CU#42. Chemo Round 2, Days 4,5,6. Alone but not Lonely.
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- Опубліковано 29 вер 2024
- This update was filmed on Tuesday the 1st of August, 2023 at my home in Ardross, Western Australia.
PROPAGATING LAVENDER
lawn.com.au/gu...
CA19-9
medlineplus.go...
CEA
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Dexamethasone (the corticosteroid infusion I got on day 1, and the tablets I took on Days 2 and 3):
en.wikipedia.o...
If you want a quick catch-up on my story so far:
• Cancer Update #16. Th...
FOLFOX
www.cancerrese...
FOLFOX6
www.eviq.org.a...
FOLFOX and FOLFIRI use in Stage IV Colon Cancer:
www.ncbi.nlm.n...
Folinic Acid:
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LIFEBLOOD (THE AUSTRALIAN RED CROSS):
www.lifeblood....
MY SUBSTACK (it's completely free):
wingmanwilcoxx...
The playlist that includes this video is located at • My Journey with Pseudo... .
My playlist to get familiar with Appendiceal cancer, PCI, CRS, PMP and HIPEC is located at • Understanding pseudomy...
Drainage journal:
21/4/23. Done with a small calibre needle without interventional radiology (IR), but did use a bedside ultrasound. 20ml drained before blockage. The initial thought was that the blockage was due to loculations (pockets of fluid, rather than a single 'bag' of fluid).
9/5/23. Assessment made for a second drain without IR. Bedside ultrasound showed no loculations, but lots of mucin. The attempt was aborted, as the doctor determined that IR was required.
19/5/23. Drain done with 14 French needle with IR. 2.8 litres drained before blockage from mucin.
8/6/23. Drain done with 8.5 French needle with IR. 1.5 litres drained before blockage from mucin.
18/6/23. Drain done via laparoscopy incision. 7.0 litres drained without blockage. The surgeon estimated he got 90% of the ascites out, which is par for the course.
30/6/23. Drain done with 16 French needle with IR. 4.2 litres drained before 90% blockage from mucin.
20/7/23. Drain done with a 16-French needle with IR. 6.0 litres drained before complete blockage from mucin.
TAGS colonoscopy endoscopy gastroscopy oncology bowel prep Picoprep Glycoprep Rabeprazole Oxycodone Tapentadol Buprenorphine oesophagus stomach ascending colon appendix cancer peritoneal carcinomatosis pseudomyxoma peritonei ascites fasting PET Positron Emission Tomography mucin blockage MRI peritoneal cancer index PCI curable religion beliefs theology Christianity Islam Judaism Buddhism Jainism Hinduism Paganism Taoism Pastafarianism Ietsism Cartesianism universal consciousness Nyoongar Noongar turmeric PMPPals Ultrasound Reverend Martin Luther King Jnr MLK content of character tolerance chemotherapy chemo FOLFOX FOLFOX6 Folinic acid Fluorouracil Leucovorin Oxaliplatin infuser port infusaport signet ring goblet cell adenocarcinoma Emerson enthusiasm Fleegle Bingo Drooper Snorky The Banana Splits Tra-La-La Papa Smurf Kawasaki Z800 ABS
As an introvert, I enjoy solitude and time away from people. Throw in a cup of coffee and a good book and I'm golden.
You and Caroline sound like you have a lot in common.
Me too
Me 3, except add my cairn Otis🐶in the mix❤
I’m like this as well 😉. Have a good day everyone! 😘
@@PaulinPerth It's a shame we live on different continents. We could totally hang out at bookstore and drink coffee!
🙂
This was beautiful Paul..you have reached so many on this journey. I don't have cancer but one day youtube decided I should watch your videos and you have such a light in your soul that I've been here ever since. There are things in life that bring me absolute joy.... Color, sunshine and snuggles. I try often to surround myself with color through any aspect... Clothing, the paint on my walls, pictures I look at, etc. The Sun.... When it's out, regardless of how I am feeling (I have autoimmune issues), I try to get outside at least for a little while and turn my face to sun. And snuggles... I have 5 dogs and two cats and I am grateful for every hug, kiss, smile and snuggle they give me. I know the zoo I have isn't always a possibility for others, but animals have such pure souls so maybe a more realistic option for some would be to visit a zoo or a petting zoo or maybe visit a local dog park.
Your zoo sounds lovely. And animal snuggles are so pure. Paul.
@@PaulinPerth ❤️
@@PaulinPerthI Love Animals!
You are so well spoken and easy to listen to, thanks for the update. I am going to do some serious thinking about how to bring more joy in life and I will share those things with you. What a thought provoking idea.
Good morning, Paul. It's morning here and one of the first things I do is drink a cup (or two) of coffee. More people than we may realize feel lonely. I am the president of a local volunteer group and we visit people who are sick, lonely, elderly. I've been doing this for 10 years now. The conversations are extremely valuable and sometimes very intense. Something else that sparks joy is drawing. I started art school 10 years ago after I was diagnosed with colon cancer. Your videos are very valuable!
I love this. I visit the elderly where I live and listen to their stories and music and take muffins and cakes. I drop in on a few single parents I know aswell who feel isolated just feeling stuck at home with their young children. Will be praying for your health.
@@breephoenix111 Thank you very much! ❤ I find it very meaningful to share my time with people who need it.
@@alsokristin7308oh I love hearing peoples life stories and leaving knowing we have both changed each other's days. It's pure magic 💛🌻. Thankyou for all you're doing and making such a difference.
