Professor David Sanders, Consultant Gastroenterologist, Royal Hallamshire Hospital, Sheffield Second National Dietetic Gastroenterology Symposium, Sheffield, May 2019
I've had IBS + Crohn's for more than 25 years . I've spent that whole time listening to Gastroenterologists . This guy in the UA-cam video is saying things I've never heard the other docs say , and they make sense . He is a free thinker not bound by medical 'pursuation' I believe , refreshing .
God bless doctors like you. Your approach deserves respect. IBS is an umbrella term and should be treated as such. It seems so obvious to follow up with the possible conditions within the IBS circle yet so few doctors are willing to do that. Thank you very much for your work and effort.
What an awesome find! I just found out I have this after years of my doctor telling me it was anxiety… I just turned 40 yesterday and I’m much more excited about the future now that I have some answers! ❤️🙏❤️
I have suffered EXTREME relentless chronic diarrhea and colitis lower intestinal pain since October 2002. My GI started me on Cholestyramine 4 weeks ago. IT IS A MIRACLE DRUG! IT STOPPED MY DIARRHEA & MY LOWER INTESTINAL PAIN!!
Yes it works like a dream doesn't it. I was quite lucky in that I was diagnosed within a matter of months of the problem starting - you had it for a long time that must have been quite life altering. Also found that eating that 3 bananas a day has great calming effect on colon.
Thank you for sharing this!😊 I had my gallbladder removed in October and 6 months later still have unpredictable diarrhea (sometimes I can eat vegetables and have no problem, sometimes have diarrhea). I told my doctor this and she just recently prescribed cholestyramine. Helpful stories like this gives me hope not to worry.😊
Taking the med Colestyramine seems to be a good indicator for having BAM. If the watery stool stops you have BAM. But it is just a band aid, it doesn't heal BAM. Wished there was an answer to that. I take Colestyramine after I diagnosed myself and doctors here didn't have a clue. Actually, what causes BAM? In my case I believe it happened after two ERCP's where a stent was inserted in the bile duct (1) and later removed (2). Of course GI doctor said that never happened. Yeah, on his watch maybe. Good luck everybody. See also post of The Ultimate Reductionist about 7 posts below.
Starting my Colestid medication tomorrow! Thank you for this video because of it I talked to my doctor about this and she prescribed me. Long time IBS-D sufferer with nothing that have helped me.
@@Recruit128Vids It's sure is! I no longer have these emergencies as I always had.. I could have gone to the toilet and after 1 hour from nowhere and no warning I had to run again. Horrible cramps etc.. I feel less tired and I have gained some weight too. No side effects at all for me. It feels like I can finally live life and not just endure it!
My doctor told me nothing about this before my gallbladder was removed in 2011. I've just now figured out what is wrong in 2019...it has been a long time suffering.
Marcia Howard same here, I am a angry because if all this has been explained I would not have had the operation. I could have simply taken bile salts. Instead I walk around looking for toilets and when am next going have an accident when am out in town.😡😡😡😡
@@cpg8000 I've been trying probiotics, collagen...things to help the gut, but I'm still suffering. Eating chia seeds seems to help more than anything else I've tried. Do you have any recommendations?
I fall into this. As a baby i was told slow bowel, then all the way till I was 20 i was told numerous times it's IBS. For years I've been given every IBS tablet, sachet, capsule and tried all the diets. At 25 i have diarrhea or loose sulphuric acid, often yellow /green stools. I get very nausious often times daily, i have fatigue, restless sleep /can't sleep quickly and migraines. I eat fruit, veg and drink 3 litres of water daily not including the hot drinks. I've tried every other diet : fad or nom fad. Yet nothing worse. I struggle to lose weight despite my norm of going 3-10+ times a day. It's horrible. No matter what I eat or drink it just goes through: could be in 30 minutes or every 2 hours. Additionally, i get excruciating abdominal pain. I have to use the disabled bathrooms because there are so many nasty people in the world who likes to ridicule you when you really need to go. It smells, it's noisy and it's not controllable. I do take anti diarrhoea tablets if i really have to when I'm out but I have to buy them myself OC. If it works it might last 6 or 8 hours and come back or if I'm lucky 1-2 days before it comes back with a vengeance. I'm waiting for an appointment with gastrology as I've been to a plethora of GPs throughout my life and they don't have any other tests to try as I've done them all but my results always come back as normal. Talking about toilet issues is hard as its taboo for some reason as many believe that they either don't poop or it smells like roses and glitters too. Most of my family have the opposite issue so I'm the only one who has this one. Hugs. It's nice to watch a video where we're not just shoved under a rug because they have no answers. 🇬🇧. Xx
I am 46 years old white Scottish female diagnosed at 19 yrs old with IBS through hospital admissions. At 39 yrs old I was diagnosed with non alcoholic fatty liver disease. At 45 I had my gall bladder removed due to being full of stones and I now have bile acid diarrhoea (undiagnosed). My oldest son was born 23 years ago with Biliary Atresia and had a liver transplant at 4.5 years old. My Aunt had primary cancer of the liver and my mum has liver sclerosis and my two sisters have fatty liver disease also and one has celiac disease. I wonder how much of this is genetics?
