Dyskinesia & Drinking Alcohol
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- Опубліковано 5 чер 2024
- #10x100k I cut down my consumption of alcohol and then have a day or two or three of drinking, dyskinesia will slowly build in frequency and intensity, if I have multiple days drinking in a row, like on a weekend for example. For me it is clear that alcohol consumption worsens my Parkinson's symptoms overall, but especially with dyskinesia. When I don't drink alcohol, there are days when I will be dyskinesia free to mild. PD symptoms and side effects are tricky so there are occasional days when they are not as mild as usual even without drinking.
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Chapters
0:00 Intro
0:32 #10x100k
1:40 Dyskinesia & Drinking Alcohol
I have been diagnosed 3.5 years. I still drink, but then I don't have dyskinesia. I enjoy it. I'm British, so going to the pub is a big part of our culture and social life. But most weeks go at least four days without drinking alcohol and I stopped drinking to excess a long time ago ie more than three pints.
It may be my imagination but my meds do seem to be less effective after a night in the pub. But most things in life are something of a trade off and I don't want to give up drinking. Yet.
I suspect some time in the future, the cost of continuing to drink will be higher than my perceived benefit and then I will give up.
It will be a sad day.
I owned a pub and totally get it!! and I too don't want to totally give it up but I fear the day is coming, so I try to do five day stretches and then go for 3-4 beers days two days in a row, then back to not having the for five. But it's not easy and living in California the beer culture is strong, and since I know so many people in the business it's my whole social sphere to. Like I say in the beginning of the video, I am working on it :) Thank you!!
I got sober in 2016 for various reasons. Mostly because I felt awful after I drank, my hangovers ruined my day, and at times I would drink so much I would get physically sick. Fast forward to 2019 and I was diagnosed with PD. It was then I felt the urge to drink again. I thought a glass of wine would help relieve the stress and sadness of this new reality. For about two months I drank a glass of wine about 3-4 times a week. I began to notice how badly I slept when I had alcohol in my system. Sleep is crucial to managing my PD. If I don't get adequate sleep, I have trouble with functioning the next day. I also knew that alcohol is a toxin. I thought "why would I intentionally ingest something that could further damage my brain?" I stopped drinking and have not looked back. Yes, I miss it sometimes. Especially at weddings, baseball games, and a nice dinner out. But it is not worth feeling like crap after. So, whenever I feel the urge, I play the tape forward and think about the consequences. I love being sober and there are so many great alternatives out there now! Really good alcohol free beer and yummy tonics, mocktails, etc. I hope this doesn't sound "preachy". I don't judge anyone with what they choose to do. I just wanted to share my experience. 🙂
Not preachy at all and thank you so much for sharing your story! Yes the big social situations, concerts, theater, and dinners at amazing restaurants with a fabulous wine list. It's a rewiring that takes time but like you said, rewind and play the tape back to be reminded of the consequences. Thank you!!
Thanks for this brave, honest video. Very helpful. David
Thank you David!!
Thank You Sweety
Love this series!!
Thank you!! ❤️
I’ve been a heavy beer drinker all my life and I stopped cold turkey 16 months ago due to GI issues. I am glad I did.
My mind is in a much better place!
I do mis my Boulevard Brewery Tank 7 though! It would usually cleanse my bowels for me! lol
Yay for you and LOL on the Tank 7! I know how hard it is to do and when it's time to stop it's time to stop 🥰
Thank you for yout
Thank you for such a compliment!! 🤗
OMG! "Hooooot flaaaaaaaaaaaaaash, hoooooot flaaaaaaaaaaaaash..." 🤣 Thanks for the laugh. BTW, love that mountain view! I'm so jealous. I'm trying to limit the wine to the weekends. I have cut back during the week. I definitely feel better when I go several days without. I'm not in the dyskinesia phase yet...so I can't speak to that.
I am so happy to hear someone got a laugh : ) It's been fricking hot and yes that mountain view is awesome!! As is the restaurant which I will take you to someday...It's beautiful country here for sure and everyday I am so thankful for living the California dream.
@@ParkinsonsWigglesProject can’t wait!
I gave up drinking in 2009. After a life as a chef. Large quantities of beer were consumed by myself and those around me.
And other substances as well occasionally.
Being OCD I took up bodybuilding. Got a training partner, and we started pounding the weights, protein and carbs consumed in large platefuls. Plus protein shakes and other supplements. 2009 I was 163 pounds
5 years later In 2014 I reached my strength and size goal. I was a muscular 210 Pounds
That took extreme dedication to diet and training.
I had developed a tremor in my left hand In 2013, and was starting to get a little wonky in the walking department. Did some googling and went to a doctor and said to her, "I've got Parkinson's"
Off to a neurologist who confirmed it.
I brushed it to one side and continued to
Pound the gym.
2016, boom, left shoulder blew out.
So did bodybuilding. Started having beers again after 6 years sober.
Not anywhere near the amounts previously.
Mind you I was 49 years old by then.
Fast forward to 2019, even a few beers made my Parkinson's disease symptoms worse.
February 2019, my shoulder had healed and I stopped drinking again.
Back on the gym, but only moderate intensity. Normal diet and a protein shake.
And about 175 pounds. I go out on an mountain ebike up the hills, do a high intensity group training class with 10 other parky people, try to eat healthy and not to be so OCD.
At 56 I feel ok. I get freezing when l-dopa wears off along with feeling unable to function. A dose of l-dopa and I'm all good to go for the next 3 hours.
Haven't had a drink for about 3 years and don't miss it.
