Thanks for watching! I'd love to hear your thoughts on the health issues regarding Sjogren's Disease discussed in the video. Have you or someone you know experienced any of these conditions? How have you managed them, and what has worked (or not worked) in your experience? Your insights and stories could really help others going through something similar. Let’s start a conversation - feel free to share your thoughts, and experiences, or ask any questions you may have!
I have Sjögren’s and I am so sick all of the time. Feel absolutely horrible and fatigued. Also fibro and a host of other co-mingling ailments. Love your videos! Great energy and very specific with the systems. Would love a video about Sjogrens labs and meds.
I was diagnosed with Sjogrens in 2008 at Mayo Clinic and have been to seven different Rheumatologist. Not one of them have ever discussed or told me about anything other than dry eyes and dry mouth. I have since been diagnosed with more autoimmune diseases and still get very vague explanations. It is frustrating. Thank you and is there any chance you could come practice in My area. We need Rheumatologist doctors here.
It’s frustrating isn’t it? We can simply educate ourselves on UA-cam but they keep searching for answers with scans, etc but not go back to the Sjogrens itself and our reactive immune system as the root problem. My local Dr knows more about the condition past the dryness than the specialists I’ve seen. Don’t get me started on dental professionals, ugh.
The problem, other than lack of knowledge and lack of coordination among the specialists, is that even with he diagnosis not much can be done. That’s the issue I find the most frustrating. After all the hoops, loops, tests, consultations and a diagnosis arrives, you think great I’ll finally feel better. Only you don’t. Yes, you take the meds and supplements but the illness progresses and you find yourself in a never ending cycle of chronic illness where you treat your symptoms with a hit and miss approach.
Whoa....this answers some questions for me. People ask me what is wrong with me? Well...I have...FM, Sjogren, Lupus. then the list of how these things affect me? I can see most of it is Sjogren's.
I am newly diagnosed with Sjogrens, i also am diabetic, severe inflammation, sensory and perifial neuropathy. I broke out in hives with the medication so they took me off it
Great video, well explained though I had to speed up. Yes to all you mentioned! Think I’ll share with my Neuroligist and Rheumatologist though not sure they’ll appreciate my doing my own research. I don’t think they’re joining the dots or perhaps aren’t so informed. I’m being sent for scan after scan perhaps to rule out other but all I’m experiencing with my diagnosed Sjogrens is described here. My question is… can any of these MRIs, CTs as in brain, spine, etc show the Sjogrens. My spine MRI did show up neck issues but that’s all, nerve conduction was very revealing but I’m not sure neurologist is linking it to the Sjogrens. Immunosuppressants now mentioned, what’s your thoughts on taking those?
Morton’s Neuroma , Meneires Disease as well Parotid gland pain each time you eat - Shock like (seizure like zaps ) from deep inside the ear down entire side of body
You need to see a physician who is board certified in rheumatology in your area. You can also read about what treatments others have received, but please remember everyone is different and that is why a physician is important in the mix. Good Luck
I have Sjögren’s but a lot of my symptoms are better due to a functional medicine practitioner. The things you have mentioned here - are they mainly caused by inflammation? I’m just wondering as for a lot of them you mention steroids helping. Thank you 🙏🏻
Aside from my Sjogrens dx in 08 I was dx with RA on 2010. I still have no deterioration in my joints but still testing positive. How can this be after all these years and take no medication. I don’t believe I have it. My Rheumatologist said it’s coming.
Thanks for watching! I'd love to hear your thoughts on the health issues regarding Sjogren's Disease discussed in the video.
Have you or someone you know experienced any of these conditions? How have you managed them, and what has worked (or not worked) in your experience?
Your insights and stories could really help others going through something similar. Let’s start a conversation - feel free to share your thoughts, and experiences, or ask any questions you may have!
Please more Sjögren video’s!!!! We’re so lost in this disease.
I have Sjögren’s and I am so sick all of the time. Feel absolutely horrible and fatigued. Also fibro and a host of other co-mingling ailments. Love your videos! Great energy and very specific with the systems. Would love a video about Sjogrens labs and meds.
