. Until I was just bleeding for one week but having the other symptoms every. Single. Day. For 11 months.
I was honestly just going to go wherever I needed to get a hysterectomy (birth control isn't an option for me for health reasons).
But, my mom found this cheap supplement called Chaste Berry, or more commonly Vitex Berry. Taking 500 MG every morning (i still take it years later) made it all stop. I still get mild acne and two to three days of cramping...but life honestly wasn't worth living before. No side effects either. I swear by it for me personally, and think it's 100% worth the shot
As I'm lying in bed wanting to cry about my cramps I'm having looking it up on UA-cam, I have had my endo removed before, and after that I would go 7 months without having a period, then I went to the Dr and they suggested to go on birth control witch helped me to go to regular cycles, but man I get craps even when I'm not on my period, and honestly iive given up at this point, I'm only 27 and have been to 8 different Dr's, and still I have these problems thank you for your video just makes me wonder that my endo came back
I went to the hospital yesterday because I had sever period pain. I fainted tow times before I arrive to the hospital and wasn’t able to walk. I had no energy at all. The pain was like slow death. This happens to me every time I have my period. I was screaming and crying in the hospital. The nurses were laughing! they told me to stop OVERREACTING! Doctors told me this is normal and there is no need to go to the hospital. I tried all types of pain killers but they don’t work. A nurse came and inserted a cannula in my hand and then removed it. I found out that she is a student and was practising on me!! I got very anxious and was screaming. I was begging them to help me. The nurses made me mentally sick. They think I am being dramatic. Pain seeking
Tomorrow I am doing ultrasound and will see a Gynecologist. I hope I don’t have endo.
Omg those hospital people were such assholes to you , definitely go privately to a good gynecologist
My ultrasound came back fine, I got a MRI and it showed stage 4 Endo. Please continue to advocate for yourself. 🙏
You know what i am crying after reading your story.why we have to live like that
Girl i can feel you.. I also fainted in pain in my last period..
I'm sorry about your story with hospitals but this is how unfortunately how doctors underestimate our pain. I got a scanner years ago which showed no endo and the doctor said "it is normal to have cramps when you are on your periods"... well sir you don't have an uterus so don't comment. I'm pretty sure I have some level of endo, I need to investigate more but I also doubt because my pain is only on day 1 and as soon as I vomit it's like the pain is released and I get back to normal few hours later. If the symptoms are only 1 day, can it be endo too?
I’m finally having my surgery to check my endometriosis! My doctor finally listened to me
Such a great and emphatic summary of this debilitating disease.
I just had an excision surgery a month ago, and i finally have a name for my pain (along with some pics😂)
I feel like the worst part though, is having doctors doubting you, calling you anxious/drug seeking. Trust your guts, period cramps are not supposed to be debilitating!
SuperLovehp: Thanks for watching and spreading this message
This is really helpful. I was so confused when I saw videos that say periods should be painless. It made me question whether the amount of pain I get is normal. My period hurts pretty badly, but with a couple of paracetamol I'm fine and can go through the day and work as normal. Seeing the comments here, it seems like some people are in a lot of pain even with pain killers.
Yeah I have all these symptoms. The doctors don't care, they think everyone is a drug addict. 🙄. When your talking about the pain that winds you in urgent care, you mean the pain that feels like a poker in the rectum. Excruciating labor stage 9 like contractions and like someone is stabbing your pelvis and womb with knives. Then the fullness and swollen sore abdominal. That if you move wrong or pee too fast poo too hard. Brings on the death pain. 💀 lord help us that the doctors don't care
It is awful that your experience with medical providers has been so unempathetic. However it important for our viewers to hear about the good and bad experiences. Thank you for posting. Physician's take an oath to help their patients. In my experience most doctors do the best that can to help in any way they can. I am certain that there is a provider out there who can help.
I'm worried if my doc will understand this or not
@@NehaSingh-ss9ss If 'NOT', then you should find a new doctor. You can follow the link for an endometriosis specialist near you www.endo-resolved.com/endometriosis_specialist.html
YES! THIS! I've just recently learned about endo... but I've been struggling with my health a lot more recently and in the past 3 years I've been to several emergency rooms and that's exactly what I say once I've left. I feel they just treated me as a drug addict searching for a high..
yup. I have HOOKWORM in NEW ENGLAND (got it in Virginia!) and spent .20 minutes explaining that I have NEVER USED IV DRUGS! Still was not believed got the in-between the fingers and toes exam!
