Thanks Amanda, and glad you enjoyed the video! Mental health and its relationship with disabilities is something I plan to talk about more in the future too, it's very important and overlooked.
Wow I've had glaucoma for years and never knew a head injury could cause it. Thanks. That finally explains it. I keep getting asked if it's in my family. There's so much I just learned from this video.
Thanks for watching! I’m glad you found it informative. Yes, glaucoma can be caused by many different things, even certain types of medication. Take care, and thanks for your comment!
Hi Josh thank you for sharing your story. I am a person with low vision as well and I struggle everyday dealing with this condition (end stage glaucoma) I felt encouraged by your sharing 👍
Hi Sebastian! Thank you for your comment and I'm glad that me sharing my experiences helped you feel less alone. Stay strong, I know what you're going through isn't easy. Do remember to reach out to your local services if you need help in any way. Whishing you all the best!
Thanks for telling us your story, Josh. I found your video through serendipity after an internet search for information about MicroSoft app Seeing AI. You a natural marketeer. Good luck in your chosen career!
Another great video. Thanks for sharing your story. You definitely have a talent for speaking, and I'm not at all surprised that you are pursuing a career in public speaking and advocacy work. Before I go any further, I'll apologize for any portions of this comment that may be nonsensical. I've been running on little sleep for the past few days, so... ummm, yeah. (Also, I see you responded to my comments from other videos and asked me a question; I'll get to those soon, I promise.) I've known and worked with quite a few people who have glaucoma. One lady actually got it at around the same age as you. She eventually had her eyes completely removed because the pain was so bad and it wasn't helping her any. I think it would be interesting to either have a conversation with you one day or somehow hear your perspective about living in a very conservative Asian culture and navigating the challenges that brings, especially when it comes to disability. I could write you an entire freaking novel about my experiences. It was such a huge struggle for me because I never felt like there wasn't much I couldn't do; I knew instinctively that the only reason I couldn't do things was because I wasn't allowed to and/or no one cared to help me find ways to make things accessible. I never understood the mindset that there were certain things blind people should and shouldn't do, could and couldn't do. Oh sure, I'll grant that even now, there are just things that someone with very limited or no sight can't do--such as fly an airplane, perform surgery, etc--but that speaks to the fact that the brain isn't getting the visual information to process and enable the person to do the tasks. And there are currently no exact ways to provide that needed visual input. Well, we could talk about sensory substitution, but that's a whole other topic. The things I wanted to do though, I knew were possible because I was able to experience them but on a very inconsistent and limited basis. So my biggest disability growing up wasn't my blindness, it was lack of trust and faith from my family. While I don't know this for sure, I think every blind or otherwise disabled person has experienced an "I'll pray for you" incident. The way you told that story was hilarious, yet I can relate. I don't mock prayer, but praying won't make all the books in a bookstore turn into braille, or have accessible labels pop up on each shelf in a grocery store. One time, I was in an outdoor shopping mall and looking for the Apple store. I stopped this woman and when I asked her which way the Apple store was, she said: "Oh, it's that way, sweetie. I'll pray to the Lord Jesus Christ to guide you there." BOOM! Jesus suddenly appeared and in a deep boomy voice bellowed: "Hello Khanh, my child. I see you want to go to the Apple store. By the grace of my power, you shall be at the Apple store in seconds." Riiiiiight. People are puzzling to put it mildly. It's like all logic goes out the door when a disability comes into play. I'm sure there's a lot more I wanted to comment on, but it's gone now. I know it takes a lot of work to make these videos, especially with all the editing and the extra effects you add in to illustrate your points. I appreciate your content quite a lot, even iI probably don't make sense in my comments. Hahaha.