You need to check on Dr.Berg on utubes and there are other ones because the NHS always take the easier way out but then it's you who is left with a life long problems. It could that your family are making bile. I am so sorry that your family have been through all this 💔 😔
After 30 years I finally caved and made another appointment with a gastroenterologist. Was told IBS forever, then suddenly this doc already has done tests showing the bile acid issue and elevated inflammation. Am now awaiting biopsy results. It's a new world out there.
WONDERFUL presentation! Learned some new things I had not heard before. I was diagnosed a year ago after 10 years of confusion. Cholestipol has changed my life.
What are your symptoms? I will bring BAM up with my doctor. It’s sad they haven’t brought this up for me have seen countless doctors. 😢 have had this IBS-D for over 17 years now.
I can’t find anywhere describing the side effects of bile binders. All I see are those that say it’s a game changer for IBD but there has to be some side effects I’m afraid to even try it. I’m sensitive to all medications since I’ve had my gall bladder out. I would think you should have 0 fat intake if all the bile is absorbed.
I can’t find anywhere describing the side effects of bile binders. All I see are those that say it’s a game changer for IBD but there has to be some side effects I’m afraid to even try it. I’m sensitive to all medications since I’ve had my gall bladder out. I would think you should have 0 fat intake if all the bile is absorbed.
Identical to myself,had an colonoscopy and during the process I asked the Doctor why are you sad, he said “I can’t find anything” I replied that’s “good right?” he said yes, but my job is to find something, so they sent me on my way, so I live on a anti-diarrhoea pills, no SeHcat scan, nothing, I also suffer from gout as well so my life is hell
i had my gallbladder removed back in 2016.from that point i had diarrhea and heartburn none stop for 8 years. so is it me not producing enough stomach acid for the bile to mix with? doctor's have no clue. i just had a heart attack back in july 9 my sugar was 500. since that i been fasting and seems to help my heart burn but not my diarrhea. im on a no carb no sugar strait meat and egg diet.
In the same situation, I have very yellow fatty diarrhea, the problem is if we take bile acid sequestrants then we can absorb fat-soluble vitamins A, D, and K, WHAT TO DO???
Thank you for your help in understanding this condition, I have multiple problems with my digestion and finally after 30yrs my gastroenterologist is now looking into this as well as pancreatic insufficiency. Therefore the treatment which I will have, and hopefully a better quality of life.
I struggle with colestagel too. Causing constipation. Also not to take any other meds for 2 hrs before or two hrs after. Tried cutting down but had acid break through. I'm really miserable.
A Doctor who uses his brain and asks questions, a rare, lesser-spotted creature these days! I had this awful condition for months and months, I discovered Systemic Proteolitic Enzymes, (not Digestive Enzymes) the first dose cured the problem.
I only occasionally have watery stools and it's usually only after taking certain compounds like magnesium and vitamin C in excess, however, I did show elevated primary bile acids on the C4 stool test. I had also been taking a digestive supplement with ox bile. I did get pretty bad bouts of flatus though. Should I stop the digestive supplement and then repeat the C4 stool test before trialing a bile acid sequestrant? Also, can you still have BAM with infrequent bouts of loose stools?
I have had this for many years, its the bain of my life. Where's the nearest toilet? i have to think about this everywhere i go! If only , but would i be swapping one pill for another ie: Imodium for ? i take six to eight Imodium a day. it has ruled my life.
I had my gb removed 20 years ago and suffered with this issue and not being able to eat fat for 20 years. Would weight loss surgery, sleeve or RNY help or hinder this situation. I cant lose weight.
This was very informative! I'm goin through this as we speak.... Chronic diarrhea for 48 straight days.... Seen regular Dr, then GI specialist, and now a Colonoscpopy an endoscopy are 2 weeks away. I hope this is correct.