I had severe endometriosis, the worst my doctor sashes ever seen. Had surgery. Any education on this is fabulous
I had it, and each time I would be in so much pain..feeling like I would pass out. And then I had fibroids that was as small as grapes but grew as huge as a grapefruit. My periods were heavy. I had two school children to take care of. I eventually had to have hystetectomy...my doctor said I would feel better...and sure did. Three caesareans and a hysterectomy...hysterectomy was the most painful. But we women have high pain thresholds. We get over it and go on with our tasks.
And Thanks again for the extremely helpful info. It shows amazing empathy and respect for what we go through. It's calming to feel informed
Thanks for posting the video. I got diagnosed with endometriosis about a year ago, and it is not fun to live with. What might help is to stay calm and be careful with moving around. PMS sweets might help with nausea, as well as ginger, and Gatorade. Gatorade is also good for when you're feeling dizzy
I take domperidone ,an antiemetic medication
I would like to share my period story. My period went from no pain problems at all to severe all of a sudden. I had it so bad, that the pain was not really the issue, BUT HOW MY WHOLE BODY FELT. I felt dizzy, like barfing but I didn't, my body started sweating like crazy, lower back pains, even severe leg pain, all happening from no pain to severe really fast, me having to change positions from sitting up to lying down to relieve some pain, me non stop moving twisting and writhing my body quickly, me kicking and flailing my arms like crazy, me literally screaming, having to lie down in a public bathroom, to becoming extremely tired not even able to lift my head all of a sudden and drooping it while walking to quickly lay down, and suddenly getting hot, and then taking two ibuprofins and it all going away. My period pain comes in a huge tsunami wave crashes, and then goes away as it only happens on the first day and then no pains at all for the rest of the days. It last a very short time, maybe 30 minutes max. I was about to pass out backwards at my work and then couldn't take it anymore. Do you have any advice Doc? My case seems rather strange because the pain is not severe in my ovaries but my body DRAMATICALLY REACTS LIKE ITS GOING THROUGH THE END OF THE WORLD. I even told my love to call an ambulance because I FELT LIKE DYING NOT FROM THE PAIN BUT FROM THE MIX OF SUDDEN TERRIBLE DIZZY FAST REACTIONS! Death was what I thought was going to happen. Imagine being swung around like crazy in a twister. That's the vague haze of a feeling I got. Just a whirlwind of everything not limiting pain to my ovaries but changing my body like crazy. Any advice please? Thanks.
Harumi: Thanks so much for sharing your story. Women need to hear that they are not alone. I am sorry to hear of your suffering, but glad that you had the courage to tell your story on our platform. We recently did a video on 'passing out during your period'.
ua-cam.com/video/exIhoDSqNU4/v-deo.html
You will likely need a second opinion with a specialist near you
www.endo-resolved.com/endometriosis_specialist.html
Omg same here. I always hide in the bathroom when I have it so don’t look like a drama queen in-front of all the people who don’t know what it feels like being in that amount of pain. I can’t even stand straight but I hate being seen in that state so I try to act like I am not feeling anything when my abdomen is literally burning and my stomach feels like it’s going upside down like literally upset down. And I feel an urgent gag reflex even if I haven’t eaten or smelled anything. I remember going to school and forgetting to take my pills an hour before the intense pain and I ended up missing my class spending about 2 hrs in the bathroom and I was stuck in the bathroom because I couldn’t drive myself home nor walk to the garage. I always pray that it happens on weekends or after work or school. This period makes me dysfunctional is all I can say.
@@aishaa1210 Thanks so much for sharing your story. The goal of our channel is for women to share their experience and empower other women to understand they are not alone. To support each other and seek the best available treatments.
You just described EXACTLY what happens to me. Mine all happens only on the first day as well, but it lasts longer than 30 minutes unfortunately. I am only 22 and it makes me fearful of having endometriosis. I do believe though that majority of the bodily symptoms like passing out, fear of death, nausea are due to panic attacks I get from the extreme pain. The first time that it happened to me I didn’t consider it being a panic attack, but ever since I’ve been trying to not let my mind spiral out of control and I’ve been trying to take pain meds starting the day before I am supposed to get my period. Alternating Tylenol and Aleeve is what works best for me. Hope you feel better!
@@lonaceccherini1543 I am in a similar boat. Today was the first day of my period and felt like I was having labor contractions. Moaning and groaning because of the pain. I get warm and almost in a panic state. Vomit, leg pain, back aches, etc. Doesn’t happen all the time. I’m 18 and this has happened around 5 times in my life. Sometimes my period doesn’t even make me cramp or some over the counter meds cure me. Then all of a sudden I’m dying on the floor
Today I am 12 weeks post op from having robotic laparoscopic hysterectomy from being diagnosed with adenomyosis! I’m feel great and am so happy to not have the pain anymore. I suffered for way too long before being listened to... a new gyn listened to me and sent me for an mri.. the rest is history!