With all you are going through yourself you are trying to help others. You are a wonderful person
I wish today we could all find a bit of joy In the simple things....I find joy in the finger prints on my patio doors left behind after my grandchildren have visited. I used to quickly wipe them off until I stopped one day when I realized the joy those small hand prints of a 1 and 4 year old bring me when I see them.....Especially in the mornings when I am enjoying my coffee and listening to the birds. It is the simple things in life.....
Paul, this topic is right on point with my thoughts today. My husband went to one of his work sites for the first time in 7 weeks, just to visit, since his cancer diagnosis. Of course I stressed over it until he came home and I realized while he was gone how, in just 7 short weeks, I had isolated myself. I have lived and breathed his diagnosis and cut out everything else. Seeing him exhausted, but happy, when he got home made me realize that both of us need a human connection outside of his health. We have a very good support system and I realized how lucky I am to have that, because not everyone does, and I need to use them not only in the scary and bad times like I have but for things not at all related to those times.
Thank you for your videos and your perspective on things. I do find it very helpful. I am glad to hear that your "crash" days were not as bad this round. I hope you have a nice day!🙂
How true this getting lost in one partners diagnosis! I see the pain in those left behind a lot on UA-cam and real life and see how hard it is to continue on for the loved ones left behind. But, its hard to separate yourself from your partner/ friend that’s going through the worst time of their life. Life ( sometimes unbearably) moves on as if you were but a blip on the surface. Brings a lump to my throat!!
It doesn’t bother me being alone. I actually enjoy it. What I have found is I don’t need people around me constantly. I have two dogs, and I love their companionship. I sometimes say to myself, my dogs are better friends than humans 😂👍😂 These two dogs bring me joy. I enjoy my own company. A lot of people don’t. It’s great that I can do what I want when I want. And I am only answerable to my self. Sounds selfish to a lot of people. But not to me. I would be quite happy on a desert island. 🤣🤣🤣🤣🤣🤣🤣🤣🤣👍♥
@@chuckthebrindlepittie6820 it’s true, I had a brindle Staffordshire bull terrier, his name was Harvey, he passed away a few year ago, best dog ever. I now have a black one called Blue. And a little Yorkshire terrier. I would have loads of animals if I could. But my house is small even though I have a big garden. But yeah, your like me. 👍❤️👍🇬🇧
Hey Paul, So great to see you looking so well and so happy. We really do have some things in common. It’s probably our age. Haha. I also happen to love lavender. In regards to being lonely, I also know a lot about that. I’ve been a single parent, of 2, for 25 years. I have raised them both entirely on my own. They are 25 and 19 now. My son is 25, mildly autistic and still lives with me. We haven’t seen their father in around 15 years. I have had a couple of brief relationships in that time. Most of which went sideways. I’m about to turn 50 in December. This is the happiest I have ever been. I like to say: “I’m alone, but not lonely.” I have battled chronic depression and severe anxiety since I was 4. Most of which stems from severe childhood and generational trauma. So I have definitely experienced some very dark and lonely times. Finding joy in your life is part of our self care. Here is a list of some of the things that fill my heart with joy. Nature is one thing that always brings me so much joy. I am so blessed to live in The Otways, an hour from The Great Ocean Road and The Twelve Apostles. My dog, I have a 3 year old, purebred, blue, American staffy, called Zoe. My children, obviously. Music. Music is like the air that I breathe. I rarely watch tv but I listen to music every day. I have the privilege of working full time from home, so there is always music on. Singing. I have fairly decent “pipes,” and love to sing. Aromatherapy, such as soy candles and my electric diffuser bring me joy and also my salt lamp, which creates a beautiful ambience. And for some reason fairy lights and wind chimes also give me joy. Just a small list. Cheers, from Country Victoria. Xx
Well how about that! My mother was born in Apollo Bay, and I spent a few childhood summers over there driving through Skenes Creek and the like. Those Otways are gorgeous. I will be back there one day. Paul.
Me too. I love fairy lights, chimes and my 2 salt lamps! And of course who doesn’t love dogs. I especially love the non descript rescues. Perfect blends I call them! And I love the people that adopt them ❤️
Thank you, Paul. Such a great but simple lesson for us here today. I am lonely, which is hard to admit to. But I'm feeling better already. Hope you're feeling well today!! Hugs from Las Vegas. 🩷🩷🩷
Sending love to you from Australia. I was in Las Vegas years ago and the warm nights and all the lights outside just walking for hours was amazing.
@@breephoenix111 Thanks for the reply! I love living here and am glad you got a chance to experience it for yourself. I've never been to Australia...yet! You're such a wonderful speaker. I look forward to listening to more of your story. Stay positive! 🩷👍
@@taffycat93 if you're ever in Australia, my home in your home. Hopefully I will get back someday.
@@breephoenix111wouldn't that be great, to meet in person? 👍👍👍
My spiritual practice is to notice beauty, anywhere and anytime. It gives me great joy to see a pattern of pebbles, or the way a tree branch looks against the sky. It is the backbone of peace in my life.
Great session today Paul. I enjoy the smell of the first downpour of rain after it has been very dry. Plus the grey clouds full of character.
Oh yes! Petrichor! I love it too! en.wikipedia.org/wiki/Petrichor
Well! Every day is a school day! So that glorious aroma is called Petrichor. Just the thought of it gives me sparks of joy. One of the things I really miss about living in the soggy UK after spending most of my life in dusty dry Africa.
Glad your feeling a little better after round 2 😊
I really enjoy my own company and relish time on my own, it makes me feel calm and happy. I learnt to crochet a couple of years ago and it is so therapeutic, I love making beautiful things. I think there is a big difference in choosing to spend some time on your own than having no choice but to be on your own, I think that’s were loneliness would come in. xx
You’re so brave. Thank you for making this channel and sharing your interesting life with the world.
