Keep going. Stay strong and never surrender. I was diagnosed with MS 11 years ago and I still love my life. MS can be a pain but it has taught me how to be a better person. 🙏🏻 Namaste.
Ty m Yes it has progressed to a degree. But I’m still able to do most things and I’m still standing. At the moment my MS is very stable and progression is slow. So I consider myself to be very fortunate.
George Robertson hi I am 25 26 in July I was diagnosed in Sept 2016 and still I need help it's made me house bound... The fatigue is the worse and my balence is in and off specially in crowded spaces sorry not good at spelling lol. I have had anxiety since I started high school I met my fiance 5 years ago nearly and he helped me alot I was just getting out of that shell... Then I got kicked backed to the curb again with multiple sclerosis. I am struggling can I still do what I want how do I help my self I try to do exercises in the house but am I not doing enough.. What do I eat.. I have over active bladder as well was offered botox but I rejected I said yes then was scared of the other problems after. I want to lose weight too my body is always aching I lost my vision back in 2016 July only improved but not 100% I lost my balence back in Sept 2016 for 3 months nearly open was off balence really bad and felt drunk spinning even made me sick.. I am on copaxone injections 3 times a week been on a year about now. Please add me willoubooby@googlemail.com thanks x
George Robertson just being a little bossy ... looking for ms support ... I will be 30 this year I got diagnosed in 2014..... it been really traumatic for me ..... my dad has rr ms so I saw what it does growing up and I’m just having a really hard time it’s great to see (read) that ur had progressed slowly .... mine has professed quite rapidly ..... reason I’m looking for people with ms to just talk about it ... I have more bad than good days .... have a great day ! :)
Hi Izzy, George, Blondie, Ty and Others. I am a 2nd generation MSer. I realize I have more hope than my Mom did during her life, simply because there is treatment now, that was never available to her. What I never considered while growing up and watching my Mom, was the importantance of our diet to help treat this horrible chronic condition. Please check out the Wahl's Protocol. Dr. Terri Wahl's is a practicing physician who developed MS. She has managed to reverse her symptoms; they were acclerating to the point of not being able to walk or work. I truly believe we need to improve and follow a better diet. Additionally, I do believe a predisposition has something to do with this affliction. Something I would really like to know from anyone who has MS; did you notice you had anxiety presenting itself, even though you weren't worried about anything? I felt a physical tremor desend on me. I never had this physical symptom since my days in college/university. I told my doctor about this, and said I don't have anything hanging over my head that would cause me to worry like this. I no longer have anxiety, but MS is slowly taking over my life. I honestly believe, there will be a cure during our life. I wish you all better days and please continue to reach out to others in our community. You're not alone.
I've been diagnosed in February of this year (2018), it was hard at first, but now, believe it or not, I'm thankful I have it. It made me a better person, more calm, more loving, more thankful for my body working every single day
Thank you for deciding to keep the videos coming, I really enjoy watching them and I relate to so many things you said. I spent half a year trying to ignore what was going on with me and around me but after that half year and my second attack I was the person desperately trying to find people my age dealing with the same thing and your videos have been extremely inspiring and uplifting to me, so thank you ♥️
thank you for your videos. I was diagnosed 5 years ago, at the age of 19. your videos are always very touching for me to watch, as I can relate to your story so much. Stay strong and keep your head up! :)
I was diagnosed 10 years ago, and I tell people that MS is the best thing that happened to me. My lifestyle before the diagnosis was very destructive. Definitely life changing!
