Spot on. Active Duty Army Soldier, still in, over 20 years served, E.O.D. and have had Raynaud's my whole life. I've been stationed in Alaska (over six years) and have worked in various mountains of Afghanistan. I even went to some cold weather courses in Alaska. Learning how to deal with Raynaud's in a field environment is beyond a pain, and few Primary Care Managers, let alone medics, have any real understanding of it. Thank you for making this east to understand presentation!
I agree with you 💯. I haven't found any doctor for the past 15 years here in NY who knows how to treat this damn thing. They keep referring me to the vein specialist. I went and had my vein and arteries checked and they found nothing wrong. There's not enough research been done to see if there could possibly be a way to finding a cure.
"💔💪 Living with lupus SLE, nephritis, Raynaud's, and APS has been a challenging journey. My body aches, especially my joints, making everyday life a struggle. But I won't let it break my spirit! Despite the hardships, I remain a happy person. Though others may not fully understand, I am grateful for the support I receive. I refuse to give up and continue to hope for the best. I am blessed to have the best doctors by my side.🌟 you are spot on😘thank you so much!
I have had this for over 40 years and I have found that wearing a scarf that keeps my core and neck very warm , not warm but very warm. It never goes past normal chilly hands. Gloves mean nothing, I have spent big money on the best and found out my trigger is the temp of my core and neck
Best explanation ever. I have such difficulty explaining this to relevant people. I need my hands and fingers especially as all my work involves fine detail as a creator. I cannot touch cold things such as cold weights in the gym or my blood vessels burst and cause blood loss. Also if I injure my to or any finger the same thing happens on the finger with the injury. My baby finger has it now.
Thanks for the video. I am one of the few men with Raynauds, it's literally a pain and nuisance. I have endured "cold fingers" on both hands for over twenty years and it happens as soon as the temperature drops. We are now in October and the outside UK temperature is 12c/54f (indoors 21c), but although I am inside my heated house, my fingers get very cold and go white, purple and blue. They sting and the only relief is warn water, but that isn't easy when I'm away from home. I have never smoked cigarettes and my stress levels are low most of the time. I don't have any of the other illnesses that were mentioned and I must just be unlucky.
Do you have those gloves that have things to still type but keep your hands warm inside the house? I have Isotoner that work. There is this self-adhering tape a lady on UA-cam showed how to very gently wrap the fingers from nail toward hand, not pulling at all or it will cut off circulation, but easy wrap and pushing together as you go. The wraps keep my fingers warm and allow me to type or click without pain. Weather here in Northwest California by the coast has not been that cold this winter (low 40 degrees-not sure how to calculate off hand) but trying not to waste water so I am washing hands and things too much in very cold water, rather than waiting for two minutes (wasting gallons of water) for hot water to come, and then it is scalding. Hot water heater is far away so only use warm/hot for showers and dishes. For cheap inside gloves, I ordered a pair of Achiiou Winter Gloves with touch screen for men & women online for $6.99 (sale on A) that had good reviews just to try a pair before I buy more. Isotoner gloves are too expensive to use hacking around the house. If the Achiiou gloves coming do work for Raynaud's to keep hands and fingers warm inside, I will order a few more pairs at that price. Nice to be able to stay warm and type (or text if that is your thing).
Hi I'm Siddharthini from India,Chennai I'm suffering severely from Raynaud's now and my Middle finger is hurted and swelling. Can't bear it affecting other 2 finger's.
i believe that smoking and/or nicotine itself also contributes to vasoconstriction. regardless, smoking is terrible for health in multiple ways. caffeine is also a vasoconstrictor and can contribute to stress, exacerbating the fight or flight response. as part of the involuntary acute stress response, sweat cools the extremities, exacerbating raynaund's syndrome. vibrations in the hands and feet, as well as causes of poor circulation in general, can also restrict blood flow to the extremities. some supplements, like ginkgo biloba, claim to increase blood circulation. as for cold, i have heard that (acute) episodes of extreme cold, nearing or resulting in frostbite, can result in (chronic) raynaund's syndrome from cold later, perhaps as an involuntary learned response.
