Erbs Palsy - Emily's story

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  • Опубліковано 11 вер 2024
  • Emily was born with a condition called Birth Brachial Plexus Palsy or Erb’s Palsy, she was unable to use her left arm. Her parents share their story.
    The Royal National Orthopaedic Hospital is known throughout the world for their expertise, standards of care and research success.
    As a national centre of excellence, the RNOH treats patients from across the country, many of whom have been referred by other hospital consultants for second opinions or for treatment of complex or rare conditions. Our highly specialised consultants are nationally and internationally recognised for their expertise and experience.
    By choosing to have your treatment as a private patient within an NHS hospital, you are assured of a comprehensive range of orthopaedic services on-site

КОМЕНТАРІ • 117

  • @dynamyt5686
    @dynamyt5686 4 роки тому +18

    Thank you so much for sharing. We need the hope right now for our daughter.

    • @stayscheming4826
      @stayscheming4826 3 роки тому +1

      Yes hope is good ..All the best with her

    • @dynamyt5686
      @dynamyt5686 3 роки тому

      Thank you! She is doing so much better. We have more progress to make, but I'm amazed at where she is today.

    • @zazi5094
      @zazi5094 3 роки тому

      @@dynamyt5686 Congrats!❤

    • @danso_eva
      @danso_eva 2 роки тому +1

      My son suffered the same fate but getting better.. he is a year old

    • @violetaoana1563
      @violetaoana1563 2 роки тому

      Hello everyone! Did everyone's Child had surgery? Or only phisical exercises? Thank you

  • @she-can_nooget1007
    @she-can_nooget1007 4 роки тому +13

    Bless her little heart ♥️ hope she is still progressing and living her best life. I am now 18 years old i have Erb’s palsy in my left arm I can put up my arm slightly I can move my pointer finger and my middle up and down and my thumb although my ring finger and pinky I don’t have full control my arm stays angled I can not straighten it nor can I not put my arm up. I can move my wrist and grab with my left hand but my bones are very fragile and because of my injury I grew to have arthritis and on and off pain more when it is cold, Since I was a baby I had physical therapy i had one of the worst case it was one of those situations where I had to get worse so I can get better and I say that because I can now except that I won’t be able to do the same activity as my friends and that okay yes I went through bullying and that’s ok yes I felt different but Its okay I grew to love myself and I was happy to be alive to be able to be independent and strong I hope she doing well and no matter what anyone says please tell her “she stronger than she thinks” 😊

  • @shaylonstrahley4485
    @shaylonstrahley4485 2 роки тому +1

    I have erb's palsy of the right arm, Had surgery when i was 8. I am 29 years old now. Have limited rotation, A lot of pain through out it. It still doesnt bend at the elbow. Thank you for sharing, Didnt realize how many children and people have this disability like me.

  • @stayscheming4826
    @stayscheming4826 3 роки тому +2

    My lil girl was born with it as well , I'm happy for ur lil angel she's getting better , mine on the other hand it doesn't seem we have such expertise here in Jamaica ..been two months and all that she got was one session of physiotherapy for like 20 mins

    • @rachelaine2164
      @rachelaine2164 3 роки тому

      Mine was with it too but we took her to some local doctor who healed her with herbs

    • @stayscheming4826
      @stayscheming4826 3 роки тому

      @@rachelaine2164 they healed her palsy ? U mind emailing me ? matthew.s.bandoo@gmail.com

    • @rachelaine2164
      @rachelaine2164 3 роки тому

      She recovered completely and she uses her right hand

    • @rachelaine2164
      @rachelaine2164 3 роки тому

      What's up on +256786530786

    • @awinoiscaroguta4812
      @awinoiscaroguta4812 2 роки тому

      @@rachelaine2164 how I wish I can get that Herb my son is safering alot

  • @ameliewilson8317
    @ameliewilson8317 5 років тому +11

    i have this in my left arm too. i don’t really know much about it but it was completely paralysed when i was born and i had to to have an operation at 5 months old. i’m 14 now and it still doesn’t go fully straight or work as much as my right arm

    • @jasminekiran6487
      @jasminekiran6487 4 роки тому

      We also done an operation for our child at his 6 month now he is 2 year but there is not big results

    • @gissellemarquez9513
      @gissellemarquez9513 4 роки тому +1

      I have it too but I didn’t have the surgery. I went to therapy since I was 4 months up until now(I’m 19). It is still slightly bent and weaker than my right arm but I can still do many things without trouble

    • @iamsamysosa
      @iamsamysosa 4 роки тому

      Same

    • @fromisworld5444
      @fromisworld5444 4 роки тому

      WAIT SAME

    • @emilyabbott5269
      @emilyabbott5269 3 роки тому +2

      I have it in my right arm which was like yours; completely paralysed until I started doing physio but it took a while for me to move it on my own, I had no operations on my arm just physio. I know quite a bit about it so if you want to know a bit more about the condition just let me know :) x

  • @black1582
    @black1582 3 роки тому +1

    Thanks for making this video!

