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- Опубліковано 26 кві 2024
- This update was filmed on Saturday, the 27th of April, 2024 in Perth, Western Australia.
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Paul.
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I0 - 11 hrs of sleep is a sign that your body needs that rest to recover from the surgery and fight the cancer. Not a sign your body is shutting down. The tears you want not to cry tell me that something in you longs strongly for healing and living.
Sending lots of love from Switzerland!
Beautiful comment.
💯
NOT a sign your body is shutting down, Paul.
I disagree with this. Oversleeping is a sign of illness, I have had cancer a decade ago.
@@alex_canton Yes, even healthy young people sleeps 10-11 hours.
I am 43 year medical professional now retired & doing caregiving...
My opinion for what ever worth is the 2 small tumors would be in NO WAY the ordeal of your last HUGE surgery... Being they know exactly where they are there could even be done via laparoscopic & a MUCH Smaller ordeal..
Please Paul Don't cash in your chips until you've got no cards in your deck to play with...
I will keep your Beautiful Heart & Soul in My PRAYERS for CLEAR decisions, Peace &Comfort in making the correct decision...
You are LOVED by many & we all respect what You exactly feel your choice will be...
Hugs & Blessings Dear Friends.🙏❤️💙🤗✝️
Get well soon Ricky & Semi 🙏💖💙🤗✝️
Agree,...if the intestinal tumors are tiny , Doctor should confirm whether they are slow or fast growing n schedule appreciate removal,... what should be more concerning is if tumors are present in the lungs that would cause normal flow of air, any procedure to prolong life should be encouraged as a cure could be found within a month and get rolled out following couple of months to alleviate suffering of a great number of cancer patients across the world....!!
thanks for giving Paul this perspective on the difference with the surgeries.
My grandfather had tumors in his small intestines' kill him and what I witnessed with that progression of seeing someone having their bowels slowly block up was the worst to see out of several of my family members I've seen die of cancer. He went through hell even with all the pain killers. Different ways to die from cancer but this one certainly didn't seem to be the best.
Hi once again dearest brother. It's me again from Norco, Calif. I just want to say my ex-husband whomever never divorced spiritually nor mentally, remained best friends. He was diagnosed in Jan. 2021 with Widespread Osseous Metastatic Prostate Cancer along with CKD in left kidney & his gleason score was a whopping 9. Its a long story. He was always my hero and my superman. 1st he had hormonal treatments that stopped working, then after forced retirement, he began chemotherapy once every week of August - Jan 2022. Then in May 2023 daily had to have pelvic radiation & I became his caregiver. Lot of things between Chemo & Radiation. It was aggressive to say the least! We were in & out of the ER so much! He eventually had to have the double nephrostomy tubes in June 2023 & same day he went directly to ICU for about 2 weeks then in a Nursing & Rehab Ctr. back home then back to ER dept. In August, his Oncologist & Urologist said no more can be done, no more treatment. He decided to go into Home Hospice Care and he was treated lovingly, wonderfully & with respect & dignity. He rested and sat at the feet of Jesus on Friday, 10/06/23. He would have been 66 on 10/17/23. In Sept. he made the choice to donate his body to "Science Care Body Donation" in hopes that more help would be found so men would not have to endure all the ways he did. "There is no greater love than for a man to give his life for another brother". He was..and will always be MY SUPERMAN! Paul you may want to think, or maybe consider Science Care Body Donation instead of Euthanasia ❤❤😢
@elainefunes4294 So sorry to hear of your loss, Elaine & you are wonderful for helping in every way you could...
I live in your neighboring city... Corona, California & lived in Norco for 7 years before moving to Corona...
Hugs & Blessings of Peace & Comfort in your loss 🙏❤️🤗✝️
Thanks so much for your kind and compassionate thoughts. They are so healing and well received this morning. You have a sweet heart. I lived in Corona before coming here (smile) You have the most beautiful day!
Hello Paul. I am in Sydney but a relo in Qld who had bowel cancer chose VAD. On the Saturday she was happy and well enough to go shopping with her daughter, on Sunday she fell gravely ill, and on the Monday she died naturally at home. There was no time for the VAD as her decline was swift, but her knowledge that she could use VAD when she decided she had had enough made her journey easier for her. You have nothing to lose by keeping your options open. The surgery, on the other hand, is a little more complicated. It doesn't sound as though it would be nearly as invasive as your previous surgery, but we are not living your reality. Only you can make the right choice for you.
That’s true and the next surgery might be able to be done by keyhole. 🤞🏻
No experience with VAD, but this teacher from California is rooting for you, whatever you decide. ❤
Your comment is exactly what I was about to type so I will just cosign with your well-written words.
You are faced with hard choices, Paul. I can offer sympathy but no advice. To tell you the truth, your situation informs my own thinking. It's something all old people face eventually. If you live long enough end of life issues must certainly be grappled with. I am weaker now than I was last year, my memory lapses embarass me, I do silly things like get my doctor appointments mixed up. I'm aware m that my thought processes are slower. I just need help and that's hard to admit for someone who used to be staunchly independent. I have recurrent dreams in which I'm given a task I know how to complete and yet I don't get it right. So old folks, if I'm any kind of example, face diminishing capacity, fatigue, various pains and physical dysfunctions, it's inevitable. We just wear out like an old car that begins to nickel and dime you to the point that it's useful life is obviously over.