Bravo and being sober for 3 years! It is my guess that Parkinson's is the only hope for sobriety I have, isn't that strange?!?! Little by little, day by day they say. I too was diagnosed in 2013 when I was 38 years. I have always gotten my exercise outside...in the past it was pedding all over Oakland and Berkeley going to work or school or out for some fun. Now it's the trails with my dog Nico. Happy at 56 you're still doing ok! My l-dopa I take every two hours and my main issue is with gait, not tremor dominant. Alcohol also impacts my walking as well. Keep it going and thank you so much for sharing your thoughts!!
OMG… I’m a bit of a beer fan too…….it’s a bloody good thing that I live on the other side of the world, it could get messy!🤣
COVID lockdowns and summer holidays were my downfall last year. Dyskinesia wasn’t really a problem for me but sleeping I felt was compromised with my increased beer consumption. In Australia there’s a promotion called Dry July….encouraging people to not drink for that month. I decided not to wait for July this year, so in February I stopped drinking. (Shortest month, clever yeah?) Now I definitely saw difference in my bank balance and I’m hopeful my liver function was improved but nothing else changed. Nothing. So cheers to you. Thank you for your awesome vids and real life PD topics. Call in if ever get to Australia, it will be my shout!
Drinking is an expensive habit indeed! :) It's interesting how we all have our individual effects. My hubby who drinks beer as well, says that when he takes a break doesn't sleep any better which blows my mind because the sleep effect is so pronounced with me. There is just no doubt that I sleep better, even with PD when I don't drink. When I read bank balance I saw Beer Balance, LOL, and I think just maybe over the course of my life, owning a pub and all the beer fun I've had, my lifetime beer balance has reached its limit. If I am ever in Australia I will absolutely give you a shout and likewise if you are even in San Francisco!!
As a PwP, I would love to have a glass of wine with dinner but I have chronic pancreatitis so forget it.
Wine for what ever reason really gets me?! Not sure why but as much as I love it I don't drink much anymore....every now and then I will 🥰
Stay connected ya
Thank you for your videos. I have a question for you. After years of being the family driver for trips to Tahoe and such I don't like driving anymore and I have terrible anxiety being a passenger. I drove truck for 20 years and really used to enjoy driving. I guess my question is do you have similar anxieties?
Hello! I take driving seriously...I've got lots of driving rules that make me feel safe and comfortable and I'm not a fan of being a passenger, at all. My husband is the only one I feel truly safe with, so I get it. I still drive though so I am not a passenger too often, but someday this could change. Thank you for your comment!
I did a fund riser last year and raised over $1,500
That is awesome! & I got to get my fundraising operation going again :) Thank you for the inspiration!
I quit drinking right before I got Parkinson's. Alot of good it did me. Lol
You and your brain will be better off and bravo!! 🙌💕
Hey,guess I’m a bit late with my comment but I just have to say it.
I always had a hard time to understand people who think it’s fun to be drunk.
It happened to me but I never intended it and I always hated it! For me it was a Nightmare!
The same with Cannabis! A Nightmare! How can people like that? - Now having Parkinson
It’s even worse!- The last thing I want is loosing even more control over my body.!!
Having said that it sounds maybe crazy to say that I love Alcohol!-- I love it for the taste.
I love my beer. I love wine. I love Whiskey or Brandy. I would hate to loose the little joys I still have
in my life. - My Neurologist told me clearly it has no influence on the Disease at all.
However I’m can feel more symptoms with alcohol. I just can’t stand that much anymore.
But that’s with everything. Everything weakening makes the symptoms worse. Even the “good “
Things like exercise.
Sorry for my long comment. Just my experience.
I’m having now my beer with supper and then a Jack Daniel - cheer’s!
(I’m alone. I’m always saying Jack and Jim are my best Friends)
I know it makes a wrong impression but nobody cares anyway.
Actually: I love your canals! Thanks
It's never too late for a comment nor any need to apologize for a long one :) I totally understand what you say and where you are coming from! I love a pint of Guinness! An Old Fashioned...Clover Club...or a Hot Toddy when I am under the weather. "I would hate to lose the little joys I still have in my life." I so understand this. I love dive bars, upscale lounges, and those in between. It is a world I love and have worked in for almost two decades. Parkinson's is easier when you still have the world you know best. But there is a price I pay for these joys, like I mention in my video, dyskinesia, ugh, and there is weakness too. It is incredible that if I go one single day without a beer, and when I wake up in the middle of the night, the difference in my mobility is remarkable. While I still partake I don't drink like I used to, and actually take some days off here and there, which back in the day I never did. Thank you for your comment!! Cheers to you!!
I have yopd too since 7 years but I don't take any medication ..love beer 🍻 where r u from?
That's amazing to have had yopd for seven years and not take any medicine!! I've never met anyone with Parkinson's who doesn't take medication!! How do you make that happen??
@@ParkinsonsWigglesProject I just manage with Ayurvedic TCM ACCUPUNTURE massage.,.. I just want to face now what will happen in 15years with medicines, medicines are not a cure just manage, so I bear pain stiffness slowness instead going for medication, 🙂
@@ashlax Yes, sadly there is no cure for Parkinson's! Only ways for us to manage our symptoms. I just got a 90 minute massage 2 weeks ago that my body so badly needed. Every time I get a massage I ask myself why don't I do this more often??? I am a big believer in massage!! I did acupuncture in the beginning but have found yoga super helpful as well : )
Hey Jennifer! Had to stop drinking a couple years ago, feels too much like concrete strapped to my ankles.
Only alcohol free beer for me now. Of well.
Hi David! There are a couple of good nonalcoholic beers available, I always seem to forget that as an option 🙃
Same story here
And when I don't drink I sleep soooo good!! 🥰
You Talking about drinking is like a turn on.... mMmmMM
Hello Jennifer, would it be possible to send me your email?❤
Hi Aurora! My email address is jennifer@thewigglesproject.com 🥰