Momming with Migraine oh wow! That sounds difficult to achieve. Hope you’ve reached it or will reach it soon! I’m binge-watching all your videos so hopefully that helps out!
Oh boy. Change the rule from don't carry food with wiggles to don't carry baby with wiggles 😋 Sigh. I'm so thankful that I trust my migraine self. I'll keep sharing as much as I can 💜
The Buddy timer is genius. One time when my son was two and I was the only parent home for the weekend, I had a massive "go stupid" migraine. Our elderly dog needed to go out but I couldn't walk her because my toddler son was in the tub waiting for me to turn on the water. So in my migraine stupor, I let her out into the night time dark front yard. Ordinarily I would have clipped her to the yard post & leash (set up specifically for such a situation). But...migraine stupidity. Then my son had a meltdown because I had left him sitting in an empty, dry tub and I immediately forgot the dog ever existed. I slammed the door shut and ran upstairs. I finally got my son bathed and into bed. And more importantly my medication worked its magic. I remembered the dog! I lose all sense of passing time during a migraine so I have no way of telling how long it had been. Unfortunately the old dog had been outside so long, she was picked up by animal control. We got her back the next morning but one of my migraine rules is no animal outside without a leash. Ever. Even in a fenced in backyard. (Migraine Rule #1 - baby safety first! Rule #1a - never leave toddler alone with water in the tub. And that's why he was loudly frustrated about sitting in a dry tub)
the yummiest food one cracked me up. I have Conscious DID, and my biggest rule to my alters is to not eat things they know damn well I'm looking forward to 😂😂
Two of my rules are: 1. No food that require heat if I'm home alone. 2. All financial and major life decisions must be made with a fully functioning brain. (Or as close to that as I get). I learned this one the hard way.
Good point. What about the microwave or toaster? And YES that's one I missed. No big decisions 😅 I am pretty indecisive during migraines anyway though... I think...?
@@MommingwithMigraine I have enough trouble with a peanut butter sandwich most of the time. Lol You can often find me just staring at a jar of peanut butter and a loaf of bread with a confused look on my face.
Sleep kittens, my narcolepsy alter-ego, ALSO has rules, and she can also be trained. For instance, I now “make a living” (lol, what an utter joke) as an author. Sleep kittens get GREAT ideas, even if half the time they barely make any sense. She’s been trained to document her ideas in some way, but she doesn’t usually communicate that she’s done so with me. She also documents them HOWEVER she can. Sometimes, I’ll wake up with things written all over my arms (we’re ambidextrous), sometimes she’ll write notes on whatever paper is near her at the time (there’s multiple notebooks and sketchbooks all over the place). She’s recently gotten better about writing in the actual notes app on our phone, but that means I usually won’t find it for a lonnnnnng time. The most hilarious one, though, is when she can’t actually figure things out so just sends a txt to the most recent person we’ve talked to. Sleep Kittens doesn’t give a HOOT about spelling or fixing auto correct, though, so it’s always an adventure both trying to explain to the recipient what’s happened, and trying to decipher what she meant. =>.
I have Narcolepsy with Cataplexy and Migraines and a toddler! I was aware from the beginning (~15 years ago), that there were different skill sets. As in, I didn’t have any. I had to train myself in Sleepwalk. Training for safety in altered states is a different way to live and has been incredibly challenging to explain but these Videos and Awesome Comments have really helped! It didn’t occur to me how separate the memories are, I’ve lived this way a long time…but it makes sense in a very liberating way. Thank you for sharing your stories. What a beautiful gift you two have given me today.
I have rules when I have a migraine as well. No showers when home alone, no driving if I've had weakness or am concerned about it, don't pick things up if I have to bend and am alone, etc. I also use an app called medisafe to track my abortives and daily meds and text my husband when I take my abortives. The rules develop as needed and as my husband helps me figure out what is needed. Fortunately, we just moved for his job and he (and other family) is a 5 minute walk away if needed. He has left to come check on me when I've not answered due to sleep before. Even without a full migraine I don't drive by myself more than a couple minutes nowadays and I always tell my husband what I'm doing. I can't predict the sudden confusion I sometimes get. I'd love to hear what you do to help with vertigo! Thank you for your videos and sharing migraine Jen with us! Congrats on 1,000!!!
These are great rules!! And what a blessing that you have your family so close by. Sounds like the vertigo video is a popular option. Thank you so much!! 💜
This is so helpful, I have left so many things un done, lost keys, lost passports, forgot things, left the tub to overflow, left oven on. I am a smart women , but now I think maybe some of this may be migraine related I just get lost on the way. I have become paralyzed, have tingles and have a numb face. I try to stay off lots of drugs, and try to eat keto this helps, but so much of what you are saying seems so insightful.
Yes on the vestibular exercises. I actually got my traumatic brain injury from taking a shower while having a migraine and hitting my head on a cast iron sink when I was younger. Showering or really anything can be scary with vertigo
@@westzed23 You can get nice looking ones (mostly teak, I think) for a decent price too, they don't have to be the bulky plastic ones that make you feel even more like a 90 year old.
I love the reality of having a chronic illness this video shows. How such small actions like pants or chairs or lightswitches can be such a hassle and struggle when you have brain fog or some other brain impairing factor
Wow! Watching this six months later and you have gone from 1,000 to 24,600+ subscribers. So glad your channel was recommended to me. You are helping so many people!