But our loved ones, they hang onto you. They don't want to let go. Memories of past events and the strength you muster when they are with you makes them want to believe you will last forever.
So, Paul, though your decisions are hard and sad, we all make some kind of accommodation with death at some point if we are fortunate enough to have lived long enough. From what I have read, many people who have signed up for voluntary euthanasia never make the final decision to end their lives. They love living enough to put up with pain just one more day...and they begin to slip away before they can actually say, "That's enough." Others are cognizant and are unwilling to deal with pain beyond a certain level. So whatever your choice ends up being, those who stick by you and watch you regularly hope you stick around and might encourage you for our own reasons. We enjoy your company, even just in short bursts on video. But we also respect your decisions too.
We can't help you make a life or death decision. You are doing the Paulish thing. You seek information, cry, delay a bit, then decide and rethink your decision, and seek more information. All very intellectual and emotional at the same time. Consider your hand held by all of your You Tube devotees as you go through this painful process. We will keep watching and hand holding and respecting. And while I'm writing this I'm preparing to chart my blood pressure. It was high when I went to the doctor and they asked me to do this three times daily for three days.
Best wishes, Paul.
Well said
Hello from Pennsylvania USA. I have been watching you for about a year. I just want to say you are cared about and loved. I have had 10 back surgeries and have a lot of pain daily. There are days it’s unbearable. I can relate to what you say but please remember this. ALL of us and I am sure some here have been in great health and passed away unexpectedly from a medical emergency or accident etc. NONE OF US are promised tomorrow. PLEASE brother do not give up. Keep pushing and fighting. You are truly loved. I promise. I have read most of your followers comments and I see it and Im sure you do too. I know it’s difficult I get that but just because you may have more cancer later doesn’t mean you still cant have years of life ahead. We may have never met in person but just know one thing PLEASE, You! Are LOVED!!!! Keep your head up my friend and if we can do anything just ask!
I second this from Montana in the states❤
@AirForceFamily ..I too am from Pennsylvania and I could not have said it better. I’m in debilitating pain every day but not giving up. Paul is an amazing person and I hope he doesn’t give up either. Prayers for you as well.
@@sandyaw3057 Thank You Sandy! Prayers for you as well from Lancaster PA! Stay Strong keep the faith! When you’re having a bad day remember tomorrow is a new day!
There is a lot of love coming your way......also from York, Pennsylvania.
Don't give up Paul. You've been through so much, and you've been an inspiration for many. Whatever decision you choose, I hope you find peace.
i think he's going down do. Can i see a scenario where he lives 10+ years. I can. We need a lot of focused praying and medicine advance tho. Lets make this happen tho
he's got to be a MAN for once tho. No moaning bs.
You look good Paul, though you must be aching from fear & worry. I wish for you to feel some strength and the gift to enjoy things you love in life for as long as you want. You help me to appreciate what's small and glorious. I treasure your clear vision &
loving personality Paul. Best from San Diego, or Sandy Getto as some call it. 🤗❤
I recently spent 5+ weeks in hospital for surgery related to cancer. On discharge, the doctor told me to expect some PTSD. I thought she was joking…but it’s real!
Yep. You and me both. And Caroline too.
If someone didn't have PTSD after such life altering drama I think it would be odd. I have only watched others have their bodies surgically altered and it gives me PTSD.
@@lynj-c9153 thank you
How are you coping? For my sins, I’m a psychologist and breast cancer survivor I have to avoid triggers and keep my mind busy. If my mind brings up ‘operations’ I sing Don’t Worry, Be Happy in my head. Works for me! 😂
PS. I only came here because I’m concerned about Paul. Going for a long walk now. Walking in the woods helps me too.
❤❤❤❤ Paul you are an incredible man, and I think your openness and honesty is great, I want to shout out to Caroline as well, I think she is your rock and I feel you both have a lovely friendship, thinking of you, as a nurse living in Britain (vad not legal here) I feel many people here would avail of this as they know the road ahead that is not what they feel they want or need to endure, and having worked in the community with palliative care teams I feel this is an individual choice but one that may be the right option for some people, I feel no matter what you decide your whole community will want what you need to do for you, having said that I personally would be sad, as you have a lovely speaking voice and I learn a lot from you, I do hope things can improve somewhat for you, but I realise this is a tiring and arduous journey especially with pain all the time, look after yourself and say hi to Caroline as well, it must be hard for her to see you in pain hugs ❤❤❤❤
Hey Paul. We are right behind you and will be your care team whatever decision you make. I feel like I have to say though that I for one, and undoubtedly countless others feel the same, would love to support you through further treatment. The longer the world has you in it, with sufficient QOL of course, the better for all of us.
i think he's going down do. Can i see a scenario where he lives 10+ years. I can. We need a lot of focused praying and medicine advance tho. Lets make this happen tho
Something that has stuck with me in a medical class. Is the day we are born. We all have a terminal end. We will die one day. When you wake up make it a great day. Never guaranteed the next.
