Cindy, you don’t know me, but my mom was blessed to get a kidney transplant this past Saturday and I’m grateful for your videos. This has helped me, as a caregiver, be the support she needs. Thank you so much and you are blessing.
Thank you for being so open and honest. I have had 2 transplants and all forms of dialysis. People dont realise the hell that renal failure actually is xx
Dealing with side effects its better than going to Dialysis every MWF or TTS. GOD Bless every one who had a Kidney Transplant! I just had a transplant 4-17-2020
@cindyflores thank you very much! She is doing very well. After 8 years She no longer has to do dialysis. I am so happy for her! Hope you're doing well. God bless!
I was on dialysis for 9 years I just got a transplant It’s been a month now while on dialysis I never experienced any of the bad things most ppl experience I guess because of my age I started dialysis when I was 32 due to a bad pregnancy when I was in my 20’s it caused scarring on my kidneys but yet I still had function. And I didn’t have any other health issues but I wouldnt wish dialysis on anyone so I agree with u on that
I had my transplant 2 weeks ago. I am so happy I went through the procedure, it is very painful at first. However as you said it is getting better day by day I am eating more than I did before the transplant which I am very happy about. I was not on dialysis but I did lose a ton of eight pretransplant. It's great to see videos on UA-cam of other patients getting the words out there and doing well. Good luck Cindy!!!😁👍
Just wanted to share i received my Transplant March 7, 2019. After 4.5years on Dialysis. I love all your Videos they have been educational and have helped me in this process. God bless!
Gildardo Alcauter congrats on your transplant! And thank you! I really appreciate it 😊 happy my videos can help ❤️ God bless you on your road to recovery!
MadKrazyNluv CONGRATULATIONS I JUST READ YOUR COMMENT, HOW ARE YOU FEELING NOW THAT ITS BEEN A COUPLE OF YEARS NOW?? I’M GOING TO HAVE A KIDNEY TRANSPLANT ALSO, IVE BEEN GOING THROUGH ALL THE TESTS I GUESS TO MAKE AURE EVERYTHING ‘S OK WITH MY BODY SO DAR SO GOOD, THANK GOD & FOR ALL THE PEOPLE THAT ARE PRAYING FOR ME. I. JUST SAW YOUR COMMENT & IT JUST MAKES ME SO HAPPY TO SEE ANOTHER SUCCESSFUL TRANSPLANT SO GOD BLESS YOU.
I love your channel. I got my new kidney and pancreas on 3/29/2019 its great to talk...or listen to someone else speak about it that has been through it. I agree if you can get a transplant go for it! its a beautiful world after it!
I am relatively new to transplant. I just had a Kidney/Pancreas transplant on July 2, 2023. You have been spot on in everything you have said regarding missing details that the doctors do not seem to focus on telling you. One exception for me was that I have not been asked (yet) to have a biopsy on either the Kidney or Pancreas. My hair is falling out and has become so thin. I have an upcoming appointment so I have added this to list of questions I have that need to be answered. I also identify with you on the emotions that come with the whole transplant/medication experience. I too would find myself crying and not really knowing why I was crying. It makes me feel a little crazy but when you are juggling so many balls, I can see how emotions can get away from you. I had a fever that they tested me for every virus/bacterial infection under God's green earth. The findings were all negative until my White Blood Cell count continued to ebb downward. I then find out that between the Myfortic and Valcyte they both cause Leukopenia. One of the side effects of Leukopenia is Fever and cough, which I had both. Good luck with getting your surgeon on board to buy into this theory as he called it. He did decrease the Myfortic, which did stop the fevers (I had a fever everyday for 3 months only in the AM). Thank you so much for sharing your experience as I was really concerned about the hair loss and the emotional aspect of things. I hope all continues to go well with you. Thanks again and by the way, I subscribed.
May God keep you in all His ways Cindy ! Thank you dear for documenting your experiences with this ! I'm almost 65 and want to donate one of my kidneys to my grand nephew , he's so exhausted with dialysis !
I am a week out from my transplant and my creatine went from 7.1 the day before to 1.1 yesterday so it wasn't even a week and my creatine went down so much
Listened to this video because I went through a kidney transplant March of 2019. My daughter was the donor, God bless her heart. Coincidently, I also had a biopsy. PAINLESS. I could just be me, it could be the process, but for me, it was absolutely painless. Sorry yours didn’t turn out that way. Now, 21 months post transplant, I have had zero side effects on my medications. They are there for some, I’m lucky enough to have had none. Lastly, the stent from the bladder to the kidney removal was a much to do about nothing. Pain? None.........uncomfortable? For less than a second So for anyone that is going through the process of deciding to proceed with the transplant or is on the verge of one, the BENEFIT far exceeds any discomfort or pain you might experience. It is a life changing moment, go for it. You will not regret the change in your quality of life.
Wow what a blessing that you barely felt pain. You are a true warrior! And I agree 100% the benefits definitely out way the process and dialysis!! Wish you the best with your transplant 😊 God bless
@@cindyflores Thanks for the response. So glad there are people like you that deliver the information. It will sure help those that are considering a transplant, the gift of life. You are an inspiration to me, thanks again for your story.
Hi, Just now saw your video after searching for info on post transplant fatigue. I am 2 mos. post liver and kidney transplant on 3/4/2024! I am doing remarkably well except with the fatigue. Wow, your experience really speaks to me, although I feel so fortunate that I have not experienced many of the things you did. I'm subscribing! You are so very encouraging! Thanks and God bless!
I’m waiting to see if mine and my dads surgery get approved, they’ll present our case on Monday and hopefully god willing everything goes well and we get scheduled. 🙏🏼 my dads been in dialysis for almost a year and it’s really took a toll on him 😕 I hope that I can do this for him!
@@lillyrosie3849 you’ll have to go online and fill out some stuff then they send you some lab work and you take it to your drs office or local lab and theyll draw your blood and see if you match. If you match after that there’s a few more medical test you have to do to make sure you’re healthy enough and then they present your case to a boars of drs and they approve or reject it. We were approved by drs just waiting for insurance to approve now.
I received a kidney and small intestine one month ago today. My doctors were very clear about the process and side effects. My recovery is going extremely well.
Hi Cindy,thank you for your video.It’s been 5 years and 6 months on my kidney transplant.And thanks god still healthy.I still have falling hair(always cause our bathtub clog😀);It’s ok its just hair😀And i always watched what I eat eventhough you are allowed to eat anything except those processed food that is loaded of sodium and other chemicals. I never eat in a restaurant,stay away on a crowded place.Here in Quebec,Canada we don’t do biopsy often,the doctor ask for biopsy if they see something in the bloodworks but we do ultrasound in our kidney annually. Goodluck to all of us in our journey.And keep inspiring.Stay healthy.
I’m glad I found your page. I’ve been on hemo since July. I’m on a transplant list with Georgetown in DC. Were you on more than one list? And did you know your donor? I’m hoping I get a living donor. Dialysis sucks. My arm looks horrible and deformed from the fistula. Thanks for making these videos. Blessings to you!
No I was only at one list but I should have put myself on there list too. You should put yourself on the INOVA list and John Hopkins too. I was on the list for 2 and half years. I thought I was going to get a kidney quick on the waiting list because my doctors would always tell me that since I was young. However that didn't happen because I ended getting a kidney from my cousin :) Happy you found my channel as well :) its always good to know someone else in the DC metropolitan area is watching. God bless 🥰
I’m joining a family member at a first meeting about transplant for kidney and really appreciate you sharing your experience. It will help me as a listener and advocate for my family member who isn’t sure! Thank you!