Thank you for sharing your story. Two important concepts here- robotic surgery provides great outcomes, and getting a second opinion!. Thanks for posting!
I’m so happy for you! I’ve been fighting since age 15 and I’m 45 years old. I have lots of stories now that might help me access help
My pains have always been unbearable so I know I definitely have always had endometriosis
I had a total hysterectomy at the age of 35. I had a miscarriage and no kids. Best decision ever due to the amount of pain.
My periods have become more and more painful, I have a high pain tolerance, but now I am using a heating pad for this period which is supposed to start soon, it's like my pelvic area is getting stabbed over and over, especially the uterus.
Alana: thanks for your comments, a heating pad is an essential period survivor item for many women with endometriosis. please stay tuned for our 'natural remedy' segment next week.
I liked the way you explained this❤️
Keva: Thanks for supporting our channel. Please share this video
Looks like i dont have it, but my pain is still so bad i can’t imagine how these women are living…
I get treated so badly during my period due to being in so much pain, I literally fear my period every month. People think I’m crazy but my cramps nothing works, I take all cold shower then all hot showers, it helps a little.
I to this day get denied that I don’t have endometriosis just based of ultra sounds that they can’t find any cysts or growing tissue around my uterus. Yet I have all these symptoms since I was 9/10 years old. I’m 21 and still get gaslight by doctors who tell me “let’s not label you with endometriosis just yet” even after all my history of going to the ER each month due to my pain being so bad that no pain medication helps. I would be sent home from school each month because I couldn’t bear the pain. I’d get sent home from work all the time because I just couldn’t bear the pain any longer. It hurts to go to the bathroom where I’m like shaking. I’ve passed out before from the pain and from the process of even needing to go to the bathroom because I’m constipated or have severe diarrhea. Being bloated hurts so bad and literally can’t eat because I’m nauseous all the time. I bleed 🩸 so much on my period too. I have insomnia. Yet when I bring all this up to all my doctors I’ve seen, they all tell me it’s in my head or that “hey I’m lucky because when I have kids the pain of labor will feel like a breeze”. Like what!! Even when I’m not on my period I’m in pain and in discomfort. Back pain is always there. I get cramps here and there when I’m not on my period and get bloated too. Bathroom problems too. I can’t sleep or get a good night sleep. I’m mentally exhausted all the time yet I have to put up a smile 😊 and just live my life. I’m at a stump. Please help. I’m in such a desperate state because no one believes me that I’m in pain. Everyone thinks I’m over exaggerating and I’m so tired on having to explain to people that I’m in severe pain. Like I’m not doing this for fun. It feels like I’m going crazy
Thank you for sharing your story. It is very important for women with endometriosis to hear and understand that they are not alone. It is an embarrassment to physicians that you have had such unempathetic treatment. These doctors responses are appalling. Sadly some doctors don’t have the ability to treat endometriosis and dismiss their patient’s complaints. Women’s health in general (and endometriosis specifically) do not get the attention and support desperately needed. Medical training should be improved to include diagnosis and treatment of endometriosis. Fortunately there is hope. You can seek a specialist near you.
www.endo-resolved.com/endometriosis_specialist.html
You need to go to a good treatment center that is specialised in Endometriosis. They are up to date on knowledge and will take you seriously.
I’m so glad I found this video! I just started having all these symptoms & was terrified glad to see I’m not alone or dying 😂
@highland Homes: you are certainly not alone. We are thrilled you are not dying!
After ovulation it's show time 😭😭😭 . Back pain , cramps, painful urination. First day of my period is the worst 😭. I even think of having a baby just to get 9 months break.
CM: thanks for sharing. Pregnancy hormones levels are very high and actually do suppress endometriosis. Many women can get similar relief with continuous birth control pill suppression (meaning pills with no 'off week'. discard the 4th row of placebo pills and skip the period).
Every time I get my period it always hurts the most the first day. I get intense cramps I start to shiver and sweat and I end up throwing up. I’ve told my doctor about this and she says it’s normal. I went to the hospital and they said it was normal. The second time I went to the hospital I did a urine test and they said it was an infection. They gave me pills that were too much for me and it didn’t help I was pale and fatigued every time and it turned out that they misdiagnosed me and to stop takin the pills. At this point i’ve lost hope in what is happening but my boyfriend is being supportive about this and helping me.