My migraine rules, before chemo ended most of my migraines, were 1. no hot drinks, 2. leave a note for my roommate so that she knew what was going on, 3. keep easy snacks, unwrapped granola bars in a bowl normally, near by, & 4. don’t wait to go to the ER until you are on week 2 of a migraine.
These rules go along with a lot of stuff I do when I'm having brain fog. I have confirmed chronic complex migraines and am in the process of getting checked for me/cfs, pots, and fnd. I basically only wear shorts, dresses, or skirts for simplicity, I can't take a shower without the ability to sit safely or someone to check on me, I can't drive much anymore, and I can't really focus on anything. My doctors are finally listening a bit, so hopefully i can get the help I need soon.
Love your content. As someone who has had to quite my job because of my disability I'm proud of you for moving forward and doing what you can to contribute. I know I tend to feel worthless when I can't do anything around the house or bring any money in and it gives me hope that I can still do things of value even when I'm not doing well. Keep up the good work!
Wow that was impressive. Migraine Jen is a secret genius. I'm so glad she understands the truth of her condition so well and is so proactive about safety during an episode. I think I need to start setting some ground rules for when I get migraines so when the confusion sets in I have some rules ingrained to keep me sane and safe because I get lost and distracted so easily.
Have you ever thought of making / selling merchandise? If you don't already that is 😆 would be another great way for people to support the work you do 😊👍
This is so relevant! When I have different levels or types of migraine, it's almost as if I'm in a totally different state of mind and it's so hard to imagine what "normal Tori" would do and vice versa.
I can believe it! Obviously you have grown much further in the months that have passed. I think because you tell it like it is your channel is going to continue growing.
I get a lot of migraines. Not daily, like weekly. I knew I would get dysfunctional during my migraines, but I think I never notice what symptoms I had around it. Your videos made me realize that I need to be more mindful of what my body tells me. Thank you.
It is interesting to see this perspective. I have suffered from chronic daily migraines for 10 years and my memory is hit or miss depending on where I am at in a migraine. So it is comforting to see you talk about it this way. Also we call my memory stuff rolling brown outs (sort of like your wiggles) because I am not blacking out but non migraine me has zero, literally zero remembrance of said thing but not calling it memory loss makes it sound less awful. Thanks for the video.
Thank you. I am experiencing neuromuscular symptoms that are leading to a possible rare diagnosis. I have no one at all who has experienced any of my symptoms, and some of them a really weird. Finding you, especially this episode, gives me the feeling that someone has an idea of what I’m going through. I have very “brainless times”, as I call them, when I have the trouble talking or putting things together into how to do it. I have a drug that I take every six months and for at least 4 of those months I struggle with smaller issues of the things you have just described. Thank you for offering how you deal with it. It really helps me. And I have a rule about carrying food, too! I have muscles that “jump” meaning both a muscle and the opposing muscle spasm at the same time. It is horrible to end up with hot tea over your entire front. I have a walker that I don’t always need, but on days that the muscle spasms are horrible, I usually need the walker or the wheelchair to walk, but even if I don’t, I use the walker so that I can put the drink in its drink holder and the food on the seat. That way my big spasms don’t throw my PB&j to the dogs and have to start over. Even the nystagmus disrupts any reading, so I have a LOT of audiobooks. Thanks for sharing your symptoms and your rules!
It would be super interesting to hear some of your husbands experience and perspective on caring for migraine Jen and dealing with your symptoms, and if/how that affects the relationship dynamic. I imagine it's a lot for for a partner to take on. Curious to know how he feels. As a migraine sufferer I dont know what that's like, I'm not on that side of it. As always, great info, I am new to your channel but am just loving all your videos :) ♡
Oh Jen, I understand the “pants are hard” you gave me great ideas for “Migraine Anne” texting your husband about abortives muscle relaxers is a great idea. So smart!!!
I dont know why or how your channel showed up in my suggested videos. Im so glad they did. Im now a subscriber and have watched several videos and am not as severe but so similar on so many levels. I have made rules but didn't realize some of why I did them it was just habits. But I must jave formed them during the migraine Cat stage. Now its time for diagnosis and treatment. Thank you helping me to see that I shouldn't just live and deal with it.
I just love to find out about such a disease . I had no idea. I love to learn! Thanks for educating us! Buddy is adorable! I hope you continue with these videos!
I love how you said that, from being around Migraine Jen, you know about how safe she is. It’s so descriptive and also so cute that she is a separate individual! Thank you for all you do in the midst of your chronic illnesses. I’ve had migraines since puberty, and they’ve changed over the years. I’m pretty sure now, thanks to your videos, that my recent onset of vertigo spells is migraine related. I have been evaluated by a neurologist, so I know there’s no other new issue. Take care of yourself and that sweet little bump!
Also congrats on the 1000 sub milestone!!!! 🎉🎉🎉 And the chair thing. Yes. I have this all the time during migraine and I'm pretty sure it is called difficulty sequencing! That rule is gonna change my life, thank you so much!