My grandchildren bring me sparks of joy when I think of them or visit with them for sure. Seeing Beautiful Daffodils in the spring as well as hearing the Robins chatter reminds me of growing up in Scotland and all the fond memories bring me joy💕. Every once in a while my sister will send me Cadbury Chocolate that’s often difficult to find in Wyoming, such a wonderful spark of joy!!
Sarah from Pog Family passed comfortable at 1:30 am Aug 1,2023. Prayers to her family and love. Paul my love and respect for you grows with each Vlog. Blessings from Los Angeles
I've developed severe lung problems this year that have meant giving up playing clarinet in community bands and taking lessons. I hope this is a temporary blip, but in the meantime, I've been finding joy in learning how to play ukulele, which doesn't take good lungs, as it turns out. Thanks, Paul, for the reminder to look for the joy.
Love listening to you.
You can be lonely with people around you, I am trying to grow flowers in Las Vegas, very hard to go. Sarah passed away this morning
So good to see you look so well. Praying for you. My mom prayed for everyone she heard about with illness. Blessings.P.S. just a while ago, I went to grocery store for a fresh lemon which I hope to use in the Dutch Baby I plan to make for breakfast tomorrow, Wednesday. Also bought some pet toys for little digs and cats I see. I had so much fun looking at the pet toys in the store. You are so right - simple things can bring happiness into your life. Take care.
thank you for the update, seeing the excitement in your face to tell us about your list is infectious and very sweet...
I wish I was as emotionally mature and expressive as you are. Well I am still in my 20s so very young. We young people also (or especially) really need your wisdom. Things that bring me joy are reading different philosophies, lovely books, just thinking things in my mind, university studies, , sharing views and ideas with other people interested in similar things (biggest), so in summary all kind of intellectual and other joyful pursuits. Joy brings me joy. I like strong positive feelings and i'm fairly romantic.
Then you are well on your way to being a fully feeling, caring and empathetic human being. The world needs more people like you. Keep going. You are on the right track. Paul.
@@PaulinPerth thank you very much, you are an inspiration!
I love being alone, but not lonely. I love nature, especially walking in nature amidst mountains. I don't live in the mountains, but on the plains, so watching videos or pictures of people walking in the mountains brings me joy too! I love listening to people who find a way to turn their pain or suffering (illness, hardship, etc.) into an experience from which to learn and grow and then share their learning and joy with others, much as you have just done. None of us are guaranteed another 5 years much less another day. How we go after each day is important. We don't have to go after the day with massive energy and accomplishment to call it a good day. Every day is just a day to experience as best as we can, and if we can do so while showing and experiencing kindness, it is truly a brilliant day! Thank you for the kindness of this video! Wishing you lots of kindness in return.
I love being on my own but only so long then I get really down, but when the husband is in work I love to sit with a cup of tea/coffee or apple juice and watch UA-cam videos such as yours Paul. This is what brings joy into my life and also family are very important to me :)
My deceased mother always used to say that there was a big difference between being alone and being lonely. You and she were of a similar mindset on this subject. This instilled belief has gotten me through a lot of rough years in my life. If you can find small things that bring you joy, it does make you feel more centered and less lonely. Also, if you are more accepting of your faults and perceived failures in life, the grace you show yourself helps to make the situation less "lonely."
As the saying goes, no man is an island, and we do need the shared experiences of others to make us feel a part of a community in this life. Share of yourself with others (as you do, Paul), and the world seems to open up to infinite possibilities to eradicate the loneliness felt by so many. Thank you for bringing up this topic today.
I'm so happy you are doing well despite the couple of tough days. Many hugs to you...❤
Thelma
(USA)
Such Wonderful wisdom...my friend
Doing AMAZING ...Keep it up 🌸❣️
Sarah went to Heaven yesterday and this earth gained an Angel 🙏 Blessings to you Paul from South Carolina,USA 🙏
Hey Paul I don’t comment often but I just wanted to say what an amazing decision to share your story and journey. So that others who might be going through the same thing has a support network or someone to listen to. When they just want something to relate with and not something to escape from it. I think whatever your reason to making the videos. I think they do a lot of good and you seem like a very good person. I wish you the best.
I look forward to your videos everyday. Your words and deeds inspire me to be my best self.I truly admire your outlook on life!
Hi Paul, I’m sure you’ve now heard of the devastating news on Sara’s passsing. I’m sure you’ll address this in a future video. Sending my support for you, as always
Some things that bring me joy are listening to the calming sound of rain when I am tucked up in a warm bed, watching the little birds feed in my garden, feeling the warmth of the sun on my face, spending time with my son, meeting a friend for coffee… it’s about finding pleasure in the little things in life.
Those things sound beautiful. Yes, it is about the small pleasures. Bless you. Paul.
Great video. Sending hugs and prayers🙏🏻❤️🙏🏻
Paul, you spark joy for so many. I love looking at flowers, perfume, reading cookbooks, red lipstick, putting on my tallest high heel (that I can no walk in) and sitting in a chair admiring them, knitting gifts, baking gifts, watching silly Christmas Hallmark movies, meeting folks like you, Jenny and her family and the late Sarah and her family-more to come. Little things are the best but mostly giving to others brings pure joy- who doesn’t like a batch of brownies-no one so far. Peace be with you.
Brownies - yes! And banana bread with cinnamon. Love it.
David Bowie's voice brings me deep joy.
Oh, me too. Me too.
Paul..you are such a wise and humble human being and I thoroughly enjoy all your videos....hoping your health continues to soar!!