I am 2 months post transplant and I have felt horrible most of these two months!! I felt so much better when I was doing dialysis. I’m currently dealing with a kidney stone in my new kidney that is blocking me from being able to pee so they had to place a nephrostomy tube/bag in me for me to be able to drain pee from the kidney. This stone caused my creatinine to jump up to a 6.4 and gfr of 14. 😱. I just want to get over all these problems and feel good again😭😭😭😭. I feel like its never going to happen because it seems to be one problem after another. Sorry for rambling. It’s nice to know there is other young ppl out there dealing with the same thing I am. You look amazing and look like you feel amazing!! I hope I can feel like that soon!!!! ❤️❤️❤️
wow thats crazy!! you are tough!! I know thats not easy, I never had kidney stones but I heard they are very painful! I am very sorry you are going through that. Hopefully everything will get better soon. Pray to God so everything can move smoothly according to his will. God bless you greatly and continue to be a warrior! 🥰
Dialysis four times a week and on transplant list. This was really helpful - thanks. And the music on hold, funniest thing I've seen this month. Thanks Cindy. Bless you, and stay healthy 🙂
On my end for stint removal, they told me to relax the pelvic floor and breathe, it's only when they enter the urethra that it pinches, but the removal was painless. As for the kidney biopsies, the only pain is when they froze me with lidocaine, as for the needle entering, no pain, but you feel pressure like pushing. Like you Cindy, my first biopsy after 3 months of my transplant revealed a beginning of acute rejection (mine was a humoral rejection). It was treated over a period of 2 weeks, then another biopsy 6 weeks after and revealed the success of the treatments. Just last week, at 13 months since my transplant, another biopsy to determine if all remains stable. I should have the results next week. In Quebec, the routine biopsies are at 3 months, then a year for the first year. Thanks again for your videos! 👍🙋🏻♀️❤️
thats very similar to here in the states! first 3 months, then annually. I am happy that the treatment worked to help your transplant!! Hopefully everything will look great this time around too!!
@ R C Congratulations ! I live in Quebec i never have had a biopsy since i received a kidney transplant.Not so sure if its really an SOP or it’s a case to case basis.
@ Ritch Oms, I am surprised you didn't get any biopsy. The protocal for the first year is usually 3 months then around the one year anniversary of a patient's transplant. In my case, the biopsy saved my kidney went it revealed the start of an acute rejection and my creatine was normal then. Thank goodness for biopsies! If not, I would of lost my kidney...
R C I’m so happy that your kidney is saved . My kidney works perfectly.It’s been 5 years and 6 months everything is perfect.Every 3-4 months I will do my bloodworks and ultrasound annually.Last check-up my creatinine is 45.Cannot ask for more.I will have an appointment at the end of the month ,i will ask my Nephro Doctor.Thank you.
Holy I lost 80% of my hair and I was shocked and devasteated being a woman. It’s finally shoulder length coming on my 5 year anniversary. I had my transplant and felt great for the first 2 weeks and all of a sudden I got super sick. My stomach essentially stopped working. 2 emergency surgeries and 5 years later I’m feeling way better. First 3 years were hard
Bob Smith happy you found my channel then! I share a lot of videos about kidney transplant, had mines 2 years ago. God bless you and your brother, wishing him the best on his journey!
I been on dialysis 7 years I am finally getting my transplant next week on wensday my mom is my donor I ammmm sooooo scared thank you. For your experience and sharing ! 😣😣
I’m going to be getting a transplant dec 9th. I’m going to watch your videos leading up to that date. You seem very informative and I’m thankful for the insight! God bless you and all of us in this process
I did not know I was going to have a stent until two days AFTER the transplant!!! I was irate to say the least. Fortunately, or unfortunately, depending on how you look at it, I had had a cystoscopy over 20 years before I knew enough to make sure that I found the urologist who would give me general anesthesia for the stent removal. that was the most shocking ation at first surgery but having a central line in my neck and a drainage tube, my abdomen also surprises. Surprise! I made sure that I asked for maximum pain medication that they would give me 20 or 30 minutes before removal of both of those lines, plus the Foley catheter removal. I hope you are well now. Cheers.
In Scotland I had kidney biopsies in May 2016. I was stable for about a year by Sep 2017 I was told I would be starting dialysis and wouldn't be able to have children or travel. In Jan 2018 my egfr stabilised at 17%... i was monitored by Dec 2018 my function is now at 10%. Next week (first week of 2019) I will be getting my pd catheter placed. I have been on transplant list since mid August 2018. X thank you for your vlogs x
I am sorry you having to start a new year like this but you are not alone and as long as you stay positive and keep believing the process God is taking you through, then you will find peace. Really watch your diet and drink a lot of water! God bless you 💕
At the age of 37, I went into a coma from kidney failure and spent the next three in half years on dialysis. I have been fortunate enough to have the same kidney for 25 years. I am currently living in Idaho, but the doctors tell me I need to move back to Utah. Unfortunately, one of the challenges is finding affordable housing. Be aware, this could be a challenge for many in the future. If I could be back in Utah where the great specialists are, I would do so. The first year after transplantation is a wonderful experience because you feel better than you ever have. My advice to others on this road is to talk with other patients who have been through this, that way you get the medical perspective as well as the practical. Patients have a vast knowledge that needs to be shared.
I got a kidney- pancreas transplant April 2006, now going through a kidney rejection. Going soon on the waiting list again. I’m ready to keep fitting for this amazing life. Never experience any side effects, I’m very thankful!
I am 18 months post transplant and yes…the stent removal sucks. Also, going through rejection was very painful, the cure of massive doses if prednisone was horrible. I went from 265 pounds to 325 pounds very quickly. I am slowly taking it off despite being on daily prednisone. In the medication adjustment phase, I was hospitalized multiple times due to infections. My restless legs during dialysis went away, but the neuropathy (non diabetic) in my feet is brutal. The last 6 months is the longest I have gone without having to go to the ER/Hospital. It has been absolutely rough and hard, and I would do it again and again to stay off of dialysis!!!! Thank you so much to my donor!!!! He makes me want to be successful with this!!!
Cindy, I just want to congratulate you on your new kidney and thank you for sharing this information. I was diagnosed with Polycystic Kidney Disease when I was 21. I am now 46 and last December 2018, I started dialysis. My nephrologist just told me this past Wednesday that he wants me to have a transplant. Now, I'm not sure what's ahead for me. I just know both of my kidneys are extremely large and full of huge cysts. So, in my case, I'm not sure if I'll only get one kidney or two. I'm doing some research right now. I chose a hospital down in Danville, PA called Geisinger. I live a couple of hours away from there. Dr. Stainbrook mentioned I would have to go there a lot for all my tests and whatnot before I can get my new kidney or kidneys. I am petrified! I deal with chronic pain in my low back and hips and just the thought of being under for a long long time scares me sooooo much! Just with simple surgeries, I wake up with horrible back pain. My living situation is bad right now. I hope I can find a place soon. I do have four kitties and am very stubborn about getting them rehomed. I hope I can find a big enough place to give them their own room while this transplant stuff is going on. I read somewhere that you cannot sleep with your pets and in my case, clean litter pans because of the toxins. Everyone is pressuring me to get rid of my babies. I am single so I don't even have a companion to help me. Do you know anything or anyone who reads this knows anything that I can do to keep these furbabies of mine? Is there some kind of help out there that can help me and be covered by Medicare and Medicaid? I'm disabled and don't know where to turn. I have yet to watch your transplant journey. I would love to vlog mine. That being said, I not only wish you great health and happiness but also anyone who is or did get a transplant. God bless! And Blessed Be!
My mom is 10 years out from transplant ,she has no issues with anti rejection meds anymore they get weaker and weaker till they go away she had hers at 63 and she is still going strong 💪she gained wait but not much but it was because she felt better and her appetite came back I was just listed on unos at Phoenix mayo July 2020
My wife transplant but donor had viruses they didn’t know now they removed kidney and she been hospitalized month now I hope we go home soon and she feel better I guess some body didn’t really check desease. Donor history before putting pt
Dear Cindy, Thank you for sharing you Kidney transplant experience. Hope and you will continue stay healthy in Jesus name. If I may share Kidney transplant journey. July 2023 as you know there's a lot of test just to qualify. My last test December 28 2023 . I received a call the hospital, letting me know they found a donor. My new Birthday January 9 2024. It's been almost 5 months, the Kidney is doing well. It's changed my life 😊❤. Never give Hope all that are waiting. My prayers to all that that had Kidney transplant all are waiting!!
hi Cindy..... so good to see you doing better. I have watched almost every video of yours and has really helped me prepare for my brothers transplant. I wanted to ask if you have any idea of how soon can you travel on a plane after transplant. He is getting his kidney transplant abroad and will be traveling back to united states after his transplant.