Thanks Khanh for the feedback on the video, and I'm glad you're enjoying the content so far! Also your comments are incredibly thoughtful and a joy to read. They're the highlight of my day, even when you're sleep deprived. 😂 By the way, hope you're getting some good rest soon and please take your time to reply my comments to you! I know of other people who, like your friend, have had some really physically painful experiences with glaucoma. I genuinely count myself rather lucky not to have dealt with much of that, despite the severity of my condition. No headaches or major eye pains at all. Now that I think about it, I have mentioned small parts of living in a conservative Asian country that have made it difficult for people with disabilities, and that'll make a really good video and discussion topic. Thanks for the idea! What you mentioned about the "I'll pray for you" category of life experiences is such a funny way to call it, I might make an entire video just about those stories. It'll need to be tactful of course, but seriously some of our stories are incredibly funny (including yours). I appreciate the positive intentions, but honestly it's just hilariously strange how some people say things like that in completely inappropriate situations. Also, if you want to contact me, my email is on my channel page. You can go to the channel, click the About tab, and then there's a "view email address" button that will give you my contact email. You can always shoot me a message and we could set up a conversation. I've already gotten to speak to a ton of amazing people through the past few months being active online. I think you're a person who has tons of interesting things to say, and I appreciate how down to earth yet funny you are. Take care, and looking forward to your replies (after you take a well-deserved break)!
What is your eyesight now? Do you remain any light peeception? What is the scene you see in front of you? For example，a lot of colorful mosaic or totally dark or totally white?
Hi, I actually explain this in detail in the video but to summarise, my vision is very narrow and blurry. My vision in both eyes is less than 5% field of view, with the left eye seeing blurry colour and the left eye's vision looking like frosted glass (due to calcium deposits and cataract). So I can see colour (out of my left eye) but no details, text, or faces. Hope that helps and thanks for your question!
@@JoshTseng I know you talked about it in the video, but it's been 1 year pass now and I'm wondering if the vision is getting better or worse. Thanks for your detailed and patient answer, now I know. it
So, I have no idea if this is bad form to recommend a blind person a show, but have you watched (listened to? I'm sorry I have no idea what is polite) the show See? It's a show where all of humanity is blind except for like 3 people, and I'd like to know what your thoughts on it are. Whether it's exploititative, inaccurate, etc. They did a neat job (from a sighted perspective) of designing the world and the sets to make sense (like homes laid out in a grid, guide wires over the streets, decoration is done with sounds rather than images, etc; since humanity has been blind for centuries) but I have no idea if they consulted with any blind people. As someone who wasn't blind since birth, I feel like you'd have very informative and entertaining things to say about it.
Thanks for your comment! That's actually a really excellent idea, and I've been looking into doing this kind of analysis and reaction for Netflix's Daredevil series, so thank you so much for giving me another idea for a topic in this category. I've put it on my to-do list, and I'll make a video talking about it after I watch it. Will be sure to credit you for the fabulous idea too! Also: 1) It's not bad form at all to recommend us blind and vision impaired folk shows or movies to watch, we watch them too! Especially with services that have audio narrations like Netflix and Disney+. 2) You can just use the word "see", don't need to use "listen to", we blind people still say we "watch shows" or "went to see a movie".
@@JoshTseng awesome awesome awesome that TV is still enjoyable without sight! Gosh, I suppose I should have known, I listen to shows all the time while gaming even if I don't pay attention to the screen. Hope it ends up being an enjoyable show!
I believe she was quite aware of my situation, she had been present for my other papers before as an invigilator so I’m not sure why she didn’t take my problem seriously that day. 100% correct, she could’ve called for help and prayed at the same time. Ultimately, it’s been so long and I now just find that whole situation a funny story I now can tell. I think about her somtimes, wonder how she’s doing.
Yup blind people absolutely can work! It of course depends on the interest, skill sets, and chosen career path of the individual but people who are blind and vision impaired do all sorts of jobs. Some office jobs include lawyer, marketing associate, writer / copywriter, executive / manager, operations / logistics specialist, software developer, customer service specialist / front desk officer, sales, and more. Other manual jobs that people who are vision impaired can do include massage therapist, musician, para athlete, packer, and more. You can see that a lot of office jobs are possible, mainly because of assistive technology that help us use work and office software. This naturally requires training and access to the right tools but with the correct support, a lot of things are possible. Hope this helps!
