Fibromyalgia: How to cope during a flare up!
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- Опубліковано 30 вер 2024
- A Fibro section talking all things flare up! How to cope, how to get through it, tips from pain management.
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I have just had a ghastly flare up where my back, ribs, sides and shoulder blades hurt to blazes. Couldn’t sleep for more than two hours a night, couldn’t get comfortable sitting or laying. The GP gave me amitryptoline (sic) for night time and I also took combination of ibuprofen and paracetamol. It was horrible. I think stress and grief set it off. My sister’s husband passed away suddenly, then I was in court as a witness then I had my PIP telephone assessment. All within three months. 😢
Thank goodness I’ve found someone who ‘gets it’ and understands. Thank you. 👍😃
Yes, I have found stress kicks the pain in. Sleep is so hard, and I find it hard to sit for a long length of time. I need to have my legs alleviated. I was recently stuck at an airport for 4 hours, just sitting around.
Once on the plane, we sat on the tarmac for another 30 minutes. I was 2 hours into the flight and in so much pain I felt the need to move, I got up to go to the toilet and fainted in the isle. I hit my head and the shoulder going down, I don’t remember falling at all, or even trying to save myself. I was taken to hospital via ambulance, and kept over night. My blood pressure was low and then high. I’ve never really had trouble with my blood pressure, as it’s controlled by a low dose tablet. One Dr told me you can faint with the pain from fibromyalgia. 🤷🏼♀️ I’m newly diagnosed, although I feel I’ve had it for many years. It was always put down to back and knee injuries. Thank you for this video, and good luck to all the fibro people out there. 😊
I just found your channel yesterday and it is so nice to just hear from a normal person who gets it. I'm in Bolivia and medical care here is lacking as is community so just having someone say, "yes that is real and it hurts." Was just what i needed. I am mid flare up and everything you said resonates with me. Thanks.
So glad you found me! If you are on FB or instagram, you can follow me on there and always DM if you need me. 😘
I'm on FB so I just liked your page there. Hopefully finding a community who gets it will help.
@@trinitygarcia3444 definitely. Be careful if generic fb fibro pages as I find they can be a bit negative! Xx
@@LordandLordettes yeah, the very reason I have not joined any others. But I appreciate your down to earth vibe. It is real, but not defeatist. I'll have to find you on Twitter too.
@@trinitygarcia3444 I kind of gave up with Twitter as that too was negative! Mainly on FB and insta plus TikTok! Thank you, it's sometimes hard to find people who understand. I have many videos on Fibro plus my weeklys.
Advice and tips on how to cope with a flare up! Any other tips or suggestions you have, leave in the comments.
Im having awful winter flare up today. So miserable. 😔
Sending lots of gentle hugs 😘
Sorry I understand , keep warm 😉
thanks just listening to you made me feel better
Weather change definitely affects my fibromyalgia. I have a hot water bottle on my back every night, how ever sleep is very hard. I agree drinking water is very important. Good advice taking your meds regularly, I’m like you waiting for the pain to get worse. 🤷🏼♀️ Sitting with my legs down for a long length of time is very hard. Yes saying no, is so hard as well, but I’m learning. Pacing your self is the name of the game, I do a bit of house work then rest, then do a bit more, then rest again, frustrating I know, but we do what we can. I find it hard to make arrangements, to go out with family and friends, I hate letting people down, I’m trying to let that go as well. We must be kind to our selves, and at times put our selves first. 😉 Cheers,fellow fibromyalgia sufferers.
Wise words! 😊❤️
This is all highly relatable.
Paracetamol is just tylenol and very bad for your liver! I'm in a flare right now from trying yoga. Never again! We can't get pain meds over here in USA because all the doctors won't prescribe them.