I was diagnosed with Sjogrens in 2008 at Mayo Clinic and have been to seven different Rheumatologist. Not one of them have ever discussed or told me about anything other than dry eyes and dry mouth. I have since been diagnosed with more autoimmune diseases and still get very vague explanations. It is frustrating. Thank you and is there any chance you could come practice in My area. We need Rheumatologist doctors here.
It’s frustrating isn’t it? We can simply educate ourselves on UA-cam but they keep searching for answers with scans, etc but not go back to the Sjogrens itself and our reactive immune system as the root problem. My local Dr knows more about the condition past the dryness than the specialists I’ve seen. Don’t get me started on dental professionals, ugh.
The problem, other than lack of knowledge and lack of coordination among the specialists, is that even with he diagnosis not much can be done. That’s the issue I find the most frustrating. After all the hoops, loops, tests, consultations and a diagnosis arrives, you think great I’ll finally feel better. Only you don’t. Yes, you take the meds and supplements but the illness progresses and you find yourself in a never ending cycle of chronic illness where you treat your symptoms with a hit and miss approach.
I have rheumathoid arthritis pver 4 decades, Sjogrens came along about 10 yrs ago
How are you doing?
I had no idea about any of this, but now my symptoms make so much more sense. Dr Yu, got any openings?😊
Thank you good info,... Keep helping us! I've been diagnosed with shogrens now for 8 years,.. no help but this info. 😮😢❤❤❤
You got this!
Thank you
I have learned much from this video and I appreciate it immensely
thank you so much!
Thank you, appreciate the information.
Glad it was helpful!
How d you get diagnosed what tests
Whoa....this answers some questions for me. People ask me what is wrong with me? Well...I have...FM, Sjogren, Lupus. then the list of how these things affect me? I can see most of it is Sjogren's.
We are advised to blanch broccoli and all cruciferous vegetables before eating because they can affect thyroid function. Please advise.
I am newly diagnosed with Sjogrens, i also am diabetic, severe inflammation, sensory and perifial neuropathy. I broke out in hives with the medication so they took me off it
Great video, well explained though I had to speed up. Yes to all you mentioned! Think I’ll share with my Neuroligist and Rheumatologist though not sure they’ll appreciate my doing my own research. I don’t think they’re joining the dots or perhaps aren’t so informed. I’m being sent for scan after scan perhaps to rule out other but all I’m experiencing with my diagnosed Sjogrens is described here. My question is… can any of these MRIs, CTs as in brain, spine, etc show the Sjogrens. My spine MRI did show up neck issues but that’s all, nerve conduction was very revealing but I’m not sure neurologist is linking it to the Sjogrens. Immunosuppressants now mentioned, what’s your thoughts on taking those?
How do you determine whether neuropathy is from Sjogrens or chemotherapy. 10:26
Morton’s Neuroma , Meneires Disease as well Parotid gland pain each time you eat - Shock like (seizure like zaps ) from deep inside the ear down entire side of body
I have Sjogrens...maybe my "idiopathic tachycardia" isn't so idiopathic, after all.
I have autonomic neuropathy due to Sjorgren. This causes tachycardia with slight activity.😢
I have sjogrens how to control?
You need to see a physician who is board certified in rheumatology in your area. You can also read about what treatments others have received, but please remember everyone is different and that is why a physician is important in the mix. Good Luck
Yes, what can we do most dr’s don’t know!
Who’s is most prone primary or secondary Sjogren’s
I have Sjögren’s but a lot of my symptoms are better due to a functional medicine practitioner. The things you have mentioned here - are they mainly caused by inflammation? I’m just wondering as for a lot of them you mention steroids helping. Thank you 🙏🏻
HELP!!! What therapies
Aside from my Sjogrens dx in 08 I was dx with RA on 2010. I still have no deterioration in my joints but still testing positive. How can this be after all these years and take no medication. I don’t believe I have it. My Rheumatologist said it’s coming.
He can barely hold his excitement and smiley face while talking about it
Why do you describe these symptoms as if they were comical?
A bit weird
I also noticed that. 🤨
The symptoms are so severe that he tries not to bring on the “Fox” news kind of anxiety? Just a thought
You have to drink water constantly if you don’t to loose a kidney and makes you look older
Most doctors won’t believe you anyway …