Paul i have had the operation 3 times over the last 13 years i am now 71 years old my score was 36 when i was diagnosed and had to fight hard to get the surgery i needed you still have a long way to go with your recovery. All i will say you have more to live for than to die for just think of all the people round you who love you and need you. If i needed surgery again i would have it in a hart beat i have all the complications you have and it is hard at times but you will learn to live with them. Just think long and hard before you make your decision. Terry from England
What an inspiring post. Thanks, Terence, be well!
I don't have anything say other than I feel your struggle. These conversations are impossibly difficult.
I immediately thought your long sleeps sounded very positive! Sleeping long and well is associated with longevity and recovery. Your body is busy at a cellular level while you sleep. I would sleep as long as you comfortably can and really, it’s your body living, not dying.😀
Just last month he was complaining that he was only sleeping 3 hours a night. I would think sleeping is like you said healing. His emotions are all over the place. I think he needs to speak with someone to help his thoughts. It's one thing to be real about cancer and it's another to stay focused on each day. I'm not going through any of this. I'm just a outsider looking in. I would say sleeping is a good thing. His body has been through so much.
@@deborahmannino3775 I’ve been reading and seeing a lot about the crucial importance of sleep for a while now and it seems everyone should get around 8 hours whether you think you’re ok on 6 or less, or not. Our bodies go into a cycle of renewing cells at the 7-8 hour mark and too little sleep is implicated in many illnesses and deteriorating conditions, from Alzheimer’s to cancer to depression. If you’re sleeping well for 8+ hours, have faith your body is doing curative, regenerative things!!
My Chinese practitioner told me sleep as much as you need, it's your body healing.
Paul I am more than happy to pay for your flight to and from Sydney if you need it. You need to get this Pet scan way earlier. You should be able to call around and get one next week without issue. Although VAD sounds like a viable option remember you will leave a lot of sad people behind like Caroline and all of us and I believe you have a positive effect on too many lives to leave this early. I believe you still have it in you to give it once last try. I had nh lymphoma Stage 4 cancer as I have said on many of your videos when I was 17, now 29. Please don't give up.
Greetings Paul from an American residing in Canada!
My dear friend chose to end her suffering with MAID in 2022.
She had been diagnosed with her stage 4 cancer in early 2018 and was given 6 months to a year.
I believe her original diagnosis was osteosarcoma in her spine.
She decided to discontinue her treatment in 2021 because she felt though it was extending her time, the quality was decreasing.
Fast forward to early 2022, she began declining and was in constant pain to the point of being bedridden.
She decided to proceed with MAID in June 2022.
I spoke with her the night before and she was both at peace with her decision but also felt guilty.
She thought she was failing her family and friends for not continuing to fight.
I think she was so incredibly brave and strong for making that decision.
She was surrounded and loved by her daughters as she went.
I believe her choosing MAID was her taking back the control that the cancer had over her.
I miss her dearly though I hope she is now at peace as I know she was struggling so much to be alive.
I think you are very brave and deserve the right to die with dignity.
Please take care Paul ❤
Thank you for writing to me CarGirl. I have much to think about. I have lost control of so many aspects of my life due to this cancer. Whilst I am not committing to VAD at this point, it is a good thought to know that via VAD I could have control of at least that one thing: my final moments of life. I'd be able to have all my loved ones in the room with me. I'd be able to hold Caroline's hand while I passed. I'd be able to visualise seeing my mother and father again. That does sound a whole lot better than dying on an operating table, or in agony on the ground, or even unexpectedly one night in my sleep. Much to think about....
There is resarch going on in the UK in relation to three areas. One is the effect certain cabinols have on cancer cells. The second is looking into a blood tests that can find cancer cells before they become tumours, and the final one is looking at vaccinations that could prevent the most common cancers, so prostate cancer, melanoma, digestive cancers - pancreatic, stomach, intestinal and colon as well as lung cancers. Early stages, but maybe in the future, nobody will have to get cancer anymore.
Don’t lose your heart, Paul! We’re all thinking about you! ❤
Paul you have had a major major surgery. Most major surgery takes at least a year or so to really heal. Yes your body is needing those long rests. And only you can know what you want in a quality of life and the upcoming appts will help you make those decisions. I 🙏for you in making decisions about all of this. ❤
I agree with Sherry. I had 40% of my liver removed 18 months ago. Thankfully the tumor in the bile duct was benign, but that couldn’t be determined until it was removed. I slept for 10-12 hours a night for months afterward and only recently has my energy returned to presurgery levels. I honestly wondered if I would ever regain my strength since I had always been an energetic person. Our bodies do require a lot of time and rest to heal.
We love you, Paul and are here for you. ❤️
PS - I’m 58 years old.
Well said, both of you! Paul's body and mind have been through hell. The sleeping is well warranted and necessary. 🤍🙏🕊
Paul it sounds like your body is just still in healing mode which is why you are sleeping more than normal and you have been more active lately than the last couple of months or longer. I think you really have to make the decision if you want to live longer or you are ready to go. I know if you have the surgery there are no guarantees but if you don't and there are more tumors you know that if you do nothing they will eventually kill you. I feel like as emotional as you get from the first time you learned you have cancer makes me feel like you really want to live. You might just have to give up some quality of life for a few years to have a longer life overall. I follow a girl, Heather ( Kneady Homesteader) who was in a terrible wreck 3+ years ago that killed her husband and did some terrible damage to her body. As of yesterday she finally got teeth implanted and is almost back to normal and has remarried. Life may still hold a lot of promise for you if you have the will to fight. I pray for you often and hope that you find the peace you are looking for and of course we will all follow you no matter what road you take. Prayers, hugs and love from the US.