  • @rozanajade9207
    @rozanajade9207 5 років тому +6

    Amazing progress.. my niece is now 4 and had the same, she was also under Dr Quick's care, he is outstanding. Unfortunately my niece's right arm is not yet fully functioning as Dr Quick said she's had the worse case he has seen however she is making progress every day and tried ever so hard to use her right arm and hand. :)

    • @chukwefamily7273
      @chukwefamily7273 4 роки тому +2

      I am 10 yrs old and have Erb’s palsy. I am also under Dr Quick’s care.
      I think he is an amazing doctor who knows what he is doing. Even though I have had many surgeries and more to come,I trust him very much with my arm
      (I have more trust in him than my mum)I have Erb’s Palsy on my right arm

    • @jvasava3
      @jvasava3 2 роки тому

      @@chukwefamily7273 Me too, I'm 16 now but I had one surgery back when I was 5. Before that surgery I couldn't move my arm at all, years later, I can work it just fine with some limited elbow and wrist movement and a little numbness throughout some parts of my arm for which I'm getting another surgery in a month.

    • @Monirulislam-rq7di
      @Monirulislam-rq7di Рік тому +1

      May I get the email / contact address of Dr. Quick if you have / don’t mind to give it that.

  • @emilyabbott5269
    @emilyabbott5269 5 років тому +4

    I have Erb’s Palsy in my Right arm, I haven’t had any operations in my arm and I’m 20yrs old now and have movement in my arm. I’m seeing a physiotherapist and have been all my life, I manage with my arm being the way it is, I love horse riding and manage to do it perfectly. My arm doesn’t stop me doing what I want it just means I have to be careful and cheat :D Glad that Emily is managing after the operations she’s had as I know first hand how painful Erb’s Palsy can be especially in winter and cold days.

    • @RNOHnhs
      @RNOHnhs  5 років тому +1

      Thanks for the comment Emilea.

    • @Jaylynnsierra
      @Jaylynnsierra 4 роки тому +3

      Hey Emilea,
      I’m 20 and have Erb’s Palsy in my right arm, too. Can we stay in contact in attempt to work together to strengthen our arms? I’ve been trying to strengthen my arm at home as well as straighten my elbow by just starting to do push ups (I couldn’t do any before as my right arm was hindered and my left arm would almost totally compensate).. if you’d like to talk more please respond!

    • @thangarajv2985
      @thangarajv2985 3 роки тому

      Pls i need your help which physiotherapy. You given for afected arm. My baby 10 days old pls hell me

    • @thangarajv2985
      @thangarajv2985 3 роки тому

      @@Jaylynnsierra
      Mam please. Tell me how you treat this condition my baby 10days old newborn.
      how can i treat please. Help me. I want. Your contect number or email pls mam

    • @thangarajv2985
      @thangarajv2985 3 роки тому +1

      Hi please. Share which exercise. You following. Pls tell me. I am follow that method of my baby left arm

  • @simoneovermeyer5560
    @simoneovermeyer5560 4 роки тому +4

    So sad my 8 months old also has this problem 😪it's heart breaking

    • @dynamyt5686
      @dynamyt5686 3 роки тому +1

      I hope your little one is getting better. I know how you feel!

    • @AbhishekJain1992
      @AbhishekJain1992 3 роки тому +1

      When did you found this? How is he/she doing now? Need to know for my 6 days old.

    • @shanustuffs5766
      @shanustuffs5766 3 роки тому

      @@AbhishekJain1992 have you got help brother? If not yet, May be i can help you with some informations. I'm from kerala.

    • @simoneovermeyer5560
      @simoneovermeyer5560 2 роки тому

      @@AbhishekJain1992 my son is two years old and his had a operation.however still doesn't have full function in his right hand or arm,I got so much emotions towards this doctor I don't know how to just accept it.im jobless have to see to my boy and my life will never be the same again.

    • @shyamsrk7200
      @shyamsrk7200 2 роки тому

      @@shanustuffs5766 Bro pls help me im also same situvation

  • @selvaselva7022
    @selvaselva7022 Рік тому

    Is your baby's affected hand is shorter than other hand??

  • @bandarh2385
    @bandarh2385 5 років тому

    Was she able to move her hand fingers before the operation?

  • @estherjasmine572
    @estherjasmine572 3 роки тому

    In which month they did the operation

  • @shanqueenie8469
    @shanqueenie8469 Рік тому

    Hey my son has it and i would really need some help

  • @seliatoyindamola6682
    @seliatoyindamola6682 7 років тому +2

    Too late for me!I am 45 years old!

  • @kanwildki
    @kanwildki 4 роки тому

    How old emili getting surgery?