How does a man know what a woman has to go through with awful periods? There's not enough studies done on women. They can't find endometriosis unless they go inside your stomach. CT scans will not find it. Ultarsounds will not find it. Believe me I know...!! I went for years having it and even effect my colon too. In 2002 a doctor was supposed to take out my right ovary, my right fallopian tube, 6 or 7 inches of my colon, and my appendix. Over time I was having a period 3 weeks out of each month and I was having trouble having a bm. I hurt so bad. Finally, 2008 I go for my yearly check up again, but I went to a different doctor. He does a another ultrasound 🙄. Tells me everything looks fine. Two weeks later my right side is hurting so bad. I worked all week like this, but I finally couldn't stand it any longer so I went to the ER. They did a CT scan. They came in the room and told me, " you have a big tumor around your right ovary ". 😳 I said, " I DO NOT HAVE A RIGHT OVARY "!! WHAT ARE YOU TALKING ABOUT?!!! You could have heard a pin drop. None of the doctors or nurses said a word. They ended up keeping me in the hospital and doing a hysterectomy. My OGBYN comes in after the surgery and told me , " that was a mess...!!" You had to of had endometriosis ever since you were a teenager. He said, I don't know how you even had children. Plus I had a piece of my colon setting on top of my stomach and it was injured. They had to fix that and put it back in place. I also had another injury to my colon that was in my lower left side. They said they fixed that too, but I still hurt in my left side. My thyroid went crazy too. The doctor told my husband I could cancel my appointment with the gastrologist, because they fixed my colon. No they didn't. 🙄 I went into the hospital weighing 130 pounds. In one week... I lost down to 98lbs. I'm 5.10in.tall , so I really looked like a walking skeleton. My left side kept hurting me. I went back to the doctor and all they kept telling me was well... it just takes time to heal. I ended having to quit my job because of this hell I was in. I haven't been well ever since all this started. The surgeries started when I was in my 30's and 40's. Now I'm in my 50's and my life is ruined. I had a heart attack this past March. I didn't ask to have endometriosis or thyroid problems, but these doctors I have now always look at me like I've done something wrong and it's not right ...!! There needs to be more studies done on women so we don't have to suffer. Plus they need to have a medication that will stop the minstrel cramps that is so bad. Something that's not so addictive, but will help this kind of pain. Also, don't let doctors talk you into taking those dang antidepressants either. 4 pills like to have killed me. That's all it took to ruin my heart. I don't give a crap what doctors say that is exactly what ruined my heart!!! They don't listen to their patients and that why they don't learn anything. It's not a cookie cutter fix for everyone, but they should listen to thier patients and that would help.
Let me sum it up for you. Endometriosis pain occurs 24/7, is not relieved by pain relievers, and causes intercourse to hurt like hell. Period pain is a dull pain that occurs during your period and is usually relieved by pain relievers. The only thing that ever relieved endo pain for me was laser surgery and menopause.
The pain I have without a pain killer is TERRIBLE. But once I take a OTC I’m fine
It's great that you've found some relief with over-the-counter painkillers, but it's also essential to address the underlying cause of your pain. Endometriosis can be a complex condition, and while painkillers may help manage symptoms temporarily, they may not treat the root cause.
I appreciate your video seeing that you are a Urogynecologist! I went to a Urogynecologist once and the doctor said she was unable to help me since she only focused on “urologic” troubles despite the fact that I have both Urologic problems plus everything else in between 😔 I’ve had to take more time off from work as the years have passed, but thankfully my current employer is very understanding. I have my diagnostic laparoscopy this month to see if I do have Endo or what is going on Lol. Have a good day! Awesome content you have here 🙂
Mochy: Thanks for watching and subscribing. There is a wide range of expertise within each area of subspecialty. You may have to interview your providers to determine who is the right fit for you. Good luck!
I had severe endometriosis that ended qith a complete hysterectomy in my early 30s. My periods lasted 7 days in my teens. 9-10 days in my 20s, and my first laparscopy with cauterization. By my thirties, I was having bleeding for a month, difficultyburinating and defecating. I slept with a heating pad. The ruptured cysts would cause me to curl in the fetal position. I went through it with nothing more than motrin. Chronic pain was my life.
I'm truly sorry to hear about the immense pain and suffering you endured due to severe endometriosis. Your journey highlights the significant challenges many individuals face with this condition. It's courageous of you to share your story, and your experience can help raise awareness about the importance of early diagnosis and appropriate treatment. I hope you are now finding relief and comfort after your hysterectomy.
@@DoctorRich Thank you. Yes, I was immediately relieved of the chronic pain. I could easily urinate, among other things. The endometriosis had my bladder actually conne tex to the pelvic wall amo g other things. However, losing my ovaries sent me into an intense menopause. My thyroid enlarged into a goiter, and I gained a lot of weight. I do hope that a cure is found for women in the near future. Living without pain and constant bleeding is wonderful.