Hey izzy, I've been catching up on some of your videos while sleep alludes me lol. I can relate with you feeling so supported by friends and family since the diagnosis. It really has changed my life for the better. Though at the moment ms is incurable, its given my life purpose. I have an easier time as well talking with strangers who also live with our condition than people I know. Its truly remarkable how much change I've gone through, and I couldn't be happier. Before my diagnosis my life was in a downward slope and I remember all the stress I was going through at that time. I've been on tysabri for nearly two years and its helped to give my life back. It really is incredible how living with Multiple Sclerosis has made my life better. Thank you so much for the influence you've given me, and helping me feel less alone in the world. Keep living constant recovery as always:)
Thank you for your video and your part in fighting multiple sclerosis. You are right it's easier to share your story with others the understanding of what you're going through. I personally haven't been diagnosed disease. I've been working for 10 years. I've been seeing the same neurologist since I was 24 years old now I'm 51. You will get so much smarter than most. Your new friend, Christine
I think it's brilliant that you are doing this and allowing us into your life. I think this is helps all of us including yourself, letting us know we are not alone. This is a new chapter in your life and it will be a great one!. Cheers!! Feom Canada💕💕💕😊
A multiple sclerosis support group was formed by my friend Andrea in 2008. People started joining And posting videos all over the world. That is when CCSVI Chronic cerebrospinal venous insufficiency (CCSVI) by Dr. Paolo Zamboni of the University of Ferrara in Italy. CCSVI describes a theory in which the veins in the head and neck are narrowed or blocked, and therefore unable to efficiently remove blood from the central nervous system.Was proving to help and even cure people with MS. For some time the United States insurance pay for the procedure and people were traveling to different countries to have the procedure done. I was the second person that have the procedure done (successfully) at Swedish Medical Center in Seattle Washington. I found out that the veins in my left side of my body were narrowed. The procedure is done by interventional radiology where they stick a catheter through your vein and your leg and go all the way up to your neck and have a balloon procedure to widen the narrative Jugular vein that Drains Blood from your head. They tried five times to my left vein in my leg so they switched went through my right vein and this was risky because Drs. have to go and the heart twist the catheter all around to make it enter the left jugular vein. My brain was not narrowed there was 5 inches actually narrowed where I meeting vein replacement.No blood passes through my left jugular vein and I just happened to be blind in my left eye which is not genetic. Some MS patients have the procedure that worked. Some costs them dearly and caused blood clots because they would put A stent to hold the Vein open. Stents are only meant for arteries not veins. A lot of people then tried the drug Tysabri which worked successfully for a lot of people. A good friend of mine, Angela, got a disease called PML which is a brain disease. It permanently disabled her. A lot of people are trying to treatments that were not exactly Familiar with. I went back to the national Institute of health in 2011 and was featured on CBS 60 Minutes. I was then told I have a rare Undiagnosed disease. My working disease was closest to MS. I started seeing my neurologist at the age of 24. I do believe have this disease for very much longer because I also have blindness and respiratory failure Plus many other Disorders. I worked for the airline for 15 years and like you I was very physically active. I've been studied at the University of Washington for over 33 years. I was fortunate to be studied and to other states besides Washington DC. I can't give up. My diseases too painful because it involves my muscles so I constantly have to be moved. I retired from the airline in 2003 and that will turn 2005. This year I'll be celebrating 10 years working. I get dual benefits so my medical was paid for 100% and I have caregivers, On my condo and live at home and I'm fighting. A lot of people helped me. It's watching videos like you that have always encouraged me to keep moving forward. Many people have Remained in the support group But many faded away. I know a lot of people subscribed to my channel so I encourage them to make videos. Other people have different connections so there are other support groups out there I just subscribed when I see a video like yours. We often skyped. I just got a new computer and I got back on Skype. I have friends all over the world.My Skype address is christinedav66 Passing this MS group to the new generation you. I subscribe to all kinds of people with all sorts of diseases now. Christine
I am a black american Christian at the age of 50 looking to be married. Growing in Christ is important to me and I would like to grow with someone as well.
Keep going. Stay strong and never surrender. I was diagnosed with MS 11 years ago and I still love my life. MS can be a pain but it has taught me how to be a better person. 🙏🏻 Namaste.
George Robertson after the 11 years. has the MS progressed?
Ty m Yes it has progressed to a degree. But I’m still able to do most things and I’m still standing. At the moment my MS is very stable and progression is slow. So I consider myself to be very fortunate.