  • @MakeupByShafqAsim
    @MakeupByShafqAsim 2 роки тому

    Thank you so much for sharing 😌
    My seven years old son has palsy but we don't have such resources in our country. Sometimes we feel helpless because we don't know what to do next

    • @kumswu5709
      @kumswu5709 2 роки тому

      How's is your baby now after 7 years?
      My daughter is suffering the same

    • @MakeupByShafqAsim
      @MakeupByShafqAsim 2 роки тому

      @@kumswu5709 He have no sense in lower of his arm. And also he doesn't have hand movement.

    • @kumswu5709
      @kumswu5709 2 роки тому

      @@MakeupByShafqAsim which country are you from? I think surgery is good option.
      My daughter is 10 months old, she's recovering slowly 🙏 I hope and pray same goes to your son..

    • @MakeupByShafqAsim
      @MakeupByShafqAsim 2 роки тому

      @@kumswu5709 I'm from Pakistan. Where you from???

    • @kumswu5709
      @kumswu5709 2 роки тому

      @@MakeupByShafqAsim I'm from India...

  • @lush4real
    @lush4real 2 роки тому

    We couldn’t figure out what was wrong. My son’s arm was weirdly stiff and his pediatrician said he’s just doing that out of habit. Just did some research and he has all the symptoms of erbs palsy. He’s 5 now. Hope there’s something that can be done now that he’s older. Will call his pediatrician in the morning

    • @ZenitsuKunn
      @ZenitsuKunn 8 місяців тому

      Update? I'm 17 now and my parents stopped my treatments as s baby. It still affects my life to this day..

  • @sakthisasi1
    @sakthisasi1 7 років тому

    Sir, How many days we should stay at London for Surgery. Because we need to plan as a overseas patient, before we proceed. Thanks

    • @RNOHnhs
      @RNOHnhs  7 років тому

      If you contact www.rnohppu.com/ they will advise you on staying

  • @Monirulislam-rq7di
    @Monirulislam-rq7di Рік тому

    Hello there,
    May I hear something from you about this Erb’s pulsy?
    My new born baby affected with this during his birth maybe. Now he is 23 days boy. I wanted to know when did you undergo for the surgery? On top that did Dr. say it is curable completely? Our therapists said it’s not curable but manageable. Looking forward to hearing from you something.

  • @sakthisasi1
    @sakthisasi1 7 років тому +2

    Sir, could you give the contact detail of the doctor... I would like to go to London for treatment. Thank you

    • @RNOHnhs
      @RNOHnhs  7 років тому +1

      For overseas patients, we advise you contact our Private Patient Unit: www.rnohppu.com/

    • @binnirai4013
      @binnirai4013 6 років тому +2

      Same case with my daughter pls help me

    • @pregerbspalsy1744
      @pregerbspalsy1744 4 роки тому

      @@binnirai4013 #preg&erbspalsy
      Hopefully this channel will help

    • @pregerbspalsy1744
      @pregerbspalsy1744 4 роки тому +1

      @Madhuri Bahkar
      #preg&erbspalsy
      Share your knowledge about Erbspalsy to increase the awareness..

    • @thangarajv2985
      @thangarajv2985 3 роки тому

      Brother ippo unga. Child eppudi irukkanga. Ennaku unga help vendum pls
      My baby also having this problem pls help me ennala antha baby ah pakka pakkah rompa kastamma irukku unga baby fully curable ah sir. Contect number venum sir pls

  • @angelaaniya7544
    @angelaaniya7544 3 роки тому

    How is emily now..?
    My daughter is also suffering from erb palsy
    She is 10 months old now

    • @kierstenpeters3220
      @kierstenpeters3220 2 роки тому

      What’s signs did you notice ? My ten month old is showing signs but hasn’t had a diagnosis yet…

  • @theoracle4010
    @theoracle4010 2 роки тому +1

    🙏🏿🙏🏿

  • @sakthisasi1
    @sakthisasi1 7 років тому

    My baby also has the same issue as Emily, is there any hospital recommended nearby India or Singapore for surgery? Kindly treat this message is urgent.

    • @shaiknagurbasha3921
      @shaiknagurbasha3921 6 років тому +1

      in India ganga hospital, Coimbatore.

    • @asiyasyed9992
      @asiyasyed9992 5 років тому

      Hii siva how is your baby now??

    • @kavithas676
      @kavithas676 4 роки тому

      Sir ru in coimbatore. My baby also has erbs palsy

    • @kavithas676
      @kavithas676 4 роки тому

      Siva how is ur baby now

    • @kavithas676
      @kavithas676 4 роки тому

      Mathlap. I dont know hindi Madhuri

  • @mythical6351
    @mythical6351 4 роки тому +1

    i also chave erbs palsy on my right hand and my friends are always making fun of me for looking like a dinosaur

  • @Sarahlevi13
    @Sarahlevi13 3 роки тому

    Hi hi guys

  • @torivenable4689
    @torivenable4689 4 роки тому

    Me

  • @veerakumari3476
    @veerakumari3476 3 роки тому

    😍😘😘😘😘😘😘😘😘😘😘

  • @shanqueenie8469
    @shanqueenie8469 Рік тому

    Hey my son has it and i would really need some help