I had absolutely horrible period cramps even starting two years before my actual periods even started. I remember being in absolutely unbearable pain while at school in those two years and when the school bus got to my stop I would burst into tears as soon as my feet hit my driveway! I would have to run a hot bath or lay with a heating pad on my stomach. I ended up having an endometrial ablation at age 40 and I was also told I was Perimenopausal. I’m 55 now and having menopause has been more misery. I’ve had severe hot flashes for many years and I grown facial hair so badly that I feel like I’m turning into a man! My daughter is 30 now and has suffered severe tummy issues most of her life and then has to deal with horrific period pain as well but can’t do the hot baths or heating pad because it get her tummy issues kicked up plus she’s extremely anemic but taking iron also reacts badly with her stomach issues so the periods put a double whammy on her 😏
I am grateful my partner doesn’t make me feel bad about the pain. It only started a few yrs ago, and I get what feels like the flu. It’s a nightmare.
It's truly challenging when dealing with the symptoms of endometriosis, and having a supportive partner can make a significant difference. It's wonderful that your partner doesn't make you feel bad about the pain.
I'm literally crying from 3 until now😭😭😭😭😭😭 I'm tired of this pain
Thank you for sharing. There is hope! There is a specialist near you.
www.endo-resolved.com/endometriosis_specialist.html
Also severe headaches and extreme leg pain
Endo is horrible. Some of the worst pain I’ve ever felt. I have since been diagnosed with other conditions that cause plenty of pain. But I’d say the endometriosis, when uncontrolled is the worst out of all of them. Even when it is controlled it can still be excruciating. But at least I’m not vomiting and crying
(Edit) wait damage can happen from sleeping on a heating pad…. I have EDS and my hips dislocate all the time so I often sleep on a heating pad on my hips…. I didn’t know that it could cause damage 💀
I wish doctors and society took this more seriously. All other pelvic/GI disorders are treated so seriously and people are given so much care. Yet this is one of the most common chronic illnesses.....
I have ovarian cysts and I’m pretty sure I have endometriosis too but I see my doctor in a few days
I neve really had bad cramps with periods until recently. A couple months ago, I completely skipped two months and almost close to the third month of no period, didn't think much of it since years ago, I would get my period every four months. And now I was getting cramps every once in a while, and it hurt. It went on to feeling the cramping everyday.
Went to the doctor, he said it could be hormones, thyroid, cyst in the ovaries and another one I can't remember. Period eventually came, but the cramps were a bit more painful than they ever were.
It's really good to know all this you mentioned, something to keep in mind and keep a look out for.
I have all the symptoms but since I'm disabled all doctors I've seen told it's not endometriosis, I'm lieing , start laughing at me. 😢
They start belittling me saying you don't know what you have .
I’m 65 now and I know that I had endometriosis. I had the worst pain on the first day of my period every month. If I had my period at scho, I had to check out - no questions asked because I would have to lie on the bathroom floor and grind out the pain. Midol extra strength would ease it off after a while. I was never able to have children. I remember thinking that I could never have a baby if it hurt worse than my period. I thought I’d die.
I’ve had cramps so bad I’ve thrown up before and even passed out before. The first time I had cramps I was having ovulation cramping. I had no idea what was happening and ended up in the hospital with suspected appendicitis. My mom has been diagnosed with endometriosis and PCOS, she had to have a full hysterectomy in her 30s. I haven’t been diagnosed yet but I VERY likely have them both too. I however was diagnosed with Premenstrual Disphoric Disorder (PMDD) which adds a whole other level of issues…
I get paid so bad I almost called 911 for myself, I would throw up twice on the first day of my periods if I didn’t have pain killers…I can’t stand up straight, it’s like I get physically sick. Ibuprofen doesn’t work for me or Tylenol & etc I need extra strength or Aleve or something stronger than over the counter medicine & I stay in the bathroom for hours. I use to have a job where I self scheduled and wouldn’t work on my periods. I have a heating pad now & birth control control helps a lot now
I have dysmenorrhea. There are a few times where I get really bad cramps that I can't eat anything and I throw up. I can only drink water to stay hydrated. I also have trouble sleeping because of how bad the pain is. When I would have those cramps, I would describe the pain as an 11-12. Thankfully my menstrual cramps haven't been that bad lately. I take a certain amount of mg of Ibuprofen prescribed to me by my doctor and it works wonders. It really helps with the pain. I also started drinking Royal English Breakfast tea and it helps soothe the cramps and get rid of them.
