I'm so happy that you're doing so well! I can't eat any dairy anymore, it upsets my digestive system and am taking Lomitil to help my stomach. I am still feeling ok and being as independent as I can. I was diagnosed in 2017. Thanks for the updates and treatments you've doing.
My long time cardiologist just told me yesterday he suspects amloydosis, Cardiac kind (I did blood and doing a 24 hour urine). Yesterday seems like a year ago or a bad dream, but today the nurse called to schedule The nuclear test. A video of you years ago popped up in my feed and after watching it, I went to this most recent one and I’m grateful that it was just two months ago!
I'm so happy that you're doing so well! I can't eat any dairy anymore, it upsets my digestive system and am taking Lomitil to help my stomach. I am still feeling ok and being as independent as I can. I was diagnosed in 2017. Thanks for the updates and treatments you've doing.
thank you Elizabeth… Glad to hear you are doing well. You’re welcome!!
My long time cardiologist just told me yesterday he suspects amloydosis, Cardiac kind (I did blood and doing a 24 hour urine). Yesterday seems like a year ago or a bad dream, but today the nurse called to schedule The nuclear test. A video of you years ago popped up in my feed and after watching it, I went to this most recent one and I’m grateful that it was just two months ago!
From what i understand the Mayo clinic in Rodchester would be best for Amyloidosis treatment center? Im getting tested for it this week.. thanks
I feel that way… they saved my life up in Rochester!! Sending you good vibes!
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