Lisa Folsom's CRPS Story
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- Опубліковано 4 січ 2021
- Listen in as Lisa details how a 2015 injury of her left pinky finger caused her CRPS, her diagnosis, education for friends and family, treatments, and much more. This video also includes subtitles/closed captions.
To learn more about complex regional pain syndrome (CRPS) and reflex sympathetic dystrophy (RSD), visit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)’s website at rsds.org.
#RSDSA #CRPS #RSD
![[PART 1] Understanding CRPS: The Truth About it’s Neurobiology and Effective Treatments](http://i.ytimg.com/vi/XBB_7MrJkQA/mqdefault.jpg)
I'm another CRPS warrior chiming in 👋🏼 Your description of not being able to have a schedule, even your skin hurting, not being able to be touched, etc. is just so 100% what I go through too. I have it all over my body too but I have been so wary of ablation and SCS making it worse and have avoided them so it's good to hear from someone who did.
I just found out my niece has this CRPS . Thank you for the information.
I was diagnosed with RSD Syndrome as well, I'm sensitive to temperature and just about everything even my clothes at times. I torn a ligament in my right Wrist, which feels like you hit your funny bone.. Well it starts like that. Then pain, burning inside and outside if your skin. Electricity like sensation out towards my fingers and up towards my arm, right breast and right shoulder blade. If my roommate turns on a fan or air conditioner and it hits my right arm area, the pain is intense. I was told that my surgeries were denied.. I was also diagnosed with Carpal tunnel as well. Outside need to completely cover it, cause the outside breeze also hurts. My meds only work for 6hrs.. I walk around like Cinderella, trying to see doctors, do some food shopping before it wears off, and before the Supermarket cold air goes through my clothing.
CRPS since Sept. 2017.
Thank you! Sometimes it is hard for me to put into terms my pain, my brain fog, my temp. regulations, total exhaustion& inability to get out of bed when flares strike. Regarding my self pity days, I cry, do my poor-me, etc, but I don't live there. I have no desire to make camp there!
It really feels like internet & soc. media, are bringing more people's stories out to share💕 Learning through others.
Thank you! Take rest when you can warrior. ~ pam siloti
Thank you for the information I have crps and am taking it one day at a time
Due to an accident I had at work year and now I stuff with CRPS/RSD disease. I was on medication for 6 months and than they lower the dose. To come off the pain medication 💊. I can tell you that I got real sick over the winter season 🤧. For two to 3months. In the summer time I'm ok until rain 🌧 set in . I can tell you it's not easy living with CRPS /RSD disease. I can't enjoy going out to night life 😪 . I understand but my family find it hard to get there head around this . From this accident I had I broke my right wrist and damaged my finger s . Now I have noticed my right hand is very short. I can't work as a AIN NURSING .
Thank you. Here I thought for some time I was the only special person out here to have CRPS/RSD .
Some years ago I got it from braking my wrest in 2 places but since then I was told to never have surgery but I had to have another back surgery ( which was my 4th and that’s when it jumped ) and my back Dr pretty much called me crazy because I said IT JUMPED, I worded it wrong for him.🤨back to my journey..after 4th back surgery I seen signs of it in my left foot. As time passed sure enough!! So I set here with the blue leg and hip down of pain ( still getting blockers ) and a jacked up hand . Trying to get through my days. I’m 56 years old and have and am raising 3 grandkids by myself. This is a tough life the Lord has chosen for me. But we must keep going. Many days we just don’t want to or don’t think we can. Because here comes more needles, I hate those things 😉.
I think you for your video and you nailed our pain . It is different for everyone and every day it’s not the same/ or it’s the same however you look at it .
Just trying to keep it light so we don’t cry. I have those days way to often.
I’m here if anyone needs to talk .
Keep the fight spoon bunny, and thank you for sharing your story with us .
Thank you for sharing your story. I've had CRPS for about 7years now. The last couple of years have been better thankfully than when it started. Hope you are doing well ❤️
Thank you Lisa.. you have inspired hope for the day. Once again I am blessed by the courage of another Warrior.. we are not alone. I hope to finish a song I have written for all Warriors in the coming months and hope to post it as my way to give back hope to face another day of this horrid disease.. We overcome CRPS daily! Bless You!
I am leaving for AZ in 5 days for Calmare Therapy. Just check it out. Most have full relief. If not full relief one will experience about 80%.
i was just diagnosed with CRPS. I had never heard of it until now. I thought it was a bad ankle injury that would not heal. This is not fun. Thanks for the video!