Hello Paul, i haven't commented in bit,i have haad a sinus znd chest infection, had antibiotics, now been given a 2 week course of a different kind,,my good ness you are bringing kindness and joy to lots of people on UA-cam, i feel ishould say we are all your friends, that must bring joy too us all.😊.im so pleased you are getting through slowly and calmly with this cancer treatment, the steroids are like miracle that falls back to a flat as they wear down then a repeat of ups with the next ones,,i am on a low dose everyday, but take more if i get a chest infection.i really dont like the way it goes down when stopping them,,but its zll part of treatment s in there ways,,my friends husband used to feel grumpy when he had to take them as part of his treatment 😮,,,im so pleased you talk of the joyful things,..lavender is one of my joyful s,my neighbour lets me cut a huge big bunch each year ,so beautiful and elegant and the smell mmmm!.i i dry them andd make oil.and lavender bags for pillow for my friends,,myy chicken s bring me huge joy,i love them so much and cuddle them,so my children, all grown up,and my grand children bring me joy..very much,,just talking with them and my they adore fruit s znd vegetables, its just wonderful .i do get downs because i cant do everything i used to..so i just go outside and hsve a listen and smell and thank god 🙏 forall, the blessings 😊,and pray he helps me to bring joy to others,.😊paul you really our a blessing and a joy,and make us laugh too.hugs,blessings and thsnkyou,s.😊
I tend to enjoy my alone time. I think part of what helps me to not feel lonely in it aside from being an introvert is my connection to God and my family that have passed where I feel very connected spiritually while in this world. Nature, animals, books, researching, tea, friends, family, and community are good too. 🙂
Thank you for this Paul….I live with chronic illness/pain and I spend most of my time in bed, my husband of 35 years is wonderful but we both do love our alone time during the day but come together in the evening to watch tv…..it works for us and during the day when my pain is really bad and I’m feeling alone I just go to him for a hug but I as well as him do love our space and we’ve understood that from the day we met!…I also have my 2 cats that stay with me always they bring me so much comfort and joy also!😊🙏🏻 we live in Calgary Canada 🇨🇦
I look forward to your videos Paul they to bring me joy!🙏🏻❤️🦋🌸
Wow What a wounderful and kind person you are. This video truly brings me joy. Big hugs from Sweden 😊
Spark of joy: taking my scuba gear out of the closet and find some water ti jump in !!! A realm with little gravity where i can fly free like a bird !
Oh yeah, I love SCUBA too.
Paul you are amazing in so many ways. I enjoy your videos and they bring me joy as well as your smile. I love lavender too. So do the lovely bees. I will plant one with a smile and always think of you. You are special. Thank you for spreading love and kindness even when you are battling such an ugly disease. I will never forget you. ❤
I am following your journey Paul. Small acts of kindness bring joy to all of us. They certainly have a big impact. True, you can be alone and feel that you are surrounded by friends. Lavender is one of my favorite herbs. I am glad it brings you joy. Freshly cut grass, tea, clove oil, and candles bring me joy. Watching a comedy movie brings me joy. When I watched this, I felt that we were hanging out together as friends.
This made me cry, but in a good way. I am going to go hug my parents now, who I am staying with for a couple of days while recovering from chemotheraphy ❤
My joy…a walk in the forest (even a local park), cuddles from my adopted, rescue parrot and chocolate with a great glass of port wine. When I get all three in the same day…that day is EPIC. I am glad to read of your easier time with round two Paul…this also brought me joy today…so thank you.
Hi Paul, thank you so much for your video, you have definitely inspired me to truly think about the things i genuinely enjoy ❤ Im glad for you that you feel better after this round 2 of chemo. Im sending you much love and prayers ❤️ xxx
I think just waiting for biopsy results is a lonely time. You have to pretend to be okay for the sake of others & carry on working no matter what. They've told me so little, I rang yesterday & asked for my BI RADS results & they refused to tell me. All I do know is that the radiologist thinks it's going to be bad news but she hasn't explained why. The bills don't stop coming in, my husband still wants his tea every night. You can be lonely in a crowded room. The thing is, there's no smoke without fire. Even if I'm okay this time: something's going wrong & it will have to be monitored & that makes me think one day, one way or another it will get me & that' a lonely thought. I can't tell people how I really feel & people rely on me so I won't be able to take time to heal properly either way. Already a month of worry about what this might be has taken it's toll on me.
I'm sorry you are struggling 🌸🌸🌸
From Sherry
@@snufflinghedgehog8595Thanks, I just want some answers now.
I really hope you'll hear back soon - it's such a long time to be waiting and worrying
🌸🌸🌸
@@snufflinghedgehog8595 Even if it's bad news, I think it'll be a relief to know one way or the other at this stage. Cheers for your kindness.
That does sound hard. I can understand how that has taken a toll on you. Waiting for results is hard. I remember when I was I that phase, and there is no denying it is a difficult time. I don't know enough about your specific situation, but if it is appropriate, you might want to confide in a close friend, or perhaps look at some therapy. I am in therapy at the moment, and it helps immensely.
Paul.
Paul, your videos came up for me because I have been following Jenny Apple. I am so glad that UA-cam introduced me to your channel. You are so very much unlike many UA-camrs. You aren’t making content for the sake of making content...you are doing it to enrich the lives of others around you. Thank you for that. I have had cancer three times and my eldest son did as well. I can very much relate to what you are saying. People who live kindness for others bring me joy because it is such a rarity in the world these days. Listening to folks like you, playing with my dogs, and being creative brings me much joy...as do good and tasty meals. Thank you for sharing your life with us💜
Me too...... I found him because I was researching........... via Jenny Apple and Sarah Pog........
Me too
Me too RIP dear Sara
I also watch Jenni & Sarah. RIP Sarah
Me too !❤
Dear Paul, I am watching from Germany and I am so stunned by the fact that you are reaching out to other people, even though you are dealing with such a severe desease.