George Robertson hi I am 25 26 in July I was diagnosed in Sept 2016 and still I need help it's made me house bound... The fatigue is the worse and my balence is in and off specially in crowded spaces sorry not good at spelling lol. I have had anxiety since I started high school I met my fiance 5 years ago nearly and he helped me alot I was just getting out of that shell... Then I got kicked backed to the curb again with multiple sclerosis. I am struggling can I still do what I want how do I help my self I try to do exercises in the house but am I not doing enough.. What do I eat.. I have over active bladder as well was offered botox but I rejected I said yes then was scared of the other problems after. I want to lose weight too my body is always aching I lost my vision back in 2016 July only improved but not 100% I lost my balence back in Sept 2016 for 3 months nearly open was off balence really bad and felt drunk spinning even made me sick.. I am on copaxone injections 3 times a week been on a year about now. Please add me willoubooby@googlemail.com thanks x
George Robertson just being a little bossy ... looking for ms support ... I will be 30 this year I got diagnosed in 2014..... it been really traumatic for me ..... my dad has rr ms so I saw what it does growing up and I’m just having a really hard time it’s great to see (read) that ur had progressed slowly .... mine has professed quite rapidly ..... reason I’m looking for people with ms to just talk about it ... I have more bad than good days .... have a great day ! :)
Hi Izzy, George, Blondie, Ty and Others. I am a 2nd generation MSer. I realize I have more hope than my Mom did during her life, simply because there is treatment now, that was never available to her. What I never considered while growing up and watching my Mom, was the importantance of our diet to help treat this horrible chronic condition. Please check out the Wahl's Protocol. Dr. Terri Wahl's is a practicing physician who developed MS. She has managed to reverse her symptoms; they were acclerating to the point of not being able to walk or work. I truly believe we need to improve and follow a better diet. Additionally, I do believe a predisposition has something to do with this affliction. Something I would really like to know from anyone who has MS; did you notice you had anxiety presenting itself, even though you weren't worried about anything? I felt a physical tremor desend on me. I never had this physical symptom since my days in college/university. I told my doctor about this, and said I don't have anything hanging over my head that would cause me to worry like this. I no longer have anxiety, but MS is slowly taking over my life. I honestly believe, there will be a cure during our life. I wish you all better days and please continue to reach out to others in our community. You're not alone.
I've been diagnosed in February of this year (2018), it was hard at first, but now, believe it or not, I'm thankful I have it. It made me a better person, more calm, more loving, more thankful for my body working every single day
Thank you for deciding to keep the videos coming, I really enjoy watching them and I relate to so many things you said. I spent half a year trying to ignore what was going on with me and around me but after that half year and my second attack I was the person desperately trying to find people my age dealing with the same thing and your videos have been extremely inspiring and uplifting to me, so thank you ♥️
A decent ambassador for us all, props
It’s been 10 years for me. I’m about the do lemtrada and I SO appreciate hearing your experience with it! Thank you so much!
It has been four years for me, and I am still in shock, and still grieving.
I yell at myself; it keeps me going. Never get down, get angry, and push.
thank you for your videos. I was diagnosed 5 years ago, at the age of 19. your videos are always very touching for me to watch, as I can relate to your story so much.
Stay strong and keep your head up! :)
I got diagnosed 4 years ago when I was 19, love the videos you do! X
I was diagnosed 10 years ago, and I tell people that MS is the best thing that happened to me. My lifestyle before the diagnosis was very destructive. Definitely life changing!
Laura Gud how are you doing?
Hey izzy, I've been catching up on some of your videos while sleep alludes me lol. I can relate with you feeling so supported by friends and family since the diagnosis. It really has changed my life for the better. Though at the moment ms is incurable, its given my life purpose. I have an easier time as well talking with strangers who also live with our condition than people I know. Its truly remarkable how much change I've gone through, and I couldn't be happier. Before my diagnosis my life was in a downward slope and I remember all the stress I was going through at that time. I've been on tysabri for nearly two years and its helped to give my life back. It really is incredible how living with Multiple Sclerosis has made my life better. Thank you so much for the influence you've given me, and helping me feel less alone in the world. Keep living constant recovery as always:)
I just recently found your channel and its meant so much to me as I was JUST diagnosed with aggressive RRMS as well. Thank you for posting it :)
Thank you for your video and your part in fighting multiple sclerosis. You are right it's easier to share your story with others the understanding of what you're going through.