My pinky finger seems to be the one most affected. That must be unusual based on what I see here. A cold tile floor will set it off in my feet unless I'm wearing slippers or thick socks.
I thank you for this lesson! It’s really helpful- I just wanted to verify about the drug interventions. I believe it should be drugs that promotes vasodilation not constriction like Calcium Channel Blockers to improve blood flow. In anyhow, thank you so much for this educational video!
What about vibration and physical stress? I only seem to get this when I mountain bike in the cold. My mountain biking is on very rough and technical trails, so I have a lot of vibration and "physical stress" on my fingers and hands. I also ride road bicycles and don't tend to experience it on the road as it's a much smoother ride and I don't grip the bars nearly as hard since it is a smooth ride. Excellent video!
Can this happen overall in the body? Because i feel when I'm exposed to cold like it causes narrowing of my veins causing me to have palpitations and skipped beats. Plus it takes me longer to warm up and when i do I'm back to normal.
My question as well. Very common, especially in middle aged people who have been using power tools. Possibly decreasing due to the reduction in 'industrial' occupations in the western world.
In me it's not so much the cold but more cooling down. When I stop exercising I am still sweating when the Raynaud's kicks in. Never paid attention if I have it bilateral though.. I think I usually have it on my right hand?... hmm... odd. Anyways, my mom has it as well.. so thanks mom .. ;-)
La verdad no sé cómo es que llegue a este video...pero solo paso a decir que yo cuando tenía 21 años (ahora tengo 23) tenía este síndrome y los dedos se me ponían todos hinchados y morados hasta que un día fui a lo de un curandero que vive cerca de la casa de mi tia y le mostré mis manos y pies como los tenía y me curo y ya no tengo más esa enfermedad..
I still don't know what can make it go away. I've tried all those remedies and nothing works for me. Wearing socks and gloves for me is the same as wearing nothing at all. I can put on two pairs of thermal socks with insulated boots on and still get frost bite on my toes when I'm out in the cold just over 30 mins. I wear two pairs of gloves with the liners in them. It's only good to help get me to the bus stop then back home very quickly. I usually have to be stuck inside all winter long😢
@@Palmetto-J same for me.. i found that if i’m at home if i take my shoes off for awhile & move my feet around then they warm up, even when it’s cold. if your shoes are wet from sweat or anything your feet will be like ice cubes until they dry out.
That’s terrible you are affected in so many areas so must need to always keep warm. For me it’s my nose and so embarrassing when it thaws out bright red! There must be something like ginger to keep blood flowing?
@@JJ-jl1ge yes I stay in bed a lot with heating blankets and I take a lot of warm baths and I drink hot tea to keep warm. I'm sorry about your nose . I hope the doctor and scientists can find a cure and a reason for it
![Raynaud's Syndrome vs Phenomenon vs Disease? [Why Are My Toes Cold?]](http://i.ytimg.com/vi/GblyZ6ySzSo/mqdefault.jpg)
Spot on.
Active Duty Army Soldier, still in, over 20 years served, E.O.D. and have had Raynaud's my whole life. I've been stationed in Alaska (over six years) and have worked in various mountains of Afghanistan. I even went to some cold weather courses in Alaska.
Learning how to deal with Raynaud's in a field environment is beyond a pain, and few Primary Care Managers, let alone medics, have any real understanding of it. Thank you for making this east to understand presentation!
I agree with you 💯. I haven't found any doctor for the past 15 years here in NY who knows how to treat this damn thing. They keep referring me to the vein specialist. I went and had my vein and arteries checked and they found nothing wrong. There's not enough research been done to see if there could possibly be a way to finding a cure.
@@Palmetto-J Agreed; I am going to take a leap and get a referral to Acupuncture to see if that helps.
"💔💪 Living with lupus SLE, nephritis, Raynaud's, and APS has been a challenging journey. My body aches, especially my joints, making everyday life a struggle. But I won't let it break my spirit! Despite the hardships, I remain a happy person. Though others may not fully understand, I am grateful for the support I receive. I refuse to give up and continue to hope for the best. I am blessed to have the best doctors by my side.🌟 you are spot on😘thank you so much!
God bless you abundantly
This is a phenomenal way of teaching and explaining.