You are one of the most intelligent, kindest and inspirational person on UA-cam, I have ever watched and listened to. I wish, there were a lot more of your kind.
A big hug and all the best for you. ⚘️
I will continue following....Maggie ❤
Can i just say something...You are a very good human ❤ Rare in today's world. Also your channel is definitely helping many feel less lonely. Thank you 😊
I once asked a widow what they missed most living alone, and they replied having someone to bear witness on my life. It's something I have never forgotten it.
Paul, you seem able to thrive during the ultimate existential nightmare!
I admire your growth! Your insight is sort of magic. I'll share a moment that was magic in my life as well. Forever.
Many years ago, I was a suburban mom in San Diego, driving everyday freeways. I had two beautiful children and a terrible husband. I felt so alone, sandwiched between the terrible and the sublime. I was afraid to leave my husband because he'd threatened I'd never see my kids again if I left him.
It was a crushing situation that sucked joy from life itself. One hot, dry afternoon, I was driving down a freeway off ram p & stopped at the traffic light, where all I could see around me was cement & crumbling asphalt. I was thinking dreary thoughts. Almost didn't notice the slight miracle on my right. A solitary red hydrangea thrusting its way through asphalt. A single persistent flower, impossibly thriving. It hit me like lightning. That moment defined my life. Crazy as it sounds, I've survived and thrived through, and on my own, to this day because of that brilliant red bloom growing alone out of nothing. 36 years ago. Thank you for the reminder, Paul.
I totally understand
Joy shared by two multiplies by a thousand!
Very profound!
To start with, your videos give me joy. Especially your smile. Here at home, crafting gives me joy since ive been housebound. I enjoy crocheting, drawing, making miniatures for my dollhouse and I'm always looking online to try new things. I always rotate my hobbies so i don't get bored of them. I also use my VR headset and visit places virtually and chat to many ppl all over the world on it too and have made many new friends that way.
Paul Ive been traveling the world on my own in a motorhome for the last seven years. Mind you I have my dog from Aus and my Turkish rescue kitten. I’m 72 in Nov and I’ve spent most of my life on my own and lonely I’m not.
That sounds amazing 👏. Are you travelling solo? I'm in Australia.
Happy to read your comment Suellen. The name of the street I live on is Suellen. Hurray for you out & about in motorhome, I have a travel trailer I'm a bit younger then you, I'm not feeling brave enough to venture out solo, I'm in CA., there's so much crazy things happening here and everywhere! My vacation friend is in Chemotherapy, so it's a challenge to plan mini trips together. You continue to enjoy and be safe! PAUL, you truly are an INSPIRATION, praying for You 🙏🏽💜! Thank you for sharing ✝️
@@breephoenix111 at the moment I’m in Germany on my way to the UK. All of my travels in the last seven years have been in Europe, Romania, the Balkans, Turkey, Georgia and Armenia. When I get back to Aus next year I hope to buy a van
@@suellenandrews8024 wow enjoy and stay safe.
@@suellenandrews8024if you are planning on heading to Scotland, I would love for you to visit me, and maybe share your adventure story with our Women’s Institute group. You will be welcomed by them and given the BEST homebaked cake.
This is such a thoughtful, positive idea Paul! As a recent retiree who is in decent health and is fortunate to have a healthy husband, as well as adult kids who live nearby, I am rarely alone or feeling lonely....and that is something to be grateful for! But there are still many simple, inexpensive things I have found that bring me joy separately, so maybe these ideas will help others: reading a good book, cleaning out a closet or cupboard and donating unused items to charity, making a kettle of soup from scratch, looking through old photos, sending a card to a friend just to say hello, taking a bubble bath, having a cup of hot cocoa with whipped cream, playing laser pointer chase with my cat, doing word scramble puzzles, working a difficult jigsaw puzzle, putting on some music and dancing on my patio.
I live in my home without human companionship. But I have 2 cats who give me joy and wonderful companionship and love.
You are an inspiration Paul. What a wonderfully simple idea to suggest to combat loneliness. I live in South Africa, I don’t have cancer, but I certainly experience loneliness. Keep going and inspiring us. Thank you 🤗
The smell of and taste of that first cup of freshly brewed morning coffee, sitting on my front porch, especially when our lilac bushes are in bloom, finding that warm, sunshiny spot on a cool day, and snuggling up with my cat bring me joy. Life's simplest pleasures are often the most rewarding. Smiling as I think about them now. Much love always, Stephanie in CT
Paul I am also an introvert and quite happy with my own company. Things that spark joy for me are having cuddles with my Devon Rex cats, a good cup of coffee, finding unique treasures for my home and following along with my favourite UA-camrs. You spark joy for me when your videos pop up ❤ It’s always nice to see your smile 😊 Cheers Steph
You are such a lovely person•••sending big hugs. I am 70yo and have been living alone for a long time now however at this time in my life I do not feel lonely. It did take me quiet some time to get to tris place.
What a wonderful message! I live alone and I'm going to hunt out some French lavender. All good wishes to you Paul. 🪻
Paul-- OMG….. this was so amazing to my soul. My eyes are filled with tears. You said so many things that brought my heart joy, sadness and truth. Know that you have just made a deep impact on me it many ways. This is something I will remember forever. Hugs
You are a truly amazing person and I’m so happy that I found your platform. I too was a cancer patient and was sick for a long time. Your talk about bringing joy into your life resonated with me. So my joy still is great clothes! Not expensive, just what makes me smile. Laughter is obviously joyful and even when I was desperately sick laughter was great medicine.
I’ve been reading all your postings and will continue to do so. You are right, it doesn’t take long to get the feeling that I know you.