I was told by my doctors that I had to wait 90 days. But if he is traveling back make sure he protects himself really good, mask and everything. I honestly wouldn't recommend he travels back so soon because the first weeks/ months of transplant are the hardest. Also you get sicker those first few months.
I had a transplant abroad and travel back to united states after 1 month. I did great. I wore mask and always hand sanitize in airplane. 8mos post transplant.
as a kidney transplant patient of 20 years I wouldn't recommend it. Everything you have to put up with afterwards it will turn you into a recluse and isolate you and make you hate yourself and regret ever agreeing to it. It's not worth it
I am sorry to hear that you feel that was. A lot of people have different experiences with transplant. In my case I feel so blessed and grateful for it because I was suffering too much on dialysis. If you don't mind me asking, what are complains about transplant?
@@cindyflores it's not as great as some people think it is, I stopped my medication in January and basically waiting for it to fail because I've had enough
Thank u you been helping inform me I’m 14 years old and I got a donar who was willing to donate me from the waiting list and I been wondering a lot about the transplant and dialysis
Your videos help me a lot because last year on April 15 2019 my wish came true I was so excited and scared at the same time 😬 but it worth it I wait for my kidney for 6 long years
I haven't had a transplant yet I'm almost CKD stage 5 so it's almost time to get on the list I don't think it's going to be easy to find somebody so I might have to start dialysis first. But I'm pretty hopeful. I read the comments and it makes me feel good. Cuz 17 years ago when I found out I had kidney problems I thought it was a death sentence. But seeing all these people talk about their experiences makes me feel like it's a life sentence
Thank you for sharing your experience. Suffered a NDE JUN23, and because of a bacterial infection from VIBRIO, I was put on dialysis. Since going to treatment 3x/week, the emotional rollercoaster this past year has taken its toll on me. Been trying to do research on beginning the process to get a transplant especially the cost involved and where to go. What did you you do to get the process started and what are the upfront costs associated with it? God's blessings to you on your road to recovery.
Hi, I didn't find the stent removal painful at all. Yes I too have put on weight😔 My hair actually got better but I have a blood clotting disorder and am on Clexane injection to thin my blood so it affected my hair very badly. I was on dialysis for 20 years. You only have a kidney biopsy if there is something wrong with the kidney transplant, as biopsy carries a risk of irreparably damaging the kidney. I was told this with my first kidney I got at age 23. I now have my 3rd and it is great😊 I'm 46.
I've been on dialysis for almost a year. Im 30. I'm going next week for my evaluation. The while process scares me so bad. It's so hard but I want it so bad I'll do anything to be normal again.
When my foley was removed the stent was somehow pulled with it. I was wondering why everytime I got up and out of bed I was having pains. When I told my transplant team the next day. My surgeon said I gave him one less job to do. They asked me what came to my mind when I saw it. I asked the surgeon if he was hungry before my operation. He reminded me of this. ua-cam.com/video/2RQS-2iiBXE/v-deo.html
I am 70 yrs old. Been on dialysis since 4/9/18. Moved to Joplin Mo from San Diego because of the wait time. Getting aorta repair on 7\11.. THEN will go on transplant list in 2 states..Ks and Mo.
Dear all, can you all mention the cost ,hospital where the operation took place, and creatinine level at the time of operation and your age. Your reply will be appreciated. Doctors suggest to do kidney transplant for my dad who is 56 now and his creatine value is 3.7
Thank you for your video. I've had type 1 diabetes since I was 8 . Now Im 34 and have 2 kids and stage 4 CKD. My mom. Use to tell me when I was a kid that a transplant day might come and I've been scared my whole life about it. I was fine before I had my kids. I know my pregnancies sped up my CKD but my kids are worth it. Still not sure where my future stands with dialysis or a transplant but my nephrologist said a transplant is inevitable
yes, that's a down side of having a transplant, however my hair is slowly growing back. A lot of my hair loss had was due to stress as well. Wish you the best! God bless!
Yeah I was already to have My transplant two weeks before Covid-19 I was devastated but I guess it just wasn’t meant to happen now my GFR is stable at 18 percent my leaving donor is A heavy smoker and drinker and getting old so I have pretty much given up on that but always try to be positive.🙏
I so exciting, glad i found someone to connect with, im going to have a kidney transplant soon and wanted to know whats going on, you are very helpful.
Thank you!! I am so happy you found my channel as well! When I got my transplant I didn't know what to expect and I couldn't find anyones story on here so I told myself I would share mines and try to help others. God bless💕
I just hit my 4yr anniversary March 14 my first three months is as you said it’s a roller coaster of emotions. Also true cellcept did cause a lot of hair loss. I was never in and of hospital after surgery for any reason or did I ever have a biopsy done at anytime it’s a matter of taking all your meds twice a day eating right and exercising. Also it’s important to do your blood work before seeing your Kidney dr so they can adjust meds as well as monitor kidney functions to make sure kidney is healthy. Another important thing that medications such as anti rejection med also raise blood sugars so it’s important if your diabetic to be aware of this also. God Bless every donor and patient who receives a new life
@@cindyflores dear sir. Mam my name is vinay I am coming in poor family I need help plese give some found plese help me my email I'd vinayck.Ckm@gmail.com please help request
Just stumbled on your video. There is a lot they don't tell you about the whole process of kidney failure and transplant. And post operation and life after I'm 12 years on Kidney Transplant. Hope your okay thank you for yoyr video.
pay attention to you doctor more when he/she is explaining the entire process.i am donor to my brother, and my doctors covered all aspect of the surgery - pre and post.
I have been on dialysis 3 years now. I am on the transplant list. I was offered a kidney yesterday but declined and had cold feet. I was scared to go through with it. Thanks for the video. I'll be braver next time.🤗
Aww man I wish you would have taken it I promise you it’s a 100x times better then dialysis! Yes it’s a process but it is well worth it! God bless warrior 😊
I'm glad I found you and that you are doing these videos! There is not a lot of information on UA-cam for patients and what to expect. I had a kidney transplant in January down at Mayo in Phoenix. If you get a chance, check out my videos on my channel as well.
Good morning beautiful messages, my 11 year old had transplant 3 day,s ago medication training is today.I had no ideal what to expect thank you for everything. Her u tube page is Davasia's Kidney Journey.
I got a kidney transplant on November 10 2018 due to Lupus and I can relate to everything you’re saying because I have experienced everything you have talked about except the 3 mo biopsy . I am now experiencing depression but I think that it’s due to the prednisone but don’t get me wrong I am great full to have my life back to normal I’m just feel depressed all of a sudden 😔
congrats on your transplant ! and i'm sorry to hear about the depression, thankfully I never have experience that. Have you tried praying? going out? surrounding yourself with good company? if not definitely should! God bless you 🥰
Cindy Flores thank you for the advice I do pray a lot actually, I think it has to do with the medication and also the fact that my mom passed away the previous year in December and she was my biggest supporter and she didn’t get to see me get the transplant so it makes me 😔 but I have been getting out a little more so I’m working on me 😊
I was transplanted 8/2020 I’m fine yes there’s side effects but I have to accept it cause I don’t like dialysis.I got biopsy and yes I deal with it .I’m just happy I don’t have any regrets I live a full happy life. My pugs are my life changer ❤❤
I hope it went ahead and I hope you are well! I received mine on 5th august 2019, I’m still in shock because it happened so quick but it’s such a great blessing and I’m so grateful
I'm going through this. I'm glad I found your channel about this. Still waiting. There is so much different info about matching blood type. I need to know the matches.