I have had CRPS for the last 5 years also, from spraining my ankle. It has since jumped to my other ankle as well. The best thingI have found to help is not eating any inflamatory foods. No sugar, no white flour products. It really helps, I can go weeks now without a flair. If you want to give it a try, you have to go at least 2 weeks in order to see if it will work, then eat some sugar. I can tell within 15 minutes after eating sugar. The pain comes right back. Hopefully it will work for you. God bless.
Hmmm, I wonder why that is. I will try it. My medication is not working for me anymore (Palexis and Lyrica).
21+ years and still going. CRPS has changed my life dramatically. It now affects my heart. The constant pain caused Prinzmetal’s Angina. It sucks. I wouldn’t be here without gabapentin and Cymbalta.
Thank you for sharing your story! I have lived with RSD/CRPS for 29 years since the age of 16. I've tried all kinds of meds & injections. I have a spinal cord stimulator, sacral nerve stimulator and an intrathecal pain pump with Prialt. I have a neurogenic bladder and gastroparesis because of CRPS. The pain is no joke. I have to advocate for myself all the time.
How is it today? I for one never had CRPS and if I'm lucky I never will. But if I'm unlucky (please no) I always planned to go to Netherlands for euthanasia because I honestly cannot possible imagine myself living with this kind of disease (or many others very awful one such as dementia etc) or pain. Does it get better? Or do you just get used to the pain? I have heard that in some people it just disapears outta nowhere while in other people it grows worse... which one has been for you? In any case, I hope there will be a cure for not only CRPS but every single disease in the world. Looking foward to hear from you, good luck 🌷
I feel you 🤗 l to have dealt with such pain I woke up with my right leg completely Numb could not get out of bed 2yrs ago and CRPS has taken over my r leg is still numb up to my knees almost I can't wear socks or shoes most the time people do not understand CRPS because of the weird symptoms I soak my clothes sweating 🥵 so much more to this!?!!!! God bless you will keep you in my prayers 🙏
Thank you so much for sharing your story! You Rock!
Thanks for the kind words!
Thank You for sharing this, I have RSD and it's the most painful thing I've ever had in my life., But I refuse to give up. I have a nevreo nerve stimulator implant.
I get it! I injured my right ankle back in July 2020. It hurt constantly and was told nothing wrong. It is "deformed" swelled & I must use walker. My bf found a foot dr/surgeon to cut my nails. He said immediately you have Reflex Sympatetic Dystrophy. I need to see a neurologist. So, here i am. Exactly, I can't always make appointments. I also have "2" sets of "13" stairs that are excruciating! I get, the pain. I also have an old back injury mid thorax compression fracture. I'm on pain & no one understands.
I have had all of your procedures and have had the same result. I lost my husband to divorce because he couldn’t handle seeing me in pain anymore. I had to recently move and my new foot doctor just brushed me off as I am a hypochondriac. I am now a single mother trying to raise two boys. I wish more was known of this disorder. I have been dealing with this since 2004 and still haven’t found what works for me, as each new doctor wants to do the same things all over again, even with my records from previous doctors thinking this time it will miraculously work. I have an internal nerve stim and it does help and it stays on 24/7 as I am afraid of how much more I will hurt when it is off.
