1 Year With Aggressive Multiple Sclerosis

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  • Опубліковано 16 лис 2024

КОМЕНТАРІ • 56

  • @MCIADS
    @MCIADS 7 років тому +8

    What you are doing is great ♡ I am 19 and when I was diagnosed last year I felt really alone too because we are not used to see young people that is chronichally ill. What you are doing is super helpful to change that, specially for people with MS as it is often diagnosed in younger people.
    This is beautiful I hope you make more videos I would be so happy ♡♡♡

    • @IzzyMS
      @IzzyMS  7 років тому +1

      Bless you thank you so much for this message

  • @FeralTexan
    @FeralTexan 7 років тому +4

    I was 27yrs old when I was diagnosed with MS. I noticed my feet were tingling so badly. I went to bed thinking it was nothing. Woke up the next day and I was completely numb from the waist down and my left foot wouldn't work. I had to drag my left leg because my foot wouldn't work. Long story short, ended up at a neurologist. Was given steroids while we waited on test results. Had an MRI of my brain and spinal cord. Also had a spinal tap. After about a week on steroids, my symptoms were almost all gone. Found out that I had RRMS 2 weeks before my wedding. It's been 9 years since my diagnosis and I haven't had a flare up since the 1 that got me diagnosed.

    • @Metal00m
      @Metal00m 7 років тому +1

      Wow! Glad to hear it has been 9 years clear! Similar story here, had a very numb/stiff knee one day, the next it was my left side waist down.

  • @amymiller789
    @amymiller789 7 років тому +6

    Izzy it's amazing that you have put yourself out there and created this channel, your other 2 videos have really helped me. I was diagnosed with RRMS in November 2016 and I'm 24 now. Thank you for talking about it :) x

    • @IzzyMS
      @IzzyMS  7 років тому +1

      Thank you Amy :) so glad to hear my videos have helped in some way! Hope you are keeping well x

    • @IrisMoon22
      @IrisMoon22 4 роки тому

      How are you doing now??? I'm currently going under testing to see if i havd MS I'm 25 about to be 26 in 2 weeks

  • @karl6933
    @karl6933 5 років тому +1

    I do not know how those who put thumbs down feel!!!
    This is truly genuine video describing a live of a wonderful lady.

  • @verofleblanc
    @verofleblanc 5 років тому +2

    Wow i like your videos, i would of loved them when i was diagnosed in 1995, but it wasn’t possible then. So keep making them for other generations you are doing something good🥰

  • @camilocardenas9470
    @camilocardenas9470 7 років тому +2

    Izzy great to see you're coping better with the diagnose, and also such a lovely face to watch in a video ;) hugs!

  • @111sintastic111
    @111sintastic111 5 років тому +3

    I have had primary progressive multiple sclerosis apparently since I was 13, I’m 29 this year and it’s just going to get worse and worse I can’t even walk more than around the house without something to lean on. Only thing I’m happy about is I have been good at skating bmx mountain biking surfing body boarding and a bit of Kung Fu, I don’t look at it like oh I can’t do that anymore, I look at it like I’ve done all this, it’s saddening yes but I have so many awesome memories of what I have done. MS is a biatch ;-; and I wouldn’t wish it upon anyone. 😢😢

  • @bradkoberinski7733
    @bradkoberinski7733 6 років тому +1

    Hi Izzy. I was diagnosed with ms last March. Listening to your story sounds a lot like me. Almost exactly lol. Glad to hear your treatment is going good. I start soon. God bless.

  • @mickjones9750
    @mickjones9750 7 років тому +2

    thank you for yur videos, ive been struggling badly lately. it was good to watch your videos

  • @paulhinz8761
    @paulhinz8761 6 років тому

    You are being very optimistic and that's great to see. I know very well the struggles of neurological problems. Your optimism alone will help many people out

  • @einar6229
    @einar6229 7 років тому +1

    Your strength, determination and passion for life is beyond admirable, i am part of an MMA team, one of our guys was a highly talented and promising fighter, he was diagnosed with aggressive MS a little over two years ago, which immediately ended his fighting career, he battled depression, medication and various forms of physio therapy, of which all drove him further and further into that dark depression but, the main thing which got him through was his desire, passion and those of us around being there for him, I'm not talking about some kind of miracle of course, he still has a few problems much like yours, it just got him through it all and now fortunately he is back to training, he will never be able to fight again, indeed that kind of hobby would be far too dangerous, in his own words "I've just had the fight of my life, i see new colours now" ... you have that same spirit, you are a fighter and i wish you only the very best, make sure you crack on and live that life :)

  • @eb6973
    @eb6973 6 років тому +1

    My MS has done a 360 in a bit over a year at this point. I figured I was being punished for my past mistakes all my doctor's have told me stress is a huge reason why people decline and Lord knows I've been stress. Crazy how stress affects MS.