I don’t think Heather remarried. She said she is still learning to get through the grief. She loved her husband to much to remarry so soon after the accident!
@@SusanDavis-mt3qeHeather did remarry. She has a video on it. It is not titled as such but the ending shows she has remarried to a man she has known and been friends with for years and who has helped her and her children to heal.
Well written! My sentiments as well. Great advice.......I pray for you as well PAUL. I KNOW YOU ARE NOTsuoer religious, but I do believe God is holding you in his care and is loving you....
P.S. Paul, never live like you're already gone while you are still here.....always choose life. Don't give up because you're body is tired. You need a little more rest. Listen to that little whisper from your body. I am half Sims from my Mom and Lowers from my Dad. I have considered assisted death. But I'm a fighter so we never know until then. But I'm filling my mind with life. Please do the same. Alot of research isn't always good for us. Love you!
Paul, Tiffany thinks, has gone through two lots of surgeries and she is so far now cancer free. Don’t give up the fight. If she can You can do it, so can you. Let them take them cancers out. Your surgery won’t be no where near as bad as the first. Go for it..👍❤️👍
I agree get it out, the first operation was huge. I’m sure this won’t be, you will know. It’s all about the recovery time. Paul I’ve been following you for a long time….keep on fighting. You’re an amazing person with just an amazing personality. Don’t give up ❤
She’s cancer free? That’s wonderful news! I haven’t kept up with her journey but I’m so happy she’s doing well.
@@TheRunningLeopard She's not cancer free. She's still stage 4 but NED.
@@latonyamarie Hey, I still call that a hopeful outcome.
@latonyamarie what is NED?
Hello Paul, I heard your request for some anecdotes about VAD. A few months ago, my mother requested VAD for an acute condition that was fatal ( it took 15 days). The VAD co-ordinator was very helpful. By the time the VAD Doctor was on shift, my mother was too drowsy from a morphine pump to give consent. However, the DR said that she made a good choice to refuse surgery to treat a large subdural bleed, which contributed to her death along with other chronic illnesses that contributed to her frailty. We are in regional QLD. We felt very supported during our interactiions with VAD team. Whatever choice you make, you will be listened to and supported by your team at Fiona Stanley Hospital. There is often too much talk about curing the illness but not much about the quality of life. Thank you for bringing to focus on a discussion of quality vs quantity.
Thanks for getting in touch Wendy. My interactions with the VAD team so far have been very easy and supportive. I'm glad it is like that in QLD too. It sounds like your mother passed relatively pain-free, which is a blessing. I have much to think about.... Paul.
i think he's going down do. Can i see a scenario where he lives 10+ years. I can. We need a lot of focused praying and medicine advance tho. Lets make this happen tho
@@PaulinPerth In Hospital, my mother told us many times that she was very happy and did not have pain. I believe that she had a good death and I saw that she was relaxed and at peace and she gently slipped away. So for those who loved her, it was a real source of comfort that she had a good death. It helped so much with the grief. Paul thank you for creating your channel to examine the hardest things to talk about. This is a gift to the world.
All I can say is that here in California, USA, you are heard and so cherished and respected. Wishing you every single kindness, light, love.
Both my mother in law and my best friend went the death with dignity approach. In California, it's fairly easy to make that decision without too much hassle. Both experiences were amazing as a caregiver. Both deaths were peaceful and both patients were unafraid and felt in control. Definitely a good experience.
I think we would all love for you to be here longer and will be supporting you the best we can.
Paul, i do have PTSD. I have dealt with my pancreas and bowels for decades. Last surgery, 2 years ago, my appendix was turning to gel beginnings of cancer. I hemorrhaged from that surgery. I've had sooo many. I'm here for you cheering you on. Love and hugs from the USA❤
As so many people have already said, the extra rest is to help your body heal and recover. I hope you choose to live. You are sharing your story and are an inspiration to others. Your story is not over. Keep telling it.
Good morning Paul from NJ, USA! LOVE your t-shirt! I remember how very difficult it was for you to go through that big surgery last fall. It was heartbreaking to see the videos. You know your body and I think you'll know what the right decision is about the surgery. Love seeing your videos with that beautiful smile of yours. Continue to enjoy each day! Hello to sweet Caroline 😊 You are a special person and will be a special, bright star one day! Many hugs and much love to you. ❤❤❤❤❤
So I had a heart attack on Friday, December 8, 2023 and required a quadruple bypass. The surgery was scheduled for the following Monday morning and I was kept stable until then in the Cardiothoracic ICU area. During the course of my stay over that weekend one of the nurses asked how I was doing and told me not to be scared as my surgeon is one of the best in the state and has been doing this for longer than she has been alive. I told her I was not scared and sort of blurted out without care that I had a couple of out-of-body experiences many years ago and no longer feared death. She replied that was amazing and I told her some details about it, and then she said during the prior week another patient was awakened after his surgery and was excited as he was out of his body during his surgery and watching it from near the ceiling. He went into great detail about who was in the room, etc. when he should not have known anything as he was under anesthesia. I asked her if that happens a lot and she replied that it's rare but not uncommon. Needless to say, I survived my operation and was hoping for another experience like that, but it did not happen this time. I know this story may be hard to believe, but it's the truth and I hope it gives you some measure of comfort.
