Ren only seeing this now. Around 6 minutes in, you made me cry. You are a worrier, an angel of good and well-being 💗 I'm sorry you went through so much. I known you from Dance Camp Wales and been amazed with your talent since the first time I saw you on stage with your mates. You performed an incredible beatboxing chorus harmonies with melody, something I never saw anyone do 😍 Thank you for your perseverance. You have a message to deliver and many many songs to sing. Keep on shining dear one 💗 it's a journey, the destination is the journey. You got this! Blessings all the way 🙏💗🎸🎶🎵
I became ill with severe ME/CFS at 14 and am 68 now. So, 54 years (25 of them in Brighton!) of crippling fatigue, lost hopes, pain and suffering. I agree that accepting the illness makes it easier to bear. I am SO, SO HAPPY that you are recovering Ren and exploding into the world following Hi Ren, thank goodness you made it through and are able to give us your music and empathy. Sending you love and hope for even greater recovery and shining health!
Ohhh Ren.. I've been following you for the past 18 months and watching you explode with your release of Hi Ren (and now all your other work as they delve down the Ren rabbit hole whilst you're busy in Canada getting your long awaited treatment for all the damage caused by misdiagnosed Lyme Disease. This page makes me sad where you did and learnt everything you possibly could to treat conditions you didn't have, buy also happy because I have the benefit of knowing how far youve come and that All your efforts (and all that you've been through) has brought you to this point in your life where there is so much to rejoice and celebrate.
Good to see you Ren and good to know you're not crazee! x like what you say about the control, sounding very familiar, letting go has helped me so much. 😀 you're a star for sharing x
Ren you are a remarkable human being. You deserve all the success you’re having right now. I hope your treatment in Canada is working. I’ve had ME for half my life and you’re right that the scientists need to do SO MUCH BETTER. I’m praying that Ron Davis has a breakthrough. I know he’ll keep looking for a cure for his son Whitney. But we need more empathy from the medical profession and more funding from Governments.
Hi Ren, I am a fellow sufferer I rarely comment on anything but I have this overwhelming urge to to share with you just how similar a situation I have faced recently. I have had to truly accept the limitations this Illness brings and come to terms with accepting it. It took me many years to get to this point. I'm not ashamed to admit that I have made some poor choices throughout my recovery which at the time I thought were the right path, in turn learning from this has made me stronger at least from a physiological view point. I too hit my lowest point despite trying so hard, putting in everything I had it resulted in a major relapse. A lot of events within this period of my life and seeing my body and mind deteriorate caused me to loose the plot to, I had a breakdown I think due to unforeseeable events and fighting against the illness in the wrong way. My actions became unpredictable I developed twitches and just blurted stuff out, I was housebound for months I honestly felt my sanity was seriously compromised I am now on the mend. I can empathise with everything you said. The loss of control, the uncertainty, the fear I know I have never met you but it made me so happy to see that despite what your going through your personality shone through so brightly. Your determination and attitude will get you through this! you reminded me of myself so much at times that it scared me a little xD Your right empathy is a beautiful thing. You helped me remember that we are not alone. Thank you so much, I am so glad I found your channel. :-) I know this was posted a while ago I hope things have improved since then.
I am seeing your post in Dec 2023 - You are probably aware of REN’s situation being much better but still sick . I hope things improved for you as well.
Went through something similar mate, and I'm almost out on the other side! Toughest thing I've ever had to go through. The feeling of having no control is horrible, but you can learn something from that aswell I guess.. Great vid btw, I'd say 8 well spent minutes of my life :D before I got sick I was on my way to becoming a brain scientist and I'm gonna continue on that as soon as I feel it's realistic. I definitly wan't to contribute to finding out what the deal is whit this wierd illness. Hope you feel better soon
Hi, Ren! I hope you're feeling better! I really admire you as you smile and laugh even when it's difficult. I've had ME for 4 years now and I've finally found something that works for me and I'm finally starting to get my life back, but I'm really hoping you find something as well! I'm here if you ever need to talk, scream, cry, whatever :) Sending spoons and thoughts :)
Your post starts “ Hi , Ren “ and 9 yrs later Ren breaks the world apart with Hi REn . Karoline I hope you are ok and that you have had a chance to see How far Ren has come .