With love and gentle hugs
Sherry
So glad round 2 of chemo was a bit easier for you Paul! You look genuinely happy and at peace.
Yes, Paul certainly does look and sounds very chipper! With all Paul is dealing with he definitely is sharing Joy and ways to find Joy! Thank you Kindly PaulinPerth!
I am taking care of my husband who has liver cancer. It is difficult to remember to have joy with all the worrying. But I do quilt and love being outdoors! Hugs to you!
It's hard not to worry when we have big trials to go through. I hope you are able to take some breaks. I have been a quilter most of my life. It's a great hobby. My first quilt was hand cut with a template, hand stitched and also hand quilted. It took forever! But I liked being able to take it on car trips. I'm praying that you can find pockets of joy in these difficult days.💞
I cleaned a sign in morley of graffiti... Inspired by you Paul. How I hope to run into you one day soon . X
Hey! That's so cool!!! Thank you for doing that! Yes, I hope I run into you one day too. Paul.
It's catching on. Like a reverse Banksy. ❤ #legend
@@carolinski73 I would be just as stoked to run into you Caroline. All the best to you. Reach out if either of you need a distraction or a chat. Carmen C.
I’m 60 and live alone. I’m currently not lonely. Joy in my pets, family and hot chocolate. I have a few spaces in my garden that I’m trying to decide what to plant, I’m happy sitting on porch and watching the birds. Thank you for sharing. 🙏🏼💞🙏🏼💞🙏🏼
I left a comment an hour or so ago letting u know that I was praying for you. ❤️🤗🙏 So, I was glad to see your post. I’m glad this went a little better this round of chemo. Do u have a P.O. Box address if we wanted to send u a little something or card? I live in PNW WASHINGTON, USA 🇺🇸 on the Olympic Peninsula, Sequim. We are the lavender capital of the USA. We just had our annual Lavender Festival last week. You are right it smells so amazing and beautiful too. ❤️🤗🙏
My joy is, music. I love Fleetwood Mac. I love good wine. And I love being with good friends and family. Love a nice bubble bath, and a pedicure. And a scented candle. And snuggles with my dog.
I love listening to Tusk. That song rumbles and beats along like a tribal symphony. I always have to do air-drums whenever I hear it. TUSK!
It’s amazing. A few years ago I had the opportunity to see Fleetwood in concert. It was the one Lindsey Buckingham played and I swear I was sober as a judge but high as a kite just on the sheer thrill. I was buzzing, dancing in my spot. It was my bucket list dream. Something I always wanted to see. I was gutted when Lindsey left again. There are certain bands that are very special. I missed out on the eagles, that was a shame.
Ps glad Caroline is there. Sparking your joy. We need our moments of happy. It’s so important.
Sending you big loves.
Thank you from the bottom of my heart for sharing your journey! You are so inspirational, and you help people all over the world in so many ways! What a blessing you are to the world!! ❤
My joys. Shenanigans for shenanigan sake. And teaching my granddaughter her family history.
Looking very good today Paul. Relaxed, thoughtful and accepting of the possibility that you might be turning into one who naps without shame. Good for you. Sometimes I think the whole world could use a good nap. Enjoy yours.
❤These are great suggestions, I'm going to start working on a list. There is one thing I do, I read. This helps me out. By the way, I went to the Doctor today, he has ordered me an MRI and CT scan, I saw a different doctor two weeks ago and this doctor was quite upset by him just treating the symptoms, instead of finding the cause😮. So hopefully I will get some answers... Shortly..Glad to see your smiling face today💕
Great work Chantel. Fingers crossed you are able to find and treat causes rather than just symptoms. Paul.
So appreciate your posts. My husband died in 2014, we met in school at 15. My kids are all grown, as well as my grandchildren. It is me and Otis🐶I am the same, alone but not lonley❤ I am very active in my church. I do the finances and I have a lot of support from my church family as well as my own. I love walking and working out ..Otis and I take a 2 to 3 mile walks, weather permitting in Massachusetts. And there is nothing like cuddling up with a good book in the winter time or any time, thank you again for sharing part of your life with us and putting yourself out there😊 I am 72 years young. BTW, I have lavender all up my walkway so when I come in to my steps, I usually rub between my fingers.. working, in my gardens bring me so much joy and satisfaction. But I have to say my joy is main man Otis 🐶even though it’s a lot of work to take care of a dog he is now 6 1/2 and if you know anything about Cairn Terriers, they are tenacious😂 have a blessed day, stay safe, and again, thank you for sharing your life❤ Otis and me, Massachusetts
I live alone and never get lonely, I just don't get bored. I enjoy my company 😅. I do make an effort to keep in contact with people who do live alone and don't at all enjoy it though and try lift their spirits. A little conversation and cup of tea can change someone's day. You're looking well.
Yes! A cup of tea! I should have mentioned that. That's great that you enjoy your own company. I enjoy mine too. Do you sing to yourself? I do.......
@@PaulinPerth I was actually misdiagnosed with pre leukemia 14 years ago and after two unnecessary bone marrow aspirations I was left deaf but I had cochlear implant surgery on my left ear two years after losing my hearing and still love singing, my voice has gotten deeper since losing my hearing but I still sing my little heart out 😂😂, my poor neighbours lol. As for now living in silence when not wearing my cochlear speech processer, I absolutely love the silence. It's strange how things happen but I believe everything happens for a reason. Also I always smile at strangers young and old, a simple smile can change someone's day. Thankyou for sharing your journey Paul.