Hi Paul, I’m in the USA and I live in a state that has dying with dignity. I, too, have cancer, (chronic myeloid leukemia) and if the time comes I’ve had enough I plan to choose DWD. And I would do it confidently because my uncle had the same cancer as me and chose DWD. He took the medicine mix, talked with the family and said his goodbyes. 10 min later he was asleep. It looked like a very natural “falling asleep”. By 20 min he was in a coma and he passed peacefully and was able to give himself and we, his family, the chance to actually have real goodbyes. You have my support, obviously. It sucks so badly that we’re faced with this but at least we have control. Cancer hasn’t taken everything!
You're really strong. Thinking of you and praying for your peace and happiness. Much love.
Hi Paul thinking of you .lots of love Ireland 🇮🇪 ❤️
Love you Paul..Please have faith and be strong. My heart aches for you and lots of prayer for you. Hope you will live a long healthy life in this beautiful earth with your loving UA-cam family.
My brother had renal cancer that spread and after 5 1/2 years of surgeries and trial treatments he chose MAID. He had been in hospital for a couple weeks and he opted to not have enough morphine to make the pain go away. He did not want to be a shell of himself, he wanted to be awake and alert. It was during Covid, so only 4 people could be with him, his wife, son, daughter and our sister. They said he went peacefully and that is all we can ask for ❤❤❤
Oh wow. That's really interesting. He wanted to experience death with full lucidity. I respect that. Thank you for sharing. I feel privileged to hear it. Paul.
@@PaulinPerth❤️. We need the perspective of others!
🙏❤️✝️
Yes, before the pain became unbearable and needed the extreme doses of morphine, he went on his terms. Miss him everyday and respect his choice for dignity and not putting his family through the last phase…. ❤️
It's a choice only you can make, thats an awful choice. You are a very positive and strong person. Sending prayers 🙏🏻🙏🏻🙏🏻
Sleep is how our body heals itself. Many don’t understand the importance of it. Sleep heals and also gives the body a timeout from stress and worry. I am a nurse and I spent 11 years caring for my husband and during that time I was involved in getting dying with dignity legal in California. Unfortunately my husband was not mentally capable of making that decision so he did not qualify. I feel very strongly that it is imperative that terminally ill patients have that option. That being said, you have fought and been through a lot. If you have the strength to fight some more follow up with the doctors in Sydney and let the experts help you with your decision. You are cared for by so many and you have the support and prayers of all those people behind you. You are not alone.
Hi Paul, I am a Palliative Care Nurse, I have been involved in several VAD deaths, each one was different, all were very peaceful, if I can help let me know xxx❤
Thank you Kerry Lee. You've already helped. Paul.
You seem brighter within yourself today Paul. It sounds like you have some options which has been positive to your mindset. If you haven’t already, I think it might be worth talking frankly to your doctor and understanding the impact of the surgery on your quality of life and the potential outcomes. Ask as many questions as you can even if it’s to inform yourself to definitely rule out the surgery with no second guessing. That’s not to say you have to go through with the surgery, but I think you should make the most informed decisions you can and weigh up your options. I’m sure you are already doing that.
Biology is so amazing, isn't it. The body can surprise us at the 11th hour in the most positive of ways, at times. I wish you the best of luck, Paul. 🩵 from Melbourne
Hi Paul. I have been following your posts and think that you are an amazing man.
My husband and I live in the state of Washington in the US and we have the equivalent of the assisted dying law. My husband was diagnosed with cholangiocarcinoma in the summer of 2020. After two combinations of chemotherapy failed he was very ill and weak. He applied for and qualified for death with dignity. His oncologist suggested trying Keytruda and it has saved his life and his quality of life is good enough for him to want to continue living. I am so happy to still have him with me. I hope that your doctors can find a way to make your life worth living. You are in my thoughts.
Special spiritual healing is being sent from my beautiful dog! Hes magic...i swear your going to be here this time next year and year after and yr after...believe Paul..woof woof ! Pit bull healing power coming thru...❤
Lol, that's adorable! Pitties are such cuddle bugs, and you are right, dogs are magic! My 18 month old GSD, Piper, sends smooches 🤍🙏🕊
@@MayimHastingspit bulls maul adults and children. They suck, as do most barking shit boxes.
Thank you for sharing Paul. We are all on a journey to end of life, just some of us haven’t seen a Stop sign yet. Let’s all hold each other’s hands and walk this through together. You are Quality and your journey matters. ❤️👍🏻🇬🇧
love INXS and that song too
I would think the PTSD is in fact real....it was a traumatic event. Thinking of you as you ponder ( lack of better word) this serious question.
❤
Despite, you do still look really good.....feel.....not so much I understand..
