I’ve never heard a more articulate description of Tourette’s Syndrome. Your words create a fuller & deeper understanding of life with Tourette’s. You’ve turned a diagnosis that could have taken you down into a platform of compassion & selflessness. You will never know how many lives you’ll touch, influence, help & change - and in my case, educate… I’m a teacher. Thank you.
I am so glad that you have people around you that accept you the way you are !!! And I thank you for helping people understand Tourette - you are an amazing young man!!! Sending you a supporting hug from Germany 🤗
People who have always lived with Tourette's Syndrome I honor you so much for what you deal with. I came down off a pain medication without knowing I should always wean off certain medications. So I had several hours of my brain sending a zoom of energy down my legs, then back up my body because it energy could not get out through my feet. So energy runs up to my arms to try and get out there and I figured out if I yelled fast enough before energy left my arms by yelling quickly it would not go back to my brain which then caused an electrical storm of unmitigated pain and disrupted thinking. Yell at the right time that is the key. I think it is going to take something along the lines of epilepsy in treating it. God bless all with either condition and I pray we find cures very soon.
Hi Elisa 👋 I hope my comment didn't sound as a form of privacy invasion your comment tells of a wonderful woman with a beautiful heart which led me to comment I don't normally write in the comment section but I think you deserve this complement. If you don’t mind can we be friends? Thanks God bless you….
I hid for years that I suffered from Narcolepsy and episodes of cataplexy. I attempted to stay away from family gatherings, friends, even work because I didn't feel in control. Thank you for sharing your story!
I'm also on the Gold Coast and the Drs here say the same thing about my eldest Daughter. Just because she wasn't having tics on the day of the Dr's visit, she apparently "doesn't have Tourette's," even though her tics are uncontrollable especially when she is anxious or nervous and have been going on since she was 2.5 years. Everyone notices them. Even her teachers. All we want is a proper diagnosis already so we can help her. We are still trying... 😢
Thank you so much for sharing your amazing story and I'm so sorry for the intolerance and ignorance you've had to bear. It's a tough call to deal with but you're handling it with style! 😉
I'm so sorry. What a difficult life situation for all. This could potentially be dangerous around reactionary individuals. I think I'd wear a shirt or something stating the illness, I'm sorry and can not help it. Great girlfriend, supportive family and friends. Best To You 🤗😘
You are an amazing person and I hope you achieve success in all your endeavors in life. You are an amazing spokesman for the Touretttes community and I hope that the laws are changed very soon. 🕊❤
I have adult onset tourettes. I got diagnosed at about 32. My neurologist suspects that my case is a result of altered and damaged neural pathways. It's likely to just get worse.I hate it. Neuro placed me on klonopin quite quickly. He put me on it to try to help quiet the two things that primarily feeds the ticcing- pain and anxiety. I don't like the ticcing. I'd like to give it away, but apparently no one wants it.
Just please bare with me here, you see my son has mental health issues. I know, thats different. But he also ive noticed since he was little he has ocd tendencies. He also is repetitive in things like he will be tapping, ill ask him to stop but he cant it's always...just one more time mum. He is 28 now. Still has these ongoing issues. At the moment it is grinding his teeth. Omg its driving us insane! But he just cant seem to stop. He gets very obsessive over stuff and things like thats. I mean he doesn't have torettes that i know off, but the way youve explained the feeling, like the sneeze building up etc is similar to his explanation of why he does these things. Maybe its a similar chemical reaction or something?
I can't say I have Tourette's, but at times I do the rocking motion this young man did...I also bang my head on the walls... Possibly these are other conditions, but not Tourette's...I do appreciate your explanation of what you are going through though!!!
I'm not putting you down mate but I'm a 51 yr old man who had the most horrible ticks in my early teens and I would never stop talking to "tick" and I find the modern age so called sufferers very unconvincing and very fake.
I’ve never heard a more articulate description of Tourette’s Syndrome. Your words create a fuller & deeper understanding of life with Tourette’s. You’ve turned a diagnosis that could have taken you down into a platform of compassion & selflessness. You will never know how many lives you’ll touch, influence, help & change - and in my case, educate… I’m a teacher. Thank you.