@@JoshTseng thank you I’m currently 23 old from the have no vision in my left eyes due to many operations on it (cataract) and in my right eye I have a cataract but I’m scared to have surgery again 😬 this has been affecting my life alot any advice???
Hi, I'm sorry I missed your previous reply, work's been busy and I missed your reply in the comments. Hope this reply can reach you in time to help. I'm sorry to hear about vision loss from your cataract surgery, usually that's very rare. But I also understand how scary it is to lose vision after surgery -- that's how I lost the little remaining eyesight I had, after my last eye surgery which decreased my vision enough to make me unable to see anything clearly. I'm not an eye doctor though, and so my advice on how to handle this is very limited. I'm inclined to tell you to listen to your doctor, but I also understand it can be very difficult to trust everything you hear from just one person. If you can afford it, you may want to seek a second opinion from any eye specialists in your area on what options are open to you, and don't be afraid of asking questions about medications, surgeries, and post-surgery recovery. Still though, almost every surgery comes with minor risk, and especially for very complicated eye problems, vision loss (with and without surgery) may not be avoidable. Like my case with glaucoma. I understand that losing your vision can be scary, and obviously let's hope it doesn't happen. But just realise that a disability like blindness isn't going to mean you can't do anything anymore. As mentioned in my previous reply, there's still many jobs that the blind can do, and also hobbies and relationships are still possible. It took a lot of effort, but I'd say I live a relatively normal life and am very happy, despite being blind. Don't give up and wishing you all the best.
Thanks for watching! This one was a lot more of a personal story time so I hope you enjoyed. ❤
Thanks for sharing your story, Josh. Losing sight can be a very difficult thing to cope with. Appreciate that you were so honest about the depression.
Thanks Amanda, and glad you enjoyed the video!
Mental health and its relationship with disabilities is something I plan to talk about more in the future too, it's very important and overlooked.
Wow I've had glaucoma for years and never knew a head injury could cause it. Thanks. That finally explains it. I keep getting asked if it's in my family. There's so much I just learned from this video.
Thanks for watching! I’m glad you found it informative. Yes, glaucoma can be caused by many different things, even certain types of medication.
Take care, and thanks for your comment!
Appreciate yr open sharing!
No problem at all, I hope my story can help others too. Glad you enjoyed the video, and thanks for watching! 🙏
Hi Josh thank you for sharing your story. I am a person with low vision as well and I struggle everyday dealing with this condition (end stage glaucoma) I felt encouraged by your sharing 👍
Hi Sebastian! Thank you for your comment and I'm glad that me sharing my experiences helped you feel less alone. Stay strong, I know what you're going through isn't easy. Do remember to reach out to your local services if you need help in any way.
Whishing you all the best!
😊
Thank you,Josh.
Thank you for watching and for the support! 🙏
Thanks for telling us your story, Josh. I found your video through serendipity after an internet search for information about MicroSoft app Seeing AI. You a natural marketeer. Good luck in your chosen career!
Wow, thanks for the kind encouragement! And glad you enjoyed the video.
Another great video. Thanks for sharing your story. You definitely have a talent for speaking, and I'm not at all surprised that you are pursuing a career in public speaking and advocacy work.
Before I go any further, I'll apologize for any portions of this comment that may be nonsensical. I've been running on little sleep for the past few days, so... ummm, yeah. (Also, I see you responded to my comments from other videos and asked me a question; I'll get to those soon, I promise.)
I've known and worked with quite a few people who have glaucoma. One lady actually got it at around the same age as you. She eventually had her eyes completely removed because the pain was so bad and it wasn't helping her any.
I think it would be interesting to either have a conversation with you one day or somehow hear your perspective about living in a very conservative Asian culture and navigating the challenges that brings, especially when it comes to disability. I could write you an entire freaking novel about my experiences. It was such a huge struggle for me because I never felt like there wasn't much I couldn't do; I knew instinctively that the only reason I couldn't do things was because I wasn't allowed to and/or no one cared to help me find ways to make things accessible. I never understood the mindset that there were certain things blind people should and shouldn't do, could and couldn't do. Oh sure, I'll grant that even now, there are just things that someone with very limited or no sight can't do--such as fly an airplane, perform surgery, etc--but that speaks to the fact that the brain isn't getting the visual information to process and enable the person to do the tasks. And there are currently no exact ways to provide that needed visual input. Well, we could talk about sensory substitution, but that's a whole other topic.
