A Year in the Life with Autism: Day 66 work!

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  • Опубліковано 15 жов 2024
  • When we have nothing left mentally and physically and have no idea what's wrong with Kreed...we get to work. We check meds that could cause irritation, and we put him to work. We keep his mind active and don't let him just lay or just demand things all day. Instead of laying outside, we keep him busy with new games. We argue on his device. If he wants pizza, he has to help make it.
    It was a long, long day. The good news is he went to sleep last night and so far has had the best sleep in weeks. We shall see how he wakes up.
    When we have nothing left, we just keep going and moving.

КОМЕНТАРІ • 55

  • @huntjoewat
    @huntjoewat 7 років тому +6

    Love you Kreed! I miss seeing these videos. RIP amazing guy.

  • @MsAjd1978
    @MsAjd1978 8 років тому +4

    Remembering you beautiful boy. Watching you happy in your films is a great comfort. You had so many happy fun times that you shared with us all.
    I can wait for my #nolimits t-shirt to arrive so I can wear it for you.
    Swing on heavens swing forever dude xxxxx

    • @sarahmccluske5708
      @sarahmccluske5708 8 років тому

      now they are selling wrist bands i have my no limits tshirt on i wear it with pride

  • @fever_spike
    @fever_spike 5 років тому +3

    I don’t recall ever having heard him that vocal before in a video...it’s adorable.

  • @ericcameron3
    @ericcameron3 8 років тому +3

    I hope kreed is feeling better real soon. Yoy guys are on my prayer list for sure

  • @koketsunakoton7421
    @koketsunakoton7421 8 років тому +4

    You're such a great mother.

  • @stevegibson2255
    @stevegibson2255 7 років тому +1

    Such a lovable guy - despite his setbacks there is no doubt what so ever he had a true fighting spirit

  • @ryanje8147
    @ryanje8147 7 років тому +4

    I know it is probably annoying to the mother by now but that noise he makes is so cute.

  • @brittfaced4699
    @brittfaced4699 8 років тому +6

    Thank you so much for making these videos. Kreed was rocking it!! :)
    My son is autistic and I am fascinated to see how other autism families live. ❤️

    • @MelB868
      @MelB868 7 років тому

      I teach a little boy in Sunday school that is autistic. He is a sweet kid.

  • @aislingf3561
    @aislingf3561 8 років тому +4

    Nice Kreed looks like your having fun, it looks nice where you live. Enjoy your day :)

  • @pennyclarke
    @pennyclarke 8 років тому +3

    your the best mum i have ever seen you never get cross repeated your comments to see he understands you clear that is so good for kreed .lovely boy how old is kreed.I had learning problems and still can,t do forms.my mother promise i would get my home when she died she told me I get the deeds too..i never got them my mothers new husband never cared for me .so he sighed the deeds over to him self and sold my home.were I ended up nearly on the streets in the end i became a sitting tenant.I no my mother she would not do this to me but I have lost I am still very upset about it.I am glad kreed has a loving mum because mine did explian any changes to me like you do to kreed.

  • @Zumbagirl517
    @Zumbagirl517 7 років тому +3

    He's so handsome! Look how calm he is! What is the activity he's doing?

  • @Nugglashine
    @Nugglashine 6 років тому +1

    I praise you for not blaming vaccines like some people on youtube. it is completely asinine that they promote their garbage. autism just happens and blaming vaccines will not help people who have autism, we have to look in the right spots to determine what causes it and how it can be treated in a more effective manner.

  • @ad61766
    @ad61766 8 років тому +11

    I think he means he wants pizza made by a place and not handmade. which is why he keeps saying "this is decaf"

    • @KidsWithGuns1992
      @KidsWithGuns1992 8 років тому +4

      Dude I thought so too wasn't too sure if I was wrong, but just commented the same thing. I reckon she'd know better for sure, but possible this got overlooked? I dunno.

    • @MelB868
      @MelB868 7 років тому +1

      Oh okay I was confused

    • @nonexistent-best-friend1693
      @nonexistent-best-friend1693 7 років тому +1

      When I didn't have a word I'd pick another word that made sense to me based on association I sign and write or use text to speech now

    • @ritajimmie3361
      @ritajimmie3361 5 років тому +2

      Yes you are right. He is so darn smart.

  • @kittylady6946
    @kittylady6946 8 років тому +11

    When he asked for his DynaVox I knew he was going to ask about 5 Guys. Lol! Rip Kreeders.

  • @Nugglashine
    @Nugglashine 6 років тому +1

    i wonder how kreed is doing these days? I hope he is doing well. so interesting to see this behavior and documenting it will help understand this condition in the future hopefully.

  • @LillyautumnLilly
    @LillyautumnLilly 8 років тому +7

    He is such a great kid. Love the view. Your a great mom.

  • @musicisdabest671
    @musicisdabest671 8 років тому +7

    lol he was quite hungry wasn't he 😅☺

  • @gameprdcers1382
    @gameprdcers1382 8 років тому +2

    He is so nice

  • @KidsWithGuns1992
    @KidsWithGuns1992 8 років тому +3

    Obviously I don't really know but I wonder if he was saying he wanted pizza, but meant take out pizza, because the home made pizza tasted different or something and he couldn't figure out how else to express it?
    I dunno, possibly looking too far into it, but it really appeared as if he seemed to be thinking about what to say before he said it on the device. Do you know if he can differentiate between take out pizza and home made?