Great blog. Thanks so much for doing this. I try to force myself to go for a swim. The water relaxes the whole body. Even if you can’t swim, just getting in the water and moving around a little and stretching. It makes such a difference in my,life. I can’t do Aquafit anymore, it is too strenuous, I just swim gentle lengths of the pool. Fen if I am in a flare, ai force myself to go, and then I can come home and rest. When ai am in the water,I don’t feel any pain. It is wonderful. Hugs to everyone out there suffering from this horrendous illness. I have been struggling for over 25: years and some days, I don’t think I can endure,one more day of it. Just feel Like I am existing, not living. The only things that bring mr any joy is my beautiful 10 year old grandson and my,passion for baking. I bake once a week for all my neighbors in my small apartment building. It gives me a purpose and makes me feel good. Sometimes I bake on a day that I am feeling up to it and freeze it. Love to all🇨🇦❤️🇨🇦❤️❤️
That baking sounds wonderful! I bet you are popular on bake day! 🙂😋 I used to go to aqua aerobics and tried it since getting ill but couldn't even walk after so then tried just swimming but found the getting in the pool, getting out and getting dressed was still too much for me. I am so glad it brings you relief as we have to try and find ways to relieve it.
I just got diagnosed & found your channel doing research! Thank you💕
Could you please list the pain med you are saying that you take every 4 hours when you have a flare up? Thx
I take paracetamol plus every 4 hours but check it is ok with your other medication. I also take Naproxen 500mg when I am bad. Glad you found me! Hope my videos will help you. 😊❤️
@@LordandLordettes ok…I had never heard of this. In the US, it’s typically called Tylenol.
@@staceyquintonrealtor yes I think it's the same sort of thing. My GP told me to take the plus one as the caffeine in it kick starts the pain killer faster in your blood stream.
I use a heated blanket in bed for pain and believe it or not take my meds and use germolene in all areas of pain.
Obviously with doctors advice i use metotone tonic for fatigue.
I have some very good advice too.... The pharmacy recommends to eat spinach everyday to help with energy levels and fatigue... I really think its helping. 😊
Good tips. Thank you.
Thank you for a really great video - excellent advice x The Twitter community has been awesome for me as well - having contact with people who truly understand makes the world of difference when my body kicks off. I also have to remember to be kind to myself - it's a challenge!
Couple of things - this may not be relevant to all Spoonies, but I've recently found Jeannie Di Bon - she's a physiotherapist who has hypermobility syndrome herself (as I do) - I'm doing a free trial of one of her pay courses, but she's got a great You Tube channel too - she's an excellent teacher.
Also - Give Yourself A Hug is a poem by Grace Nichols that I read with some of the younger kids I teach! It's in one of the test prep books I use. It's very sweet, and very short, and can teach all of us grown-ups something about self love too, I reckon.
Give yourself a hug,
When you feel unloved
Give yourself a hug,
When people put on airs
to make you feel a bug
Give yourself a hug
When everyone seems to give you
a cold shoulder shrug.
Give yourself a hug -
A big, big hug
And keep on singing…
‘Only one in a million like me,
Only one in a million-billion-thrillion-zillion
like me.’
I LOVE that! 😍 Thank you!
I am so happy that I have found you on UA-cam
Welcome! 😘
Me too, thank you . 🙏
Yeah, Ive got it too. Good video and you voice was very calming compared to most.
The worst thing is not having someone that cares to listen and knows this is real. I’m having a bad flare today.
Sorry you are experiencing that. I have made a video on lack of support ❤
I wish I could still take anti-inflammatories after a massive tummy bleed the doctors stopped them straight away. I was taken them for 18 years!
Fibromyalgia hasn’t become any better in that time! I do so much to help my body.
Having a horrible flare up today…
Epsom & salts is great in the bath you can buy bulk from Amazon which is much cheaper than most shops also I spray magnesium on really painful parts every day.
MSM powder helps!
Plus healthy eating and fasting once a week for at least 12 hours but as I said no matter what I do with very strong painkillers or healthy lifestyle the flare ups come and go when they like.
Yes I walk plus I’ve tried gentle yoga plus I’ve always loved water, It’s all I drink all day.