I feel like more young people should make vlog like this about this disease! I've had it for 4 years.....and I was getting better but now my health has taken a crapy turn.....i just keep researching getting my hopes up .... it doesn't work then the cycle continues. I'm not sure if this will ever end like you say. But I wish there was a community for the younger ppl who has this disease. I kissed away my most if my family, friends and dreams when I got sick. Cheers to M.E. for destroying every enjoyable aspect of a young persons life.
Sometimes it can be a med, or the illness, or a combination of all and life being overwhelming when you feel so bad all the time for yrs. I am on yr 18. We can do this together! As a group we are stronger. YOU ARE NOT ALONE!
I have no idea when, or if, you will ever see this, Ren, but given the way things have blown up on the internet with "HI Ren" I couldn't help but laugh. I've had your music on play solidly, daily, for close to (over?) a month. On a more serious note, it has to be frustrating that now, in addition to ME, long Covid now exists it the world. We definitely need to get our funding priorities in gear because every human being deserves their life to be fulfilling.
I spent first few years trying to figure it out !!! Then i got depressed realizing I live with it ... coming to terms .... etc etc and it’s not nice ! I don’t want to get your hopes up, but they are some research at Stanford university that looks promising .... I’m trying to meditate everyday and think how some monks zen gurus do that all the time by choice ... so it’s something to embrace !!
so simce u have food intolerances like i did and i had CFS too im guessing its a digestive problem, Finally they figured out i have pancreatitis without pain which may be autoimmune pancreatitis. did they do a stool elastase test? thats the only thing that came back abnormal out of dozens of gastroenterology tests. now that Im on Creon pills to replace the enzymes im feeling better and breathe again. so for me it mimicked mitchchondrial disease because i wasnt breaking down food. i also became anemic so the mitochondria werent getting oxygen so my lactic acid level was high and hands and feet would always burn
if anyone has seen serena summers' 2 videos its crazy how in the span of one year she went from just a little thing to a ginormous fuck up of a disease. It makes me scared sometimes of how bad mine might get :O
Ren only seeing this now. Around 6 minutes in, you made me cry. You are a worrier, an angel of good and well-being 💗 I'm sorry you went through so much. I known you from Dance Camp Wales and been amazed with your talent since the first time I saw you on stage with your mates. You performed an incredible beatboxing chorus harmonies with melody, something I never saw anyone do 😍 Thank you for your perseverance. You have a message to deliver and many many songs to sing. Keep on shining dear one 💗 it's a journey, the destination is the journey. You got this!
Blessings all the way 🙏💗🎸🎶🎵
What a beautiful message
great comment I think you meant "warrior" though
I became ill with severe ME/CFS at 14 and am 68 now. So, 54 years (25 of them in Brighton!) of crippling fatigue, lost hopes, pain and suffering. I agree that accepting the illness makes it easier to bear. I am SO, SO HAPPY that you are recovering Ren and exploding into the world following Hi Ren, thank goodness you made it through and are able to give us your music and empathy. Sending you love and hope for even greater recovery and shining health!
Sooooo damn happy you took up hours .... Days of my life .... Frankly, you will take part of my life ... #justsain' 2023
and just look at you now! Dream maker, sky shaker! 🎉🎉🎉
Ohhh Ren.. I've been following you for the past 18 months and watching you explode with your release of Hi Ren (and now all your other work as they delve down the Ren rabbit hole whilst you're busy in Canada getting your long awaited treatment for all the damage caused by misdiagnosed Lyme Disease. This page makes me sad where you did and learnt everything you possibly could to treat conditions you didn't have, buy also happy because I have the benefit of knowing how far youve come and that All your efforts (and all that you've been through) has brought you to this point in your life where there is so much to rejoice and celebrate.
Good to see you Ren and good to know you're not crazee! x like what you say about the control, sounding very familiar, letting go has helped me so much. 😀 you're a star for sharing x
Ren you are a remarkable human being. You deserve all the success you’re having right now. I hope your treatment in Canada is working. I’ve had ME for half my life and you’re right that the scientists need to do SO MUCH BETTER. I’m praying that Ron Davis has a breakthrough. I know he’ll keep looking for a cure for his son Whitney. But we need more empathy from the medical profession and more funding from Governments.
Hi Ren, I am a fellow sufferer I rarely comment on anything but I have this overwhelming urge to to share with you just how similar a situation I have faced recently. I have had to truly accept the limitations this Illness brings and come to terms with accepting it. It took me many years to get to this point. I'm not ashamed to admit that I have made some poor choices throughout my recovery which at the time I thought were the right path, in turn learning from this has made me stronger at least from a physiological view point.