The things I wanted to do though, I knew were possible because I was able to experience them but on a very inconsistent and limited basis. So my biggest disability growing up wasn't my blindness, it was lack of trust and faith from my family.
While I don't know this for sure, I think every blind or otherwise disabled person has experienced an "I'll pray for you" incident. The way you told that story was hilarious, yet I can relate. I don't mock prayer, but praying won't make all the books in a bookstore turn into braille, or have accessible labels pop up on each shelf in a grocery store. One time, I was in an outdoor shopping mall and looking for the Apple store. I stopped this woman and when I asked her which way the Apple store was, she said: "Oh, it's that way, sweetie. I'll pray to the Lord Jesus Christ to guide you there."
BOOM! Jesus suddenly appeared and in a deep boomy voice bellowed: "Hello Khanh, my child. I see you want to go to the Apple store. By the grace of my power, you shall be at the Apple store in seconds."
Riiiiiight.
People are puzzling to put it mildly. It's like all logic goes out the door when a disability comes into play.
I'm sure there's a lot more I wanted to comment on, but it's gone now. I know it takes a lot of work to make these videos, especially with all the editing and the extra effects you add in to illustrate your points. I appreciate your content quite a lot, even iI probably don't make sense in my comments. Hahaha.
Thanks Khanh for the feedback on the video, and I'm glad you're enjoying the content so far! Also your comments are incredibly thoughtful and a joy to read. They're the highlight of my day, even when you're sleep deprived. 😂
By the way, hope you're getting some good rest soon and please take your time to reply my comments to you!
I know of other people who, like your friend, have had some really physically painful experiences with glaucoma. I genuinely count myself rather lucky not to have dealt with much of that, despite the severity of my condition. No headaches or major eye pains at all.
Now that I think about it, I have mentioned small parts of living in a conservative Asian country that have made it difficult for people with disabilities, and that'll make a really good video and discussion topic. Thanks for the idea!
What you mentioned about the "I'll pray for you" category of life experiences is such a funny way to call it, I might make an entire video just about those stories. It'll need to be tactful of course, but seriously some of our stories are incredibly funny (including yours). I appreciate the positive intentions, but honestly it's just hilariously strange how some people say things like that in completely inappropriate situations.
Also, if you want to contact me, my email is on my channel page. You can go to the channel, click the About tab, and then there's a "view email address" button that will give you my contact email. You can always shoot me a message and we could set up a conversation.
I've already gotten to speak to a ton of amazing people through the past few months being active online. I think you're a person who has tons of interesting things to say, and I appreciate how down to earth yet funny you are.
Take care, and looking forward to your replies (after you take a well-deserved break)!
Good video, I love your can-do spirit!!
Aw thanks! Glad you enjoyed the video.
yup, for some reason people with Glaucoma surgeries, I even had a full retna detachment some how.. it's crazy..
Same, I actually had partial retinal detachment but it never fully detached for me.
Nice video
Thanks! Glad you enjoyed it.
What is your eyesight now? Do you remain any light peeception? What is the scene you see in front of you? For example，a lot of colorful mosaic or totally dark or totally white?
Hi, I actually explain this in detail in the video but to summarise, my vision is very narrow and blurry. My vision in both eyes is less than 5% field of view, with the left eye seeing blurry colour and the left eye's vision looking like frosted glass (due to calcium deposits and cataract). So I can see colour (out of my left eye) but no details, text, or faces.
Hope that helps and thanks for your question!
