Edit- think I just found the info I was asking for in the description box, 🤦 perhaps should have read that first, thankyou so much for sharing ladies. 🙏 I think I have MS, waiting on seeing a neurologist, unfortunately I have to wait on the NHS, I love in the N W and would absolutely love more info in the electrotherapy type thing you have done? Please Nic. I'm 38 and have been dealing with chronic pain for years and it's getting worse. Any advise either of you could give would be deeply appreciated.
I can relate to this video so much. While I don't have MS, I do have MD, which is progressive. I understand all the same challenges and emotions, the invisible illness & being judged. All of it. Sending you both love!
Shannon Graham Thank you Shannon - it really does feel good to share & not hold it all in anymore - maybe my legs will start to feel as light as my heart ❤️🤣 xx
I have drop foot, after suffering from two prolapsed discs in my spine. Unfortunately, one of the discs calcified onto my sciatic nerve, which later ended up getting slightly torn, so I have permanent nerve damage in my foot, leg and undercarriage (best word ever!) region. So, I do feel I understand what you go through a little. My life has been turned upside down, particularly as I’m single. But attitude is so very important!! I try to always keep smiling through the pain!! xxx
Lucy Jones Oh Lucy - so good to share. My right foot drops when I’ve been overdoing things - am trying to turn it around with my diet (gut health), movement (can’t call it exercise) and supplements. Positivity is crucial - not always easy I know - but you sound as if you have a great attitude! ❤️ Have you tried acupuncture for the pain? I find it incredible xx
JO GB It’s just so exciting for me to find someone who actually knows what drop foot is!!! 😂 My physio does acupuncture on me and I listen to meditations on UA-cam whilst she does it. I come away feeling like I’ve had a day at the spa... almost! I just wish I could see her more that once every couple of months. But hey ho, at least it’s something as opposed to nothing!! I’m absolutely delighted to have found your channel. xxx
This is a great video. Do you know who the Bio regulatory medicine guys is Nick mentions?? I've recently has CIS - potentially my first MS attack. Any help would be greatly appreciated.
Did either of you ever experience arthritis as a symptom of your MS? I have been diagnosed with lupus, but I’m being evaluated for MS in addition to the lupus as I have lost feeling in my right hand and have severe tingling in my arms .
Brianna Osuna ooh no - but actually I had Iritis (nasty inflammation of both eyes when I was about 27 - never given a reason and it went away (there’s a pattern here hey!) plus my eldest sister has had arthritis all her life - so autoimmune prevalent! A friend has Lupus - that seems to be on the increase too! And can really flare up (a close friend has it) ... look after you! x
Thank you for making this video! I have been looking to Nic as a bit of guide through this, since she talk about MS a lot on Instagram stories, and this was a very insightful and helpful conversation to watch! Thank you 💜
Brianna Osuna Nic is fab - she inspires me to stick to my regime & not give up xxx my MS is more obvious, but I am positive I can help bring about a more pronounced change xx wishing you well 💕🔥💕
Its interesting for me to hear how similar a lot of things about ms are to psoriatic arthritis which I have, I never knew that vitamin d levels affected people with ms and that you were offered the same cancer medications people with psoriasis or psoriatic arthritis are offered
People with autoimmune disorders nearly always have low levels of vitamin D. They need higher levels. All connected to the gut and malabsorption of the vitamin. I have psoriasis and recently diagnosed with Hashimoto Thyroiditis.I had my vitamin D levels tested and despite living in a very sunny country had very low levels.
Charlene Gibson I know ...There seems to be so much that is connected ... it’s just not helpful enough to stem one’s demise with drugs than seek out a possible cause or trigger. I may regret it in the end ... but then I know I just won’t, it’s MY choice in how I cope with the disease, and I feel so different when I eat cleanly & reduce my stressors. Keep well xx thank you for watching & sharing your thoughts
@@JOGBLiving I feel like everyone makes the decision right for them and their bodies, iv been on conventional medicine and I was curious if I cut that out and switched to supplements and dietary changes if it would help my body. I feel like id like to give myself a few months of conventional medicine so that im making a decision based on prior knowledge, if the cons outweigh the pros id like to swap to a more natural route of treatment. Unfortunately nearly all doctors in hospitals dont see other more natural options as one that actually works x
I have fought MS for nearly 50 years and for 12 years lived with the words of a GP telling me that I can die any day.
Aw Jo, you are so precious. Thank you for sharing your experience with MS, you will help so many people.
Edit- think I just found the info I was asking for in the description box, 🤦 perhaps should have read that first, thankyou so much for sharing ladies. 🙏
I think I have MS, waiting on seeing a neurologist, unfortunately I have to wait on the NHS, I love in the N W and would absolutely love more info in the electrotherapy type thing you have done? Please Nic. I'm 38 and have been dealing with chronic pain for years and it's getting worse. Any advise either of you could give would be deeply appreciated.