  • @k.m.slattery6263
    @k.m.slattery6263 7 років тому

    Love the little guys helping you out in the trees😊

  • @johnrutherford5737
    @johnrutherford5737 7 років тому +2

    Well done Izzy, its great to hear you've done so well. Keep up the good work and positive mindset. MS doesn't have to have the negative image that sometimes proceeds it!

    • @johnrutherford5737
      @johnrutherford5737 7 років тому

      I'll be back in hospital for my 2nd round of Lemtrada in Feb. Love to hear how you get on around the time if you're up to it

    • @IzzyMS
      @IzzyMS  7 років тому

      definitely! In my videos I am trying to create a positive image that a diagnosis does not mean the end of the world :) everyone can still achieve everything they want too

    • @johnrutherford5737
      @johnrutherford5737 7 років тому

      Completely agree with that! Good to see people of similar ages attempting to reach a common goal!

  • @QBlackDeathQ
    @QBlackDeathQ 7 років тому

    I am glad to hear your back to your upbeat self.

  • @jdmikels
    @jdmikels 6 років тому

    I just found your channel and I really like that you are so down to earth and you have a great personality. I will check out your other videos and keep up with the new ones as well. I was diagnosed awhile ago and MS is a very strage disease. I am looking for healthy alternatives because I am in a MS forum and there are so many members who are taking a med, but it appears that it is somewhat helpfull, but the side effects are horrible. I have to see my doctor in a couple of weeks to choose a new med, but I rather be eat healthy, excercise and continue to be positive. Anyways, I look forward to your future videos and I hope you are doing well.

  • @MarioSequeraAlexander
    @MarioSequeraAlexander 7 років тому

    Helpful +++ Thank you for insight, The sounds all around and your message are perfect.

  • @HannahSmithSWJ
    @HannahSmithSWJ 7 років тому +2

    Hey Izzy, I just wanted to let you know that I set up a Facebook group called "Chat MS - Newly Diagnose/Young People" it's a lovely group and I set it up for the exact same reason.. There are some lovely people on there and we are a fab bunch.. You are so more than welcome to join if you want to and know that we are here for you :-) xxx

  • @jacobmartinez6798
    @jacobmartinez6798 6 років тому

    hi my name is Jacob I have MS and yes at first it sucks but two years so for and yeah just stay happy and you got it under control 🙄 .

  • @umbertofurlan501
    @umbertofurlan501 4 роки тому

    you are simply beautiful. nothing more to say.

  • @kevinmartin1975
    @kevinmartin1975 7 років тому +1

    what a cutie I also have ms and I'm not on medication yet but I will be soon I hope...

  • @anthonygoritchan6285
    @anthonygoritchan6285 6 років тому

    You are so inspirational!!!!

  • @benwright7844
    @benwright7844 7 років тому

    Amazingggg, keep being you xxx

  • @KS-yp1jl
    @KS-yp1jl 7 років тому +1

    you are ace!

  • @michelletaylor9916
    @michelletaylor9916 7 років тому +1

    I was just diagnoised and i am very overwhlemd i have 1 year old and idk what to do idk anyone with it i dont know any groups....idk where to even go from here... Ive been to my first mri but im very lost and i just dont know.

    • @michelletaylor9916
      @michelletaylor9916 7 років тому

      Idk about the medicine nothing how long ill live if ill ever get to see my son get married or run and play with him if anyone has it and ia willing to talk and give me more insight please it would be greatly appreciated

    • @mandielou
      @mandielou 6 років тому +1

      How are you doing now? I'm in limbo at the moment. But I can say this ...you will be ok. Keep yourself healthy with diet and exercise and be as stress free as possible. I know for me stress, exercise anything strenuous physically and mentally exacerbates my symptoms. Enjoy your son, everyday. Make it count when you can... your son will understand. My son is a lover so if yours is anything like mine he'd be ok with cuddling up watching a movie on your bad days. Not everyone ends up in a wheelchair at a young age and sometimes not even in older age. It just depends on how you take care of yourself. Eat foods that lower inflammation, short periods of exercises, and relax when you need it. Take the meds if you have to, they can slow the progression of the disease by far, ....with side effects of course for some....if you want to talk I'm here for you. Get ahold of me on FB and leave a message so I know it's you😊❤️stay strong and fight bc you have one of the biggest reasons to... your son.😘

    • @mandielou
      @mandielou 6 років тому

      Antionette Taylor most of the time your life span doesn't decrease a whole lot when treated correctly. Find yourself a second opinion and do your research. (Not through Google)lol it'll scare you more than you need to be.... trust me I was there 🙄

    • @mandielou
      @mandielou 6 років тому +1

      Antionette Taylor oh and I forgot a really important part of keeping healthy and less attacks, hopefully...are treating infections in your body (silent infections) mainly your gut(intestines) and keeping them at Bay. Also sunlight. Loads of vitamin D, B12 are very helpful. People who are further from the equator have the highest rates of MS, that's bc they don't get as much sunlight. So bake yourself , not literally tho.(of course safely with sunscreen for protection for the harmful Ray's) oh and speaking of baking... smoke pot or eat edibles or take CBD oil and see if you get relief. If you're in the United States it shouldn't be hard to get your card to use and carry. If you do this or already have and you go to a dispensary, ask them which strains would less likely cause anxiety... Bc some do horribly and you don't want that.