I got my kidney transplant 23yrs ago. On stage 3-4 now. Thank you for sharing your experience. It’s really important to share our unique experience to help others going through the same thing. 🙏🏻
Same!! I was 102 before transplant and now I am 121 but I’m only 5 foot 😭 I work out and recently cut out sweets and still not budging. The weird thing is my weight gain didn’t start until after year two, aside from a healthy 5 pounds. My hair started falling out, too. The mood swings I find to be the most difficult, though. 😭🥰😡😞😉 it’s like a roller coaster of emotions and it’s obnoxious. You feel like a crazy/unstable person. And every time I find myself grumpy or irritable for no reason it’s a huge shock even though I’ve been taking steroids for over 20 years. Awkward question to some I suppose - but was your first period after transplant the most painful one of your life or what?!? Sorry if TMI for anyone :)
weight gain sucks when you're happy with your current weight haha. I don't go through mood swings but I honestly believe its because of prayer. Don't let the side of effects of pred. stop you from the real you. I know medically speaking its a side effect but for God nothing is impossible and when you ask him to give you patiences and help you not to swing from mood to mood then he will. And I can't remeber my first period! I have just happy because I hadn't had it in a while prior to that haha God bless you😊Keep fighting the good fight❤️
Hai Reese, don't worry about ur weight try to workout and have a diet. Before my transplant my weight is 49 but Itz 80. Whenever I go for my medical check up doctor will scold me to reduce weight. The reason is that when we gain weight their protein leakage, which cause failure. I can recommend you that to stop non vegetarian or have occasionally. It will definitely show result but I am not is deit because I am staying hostel. Then about mood change.... Definitely I get mood change hourly most of the time I will b in depression or anger or blank like a white paper so most of the time I watch funny videos, k drama I loved it😁 or engaged to something which I like or engage with some social work. Firstly understand ourself. Then about period my transplant was on February 1 2007. It start on 31 January night, but God grace no pain. Definitely it's irregular so I don't mind it😅. Other problem is moonface buffalo hump, facial hair I have more than my brothers🤣🤣🤣but it s giving a beauty so I love my facials hair 🙂. So don't worry about anything. Do whatever u like and b happy... Enjoy ur new life... there will b some problem. But we are real warrior😜. Pray to God. Thanks to him for every seconds for caring us. May God bless you. Fightinggggggg
You speak the truth. I am still experiencing hairloss still. I am going to try biotin.its been 6 months for me. I did got a biopsy during my 4th month.. I waited 4yrs. I did pd for 3 yrs and switched to hemo after the 3rd yr..
thank you so much for sharing your experience. How long can you stay with your new kidney? Will you need to transplant an another kidney in the future?
I'm in end stage kidney failure on dialysis. Thinking of getting a transplant but I smoke weed. Did they drug test you on your pre transplant evaluation and if so was it urine blood or hair??
They do not drug test for the pre evaluation but I highly recommend not to spoke weed during the purpose, it might slow you down. Hope that helps! Blessings😊
Cindy, you don’t know me, but my mom was blessed to get a kidney transplant this past Saturday and I’m grateful for your videos. This has helped me, as a caregiver, be the support she needs. Thank you so much and you are blessing.
Thank you for being so open and honest. I have had 2 transplants and all forms of dialysis. People dont realise the hell that renal failure actually is xx
I will be donating my kidney on March, please send us your prayers. Thank you so much ❤️
I just prayed for you brother
God bless you
Sending you love
Andres how are you doing ? I pray you doing very well. Please eat healthy . And don't gain any weight.
This is awesome!!
Dealing with side effects its better than going to Dialysis every MWF or TTS. GOD Bless every one who had a Kidney Transplant!
I just had a transplant 4-17-2020
May I ask what are your side effects?
@@imblinkz did you had any?
Transplant is better than Staying on dialysis without drinking water,its a worst life.
Exactly
Hope you're doing well ❤
I got my transplant 29 years ago
wow!! amazing!! Can you please tell me what you do to have such success with your transplant! Please I would really want to know! God bless
@@cindyflores i think its just been good luck, im only working on about 16% now though
Cindy Flores you have to eat right. exercise be positive everyday and pray to God for giving you miracle.
@cindy I've had a kidney transplant for 3 years it's working 65% I eat good in exercise and thank God for the miracle that he gave me.
How long transplanted kidney works
..
My lady is getting her kidney transplant today. I pray all goes well like yours did 🙏
That is amazing!! Praying she is having a good recovery.
@cindyflores thank you very much! She is doing very well. After 8 years She no longer has to do dialysis. I am so happy for her! Hope you're doing well. God bless!
I will be having my Transplant this week.... I am nervous though... Please put me in your prayers
Prayers sent your way!
Mustapha Olukorede I will. I hope you are coping ok post transplant.🙏🏾
Pray for you.
How did it go?
How are you brother?
I’m giving one of my kidneys to my wife soon. I would not let her go through dialysis if I can do something about it.
whish you both all the best from the bottom of my heart! passing thru the same here...
Please let us know how things went out and I hope our God give you both a long life you are the kind of persons that should go tru heaven
I was on dialysis for 9 years I just got a transplant It’s been a month now while on dialysis I never experienced any of the bad things most ppl experience I guess because of my age I started dialysis when I was 32 due to a bad pregnancy when I was in my 20’s it caused scarring on my kidneys but yet I still had function. And I didn’t have any other health issues but I wouldnt wish dialysis on anyone so I agree with u on that
Love and respect for you.
Wish you the best..
I had my transplant 2 weeks ago. I am so happy I went through the procedure, it is very painful at first. However as you said it is getting better day by day I am eating more than I did before the transplant which I am very happy about. I was not on dialysis but I did lose a ton of eight pretransplant. It's great to see videos on UA-cam of other patients getting the words out there and doing well. Good luck Cindy!!!😁👍
Just wanted to share i received my Transplant March 7, 2019. After 4.5years on Dialysis. I love all your Videos they have been educational and have helped me in this process. God bless!
Gildardo Alcauter congrats on your transplant! And thank you! I really appreciate it 😊 happy my videos can help ❤️ God bless you on your road to recovery!
thats exactly when i had my Transplant March 7th. hope u r recovering well
Dalia Elnaggar hope your doing good too 😊 God bless both of y’all ❤️
@@dandash2007 awesome! Now we are "the gift of life twins" lol Pray all goes well for you in the recovery process as well :)
Hi That’s my KidneyVersary also 😃💚 I made four years. 3.7.2017
Stay Strong!
I have had my transplant 10 yrs
Was this a deceased Tranplant?
My sister (17) just had her transplant on 4/25 and I’ve shared your videos with her. They give her comfort. Thank You Very Much.
How much did cost In transplant?
Wish you the best. I got my kidney implanted January 17, 2017.
thank you!! Congrats hope its been a great year for you :)
How many times a person can get a transplant?
MadKrazyNluv CONGRATULATIONS I JUST READ YOUR COMMENT, HOW ARE YOU FEELING NOW THAT ITS BEEN A COUPLE OF YEARS NOW?? I’M GOING TO HAVE A KIDNEY TRANSPLANT ALSO, IVE BEEN GOING THROUGH ALL THE TESTS I GUESS TO MAKE AURE EVERYTHING ‘S OK WITH MY BODY SO DAR SO GOOD, THANK GOD & FOR ALL THE PEOPLE THAT ARE PRAYING FOR ME. I. JUST SAW YOUR COMMENT & IT JUST MAKES ME SO HAPPY TO SEE ANOTHER SUCCESSFUL TRANSPLANT SO GOD BLESS YOU.
lathif mohamed -I doubt there is a limit. Kidneys are hard to come by however.
Someone with kidney transplant please chat me in wats ap +639103101300..