So true about the pain reliever. I’ve had many people offer midol, Tylenol, aspirin, Ibuprofen any over the counter pain relief crap. And it never touched that pain. It’s like offering a woman in labor some Tylenol. Like that 💩 ain’t gon do nothing.
The only thing that helps with Endo pain is HEAT. Heating pads were my best friends, and HOT baths.
If you want to know what endo feels like have a baby with no epidural it’s is the same thing. That transition stage! The part that makes you throw up.
Everyone wondered how I handled my labor pain so well without the epidural. Well, I had practice. 😂😂
With diet and supplementing I found a lot of relief! But having a baby was what really helped me more than anything I believe.
9 months of a break from ovulating and the thickening of the wall and all the tissue that grows. It really can give your body time to heal.
My son is 3 years old and i haven’t had one of those debilitating periods since before I got pregnant.
All though I have noticed more cramping as the years have gone by I don’t think that I’ll ever have it as bad as I used since I focused on decreasing my inflammation through diet and supplements.
Kaitlyn: Thank you for watching and sharing your story! This is a great point. It should also be noted that the hormonal milieu during pregnancy and breast feeding actually suppress endometriosis. Eventually this suppression can wear off and the need for heat therapy and other remedies any return.
What supplements did you use
Worst pain other than labor pain but then again I didn’t pass out with labor pain but did with this.
Recently turned 22 and was diagnosed earlier this year in January all I was told when I asked what I could do to help was to take birth control but that does not help me I take pain medication it helps slightly but I still have a lot of pain in my stomach/back ….I went back to tell my gynecologist to tell her and all she told me was my body is just changing and that it’s in my head ….I am just tired of trying to explain to people why I can’t hang out or why I missed work
i passed out cold from cramps and when i went to the doctor i told her i wanted to fix the problem and not just numb it with birth control and then she literally went 🤷♀️and prescribed me prozac
I only sometimes experience painful cramps but when i do it's so bad i almost passed out from the pain once
It doesn’t happen all the time, but occasionally, I have such bad pain that I have heat flashes, and a headache. I can’t stay still and have to move constantly to find a position where the pain stops for even a few seconds. It only lasts about an hour but I usually pass out from the pain and then it goes away. I haven’t had it more than once in a cycle and it doesn’t happen every cycle. But when it does, It hurts so bad
Ohh same i was looking for this comment
u didnt mention where the pain is, is it ur abdomen or legs?
@@abdulqureshi5851 it happens i’m my abdomen
I had horrible cramps years ago where I threw up than I felt better. I had cramps this summer a lot disturbed my sleep because they were painful. I don’t have endometriosis just normal cramps i took Tylenol and the cramps went away I tried to use a heating pad but it wasn’t hot enough and I was trying to lay down so that didn’t work. When i have cramps I can still go to work it just hurts.
I’ve had severe endometriosis and I got checked back then and they told me I had two cysts on both my ovaries they told me to come back and I didn’t years went by and man I was at work the pain was unbearable I couldn’t even do my job I took pain killers and it didn’t even work I was still in pain I guess whenever I got my period the cysts would become inflamed and no matter how in pain I was people didn’t believe me then in. 2018 I got that surgery and I felt somewhat better they took both of the cysts out and the doctor told me they weren’t going to touch my ovaries but that was a lie they had to take out one of my ovaries and I was mad so now I do still have pain but every time I explain it to somebody it makes me look like I’m crazy cuz they don’t understand the type of pain I’m in and it honestly sucks having one ovary i just hope I can still have kids I just wish I got information about this sooner but nobody talks about this even the doctors like please educate yourselves on this cuz it’s no joke especially the unbearable pain 😢
I’ve got very painful periods too , to the point where I feel like throwing up and can’t breathe well or sleep the whole night.
I have endometriosis and i love this video it everything i could ask for to explain what i go threw
Thank you so much for your kind words! I'm glad to hear that my video resonated with you and helped explain your experience with endometriosis.
I wish I had known all these facts when I was young. I didn't find out that I had endometriosis until I had a hysterectomy. I had vomiting and severe pain with every period. I also had ovarian cysts and very irregular cycles. I thought I was just strange because I didn't know anyone else with those symptoms.
Thanks. I have had so much pain with my periods. Plus I have had multiple miscarriages. Have always had migraines so bad. I can’t function. Going to go to my regular care giver asap.
My endometriosis pain is not even related to my periods. Its just random. But of course it gets more intense as my periods approach.
Periods can hurt-bad. Endometreosis is BIRTH. Which is excruciating. I've had regular cramps, labor, and endo. Endo feels like labor, and I even got contractions. If you are in excruciating, double-over, screaming ER pain, you have endo.