My dearest UA-cam watcher. Can’t you go on Lyrica or Gabapentin. Seems like that’s the thing to take for trying to keep up with a normal life
Dear Lisa! Thank you so much for the sharing. I had a total right hip replacement (at the young age of 57, due to extreme pain, had to walk w/crutches) February 2016. When I asked the hot shot ortho surgeon about the possibility of the CRPS I got after a severe broken foot in 2000 (7/1/2 months in a boot because my body wouldn't tolerate a cast, bone growth stimulator, fighting for a diagnosis) moving to the surgery site I got a wave of his hand & "you won't get that in there, everything will be fine"! All he needed to do was LISTEN and perhaps do some research, because in my world the doctors don't know much, or anything about this! I knew something was horribly wrong from the beginning, even though I was told I'd just had a very extreme surgery. Months & months, being tossed around by doctors, tests, being treated horrifically by the doctors went by. Demanding another opinion from neurology, knowing what I had, actually asking neurologist why they wouldn't give me a diagnosis, he pulled his chair close to me & gave it to me. Then the fun really began! Fighting medical beurocracy & trying to find an attorney & a treatment plan. I was treated completely awfully by pain management, even though they verified the diagnosis. Can't do ketamine as I have such a sensitivity to drugs. BAD reaction to anti depressants, no nerve blocks as they were fearful I'd get CRPS in my back at the site, so same with pump. I'm on gabapantin, & norco, as they say the only thing they can do is help manage my pain. Also was told my presentment is quite unusual, which was told to me in quite a challenging way, even after the specialist confirmed diagnosis. I've tried to get a referral to an outside specialist which they will not grant. I walk with a crutch. My horses, hiking & lots of other physical activities are gone. I broke my hand 2 years ago & got the beast in my hand, which, thankfully, has for the most part resolved itself. In the last few weeks something is going on. I know the beast is now around me and up my back, down to my knee, but now the pain is through me, inside me, like a giant stake being pounded through me, into my bones. Isn't it strange to have such pain that may seem like it's in my hip joint, but it is prosthetic, so how can that really be? Recently I was trying to find information on how "full body" CRPS is diagnosed and had no luck. Oh, this summer I severely sprained my left ankle, which I'm still having issues with. I tried weaning off gabapantin and was completely debilitated. I'm hanging out here with no care. I'm very active, huge vegetable gardens, was taking ceramics before Covid, not one to give up my life! Sorry this is so lengthy. Sometimes I think I would like to speak publicly to help others, to keep moving, to find a creative outlet. The lapse into the newish & horrible pain is most likely stress induced, with how affected I am with the state of the world at present & little body very susceptable to "fight or flight". Just needing to talk, as I need to go haul firewood and get some chores done. I have 5 1/2 acres, my dream, that looks like a disabled single woman lives here! Thank you for helping others.
I have had similar experiences- doctors act like they know everything, when they clearly don't, and they don't care to educate themselves. You sound a lot like me- very active and not using CRPS as an excuse to be a couch potato. May I strongly suggest a few things that helped me? I use Tommy Chong CBD- the day & night combo formulas, and C60 from Heavenly Natural Products. They help tremendously with the pain, and boost my energy. Also, research electromagnetic radiation and sensitivity. Avoid WiFi, hard wire any computer/ laptop, etc. I recently purchased " The Lost Book of Herbal Remedies". The author, Nicole Apelian, Ph.D (co- author) put her MS into remission using herbal medicine and she gives her formula. All of these autoimmune disorders are very similar, so I am purchasing her regimen and giving it a try. I will not go near a doctor- they just do more damage. Allopathic medicine has its place, but people need to realize that homeopathic medicine was all we had before Rockefeller & Carnegie hijacked the medical schools. Interestingly, Rockefeller refused to see an allopath, and only saw his homeopath. I believe he lived to age 95 or 97. I hope to become a master herbalist and offer folks CURES instead of band-aids. I wish you good health...
Have you asked for a pain patch?
@@karolynejheck9120 I was offered a shot in my neck, and tried tricyclics with no improvement. I was told in no uncertain terms that was ALL they had to offer. I'm done with doctors- they ALWAYS damage me even more, sad to say. I wasn't offered pain killers, nor would I take them. Don't want an addiction on top of CRPS. I did ask for low dose naltrexone, but they refused to prescribe. Like I said- no more allopathic medicine for me!
did you get CRPS in your back?
@@claus1225 Hi Roger. Sure seems likely to me. Threw myself back into pain management doctor that put me through the wringer so badly I was down for 4 days, wouldn’t listen, wouldn’t respond that I was asking for a ‘plan’ to help m e then when he did was a smart ass & was telling me perhaps I didn’t even have CRPS (my presentation has always been unusual). I’m kind of done w/being treated so ridiculously & accusingly! I’m the one suffering & at their hands:(
TY for sharing your story 💙
Lisa if you need to talk to someone I would be willing for you to talk to me I'm a lot farther down the road then you are but still I am still suffering every day still waiting for some of the care that I need I am a pain Warrior so I go on slowly but surely and we still don't have answers we need but all of us that have had it a long time keep going on day by day minute by minute second by second because that's how fast they can change it was good to hear you talk Lisa keep going and keep fighting pain Warrior😇🙃🛌💕
Thankyou for sharing your story & I’m sorry you have been & going through so much extreme pain! I too have Crps2 but of the face/head & my journey slightly different to yours, but the same.