I love your channel. I got my new kidney and pancreas on 3/29/2019 its great to talk...or listen to someone else speak about it that has been through it.
I agree if you can get a transplant go for it! its a beautiful world after it!
iman barnes did you have diabetes
How are you feeling now?
I am relatively new to transplant. I just had a Kidney/Pancreas transplant on July 2, 2023. You have been spot on in everything you have said regarding missing details that the doctors do not seem to focus on telling you. One exception for me was that I have not been asked (yet) to have a biopsy on either the Kidney or Pancreas. My hair is falling out and has become so thin. I have an upcoming appointment so I have added this to list of questions I have that need to be answered. I also identify with you on the emotions that come with the whole transplant/medication experience. I too would find myself crying and not really knowing why I was crying. It makes me feel a little crazy but when you are juggling so many balls, I can see how emotions can get away from you. I had a fever that they tested me for every virus/bacterial infection under God's green earth. The findings were all negative until my White Blood Cell count continued to ebb downward. I then find out that between the Myfortic and Valcyte they both cause Leukopenia. One of the side effects of Leukopenia is Fever and cough, which I had both. Good luck with getting your surgeon on board to buy into this theory as he called it. He did decrease the Myfortic, which did stop the fevers (I had a fever everyday for 3 months only in the AM). Thank you so much for sharing your experience as I was really concerned about the hair loss and the emotional aspect of things. I hope all continues to go well with you. Thanks again and by the way, I subscribed.
May God keep you in all His ways Cindy !
Thank you dear for documenting your experiences with this ! I'm almost 65 and want to donate one of my kidneys to my grand nephew , he's so exhausted with dialysis !
I am a week out from my transplant and my creatine went from 7.1 the day before to 1.1 yesterday so it wasn't even a week and my creatine went down so much
Listened to this video because I went through a kidney transplant March of 2019. My daughter was the donor, God bless her heart.
Coincidently, I also had a biopsy. PAINLESS. I could just be me, it could be the process, but for me, it was absolutely painless. Sorry yours didn’t turn out that way.
Now, 21 months post transplant, I have had zero side effects on my medications. They are there for some, I’m lucky enough to have had none.
Lastly, the stent from the bladder to the kidney removal was a much to do about nothing.
Pain? None.........uncomfortable? For less than a second
So for anyone that is going through the process of deciding to proceed with the transplant or is on the verge of one, the BENEFIT far exceeds any discomfort or pain you might experience.
It is a life changing moment, go for it. You will not regret the change in your quality of life.
Wow what a blessing that you barely felt pain. You are a true warrior! And I agree 100% the benefits definitely out way the process and dialysis!! Wish you the best with your transplant 😊 God bless
@@cindyflores Thanks for the response.
So glad there are people like you that deliver the information. It will sure help those that are considering a transplant, the gift of life.
You are an inspiration to me, thanks again for your story.
Hi, Just now saw your video after searching for info on post transplant fatigue. I am 2 mos. post liver and kidney transplant on 3/4/2024! I am doing remarkably well except with the fatigue. Wow, your experience really speaks to me, although I feel so fortunate that I have not experienced many of the things you did. I'm subscribing! You are so very encouraging! Thanks and God bless!
This was very informative. My Wife just had her transplant scheduled I'm glad you are able to share this information.
I had a kidney transplant as well. I'm 9 yrs post transplant.
Shevonne Worley same here. Feel good and still losing some weight.
I’m a kidney transplant paitent I will be 11 years post transplant this coming august
I’m waiting to see if mine and my dads surgery get approved, they’ll present our case on Monday and hopefully god willing everything goes well and we get scheduled. 🙏🏼 my dads been in dialysis for almost a year and it’s really took a toll on him 😕 I hope that I can do this for him!
Sister I just prayed for you in your dad what your doing is such a selfless act God bless you in Jesus mighty name
I'm trying to donate mines to dad his is working only 15percent hasn't started dialysis how can iknow if we match
@@lillyrosie3849 you’ll have to go online and fill out some stuff then they send you some lab work and you take it to your drs office or local lab and theyll draw your blood and see if you match. If you match after that there’s a few more medical test you have to do to make sure you’re healthy enough and then they present your case to a boars of drs and they approve or reject it. We were approved by drs just waiting for insurance to approve now.
Hi..how dd it go
I received a kidney and small intestine one month ago today. My doctors were very clear about the process and side effects. My recovery is going extremely well.
How r u now dear?
Hi Cindy,thank you for your video.It’s been 5 years and 6 months on my kidney transplant.And thanks god still healthy.I still have falling hair(always cause our bathtub clog😀);It’s ok its just hair😀And i always watched what I eat eventhough you are allowed to eat anything except those processed food that is loaded of sodium and other chemicals. I never eat in a restaurant,stay away on a crowded place.Here in Quebec,Canada we don’t do biopsy often,the doctor ask for biopsy if they see something in the bloodworks but we do ultrasound in our kidney annually.
Goodluck to all of us in our journey.And keep inspiring.Stay healthy.
Thank you do much for your tips!! God bless and as well and stay healthy too! 💕
I’m glad I found your page. I’ve been on hemo since July. I’m on a transplant list with Georgetown in DC. Were you on more than one list? And did you know your donor? I’m hoping I get a living donor. Dialysis sucks. My arm looks horrible and deformed from the fistula. Thanks for making these videos. Blessings to you!
No I was only at one list but I should have put myself on there list too. You should put yourself on the INOVA list and John Hopkins too. I was on the list for 2 and half years. I thought I was going to get a kidney quick on the waiting list because my doctors would always tell me that since I was young. However that didn't happen because I ended getting a kidney from my cousin :) Happy you found my channel as well :) its always good to know someone else in the DC metropolitan area is watching. God bless 🥰
Made it to my annual back in September. Feeling great! It has been a long journey, but worth it!
Great video.. Congratulations. And keep up the good work.. God bless you.
Thank you😊
I’m joining a family member at a first meeting about transplant for kidney and really appreciate you sharing your experience. It will help me as a listener and advocate for my family member who isn’t sure! Thank you!
I am 2 months post transplant and I have felt horrible most of these two months!! I felt so much better when I was doing dialysis. I’m currently dealing with a kidney stone in my new kidney that is blocking me from being able to pee so they had to place a nephrostomy tube/bag in me for me to be able to drain pee from the kidney. This stone caused my creatinine to jump up to a 6.4 and gfr of 14. 😱. I just want to get over all these problems and feel good again😭😭😭😭. I feel like its never going to happen because it seems to be one problem after another. Sorry for rambling. It’s nice to know there is other young ppl out there dealing with the same thing I am. You look amazing and look like you feel amazing!! I hope I can feel like that soon!!!! ❤️❤️❤️
wow thats crazy!! you are tough!! I know thats not easy, I never had kidney stones but I heard they are very painful! I am very sorry you are going through that. Hopefully everything will get better soon. Pray to God so everything can move smoothly according to his will. God bless you greatly and continue to be a warrior! 🥰
Thank you so much sweet heart and I have been praying hard!!! ❤️
How r u doing now?.
Angel5 I’m doing great now 😊 thank you
@@cindyflores Good luck and take care of your kidneys.
Dialysis four times a week and on transplant list. This was really helpful - thanks. And the music on hold, funniest thing I've seen this month. Thanks Cindy. Bless you, and stay healthy 🙂
On my end for stint removal, they told me to relax the pelvic floor and breathe, it's only when they enter the urethra that it pinches, but the removal was painless.
As for the kidney biopsies, the only pain is when they froze me with lidocaine, as for the needle entering, no pain, but you feel pressure like pushing.
Like you Cindy, my first biopsy after 3 months of my transplant revealed a beginning of acute rejection (mine was a humoral rejection). It was treated over a period of 2 weeks, then another biopsy 6 weeks after and revealed the success of the treatments.
Just last week, at 13 months since my transplant, another biopsy to determine if all remains stable. I should have the results next week.