    • @michelletaylor9916
      @michelletaylor9916 6 років тому

      Hey sweetie!! Whats your facebook name

  • @ziggypete1593
    @ziggypete1593 6 років тому

    Your a beautiful young lady, I’m guessing you have RR MS , not to say you’ve not been to hell and back, I’m 10 years in now, went SP after 5 years , don’t think there’s a lot they can do for me because of that x

  • @fieldsofomagh
    @fieldsofomagh 7 років тому +6

    Glad to hear that things are improving for you. Always keeping you in my prayers to Jesus who is the source of healing, par excellence, both of soul and body, in that order. I would like to introduce you to a dear heavenly friend and his name is St Padre Pio. A woman who lives nearby with 2 children ,was very sick and prayed to my friend and is now back, driving her car.Could I suggest that you would Google my friend and pray to him. I promise, you will not be disappointed.

  • @NuminousPalms
    @NuminousPalms 7 років тому

    thank you :)

  • @joshiewizz9054
    @joshiewizz9054 7 років тому

    Hi guys I living with progressive ms for 8years now I'm 25 years old and now coming the point I can't handle my pain can anyone advise me what to do

    • @jeffroberts1649
      @jeffroberts1649 6 років тому

      Research Dr. Jennifer Daniels, I just discovered her.

  • @soon1429
    @soon1429 7 років тому +2

    i wanna visit the uk one day lol

  • @UTClassof
    @UTClassof 7 років тому

    Im curious, have you been tested for Lyme Disease? Nice Video!

    • @IzzyMS
      @IzzyMS  7 років тому +3

      Hey Marisa, yes I was tested for Lyme as soon as I went into hospital following my first attack and I do not have it

    • @sarahwakefield6420
      @sarahwakefield6420 7 років тому

      Izzy MS . Hi, your videos have really helped me. Im 25 and Im having lemtrada next month, i was diagnosed acouple of months ago. My father of my baby has now left me and going though it all alone. So this really does help. Thank you xxx

    • @OG-kg4wx
      @OG-kg4wx 7 років тому

      Stay strong Sarah. I'm not diagnosed yet however I am 99.99% sure I'll be diagnosed, the symptoms are too strong and specific

    • @stevecornock5391
      @stevecornock5391 7 років тому

      I was going to suggest the same thing, because I was diagnosed with ms in 2010, and after living with It until last year when I got the lyme diagnosis.....And I hope that she reads this.

    • @amandakay9978
      @amandakay9978 6 років тому

      O G this is the same for me for the past three years iv have been fighting my doc's for anwsers on why I woke up one day and the symptoms I have had off and on for years basically turned my left leg and lower back into jello when they found some docs issues they said there is no way that those disks could be impacting my back or leg so bad now 2018 things have got so bad and a whole realm of new symptoms so specific and then when having my first brain MRI having a lesion and contrast breaking the blood-brain barrier tremors major numbness in my feet numbness going up my legs Double Vision cognitive problems and watching these videos listening to these stories watching lecture after lecture on MS I feel that my symptoms are too specific and they don't fit fibromyalgia they don't fit Lyme disease there's too many things that are so close to Ms it scares me but what scares me more is that my care team that seems not to care about me doesn't have answers and they continually give me the same story every time I go in and give them new symptoms every time I'm left off to the side as though I'm nothing I'm trying to find a new primary care doctor I finally fought hard enough to get referred up to an MS Clinic filed a complaint against my neuro for the horrible treatment I got from the second time I ever met the lady and I'm going to keep pushing forward until I get listen to until I get answers and hopefully before I end up in the hospital completely crippled because of lack of treatment sorry for the rant

  • @hectorluna3482
    @hectorluna3482 6 років тому +1

    I want to go out with you

  • @luisrobles6580
    @luisrobles6580 7 років тому

    I feel u

  • @icetv1
    @icetv1 7 років тому

    I found out I have ms 2 months ago

  • @starman9921
    @starman9921 7 років тому

    Hope you do well you're amazingly beautiful

  • @3171jay
    @3171jay 6 років тому

    It's awesome for you to share your experience. Ms is a life changer. But if we stay in tune like you. Its very manageable. Way to rock it!! If you get a chance Google jay2prods. Apart of my Ms journey 🎶💪👍

  • @Intricateshotz
    @Intricateshotz 6 років тому

    YT MS VEGAN. try n believe