To hear your experiences with Crps has personally validated for me, this is quite the frustrating whilst in debilitating pain, a definite ‘learn as you go’ process for us all. Thank you again for sharing your difficult experiences & your wisdom! Stay strong warrior sister!! 💜🙏🏻
Thank you
I diagnosed myself with RSD/CRPS about 90 hours after foot surgery by searching on the internet. The excruciating pain was as if someone poured gas on my foot and set it on fire. My family doctor agreed with me, but sent me to a pain management doctor who also agreed it was RSD/CRPS. I was put on a high dose of 3,300mg of Gabapentin this was back in late 2010. I’m now taking only 900mg of Gabapentin. It’s true, if RSD/CRPS is caught early the patient can live a great life. I’m proof of it. I’m a true Taurus, I’m stubborn as hell, I was going to let doctors tell me that the pain was in my head. Thank God, I have the best doctors, believe me I’ve fired my share during my life.
What helped the most in you living an okay life even with CRPS? I am on Lyrica, and for the CRPS I had physical therapy for awhile including tens unit sessions. My pain mgt wants to try something called a sympathetic nerve block and has me on a wait list for ketamine infusions.
I have such empathy for you!!! Though I haven't gone thru an unnecessary and traumatic surgery as you did, which must have been awful, and not gone years like you have, but i broke my 4th metacarpal (and that pinky can REALLY hurt!). Like you, both my ring finger and pinky got forced out to a 90 degree angle, I believe injuring the nerve btwn the 3rd and 4th fingers. I was in a hard cast for 6 wks, but I felt an unusual type of pain around halfway through. I thought my hand would start feeling better as it healed, but it didn't. I thought it was the cast so I cldnt wait to get it off, but when it finally came off the tech reinjured the area btwn my fingers! And my hand looked and felt as bad as it did the day it was put into the cast. It had been my 3rd cast. The 1st one was a half cast from the ER, and it didn't help at all. I had to wait 3 days til Monday to be seen by an Ortho. Then THAT cast was hitting my Ulna throughout the night as I tried to sleep and hurt me every time I even turned my hand a little bit! I waited all day long to be squeezed in btwn appts to get that cast changed out and when they removed it you cld see that my wrist bone was practically bloody. There were more gaffes, but I know everybody is overworked these days, so I was patient and understanding. Now I feel all those mistakes might have only worsened what was to become my CRPS.(fast fwd)>>>
I'm trying NOW to convince my doctors, at 5 months into my CRPS, that I'm NOT ready to go back to work, although my Ortho said just ystrdy that he can't do anything else for me, that the original broken bone has been long healed and my newly found depression is not dealt with in his dept. And he boldy and ignorantly said I've been "off work long enough." 🤯 And they're trying to deal with my depression as if it's unrelated to the CRPS, though I'm quite sure it IS related. My issue, besides, having to advocate for myself, is that there's no one doctor/specialist who is DRIVING my care! Every doctor of a different discipline I've seen was at MY request. I've had a nerve block, from an Anesthesiologist that I asked to be referred to. I got injections into my second joints of all my fingers on my right hand. Those injections got me over a plateau I was stuck at, but I'm still not whole. I involved an Arthritis doctor to rule out arthritis, who gave me a short course of Prednisone which got rid of my swelling. I then asked to get a bone scan which showed my density is thinning. Yay! 🙄The Anesthesiologist prescribed Gabapentin which I took for about 6 weeks or so, which allowed me to do the PT exercises without SO much shooting nerve pain. I got a stellate ganglion nerve block which was too late to help me. (And scary!!!) I underwent desensitization for the alledenia(sp?).
Luckily, I pushed and pushed to be heard by my ER-assigned Orthopedist (bc she had a completely UNDERwhelming response to my multiple complaints of great pain, until I did some research and started suspecting what i might have. Then i pushed her hard to address my concerns. All possible diagnoses looked and sounded bad. 😬 When she finally ordered me a PT visitit was for 18 days later, I called up the PT Dept and told them I wont last that long with the pain I was in. It was mind numbing, worse than childbirth or any surgery I'd ever had. and it kept me awake, and preoccupied with it. You have to tell them all the buzz words. (Pain level 10+!) They gave me an appt the very next day with a specialist(sort of), gratefully. That particular PT person was very astute. He listened when I told him how painful it was, he could see the pooled blue colore blood in my fingers and saw my limited flexion. It was HIM at my 2nd visit who brought up to me the possibility of CRPS, and I changed Ortho doctors very fast. (Her lackadaisical approache cost me treatment time which did harm! (and THAT cld have been avoided) as soon as I could (I wanted to write her up with a complaint, but I didnt). Knowing what I know now I probably shd have. It might have highlighted the hospital's need to create a protocol for CRPS, bc they need one!