I loved when you asked your husband if you should put on “big pants” I tend to forget words even when I’m not having a migraine so I’ll be talking and just can’t think of what something is called so I’m just like “you know the thing..” and I try to explain it and people are like what are you talking about? but the explaining part usually jogs my memory and I remember the word. It is scary sometimes though with all the symptoms that follow me around every day. It wasn’t always this bad it used to be just feeling normal and then a migraine out of the blue but I learned to know when one is coming but now I have symptoms almost constantly including vision disturbances that scare me and dizziness and twitching that looks like Tourette’s tics but it’s not I have no idea what those are because they just recently started happening when I’m stressed or having anxiety. This is all confusing but you are making me feel so much less alone. ❤️
Grr, your "Alexa for 15" got me lol. Would love more dog training content too. I've been working on similar tasks and would love to see how you taught Buddy. You're way past 1k subs now :) Congrats on ~20!
I'm getting my service dog prospect on Halloween and I'm so excited. Training myself with a local trainer. Thank you so much for your videos. You have made me feel empowered to start this journey and hopefully I'll get more independence :)
I have been getting migraines since I was 8 yrs old, but didn’t get help until a few months ago because they got much worse. I am now 30. I experience a lot of the symptoms you described, but my neurologist never asked me about them so I thought it was “normal” for people with migraines. I think I should bring it up during my next apt. Also, you are an amazing and inspiring person.
Yes. After watching MwM videos, there are some things I need to talk with my doctor about. For example, blind spots. I thought that was something everybody had once in awhile.
That you for sharing the rules! Very smart to have those rules *I knew you were that clever and I know you can manage yourself, well, but it’s really cool that in the migraine phase you can learn and keep to those rules :)
Wow... I am watching this Dec.19, 2020 & you now have 14,900 subscribers!! Basically in ONLY 3 months you have gained 13,900 subs! That is SO fast!! Congrats Jen!!
Never wrote them down or categorized them as “rules” but as for your experiences when you have one ... I have similar ones. The shower thing, the vertigo, I get clumsy when I have a migraine so doing important things does scare me at those times. Thanks for the video and 🥳 congrats on 1000 subscribers
@@MommingwithMigraine Thankyou! I actually watched it as soon as it came out and it was really great! I'm actually thinking about vestibular therapy myself now, I feel like it could really help for those migraine days
Yes please to the vestibular exercises. Referrals for specialist care are really slow at the moment because of Covid and funding cuts so it would be super helpful to have some things to try whilst I'm waiting
I wonder if people who were Dx as multiple personality years ago, were ever actually having these kinds of migraines? I’d never seen this kind of migraine before finding your channel.
I've been putting my PRN meds in my pill case at the maximum quantity so that 1.) If I need them, I don't have to go upstairs and get them, and 2.) I'll know how much I took that day and roughly when based on which compartment I took it from.
Hi Jen. I just found your channel a couple days ago. What's really interesting is, if have all the same symptoms ( But my head feels like it is under electricity, and the pain is awful), problems and even the same Rules list ( exep. my husbands name is not Brian). But I was diagnosed with MS after looking for help for over 2 YEARS. I found out after years that my "symptoms" get really bad when I come in contact with chemicals. All kinds of chemicals. (NEW Laptops, TV's, Clothes, Electric Stuff, Paint, Furniture, even Air Filters from 1 Brand...the List goes on). My point is... maybe your "migraine Attacks" can be triggered also by this. I was also thinking to make a youtube channel about "My Stuff", but I don't know. But you have a new sub in me. See you..
I definitely do have migraine rules! I haven't met anyone else who has these too. I should write these down because I can only remember the big 2: 1) No driving, ever. 2) Text fiance to help me take my pills (my abortives are 3 separate pills and I forget to take all of them if I don't have help. Also WHY IS THE PACKAGING SO HARD TO OPEN?)
Random question I just subscribed to your channel about 2 weeks ago and I've basically binged watched all your videos does migraine Jen understand that she's pregnant and what being pregnant actually means love you and your channel oh I must not forget buddy
Aw, thanks! That's a really great question! Yes, she gets it, but she's late to the party. Migraine Jen is going through all the stages of feelings that I went through (excitement, nesting, fear of labor, etc), but about a month or two later than not-migraine Jen went through it.
Hello Jen, I am curious to know what Buddy does when you are in bed with a migraine. All of the dogs I have had over the years would lie beside me for the duration. Also, my head changes shape during a migraine ( I call it the shifting tectonic plates) and afterwards my head smells odd. Have you ever noticed that?
I don’t cook because I forget something is hot and don’t use gloves or I drop it and it’s boiling water etc I can’t even pour a kettle etc or fall bending into oven etc ,I have hemaplegic migraine and vestibular and all different types with nothing that controls them I’m actually waiting for my puppy now I’m hoping to train as my service dog I have one now so this may be muddled, I’d love to know how really to get started on this journey I’m 47 can not even leave house on my own due to sudden migraines and collapse as my main severe migraine causes totally left side paralysis and loss of speech and sight , a lot of what you describe is what I’m like my migraines are literally robbing me of my life and making feel so ill and useless.
Thank you for this video just found you today 3rd video I've watched. Plz point me to the VM exercises p l zzzzz and thank you again 🙏 for your content.
1:30 Well, you're mot the only one. ua-cam.com/video/N4BzaFFKjko/v-deo.html You know you're in trouble when you're on a game show and the host asks, "What's you're husband's name" and you can't remember."