Good afternoon. I was prescribed welchol yesterday for bile acid diarrhea because of do gallbladder. I also have ibs d. Welchol is causing me to have nausea really bad. Does the nausea go away or is this something that i will have to deal with? Thank You for your help
After 9 years of chronic diarrhea i got an SeHCAT test and it was positive. Totally changed and saved my life! I already had a capsule with cyanide ready. I was treated by the head of the gastroenterology departement und i specifically asked if it could be BAM and he said no. Luckily my primary care doctor sent me to the SeHCAT test...
I've had IBS + Crohn's for more than 25 years .
I've spent that whole time listening to Gastroenterologists .
This guy in the UA-cam video is saying things I've never heard the other docs say , and they make sense .
He is a free thinker not bound by medical 'pursuation' I believe , refreshing .
Get checked for sibo! Most of Ibs is actually sibo friend 😊
God bless doctors like you. Your approach deserves respect. IBS is an umbrella term and should be treated as such. It seems so obvious to follow up with the possible conditions within the IBS circle yet so few doctors are willing to do that. Thank you very much for your work and effort.
🙏
Doctors in the united states are lazy and worthless
What an awesome find! I just found out I have this after years of my doctor telling me it was anxiety… I just turned 40 yesterday and I’m much more excited about the future now that I have some answers! ❤️🙏❤️
I have suffered EXTREME relentless chronic diarrhea and colitis lower intestinal pain since October 2002.
My GI started me on Cholestyramine 4 weeks ago. IT IS A MIRACLE DRUG! IT STOPPED MY DIARRHEA & MY LOWER INTESTINAL PAIN!!
Yes it works like a dream doesn't it. I was quite lucky in that I was diagnosed within a matter of months of the problem starting - you had it for a long time that must have been quite life altering. Also found that eating that 3 bananas a day has great calming effect on colon.
brat is bananas rice applesauce and toast these 4 foods calm diareha
Thank you for sharing this!😊 I had my gallbladder removed in October and 6 months later still have unpredictable diarrhea (sometimes I can eat vegetables and have no problem, sometimes have diarrhea). I told my doctor this and she just recently prescribed cholestyramine. Helpful stories like this gives me hope not to worry.😊
Taking the med Colestyramine seems to be a good indicator for having BAM. If the watery stool stops you have BAM. But it is just a band aid, it doesn't heal BAM. Wished there was an answer to that. I take Colestyramine after I diagnosed myself and doctors here didn't have a clue. Actually, what causes BAM? In my case I believe it happened after two ERCP's where a stent was inserted in the bile duct (1) and later removed (2). Of course GI doctor said that never happened. Yeah, on his watch maybe. Good luck everybody.
See also post of The Ultimate Reductionist about 7 posts below.
Starting my Colestid medication tomorrow! Thank you for this video because of it I talked to my doctor about this and she prescribed me. Long time IBS-D sufferer with nothing that have helped me.
Update! I haven’t had diarrhoea or urgency / inconsistency for over three weeks now. This medicine has really saved my life!!! I can’t believe it. 😭
@@relaxmore444 that’s great! Is it still working for you?
@@Recruit128Vids It's sure is! I no longer have these emergencies as I always had.. I could have gone to the toilet and after 1 hour from nowhere and no warning I had to run again. Horrible cramps etc.. I feel less tired and I have gained some weight too. No side effects at all for me. It feels like I can finally live life and not just endure it!
@@relaxmore444how long did it take for your meds to really kick in? I'm on day 4 and it works but not for my whole day yet!
My doctor told me nothing about this before my gallbladder was removed in 2011. I've just now figured out what is wrong in 2019...it has been a long time suffering.
Sad to hear.
Marcia Howard same here, I am a angry because if all this has been explained I would not have had the operation. I could have simply taken bile salts. Instead I walk around looking for toilets and when am next going have an accident when am out in town.😡😡😡😡
Same here!!
How are you treating it, Marcia?
@@cpg8000 I've been trying probiotics, collagen...things to help the gut, but I'm still suffering. Eating chia seeds seems to help more than anything else I've tried. Do you have any recommendations?