Paul you are a dear person. I always look forward to hearing from you. Tremendous gentle hug for you.
Thinking about you and sending you good vibes from USA. Thanks as always for sharing your story, Paul.
Gosh Paul, I hope you won't be giving up so soon. Let's see what the PET scan shows. You have so much to offer the world! The fact that your surgeon offered to operate on you again is remarkable! Don't even worry about how many hours you sleep. Your body is still recovering. You're not in an iron lung, you are not paralyzed. You can walk, talk, and breathe! Think happy thoughts, Paul. Try not to jump ahead of yourself by looking at your health in a negative way. I would not be giving up now. You're still doing great, in spite of the obstacles you have faced. You can inquire about VAD, if it makes you feel better, but wait a bit for your other test results, before totally giving up your very precious life. We all need you!!
sending you so much love!!
There are some wonderful, thoughtful comments written here. You have amazing followers who "genuinely" care and love you Paul. You are a lucky man in so many ways. Continued ❤coming from Ontario Canada.
Paul hi, I slept like that in my 20’s for months after a big foot op.
I think its your body still recovering from anaesthesia.
Thinking of you. 💕
Definitely care about you Xoxo
I know of a lady who lives in portugual. Who had brought a plot of land with her husband . They had built their home and after a year she was diagnosed with your cancer and died with in 3 to 4 months and was young like you. She had no choice to beet this but you do and specialist are wanting to help you. Noone helped her.
Yes, I watched her too. (Simple Life Portugal for those who are interested.) Her husband Dan still does videos. I watch them to support him. That was so sad. She went so quickly.
Yes she declined quickly.
How did you know she had his type of cancer? I followed her too and knew she had one huge tumor and one small tumor and the doctors there never started her on anything to help fight the cancer she had. That’s why she passed away so fast. I forget now why they didn’t start her on anything. I’ll have to watch again.
She was such an awesome lady!
@@robineast6446As I remember it, Dan said, that when the doctors told Cindy, that there was no treatment, Cindy gave up.
She was a beautiful soul, and so is Dan
She had some reproductive cancers that had spread throughout her abdomen. At least 3 or 4 big tumors. The "free" medical care was on strike so she got no treatment. Such a sweet lady.
❤🙏🏻love you
Hi there, Paul! Firstly, I think you are looking quite well! I’ve been checking in with your videos but not always commenting. My heart breaks when you start to tear up. I absolutely admire your courage and willingness to share your very-personal journey with others. I cannot imagine what it takes to make these videos but please know that you are loved and prayed for every day.
Sincerely,
Mary
It seems like a terrible waste of all that care and expertise to me. I lost mu colon tl cancer in 2009 and my uterus to cancer in 2015. The recovery from both was really tough, but I felt i owed it not just to my loved ones, but to the surgeons and nurses, plus oncology team, tonfightbin, learn to live with yhe problems I've been keft with and learn to find joy in my new normal.
When i think of what i wouid have missed out on had i just given up ( including becoming a God mother abd granndmother!(
My daiky life is still a struggle, but ive learned to cope most days ajd find joy- and on the other days i know a better day will come!
George Harrison 'All things must pass'.
Dear Paul. It's always good to consider a non operative course, and there is rarely a need to rush. Time needs to be taken so that you can make an informed decision on what suits you. It's an excellent plan to await your review with the Oncologist. VAD may be your choice in time but it's imperative that you receive appropriate medical care and support in any case. Keep calm when you can and carry on. We are all sending you much love.
Paul...just sending out love from the U.S. (Florida). I just started watching your channel. You are a brave and wonderful soul.....who in the world knows why we each have a particular destiny in this short journey on earth, but -one way or the other - we all share how finite our time will be. Wishing you peace and all of the best with making such difficult decisions. Know you have touched the heart of another person on this planet. Yolanda
Hi Paul from Perth
I am a perkins from the UK 🇬🇧 Great name ❤
watching cancer stories after recently being diagnosed with appendix cancer.
Prayers for you ❤❤
We are family. Love, Paul.
What a blessing that you can sleep for so many hours. Sleep is very healing.
I’m praying and I think about you. 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏♥️
Paul I’ve been watching you since you started on here. You’ve been through so much. I’m so sorry you’re going through so much pain. Sending so much love and hugs to you, lots of prayers! ❤😊❤
My darling brother chose VAD because of an inoperable tumour right next to his trachea. While the tumour was still dormant, the certainty of having the VAD option truly contributed to his peace of mind. Then when the tumour caused him too much respiratory distress day-to-day, my brother chose to go in peace.. The sadness will never leave us but we thank Heaven that this was possible for him. This was so right
Warm thoughts to you Paul. Where there's life there's hope
Thank you for sharing Marleen. Paul.
Paul, I see a lot of my dad in you.
My dad is currently fighting stage 4 esophageal cancer since his diagnosis in August of 2023. He did rounds of chemo and radiation, which really took a toll on his body. He also finds it hard to get up in the day, and his feet and his eyes make it difficult for him to get through the day and have a quality of life. This disease has forced everything from him, he had to sell his business, vehicles, everything...it's taken quite the mental toll on him, as you can imagine.