I personally haven't been diagnosed disease. I've been working for 10 years. I've been seeing the same neurologist since I was 24 years old now I'm 51. You will get so much smarter than most.
Your new friend, Christine
Be strong! For every age!
I think it's brilliant that you are doing this and allowing us into your life.
I think this is helps all of us including yourself, letting us know we are not alone. This is a new chapter in your life and it will be a great one!. Cheers!! Feom Canada💕💕💕😊
P.s. sorry about the typos, it's late here!😄
A multiple sclerosis support group was formed by my friend Andrea in 2008. People started joining And posting videos all over the world. That is when CCSVI Chronic cerebrospinal venous insufficiency (CCSVI) by Dr. Paolo Zamboni of the University of Ferrara in Italy. CCSVI describes a theory in which the veins in the head and neck are narrowed or blocked, and therefore unable to efficiently remove blood from the central nervous system.Was proving to help and even cure people with MS.
For some time the United States insurance pay for the procedure and people were traveling to different countries to have the procedure done.
I was the second person that have the procedure done (successfully) at Swedish Medical Center in Seattle Washington. I found out that the veins in my left side of my body were narrowed. The procedure is done by interventional radiology where they stick a catheter through your vein and your leg and go all the way up to your neck and have a balloon procedure to widen the narrative Jugular vein that Drains Blood from your head.
They tried five times to my left vein in my leg so they switched went through my right vein and this was risky because Drs. have to go and the heart twist the catheter all around to make it enter the left jugular vein. My brain was not narrowed there was 5 inches actually narrowed where I meeting vein replacement.No blood passes through my left jugular vein and I just happened to be blind in my left eye which is not genetic.
Some MS patients have the procedure that worked. Some costs them dearly and caused blood clots because they would put A stent to hold the Vein open. Stents are only meant for arteries not veins.
A lot of people then tried the drug Tysabri which worked successfully for a lot of people. A good friend of mine, Angela, got a disease called PML which is a brain disease. It permanently disabled her.
A lot of people are trying to treatments that were not exactly Familiar with. I went back to the national Institute of health in 2011 and was featured on CBS 60 Minutes. I was then told I have a rare Undiagnosed disease.
My working disease was closest to MS. I started seeing my neurologist at the age of 24. I do believe have this disease for very much longer because I also have blindness and respiratory failure Plus many other Disorders.
I worked for the airline for 15 years and like you I was very physically active. I've been studied at the University of Washington for over 33 years. I was fortunate to be studied and to other states besides Washington DC.
I can't give up. My diseases too painful because it involves my muscles so I constantly have to be moved. I retired from the airline in 2003 and that will turn 2005.
This year I'll be celebrating 10 years working. I get dual benefits so my medical was paid for 100% and I have caregivers, On my condo and live at home and I'm fighting. A lot of people helped me.
It's watching videos like you that have always encouraged me to keep moving forward. Many people have Remained in the support group But many faded away. I know a lot of people subscribed to my channel so I encourage them to make videos.
Other people have different connections so there are other support groups out there I just subscribed when I see a video like yours.
We often skyped. I just got a new computer and I got back on Skype. I have friends all over the world.My Skype address is
christinedav66
Passing this MS group to the new generation you. I subscribe to all kinds of people with all sorts of diseases now.
Christine
KEEP making video babe interesting yes MS has the power to turn your life around
Thank you. I cried.
Your a Queen
I have ms you have to stay strong
Please make some more videos.🧡
Isobel 4 me chronic fatigue is my biggest problem how bout u
Can doing exercise favor MS. Am too diagnosed with MS. Plz reply
Yes!
forgetting to ask miss young beautiful do you go to shift.ms
I am a black american Christian at the age of 50 looking to be married. Growing in Christ is important to me and I would like to grow with someone as well.
Lovely!
I am watching one video per day .. 😂😂
So expect one comment per day! 🌚💔😂
Woohoo thank you! 💕💕