I fall into this. As a baby i was told slow bowel, then all the way till I was 20 i was told numerous times it's IBS. For years I've been given every IBS tablet, sachet, capsule and tried all the diets. At 25 i have diarrhea or loose sulphuric acid, often yellow /green stools. I get very nausious often times daily, i have fatigue, restless sleep /can't sleep quickly and migraines. I eat fruit, veg and drink 3 litres of water daily not including the hot drinks. I've tried every other diet : fad or nom fad. Yet nothing worse. I struggle to lose weight despite my norm of going 3-10+ times a day. It's horrible. No matter what I eat or drink it just goes through: could be in 30 minutes or every 2 hours. Additionally, i get excruciating abdominal pain. I have to use the disabled bathrooms because there are so many nasty people in the world who likes to ridicule you when you really need to go. It smells, it's noisy and it's not controllable. I do take anti diarrhoea tablets if i really have to when I'm out but I have to buy them myself OC. If it works it might last 6 or 8 hours and come back or if I'm lucky 1-2 days before it comes back with a vengeance. I'm waiting for an appointment with gastrology as I've been to a plethora of GPs throughout my life and they don't have any other tests to try as I've done them all but my results always come back as normal. Talking about toilet issues is hard as its taboo for some reason as many believe that they either don't poop or it smells like roses and glitters too. Most of my family have the opposite issue so I'm the only one who has this one. Hugs. It's nice to watch a video where we're not just shoved under a rug because they have no answers. 🇬🇧. Xx
They have known about this BAD/BAM for over 50 years but no SecHat test available in the US 🧐
So what do we do about fat soluble vitamins? Is there a natural way instead of med?
I've had this for more than 40 yrs. I've seen many gastroenterologist and they all said the same thing, IBS. Thank you for sharing your knowledge. ☺️
I am 46 years old white Scottish female diagnosed at 19 yrs old with IBS through hospital admissions. At 39 yrs old I was diagnosed with non alcoholic fatty liver disease. At 45 I had my gall bladder removed due to being full of stones and I now have bile acid diarrhoea (undiagnosed). My oldest son was born 23 years ago with Biliary Atresia and had a liver transplant at 4.5 years old. My Aunt had primary cancer of the liver and my mum has liver sclerosis and my two sisters have fatty liver disease also and one has celiac disease. I wonder how much of this is genetics?
You need to check on Dr.Berg on utubes and there are other ones because the NHS always take the easier way out but then it's you who is left with a life long problems. It could that your family are making bile. I am so sorry that your family have been through all this 💔 😔
You realize the health industry doesn’t make money off of healthy people?
After 30 years I finally caved and made another appointment with a gastroenterologist. Was told IBS forever, then suddenly this doc already has done tests showing the bile acid issue and elevated inflammation. Am now awaiting biopsy results. It's a new world out there.
Sooo, the BIG question - what's the cure?
Bile acid sequestriants
TUDCA
@@boomerang0101 Thanks! Is there a brand you'd recommend?
artichoke extract
So what do we do to fix this?
Did I miss that part ?
Excellent video but there was no mention of Diet??
Eat fermented. Sourdough bread. Kimchi. Fermented sauerkraut. Only thing that’s helped me!
WONDERFUL presentation! Learned some new things I had not heard before. I was diagnosed a year ago after 10 years of confusion. Cholestipol has changed my life.
What are your symptoms? I will bring BAM up with my doctor. It’s sad they haven’t brought this up for me have seen countless doctors. 😢 have had this IBS-D for over 17 years now.
Same for me!
Why is this video called Bile Acid Diet? There's no mention of diet.
Thank you for your feedback! We have amended the title to better reflect what is discussed.
Please advise what we should do. Most doctors seem to be in the dark about bile acid. Also colestagel can cause vitamin and mineral deficiency.
I can’t find anywhere describing the side effects of bile binders. All I see are those that say it’s a game changer for IBD but there has to be some side effects I’m afraid to even try it. I’m sensitive to all medications since I’ve had my gall bladder out. I would think you should have 0 fat intake if all the bile is absorbed.
I can’t find anywhere describing the side effects of bile binders. All I see are those that say it’s a game changer for IBD but there has to be some side effects I’m afraid to even try it. I’m sensitive to all medications since I’ve had my gall bladder out. I would think you should have 0 fat intake if all the bile is absorbed.
They don’t have to be concerned with that side of things. 🙄
Identical to myself,had an colonoscopy and during the process I asked the Doctor why are you sad, he said “I can’t find anything” I replied that’s “good right?” he said yes, but my job is to find something, so they sent me on my way, so I live on a anti-diarrhoea pills, no SeHcat scan, nothing, I also suffer from gout as well so my life is hell
i had my gallbladder removed back in 2016.from that point i had diarrhea and heartburn none stop for 8 years. so is it me not producing enough stomach acid for the bile to mix with? doctor's have no clue. i just had a heart attack back in july 9 my sugar was 500. since that i been fasting and seems to help my heart burn but not my diarrhea. im on a no carb no sugar strait meat and egg diet.