With all of that said, I do want to say I really appreciate you sharing your story. I'm not certain how often if that's said or if it's said enough. Thank you. I have been following along since...CU50 or so. Thank you so much for sharing your story and I'm sending love, care, and well wishes. Of course, I hit the care button. :)
Wishing your dad much better times and All the best❣️
I know just how hard cancer hits those close to the person with cancer. It's such an invasive illness.
Stay Strong❣️
Thank you Tanner. Please send my best wishes to your father. Paul.
Paul you are an amazing person positive thoughts coming from Chris in Clontarf!
You’re in my thoughts and prayers sending gentle hugs from Michigan 🇺🇸
Stage 4 cancer survivor here Paul. I met Michael Hutchence in a bar in the late 80's, he was happy to have a chat. Great guy. Good you mate.
hey Paul, from Florida hey hey hey!!
I have not sighed up for VAD but would in a heartbeat....I care so much for you Paul. Be sure to tell Ricky hello too. I just lost 2 friends of pancreatic cancer. I love ya Paul and oh, my seat belt straps are lose and I always think how you taught me what to do. How would you know Paul, you didn't catch it late, its like pancreatic few symptoms. I love you Paul....❤❤❤
Where there is life, there is also hope. Please don't stop fighting, there are developments in cancer threatment all the time. I'm sure you asked the Professor but if not "if he was in your position, would he have this operation?" I don't think this operation would have been offered if he didn't think it could offer you more hope. Thinking of you - stay strong and don't give up x
INXS - great band. Very cool shirt.
Big Love to you Paulie. Whatever you decide, we are all right with you ~ that is just my feeling. Stay open ~ and vulnerable ~ and adorable ~ and always be Paul from Perth. I think you should decide what gives you peace. Not necessarily what some law thinks about the end of life. Peace brother.
Hi Paul good to see you, I'm telling you I am so sorry this awful cancer just will not go away! Praying for you Paul!! Breaks my heart you talk about dieing, praying for things to change for you!! Again good to see you Paul! 💙
Hi Paul, from Long Island, New York. I've been following you since about a month into your cancer diagnosis because I was also diagnosed with pseudomyxoma peritonei after a suddenly ordered hysterectomy. I had a giant tumor and the mucin was discovered once they were inside. I had a good recovery from that surgery 5 months ago, and now I'm a month post op from hipec. This one is a much different recovery - what a struggle. The fatigue is completely debilitating! I guess I wanted to get all that off my chest, as the PTSD is real for me too.
I TOO, LIKE OTHERS, see your sleeping as a big sign of healing and recovery. So much repair happens when we sleep, it's terrific that your body lets that happen. I'm so sad that your QOL is so impaired, but to me it seems pretty evident that you long to heal and get better and keep living. I'm thinking happy thoughts for you here in NY and love all your videos. Thank you.
Wishing you healing, strength and many good times in your life💐
@@piaogilvie8463 Thank you!
Paul, good to see you as always! There’s nothing wrong with exploring all your options. Sleeping long hours is one way our bodies heal, rest, and recover. But you know your body better than any of us. Big hugs from the USA.
We will be with you no matter what you decide and the journey you decide to take. Love from Cornwall, UK.
Hey Paul,
Lots of love. Think about it that two very specific accurate surgeries in the intestine is WAY simpler and easier than what you had before.
Also, have you considered that you have a deep depression that is leading to your current thoughts of end of life?
Worth considering all points!
My dad has neuropathy from a chemo treatment. Hes had it for 5 years now I think. He used to obsess on it like you until he went to a psychiatrist that treated his depression. His neuropathy has not gone away but his brain obsessing over it every minute has.
Lots of love mate
Hi Sadar, yes, I think my depression does influence my decision making on this topic. I have a friend in my circle that is very strong-willed, and she is willing to do absolutely anything to carry on living. Mind you, the girl I am thinking of is much younger than me. I think the challenge for her is that she might find herself having traded quality of life for quantity of life. But perhaps she will mentally process that as a win.
Anyway, yes, I think my depression is influencing how I feel about euthanasia. I can't change who I am. I'm on a large amount of anti-depressants now. I like to think that the meds are taking irrational dark thoughts out of the picture. Hopefully what I am left with are the rational difficult thoughts.
I'm lucky in that I have Caroline as my sounding board. I promise you that she doesn't hesitate to tell me if I am ever being irrational.
I suspect that the reality of my depression means that I tend to more strongly favour quality of life over quantity of life, because I need it to be good more than I need it to be long.
Thank for making me stop to think about that.
Paul.
I'm relieved to know, that you're on anti depressants, Paul.
I have PTSD and the psychiatrist I used to see told me once, with a warm smile, that there was no use for me to talk about what I used to be able to do, or how my life used to be.
The new normal for me was, that I had PTSD, and learning to live with it, would serve me much better.
I got a little angry and asked, if that meant, that if I'd lost a leg, could I not think about the time, when I had both my legs.
Doc replied:"You can think about it, but it won't help you now".
And he was right. My new normal, I've learned to live with. It's taken time, anti depressants and mind work.