Lovely picture❤
Living alone saves arguments that's my excuse and sticking to it - animal welfare getting my 100 percent estate donation
Hello from TX. Great to see you Paul, and with a smile at that; glad the second round was better. What wonderful suggestions for finding the things that spark joy to help those who are alone and are lonely. You are such a good human. The grandchildren bring me joy! ☮️💜🙏🏼
I agree ! Grandchildren definitely spark joy😊
that's good news Paul that the side effects were not as severe this time
I love listening to you Paul, you really have a way with words. I live alone and developed agoraphobia during pandemic and haven't been out for 3 years, l find that scary sometimes.I do like my own company but l do go days without speaking to anyone.The doctor has recently put me on anti depressants which aren't much help.I do have family but for reasons l won't go into we aren't close mostly due to my ex husband. l try to keep cheerful but sometimes it's difficult.
Hi Sheila, I'd encourage you to give some thought to the things that bring you joy. Even if it is mild joy from a crossword, or a warm bath. Small steps. Small joys.
I think many people feel similar to you in this Life! It's not healthy but I think it's a comfort zone! Over the last few years people and life is much different and not for the better! We all need to count our blessings, start finding happiness! I'm guilty myself. Let's listen to Paul and find some Joy 👍🏼!
Hi, I also live alone and have for years but due to a long standing chronic Eating Disorder, I too have developed acrophobia. I’ve lost friends and family because of this disorder as they’re sick of me. UA-cam is my go to when I need to hear peoples voices. I too am on medication but it doesn’t help my fear of the outside world.
Just know that you are not alone. Have you, through your Doctor been able to perhaps get a Mental Health Care Worker? They can often support in those first very hard steps to try to get out again.
Sending love and I hope that you can find a way out of this. 🥰🥰❤️❤️
@@louisebruce1863 Hi Louise thank you so much for your message, lts a comfort knowing that others know how you feel.l love u tube it makes me feel as it l have company. .l am on instagram l post pictures of a world l will never see, Hopefully things will improve,tablets help but not enough to give me confidence to face the big outside.I hope things improve for you in future, Sending love and thank you for your message.❤❤
@@dharobed3329 l agree with you joy does make life better
You are an inspiration Paul! What you are doing with this channel will help thousands of people ❤
Hey Paul… I have so many diagnoses that I should be so down all the time! I seldom find myself in that state because I like to keep my hands busy with crafts like crochet, plastic canvas, diamond painting, etc. Rarely do I keep anything I make since it brings such joy to people when you just randomly come across someone having a a bad day. It might be a laprobe I crocheted, a new baby Afghan, a hat, scarf, or just anything! There is always someone worse off than I am. To make a difference in someone’s life may be the reason they are still here today. You never know. It really makes me happy!!! (Rectal cancer survivor, sepsis survivor, MS, Diabetes, arthritis, degenerative disk disease, scoliosis, CHF, …) I wasn’t kidding!
❤❤❤❤ my continued thoughts are with you Paul. One reason why I watch you apart from your diagnoses is you’re so interesting to listen to regardless of topic. I also see lot of myself in you, although I’m far less articulate. I’m 44 female not married, no kids never lonely, love my space and my own company but I do have a lovely old school man in my life . He brings me joy, along with the wild birds I feed, nature, travel and learning languages. I follow you as I follow the pog family and Jenny Apple channels. My sister had breast cancer aged 34, fortunately she found it in time before it spread, but it has remained in the back of my mind since then…. I wish you well
hello Paul even though I live with a husband and his um sister….. lol….I prefer to be alone my 11 year old cat is my best company and he can be temperamental……. I keep you in my prayers hugs from Canada 🇨🇦
So happy this second round has been easier on you. The smell and taste of Jamaican Blue Mountain Coffee in a pretty mug brings me joy. Sitting quietly on my porch with the 2 dogs and 1 cat, sipping on it each morning is just magical.
Good to see you. Something that happened just today….my husband was off work and we had music streaming. An old Grateful Dead song came on. I love the Grateful Dead. I’ve been to many shows before Jerry died. Next thing I know, we were dancing around my living room like a bunch of 20 somethings laughing deep belly laughs and just feeling that music. It was exhilarating honestly. We were filled with complete joy. Music and dancing fills my soul.
Fantastic! I'm imagining it now!
Wow, Grateful Dead I've worked a few Dead concerts in Oakland, CA. My cousin just saw Dead and Company in San Francisco. Keep being 20 somethings & 💃🏽🕺🏽💃🏽🕺🏽
Can't believe I am listening to the 1979 Dead's concert recorded from Foxboro Ma .....such a small world! Keep on Truckin Paul from your Boston friend
@@dharobed3329 I so wanted to go to the last Dead and Co show for nostalgia but honestly it’s just not the same since Jerry died.
I’ll bet it was fun working their shows.
@@lnewbury1 Hello, yes working Grateful Dead concerts were definitely different! You could end up with contact High 😂 & people trying to sell pot-brownies 😉, I was years younger but I look at their hand and only 👀 brownie crumbs 🤦🏻♀️. January 2024, Dead & Company, I heard have a gig in Cancun at Moon Palace! Take care
What an uplifting message, thank you, I really needed this xx❤️
You are welcome!
@breephoenix111 thank you so much. You too have a lovely day💚
Living simple keeps me joyful, I have berries daily and I look outside my window early in the morning and appreciate and marvel at he wonderful world we live in. I have a good sense of humour which is always a blessing.
I spend a lot of time on my own and I appreciate and love listening to music, learning Hebrew and painting or doing some craft work. I love gardening and I have experienced many different lives and situations, I do not need a lot of material things to make me happy, sitting under a tree with a cup of bushells tea and just going aagh can be just enough.I love this update thank you Paul
A warm hello to every body
You spark joy for me! You are a truly beautiful person, thank you much for your thoughts and your videos! And cats, I have 3. And yarn. Anything to do with yarn, spinning, knitting, weaving, crocheting.... And my children.