In Quebec, the routine biopsies are at 3 months, then a year for the first year.
Thanks again for your videos! 👍🙋🏻♀️❤️
thats very similar to here in the states! first 3 months, then annually. I am happy that the treatment worked to help your transplant!! Hopefully everything will look great this time around too!!
@ R C Congratulations ! I live in Quebec i never have had a biopsy since i received a kidney transplant.Not so sure if its really an SOP or it’s a case to case basis.
@ Ritch Oms, I am surprised you didn't get any biopsy. The protocal for the first year is usually 3 months then around the one year anniversary of a patient's transplant. In my case, the biopsy saved my kidney went it revealed the start of an acute rejection and my creatine was normal then. Thank goodness for biopsies! If not, I would of lost my kidney...
R C I’m so happy that your kidney is saved . My kidney works perfectly.It’s been 5 years and 6 months everything is perfect.Every 3-4 months I will do my bloodworks and ultrasound annually.Last check-up my creatinine is 45.Cannot ask for more.I will have an appointment at the end of the month ,i will ask my Nephro Doctor.Thank you.
Ritch Oms So great that your kidney is functioning so well. Wow! Creatine at 45 👍
I got my kidney three months ago and im doing great thank god.
That is amazing! Congrats on your transplant!!
Holy I lost 80% of my hair and I was shocked and devasteated being a woman. It’s finally shoulder length coming on my 5 year anniversary. I had my transplant and felt great for the first 2 weeks and all of a sudden I got super sick. My stomach essentially stopped working. 2 emergency surgeries and 5 years later I’m feeling way better. First 3 years were hard
I got transplanted 4 days ago! The pain is brutal but overall good. My mom was a 100% match m. The meds were hard to tolerate at first.
How r u now dear?
My brother just got a kidney transplant. So, I am here to learn.
Bob Smith happy you found my channel then! I share a lot of videos about kidney transplant, had mines 2 years ago. God bless you and your brother, wishing him the best on his journey!
I been on dialysis 7 years I am finally getting my transplant next week on wensday my mom is my donor I ammmm sooooo scared thank you. For your experience and sharing ! 😣😣
I’m going to be getting a transplant dec 9th. I’m going to watch your videos leading up to that date. You seem very informative and I’m thankful for the insight! God bless you and all of us in this process
Hi how are you. I seen this and prayed for you
I'm getting a kidney transplant on Dec 2nd. Im very nervous but these videos help
I did not know I was going to have a stent until two days AFTER the transplant!!! I was irate to say the least. Fortunately, or unfortunately, depending on how you look at it, I had had a cystoscopy over 20 years before I knew enough to make sure that I found the urologist who would give me general anesthesia for the stent removal. that was the most shocking ation at first surgery but having a central line in my neck and a drainage tube, my abdomen also surprises. Surprise! I made sure that I asked for maximum pain medication that they would give me 20 or 30 minutes before removal of both of those lines, plus the Foley catheter removal. I hope you are well now. Cheers.
In Scotland I had kidney biopsies in May 2016. I was stable for about a year by Sep 2017 I was told I would be starting dialysis and wouldn't be able to have children or travel. In Jan 2018 my egfr stabilised at 17%... i was monitored by Dec 2018 my function is now at 10%. Next week (first week of 2019) I will be getting my pd catheter placed. I have been on transplant list since mid August 2018. X thank you for your vlogs x
ellie m You will make it, and you’re not alone.
I am sorry you having to start a new year like this but you are not alone and as long as you stay positive and keep believing the process God is taking you through, then you will find peace. Really watch your diet and drink a lot of water! God bless you 💕
At the age of 37, I went into a coma from kidney failure and spent the next three in half years on dialysis. I have been fortunate enough to have the same kidney for 25 years. I am currently living in Idaho, but the doctors tell me I need to move back to Utah. Unfortunately, one of the challenges is finding affordable housing. Be aware, this could be a challenge for many in the future. If I could be back in Utah where the great specialists are, I would do so. The first year after transplantation is a wonderful experience because you feel better than you ever have. My advice to others on this road is to talk with other patients who have been through this, that way you get the medical perspective as well as the practical. Patients have a vast knowledge that needs to be shared.
I'm living kidney donor. I'm ready to donate kidney. I'm young and healthy
I lost over 60lbs while on dialysis and I put it all back, but I've had other issues. But I also have other issues. The prednisone does contribute.
I got a kidney- pancreas transplant April 2006, now going through a kidney rejection. Going soon on the waiting list again. I’m ready to keep fitting for this amazing life. Never experience any side effects, I’m very thankful!
I am 18 months post transplant and yes…the stent removal sucks. Also, going through rejection was very painful, the cure of massive doses if prednisone was horrible. I went from 265 pounds to 325 pounds very quickly. I am slowly taking it off despite being on daily prednisone. In the medication adjustment phase, I was hospitalized multiple times due to infections. My restless legs during dialysis went away, but the neuropathy (non diabetic) in my feet is brutal. The last 6 months is the longest I have gone without having to go to the ER/Hospital. It has been absolutely rough and hard, and I would do it again and again to stay off of dialysis!!!! Thank you so much to my donor!!!! He makes me want to be successful with this!!!
5 years now since my kidney transplant ..... no severe side effects ever so don’t be too concern it’s not the same for everyone ....
Cindy, I just want to congratulate you on your new kidney and thank you for sharing this information. I was diagnosed with Polycystic Kidney Disease when I was 21. I am now 46 and last December 2018, I started dialysis. My nephrologist just told me this past Wednesday that he wants me to have a transplant. Now, I'm not sure what's ahead for me. I just know both of my kidneys are extremely large and full of huge cysts. So, in my case, I'm not sure if I'll only get one kidney or two. I'm doing some research right now. I chose a hospital down in Danville, PA called Geisinger. I live a couple of hours away from there. Dr. Stainbrook mentioned I would have to go there a lot for all my tests and whatnot before I can get my new kidney or kidneys. I am petrified! I deal with chronic pain in my low back and hips and just the thought of being under for a long long time scares me sooooo much! Just with simple surgeries, I wake up with horrible back pain. My living situation is bad right now. I hope I can find a place soon. I do have four kitties and am very stubborn about getting them rehomed. I hope I can find a big enough place to give them their own room while this transplant stuff is going on. I read somewhere that you cannot sleep with your pets and in my case, clean litter pans because of the toxins. Everyone is pressuring me to get rid of my babies. I am single so I don't even have a companion to help me. Do you know anything or anyone who reads this knows anything that I can do to keep these furbabies of mine? Is there some kind of help out there that can help me and be covered by Medicare and Medicaid? I'm disabled and don't know where to turn. I have yet to watch your transplant journey. I would love to vlog mine. That being said, I not only wish you great health and happiness but also anyone who is or did get a transplant. God bless! And Blessed Be!
Karen Elizabeth Waters god bless you
My mom is 10 years out from transplant ,she has no issues with anti rejection meds anymore they get weaker and weaker till they go away she had hers at 63 and she is still going strong 💪she gained wait but not much but it was because she felt better and her appetite came back I was just listed on unos at Phoenix mayo July 2020
wow that is amazing! and that gives me so much hope!! I am looking forward to celebrate my 10 years in 6 years! Blessings to you and your family!❤️
My wife transplant but donor had viruses they didn’t know now they removed kidney and she been hospitalized month now I hope we go home soon and she feel better I guess some body didn’t really check desease. Donor history before putting pt
God bless all of you!
Glory be to god for all transplant god bless you all.
Amen!! God bless you!!