You are drinking coffee in this video. Decaf? If not, it's something worth investigating more deeply. Caffeine is, I think, the *most frequent* cause of 'migraines.' What other causes there are, I don't know, but that one, at least, is known. (Caffeine is also connected to a whole boatload of heart and blood pressure symptoms.) Caffeine dilates blood vessels in the brain in the short term, which is why medical science long ago began to incorporate caffeine in treatments, like ergot + caffeine drugs. The realization that caffeine is implicated as a cause of migraines came later, long after I quit caffeine and ended my own migraines (almost entirely) in 1980. That's based on solid science, but many, many practitioners have paid no attention. The myth that caffeine is harmless has become an article of faith among many people, not to be questioned, even among many doctors. Memory is an interesting subject. When you're Not-Migraine Jen, you don't seem to have access to all of Migraine Jen's memories. Migraine Jen, when suffering from severe brain fog, also doesn't have access to all of Not-Migraine-Jen's memories. I'm visualizing a Venn diagram, where one of the circles is smaller and varies in size (brain-fogged to varying degrees), and one circle is much larger (not brain fogged, normal Jen). The two circles partially overlap. When the brain fog is at its worst, Migraine Jen's access to any memories at all is severely impeded - even the memories she herself created. Does that visualization cast any illumination on your migraines? Not that I can see, other than to reinforce the idea that a heavy duty neurological disease is at work. I enjoyed your explanation of Migraine Jen's coping rules, which she created herself (from trial and error and mistakes, it seems). She *does* learn, and she makes good use of notes she creates to help her navigate her world safely. She'll need some new coping rules once the baby is born. I think you answered a question I had: does Migraine Jen also suffer from fainting episodes? If I understood you, the answer is 'yes.' Does that argue for the presence of two separate and distinct medical conditions? Maybe? But a firm conclusion demands more evidence, probably.
THANK YOU for 1,000 subscribers!! I can't believe it!
How many subscribers do you need to get monetized?
@@Jelleybean18 1,000 subs + 4,000 watch hours in the last 365 days.
Momming with Migraine oh wow! That sounds difficult to achieve. Hope you’ve reached it or will reach it soon! I’m binge-watching all your videos so hopefully that helps out!
@@MommingwithMigraine I do alot of those for my Disassociation.
Im excited for the Migraine Jen rules with baby down the road. You are going to help so many parents through this journey!
Oh boy. Change the rule from don't carry food with wiggles to don't carry baby with wiggles 😋 Sigh. I'm so thankful that I trust my migraine self. I'll keep sharing as much as I can 💜
The Buddy timer is genius. One time when my son was two and I was the only parent home for the weekend, I had a massive "go stupid" migraine. Our elderly dog needed to go out but I couldn't walk her because my toddler son was in the tub waiting for me to turn on the water. So in my migraine stupor, I let her out into the night time dark front yard. Ordinarily I would have clipped her to the yard post & leash (set up specifically for such a situation). But...migraine stupidity. Then my son had a meltdown because I had left him sitting in an empty, dry tub and I immediately forgot the dog ever existed. I slammed the door shut and ran upstairs. I finally got my son bathed and into bed. And more importantly my medication worked its magic. I remembered the dog! I lose all sense of passing time during a migraine so I have no way of telling how long it had been. Unfortunately the old dog had been outside so long, she was picked up by animal control. We got her back the next morning but one of my migraine rules is no animal outside without a leash. Ever. Even in a fenced in backyard. (Migraine Rule #1 - baby safety first! Rule #1a - never leave toddler alone with water in the tub. And that's why he was loudly frustrated about sitting in a dry tub)
I also have rules for my migraines.
- Don't cook
- Don't do homework
- Text my mom or dad
- Go down stairs
- Eat fruit
the yummiest food one cracked me up. I have Conscious DID, and my biggest rule to my alters is to not eat things they know damn well I'm looking forward to 😂😂
I thought "food with wiggles" meant the food was wiggling. I'm like, "What are you eating?"
🤣🤣🤣
Two of my rules are:
1. No food that require heat if I'm home alone.
2. All financial and major life decisions must be made with a fully functioning brain. (Or as close to that as I get). I learned this one the hard way.
Good point. What about the microwave or toaster? And YES that's one I missed. No big decisions 😅 I am pretty indecisive during migraines anyway though... I think...?
@@MommingwithMigraine I have enough trouble with a peanut butter sandwich most of the time. Lol You can often find me just staring at a jar of peanut butter and a loaf of bread with a confused look on my face.
@@WandaMay22 heartbreaking 😢
Sleep kittens, my narcolepsy alter-ego, ALSO has rules, and she can also be trained. For instance, I now “make a living” (lol, what an utter joke) as an author. Sleep kittens get GREAT ideas, even if half the time they barely make any sense. She’s been trained to document her ideas in some way, but she doesn’t usually communicate that she’s done so with me. She also documents them HOWEVER she can. Sometimes, I’ll wake up with things written all over my arms (we’re ambidextrous), sometimes she’ll write notes on whatever paper is near her at the time (there’s multiple notebooks and sketchbooks all over the place). She’s recently gotten better about writing in the actual notes app on our phone, but that means I usually won’t find it for a lonnnnnng time. The most hilarious one, though, is when she can’t actually figure things out so just sends a txt to the most recent person we’ve talked to. Sleep Kittens doesn’t give a HOOT about spelling or fixing auto correct, though, so it’s always an adventure both trying to explain to the recipient what’s happened, and trying to decipher what she meant. =>.