Getting a referral to another (hopefully informed) Ortho was no easy feat. But I was given a name by a doctor (someone who asked to be kept anonymous) (so strange(!), but I was happy to have a replacement, so whatever! 🙄)
Getting notices to be off work were coming in one week increments, which my employer was not happy about, esply bc the very first ones said I cld do "modified" duty, which I KNEW I cld not do. They're thinking "what's the big deal? You just broke a small bone in your hand, and now your cast is off." It was hard standing my ground with them, but I knew not only wld I be a liability to myself, but I'd be a liability to my mployer as well, and i told them so.
Adding to my strain, was that I am in recovery from cancer, and I was attending multiple cancer screenings every 4 months that stretch out over weeks, and i didn't have any PTO or vacation to take since I'd only been back to work for about 10 days after coming back from my leave from my cancer surgery. I DO wonder if my sensitive state, still recovering from my cancer diagnosis and surgery, did sort of set me up for this nerve condition of CRPS. I had had a previous diagnosis of PTSD so idk. I'm just stating that in case another can relate.) After months of limited progress I finally asked to see a Neurologist who saw me and said there's nothing he can do for me - that he thought I was depressed and I shd see my Primary. In said but I think my neurotransmitters may be depleted, and he said they don't measure those! (FYI - Alternative doctors DO!)
My Primary diagnosed me with depression, as separate from the CRPS! She wanted to give me Zoloft or Cymbalta (a compromise of sorts), but I didn't need anymore side effects added to my plate of symptoms (major indigestion, heartburn and insomnia, weight gain, etc. I just wanted to have time to heal with gentleness to myself and kindness and nutrition and perhaps an Endocrine check - WITHOUT the idea of having to go back to work at my high intensity, highly physical, fast-paced job. But I was buying peace in short bursts of weeks between getting poked with needles and PT visits and exercises, that keep the pain cycle going, and cancer checks. I was crying at almost every dr's visit which told ME I was overwhelmed, to be sure. Like you said, it's a PHYSICAL disorder, but now they think I'm a psychiatric nutcase. So they referred me there next, to Psychiatry, only the person can't see me until July 27 - 27 days BEYOND my back to work date of July 1, which plays with my employer and my disability pay! So, as you no doubt know, on top of the pain issues we have to deal with we having to navigate the medical system.
When my Ortho rely told me he can't help me anymore and that he seems me ready to get back to work I calmly told him that I thought that recommendation was "abusive." And just today I filled a grievance about that Dr's shortsightedness and his cavalier, MISjudgment of my CRPS. There's really NO EXCUSE, bc he cld have referred me to an outside specialist early on if he didn't know what he was dealing with. I put myself in his hands. I trusted him. I expected him to utilize all that was at his disposal. I had to drive my own care. It's not right. I can't afford to go back to work and risk hurting myself in other ways (as you unfortunately have) and spread the CRPS symptoms.
BTW, i think the brain may play a part in those "accidents" The brain (and the nervous system are key, I think) and its neurotransmitters govern spatial relations (stbbing your toe?),along with mood, sleep, appetite, digestion and other things.
I need to be able to get back to 100% so I can support myself or get some job training so I can change careers if this CRPS is here to stay. I can't go to my present employer and keep regular days and consistent shifts w/ CRPS, and they definitely don't want someone on site who is having neurological issues! It's a high-injury environment as it is.
I'm working on increasing my neuro-transmitters by taking amino acids to have a healthier brain function. They help the body to help itself. Look into it maybe.
Anyway, ladies, never be afraid to insist on things when you're being ignored or minimized. Only YOU know how YOU're feeling. We women tend to be polite and patient, but when our female intuition is sending up warning bells, it's time to get assertive.
Wishing you all well on this site, and a pain-free life! Love and light! 💕🙏🏻💫
Yep the worst pain in the world have RSD 17 years
Sending you love today, Dorene.
Lisa met one of the leading CRPS doctors in the State. So what did he do for her?
My 14 daughter has a CRPS on her right thumb and tissue around. She is practically last 2 month in non stop flare up . We have scheduled surgery with Dr. Tollestrup on 31.1 which is in 16 days. I am in agony if it work.