Lovely Comment 🤗
I am so glad that you have people around you that accept you the way you are !!! And I thank you for helping people understand Tourette - you are an amazing young man!!! Sending you a supporting hug from Germany 🤗
People who have always lived with Tourette's Syndrome I honor you so much for what you deal with. I came down off a pain medication without knowing I should always wean off certain medications. So I had several hours of my brain sending a zoom of energy down my legs, then back up my body because it energy could not get out through my feet. So energy runs up to my arms to try and get out there and I figured out if I yelled fast enough before energy left my arms by yelling quickly it would not go back to my brain which then caused an electrical storm of unmitigated pain and disrupted thinking. Yell at the right time that is the key. I think it is going to take something along the lines of epilepsy in treating it. God bless all with either condition and I pray we find cures very soon.
Thanks Connor for all you are doing for our TS community in Australia. What a great video
Hi Elisa 👋 I hope my comment didn't sound as a form of privacy invasion your comment tells of a wonderful woman with a beautiful heart which led me to comment I don't normally write in the comment section but I think you deserve this complement. If you don’t mind can we be friends? Thanks God bless you….
I hid for years that I suffered from Narcolepsy and episodes of cataplexy. I attempted to stay away from family gatherings, friends, even work because I didn't feel in control. Thank you for sharing your story!
Thankyou for sharing your experience also helping TSAA community in Australia.
I'm also on the Gold Coast and the Drs here say the same thing about my eldest Daughter. Just because she wasn't having tics on the day of the Dr's visit, she apparently "doesn't have Tourette's," even though her tics are uncontrollable especially when she is anxious or nervous and have been going on since she was 2.5 years. Everyone notices them. Even her teachers. All we want is a proper diagnosis already so we can help her. We are still trying... 😢
This was such an amazing explanation of Tourettes. I never knew how this all worked. Thank you for enlightening me.
Thank you so much for sharing your amazing story and I'm so sorry for the intolerance and ignorance you've had to bear. It's a tough call to deal with but you're handling it with style! 😉
I totally agree!
Thanks to the youtube algorithm for suggesting this. Brave and very informative video. Thank you for sharing and wish you the best.
I'm so sorry. What a difficult life situation for all. This could potentially be dangerous around reactionary individuals. I think I'd wear a shirt or something stating the illness, I'm sorry and can not help it. Great girlfriend, supportive family and friends. Best To You 🤗😘
Oh wow...I was thinking of doing this pertaining to me Asperger's and Pathological Demand Avoidance!!!
You are an amazing person and I hope you achieve success in all your endeavors in life. You are an amazing spokesman for the Touretttes community and I hope that the laws are changed very soon. 🕊❤
Good job mate
I think you are a great guy that really helps people understand a lot better I’m sorry you have it but you doing amazing
Cool dude great story. I get u dude.
I have adult onset tourettes. I got diagnosed at about 32. My neurologist suspects that my case is a result of altered and damaged neural pathways. It's likely to just get worse.I hate it. Neuro placed me on klonopin quite quickly. He put me on it to try to help quiet the two things that primarily feeds the ticcing- pain and anxiety. I don't like the ticcing. I'd like to give it away, but apparently no one wants it.
Waaaait!!! His explanation about repetitive ticks, I thought to myself "that sounds like OCD"!!!
And then, he mentions it!!! Wow!!!
Just please bare with me here, you see my son has mental health issues. I know, thats different. But he also ive noticed since he was little he has ocd tendencies. He also is repetitive in things like he will be tapping, ill ask him to stop but he cant it's always...just one more time mum. He is 28 now. Still has these ongoing issues. At the moment it is grinding his teeth. Omg its driving us insane! But he just cant seem to stop. He gets very obsessive over stuff and things like thats. I mean he doesn't have torettes that i know off, but the way youve explained the feeling, like the sneeze building up etc is similar to his explanation of why he does these things. Maybe its a similar chemical reaction or something?
I can't say I have Tourette's, but at times I do the rocking motion this young man did...I also bang my head on the walls...
Possibly these are other conditions, but not Tourette's...I do appreciate your explanation of what you are going through though!!!
I'm not putting you down mate but I'm a 51 yr old man who had the most horrible ticks in my early teens and I would never stop talking to "tick" and I find the modern age so called sufferers very unconvincing and very fake.
Lol where's the terets
Err all the tics he was displaying? Did you even watch?