Dear Cindy, Thank you for sharing you Kidney transplant experience. Hope and you will continue stay healthy in Jesus name. If I may share Kidney transplant journey. July 2023 as you know there's a lot of test just to qualify. My last test December 28 2023 . I received a call the hospital, letting me know they found a donor. My new Birthday January 9 2024. It's been almost 5 months, the Kidney is doing well. It's changed my life 😊❤. Never give Hope all that are waiting. My prayers to all that that had Kidney transplant all are waiting!!
hi Cindy..... so good to see you doing better. I have watched almost every video of yours and has really helped me prepare for my brothers transplant. I wanted to ask if you have any idea of how soon can you travel on a plane after transplant. He is getting his kidney transplant abroad and will be traveling back to united states after his transplant.
I was told by my doctors that I had to wait 90 days. But if he is traveling back make sure he protects himself really good, mask and everything. I honestly wouldn't recommend he travels back so soon because the first weeks/ months of transplant are the hardest. Also you get sicker those first few months.
I had a transplant abroad and travel back to united states after 1 month. I did great. I wore mask and always hand sanitize in airplane. 8mos post transplant.
Wishing you the best! New subbie here!
love from Philippines😘
France Jimenez thank you 😊 much love right back!! ❤️
Excellent informative video . My dad went thru hemodialysis and I wish he knew what you know .
Thank you so much! And I wish the best for you dad! God bless♥️
God bless you and family
My boyfriend waiting for pancreatic and kidney transplant. Thanks for this video 😊
Today With Emi & Murlz b. Negative. Kid. Donar. Call. 7027389996
Me to. I've been diabetic since ,16 yrs old . I'm 39 now. I pray it happens for me as well as him 🙏💛💙
Hey friend,wishing you be strong and healthy .
Tran Le US - DIY Cuộc Sống Mỹ thank you 😊 really appreciate it , God bless
I am hoping to give my dad my kidney. He’s about to start dialysis and I can’t see him go through that. I hope to go get tested and be a match.
Me and my friend both living kidney donors. We both young and healthy. Who really need contact me
Were you a match?
@@RROD1978 you need?
@@pooja6783 I need
@@razellol96 which blood group you need?
as a kidney transplant patient of 20 years I wouldn't recommend it. Everything you have to put up with afterwards it will turn you into a recluse and isolate you and make you hate yourself and regret ever agreeing to it. It's not worth it
I am sorry to hear that you feel that was. A lot of people have different experiences with transplant. In my case I feel so blessed and grateful for it because I was suffering too much on dialysis. If you don't mind me asking, what are complains about transplant?
I already told you in my first message
Misanthropy83 oh okay
@@cindyflores it's not as great as some people think it is, I stopped my medication in January and basically waiting for it to fail because I've had enough
Misanthropy83 wow it’s lasted 6 months without medication?
Thank u you been helping inform me I’m 14 years old and I got a donar who was willing to donate me from the waiting list and I been wondering a lot about the transplant and dialysis
well whatever questions you might have you can definitely ask me :)
@@cindyflores I wanna ask the same question ..my Friend is going to have kidney transplant soon
Call me 8760019497
afreen israr b. Negative. Kid. Donar. Call. 7027389996
Your videos help me a lot because last year on April 15 2019 my wish came true I was so excited and scared at the same time 😬 but it worth it I wait for my kidney for 6 long years
How are you doing?
I haven't had a transplant yet I'm almost CKD stage 5 so it's almost time to get on the list I don't think it's going to be easy to find somebody so I might have to start dialysis first. But I'm pretty hopeful. I read the comments and it makes me feel good. Cuz 17 years ago when I found out I had kidney problems I thought it was a death sentence. But seeing all these people talk about their experiences makes me feel like it's a life sentence
Thank you for sharing your experience. Suffered a NDE JUN23, and because of a bacterial infection from VIBRIO, I was put on dialysis. Since going to treatment 3x/week, the emotional rollercoaster this past year has taken its toll on me. Been trying to do research on beginning the process to get a transplant especially the cost involved and where to go. What did you you do to get the process started and what are the upfront costs associated with it? God's blessings to you on your road to recovery.
I recently received my transplant March 30th 2021💕
Hi, I didn't find the stent removal painful at all. Yes I too have put on weight😔 My hair actually got better but I have a blood clotting disorder and am on Clexane injection to thin my blood so it affected my hair very badly.
I was on dialysis for 20 years.
You only have a kidney biopsy if there is something wrong with the kidney transplant, as biopsy carries a risk of irreparably damaging the kidney. I was told this with my first kidney I got at age 23. I now have my 3rd and it is great😊 I'm 46.
I've been on dialysis for almost a year. Im 30. I'm going next week for my evaluation. The while process scares me so bad. It's so hard but I want it so bad I'll do anything to be normal again.
aww I'm sorry to hear that, I know dialysis is super hard. Hopefully you are able to get a transplant soon. God bless you!💕
Me and my friend both living kidney donors. Who really need contact me. We both young and healthy
@@pooja6783 what's the best way to contact u ?
@@jasonpontes6735 e-mail me. pp803557@gmail.com
Did you get your transplant
I got my transplant two days ago and I feel so bad and I know that everything is going to be getting better
Ghostlier me too.
God is with you and HE has a purpose for you. God bless you
I hope you got better I recieved my kidney 3 weeks ago and so far all is well thank God.
You got unlucky with pain. Most get total pain relief with what you were talking of. You were brave.
Yes you are right. But God is always God and he gave me the strength to endure :)
I had my kidney transplant on Nov. 1st. Was discharged 4 days later. On the next day my stent came out on its own.
wow pretty amazing!! why did it come out?
Give me your no ..if u can I wanna ask u something
When my foley was removed the stent was somehow pulled with it. I was wondering why everytime I got up and out of bed I was having pains. When I told my transplant team the next day. My surgeon said I gave him one less job to do. They asked me what came to my mind when I saw it. I asked the surgeon if he was hungry before my operation. He reminded me of this.
ua-cam.com/video/2RQS-2iiBXE/v-deo.html
I am 70 yrs old. Been on dialysis since 4/9/18. Moved to Joplin Mo from San Diego because of the wait time. Getting aorta repair on 7\11.. THEN will go on transplant list in 2 states..Ks and Mo.
Oklahoma instead of Kansas.
I just subbed to you I’m grateful you made these videos I just been transplanted 2 weeks ago Thank You for sharing your experiences
Dear all, can you all mention the cost ,hospital where the operation took place, and creatinine level at the time of operation and your age. Your reply will be appreciated. Doctors suggest to do kidney transplant for my dad who is 56 now and his creatine value is 3.7
Thank you for your video. I've had type 1 diabetes since I was 8 . Now Im 34 and have 2 kids and stage 4 CKD. My mom. Use to tell me when I was a kid that a transplant day might come and I've been scared my whole life about it. I was fine before I had my kids. I know my pregnancies sped up my CKD but my kids are worth it. Still not sure where my future stands with dialysis or a transplant but my nephrologist said a transplant is inevitable
May God bless you sister.
Amen!!
Thanks im hopeing to get transplant very soon .just had leg amputation in Sydney Australia great Vlog
Good video I had a kidney transplant myself back in 07
Thank you :) Hope your transplant is great and healthy still 😊
@@cindyflores yes it has 12 years strong
@@TeachYahawashi wow amazing!!
Am also kindey transplant patient my mom gave me a kidney 3 years ago i am well good health but my hair loss issuses increase day by day
yes, that's a down side of having a transplant, however my hair is slowly growing back. A lot of my hair loss had was due to stress as well. Wish you the best! God bless!
Yeah I was already to have My transplant two weeks before Covid-19 I was devastated but I guess it just wasn’t meant to happen now my GFR is stable at 18 percent my leaving donor is A heavy smoker and drinker and getting old so I have pretty much given up on that but always try to be positive.🙏
I’m not sure of any new news yet I pray that your situation is next on Gods desk.
I so exciting, glad i found someone to connect with, im going to have a kidney transplant soon and wanted to know whats going on, you are very helpful.