I have Narcolepsy with Cataplexy and Migraines and a toddler!
I was aware from the beginning (~15 years ago), that there were different skill sets. As in, I didn’t have any. I had to train myself in Sleepwalk. Training for safety in altered states is a different way to live and has been incredibly challenging to explain but these Videos and Awesome Comments have really helped!
It didn’t occur to me how separate the memories are, I’ve lived this way a long time…but it makes sense in a very liberating way.
Thank you for sharing your stories. What a beautiful gift you two have given me today.
Alexa: 15 Minutes Starting Now. .... Thanks Jen
heheheheh
I have rules when I have a migraine as well. No showers when home alone, no driving if I've had weakness or am concerned about it, don't pick things up if I have to bend and am alone, etc. I also use an app called medisafe to track my abortives and daily meds and text my husband when I take my abortives. The rules develop as needed and as my husband helps me figure out what is needed. Fortunately, we just moved for his job and he (and other family) is a 5 minute walk away if needed. He has left to come check on me when I've not answered due to sleep before.
Even without a full migraine I don't drive by myself more than a couple minutes nowadays and I always tell my husband what I'm doing. I can't predict the sudden confusion I sometimes get.
I'd love to hear what you do to help with vertigo! Thank you for your videos and sharing migraine Jen with us! Congrats on 1,000!!!
These are great rules!! And what a blessing that you have your family so close by. Sounds like the vertigo video is a popular option. Thank you so much!! 💜
@@MommingwithMigraine We are very lucky to have everyone close by!
"No big life decisions", is what my husband always tells me during pain flair ups. It is a solid rule to keep. Way to go, Migraine Jen!
This is so helpful, I have left so many things un done, lost keys, lost passports, forgot things, left the tub to overflow, left oven on. I am a smart women , but now I think maybe some of this may be migraine related I just get lost on the way. I have become paralyzed, have tingles and have a numb face. I try to stay off lots of drugs, and try to eat keto this helps, but so much of what you are saying seems so insightful.
Yes on the vestibular exercises. I actually got my traumatic brain injury from taking a shower while having a migraine and hitting my head on a cast iron sink when I was younger. Showering or really anything can be scary with vertigo
Oh my gosh 🥺 Noted... I think that's a video that should happen.
I primarily have my shower chair because of pain and tachycardia, but it has been a lifesaver (possibly literally) during vertigo episodes.
@@alliem8700 Great tip, Allie. It seems like a common sense rule. Why didn't I think of this before.
@@westzed23 You can get nice looking ones (mostly teak, I think) for a decent price too, they don't have to be the bulky plastic ones that make you feel even more like a 90 year old.
It's posted now!! ua-cam.com/video/HwuYAKI65Sk/v-deo.html
I love the reality of having a chronic illness this video shows. How such small actions like pants or chairs or lightswitches can be such a hassle and struggle when you have brain fog or some other brain impairing factor
Thank you, I appreciate that feedback. It's strange how normal this stuff feels to us now.
@@MommingwithMigraine it is indeed. Even stranger trying to think back to a time where this wasnt our "normal"
So[ooo true, true, true...
Wow! Watching this six months later and you have gone from 1,000 to 24,600+ subscribers. So glad your channel was recommended to me. You are helping so many people!
My migraine rules, before chemo ended most of my migraines, were 1. no hot drinks, 2. leave a note for my roommate so that she knew what was going on, 3. keep easy snacks, unwrapped granola bars in a bowl normally, near by, & 4. don’t wait to go to the ER until you are on week 2 of a migraine.
May I ask, how did the chemo help with the migraines? Was is a coincidence or part of a treatment?
@@zuppilup total coincidence, for whatever reason when the chemotherapy rest my immune system my migraines went from 12+ per month to less then 1.
@@alexandrasartinsanity wow, ok. In case the chemo also fulfilled its intended purpose, what a good outcome!
These rules go along with a lot of stuff I do when I'm having brain fog. I have confirmed chronic complex migraines and am in the process of getting checked for me/cfs, pots, and fnd. I basically only wear shorts, dresses, or skirts for simplicity, I can't take a shower without the ability to sit safely or someone to check on me, I can't drive much anymore, and I can't really focus on anything. My doctors are finally listening a bit, so hopefully i can get the help I need soon.
Love your content. As someone who has had to quite my job because of my disability I'm proud of you for moving forward and doing what you can to contribute. I know I tend to feel worthless when I can't do anything around the house or bring any money in and it gives me hope that I can still do things of value even when I'm not doing well. Keep up the good work!
Wow that was impressive. Migraine Jen is a secret genius. I'm so glad she understands the truth of her condition so well and is so proactive about safety during an episode. I think I need to start setting some ground rules for when I get migraines so when the confusion sets in I have some rules ingrained to keep me sane and safe because I get lost and distracted so easily.