Lovely post Paul…..your twinkly eyes remind me so much of my late husband..who would get Ito “scrapes” because of this! That is what I miss every day ..he was always “finding ways” out of practical problems / a mad motorbiker in his youth with a heart of gold…..I do hope that treatments keep evolving and you find the magic potion for you. Thank you for thinking of others as we think of you.
Hi Paul, thank you from the bottom of my heart for this wonderful message ❤🌹🌹🌹🌹
I am alone and l do feel lonely. The first coffee when l am barely awake is always pure happiness... the first 3 sips... great feeling. Mes furkids are my faithful companions. Cheers from Montreal 😊
Hi Nathalie, I can only be virtual friends with you, and I hope others will join me.
The difference between alone and loneliness lies in how you process the concept of isolation. If you manifest the isolation then you are lonely. If you reject the isolation then you are alone, but surrounded by other people.
Please mentally reject the isolation. You are actually surrounded by other people. For one thing, there is this community on UA-cam. We are a community of people. We are real.
The other thing I ask you to do is think about things that spark joy for you, and look for ways to use them to spark interactions with other people. You mention that you like the first three sips of coffee. Can you catch up with old friends for coffee? Even if you can't, then perhaps you can take a book to a coffee shop, and be there amongst others to enjoy your first few sips of coffee, and watch other people enjoying theirs.
Small steps. Important steps.
Paul.
Hi Nathalie, a lot of hugs from me! Have a nice day. Margaret
Hi Nathalie, a warm hello from Cheshire in the UK 😊
Hi Paul, happy to watch your video while having breakfast. You look great 🥰. Here are my thoughts : I ‘m 57 and have always lived by myself and enjoy my company. Smelling the scent of pines makes me peacefull and brings me back to my teenage years when I spent a week in the south of France (all those pines on the way walking down to the sea), the taste of some orange juices and I’m back to the USA ( always that feeling to be back home when I spend some time over there). At the moment I like walking my dogs in the forest near where I live. That’s what brings sparkles of joy. Send you good energy from France
I agree, sparks of joy and kindness are wonderful things especially when unexpected 😊
I’ll revisit this tomorrow… but for now, music is my happy.
I have isolated myself for a few years now, but I never had any real issues with loneliness as such. I am just about to embark on a year of travel as well on the 14th August.. I think it will be very good for me as I feel like I was in a bit of a rut. People seem surprised I am doing it at 39, but I realised how important new experiences are and your age should never be a limiting factor in things you wish to accomplish. You are a very wise and insightful person Paul.
My 30s were the best years of my life! You will never regret travelling now and still being young enough to do whatever you want when you return. The people you meet, the places you go, the experiences you have - those memories will keep you from being lonely in the future.
Bon voyage!
39 is the perfect age to travel. Be safe and remember to always look up. X
I love the smell of the ocean, fresh crisp air, the crashing of waves, garlic and onion frying in a pan, the smell of freshly brewed coffee, the smell of a newborn baby, children laughing. So many things to be thankful for and most importantly that you have made me think about these things, Paul. You are amazing and the gift you are giving is incredible. Big hugs, you're beautiful.
I too love my own company although I have a full life with husband children and grandchildren. I think that most humans find comfort in an animal companion as they teach us to live in the moment and the older I get the more I realise that is part of the key to finding joy in the little things. If one enjoys the moment and what there is on offer one can find little gems and like animals feel the happiness from simple pleasures. Thank you for reminding us Paul.
I live alone too with my kitties, who I adore❤ Can't be lonely with the cats😊
I'm the same. They are my little family ❤
Seeing your vlogs brings me joy. Also a cup of English tea in a nice mug.
Oh my goodness you spoke to me. You are the same age as my son and I pictured you as one of my children, that brought me joy. Also the same for me I can be on my own and not be lonely. Paul YOU are a joy. Your videos have brought me joy. Love and good vibes to you.
Hi Paul
Watching from US and brought up in UK. I just wanted to comment that you are such an inspiration. I am end of life and so I don't know if it is loneliness or vulnerability? I believe it's a family disease, sorry, that's a little controversial, so I guess I wish my family didn't have to go through this. I retired in December last year. I recently signed up to be a foster parent to animals. I obviously can't commit but hope to bring some joy.
Thanks for your amazing attitude ❤️
Im definitely an extrovert.... your tips are appreciated !!
Im a caregiver for my spouse who has severe back and leg issues. Good days and bad days. We are adventurous together.
Im great with watching or joining my goats on the trampoline lol. Ive got quite a few cats ( crazy cat lady) and my sweet mastiff dog.
Love coffee and a sunrise..smelling the clean air !!
Sarah POG died this morning. But, surrounded by family and love and warmth. THE way to go. It also does help me to pay attention to the little things that make me smile/laugh when I'm down (which is quite a lot). For instance, my dog waking me up and licking my cheek "good morning, mommy!" every day. That's pure magic!
I also come to you via Jenny apple I was raised on cape cod MA and I’ve live and raised a family in California since 1990. I’m a new empty nester and I used to go home to the cape every summer with my kids, but my dad who was my last close living relative just passed from cancer at 90 so there’s no one left to visit. Both my older brothers and mom have passed, as well as other family members so I’m lonely not to be going home this year. But I have my kids and a couple of close friends here in CA so love driving to the coast and put my feet in the sand, even though it’s the pacific I still love it! Then I go for my afternoon coffee which I enjoy! Love your channel. You are so kind and loaded with wisdom.. As with Jenny my heart has found a new friend to follow and send many good thoughts and prayers to you..