    • @kittylady6946
      @kittylady6946 8 років тому +1

      They were just doing the best they can. He's food obsessed and often asks for 5 Guys while they are at 5 Guys. She can't just order pizza all the time. I'm sure she understands his needs. 💓

    • @patricklmchenry3478
      @patricklmchenry3478 8 років тому

      go through and may concern is strictly prohibited except where the other day of this message and the other day of this message and the other day of this message and the other day of this message and the new York NY and I am so I am so I am so I am so I am going well I can be in this email is not be in this email is not be in this

    • @patricklmchenry3478
      @patricklmchenry3478 8 років тому

      Oklahoma

    • @katherinedupoise4604
      @katherinedupoise4604 6 років тому +2

      Well, I noticed when she showed the picture of Kreed making the pizza I saw the ingredients in the photo were almost always to always gluten free. Some people say that being on the spectrum can make you allergic to gluten and so they have their Autistic kids go on a gluten and/or lactose free diet to improve behaviors. So maybe that’s why she makes the pizza for him herself. She never mentions him going gluten free but I guess she makes him. But, “I’d like pizza,” “Oh, what do you have there? Oh, that looks so yummy!” No, hun bun, it does NOT look yummy at all. I wouldn’t eat it. Especially since I’m very finicky about how the sauce is on my pizza.

  • @katherinedupoise4604
    @katherinedupoise4604 6 років тому +2

    So I’d like to know why they just make it now rather than ordering it?

    • @Hosidius
      @Hosidius 6 років тому +2

      Katherine Dupoise gluten maybe, because the ingredients were gluten free. Rip Kreed, watching these videos make me happy sometimes

  • @charlottemacdonald6008
    @charlottemacdonald6008 3 роки тому +1

    Kreed loves food as a reinforcer because he loves popcorn other favorite food is animal crackers he is nonverbal if he chooses
    A favorite activity is bowling and hobby is wii bowling my friends loved wii they played it at school and kreed loves to go shopping
    His favorite store is Walmart or target and his favorite pet store is petsmart he yells he fights his mother had get him back in the car
    To drag him into the parking lot kreed is a young man when he can come in every day he gets his music therapy then in the morning he feeds the dogs
    She can Put him back into the backyard.

  • @michellewilliamsau
    @michellewilliamsau 7 років тому +1

    Questions did kreed go to high school on certain days of the week Erin?

  • @1stwastheword
    @1stwastheword 8 років тому +1

    Does he stay home full-time now ?
    Is there a daytime facility for adults in your community ?
    You mentioned medication • has that been a big help to you*all ?
    I have 3 children on the spectrum …
    a 16 year-old daughter with Asperger’s
    a 10 year-old non-verbal son that’s having major issues this year
    my youngest son is turning 9 soon …
    & he’s starting some echolalia type speech …
    we also have a foster son that’s just turning 3 …
    he’s typical but has a slight speech delay.
    Your son is definitely communicating with you & reaching-out.
    Our middle son refuses to use his speech device.
    He used to play with his IPad but not at-all anymore.
    He doesn’t watch TV anymore either.
    He wants to spend all day outside playing with water.
    We just started using medication for him.
    The nighttime medication has really been helping …
    but the 1st daytime medication made his self-injurious behavior go off-the-charts - he’s only on the sleeping medication now.
    Are you planning-on keeping him home indefinitely ?
    I had my middle son home full-time from November until about a month ago.
    He’s having a terrible time at school this year.
    We just got him into a school designating for special needs …
    & he’s still having issues.
    They’re wanting me to pick-him-up all the time.
    With the self-injurious behavior, …
    it was just proposed to us an inpatient facility not too far from our home.
    We don’t feel ready for that & are pursuing the medication route …
    with scheduled appointments with a psychiatrist MD & neurologist coming-up.
    Your videos are great for awareness of what we go through on a daily bases.
    This is the 1st one I’ve seen.
    Maybe I’ll do something similar too.
    The disability keeps us mostly isolated …
    & the world doesn’t see this very often.
    I guess more & more people are sharing Autism on UA-cam.
    вℓєѕѕιηgѕ 💕

  • @georgeeden5835
    @georgeeden5835 8 років тому +2

    What are you the two white bits on his forehead? Is it for temperature monitoring or something?

    • @KidsWithGuns1992
      @KidsWithGuns1992 8 років тому +3

      I thought that's a butterfly clip to keep stitches together, you can see his face is badly scarred from his self harm. He probably had a deeper abrasion.

  • @zootedslavin6604
    @zootedslavin6604 5 років тому +1

    he’s saying i’m mad

  • @hal899
    @hal899 8 років тому +3

    what state do you guys live in

  • @stephaniecammack2263
    @stephaniecammack2263 2 роки тому

    See you soon 🔜. Tomorrow morning 🌞.

  • @dgc61379
    @dgc61379 8 років тому +1

    I saw this one already. Why is it repeated?

    • @Kreedsvideos
      @Kreedsvideos  8 років тому +1

      +daniella cecala it was on Facebook but not youtube

    • @huntjoewat
      @huntjoewat 8 років тому

      +Kreed's World he's so big now! How tall is he?

    • @arsenalfanworldoliver9462
      @arsenalfanworldoliver9462 8 років тому

      +Kreed's World what is the app called on his device

  • @arsenalfanworldoliver9462
    @arsenalfanworldoliver9462 8 років тому +1

    I have a autism child who's get a head cold

  • @jennyanderson1763
    @jennyanderson1763 8 років тому +1

    💙

  • @makaylarhodes7442
    @makaylarhodes7442 8 років тому +3

    who ever makes fun of kreed about his autism I will hate u for life

  • @TommySchiavo
    @TommySchiavo 2 місяці тому

    Lol y'all are insane this dude was dangerous it's sad