Have you ever thought of making / selling merchandise? If you don't already that is 😆 would be another great way for people to support the work you do 😊👍
This is so relevant! When I have different levels or types of migraine, it's almost as if I'm in a totally different state of mind and it's so hard to imagine what "normal Tori" would do and vice versa.
Totally! 100%!!!! Do you have different memory banks as well?
@@MommingwithMigraine Not that I can tell, no! I have memory loss, but it seems to be generalized.
I can believe it! Obviously you have grown much further in the months that have passed. I think because you tell it like it is your channel is going to continue growing.
I get a lot of migraines. Not daily, like weekly. I knew I would get dysfunctional during my migraines, but I think I never notice what symptoms I had around it. Your videos made me realize that I need to be more mindful of what my body tells me. Thank you.
It is interesting to see this perspective. I have suffered from chronic daily migraines for 10 years and my memory is hit or miss depending on where I am at in a migraine. So it is comforting to see you talk about it this way. Also we call my memory stuff rolling brown outs (sort of like your wiggles) because I am not blacking out but non migraine me has zero, literally zero remembrance of said thing but not calling it memory loss makes it sound less awful. Thanks for the video.
Thank you. I am experiencing neuromuscular symptoms that are leading to a possible rare diagnosis. I have no one at all who has experienced any of my symptoms, and some of them a really weird. Finding you, especially this episode, gives me the feeling that someone has an idea of what I’m going through. I have very “brainless times”, as I call them, when I have the trouble talking or putting things together into how to do it. I have a drug that I take every six months and for at least 4 of those months I struggle with smaller issues of the things you have just described. Thank you for offering how you deal with it. It really helps me. And I have a rule about carrying food, too! I have muscles that “jump” meaning both a muscle and the opposing muscle spasm at the same time. It is horrible to end up with hot tea over your entire front. I have a walker that I don’t always need, but on days that the muscle spasms are horrible, I usually need the walker or the wheelchair to walk, but even if I don’t, I use the walker so that I can put the drink in its drink holder and the food on the seat. That way my big spasms don’t throw my PB&j to the dogs and have to start over. Even the nystagmus disrupts any reading, so I have a LOT of audiobooks. Thanks for sharing your symptoms and your rules!
It would be super interesting to hear some of your husbands experience and perspective on caring for migraine Jen and dealing with your symptoms, and if/how that affects the relationship dynamic. I imagine it's a lot for for a partner to take on. Curious to know how he feels. As a migraine sufferer I dont know what that's like, I'm not on that side of it. As always, great info, I am new to your channel but am just loving all your videos :) ♡
Oh Jen, I understand the “pants are hard” you gave me great ideas for “Migraine Anne” texting your husband about abortives muscle relaxers is a great idea. So smart!!!
It would be so awesome if this could be your full time job! Your videos are always so great and so interesting!!
I dont know why or how your channel showed up in my suggested videos. Im so glad they did. Im now a subscriber and have watched several videos and am not as severe but so similar on so many levels. I have made rules but didn't realize some of why I did them it was just habits. But I must jave formed them during the migraine Cat stage. Now its time for diagnosis and treatment. Thank you helping me to see that I shouldn't just live and deal with it.
I just love to find out about such a disease . I had no idea. I love to learn! Thanks for educating us! Buddy is adorable! I hope you continue with these videos!
I love how you said that, from being around Migraine Jen, you know about how safe she is. It’s so descriptive and also so cute that she is a separate individual! Thank you for all you do in the midst of your chronic illnesses. I’ve had migraines since puberty, and they’ve changed over the years. I’m pretty sure now, thanks to your videos, that my recent onset of vertigo spells is migraine related. I have been evaluated by a neurologist, so I know there’s no other new issue. Take care of yourself and that sweet little bump!
Also congrats on the 1000 sub milestone!!!! 🎉🎉🎉
And the chair thing. Yes. I have this all the time during migraine and I'm pretty sure it is called difficulty sequencing! That rule is gonna change my life, thank you so much!
Thank you!! 🎉 I had no idea difficulty sequencing had a name. Hope the rule works as well for you as it has for me!
I loved when you asked your husband if you should put on “big pants” I tend to forget words even when I’m not having a migraine so I’ll be talking and just can’t think of what something is called so I’m just like “you know the thing..” and I try to explain it and people are like what are you talking about? but the explaining part usually jogs my memory and I remember the word. It is scary sometimes though with all the symptoms that follow me around every day. It wasn’t always this bad it used to be just feeling normal and then a migraine out of the blue but I learned to know when one is coming but now I have symptoms almost constantly including vision disturbances that scare me and dizziness and twitching that looks like Tourette’s tics but it’s not I have no idea what those are because they just recently started happening when I’m stressed or having anxiety. This is all confusing but you are making me feel so much less alone. ❤️
Alexa says/does some crazy insane stuff!!!
Grr, your "Alexa for 15" got me lol. Would love more dog training content too. I've been working on similar tasks and would love to see how you taught Buddy. You're way past 1k subs now :) Congrats on ~20!
I'm getting my service dog prospect on Halloween and I'm so excited. Training myself with a local trainer. Thank you so much for your videos. You have made me feel empowered to start this journey and hopefully I'll get more independence :)
Aww thanks for letting me know! You are so welcome. Best of luck 💜 long, challenging, rewarding road ahead.