I have had this for over 40 years and I have found that wearing a scarf that keeps my core and neck very warm , not warm but very warm. It never goes past normal chilly hands. Gloves mean nothing, I have spent big money on the best and found out my trigger is the temp of my core and neck
THANK YOU SO MUCH. I'M A NURSING STUDENT AND THIS MADE IT EASIER FOR ME TO UNDERSTAND THE DISEASE!
YAY YAY YAY!
Spot on! Thanks for the lesson. I have Raynaud's symptoms for last 2-3 years and the only thing I can do to prevent is to keep warm.
Im sorry to hear that! and thank you for leaving a comment
Best explanation ever. I have such difficulty explaining this to relevant people. I need my hands and fingers especially as all my work involves fine detail as a creator. I cannot touch cold things such as cold weights in the gym or my blood vessels burst and cause blood loss. Also if I injure my to or any finger the same thing happens on the finger with the injury. My baby finger has it now.
Thanks for the video. I am one of the few men with Raynauds, it's literally a pain and nuisance. I have endured "cold fingers" on both hands for over twenty years and it happens as soon as the temperature drops. We are now in October and the outside UK temperature is 12c/54f (indoors 21c), but although I am inside my heated house, my fingers get very cold and go white, purple and blue. They sting and the only relief is warn water, but that isn't easy when I'm away from home. I have never smoked cigarettes and my stress levels are low most of the time. I don't have any of the other illnesses that were mentioned and I must just be unlucky.
Do you have those gloves that have things to still type but keep your hands warm inside the house? I have Isotoner that work. There is this self-adhering tape a lady on UA-cam showed how to very gently wrap the fingers from nail toward hand, not pulling at all or it will cut off circulation, but easy wrap and pushing together as you go. The wraps keep my fingers warm and allow me to type or click without pain.
Weather here in Northwest California by the coast has not been that cold this winter (low 40 degrees-not sure how to calculate off hand) but trying not to waste water so I am washing hands and things too much in very cold water, rather than waiting for two minutes (wasting gallons of water) for hot water to come, and then it is scalding. Hot water heater is far away so only use warm/hot for showers and dishes.
For cheap inside gloves, I ordered a pair of Achiiou Winter Gloves with touch screen for men & women online for $6.99 (sale on A) that had good reviews just to try a pair before I buy more. Isotoner gloves are too expensive to use hacking around the house. If the Achiiou gloves coming do work for Raynaud's to keep hands and fingers warm inside, I will order a few more pairs at that price. Nice to be able to stay warm and type (or text if that is your thing).
Hi I'm Siddharthini from India,Chennai I'm suffering severely from Raynaud's now and my Middle finger is hurted and swelling. Can't bear it affecting other 2 finger's.
i believe that smoking and/or nicotine itself also contributes to vasoconstriction. regardless, smoking is terrible for health in multiple ways.
caffeine is also a vasoconstrictor and can contribute to stress, exacerbating the fight or flight response.
as part of the involuntary acute stress response, sweat cools the extremities, exacerbating raynaund's syndrome.
vibrations in the hands and feet, as well as causes of poor circulation in general, can also restrict blood flow to the extremities.
some supplements, like ginkgo biloba, claim to increase blood circulation.
as for cold, i have heard that (acute) episodes of extreme cold, nearing or resulting in frostbite, can result in (chronic) raynaund's syndrome from cold later, perhaps as an involuntary learned response.
My pinky finger seems to be the one most affected. That must be unusual based on what I see here. A cold tile floor will set it off in my feet unless I'm wearing slippers or thick socks.
I thank you for this lesson! It’s really helpful- I just wanted to verify about the drug interventions. I believe it should be drugs that promotes vasodilation not constriction like Calcium Channel Blockers to improve blood flow. In anyhow, thank you so much for this educational video!
I’m a nursing student and just diagnosed with Raynauds 😬 it’s been fun 😂 thank you for the explanation.
I'm a nurse also I have primary Raynaud's it's ruined my life and my career. It's totally fun 🤮
What about vibration and physical stress? I only seem to get this when I mountain bike in the cold. My mountain biking is on very rough and technical trails, so I have a lot of vibration and "physical stress" on my fingers and hands. I also ride road bicycles and don't tend to experience it on the road as it's a much smoother ride and I don't grip the bars nearly as hard since it is a smooth ride. Excellent video!