@@JoshTseng I know you talked about it in the video, but it's been 1 year pass now and I'm wondering if the vision is getting better or worse. Thanks for your detailed and patient answer, now I know. it
So, I have no idea if this is bad form to recommend a blind person a show, but have you watched (listened to? I'm sorry I have no idea what is polite) the show See? It's a show where all of humanity is blind except for like 3 people, and I'd like to know what your thoughts on it are. Whether it's exploititative, inaccurate, etc. They did a neat job (from a sighted perspective) of designing the world and the sets to make sense (like homes laid out in a grid, guide wires over the streets, decoration is done with sounds rather than images, etc; since humanity has been blind for centuries) but I have no idea if they consulted with any blind people. As someone who wasn't blind since birth, I feel like you'd have very informative and entertaining things to say about it.
Thanks for your comment! That's actually a really excellent idea, and I've been looking into doing this kind of analysis and reaction for Netflix's Daredevil series, so thank you so much for giving me another idea for a topic in this category. I've put it on my to-do list, and I'll make a video talking about it after I watch it. Will be sure to credit you for the fabulous idea too!
Also:
1) It's not bad form at all to recommend us blind and vision impaired folk shows or movies to watch, we watch them too! Especially with services that have audio narrations like Netflix and Disney+.
2) You can just use the word "see", don't need to use "listen to", we blind people still say we "watch shows" or "went to see a movie".
@@JoshTseng awesome awesome awesome that TV is still enjoyable without sight! Gosh, I suppose I should have known, I listen to shows all the time while gaming even if I don't pay attention to the screen. Hope it ends up being an enjoyable show!
@@octaviacoquus8857 Exactly! I'm sure it'll be interesting at least to analyse the show and give my opinion.
Is the teacher aware of your seriousness of yr illnesses? If she know then her answer of praying might be a bit.. 😅😅😅 can seek help and pray same time
I believe she was quite aware of my situation, she had been present for my other papers before as an invigilator so I’m not sure why she didn’t take my problem seriously that day. 100% correct, she could’ve called for help and prayed at the same time.
Ultimately, it’s been so long and I now just find that whole situation a funny story I now can tell. I think about her somtimes, wonder how she’s doing.
I believe she dun mean bad forgive her
What jobs can the visually impaired get????
Yup blind people absolutely can work! It of course depends on the interest, skill sets, and chosen career path of the individual but people who are blind and vision impaired do all sorts of jobs.
Some office jobs include lawyer, marketing associate, writer / copywriter, executive / manager, operations / logistics specialist, software developer, customer service specialist / front desk officer, sales, and more. Other manual jobs that people who are vision impaired can do include massage therapist, musician, para athlete, packer, and more.
You can see that a lot of office jobs are possible, mainly because of assistive technology that help us use work and office software. This naturally requires training and access to the right tools but with the correct support, a lot of things are possible.
Hope this helps!
@@JoshTseng thank you I’m currently 23 old from the have no vision in my left eyes due to many operations on it (cataract) and in my right eye I have a cataract but I’m scared to have surgery again 😬 this has been affecting my life alot any advice???
Hi, I'm sorry I missed your previous reply, work's been busy and I missed your reply in the comments. Hope this reply can reach you in time to help.
I'm sorry to hear about vision loss from your cataract surgery, usually that's very rare. But I also understand how scary it is to lose vision after surgery -- that's how I lost the little remaining eyesight I had, after my last eye surgery which decreased my vision enough to make me unable to see anything clearly.
I'm not an eye doctor though, and so my advice on how to handle this is very limited. I'm inclined to tell you to listen to your doctor, but I also understand it can be very difficult to trust everything you hear from just one person. If you can afford it, you may want to seek a second opinion from any eye specialists in your area on what options are open to you, and don't be afraid of asking questions about medications, surgeries, and post-surgery recovery.
Still though, almost every surgery comes with minor risk, and especially for very complicated eye problems, vision loss (with and without surgery) may not be avoidable. Like my case with glaucoma.
I understand that losing your vision can be scary, and obviously let's hope it doesn't happen. But just realise that a disability like blindness isn't going to mean you can't do anything anymore.
As mentioned in my previous reply, there's still many jobs that the blind can do, and also hobbies and relationships are still possible. It took a lot of effort, but I'd say I live a relatively normal life and am very happy, despite being blind.
Don't give up and wishing you all the best.