I have been getting migraines since I was 8 yrs old, but didn’t get help until a few months ago because they got much worse. I am now 30. I experience a lot of the symptoms you described, but my neurologist never asked me about them so I thought it was “normal” for people with migraines. I think I should bring it up during my next apt. Also, you are an amazing and inspiring person.
Yes. After watching MwM videos, there are some things I need to talk with my doctor about. For example, blind spots. I thought that was something everybody had once in awhile.
Very interested in a video about vestibular therapy exercises!
It's posted now!! ua-cam.com/video/HwuYAKI65Sk/v-deo.html
That you for sharing the rules! Very smart to have those rules
*I knew you were that clever and I know you can manage yourself, well, but it’s really cool that in the migraine phase you can learn and keep to those rules :)
Yes! Vid on what you do for vertigo pls!
It's posted now!! ua-cam.com/video/HwuYAKI65Sk/v-deo.html
Wow... I am watching this Dec.19, 2020 & you now have 14,900 subscribers!! Basically in ONLY 3 months you have gained 13,900 subs! That is SO fast!! Congrats Jen!!
Congratulations on 1K & cheers to the next 1K, Jen! 🎉🎉🎉 Thank you for sharing Migraine Jen’s Rules for Life! Glad these keep you safe ♥️
Thank you so much!! You're been here since the EARLIEST of early days, can't thank you enough for your support!
Oh the bump is so precious 😭🥺❤️
Thank youuuu 😍 I'm loving this stage!
I have some of these rules and need so many of the others.
Congratulations on 1k 🤗🎊
Your migraine Jens safety rules sound like my dissociated Jens safety rules 😬
Thank you!!! If I didn't have a migraine I'd be able to say something here but I can't... ugh. Sorry 😞
Breaking rules, replying anyway 😋
Momming with Migraine 💞 hopefully you can rest tonight & feel better tomorrow.
Congratulations on the 1,000 subs again!!
@@JenFarrer that's the plan 💜 thank you! I have some catching up to do on your channel.
So from October to February you went form 1000 to nearly 21000. Impressive.
I started Dec under 2k. 20k by Jan. Craaaazy. Thanks!
i loved this. i love the yummiest food one! 😃
Never wrote them down or categorized them as “rules” but as for your experiences when you have one ... I have similar ones. The shower thing, the vertigo, I get clumsy when I have a migraine so doing important things does scare me at those times. Thanks for the video and 🥳 congrats on 1000 subscribers
This was such an interesting video! and I'd as someone with vestibular migraines I would really like to see a video on the vestibular exercises
It's posted now!! ua-cam.com/video/HwuYAKI65Sk/v-deo.html
@@MommingwithMigraine Thankyou! I actually watched it as soon as it came out and it was really great! I'm actually thinking about vestibular therapy myself now, I feel like it could really help for those migraine days
Yes please on the vertigo exercises!!!
It's posted now!! ua-cam.com/video/HwuYAKI65Sk/v-deo.html
please make a vertigo video! my mom struggles with it horribly and it would be so helpful to hear from you!!
Vestibular therapy? It's getting a lot of requests. 2021!
It's posted now!! ua-cam.com/video/HwuYAKI65Sk/v-deo.html
I am really cute and really good with you for support you and your family and your dog 🐶 ❤️
Congratulations on hitting one thousand
Thank you! 💜💜💜
SUCH AN INFORMATIVE AND INSIGHTFUL VIDEO!
Aw thank you!!
2 months ago: I can't believe we made it to 1000 subs!
Now: over 8k subs 😱
1 day later...10k subs.
@@rebekahlynhenna7453 3 more days... 14.9K - She is growing SO fast!!
18k now!
Thanks fam
Yes please to the vestibular exercises. Referrals for specialist care are really slow at the moment because of Covid and funding cuts so it would be super helpful to have some things to try whilst I'm waiting
It's posted now!! ua-cam.com/video/HwuYAKI65Sk/v-deo.html
You're channel is so important Jen
What an interesting life you have. You seem to handle this amazingly. I appreciate your strength.
I wonder if people who were Dx as multiple personality years ago, were ever actually having these kinds of migraines? I’d never seen this kind of migraine before finding your channel.
I've been putting my PRN meds in my pill case at the maximum quantity so that 1.) If I need them, I don't have to go upstairs and get them, and 2.) I'll know how much I took that day and roughly when based on which compartment I took it from.
Great video. You seem like a really nice, warm person :) Also the chair-table problem is exactly how i have it 😅
Love the rules. I live by alot of them. I have Spina Bifida questions welcome.
Yes please to exercises
Hi Jen. I just found your channel a couple days ago. What's really interesting is, if have all the same symptoms ( But my head feels like it is under electricity, and the pain is awful), problems and even the same Rules list ( exep. my husbands name is not Brian). But I was diagnosed with MS after looking for help for over 2 YEARS. I found out after years that my "symptoms" get really bad when I come in contact with chemicals. All kinds of chemicals. (NEW Laptops, TV's, Clothes, Electric Stuff, Paint, Furniture, even Air Filters from 1 Brand...the List goes on). My point is... maybe your "migraine Attacks" can be triggered also by this. I was also thinking to make a youtube channel about "My Stuff", but I don't know. But you have a new sub in me. See you..