Thank you!! I am so happy you found my channel as well! When I got my transplant I didn't know what to expect and I couldn't find anyones story on here so I told myself I would share mines and try to help others. God bless💕
I just hit my 4yr anniversary March 14 my first three months is as you said it’s a roller coaster of emotions. Also true cellcept did cause a lot of hair loss. I was never in and of hospital after surgery for any reason or did I ever have a biopsy done at anytime it’s a matter of taking all your meds twice a day eating right and exercising. Also it’s important to do your blood work before seeing your Kidney dr so they can adjust meds as well as monitor kidney functions to make sure kidney is healthy. Another important thing that medications such as anti rejection med also raise blood sugars so it’s important if your diabetic to be aware of this also. God Bless every donor and patient who receives a new life
Congrats to 4 years!! and thank you! what you are adding in really true! God bless you🥰
@@cindyflores dear sir. Mam my name is vinay I am coming in poor family I need help plese give some found plese help me my email I'd vinayck.Ckm@gmail.com please help request
Just stumbled on your video. There is a lot they don't tell you about the whole process of kidney failure and transplant. And post operation and life after I'm 12 years on Kidney Transplant. Hope your okay thank you for yoyr video.
pay attention to you doctor more when he/she is explaining the entire process.i am donor to my brother, and my doctors covered all aspect of the surgery - pre and post.
I also waited 2 1/2 yrs for my transplant. My husband donated one of his kidneys. What are your monthly infusions for?
Stephany Rodriguez I am allergic to prograf so I take belatacept in replace
cindy flores what were your allegy symptoms on Prograf?
@@RC-tc9vj I had seizures
I have been on dialysis 3 years now. I am on the transplant list. I was offered a kidney yesterday but declined and had cold feet. I was scared to go through with it. Thanks for the video. I'll be braver next time.🤗
Aww man I wish you would have taken it I promise you it’s a 100x times better then dialysis! Yes it’s a process but it is well worth it! God bless warrior 😊
I'm glad I found you and that you are doing these videos! There is not a lot of information on UA-cam for patients and what to expect. I had a kidney transplant in January down at Mayo in Phoenix. If you get a chance, check out my videos on my channel as well.
Good morning beautiful messages, my 11 year old had transplant 3 day,s ago medication training is today.I had no ideal what to expect thank you for everything. Her u tube page is Davasia's Kidney Journey.
Hope she does great with her transplant! And I will definitely will be checking her channel out! God bless you two❤️
I looked for the page, could not find it
I got a kidney transplant on November 10 2018 due to Lupus and I can relate to everything you’re saying because I have experienced everything you have talked about except the 3 mo biopsy . I am now experiencing depression but I think that it’s due to the prednisone but don’t get me wrong I am great full to have my life back to normal I’m just feel depressed all of a sudden 😔
congrats on your transplant ! and i'm sorry to hear about the depression, thankfully I never have experience that. Have you tried praying? going out? surrounding yourself with good company? if not definitely should! God bless you 🥰
Cindy Flores thank you for the advice I do pray a lot actually, I think it has to do with the medication and also the fact that my mom passed away the previous year in December and she was my biggest supporter and she didn’t get to see me get the transplant so it makes me 😔 but I have been getting out a little more so I’m working on me 😊
Hi, I also have Lupus and am currently undergoing transplant evaluation. I hope you are doing better!
I was transplanted 8/2020 I’m fine yes there’s side effects but I have to accept it cause I don’t like dialysis.I got biopsy and yes I deal with it .I’m just happy I don’t have any regrets I live a full happy life. My pugs are my life changer ❤❤
My transplant is 5 in January 2020!
wish you the best!
@@cindyflores Thank you! It's been a rocky 4 years but not nearly as TERRIBLE as dialysis!!!
I hope it went ahead and I hope you are well! I received mine on 5th august 2019, I’m still in shock because it happened so quick but it’s such a great blessing and I’m so grateful
I was crying in the hospital too, in the bathroom because if all the reasons you said. It is hell at the beginning.
I'm going through this. I'm glad I found your channel about this. Still waiting. There is so much different info about matching blood type. I need to know the matches.
Hi. I had kidney biopsy but they put me to sleep.
Amazinggracecirila Reese yes they put you to sleep for a biopsy on your native kidneys
I got my kidney transplant 23yrs ago. On stage 3-4 now. Thank you for sharing your experience. It’s really important to share our unique experience to help others going through the same thing. 🙏🏻
How r u now?
Same!! I was 102 before transplant and now I am 121 but I’m only 5 foot 😭 I work out and recently cut out sweets and still not budging.
The weird thing is my weight gain didn’t start until after year two, aside from a healthy 5 pounds.
My hair started falling out, too. The mood swings I find to be the most difficult, though. 😭🥰😡😞😉 it’s like a roller coaster of emotions and it’s obnoxious. You feel like a crazy/unstable person. And every time I find myself grumpy or irritable for no reason it’s a huge shock even though I’ve been taking steroids for over 20 years.
Awkward question to some I suppose - but was your first period after transplant the most painful one of your life or what?!? Sorry if TMI for anyone :)
weight gain sucks when you're happy with your current weight haha. I don't go through mood swings but I honestly believe its because of prayer. Don't let the side of effects of pred. stop you from the real you. I know medically speaking its a side effect but for God nothing is impossible and when you ask him to give you patiences and help you not to swing from mood to mood then he will. And I can't remeber my first period! I have just happy because I hadn't had it in a while prior to that haha God bless you😊Keep fighting the good fight❤️
Hai Reese, don't worry about ur weight try to workout and have a diet. Before my transplant my weight is 49 but Itz 80. Whenever I go for my medical check up doctor will scold me to reduce weight. The reason is that when we gain weight their protein leakage, which cause failure. I can recommend you that to stop non vegetarian or have occasionally. It will definitely show result but I am not is deit because I am staying hostel.
Then about mood change.... Definitely I get mood change hourly most of the time I will b in depression or anger or blank like a white paper so most of the time I watch funny videos, k drama I loved it😁 or engaged to something which I like or engage with some social work. Firstly understand ourself.
Then about period my transplant was on February 1 2007. It start on 31 January night, but God grace no pain. Definitely it's irregular so I don't mind it😅.
Other problem is moonface buffalo hump, facial hair I have more than my brothers🤣🤣🤣but it s giving a beauty so I love my facials hair 🙂.
So don't worry about anything. Do whatever u like and b happy... Enjoy ur new life... there will b some problem. But we are real warrior😜. Pray to God. Thanks to him for every seconds for caring us. May God bless you. Fightinggggggg
Siya heh, no. You’re not!!! 🤗
Cindy Flores I love that you mentioned the Lord and prayer!! That’s awesome!!!
Did someone donated a kidney for you? Or did you wait from the transplant list? If so how long did you wait?
My hospital does stents removal under general anesthesia... I felt nothing :)
you are very blessed!! haha
Hisham Sabah lucky guy😬
Stent removal was horrible for me. Took them 25 min to get it out. He couldnt reach it. So painful!
You speak the truth. I am still experiencing hairloss still. I am going to try biotin.its been 6 months for me. I did got a biopsy during my 4th month.. I waited 4yrs. I did pd for 3 yrs and switched to hemo after the 3rd yr..
I am in NY and on a list and according to what they tell me the wait time is 8-10 years !!!!
Am thinking about giving my kidney to one of my friend but am scared 😬
I know it can be intimidating but believe me it is worth it!! You can save a life! God bless! I have videos on my donors side here on my channel!
@@cindyflores thanks ☺️
@@cindyflores I just wanna ask one thing did you feel any pain after donate?
thank you so much for sharing your experience. How long can you stay with your new kidney? Will you need to transplant an another kidney in the future?
Anya Ariunjargal b. Negative. Kid. Donar. Call. 7027389996
I'm in end stage kidney failure on dialysis. Thinking of getting a transplant but I smoke weed. Did they drug test you on your pre transplant evaluation and if so was it urine blood or hair??
They do not drug test for the pre evaluation but I highly recommend not to spoke weed during the purpose, it might slow you down. Hope that helps! Blessings😊