Great video I get painful cold in fingers and toes mine turn bright red
I have secondary Raynauds and I have Dupuytrens Contracture. I suspect that these 2 conditions often accompany each other.
Can this happen overall in the body? Because i feel when I'm exposed to cold like it causes narrowing of my veins causing me to have palpitations and skipped beats. Plus it takes me longer to warm up and when i do I'm back to normal.
Same here.
I get Raynauds worse in summer time. I have RA and MS
Me too I hate air-conditioning
Can this happen gradually ore is it always so distinct looking
thank you!
Im afraid to sit on cold chairs that can set my Raynaud's off for hours without being able to warm back up unless i get into a hot bath for hours
Excellent
Definitely nailed it
what about hand vibration white finger ? how can we tell if its been from a job/tool related !
My question as well. Very common, especially in middle aged people who have been using power tools. Possibly decreasing due to the reduction in 'industrial' occupations in the western world.
Would BUTEYKO BREATHING, which is supposed to increase oxygenation of the blood, and therefore, the cells, help with Raynaud's disease?
Treatment options? I’ve heard fish oil supplements help
All finger and toes. I've never checked my nose and ears but tomorrow I'll check 😂
Thank you
I tried taking flushing Niacin for Raynaud’s but it was causing aura headaches about 15 minutes after taking it, so had to stop.
Im ao tired of having Raynaud's its ruining my whole life 😢
I'm so sorry you have this.
The worst for me is the extreme itching when the blood flow returns. Especially on the swellings. Isn't this a part of Raynaud's Syndrome?
In me it's not so much the cold but more cooling down. When I stop exercising I am still sweating when the Raynaud's kicks in. Never paid attention if I have it bilateral though.. I think I usually have it on my right hand?... hmm... odd. Anyways, my mom has it as well.. so thanks mom .. ;-)
I have it too
I have experienced this too
Who hands I could see the vein pathway in purple with white background even in my wrist. Just toweled off from shower. I take a batablocker .
La verdad no sé cómo es que llegue a este video...pero solo paso a decir que yo cuando tenía 21 años (ahora tengo 23) tenía este síndrome y los dedos se me ponían todos hinchados y morados hasta que un día fui a lo de un curandero que vive cerca de la casa de mi tia y le mostré mis manos y pies como los tenía y me curo y ya no tengo más esa enfermedad..
Helló! Érdekelne hogyan!???
How did you get cured?
i still don’t understand why this happens.
I still don't know what can make it go away. I've tried all those remedies and nothing works for me. Wearing socks and gloves for me is the same as wearing nothing at all. I can put on two pairs of thermal socks with insulated boots on and still get frost bite on my toes when I'm out in the cold just over 30 mins. I wear two pairs of gloves with the liners in them. It's only good to help get me to the bus stop then back home very quickly. I usually have to be stuck inside all winter long😢
@@Palmetto-J same for me.. i found that if i’m at home if i take my shoes off for awhile & move my feet around then they warm up, even when it’s cold. if your shoes are wet from sweat or anything your feet will be like ice cubes until they dry out.
I stopped my fingers from turning white by adding 1 teaspoon of Cinnamon to my daily fruit salad.
My Raynaud's affects my hands, feet, knees, backs of my upper arms , my nose , lips , nipples , butt cheeks, and the sides of my upper hips/thighs
That’s terrible you are affected in so many areas so must need to always keep warm. For me it’s my nose and so embarrassing when it thaws out bright red! There must be something like ginger to keep blood flowing?
@@JJ-jl1ge yes I stay in bed a lot with heating blankets and I take a lot of warm baths and I drink hot tea to keep warm. I'm sorry about your nose . I hope the doctor and scientists can find a cure and a reason for it
jo
❤❤❤
👍
You take alot of deep breaths throughout your presentations, are you okay?
I have Raynauds and I'm only 12 🤦
4th trigger risk : COVID jab 😡
Better than Covid. There are risks for every vaccination.