Its strange.... Back like 2 years ago, i used to try taking some painkillers to help me, it somehwat helped, but then i took 2 on an empty stomach and vomited, althought with that it made sense. But what dosent is the the fact that EVER SINCE THEN FOR MY FIRST DAY I VOMIT. 3-4 TIMES And my cramps dont feel that good at all. But then... After that its jsut gross blood! Im fine after a day of hell.... i seriously need to go to a gynecologist soon..
Thank u for this doc 😊
I have some of this symptoms 😢😢 and it hurts a lot
I had endometriosis finally ended up getting hysterectomy the pain was to unbearable. You didn't mention painfurl intercourse. Very important symptom.
i have extremely painful periods. I find myself taking medication every time i can. I have what i call the “period poop” which consists of me being in the toilet all day and night with the occasional puking. i constantly had to be taken out of school because i would be crying from the pain. I would be take to urgent care and the er only to be told the tests they ran would come back normal. I have gotten several tests/scans taken of me i can’t even remember the names. I would take midol, use a heating pad, and go to sleep in a fetal position. I am currently taking birth control which causes me to have a period every 3 or so months (depends on who I’m around). I am looking to seek further medical help/advice in the near future as i don’t want to continue taking birth control for the rest of my life.
I'm really sorry to hear about your painful periods and the challenges you've faced. It's crucial to consult a specialist for a thorough evaluation.
I some time cry because pain is bad not all the time but sometimes
Helpful, thank you!
I finally found my people I relate to every single comment here 😢 I finally don’t feel crazy about this and every one thinks I’m just being lazy when I call in sick to work becuase of my issue ):
I hate periods, 😖😣 all these years I have been going insane, now a days it's different, I used to have fibroids, not anymore. God has saved my life. 😖😣😖😣😖😣😖😣😖😣
thank you for sharing
I had severe debilitating menstrual cramps from the age of 14 but I do not have endometriosis. After having kids no more cramps. Now my daughters have cramps the same way. Hospitals and doctors have not helped at all. Pain medication doesn’t do much. I believe it’s an influx of hormones and until they are flushed though the system it won’t go away. I think the vomiting and diarrhea are part of the body’s way of flushing this hormone rush out. So plenty of hydration.
@marymary: Hydration is very important
My pain gets so bad it takes my breath away and I get so lightheaded. It literally feels like a cyst rupturing. I’ve tried painkillers and heating pads and they don’t work. I’ve had the laparoscopic surgery done and it didn’t really help. I get so fatigued that I literally takes the life out of me.
"Do I have endometriosis?"
Me looking at thumbnail: "Probably not, bro."
It's so good to hear people talking about endo and getting word out about it. I want to share my story in case someone might read it and it might help them. I always had really painful periods from the day I started at 12 but then as I got a little older my sisters would point out that they never had periods as bad as mine. I started feeling pains all month not just when I was on, it would get triggered by coughing, walking, and running which running eventually became impossible from the pain, to name a few as a lot of the time it doesnt need a trigger it just hurts. in middle school I started having to leave school but no one would believe me when I explained my pain. When I was 15 I got readopted and I finally got to a doctor who was kind of shocked because of my age and had to reappeal to my insurance to get my surgery covered (they didnt want to because I was so young) finally at age 16 I got my laparoscopic surgery and was diagnosed with stage 3 endometriosis, had 2 ovarian tumors removed (tested fine) and my ovary was "pulled over and fused" to the side of my uterus as well as other endometriosis adhesions and implants all over my pelvic area (was pretty grossed out when I saw the pictures) I got about 6 months of relief and was actually able to run again, I'm 24 now and still struggle horribly with it I have actually stopped working a normal job all together due to it, I have wanted to have another surgery to relieve the pain for sooo long but went years without insurance and only recently got it back so I hope I can get another surgery soon. I have learned how to cope with it better than when I was a kid but it's still hard, I refuse to take drugs in fear of addiction so it's fair to say I've gone through a few heating pads. I wouldn't wish this disease on anyone. Thank you for talking about this ❤
I should also say I was very lucky that I got a doctor who took me seriously and understood what I was going through. He was a lifesaver and advocated for me in every way I needed. Way too many women are not as lucky as I was I got my diagnosis in about a year to a year and a half of working with him, too many women are forced to go so much longer than that. So I do count my lucky stars with that.
Thank you for sharing your story. I can not express the importance of women seeking specialized care for this difficult disease. I am certain that your story will help and empower many women. Nancy's Nook is another peer phenomenal resource for women suffering from this condition.