I definitely do have migraine rules! I haven't met anyone else who has these too. I should write these down because I can only remember the big 2:
1) No driving, ever.
2) Text fiance to help me take my pills (my abortives are 3 separate pills and I forget to take all of them if I don't have help. Also WHY IS THE PACKAGING SO HARD TO OPEN?)
Yes I am interested in the excersises! I always wonder if the stretches I naturally do during a migraine actually help.
It's posted now!! ua-cam.com/video/HwuYAKI65Sk/v-deo.html
I'm interested in the vestibular training/therapy videos as well!
It's posted now!! ua-cam.com/video/HwuYAKI65Sk/v-deo.html
Would love to hear the vestibular exercises.
There's a video up on my channel!
Random question I just subscribed to your channel about 2 weeks ago and I've basically binged watched all your videos does migraine Jen understand that she's pregnant and what being pregnant actually means love you and your channel oh I must not forget buddy
Aw, thanks! That's a really great question! Yes, she gets it, but she's late to the party. Migraine Jen is going through all the stages of feelings that I went through (excitement, nesting, fear of labor, etc), but about a month or two later than not-migraine Jen went through it.
💚
You did tell the chair story in the confusion video
Thanks. I now have 2 timers going on my Alexa
Hheheehehe 😄
Wow that me .
Hello Jen,
I am curious to know what Buddy does when you are in bed with a migraine. All of the dogs I have had over the years would lie beside me for the duration. Also, my head changes shape during a migraine ( I call it the shifting tectonic plates) and afterwards my head smells odd. Have you ever noticed that?
I don’t cook because I forget something is hot and don’t use gloves or I drop it and it’s boiling water etc I can’t even pour a kettle etc or fall bending into oven etc ,I have hemaplegic migraine and vestibular and all different types with nothing that controls them I’m actually waiting for my puppy now I’m hoping to train as my service dog I have one now so this may be muddled, I’d love to know how really to get started on this journey I’m 47 can not even leave house on my own due to sudden migraines and collapse as my main severe migraine causes totally left side paralysis and loss of speech and sight , a lot of what you describe is what I’m like my migraines are literally robbing me of my life and making feel so ill and useless.
Migraine Alice stole my ben and jerrys and I forgot and looked for it for 2 days
Come on, Migraine Alice! Stop that!
Thank you for this video just found you today 3rd video I've watched. Plz point me to the VM exercises p l zzzzz and thank you again 🙏 for your content.
I haven't made that one yet 😕 welcome to the channel!!
It's posted now!! ua-cam.com/video/HwuYAKI65Sk/v-deo.html
"airplane mode"
1:30 Well, you're mot the only one.
ua-cam.com/video/N4BzaFFKjko/v-deo.html
You know you're in trouble when you're on a game show and the host asks, "What's you're husband's name" and you can't remember."
Jen as a way of increasing your follower could you join tik tok for you page? Or is that too much for u
Too much for me to take on, and I'm too old for that 😛
You tubing itself or any of the others, texting,is too much indeed...
Also good to remember: Tik Tok is a Chinese owned company, and computer companies in China routinely share data with the government.
How does Migraine Jen remember, or even know, she has rules?
Migraine Jen having a memory was a shock to us all! It's a memory bank I can only access during other migraine attacks.
You are drinking coffee in this video. Decaf? If not, it's something worth investigating more deeply. Caffeine is, I think, the *most frequent* cause of 'migraines.' What other causes there are, I don't know, but that one, at least, is known. (Caffeine is also connected to a whole boatload of heart and blood pressure symptoms.)
Caffeine dilates blood vessels in the brain in the short term, which is why medical science long ago began to incorporate caffeine in treatments, like ergot + caffeine drugs. The realization that caffeine is implicated as a cause of migraines came later, long after I quit caffeine and ended my own migraines (almost entirely) in 1980. That's based on solid science, but many, many practitioners have paid no attention. The myth that caffeine is harmless has become an article of faith among many people, not to be questioned, even among many doctors.
Memory is an interesting subject. When you're Not-Migraine Jen, you don't seem to have access to all of Migraine Jen's memories. Migraine Jen, when suffering from severe brain fog, also doesn't have access to all of Not-Migraine-Jen's memories. I'm visualizing a Venn diagram, where one of the circles is smaller and varies in size (brain-fogged to varying degrees), and one circle is much larger (not brain fogged, normal Jen). The two circles partially overlap. When the brain fog is at its worst, Migraine Jen's access to any memories at all is severely impeded - even the memories she herself created.
Does that visualization cast any illumination on your migraines? Not that I can see, other than to reinforce the idea that a heavy duty neurological disease is at work.
I enjoyed your explanation of Migraine Jen's coping rules, which she created herself (from trial and error and mistakes, it seems). She *does* learn, and she makes good use of notes she creates to help her navigate her world safely.
She'll need some new coping rules once the baby is born.
I think you answered a question I had: does Migraine Jen also suffer from fainting episodes? If I understood you, the answer is 'yes.'
Does that argue for the presence of two separate and distinct medical conditions? Maybe? But a firm conclusion demands more evidence, probably.
Hello, it's migraine Jen. I stopped caffeine for a long time to check on that. For the rest, I need to take a nap first.
My rule is to take an abortive and lie down.
If only I could do that every day 😩