Lovely video thank you 💕 x
In the mist of a flare up and just found you omg you are me dont beat myself up lol that is just what I was doing xx
It's so easy to do isn't it!
So much great advice packed into one video!
Thank you! 😊
I’m having a flare up currently so this is definitely helpful and reassuring so thank you. I’ve found if you’re able to get a hammock and hammock stand, that has reduced a ton of my pain and reduces amounts of flare ups at least for me. I’m going to grudgingly get up and try taking a slow walk. Thank you again
Ooo not heard of that so great tip. Hope it passes soon. Take care of yourself. 😘
This is me always hard on myself 🙂
Thank you Nicky!
So pleased I’ve found you your the first to share great info
Ah, thank you! There is plenty to watch! 😊
Thank you for the advice 🙂
Thank you.
You're welcome!
I've been watching your videos and find them very informative I am a 43 year old male that has recently been diagnosed. One thing I wanted to ask is are you medically retired as I was looking at this option.
No I'm not. Haven't looked at that to be honest. Always in hope that one day I can work again! 🙄
@@LordandLordettes I've not long had the pip assessment over the phone most stressful thing ever!
@@ScottRamsay1066 yes it is the most stressful thing. I have my 3rd one in August. 😔
@@LordandLordettes Oh dear I'm going through my mind if I said the right things got to wait now they said up to 8 weeks for an outcome.
@@ScottRamsay1066 hope you get it 🙏🤞
Wot is a good pain relief for fibromyalgia
I'm having one now do u feel breathless for no reason and get pin pricks ????!I'm not coping well at all right now x
Do u get my symtoms xxxxx?
Ah, sorry to hear that. 😔 Sending gentle hugs. ❤ The thing you have to hold onto is it will pass at some point but yes it's awful! I have felt breathless and pin pricks. Check out my other fibro sections as might tell you a bit more about skin sensitivity etc. Anything you are unsure about though, please contact your GP.
Hi I'm in California, I too get breathless for no apparent reason. I've been checked out and was told that my breathing passage was narrow so ??? I take tramadol for my daily pain it takes the edge off but I am still in pain keeps me alive but does not help when I'm having a bad time, and I would take ibuprofen in desperation at least two days out of the week... Well I came to notice that ibuprofen made it so hard for me to breath. I would have to sit and bend my head back stretching out my chest to open up and be able to take breaths.... So terrifying. Thought I was imagining it and induced some kind of panic attack. I couldn't get my tramadol refilled for a couple weeks and saught relief on Ibuprofen everyday and that's how I figured it out. Basically, I can't use it at all now. I useAlbuterol inhaler it seems to help. Also I get random stabbing pains. I've always been a shallow breather with breath holding. I'm having to take potassium curate everyday to manage my acidic blood due to low oxygen levels... So I had tons of kidney stones by the time I was 19. I do breathing exercises all day. I didn't know how it all tries into my heath issues. Crazy!
Hi am new to u , I have flare ups every day I don't get a good day , just don't no what to do now, 😭 am loving your channel though x
Ah, sorry to hear that Kim. Welcome to my channel. Do you have a good GP you can talk to as you shouldn't be flaring every day? Might need to look at your medication, do you take herbal too?
@@LordandLordettes hi no I don't have a good GP there hard to find in my surgery lol 😝 , on lots of medication, I won't to go on low dos morphine but they won't let me , No I don't take herbal as I have had enough of tablets 16 a day xxx
@@kimemerson5486 it's such a shame you don't have a good GP. In my experience, and everyone is different, morphine made my pain worse and have been educated about opiods since. I know I take a lot of tablets a day but most are herbal. Tumeric is a must as is magnesium. Maybe a visit to a herbalist who can look at your prescribed meds too? They might be able to help as it sounds like you are on a lot of prescribed and some might be working against each other? Gps tend to just throw medication at us as they don't know how else to help Fibro. I find it's more treating it as a whole. Look at my other sections and see if any help.
I m harassed......all the time!!