I can relate to this video so much. While I don't have MS, I do have MD, which is progressive. I understand all the same challenges and emotions, the invisible illness & being judged. All of it. Sending you both love!
Shannon Graham Thank you Shannon - it really does feel good to share & not hold it all in anymore - maybe my legs will start to feel as light as my heart ❤️🤣 xx
I have drop foot, after suffering from two prolapsed discs in my spine. Unfortunately, one of the discs calcified onto my sciatic nerve, which later ended up getting slightly torn, so I have permanent nerve damage in my foot, leg and undercarriage (best word ever!) region. So, I do feel I understand what you go through a little. My life has been turned upside down, particularly as I’m single. But attitude is so very important!! I try to always keep smiling through the pain!! xxx
I take 900mg Gabapentin three times a day and it’s a HORRIBLE drug.
Lucy Jones Oh Lucy - so good to share. My right foot drops when I’ve been overdoing things - am trying to turn it around with my diet (gut health), movement (can’t call it exercise) and supplements. Positivity is crucial - not always easy I know - but you sound as if you have a great attitude! ❤️ Have you tried acupuncture for the pain? I find it incredible xx
JO GB It’s just so exciting for me to find someone who actually knows what drop foot is!!! 😂 My physio does acupuncture on me and I listen to meditations on UA-cam whilst she does it. I come away feeling like I’ve had a day at the spa... almost! I just wish I could see her more that once every couple of months. But hey ho, at least it’s something as opposed to nothing!! I’m absolutely delighted to have found your channel. xxx
Beautiful 💗. Sending love to you both.
Sara Krebsbach 💕💕💕 thank you Sara
This is a great video. Do you know who the Bio regulatory medicine guys is Nick mentions?? I've recently has CIS - potentially my first MS attack. Any help would be greatly appreciated.
Hiya - glad you enjoyed. Yes his name is Raj Bhachu - pricey but inspirational! uk.linkedin.com/in/raj-bhachu-41660139- I must add a link! Thank you
JOGB LIVING Thank you so much 😊
The Willett Way he’s a brilliant, lovely man - let me know how you get on x
Did either of you ever experience arthritis as a symptom of your MS? I have been diagnosed with lupus, but I’m being evaluated for MS in addition to the lupus as I have lost feeling in my right hand and have severe tingling in my arms .
I was just curious to see if you ever had “overlapping” symptoms
Brianna Osuna ooh no - but actually I had Iritis (nasty inflammation of both eyes when I was about 27 - never given a reason and it went away (there’s a pattern here hey!) plus my eldest sister has had arthritis all her life - so autoimmune prevalent! A friend has Lupus - that seems to be on the increase too! And can really flare up (a close friend has it) ... look after you! x
Brianna Osuna I also have numb fingertips due to my MS - it’s all SO individual and unpredictable isn’t it? X thank you for watching & responding xx
Thank you for making this video! I have been looking to Nic as a bit of guide through this, since she talk about MS a lot on Instagram stories, and this was a very insightful and helpful conversation to watch! Thank you 💜
Brianna Osuna Nic is fab - she inspires me to stick to my regime & not give up xxx my MS is more obvious, but I am positive I can help bring about a more pronounced change xx wishing you well 💕🔥💕
Its interesting for me to hear how similar a lot of things about ms are to psoriatic arthritis which I have, I never knew that vitamin d levels affected people with ms and that you were offered the same cancer medications people with psoriasis or psoriatic arthritis are offered
People with autoimmune disorders nearly always have low levels of vitamin D. They need higher levels. All connected to the gut and malabsorption of the vitamin. I have psoriasis and recently diagnosed with Hashimoto Thyroiditis.I had my vitamin D levels tested and despite living in a very sunny country had very low levels.
Charlene Gibson I know ...There seems to be so much that is connected ... it’s just not helpful enough to stem one’s demise with drugs than seek out a possible cause or trigger. I may regret it in the end ... but then I know I just won’t, it’s MY choice in how I cope with the disease, and I feel so different when I eat cleanly & reduce my stressors. Keep well xx thank you for watching & sharing your thoughts
Misha Woods yes - I take high D3 too, still not enough said about it! Thank you for sharing - I have thyroid issues too as well as the MS 🤪 x
@@mishawoods5392 see I know like nothing about ms and I didn't even know ms was a autoimmune disorder, im learning a lot
@@JOGBLiving I feel like everyone makes the decision right for them and their bodies, iv been on conventional medicine and I was curious if I cut that out and switched to supplements and dietary changes if it would help my body. I feel like id like to give myself a few months of conventional medicine so that im making a decision based on prior knowledge, if the cons outweigh the pros id like to swap to a more natural route of treatment. Unfortunately nearly all doctors in hospitals dont see other more natural options as one that actually works x
You are in the wrong climate, come visit!!!!! Miss you xxx
Barbara Olive oh don’t I know it!! XX love nothing more - just may never leave your side my darling ❤️