SeHCAT test not available in the US GI Dr wont discuss it - failed horribly by GI community
Does the bile acid gets absorbed through the villi in the duodenum or ileum ?
Lose weight after gallbladder removal, still diarrhea after 1.5 years.
I'm pretty sure I have Bile acid diarrhea and malabsorbtion because I donthave a gall bladder
In the same situation, I have very yellow fatty diarrhea, the problem is if we take bile acid sequestrants then we can absorb fat-soluble vitamins A, D, and K, WHAT TO DO???
So, how are you doing now? Are you taking anything?
I wish all doctor were this curious!
Thank you for your help in understanding this condition, I have multiple problems with my digestion and finally after 30yrs my gastroenterologist is now looking into this as well as pancreatic insufficiency. Therefore the treatment which I will have, and hopefully a better quality of life.
I have Colesevelam tablets but still struggle with them can anyone advice how I should take them as Dr not helping
I struggle with colestagel too. Causing constipation. Also not to take any other meds for 2 hrs before or two hrs after. Tried cutting down but had acid break through. I'm really miserable.
Hi
I so feel for you. Have been on the exact same journey. Xx
Presented with great humour and very informative 👌
A Doctor who uses his brain and asks questions, a rare, lesser-spotted creature these days! I had this awful condition for months and months, I discovered Systemic Proteolitic Enzymes, (not Digestive Enzymes) the first dose cured the problem.
I only occasionally have watery stools and it's usually only after taking certain compounds like magnesium and vitamin C in excess, however, I did show elevated primary bile acids on the C4 stool test. I had also been taking a digestive supplement with ox bile. I did get pretty bad bouts of flatus though. Should I stop the digestive supplement and then repeat the C4 stool test before trialing a bile acid sequestrant? Also, can you still have BAM with infrequent bouts of loose stools?
I’ve suffered with IBS all my life, beginning to think I’ve got this. But how do we cure it please?
I have had this for many years, its the bain of my life. Where's the nearest toilet? i have to think about this everywhere i go! If only , but would i be swapping one pill for another ie: Imodium for ? i take six to eight Imodium a day. it has ruled my life.
If you stop being lazy and gready it turns out you can diagnose and help your patients. Imagine that.
I wish my GI doc knew about this, instead they called it Crohn's and cut out my ileum.
I had my gb removed 20 years ago and suffered with this issue and not being able to eat fat for 20 years. Would weight loss surgery, sleeve or RNY help or hinder this situation. I cant lose weight.
feez benne Because your body is not absorbing all your nutrients so your body holds on to a lot of the nutrients
It would make it heaps worse dont do it my biggest regret and you put the weight back on anyway
check your blood sugar
Well that should put me off my peanut butter sandwiches.
This was very informative! I'm goin through this as we speak....
Chronic diarrhea for 48 straight days....
Seen regular Dr, then GI specialist, and now a Colonoscpopy an endoscopy are 2 weeks away. I hope this is correct.
What ended up happening
I’ve had BAD most of my life but told it was IBS The burns on skin are excruciating pain No Sehcat test available in the US
Psyllium husk everyday for life is cure. 2 spoons in morning and 1 in evening
I'm screwed both ways. I need high calcium for my brittle bones but low fat for BAM. I'm just a brittle squits factory! I can't win!
Squits or squirts ?
Good afternoon. I was prescribed welchol yesterday for bile acid diarrhea because of do gallbladder. I also have ibs d.
Welchol is causing me to have nausea really bad. Does the nausea go away or is this something that i will have to deal with? Thank You for your help
Ask the doctor to give you Cholestyramine orange flavored. It’s not bad at all and maybe easier on your stomach. It is on mine.
Don't use the Lord's name in vain!
Ohhhhuu shutttt uppppp
Agree
How can we access the test?
Please change the Title of video
Hi, we have amended the title to better reflect what is discussed. Thank you for the advice!
After 9 years of chronic diarrhea i got an SeHCAT test and it was positive. Totally changed and saved my life!
I already had a capsule with cyanide ready.
I was treated by the head of the gastroenterology departement und i specifically asked if it could be BAM and he said no. Luckily my primary care doctor sent me to the SeHCAT test...
Are you in the US
@@Chichilovee no. Germany
@@puo2123 ah ok thanks. I don’t know if they do it in the US.
@@Chichilovee i dont know but its worth to go to germany for it. The test itself is like 500$
@@puo2123 had you ever been prescribed the binders they talk about? Did you lose weight?