Life's not like it used to be before PTSD, but it certainly has its great moments❣️
Shared with you, Paul, with a warm smile❤
@@PaulinPerthWhen I was diagnosed with systemic lupus I was very ill for quite some time and found it very difficult emotionally in the beginning - the loss of self as I had known myself up to that point, the sheer unknown - but think the "known" parts were more scary, not recognising myself in the mirror, very frightening feeling like my body was disintegrating, the pain and the many treatments and tablets that I hated - trying to get on with life best as one can, with the background worry that everything could take a worse turn at any time. Being single with 2 small kiddos and very little support. Medical
PTSD is definitely a thing. Have some familiarity with VAD in a few contexts but not my own self. So glad that WA legislated to have that "fail safe" available.
Big hugs from France, we are all here for you. Whatever you decide, we’ll be behind you 🥰
You are looking surprisingly well Paul. We definitely care very much for you as you face this time of your life with dignity and courage. I think it’s a good idea to sign up to VAD that is my intention when/ if my lung cancer returns.
Love you, Paul. If you do choose to come to Sydney, I'll come see you. Kogarah isn't very far from Glebe.
If I was dying of something painful or gradually getting more debilitated, I'd go with VAD. But only if I'm positive that there's no chance of surviving it.
NSW has it, which is weirdly comforting.
I still hope you beat this, Paul. The world would be a lesser place without people like you.
I'm not religious, but I'm spiritual. And I do believe that death is not the end. There's too much evidence. ❤
A must see Paul
Nothing wrong with covering your options. This is about you and it's good that you can talk freely without criticism. ❤
Paul I'm sending prayers your way from upstate New York. USA. We love you and support whatever you decide. Love to you and Caroline.! ❤😀
sending love from germany. I feel like your mind and body is strong. You will do it.
🙏 ❤️ 🙏
For You
Always & Forever
Sending you love from the UK ❤
Hi Paul good to hear from you again. Keep us updated on how things are. Love from the UK.
You are such a great speaker, I understand your train of thoughts and wish you well take care ❤
Hi Paul lovely to see you … oh yes definitely medical pdsd is real … my first cancer journey was awful and kinda had triggers but when it came back and had bigger op chemo radiation I’m suffering from pdsd and you’ve been to hell and back … totally your decision what you do I would never judge just support…. But have you thought the operation would be much smaller than the other …. Have to say I understand the fatigue totally…. It’s so frustrating… I can sleep at least 12 hrs and then I still feel sooo tired I’m hoping it’s my body trying to heal plus my targeted therapy drugs …. Sending ❤strength hope you’ve done so well Paul truly amazing thank you for sharing Claire uk 🇬🇧
You are such a lovely good person ❤❤❤ we do care so much. I totally understand & support your decision. Hugsss
Nice to see you Paul, I know how it is for you, keep going and keep strong ❤Xx
Keep positive.
Thinking of you Paul It’s a big decision I have no experience with cancer but follow you and learn from you All I can say is wait til the cat scan as you said it may have spread extensively I think you are an exceptional person and know in your heart what to do I feel if it hasn’t spread significantly Go for the operation That’s my thoughts There are others with lived experience who can help you more Your in my thoughts ❤
Thinking of you here in Rochester NY USA.
Good to see you again mate im praying for you and hoping you pull through this!
Hope you are doing ok 💞🙏🏻. I am now on Hospice and they are so kind and caring , doctor said Can't do anything more for me cancer spread from my pancreas to my lungs 🙏🏻🙏🏻.I have over Thirty small tumors in both lungs. Biopsy said definitely from pancres cancer. I will.stilp keep you in prayer 🙏🏻🙏🏻. God Bless. 💞
Hi Nancy, rest up my friend. Look out for me on the other side. We can hug there. Paul.
Paul, you are an amazing man. I am praying for you and sending healing prayers for you 🙏🙏🙏🙏🙏
great Paul, I have always followed you, brave man, hug from Milan Italy
I was sleeping 6 hours a night, now the change of season I'm sleeping more like 8. So your healing and the time of year together could equal more sleep. The body uses sleep for repair.
Hi Paul, i just saw your videos tonight. Only just met you but you have that kind, caring, beautiful, empathetic presence about you that you probably dont realize yourself. I know only too well the journey your going through but please dont give up on yourself too soon. You can see from the comments that people really do care and do understand your pain and yes want to reach in and give you a hug. I do xxxx
Sometimes it’s easier not to have options 😢 Watching you go through the surgery broke my heart but the what if’s would be even more heartbreaking. Here for you no matter what! You are loved Paul ❤
Hey, Paul. I have recently (in the last three weeks) had a very up-close and personal experience with someone who accessed VAD in NSW. I was not the direct carer for this person, but was one of the witnesses along the way, including the very end. I was involved in many parts of the process.
I would be happy to talk to you about what I saw and experienced, and how it was for the patient (from my perspective).
I'm not sure what the legal differences in the VAD process might be between states, but I would be more than happy to talk to you about how it goes over here.
@@PaulinPerth Message sent. Check your junk 🫣
Hi Paul, Melinda from Melinda, thinking and praying for you...ive experienced a miracle and you will too!
My dad died in a hospice, this is where he spent his last seven days - it was the best decision ever. He died peacefully and with dignity. He had pancreatic cancer.
Paul you are an amazing man! Sending love & light to you and Caroline Jx