I too hit my lowest point despite trying so hard, putting in everything I had it resulted in a major relapse. A lot of events within this period of my life and seeing my body and mind deteriorate caused me to loose the plot to, I had a breakdown I think due to unforeseeable events and fighting against the illness in the wrong way.
My actions became unpredictable I developed twitches and just blurted stuff out, I was housebound for months I honestly felt my sanity was seriously compromised I am now on the mend. I can empathise with everything you said. The loss of control, the uncertainty, the fear I know I have never met you but it made me so happy to see that despite what your going through your personality shone through so brightly. Your determination and attitude will get you through this! you reminded me of myself so much at times that it scared me a little xD Your right empathy is a beautiful thing. You helped me remember that we are not alone. Thank you so much, I am so glad I found your channel. :-) I know this was posted a while ago I hope things have improved since then.
I am seeing your post in Dec 2023 - You are probably aware of REN’s situation being much better but still sick . I hope things improved for you as well.
Awww Ren you're such an awesome and likeable character! I really hope you start to feel better soon
Went through something similar mate, and I'm almost out on the other side! Toughest thing I've ever had to go through. The feeling of having no control is horrible, but you can learn something from that aswell I guess.. Great vid btw, I'd say 8 well spent minutes of my life :D before I got sick I was on my way to becoming a brain scientist and I'm gonna continue on that as soon as I feel it's realistic. I definitly wan't to contribute to finding out what the deal is whit this wierd illness. Hope you feel better soon
Hi, Ren! I hope you're feeling better! I really admire you as you smile and laugh even when it's difficult. I've had ME for 4 years now and I've finally found something that works for me and I'm finally starting to get my life back, but I'm really hoping you find something as well! I'm here if you ever need to talk, scream, cry, whatever :) Sending spoons and thoughts :)
Your post starts “ Hi , Ren “ and 9 yrs later Ren breaks the world apart with Hi REn . Karoline I hope you are ok and that you have had a chance to see How far Ren has come .
I feel like more young people should make vlog like this about this disease! I've had it for 4 years.....and I was getting better but now my health has taken a crapy turn.....i just keep researching getting my hopes up .... it doesn't work then the cycle continues. I'm not sure if this will ever end like you say. But I wish there was a community for the younger ppl who has this disease. I kissed away my most if my family, friends and dreams when I got sick. Cheers to M.E. for destroying every enjoyable aspect of a young persons life.
Sometimes it can be a med, or the illness, or a combination of all and life being overwhelming when you feel so bad all the time for yrs. I am on yr 18. We can do this together! As a group we are stronger. YOU ARE NOT ALONE!
Ren you are Amazing ❤❤❤
I have no idea when, or if, you will ever see this, Ren, but given the way things have blown up on the internet with "HI Ren" I couldn't help but laugh. I've had your music on play solidly, daily, for close to (over?) a month.
On a more serious note, it has to be frustrating that now, in addition to ME, long Covid now exists it the world. We definitely need to get our funding priorities in gear because every human being deserves their life to be fulfilling.
I spent first few years trying to figure it out !!! Then i got depressed realizing I live with it ... coming to terms .... etc etc and it’s not nice ! I don’t want to get your hopes up, but they are some research at Stanford university that looks promising .... I’m trying to meditate everyday and think how some monks zen gurus do that all the time by choice ... so it’s something to embrace !!
❤
so simce u have food intolerances like i did and i had CFS too im guessing its a digestive problem, Finally they figured out i have pancreatitis without pain which may be autoimmune pancreatitis. did they do a stool elastase test? thats the only thing that came back abnormal out of dozens of gastroenterology tests. now that Im on Creon pills to replace the enzymes im feeling better and breathe again. so for me it mimicked mitchchondrial disease because i wasnt breaking down food. i also became anemic so the mitochondria werent getting oxygen so my lactic acid level was high and hands and feet would always burn
if anyone has seen serena summers' 2 videos its crazy how in the span of one year she went from just a little thing to a ginormous fuck up of a disease. It makes me scared sometimes of how bad mine might get :O
You are better now!💪💪💪👏👏👏
The overexposed ghost. More like underexposed ghost if u have Me or lyme right? XD
❤