I have phase 2 bilateral crps from belly to toes. All I want to do is amputate everything! No pain medication works spinal cord stimulator doesn't work, atrophy is getting worse and swelling getting worse 😢 I've had disease for 17 yrs started in left calf and foot and now I wear full AFO braces and use a walker and I am 45. Sometimes I feel like the brickwall has hit me as I cannot find a Dr that deals with this extreme case. UGH #frusyrationmeansnothing
Let us know if you need assistance with finding a physician. Send us an email at alexisdavis@rsds.org.
Thank you for sharing your story. I too have full body crps. I’ve had it since 2005. Alas in New Zealand we do not have ketamine to take for pain. We even can’t do ketamine infusions. It is so frustrating. Again thank you ♥️♥️♥️
Thanks for the comment, Lilly. What are CRPS Warriors currently doing for treatment in New Zealand?
I have Crps2 of the face/head, very difficult! So I understand. I live In Melbourne, ketamine infusions are available here & we’re only a 3hr plane ride away, just a thought. Wishing you all the best💜🙏🏻
@@anne8869 my daughter is in Melbourne. But I would have thought that I need to be living there to access an infusion ?? Or do private clinics take patients from out of the country. If so can you recommend anywhere ?? Thanks so much for your reply. I really appreciate it. 🧡
@@RSDSA we have a charity that myself and 3 other women created. But campaigning for treatments seems to fall on deaf ears. It is a struggle bus that’s for sure. My pain has been so bad recently that quite honestly I would do whatever is needed to get some help with it. Thank you for replying tho. I really appreciate your response. 🧡
Pain Specialists Australia are based in Melbourne and are considered one of the best if not top in the country. Im pretty sure they could help you as a private patient? I will message you their contact details later today. Also due to see them soon & can also ask whilst there & let you know. Apologies for taking a while to get back to you
Thanks for sharing.. I eat cannabis gummies by Mico dozing through out the day every day but had success with pain relief. 🙏
I live with it every day sleep habits are very non to little sleep but I have great doc who helps me but its bad and Im going threw a ssi case due to I can't work anymore it sucks cause Im only 46 and this hit me in my early 30;s .... Please get ahold of me I would love to talk you you more about it ........I really know how your feel.
I got hurt in a work related injury in January 26,2018 a fracture in my left shoulder led to swelling of my hand and arm about a month later, I was diagnosed with CRPS in July of 2018.Well they tried all kinds of meds and Iv infusions they also did mris radiations ex rays and couldn’t find anything so one DR said it was all in my head,mean while my arm and hand swelled 4 times it size.So finally I found a DR in London Ontario Canada that said he would amputate my left arm, so March 13 20/20 I had my arm amputated and I am the first person in Canada to loose my arm to CRPS and the pain was gone then in December of 20/20the CRPS came back, so since nothing worked in the past I will have to live with this disease the rest of my life I now just take one day at a time
One day at a time indeed, Shawn. Thank you for telling your story. We're always open to having you share more on our blog or on our UA-cam Channel if you are interested. We are also interested in hearing more about what Canada is doing to help those with CRPS and if it is any different than here in the U.S.
Someone cured their crps using dr sarnos method. It’s a mind body syndrome. Can be changed using neuroplasticity.
Sure I am interested anything you want to know ask and I will tell you
Hi Shawn, i’m so sorry your CRPS came back after your amputation. Did it come back where your limb was amputated or did you have a different injury or a spread? I imagine that’s really tough psychologically. Of course everything about this disease is tough psychologically.
Good luck. I also have CRPS, so good to have you in the community.
Yes it came back in amputated arm and thank you I want to be an advocate to help people and DR’S understand this disease called suicide disease
Do you do pacing? It might help you long term. There's a good article on it in Princess in the Tower
My husband has CRPS and this cream called neuropathy maximum strength help take away most of his pain. You can buy it on Amazon for $25 and it's in a purple and white jar. It's natural and it's the only thing that help him. The gabapentin did nothing for him. Hope this helps, have a blessed day ❣️.
Really?
Hi, can you please share your doctor’s name? Desperately seeking help
I have just been told that I have crps. After lots of doctors visits. I am now 19 and I am trying to learn how to have as close to a normal life as I can.
Hello, Morganna. We can put you in contact with Carolyn McNoldy who helps with our Young Adult Weekends. She can help you navigate this disease as a young person. Please email us at info@rsds.org.
At 15:00 -- medications.