@@DoctorRich amen to that! And oh awesome I haven't heard of Nancy's nook, thank you for telling me!
By any chance do any of you live on the east coast USA? If so what doctor d is your see?
@@VanessaGarcia-en2rv I wish I did so I could help you, I lived in Kentucky which is kind of east coast, but unfortunately probably not enough. If you happen to ever live in Kentucky my Doctor was Dr. George Veloudis in Lexington KY. He was amazing, like I said he fought my insurance and he advocated for me the entire time.
Just a few nights ago I woke up in the middle of the night like 2/3am because I was in so much pain it was starting in my uterus radiating out to both hips down my thighs and even into my knees. I was sweating and crying and nothing I did would make it go away, I took 4 ibuprofen 3 Tylenol extra strength and laid on my bed with my knees in my stomach and heating pad on my lower back on high. Eventually I fell asleep again but when I woke up in the morning I had passed a clot the size of a half dollar. I’ve had two kids with no pain meds so I’m very familiar with what birth feels like and it literally felt like I was in labor like having back labor and everything. I HATE endo.
In highschool I used to wedge a textbook against the desk and my pelvis area to try and help my cramps. Sometimes I’d be fighting back tears in class, I thought everyone’s period was just that awful until I learned that endo runs in the family.
If you already have a fibromyalgia diagnosis, good luck getting taken seriously. Especially post-covid! I’ve suspected this and PCOS for years and am finally trying to get sorted out but between waiting 2+ months for an appointments and having Drs not want to even be near you(despite masks and vaccination) you also have to wait for 3-4 secondary appointments for blood, urine, and ultrasound apointments that are weeks out from when the dr actually saw you. I am in the middle of this with weeks of abdominal and flank pain that my blood and abdominal ultrasounds coming back normal. And all of that randomly happened while i was waiting for my first OB/GYN appoint. I made that appointment for the PCOS. I’m feeling very defeated. Everything gets blamed on fibro and im sitting here feeling like i have a kidney stone…
Thanks for sharing your experience. I would definitely advise finding a provider who specializes in pelvic pain.
I’ve tried telling my doctors and gynecologist about my pain but they don’t seem to concerned and brush me off. I’m on a birth control that completely stops my period now but I’m still super sick (lightheaded and nauseous and in pain) every month… it’s a lot better now but I’m still almost unable to complete a day of work without almost passing out. I don’t like being on birth control because it messes me up in other ways like.. makes me really hungry or not hungry at all.. tired.. irritated 24/7.. but I don’t have any other choice. No one cares.
Thanks for sharing your story. It is the mission of our channel to support our subscribers with education and opportunities. Please see list of attached expert providers.
www.endo-resolved.com/endometriosis_specialist.html
Can we start including Adenomyosis please, it’s horrible to live with for years and not understand why
excellent idea for a video. ....loading....
@@DoctorRich 💕 🙏🏻
Thank you for enlightening me.
I get painful pain on the first 2 days...the next three days are ok.
I know how you feel. It may be a good idea to talk to your obgyn about your symptoms
Thank you for this video. Ever since I got IBS 2 years ago at the age of 18, and started eating fodmap (can only eat 4 dishes) I’ve experienced extreme problems with period pain 2 weeks before getting the period. Before this my symptoms were to vomit from the pain one time per month, and not be able to exercise as hard one or two weeks before, but now it has reached a whole new level..
My whole life has been paused, got kicked out from my cheerleading team, from my part time job, I’ve gone from getting good grades to failing my classes because I’m so TIRED, can’t concentrate, and fear getting kicked out of university.
I have dreams, and my life had potential.
I’ve visited soo many doctors, gynecologist, and even nutritions, but not getting any help. Do you have any suggestions about the 2 weeks pre period pain?
Sparkling: for patient with premenstrual pain, many patient get benefit from heating pads. otherwise you may need to find a surgical expert in your region.
www.endo-resolved.com/endometriosis_specialist.html
@@DoctorRich thanks, have made a endometriosis test, and they’re saying I don’t have it. Can birth controll pills help for premenstrual pain, or would it make it worse?
@@sparkling6557 yes I’m on the pill. I only have periods 4 times a year . I don’t take it just for cramps, mainly because they’re heavy and to reduce depressive symptoms. For cramps I used to take 800 mg motrin a few days before my period. Helped made the pain manageable. My pediatrician taught me that trick.
@@sparkling6557 hello, how are you doing now? And have the doctors found out what's causing your condition? :(
My partner is pretty knowledgeable and she makes sure I'm healthy and safe, so I know if it's a problem. Usually I don't have cramps but when I do a hot towel and some Midol helps